The NOAH SchoolKit provides information and resources to guide parents and caregivers in supporting general education teachers when a student with albinism will be in their classroom. The kit is divided into five sections with instructions and suggestions on how to use the information within it. Sections include informational sheets for teachers, documents to help guide conversations between parents / caregivers and educators and templates for student involvement in conversations and advocacy.
Children with albinism have different visual acuities, functional vision levels and personal developmental needs. The NOAH CARE Project (Create Albinism Resource for Education) provides resource information to aid in formulating your child’s education documents (IFSP, IEP or 504 Plan). At the CARE Project website, you can find information on grade level goals, assistive technology recommendations, Orientation & Mobility objectives and social development objectives.
Parent Connections Teleconferences
Join our Parent Connections program. The teleconferences consist of a limited number of parents to provide a safe and comfortable environment for you to voice concerns, ask questions, and share your experiences. Groups meet for one hour twice a month. They are facilitated by a licensed professional and feature presentations from professionals on raising children with albinism. This program is made possible by the generous support of the Lighthouse Guild International.
Grandparent Connections Teleconferences
The journey of grandparents of children with albinism is unique, and meeting others who are on the same journey can be very difficult. These teleconferences provide grandparents of children with albinism a place to connect and share their experiences with one another. Grandparents have the opportunity to connect with other grandparents, as well as specialists in the field of albinism from the comfort of home. The teleconferences are facilitated by a licensed professional and consist of a small group of grandparents. This provides a safe and comfortable environment for you to voice concerns, ask questions, share your experiences, and hear from professional guest speakers.
If you have any questions concerning NOAH Programs & Resources, please don’t hesitate to contact us at info@albinism.org.