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NOAH Connections

NOAH Connections, bringing the albinism community together.

Introducing NOAH Connections

Inspired by our early pandemic “Social Distancing with Friends” series, as well as the heart-warming connections created during #VirtualNOAHCon2020, NOAH is delighted to introduce NOAH Connections, an ongoing series of virtual opportunities to bring the community together. An essential part of NOAH’s mission is to “provide a place where people with albinism and their families in the U.S. and Canada can find acceptance, support, and fellowship.” With the participation and engagement of community members like you, NOAH Connections will provide this opportunity for virtual “face to face” connections. Unless otherwise stated, NOAH Connections will be hosted on the Zoom platform.

We hope you’ll join us for one of many upcoming opportunities to connect!


What’s Your Vision?

Do you have a vision for future support forums, interest group meetings, educational sessions or social activities that would benefit the albinism community?

Submit your session ideas using this form to suggest upcoming content and connections for all!


Upcoming Opportunities to Connect:

Friday, February 26th ~ Parenting Without Pigment

Sunday, February 28th ~ Military Families

Thursday, March 4th ~ Teens

Thursday, March 4th ~ Young Adults

Sunday, March 7th ~ Kids Book Club (Recommended for Grades 5-8)

Sunday, March 7th ~ Adults Writing Workshop with Hana Schank

Wednesday, March 10th ~ Coffee Chat: Let’s Talk About Fundraising!

Sunday, March 14th ~ Exploring the World of Accessible Technology Products for Low Vision Solutions with Steve Ricci

Tuesday, March 16th ~ Albinism in the Legal Profession

Thursday, March 18th ~ Teens

Thursday, March 18th ~ Young Adults

Sunday, March 21st ~ Coffee Chat: Let’s Talk About Fundraising!

Wednesday, March 24th ~ PWA Book Club

Sunday, March 28th ~ Positively Unique: What Makes Us Rare:
Grades K-5 ~ Grades 6-8 ~ Teens

Wednesday, April 14th ~ Could Adults with Albinism Miss HPS?

Are you a parent or grandparent looking to connect with others in the albinism community?
Check out Parent Connections and Grandparent Connections!

NOAH Connections by Group:

Preschool ~ Grades K-5 ~ Grades 6-8 ~ Teens ~ Young Adults ~ Adults
Special Events ~ Everyone!


Preschool NOAH Connections

Preschool NOAH Connections

Preschool NOAH Connections

Next Call TBD

Sign up for Preschool NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Preschool NOAH Connections!


Grades K-5 NOAH Connections

Positively Unique: Celebrating What Makes Us Rare Sunday, February 28th with Jocelyn Leworthy, Certified Child Life Specialist

Grades K-5 NOAH Connections
Positively Unique: Celebrating What Makes Us Rare

Sunday, March 28th at 2:00pm ET

Join your friends with albinism to celebrate our uniqueness as individuals with a rare genetic condition. Each of us has developed certain skills and coping mechanisms, such as great memorization, that have become second nature to us as we navigate life with albinism. Jocelyn Leworthy a Certified Child Life Specialist and young adult living with Albinism will facilitate our discussion.

Sign up for Grades K-5 NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Grades K-5 NOAH Connections!


Grades 6-8 NOAH Connections

NOAH Kids' PWA Book Club
Recommended for Kids Grades 5-8

NOAH Kids’ PWA Book Club
(recommended for grades 5-8)

Sunday, March 7th at 3:00pm ET // 12:00pm PT

Join award-winning author (and parent of a daughter with albinism) Beth Vrabel and Certified Teacher of Students with Visual Impairments Kathi Garza for our discussion of “A Blind Guide to Stinkville” by Beth Vrabel.

Sign up for NOAH Kids’ PWA Book Club!

Check out this video of Beth reading the first chapter for us at the NOAH Conference:


Positively Unique: Celebrating What Makes Us Rare Sunday, February 28th with Jocelyn Leworthy, Certified Child Life Specialist

Grades 6-8 NOAH Connections
Positively Unique: Celebrating What Makes Us Rare

Sunday, March 28th at 3:00pm ET

Join your friends with albinism to celebrate our uniqueness as individuals with a rare genetic condition. Each of us has developed certain skills and coping mechanisms, such as great memorization, that have become second nature to us as we navigate life with albinism. Jocelyn Leworthy a Certified Child Life Specialist and young adult living with Albinism will facilitate our discussion.

Sign up for Grades 6-8 NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Grades 6-8 NOAH Connections!


Teen NOAH Connections


Teen NOAH Connections

Teen NOAH Connections
Overcoming Social Pressure

Thursday, March 4th at 8:00pm ET // 5:00pm PT

Sometimes social pressure can feel like it’s pushing down on you, so how do you overcome it? Teens, join hosts Casey Greer and Mackenzie Strong to discuss!

Sign up for Teen NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Teen NOAH Connections!


Teen NOAH Connections

Teen NOAH Connections

Thursday, March 18th at 8:00pm ET // 5:00pm PT

NOAH Teens, you’re invited to our next Teen Connections call!

Sign up for Teen NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Teen NOAH Connections!


Teen NOAH Connections
Positively Unique: Celebrating What Makes Us Rare

Sunday, March 28th at 4:00pm ET

Join your friends with albinism to celebrate our uniqueness as individuals with a rare genetic condition. Each of us has developed certain skills and coping mechanisms, such as great memorization, that have become second nature to us as we navigate life with albinism. Jocelyn Leworthy a Certified Child Life Specialist and young adult living with Albinism will facilitate our discussion.

Sign up for Teen NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Teen NOAH Connections!


Young Adult NOAH Connections

Young Adult NOAH Connections

Young Adult NOAH Connections
Family Dynamics with Albinism

Thursday, February 18th at 9:15pm ET // 6:15pm PT

Young Adults, join us for our next session to discuss family dynamics with albinism. This is a great chance to share our experiences and connect with fellow PWAs!

Sign up for Young Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Young Adult NOAH Connections!


Young Adult NOAH Connections

Young Adult NOAH Connections
Low Vision Hacks: Tips & Tricks

Thursday, March 4th at 9:15pm ET // 6:15pm PT

Young adults – what is your best low vision hack? Join us Thursday, March 4th at 9:15pm ET to compare and share tips & tricks for living the low vision life!

Sign up for Young Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Young Adult NOAH Connections!


Young Adult NOAH Connections

Young Adult NOAH Connections

Thursday, March 18th at 9:15pm ET // 6:15pm PT

Young Adults, join us for our next session. This is a great chance to share our experiences and connect with fellow PWAs!

Sign up for Young Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Young Adult NOAH Connections!


Adult NOAH Connections

NOAH Connections Black, Indigenous, People of Color

BIPOC NOAH Connections

Saturday, February 20th at 5:00pm ET // 2:00pm PT

The latest addition to our NOAH Connections offerings!
This gathering is intended for adults with albinism who identify as Black, Indigenous, People of Color (BIPOC). Our next session will tentatively focus on a discussion about the intricacies of living as BIPOC and living with albinism, and the nuances of identity in our communities.

This gathering, facilitated by Brandi Green and Natalie Devoramonifa, will take place on Zoom.

Sign up for BIPOC NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join BIPOC NOAH Connections!


NOAH Connections Aging with Albinism The Challenges and Joys of Our Senior Years

Aging with Albinism
The Challenges and Joys of Our Senior Years – hosted by June Waugh

Tuesday, February 23rd ~ 4:00pm ET / 1:00pm PT

NOAH Connections would like to invite you to join us in discussing the challenges and joys of our senior years as adults with albinism. We have made it through many of life’s passages and honed many skills along the way. Hopefully, we became wise as well as experienced! “Aging with Albinism” is an opportunity to connect with others, to share, to renew old friendships, to celebrate, and to acknowledge how albinism continues to be an integral part of our lives.

Sign up for NOAH Connections Aging with Albinism today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections Aging with Albinism!


Adult NOAH Connections

Adult NOAH Connections
Hobbies!

Thursday, February 25th at 9:00pm ET // 8:00pm CT // 7:00pm MT // 6:00pm PT

Join Casey Greer for a casual get-together with fellow PWAs to discuss hobbies. Whether you have many hobbies or are looking for something new to get into, this is a great chance to connect with the NOAH community!

Sign up for Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Adult NOAH Connections


NOAH Connections Adults with Albinism Parenting without Pigment

Parenting without Pigment NOAH Connections

Friday, February 26th at 9:00pm ET // 8:00pm CT // 7:00pm MT // 6:00pm PT

Are you a PWA with kids? This is the perfect group for you!
Join together with fellow parents without pigment to connect, discuss, share, and more! We hope to “see” you at our next gathering.

Sign up for Parenting without Pigment NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Parenting without Pigment NOAH Connections!


Writing About Albinism
A complimentary workshop for NOAH adults with author Hana Schank

Sunday, March 7th at 4:00pm ET // 1:00pm PT

Back by popular demand, Hana Schank is graciously sharing her time and talents with the NOAH community in Writing About Albinism, a complimentary workshop for NOAH adults. You won’t want to miss this incredible opportunity – mark your calendars now!

Register Now for Writing About Albinism!


People with Albinism in the Legal Profession
hosted by Arielle Lewis and Katy Carroll

Tuesday, March 16th at 8:30pm ET // 6:30pm PT

Calling all law students, lawyers, judges, and paralegals with albinism. You’re invited to join with fellow PWAs in the legal profession for a NOAH Connections social time just for you. Please join us Tuesday, March 16th at 8:30 pm for conversation and connections.

Note: This is a social time for people with albinism in the legal profession – legal advice will not be provided.

Register Now for People with Albinism in the Legal Profession!


NOAH PWA Book Club

PWA Book Club

Next Meeting: Wednesday, March 24th at 9:00pm ET

Current Reading Material: “There There” by Tommy Orange

All PWAs (18+ years old) can join NOAH’s Book Club – simply sign up and get your hands on a copy of the current book. Depending on the length of the book, we will meet every 1-2 months in NOAH’s zoom room for a discussion facilitated by the book club member who selected the current book. Members will take turns picking the next reading selection and facilitating the discussion!

Please note: NOAH’s book club is offered free of charge, but NOAH does not provide the current reading material to participants. You must purchase or borrow the selected book to participate!

Join NOAH PWA Book Club Today!


Could Adults with Albinism Miss HPS? Donna Appell, RN

Adult NOAH Connections: Could Adults with Albinism Miss HPS?
Donna Appell, RN

Wednesday, April 14th at 8:30pm ET // 7:30pm CT //6:30pm MT //5:30pm PT

Knowledge of HPS eliminates the risk of not knowing about something that may affect your well-being and makes preventative health management possible. HPS founder and president Donna Appell, RN provides an overview of this rare form of albinism.

Sign Up Today!

Are you a parent looking for more information about HPS? Join Donna Appell for our upcoming Parent Connections session, What You Need to Know About HPS.


NOAH Connections for Everyone

Ask the Doctors - Doctors with Albinism

NOAH Connections Ask the Doctors – Doctors with Albinism

Sunday, February 21st 5:00 pm ET

Have you ever wondered if you or your loved one with albinism would be able to become a medical doctor despite visual limitations? Well, it can be done–and we’d love to tell you all about it! Our panel will consist of Drs. Bob Gabbay and Megan Duffey and medical student Silpa Tadavarthy, all persons with albinism who have navigated or are navigating the beast that is medical education. We will tell you a little bit about how we did and are doing it and will answer questions from attendees.

Please note: We will not provide medical advice during this session.

Sign up for Ask the Doctors today!


NOAH Connections: Military Families

Sunday, February 28th at 8:30pm ET // 5:30pm PT

Calling all military families (active, reserve, retired), join us to connect, share experiences, and discuss the challenges of being a military family navigating life with albinism. Do you have tips and tricks to share? How you navigated EFMP, PCSing, Tricare, etc? 

Sign up for Military Families Connections today!

NOAH Connections Coffee Chat

NOAH Connections Coffee Chat!
Let’s Talk About Fundraising!

Wednesday, March 10th at 5:00pm ET // 2:00pm PT

Coffee Chats are an open invitation to have coffee with NOAH staff on Zoom. Share your thoughts on NOAH programming, share your voice, or simply join us for some social time.

Sign up for NOAH Connections Coffee Chat today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections Coffee Chat!


NOAH Connections Coffee Chat

NOAH Connections Coffee Chat!
Let’s Talk About Fundraising!

Sunday, March 21st at 3:00pm ET // 12:00pm PT

Coffee Chats are an open invitation to have coffee with NOAH staff on Zoom. Share your thoughts on NOAH programming, share your voice, or simply join us for some social time.

Sign up for NOAH Connections Coffee Chat today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections Coffee Chat!


Special Events

Exploring the World of Accessible Technology Products for Low Vision Solutions
with Stephen Ricci

Sunday, March 14th at 3:00pm ET // 12:00pm PT

More information coming soon!

Sign Up for Exploring the World of Accessible Technology Products for Low Vision Solutions