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NOAH Connections

NOAH Connections

View upcoming NOAH Connections offerings for:
Youth with Albinism ~ Teens with Albinism ~ Adults with Albinism ~ Parents & Caregivers ~ Grandparents

Inspired by our early pandemic “Social Distancing with Friends” series, as well as the heart-warming connections created during #VirtualNOAHCon2020, NOAH has been offering virtual opportunities for our community to connect through NOAH Connections for nearly 6 years! As we approach 2026, we’re excited to share an updated approach — designed to make it easier than ever to connect, learn, and build meaningful relationships within the albinism community.

Whether you’re returning or joining for the first time, we’d love to have you be part of NOAH Connections in 2026.

To receive invitations and reminders in 2026, everyone must sign up – including returning participants. This helps us send you the most relevant updates and ensure you’re included in the calls that matter to you. Sign up below for NOAH Connections

After you sign up:

  • Join virtual gatherings on Zoom, unless otherwise noted
  • Confirmation e-mail will be sent containing zoom information
  • Periodic reminders will be sent for the social connection calls you signed up for
  • Revisit this page for updated schedule information
  • Register for educational sessions and workshops as they’re added throughout the year

Why Join NOAH Connections?

  • Connect with people who get it: Meet others navigating different stages of the journey with albinism.
  • Get real-life support: Learn how peers navigate medical care, school, work, relationships, and daily life.
  • Connect with professionals: Receive accurate information about albinism directly from the experts
  • Find inclusive spaces: Join welcoming calls for all ages, identities, and life stages.
  • Explore shared interests: Take part in book clubs, parenting discussions, and special interest groups.
  • Join from anywhere: Free, virtual, peer-led gatherings that build connection and belonging.

View upcoming NOAH Connections offerings for:
Youth with Albinism ~ Teens with Albinism ~ Adults with Albinism ~ Parents & Caregivers ~ Grandparents


Upcoming calls for Youth with Albinism:

Our next call for Kids’ PWA Book Club is in the works. Sign up today & we’ll send you an email with all the details once it’s confirmed!

If you signed up for Kids’ PWA Book Club in 2025, no need to register again! You’re already on our list.

Other upcoming calls for youth with albinism:


Upcoming calls for Teens with Albinism:

Sign up once for Teen Social Connections, and you’re invited to all of our social gatherings for teens! Panels, educational calls, and special interest discussions will require a separate sign up.

Please note: Teen Social Connections are open to teens with albinism ages 13-17.

  • Sunday, January 4th – How I’ll Shine in the New Year
  • Thursday, January 22nd at 8pm ET // 5pm PT – Teen Social Connections
  • Tuesday, January 27th at 9pm ET // 6pm PT – Looking Our Best in 2026
  • Thursday, February 19th at 8pm ET // 5pm PT – Teen Social Connections
  • Tuesday, February 24th – Adaptive Sports – More info coming soon!!

Upcoming calls for Adults with Albinism:

Sign up once for Young Adult or Adult Social Connections, and you’re invited to all of our social gatherings for your respective group! Panels, educational calls, and special interest discussions will require a separate sign up.

Please note: Young Adult Social Connections are open to adults with albinism ages 18 – early 30s. Adult Social Connections are open to adults with albinism ages 18+

January:

February:

  • Sunday, February 1st – Doctors with Albinism
  • Tuesday, February 3rd – Aging with Albinism (55+)
  • Wednesday, February 4th at 9pm ET // 6pm PT – Young Adult Social Connections
  • Tuesday, February 10th – Parenting without Pigment
  • Thursday, February 12th at 9pm ET // 6pm PT – Adult Social Connections
  • Tuesday, February 17th – Aging with Albinism (55+)
  • Tuesday, February 24th – Adaptive Sports – More info coming soon!!

Upcoming calls for Parents & Caregivers of children with albinism:

Sign up once for Parent Social Connections, and you’re invited to all of our social gatherings for parents of PWAs! Panels, educational calls, and special interest discussions will require a separate sign up.

Parent Social Connections are typically held on the last Wednesday of each month. Please see below for confirmed call dates:


Upcoming calls for Grandparents of children with albinism:

Sign up once for Grandparent Social Connections, and you’re invited to all of our social gatherings for grandparents of PWAs! Panels, educational calls, and special interest discussions will require a separate sign up.

Sign up once for Grandparent Social Connections and we’ll send you email reminders for all future calls!

Grandparent Social Connections typically meets quarterly. Please see confirmed call dates below:

  • Tuesday, January 27th – Looking Our Best in 2026
  • February (date TBA) – Grandparent Mixer – sign up for Grandparent Social Connections and we’ll send you all the details when they are confirmed!
  • Tuesday, February 24th – Adaptive Sports – More info coming soon!!

Aging with Albinism

PWAs 55+, join us to connect and chat with others who just get it! Sign up once and we’ll send you email reminders for all future Aging with Albinism gatherings.

Aging with Albinism calls are typically held on the first and third Thursday of each month. Please see below for confirmed call dates:

  • Tuesday, January 6th at 8pm ET // 5pm PT – hosted by Cynthia Henton
  • Tuesday, January 20th at 5pm ET // 2pm PT – hosted by Mike Sikes
  • Tuesday, February 3rd at 8pm ET // 5pm PT – hosted by Cynthia Henton
  • Tuesday, February 17th at 5pm ET // 2pm PT – hosted by Mike Sikes

Doctors with Albinism

Doctors with Albinism is a supportive global community of physicians with albinism who meet monthly to share experiences and nurture and mentor each other. At this time, the group is only open to those that are either attending or completed medical school.

For those interested in careers in medicine or in related health fields, stay tuned for other programs coming soon!

Sign up once and we’ll send you reminders for all future Doctors with Albinism calls.

If you signed up for Doctors with Albinism in 2025, you’re already on our list – no need to sign up again!

Doctors with Albinism calls are typically held on the first Sunday of each month. Please see below for confirmed call dates:

  • Sunday, January 4th at 9am ET // 6am PT
  • Sunday, February 1st at 9am ET // 6am PT

LGBTQ+ & Allies Connections

YOU belong here! Join us for a social gathering open to all LGBTQ+ and allies with albinism. Participants are welcome to connect however they are comfortable – leave your camera off or dial in via phone if video isn’t your style. We look forward to connecting with you!

Sign up once & we’ll send you reminders for all future LGBTQ+ and Allies Connections calls.

  • Monday, January 19th at 8pm ET // 5pm PT

Parenting without Pigment

Join fellow parents with albinism for our next call! You won’t want to miss this chance to connect and chat with others who “just get it!”

Sign up once & we’ll send you reminders for all future Parenting without Pigment calls.

Parenting without Pigment is typically held monthly. Please see below for confirmed dates:

  • Monday, January 19th at 8pm ET // 5pm PT – Cartoons & Kids with Jackie Hernandez
  • Tuesday, February 10th at 9pm ET // 6pm PT – Valentine’s Day with Marleena Barber

PWA Book Club

Are you an adult PWA (18+) who loves to read? Join us for NOAH Book Club! Get a copy of our current reading material, and join us to discuss.

Sign up once & we’ll send you reminders for all future PWA Book Club meetings.

PWA Book Club is typically held every 2 months on the 2nd Monday of the month. Please see our next confirmed meeting date below:

Current Reading Material: “Aftertaste” by Daria Lavelle

Join us to discuss on Monday, January 12th at 8pm ET // 5pm PT


Please note: NOAH’s book club is offered free of charge, but NOAH does not provide the current reading material to participants. You must purchase or borrow the selected book to participate!


Parents of Newly-Diagnosed & Young Children with Albinism Workshop

This workshop, hosted by Megan Pitt, LMHC, will provide an opportunity for parents whose children have been newly diagnosed, or who are still in the early years of parenting to join a community that will share and learn about adapting to the new role of a parent of a child with albinism. The workshop will provide tools and strategies that will assist parents while providing a space to discuss concerns and gain support from a community of parents that truly understand. We will discuss the common challenges and struggles parents may face and provide a guide to managing them while providing the best possible support for your child.

  • Tuesday, February 10th at 8:30pm ET // 5:30pm PT

About Megan Pitt, LMHC

Megan Pitt, LMHC is a NYS Licensed Mental Health Counselor and a graduate of the University at Buffalo and Fordham University. Megan currently resides in NYS with her husband and two sons. Megan’s oldest son has Albinism. Megan currently owns her own private counseling practice. She manages NOAH’s New Parent Program in addition to being a regular workshop presenter, and is a Tele-Support group facilitator for The Lighthouse Guild.


Canadian Parent Connections

Join fellow parents of children with albinism living in Canada to connect and share!

Sign up once & we’ll send you reminders for all future Canadian Parent Connections calls.

Canadian Parent Connections will generally be held every other month. Please see below for confirmed dates:

  • Next call TBA – sign up for Canadian Parent Connections and we’ll send you the details when our next call is confirmed!!

How I’ll Shine in the New Year!

PWAs – join Casey & Marleena for a fun new year’s activity to set our goal and intentions for 2026!

  • Sunday, January 4th:
    • Kids & Teens at 8pm ET // 5pm PT
    • Adults at 9pm ET // 6pm PT

Looking Our Best In 2026!

Join Jennifer Renee, Jackie Hernandez, Iyana Le’Shea, and Mackenzie Strong as they discuss makeup products, application, and more for PWAs.

This call is open to all NOAH community members, and the panel discussion will be followed by separate breakout room chats for PWAs and parents/families!

  • Tuesday, January 27th at 9pm ET // 6pm PT