NOAH Connections
Inspired by our early pandemic “Social Distancing with Friends” series, as well as the heart-warming connections created during #VirtualNOAHCon2020, NOAH is delighted to offer NOAH Connections, an ongoing series of virtual opportunities to bring the community together. An essential part of NOAH’s mission is to “provide a place where people with albinism and their families in the U.S. and Canada can find acceptance, support, and fellowship.” With the participation and engagement of community members like you, NOAH Connections will provide this opportunity for virtual “face to face” connections. Unless otherwise stated, NOAH Connections will be hosted on the Zoom platform.
Looking for a way to help? Let YOUR voice be heard!
Learn more about NOAH Connections Advisory Task Force opportunities!
We hope you’ll join us for one of many upcoming opportunities to connect!
What’s Your Vision?
Do you have a vision for future support forums, interest group meetings, educational sessions or social activities that would benefit the albinism community?
Submit your session ideas using this form to suggest upcoming content and connections for all!
Upcoming Opportunities to Connect:
In order to make efficient use of NOAH resources, if less than two attendees join a NOAH Connections call within 15 minutes of the published call start time, the NOAH Connections call will end.
Youth ~ Teens ~ Young Adults ~ Adults
Parents, Grandparents, & Caregivers
Special Interest ~ Everyone!
Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!
Tuesday, July 15th ~ Aging with Albinism
Thursday, July 17th ~ Teens
Wednesday, July 23rd ~ Young Adults
Thursday, July 24th ~ Adults
Thursday, July 31st ~ Teens
Sunday, August 3rd ~ Doctors
Tuesday, August 5th ~ Parenting without Pigment
Wednesday, August 6th ~ Young Adults
Thursday, August 7th ~ Adults
Tuesday, August 12th ~ Canadian Parents
Thursday, August 14th ~ Teens
Tuesday, August 19th ~ Aging with Albinism & Kids’ PWA Book Club
Monday, September 8th ~ PWA Book Club
Youth NOAH Connections
NOAH Kids’ PWA Book Club!
with Caroline & Luna
Tuesday, August 19th at 8:00pm ET // 5:00pm PT
Join Caroline & Luna for our new kids’ book club, recommended for kids with albinism ages 8-12! At our next meeting, we’ll be discussing “Out of My Mind” by Sharon M. Draper
Sign up for NOAH Kids’ PWA Book Club (ages 8-12)!
Please note: NOAH’s book club is offered free of charge, but NOAH does not provide the current reading material to participants. You must purchase or borrow the selected book to participate!
Teen NOAH Connections
Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!
Teen NOAH Connections
Thursday, July 17th at 8:00pm ET // 5:00pm PT
Thursday, July 31st at 8:00pm ET // 5:00pm PT
Thursday, August 14th at 8:00pm ET // 5:00pm PT
NOAH Teens, you’re invited to our next Teen Connections call!
Sign up for Teen NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join Teen NOAH Connections!
Young Adult NOAH Connections
Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!
Young Adult NOAH Connections
Wednesday, July 23rd ~ 9:00pm ET // 6:00pm PT
Wednesday, August 6th ~ 9:00pm ET // 6:00pm PM
Young Adults*, join us for our next session. This is a great chance to share our experiences and connect with fellow PWAs!
Sign up for Young Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join Young Adult NOAH Connections!*
*Young Adult Connections is open to PWAs ages 18 – early 30s
Adult NOAH Connections
Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!
Adult NOAH Connections
Thursday, July 24th at 9:00pm ET // 6:00pm PT
Thursday, August 7th at 9:00pm ET // 6:00pm PT
Adult PWAs, you’re invited to our next session of Adult Connections! We hope to see you on Zoom for social time with fellow PWAs.
Sign up for Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join Adult NOAH Connections
PWA Book Club
hosted by: Casey Greer, Silpa Tadavarthy, and Chrys Buckley
Next Meeting: Monday, September 8th at 8pm ET // 5pm PT
Current Reading Material: “The Final Girl Support Group” by Grady Hendrix
Are you an adult PWA (18+) who loves to read? Join us for the re-launching of the NOAH Book Club! Get a copy of our current reading material, and join us to discuss.
Please note: NOAH’s book club is offered free of charge, but NOAH does not provide the current reading material to participants. You must purchase or borrow the selected book to participate!
Join NOAH PWA Book Club Today!
Parents, Grandparents, & Caregivers
Are you looking for educational or social-emotional sessions facilitated by a licensed professional? Check out NOAH Workshops and register for upcoming offerings!
Canadian Parents
hosted by: Rebekah Zigby
Tuesday, August 12th at 9:00pm ET // 6:00pm PT
Calling all Canadian parents of children with albinism! This group is just for YOU! Sign up today for info to join this call and you’ll be invited to future chances to connect with fellow parents from Canada 🙂
Sign Up Now!
Parent Liaison Panel
Next call TBD
New parents & caregivers – have you heard about NOAH’s New Parent Program? One of the offerings this program provides to parents of young or newly-diagnosed kids with albinism is the chance to connect with a trained Parent Liaison volunteer. The parent liaison will guide you through the many resources NOAH has to offer and provide you the opportunity to speak directly to a parent of a child with albinism who truly understands.
Join us for our Parent Liaison Panel for the chance to meet a few of our wonderful Parent Liaisons and ask any questions you might have!
Sign Up for Parent Liaison Panel!
Parent Connections
hosted by: Ashley Maynard
Next call TBD
Parents & caregivers – join us to become part of a community that “just gets it!” Stay tuned for upcoming calls including social time, educational presentations, and more.
Sign Up for Parent Connections!
Ocular Albinism – Parents, Grandparents, & Caregivers Connections
hosted by: Pamela Tarnawa, M.Ed., TVI
Next Call TBD
Come talk, listen and discuss the unique ways OA is present in your life.
Join Ocular Albinism Parents, Grandparents, & Caregivers Connections!
NOAH Connections: Dads!
hosted by: Sam McClung
Next call TBD
NOAH Dads, join us to connect with fellow dads of children with albinism. We’ll discuss the unique experiences of being a dad to a PWA and come together in the shared goal of being the best dads we can be for our children.
Register for NOAH Connections: Dads today!
NOAH Connections for Everyone
Seeing Beyond
An educational presentation by Dr. Thomas Porter, O.D., F.A.A.O.
Next Call TBD
Join Dr. Thomas Porter to learn more about Low Vision Tech!
About Dr. Thomas Porter, O.D., F.A.A.O.
Dr. Porter is an Associate Professor and Director of Low Vision Services at Saint Louis University’s department of ophthalmology. He also serves as an Assistant Professor at the University of Missouri College of Optometry. For his entire 44 year career, Dr. Porter has limited his practice to patients with low vision such as albinism. His clinic sees in excess of 1,000 low vision patients each year. Dr. Porter has also served as a clinical consultant to several manufacturers of low vision aids as well as a medical advisor to the Vision Council of America.
Sign up today and you’ll receive email invites for future sessions in our Seeing Beyond session too!
Register for Seeing Beyond: Navigating Life with Low Vision!
Special Interest
Aging with Albinism
hosted by: Mike Sikes
Aging with Albinism is typically held on the third Tuesday of each month. See below for confirmed dates!
Tuesday, July 15th at 5:00pm ET // 2:00pm PT
PWAs 55+, you’re invited to our next session of Aging with Albinism!
Sign up for NOAH Connections Aging with Albinism today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join NOAH Connections Aging with Albinism!
Doctors with Albinism
Doctors with Albinism is typically held on the first Sunday of each month.
Please see below for confirmed dates!
Sunday, August 3rd at 9:00am ET // 6:00am PT
Doctors with Albinism is a supportive global community of physicians with albinism who meet monthly to share experiences and nurture and mentor each other. At this time, the group is only open to those that are either attending or completed medical school.
For those interested in careers in medicine or in related health fields, stay tuned for
other programs coming soon!
Sign up for NOAH Connections: Doctors with Albinism to join this call, and we’ll send you email reminders for future opportunities to connect too!
Register for NOAH Connections: Doctors with Albinism
Parenting without Pigment
Tuesday, August 5th at 9:00pm ET // 6:00pm PT
Join fellow parents with albinism to connect and chat with others who “just get it!”
Sign up for Parenting without Pigment NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!
Join Parenting without Pigment NOAH Connections
NOAH Connections: LGBTQ+ & Allies
Next call TBD
YOU belong here! Join us for a social gathering open to all LGBTQ+ and allies with albinism. Participants are welcome to connect however they are comfortable – leave your camera off or dial in via phone if video isn’t your style. We look forward to connecting with you!
Sign up for NOAH Connections LGBTQ+ & Allies today, and we’ll automatically subscribe you to email reminders for future opportunities to connect!