Thanks for dropping by!
Whether this is your first interaction with others in the albinism community or whether you’ve been involved since your earliest memory, we’re glad you’re here! We’ve put together some content that we hope will be helpful to you – regardless of your age – so take a look around. Also check back from time to time because some parts will change as we highlight information about careers, personal experiences and other points of interest.
Learn about how people in the albinism community decide on career as well as tips and tricks for finding jobs.
Working for a Living by Kelsey Thompson
Tips and Tricks to Being a Stage Performer by Casey Greer & Marleena Barber
Beyond Inclusion: Toward Multilayered Representation by Ashley J. Hicks
My TEDx Talk by Niya Pickett-Miller, PhD
Learn about vision aids that might be available to those with albinism.
Back to School: Apps That Help Low Vision Students Maximize Success by Olivia O’Connell
Cane Training: My Own Terms by Brandi Darby
Every person with albinism is intricately unique. Take a look at the following topics to see if any are of interest to you.
Transportation & Mobility
Learn about how people in the albinism community decided to drive, or not, as well as tips and tricks for all types of transportation.
My Story as a DMV Edge Case: How to Battle Bureaucracy and Win by Hannah Birch, ProPublica
The View from the Passenger’s Seat by Kelsey Thompson
Driving: Proud of my Accomplishments by Bryan Fischer
Albinism & Education
Learn about topics related to education including applying to college and college life.
Alex’s College Tips by Alex Carrillo
Albinism and Advocacy: College Accommodation Considerations by Kimberly Avila PhD, TBVI, COMS
The Struggle for the Tinted Visor by Wendy Williams
Dating & Mating
It’s hard for everyone, but if you don’t drive, or if you have a unique appearance, dating and mating can be even more challenging.
Let’s Talk About Love by Kelsey Thompson
Parenting and Albinism
How can I parent when I can’t drive my kid to soccer or ballet? How can I help my children react to the comments of their friends? Learn from others in the albinism community.
Inquire 2 Inspire: Parenting without Pigment by Kathi Garza
Albinism and Race by Marcie Pan
Aging with Albinism
As we age, suddenly we’re not sure about what’s normal and what’s not. Learn from others in the albinism community.
My Adventure in Cataract Surgery by June Waugh
Albinism Since 1930 by Wanda Warren
Albinism Goes Global
Latin America: Update on the Global Albinism Alliance by Carolina Gonzalez
Art Against Discrimination by Alechenu Godwin
“Mama, I’m famous!” by Cassandra Mendez
Is she Black or White? by L’tanya Geddie
Listening to Myself by Gabriella Straker
The Platinum Houstonian by Nimrah F. Saleem
Hermansky-Pudlak Syndrome (HPS) and Chediak Higashi Syndrome (CHS)
More information regarding the symptoms and treatments for these rare types of albinism can be found at www.hpsnetwork.org.