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Albinism Advocacy & Awareness

NOAH Advocacy and Awareness Program

The Albinism Advocacy and Awareness Program provides information and services to people with albinism, their families and the public to advocate for the advancement of people with albinism. The advocacy team consists of four divisions:

  • Discrimination Advocacy Team
  • Educational Advocacy Team
  • International Albinism Awareness Day Team
  • Advocacy Policy Research Team

The teams are made up of educators, medical professionals, trained parents and experts in their fields.

For Whom is the Albinism Advocacy and Awareness Program intended?
The program provides support and resources to parents, students and adults with albinism, educators and medical professionals seeking guidance concerning educational needs, services and supports directly related to albinism.

Advocacy Resources for Adults with Albinism:

NOAH Resource Library – Resources for Adults

Reasonable Accommodations in the Workplace Webinar Recording

How Unfounded Fear Disenfranchises Voters with Disabilities – by: Dan Ankeman

Advocacy Resources for Parents:

NOAH SchoolKit


NOAH Resource Library – Resources for Parents

Effective IEP Advocacy Webinar Recording

Advocacy Resources for Educators:

NOAH Resource Library – Resources for Educators

Have additional questions?

Contact NOAH’s Advocacy Program at