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NOAH Connections

Introducing NOAH Connections

Inspired by our early pandemic “Social Distancing with Friends” series, as well as the heart-warming connections created during #VirtualNOAHCon2020, NOAH is delighted to offer NOAH Connections, an ongoing series of virtual opportunities to bring the community together. An essential part of NOAH’s mission is to “provide a place where people with albinism and their families in the U.S. and Canada can find acceptance, support, and fellowship.” With the participation and engagement of community members like you, NOAH Connections will provide this opportunity for virtual “face to face” connections. Unless otherwise stated, NOAH Connections will be hosted on the Zoom platform.

Looking for a way to help? Let YOUR voice be heard!
Learn more about NOAH Connections Advisory Task Force opportunities!

We hope you’ll join us for one of many upcoming opportunities to connect!


What’s Your Vision?

Do you have a vision for future support forums, interest group meetings, educational sessions or social activities that would benefit the albinism community?

Submit your session ideas using this form to suggest upcoming content and connections for all!


Upcoming Opportunities to Connect:

In order to make efficient use of NOAH resources, if less than two attendees join a NOAH Connections call within 15 minutes of the published call start time, the NOAH Connections call will end.

Preschool ~ Grades K-5 ~ Grades 6-8 ~ Teens
Young Adults ~ Adults ~ Parents, Grandparents, & Caregivers
Special Interest ~ Everyone!

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!

Wednesday, April 3rd ~ Young Adults

Thursday, April 4th ~ Adults

Thursday, April 11th ~ Teens

Monday, April 15th ~ Why You Shouldn’t Miss NOAHCon Panel

Tuesday, April 16th ~ Aging with Albinism & Parenting without Pigment

Wednesday, April 17th ~ Ocular Albinism: Parents, Grandparents, & Caregivers & Young Adults

Thursday, April 18th ~ Adults

Thursday, April 25th ~ Teens

Wednesday, May 1st ~ Young Adults

Thursday, May 2nd ~ Adults

Thursday, May 9th ~ Teens

Monday, May 13th ~ PWA Book Club

Preschool NOAH Connections

Preschool NOAH Connections

Preschool NOAH Connections
with Kathi Garza

TBD

Join us for some Fun Fall Fingerplays as we chat about the beautiful changes fall brings. If you like spending time outdoors in the fall, collect a few treasures on a nature walk and bring them to Preschool Connections so we can share in the joy together! If you’re unable to go on a nature walk and would like to draw some of your favorite fall things, we’d love to see that, too!

Sign up for Preschool NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Preschool NOAH Connections!


Grades K-5 NOAH Connections

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!

Grades K-5 NOAH Connections

Grades K-5 NOAH Connections

Next Call TBA

Sign up for Grades K-5 NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Grades K-5 NOAH Connections!

NOAH Kids’ PWA Book Club
(recommended for ages 7-10)

Next Book Club TBD


Grades 6-8 NOAH Connections

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!

NOAH Kids’ PWA Book Club
(recommended for grades 4-8)
Next Book Club TBD

Teen NOAH Connections

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!

Teen NOAH Connections

Teen NOAH Connections

Thursday, April 11th at 8:00pm ET // 5:00pm PT
Thursday, April 25th at 8:00pm ET // 5:00pm PT
Thursday, May 9th at 8:00pm ET // 5:00pm PT

NOAH Teens, you’re invited to our next Teen Connections call!

Sign up for Teen NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Teen NOAH Connections!


Young Adult NOAH Connections

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!

Young Adult NOAH Connections

Young Adult NOAH Connections

Wednesday, April 3rd ~ 9:00pm ET // 6:00pm PT
Wednesday, April 17th ~ 9:00pm ET // 6:00pm PT
Wednesday, May 1st ~ 9:00pm ET // 6:00pm PT

Young Adults, join us for our next session. This is a great chance to share our experiences and connect with fellow PWAs!

Sign up for Young Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Young Adult NOAH Connections!


Adult NOAH Connections

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!


Adult NOAH Connections

Adult NOAH Connections

Thursday, April 4th at 9:00pm ET // 6:00pm PT
Thursday, April 18th at 9:00pm ET // 6:00pm PT
Thursday, May 2nd at 9:00pm ET // 6:00pm PT

Adult PWAs, you’re invited to our next session of Adult Connections! We hope to see you on Zoom for social time with fellow PWAs. 

Sign up for Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Adult NOAH Connections


NOAH PWA Book Club

PWA Book Club
hosted by: Casey Greer, Silpa Tadavarthy, and Chrys Buckley

Next Meeting: Monday, May 13th

Current Reading Material: Ella Minnow Pea by Mark Dunn

Are you an adult PWA (18+) who loves to read? Join us for the re-launching of the NOAH Book Club! Get a copy of our current reading material, and join us to discuss.

Please note: NOAH’s book club is offered free of charge, but NOAH does not provide the current reading material to participants. You must purchase or borrow the selected book to participate!

Join NOAH PWA Book Club Today!


Parents, Grandparents, & Caregivers

Are you a parent or caregiver who lives in Canada?
Sign up for NOAH Connections: Canadian Parents today!

Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!


Parent Connections

Next Call TBD

Join us to talk about parenting during the holidays and all of the things that come with this time of year.

Parents & caregivers – join us to become part of a community that “just gets it!” Stay tuned for upcoming calls including social time, educational presentations, and more.

Sign Up for Parent Connections!


Ocular Albinism – Parents, Grandparents, & Caregivers Connections
hosted by: Pamela Tarnawa

Wednesday, April 17th at 9pm ET // 6pm PT

Come talk, listen and discuss the unique ways OA is present in your life.

Pam Tarnawa is a mother to a son with OA, as well as the sister of two brothers and granddaughter of a person with OA. Even so, the journey to our OA discovery was not an easy path. After having her son, she changed careers and became a Teacher of Students with Visual Impairments. She is committed to creating a larger OA community and presence within NOAH.

Join Ocular Albinism Parents, Grandparents, & Caregivers Connections!


Grandparent Connections

Next Call TBD

Join us to discuss overstepping when it comes to being a grandparent of a child with albinism.

NOAH grandparents, join us to connect with fellow grandparents of children with albinism! Grandparents of kids of all ages are welcome to attend 🙂

Join Grandparent Connections!


NOAH Connections: Dads!
hosted by: Sam McClung

Next Call TBD

NOAH Dads, join us to connect with fellow dads of children with albinism. We’ll discuss the unique experiences of being a dad to a PWA and come together in the shared goal of being the best dads we can be for our children.

Register for NOAH Connections: Dads today!


NOAH Connections for Everyone


Why You Shouldn’t Miss NOAHCon Panel!

Monday, April 15th at 9pm ET // 6pm PT

If you’re on the fence about attending NOAHCon 2024, this is the perfect call for you! Join us for a panel discussion featuring NOAHCon attendees who can’t wait to share their first-hand experiences with the magic of the conference, and answer all your questions.

Sign Up for Why You Shouldn’t Miss NOAHCon Panel!


NOAH Connections Research Coffee Chat!

Next Call TBD

Are you interested in albinism research? Join the NOAH Research Program Committee for a call to discuss the program, share details about our Research Program Grant process and provide information and insight about NOAH’s ongoing support of albinism research and how you can GET INVOLVED.

Sign up for NOAH Connections Research Coffee Chat today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections Research Coffee Chat!

*please note* those signed up for the standard NOAH Connections Coffee Chat will not receive the link for the Research Program Coffee Chat. Please use the link above to sign up if you are interested in attending the Research Coffee Chat!


NOAH Connections Coffee Chat

NOAH Connections: Coffee Chat

Next Call TBD

Coffee Chats are an open invitation to have coffee with NOAH staff on Zoom. Share your thoughts on NOAH programming, share your voice, or simply join us for some social time.

Sign up for NOAH Connections Coffee Chat today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections Coffee Chat!

Special Interest


Low Vision Driving Chat
hosted by: Bonny Reinhardt

Next Call TBD

Adults with albinism – you’re invited to join Bonny Reinhardt and friends to discuss your experiences with low vision driving!

Sign up for NOAH Connections Low Vision Driving Chat today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections: Low Vision Driving Chat!


Prospective Drivers Connections
hosted by: Chuck Huss COMS, Lee Laughlin, Brandi Green LCSW, and Matt Bailey

Next Call TBD

Join us for a panel discussion for prospective drivers to learn more about low vision driving. We will be taking questions at the end!

Panelist Bios:

Brandi M. Green, LCSW

Brandi M. Green, LCSW is a licensed clinical social worker and works as a school-based counselor for high school youth. Additionally, she has experience in research, operations, and communications. In her free time, Brandi enjoys exercising, watching her favorite shows, sharing funny memes in group chats, and looking for opportunities to be creative. She also enjoys quiet and unplanned moments because rest is resistance (source: The Nap Ministry). 

Brandi holds a B.A. in English from Grinnell College, and an M.A. in social work from the University of Chicago. She is also the author of a children’s book called Golden Like Me, which shares the story of two Black children with albinism who meet for the first time.

Lee Laughlin

Lee Laughlin never expected to drive. A comment by her low vision specialist started a personal journey to learn if she could drive safely. She earned a daytime driving license in Massachusetts at the age of 29, six months later she earned a full license. When she & her family relocated to New Hampshire, she started driving with a bioptic telescope. Her current vehicle, a 2017 Kia Sportage is going strong with 120,000 miles on it. Lee also taught her daughter and son with albinism to drive. 

Matt Bailey

Matt Bailey is a person with albinism and has been a licensed driver using bioptics for 27 years. In 2013, Matt worked with a group of fellow bioptic users to legalize bioptic driving in North Carolina. He served on NOAH’s Board of Directors from 2000 to 2006.  Matt and his wife Melike, who also has albinism, live in Chapel Hill, NC with their 16 year old.

Chuck Huss, COMS

Mr. Huss received his Master of Arts degree in Orientation and Mobility from Western Michigan University, Kalamazoo, MI in 1976.  

He has worked as an Academy-certified Orientation and Mobility Specialist (COMS) in Ohio and West Virginia for the past 47 years, serving clients or students, pre-school through geriatrics.  

Mr. Huss is also nationally known for his work in formalized bioptic driver training and assessment – where he has been crossed trained and served as one of the driver rehabilitation specialists with the:

– West Virginia Pilot Low Vision Driving Study (’85-’88),  

– Its continuum of related services (’89-’08), and the  

– Current West Virginia Bioptic Driving Program (’09-’22).  

Prior to his retirement (1/05/22), his full-time employer for the past thirty-nine (39) years has been the West Virginia Division of Rehabilitation Services (WVDRS).

Honors/Awards: For his years of service, knowledge sharing and professional advocacy efforts revolving around “bioptic driving”, Mr. Huss was awarded the AER Ambrose Shotwell Award in 2012, a NOAH Distinguished Service Award in 2014, and an ADED Scholar’s Award in 2018.

Sign up for NOAH Connections Prospective Drivers Connections today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Sign Up for Prospective Drivers Connections


NOAH Connections: LGBTQ+ & Allies
hosted by: Sarah Kane

Next Call TBD

YOU belong here! Join us for a social gathering open to all LGBTQ+ and allies with albinism. Participants are welcome to connect however they are comfortable – leave your camera off or dial in via phone if video isn’t your style. We look forward to connecting with you!

Sign up for NOAH Connections LGBTQ+ & Allies today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections: LGBTQ+ & Allies!


PWAs in the STEM Fields
hosted by Sarah Kane & Derek Schindelman

Next Call TBD

PWAs in STEM, you’re invited to a social gathering hosted by Sarah Kane & Derek Schindelman!

Register to participate in this and future PWAs in STEM connections!


NOAH Connections Adults with Albinism Parenting without Pigment

Parenting without Pigment
hosted by: Kathi Garza

Tuesday, April 16th at 8:00pm ET // 5:00pm PT

Are you a PWA with kids? Parenting without Pigment is the perfect group for you!

Sign up for Parenting without Pigment NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Parenting without Pigment NOAH Connections


Aging with Albinism

Aging with Albinism is typically held on the third Tuesday of each month. See below for confirmed dates!

Tuesday, April 16th at 5:00pm ET // 2:00pm PT

PWAs 55+, you’re invited to our next session of Aging with Albinism!

Sign up for NOAH Connections Aging with Albinism today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections Aging with Albinism!


People with Albinism in the Legal Profession
hosted by Arielle Lewis

Next Call TBD

Calling all law students, lawyers, judges, and paralegals with albinism. You’re invited to join with fellow PWAs in the legal profession for a NOAH Connections social time just for you. Please join us for conversation and connections.

Note: This is a social time for people with albinism in the legal profession – legal advice will not be provided.


NOAH Connections: Military Families
hosted by: Ashley Maynard

Next Call TBD

Calling all military families (active, reserve, retired), join us to connect, share experiences, and discuss the challenges of being a military family navigating life with albinism.

Sign up for Military Families Connections today!


NOAH Connections Black, Indigenous, People of Color

BIPOC NOAH Connections
hosted by: Torey Alford

Next Call TBD

This gathering is intended for adults with albinism who identify as Black, Indigenous, and People of Color (BIPOC).

Sign up for BIPOC NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join BIPOC NOAH Connections!


Canadian Parents
hosted by: Rebekah Zigby

Next Call TBD!

Calling all Canadian parents of children with albinism! This group is just for YOU! Sign up today for info to join this call and you’ll be invited to future chances to connect with fellow parents from Canada 🙂

Sign Up Now!


Canadian PWAs

Next Call TBD

Sign up for NOAH Connections: Canadian PWAs today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join NOAH Connections: Canadian PWAs!