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NOAH News

McGowan Scholarship Application Now Open!

We are pleased to share that the application for the 2024 Michael J. McGowan Leadership Scholarship Award is now open. PWAs residing in the US or Canada enrolled in an undergraduate program at a U.S. or Canadian institution of higher education are invited to apply.

Learn more and apply by May 1st:
www.albinism.org/leadership

​​​​​​​Published: January 29, 2024


Last Chance to Submit!

Submissions for our Spring Issue of Albinism InSight are due this Wednesday, January 31st. We can’t wait to hear your perspective on one of our spring features, or a topic included in every issue!

Learn more & submit by Wednesday, January 31st:
www.albinism.org/AI/call-for-content

Published: January 29, 2024


Poster & Presentation Proposals Due Friday!

NOAH is currently accepting proposals for both community session presentations and scientific presentations & posters at NOAHCon 2024 in Garden Grove, CA, July 11-14, 2024.

This is an open call. NOAH welcomes professionals, vendors, and our community members to submit proposals for sessions and poster presentations at NOAHCon 2024.

Learn more and submit by Friday, February 2nd!
albinism.org/NOAHCon/presentations/

Published: January 29, 2024


Take 2 Tuesday

The NOAHCon hotel has lots of great dining options – including OC Brewhouse, which features a laid-back atmosphere for dinner, bar food, and drinks, open from 4pm-midnight every day.  

The NOAHCon 2024 room block is now open, so book your room today, and stay tuned for more conference updates and highlights every Tuesday!

www.albinism.org/NOAHCon​​​​​​​

Published: January 29, 2024


Parents & Caregivers – You’re Invited to Our Next NOAH Workshop!

Join Sheila Adamo & Megan Pitt on Monday, February 12th at 8:30pm ET // 5:30pm PT for the Parents of Newly-Diagnosed Children & Young Children with Albinism workshop to join a community that will share and learn about adapting to the new role of a parent of a child with albinism. We will discuss the common challenges and struggles parents may face and provide a guide to managing them while providing the best possible support for your child. 

Learn more & register by February 10th!
www.albinism.org/workshops

Published: January 29, 2024


We Want to Hear from YOU!

The NOAHCon 2024 Planning Committee is seeking input from our community in a brief, anonymous survey. 

Scan the QR code or click the link below to share your thoughts:
https://bit.ly/48KQAjc

Published: January 29, 2024


  • NOAH community member and Paralympic Goalball Athlete with albinism, Marybai Huking recently shared a video of her adventures red rock cave climbing. Check out her post to read about why she likes red rock cave climbing specifically as a climber with a visual-impairment. https://bit.ly/3Sz063h

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: January 29, 2024

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections


      Tuesday: Parents, Grandparents, and Caregivers – Ocular Albinism Connections

      January 30th at 9:00pm ET // 6:00pm PT

      Parents, grandparents, and caregivers – If you have questions about Ocular Albinism, you’re invited to a NOAH Connections session just for you! Join Dr. Richard Lewis & Pamela Tarnawa this Tuesday, January 30th at 9pm ET // 6pm PTto discuss Ocular Albinism and the unique challenges of caring for a child with OA.

      Sign up today!
      www.albinism.org/NOAH-Connections/#oa

      Published: January 29, 2024


      Thursday: Teen Connections

      February 1st at 8:00pm ET // 5:00pm PT

      Another semester down and a new one beginning, how are you staying on top of it all? Join us for our next Teen Connections session and share all of your tricks for success, this Thursday at 8:00 PM ET // 5:00 PM PT.

      www.albinism.org/NOAH-Connections/#teens

      Published: January 29, 2024


      Thursday: Low Vision Driving Chat

      February 1st at 9:00pm ET // 6:00pm PT

      Adults with albinism, join Bonny Reinhardt and friends to discuss your experiences with low vision driving this Thursday, February 1st at 9pm ET // 6pm PT.

      Sign up today:
      www.albinism.org/NOAH-Connections/#driving

      Published: January 29, 2024


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: January 29, 2024

      Wednesday, February 7th:
      NOAH Connections: Young Adults
      Thursday, February 8th:​​​​​​​
      NOAH Connections: Adults
      Monday, February 12th:
      NOAH Workshops: Parents and Caregivers
      Thursday, February 15th:
      NOAH Connections: Teens
      Thursday, February 20th:
      NOAH Connections: Aging with Albinism
      Wednesday, February 21st:
      NOAH Connections: Young Adults
      Thursday, February 22nd:​​​​​​​
      NOAH Connections: Adults
      Monday, March 11th:
      NOAH Connections: PWA Book Club

      Will we see YOU in Orange County?!

      The NOAHCon 2024 room block is officially open! 

      Learn more & book your room today: www.albinism.org/NOAHCon/#room​​​​​​​

      Published: January 22, 2024


      Takeover Tuesday: TOMORROW!

      We are so excited to get a glimpse into a day in the life of Sarah K!

      Sarah is a PhD student in astronomy at the University of Cambridge. Follow along on the NOAH instagram story TOMORROW for a day of astronomy research, working with a guide dog, and living in the city of Cambridge, England.

      www.instagram.com/noahalbinism

      Published: January 22, 2024


      Take 2 Tuesday

      Did you know that the NOAHCon 2024 hotel has a 24-hour fitness center? 

      The NOAHCon 2024 room block is now open, so book your room today, and stay tuned for more conference updates and highlights every Tuesday!

      www.albinism.org/NOAHCon​​​​​​​

      Published: January 22, 2024


      Ocular Albinism Connections!

      Parents, grandparents, and caregivers – If you have questions about Ocular Albinism, you’re invited to a NOAH Connections session just for you! Join Dr. Richard Lewis & Pamela Tarnawa on Tuesday, January 30th at 9pm ET // 6pm PT to discuss Ocular Albinism and the unique challenges of caring for a child with OA.

      Sign up today!
      www.albinism.org/NOAH-Connections/#oa

      Published: January 22, 2024


      Low Vision Driving Chat!

      Adults with albinism, join Bonny Reinhardt and friends to discuss your experiences with low vision driving on Thursday, February 1st at 9pm ET // 6pm PT.

      Sign up today:
      www.albinism.org/NOAH-Connections/#driving

      Published: January 22, 2024


      Call for Proposals!

      NOAH is currently accepting proposals for both community session presentations and scientific presentations & posters at NOAHCon 2024 in Garden Grove, CA, July 11-14, 2024.

      ​​​​​​​This is an open call. NOAH welcomes professionals, vendors, and our community members to submit proposals for sessions and poster presentations at NOAHCon 2024. 

      Learn more and submit by February 2nd!

      www.albinism.org/NOAHCon

      Published: January 22, 2024


      • NOAH community member Nuala was recently selected as Youth of the Year in her city. Check out this great photo of Nuala receiving her Youth of the Year plaque from the Mayor in our recent Facebook post.Join us in congratulating Nuala on this incredible achievement!

      • Have you ever wondered how common albinism is around the world? Check out this post from the Global Albinism Alliance to learn more about a recent study aiming to more accurately determine the prevalence of albinism worldwide. https://www.facebook.com/photo/?fbid=688352853475891&set=a.404105798567266

      • Have you heard about Voice-enabled Makeup Assistant? This new app was created to help blind and low-vision people check their makeup application. NOAH community member Esha was part of beta testing for the app, and shared her experiences in a recent Cosmopolitan articlehttps://www.cosmopolitan.com/style-beauty/beauty/a46056865/estee-lauder-voice-enabled-makeup-assistant/

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: January 22, 2024

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      January 24th at 9:00pm ET // 6:00pm PT

      Brr, it’s cold outside! How are you staying warm in this winter weather? Share all your tips for staying cozy this Wednesday during our next Young Adult Connections session, starting at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#young-adults

      Published: January 22, 2024


      Thursday: Teen Connections

      January 18th at 8:00pm ET // 5:00pm PT

      Happy new year! Start 2024 having fun with your PWA friends and join us for our first Teen Connections session of the year! 

      Tune in this Thursday, January 18 at 8:00 PM ET // 5:00 PM PT. 

      www.albinism.org/NOAH-Connections/#teens

      Published: January 22, 2024


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: January 22, 2024

      Tuesday, January 30th:
      NOAH Connections: Ocular Albinism – Parents, Grandparents, and Caregivers
      Thursday, February 1st:
      NOAH Connections: Teens
      Wednesday, February 7th:
      NOAH Connections: Young Adults
      Thursday, February 8th:​​​​​​​
      NOAH Connections: Adults
      Thursday, February 15th:
      NOAH Connections: Teens
      Monday, March 11th:
      NOAH Connections: PWA Book Club

      Martin Luther King Jr. Day

      In observance of Martin Luther King Jr. Day, we share this interview with Rev. Jesse Douglas Sr., an African American PWA who was a colleague and personal friend of Rev. Martin Luther King Jr.

      https://www.youtube.com/watch?v=M8YLSeg9LmA

      Published: January 15, 2024


      Takeover Tuesday is Back!

      We are so excited to share that Sarah Kane will join us for our next Takeover Tuesday: Day in the Life of a PWA segment on January 23rd

      Sarah is a PhD student in astronomy at the University of Cambridge. Follow along for a day of astronomy research, working with a guide dog, and living in the city of Cambridge, England.

      Published: January 15, 2024


      Take 2 Tuesday

      There are great dining options at the NOAHCon 2024 hotel – today, we’re highlighting TusCA, which serves breakfast every day from 6:30-11:30am. 

      ​​​​​​​Stay tuned for more conference updates and highlights every Tuesday!

      www.albinism.org/NOAHCon​​​​​​​

      Published: January 15, 2024


      What similarities are there between Ocular Albinism (OA) and Oculocutaneous Albinism (OCA)?

       
      Individuals with OA may have similar vision-related symptoms to those with OCA. 

      Parents, grandparents, and caregivers – If you have questions about Ocular Albinism, you’re invited to a NOAH Connections session just for you! Join Dr. Richard Lewis & Pamela Tarnawa on Tuesday, January 30th at 9pm ET // 6pm PTto discuss Ocular Albinism and the unique challenges of caring for a child with OA.

      Sign up today!
      www.albinism.org/NOAH-Connections/#oa

      Published: January 15, 2024



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: January 15, 2024

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Aging with Albinism

      January 16th at 5:00pm ET // 2:00pm PT

      PWAs 55+, join Mike Sikes and friends for our next session of Aging with Albinism, this Tuesday, January 16th at 5pm ET // 2pm PT.

      New to the group? There’s still time to sign up!
      www.albinism.org/NOAH-Connections/#aging

      Published: January 15, 2024


      Tuesday: PWAs in the Legal Profession

      January 16th at 8:00pm ET // 5:00pm PT

      Ring in the New Year with PWAs in the Legal Profession! 

      If you are entering, working in, or retired from the legal profession, please join us this Tuesday, January 16th at 8pm ET // 5pm PTto connect with fellow PWAs in your field. 

      Sign up today:
      www.albinism.org/NOAH-Connections/#legal

      Published: January 15, 2024


      Thursday: Teen Connections

      January 18th at 8:00pm ET // 5:00pm PT

      Happy new year! Start 2024 having fun with your PWA friends and join us for our first Teen Connections session of the year! 

      Tune in this Thursday, January 18 at 8:00 PM ET // 5:00 PM PT. 

      www.albinism.org/NOAH-Connections/#teens

      Published: January 15, 2024


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: January 15, 2024

      Wednesday, January 24th:
      NOAH Connections: Young Adults
      Thursday, January 25th:​​​​​​​
      NOAH Connections: Adults
      Tuesday, January 30th:
      NOAH Connections: Ocular Albinism – Parents, Grandparents, and Caregivers
      Thursday, February 1st:
      NOAH Connections: Teens
      Wednesday, February 7th:
      NOAH Connections: Young Adults
      Thursday, February 8th:​​​​​​​
      NOAH Connections: Adults
      Thursday, February 15th:
      NOAH Connections: Teens
      Monday, March 11th:
      NOAH Connections: PWA Book Club

      Happy New Year!

      Wishing a healthy and happy New Year to all in our community!

      Published: January 8, 2024


      Is it Ocular Albinism?

      Does your family member have brown hair, nystagmus, and low vision? Do they have “vision issues” that include nystagmus that occurred for generations with males in your family? It could be Ocular Albinism!

      Parents, grandparents, and caregivers – If you have questions about Ocular Albinism, you’re invited to a NOAH Connections session just for you! Join Dr. Richard Lewis & Pamela Tarnawa on Tuesday, January 30th at 9pm ET // 6pm PTto discuss Ocular Albinism and the unique challenges of caring for a child with OA.

      Sign up today!
      www.albinism.org/NOAH-Connections/#oa

      Published: January 8, 2024


      Take 2 Tuesday – Jasmine is a Star!

      Check out this special message from Jo Rochelle, director of the film Jasmine is a Star! We are so excited to include a special film screening as an optional social activity at NOAHCon 2024.

      Stay tuned for more NOAHCon updates and highlights every Tuesday!

      www.albinism.org/NOAHCon

      Published: January 8, 2024


      Take 2 Tuesday

      Did you know that the NOAHCon 2024 hotel has TWO pools?!

      We can’t wait to see YOU in Orange County this summer! The conference room block opens in mid-January.

      Stay tuned for more conference updates and highlights every Tuesday!

      www.albinism.org/NOAHCon

      Published: January 8, 2024


      Fundraiser Shout-Out!

      Join us in sending a special shout-out to Dennis Hurley, who hosted a film and comedy Variety Show this December and raised over $200 for NOAH. Congratulations on a successful event, Dennis, and thank you for your ongoing support of NOAH!

      Published: January 8, 2024


      There Are So Many Ways to Spring for NOAH!

      NOAH Bowl-a-thons are one of our most popular fundraisers, but did you know that there are endless options for Spring for NOAH events?! In the past, we’ve had community members host concerts, paint nights, 5k runs, and more.

      Check out our full list of suggestions at http://3.19.125.119/spring-1234/, or come up with your own!

      Get started today: www.albinism.org/fun

      Published: January 8, 2024


      Albinism InSight Winter Issue!

      The Winter Issue of Albinism InSight has hit mailboxes and inboxes…is your subscription up to date? 

      Don’t miss out, subscribe today!
      www.albinism.org/AI

      Published: January 8, 2024



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: January 8, 2024

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TONIGHT: PWA Book Club

      January 8th at 8:00pm ET // 5:00pm PT

      Book club members, we can’t wait to see you TONIGHT at 8pm ET // 5pm PT to discuss “Babel” by R.F. Kuang!

      Are you a PWA who loves to read? Sign up for Book Club today and you’ll get the invite to future meet-ups!

      www.albinism.org/NOAH-Connections/#pwa-book-club

      Published: January 8, 2024


      Wednesday: Young Adult Connections

      January 10th at 9:00pm ET // 6:00pm PT

      Looking to start the new year making new friends from the PWA community? Don’t miss the opportunity this Wednesday, January 10th at 9:00 PM ET// 6:00 PM PT.

      Sign up today!

      www.albinism.org/NOAH-Connections/#young-adults 

      Published: January 8, 2024


      Thursday: Adult Connections

      January 11th at 9:00pm ET // 6:00pm PT

      Can you believe we’re in 2024 already? Join us for an Adult Connections session and tell us all about your plans to make this year special. Check it out this Thursday, January 11th at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#adults 

      Published: January 8, 2024


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: January 8, 2024

      Tuesday, January 16th:
      NOAH Connections: PWAs in the Legal Profession
      Thursday, January 18th:
      NOAH Connections: Teens
      Wednesday, January 24th:
      NOAH Connections: Young Adults
      Thursday, January 25th:​​​​​​​
      NOAH Connections: Adults
      Tuesday, January 30th:
      NOAH Connections: Ocular Albinism – Parents, Grandparents, and Caregivers
      Thursday, February 1st:
      NOAH Connections: Teens

      Happy Hanukkah!

      Join us in wishing a Happy Hanukkah to all in our community who celebrated last week!

      ​​​​​​​Published: December 18, 2023


      Happy Holidays!

      With the holidays in full swing, we invite you to share a favorite holiday photo or memory on our recent Facebook post!

      Published: December 18, 2023


      Take 2 Tuesday – Jasmine is a Star!

      Check out this special message from Jo Rochelle, director of the film Jasmine is a Star! We are so excited to include a special film screening as an optional social activity at NOAHCon 2024.

      Stay tuned for more NOAHCon updates and highlights every Tuesday!

      www.albinism.org/NOAHCon

      Published: December 18, 2023


      PayPal Giving Fund Covers Fees!

      Prefer online giving, but don’t want part of your hard-earned money to be lost to processing fees? You’re in luck – PayPal Giving Fund covers fees for gifts to nonprofits, so NOAH receives the full amount you give.

      Make a fee-free gift today!

      Published: December 18, 2023


      Announcing: 2024 McGowan Leadership Scholarship!

      We are pleased to share that the application for the 2024 Michael J. McGowan Leadership Scholarship Award will open on January 29th. Applications will be due May 1st. 

      Learn more:
      www.albinism.org/leadership

      Published: December 18, 2023


      Be a Star for NOAH!

      You can help NOAH continue to shine by hosting an event during our annual Bowl-a-thon and Community Fundraisers, March 22-24, 2024, or a date of your choice!

      Learn more:
      www.albinism.org/fun

      Published: December 18, 2023


      My Vision for 2024!

      Kick off the new year on a positive note – join Marleena Barber and Casey Greer on Wednesday, January 3rd for a special NOAH Connections session to explore your vision for the year ahead!

      Kids & Teens, join us 8pm ET // 5pm PT.

      Adults, we’ll see you at 9pm ET // 6pm PT.  

      Sign up today: www.albinism.org/NOAH-Connections/#vision​​​​​​​

      Published: December 18, 2023


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: December 18, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Aging with Albinism

      December 19th at 5:00pm ET // 2:00pm PT

      PWAs 55+, join Mike Sikes and friends for our next session of Aging with Albinism this Tuesday, December 19th at 5pm ET // 2pm PT.

      New to the group? Sign up today for the invite to this call, and we’ll send you email reminders for future sessions, too!
      www.albinism.org/NOAH-Connections/#aging

      Published: December 18, 2023


      Thursday: Teen Connections

      December 21st at 8:00pm ET // 5:00pm PT

      Teens – don’t miss your chance to join our last chat of 2023! Share your holiday plans and what made your year special, besides our connection sessions of course.

      Join us this Thursday, December 21st at 8:00 PM ET // 5:00 PM PT.

      www.albinism.org/NOAH-Connections/#teens

      Published: December 18, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: December 18, 2023

      Wednesday, December 27th:
      NOAH Connections: Young Adults
      Thursday, December 28th:​​​​​​​
      NOAH Connections: Adults
      Wednesday, January 3rd:
      NOAH Connections: My Vision for 2024
      Thursday, January 4th:
      NOAH Connections: Teens
      Monday, January 8th:
      NOAH Connections: PWA Book Club
      Tuesday, January 16th:
      NOAH Connections: PWAs in the Legal Profession
      Tuesday, January 30th:
      NOAH Connections: Ocular Albinism – Parents, Grandparents, and Caregivers

      Happy Hanukkah!

      Join us in wishing a Happy Hanukkah to all in our community who celebrate!

      ​​​​​​​Published: December 11, 2023


      Parenting without Pigment: Parenting During the Holidays!

      Parents with albinism, join Kathi Garza and friends next Tuesday, December 12th at 9pm ET // 6pm PT to discuss parenting during the holidays.

      New to the group? Sign up today!
      www.albinism.org/NOAH-Connections/#pwp

      Published: December 11, 2023


      Announcing: Take 2 Tuesdays!

      NOAHCon 2024 is less than 31 weeks away, and we can’t wait to share more details with you! Check out more info about our conference hotel at www.albinism.org/NOAHCon and stay tuned for more conference highlights coming your way on NOAH social media every Tuesday as part of our Take 2 Tuesdays series!

      Published: December 11, 2023


      Aging with Albinism!

      PWAs 55+, join Mike Sikes and friends for our next session of Aging with Albinism on Tuesday, December 19th at 5pm ET // 2pm PT.

      New to the group? Sign up today for the invite to this call, and we’ll send you email reminders for future sessions, too!
      www.albinism.org/NOAH-Connections/#aging

      Published: December 11, 2023


      Ocular Albinism Connections!

      Parents, grandparents, and caregivers of kids with Ocular Albinism, you’re invited to a NOAH Connections session just for you! Join Dr. Richard Lewis & Pamela Tarnawa on Tuesday, January 30th at 9pm ET // 6pm PT to discuss the unique challenges of parenting or grandparenting a child with OA. 

      Sign up today!
      www.albinism.org/NOAH-Connections/#oa

      Published: December 11, 2023


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: December 11, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Parenting without Pigment – Parenting During the Holidays

      December 12th at 9:00pm ET // 6:00pm PT

      Parents with albinism, join Kathi Garza and friends this Tuesday, December 12th at 9pm ET // 6pm PT to discuss parenting during the holidays.

      New to the group? Sign up today!
      www.albinism.org/NOAH-Connections/#pwp

      Published: December 11, 2023


      Thursday: Adult Connections

      December 14th at 9:00pm ET // 6:00pm PT

      Christmas is almost here which means it’s eggnog season! Grab a cup, or your favorite holiday warm-up and join us for a pre-holiday Connections session this Thursday, December 14th at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#adults

      Published: December 11, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: December 11, 2023

      Tuesday, December 19th:
      NOAH Connections: Aging with Albinism
      Thursday, December 21st:
      NOAH Connections: Teens
      Wednesday, December 27th:
      NOAH Connections: Young Adults
      Thursday, December 28th:​​​​​​​
      NOAH Connections: Adults
      Thursday, January 4th:
      NOAH Connections: Teens
      Monday, January 8th:
      NOAH Connections: PWA Book Club

      Holiday Gift Ideas!

      Let’s talk about holiday gift ideas for visually impaired loved ones of all ages! 

      What creative or practical gifts have you given or received? Check out the suggestions from our community and add your ideas on our recent Facebook post

      ​​​​​​​Published: December 4, 2023


      Parenting without Pigment: Parenting During the Holidays!

      Parents with albinism, join Kathi Garza and friends next Tuesday, December 12th at 9pm ET // 6pm PT to discuss parenting during the holidays.

      New to the group? Sign up today!
      www.albinism.org/NOAH-Connections/#pwp

      Published: December 4, 2023


      Save the Date & Start Reading!

      NOAH PWA Book Club is back, and we are already looking forward to our next meeting. Start reading “Babel” by R.F. Kuang and mark your calendar to join us for a book discussion on Monday, January 8th at 8pm ET // 5pm PT.

      www.albinism.org/NOAH-Connections/#pwa-book-club

      Published: December 4, 2023


      Give the Gift of Albinism InSight!

      A subscription to Albinism InSight is a wonderful gift for a PWA in your life that will keep giving all year long. Gift a subscription today, and your loved one will receive 4 issues of NOAH’s quarterly magazine to stay up-to-date with happenings in the community!

      www.albinism.org/AI

      Published: December 4, 2023


      National Cookie Day – HPS Awareness!

      In celebration of National Cookie Day, we review how cookies can teach us about Hermansky-Pudlak Syndrome (HPS): normal platelets look like chocolate chip cookies and HPS platelets look like butter cookies! 

      Learn more at: https://www.hpsnetwork.org/hps-information/characteristics/

      Published: December 4, 2023

      • Research Study about Racial Identity Development in African Americans with Albinism
        Jasmyn Irvin at the Michigan School of Psychology is seeking African Americans with oculocutaneous albinism ages 18+ to participate in her research study.Learn more: www.albinism.org/research/#racial-identity

      • Free K-12 Teaching Resources!Did you know the National Institutes of Health offers free STEM resources for K-12 teachers on their website?Learn more: https://science.education.nih.gov/​​​​​​​

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: December 4, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Parent Connections – Parenting During the Holidays

      December 6th at 9:00pm ET // 6:00pm PT

      Parents, you’re invited to join Ashley Maynard and Kayla Hamlin on Wednesday, December 6th at 9pm ET // 6pm PT to discuss parenting during the holidays.

      New to Parent Connections? Sign up today for the invite to this call, and we’ll also send you email reminders for future sessions!

      www.albinism.org/NOAH-Connections/#parents

      Published: December 4, 2023


      Thursday: Teen Connections

      December 7th at 8:00pm ET // 5:00pm PT

      Light the menorah and get your jingle bells ready – the holiday season is here! Whether you’re celebrating the first night of Hanukkah or looking forward to Christmas, join us for a holiday connections session this Thursday, December 7th at 8:00 PM ET // 5:00 PM PT.

      www.albinism.org/NOAH-Connections/#teens 

      Published: December 4, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: December 4, 2023

      Tuesday, December 12th:
      NOAH Connections: Parenting without Pigment
      Wednesday, December 13th:
      NOAH Connections: Young Adults
      Thursday, December 14th:​​​​​​​
      NOAH Connections: Adults
      Tuesday, December 19th:
      NOAH Connections: Aging with Albinism
      Thursday, December 21st:
      NOAH Connections: Teens
      Wednesday, December 27th:
      NOAH Connections: Young Adults
      Thursday, December 28th:​​​​​​​
      NOAH Connections: Adults
      Thursday, January 4th:
      NOAH Connections: Teens
      Monday, January 8th:
      NOAH Connections: PWA Book Club

      Giving Tuesday NOAH Board Match INCREASED!

      We are thrilled to share that NOAH’s Board, overwhelmed by the generosity of our community, has increased their commitment to match up to $6,500 for NOAH’s Giving Tuesday fundraiser!

      Every little bit makes a difference, and this is a great chance to make a gift of any size go further for NOAH this holiday season!

      Donate today:https://app.donorview.com/JQbz

      ​​​​​​​Published: November 27, 2023


      Tell Your Story Tuesday!

      Each Tuesday in November, we will highlight community member stories about the impact of NOAH on their lives. Keep an eye out for our next community story tomorrow on NOAH social media!

      Today, hear from former NOAH board chair, Kelsey Thompson, in this video recorded in celebration of NOAH’s 35th birthday. Kelsey talks about how, from her earliest childhood memories, NOAH has always been a part of her life.

      Check out Kelsey’s video! 

      Inspired by Kelsey’s story?Consider making a gift to NOAH this holiday season, and take advantage of our $6,500 Board of Directors match now through November 28th!

      Donate today: https://app.donorview.com/JQbz

      Published: November 27, 2023


      NOAH is thankful for…YOU!

      Thank YOU for being an essential part of our community and supporting NOAH’s mission!  We are so grateful for the support of community members over the past 41 years.

      Published: November 27, 2023


      • Did you know American Printing House for the Blind is hosting a National Coding Symposium & Day of Code? Educators & students K-college are invited to join this virtual event December 4th-6th to learn about accessible coding for users who rely on screen access software, hear from coding pros, and more! https://www.aph.org/2023-national-coding-symposium-for-students/


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: November 27, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      November 29th at 9:00pm ET // 6:00pm PT

      Young adults, ready for a little time to unwind with friends after a busy holiday weekend? Join us this Wednesday at 9pm ET // 6pm PTfor great company and conversation!

      www.albinism.org/NOAH-Connections/#young-adults

      Published: November 27, 2023


      Thursday: Adult Connections

      November 30th at 9:00pm ET // 6:00pm PT

      Adults with albinism – don’t miss out on the next chance to connect with your “PWA Pals!” Set a reminder on your calendar to join us this Thursday at 9pm ET // 6pm PT. 

      www.albinism.org/NOAH-Connections/#adults

      Published: November 27, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: November 27, 2023

      Wednesday, December 6th:
      NOAH Connections: Parents
      Thursday, December 7th:
      NOAH Connections: Teens
      Wednesday, December 13th:
      NOAH Connections: Young Adults
      Thursday, December 14th:​​​​​​​
      NOAH Connections: Adults
      Thursday, December 21st:
      NOAH Connections: Teens
      Wednesday, December 27th:
      NOAH Connections: Young Adults
      Thursday, December 28th:​​​​​​​
      NOAH Connections: Adults
      Thursday, January 4th:
      NOAH Connections: Teens
      Monday, January 8th:
      NOAH Connections: PWA Book Club

      Thank you, Barber Family!

      Join us in sending a special shout-out to the Barber family for hosting the SoCal Ice Cream Social. This free event was a great chance for local NOAH community members to enjoy a sweet treat and get to know the NOAH Board of Directors.

      ​​​​​​​Published: November 20, 2023


      Tell Your Story Tuesday!

      Each Tuesday in November, we will highlight community member stories about the impact of NOAH on their lives. Keep an eye out for our next community story tomorrow on NOAH social media!

      Last Tuesday, we heard from NOAH Board Member Rosalind Isom, who shared her experiences from her first time connecting with NOAH at NOAHCon 2018 in Kansas City and the impact of the connection and community she has found with NOAH since then.

      Check out Rosalind’s video! 

      Inspired by Rosalind’s story?Consider making a gift to NOAH this holiday season, and take advantage of our $4,500 Board of Directors match now through November 28th!

      Donate today: https://app.donorview.com/JQbz

      Published: November 20, 2023


      NOAH Research Program ~ Our Commitment

      NOAH will become a leading voice in albinism research through the work of its Research Program. Funded research will be community-centered and help develop a greater understanding of albinism. This is an opportunity not just to fund albinism research, but also to shape research to answer questions most important to people with albinism.

      If albinism research is an area of interest for you…Get Involved!

      Fundraise! Efforts are ongoing for NOAH programs, including the Research Program. Your designated gift could help support the next NOAH Research Program Grant! 


      Stay current on the projects and findings of NOAH’s Research Program Grant recipients and any current opportunities available for participation in studies related to albinism.
       
      We want to hear from YOU! The NOAH Research Program Committee would welcome broader input from the community, including questions about albinism research. Contact NOAH to share your comments and questions related to albinism research.

      Visit http://3.19.125.119/research/ to find out more!

      Published: November 20, 2023


      Have You Heard About the NOAH Board of Directors Giving Tuesday Match?

      We are thrilled to share that our Board of Directors will match the first $4,500 of donations to NOAH now through Giving Tuesday (November 28th). Every little bit makes a difference, and this is a great chance to make a gift of any size go further for NOAH this holiday season!

      Donate today: https://app.donorview.com/JQbz

      Published: November 20, 2023


      Albinism in Africa

      Check out our session recording from NOAHCon 2022, Albinism in Africa: Exciting Opportunities Ahead presented by Francis Tiangson from Under the Same Sun.

      Interested in more session recordings and video content? Visit NOAH’s Video Library at www.albinism.org/video

      Published: November 20, 2023


      Holiday Travel Tips!

      The holiday season is just around the corner, and many will travel to see loved ones near and far!

      PWAs – we want to hear from YOU! Do you have any tips and tricks to share with fellow PWAs navigating airports, bus and train terminals, or unfamiliar places?

      Share your suggestions on our recent Facebook Post

      Published: November 20, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: November 20, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TONIGHT: PWA Book Club

      November 20th at 8:00pm ET // 5:00pm PT

      Book club members – we can’t wait to see you tonight to discuss “Hello Beautiful” by Ann Napolitano!

      www.albinism.org/NOAH-Connections/#pwa-book-club

      Published: November 20, 2023


      Tuesday: Aging with Albinism

      November 21st at 5:00pm ET // 2:00pm PT

      Older PWAs – join Mike Sikes and friends for our next session of Aging with Albinism this Tuesday, November 21st at 5:00pm ET // 2:00pm PT. We hope to see you there!

      www.albinism.org/NOAH-Connections/#aging

      Published: November 20, 2023


      Wednesday – Tuesday: NOAH Connections Thanksgiving Break

      November 22nd – November 28th

      We’ll take a NOAH Connections Thanksgiving Break from November 22-28th for our staff and community members to enjoy time with loved ones over the holiday.

      We can’t wait to see YOU when we resume our usual NOAH Connections calls starting November 29th. Check out our upcoming meet-ups:
      www.albinism.org/NOAH-Connections

      Published: November 20, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: November 20, 2023

      Wednesday, November 29th:
      NOAH Connections: Young Adults
      Thursday, November 30th:​​​​​​​
      NOAH Connections: Adults
      Thursday, December 7th:
      NOAH Connections: Teens
      Wednesday, December 13th:
      NOAH Connections: Young Adults
      Thursday, December 14th:​​​​​​​
      NOAH Connections: Adults
      Thursday, December 21st:
      NOAH Connections: Teens

      Happy Veterans Day from NOAH

      In honor of Veterans Day on Friday, join us in extending our appreciation to the veterans in our NOAH community!​​​​​​​

      ​​​​​​​Published: November 13, 2023


      Costume Contest Winners!

      We had so many awesome submissions for this year’s costume contest – thank you to everyone who participated!

      Join us in congratulating our 2023 NOAH Halloween Costume Contest winners:

      Group Costume:

      #22 – Maxwell & Siblings

      Individual Costume:

      #25 – Briella

      Duo Costume:

      #4 – Felix & Brynn​​​​​​​

      Published: November 13, 2023


      NOAH Programs Promote Acceptance and Awareness

      NOAH continues to encourage self-acceptance and improved awareness that will hopefully lead to better understanding and acceptance outside our community. NOAH encourages every member of the albinism community to make the choices best suited to meet their needs and goals. NOAH offers a buffet of programming. NOAH hosts NOAHCon national conferences, Adults with Albinism Weekend, NOAH Family Camp, and NOAH Virtual Connections which provide numerous opportunities for support, growth and fellowship. In addition to the newly established NOAH Research Program, NOAH offers the New Parent/Parent Liaison Program, a Leadership Scholarship, and other various education, outreach and awareness programs.

      Visit http://3.19.125.119 for more information on NOAH programs, events, and resources.

      Published: November 13, 2023


      Announcing: NOAH Board of Directors Giving Tuesday Match

      We are thrilled to share that our Board of Directors will match the first $4,500 of donations to NOAH now through Giving Tuesday (November 28th). Every little bit makes a difference, and this is a great chance to make a gift of any size go further for NOAH this holiday season!

      Donate today: https://app.donorview.com/JQbz

      Published: November 13, 2023


      Tell Your Story Tuesday!

      Each Tuesday in November, we will highlight community member stories about the impact of NOAH on their lives. Keep an eye out for our next community story tomorrow on NOAH social media!

      Last Tuesday, we heard from NOAH Board Member Andrew Sartorius as he shared his experiences from his first ever NOAH Conference and the community NOAH provides for his family.

      Check out Andrew’s video.

      Inspired by Andrew’s story?Consider making a gift to NOAH this holiday season, and take advantage of our $4,500 Board of Directors match now through November 28th!

      Donate today: https://app.donorview.com/JQbz

      Published: November 13, 2023


      Young Adults with Albinism – We Want to Hear From You!

      Joining the NOAH Connections Young Adults Advisory Task Force is a great chance to let your voice be heard. Advisory Task Force members share feedback on programming specifically for the Young Adult Connections Group.

      Learn more & apply to join today:
      www.albinism.org/NOAH-Connections/task-force

      Published: November 13, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: November 13, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Newly Diagnosed Parents of Parents of Young Children with Albinism

      November 15th at 8:30pm ET // 5:30pm PT

      Last Chance to Register!

      Parents & caregivers of newly-diagnosed or young children with albinism – you won’t want to miss our next workshop with Sheila Adamo!

      Join us on Wednesday, November 15th at 8:30pm ET // 5:30pm PT to share and learn about adapting to the new role of a parent of a child with albinism. We’ll discuss tools and strategies, share concerns, and gain support from a community of fellow parents. 

      Register by TODAY, November 13th:
      www.albinism.org/workshops

      Published: November 13, 2023


      Wednesday: Young Adult Connections

      November 15th at 9:00pm ET // 6:00pm PT

      Thanksgiving is upon us, are you visiting with family or taking a break from them and chilling with friends this year? Tell us all about your long weekend plans for the holidays this Wednesday, November 15th at 9:00 PM // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#young-adults

      Published: November 13, 2023


      Thursday: Adult Connections

      November 16th at 9:00pm ET // 6:00pm PT

      Do you have your Black Friday lists ready? Are you an online shopper or do you brave the stores?

      Shopping season is upon us and we want to hear about your wish list! Share your tips and join us this Thursday, November 16th at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#adults

      Published: November 13, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: November 13, 2023

      Monday, November 20th:
      NOAH Connections: PWA Book Club
      Tuesday, November 21st:
      NOAH Connections: Aging with Albinism​​​​​​​
      Wednesday, November 29th:
      NOAH Connections: Young Adults
      Thursday, November 30th:​​​​​​​
      NOAH Connections: Adults

      There’s Still Time to Submit!

      Want to be a part of NOAH’s Halloween Costume Contest? You’re in luck – there’s still time to submit your photo!

      Email your photo to marketing@3.19.125.119 by TOMORROW – Tuesday, November 7th!

      In the meantime, check out our current contestants and “like” to vote for your favorite:
      https://www.facebook.com/media/set/?set=a.728912155945556&type=3

      ​​​​​​​Published: November 6, 2023


      NOAH Research Program Aims

      NOAH has always been and will always be a place that supports the beauty of albinism. We realize having albinism is a big part of a person’s identity. The NOAH Research Program aims not to alter that in any way, but to support the ongoing research of the condition, which could provide positive outcomes or interventions for those seeking them within the albinism community.

      Through research, a greater understanding of the vision system and skin pigmentation can be obtained and lead to outcomes that impact and advance equity and accessibility for people with albinism through improved technology development and/or enhanced management/support. While research often answers some questions, it frequently generates more, and it’s not uncommon to have unexpected outcomes that benefit a wider population.  For example – research using modern technology to study the back of the eye is currently providing advances in eyeglasses and low-vision aids, which could help provide focus and clarity to facial features/expressions.

      Visit http://3.19.125.119/research/for more information about projects funded by NOAH Research Program Grants.

      Published: November 6, 2023


      Grandparents – We Want to Hear From YOU!

      We are seeking a few more members to join our NOAH Connections Grandparents Advisory Task Force. Members of the Task Force meet once per month on Zoom to provide topic recommendations and review topic suggestions to assist NOAH in formalizing program offerings for grandparents in the community. 

      Learn more & apply today:
      www.albinism.org/NOAH-Connections/task-force

      Published: November 6, 2023


      Register Today!

      Parents & caregivers of newly-diagnosed or young children with albinism – you won’t want to miss our next workshop with Sheila Adamo!

      Join us on Wednesday, November 15th at 8:30pm ET // 5:30pm PT to share and learn about adapting to the new role of a parent of a child with albinism. We’ll discuss tools and strategies, share concerns, and gain support from a community of fellow parents. 

      Register by November 13th:
      www.albinism.org/workshops

      Published: November 6, 2023


      LGBTQ+ PWAs – Let Your Voice Be Heard!

      We are seeking a few additional members for our NOAH Connections LGBTQ+ Advisory Task Force to assist in formalizing programming offerings for our LGBTQ+ & Allies NOAH Connections group. 

      Learn more and apply today:
      www.albinism.org/NOAH-Connections/task-force

      Published: November 6, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: November 6, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: People with Albinism in the Legal Profession

      November 7th at 8:00pm ET // 5:00pm PT

      We are so excited for the return of PWAs in the Legal Profession to NOAH Connections! 

      If you are entering, working in, or retired from the legal profession, please join us Tuesday, November 7th at 8pm ET // 5pm PT to connect with fellow PWAs in your field. 

      Sign up today:
      www.albinism.org/NOAH-Connections/#legal

      Published: November 6, 2023


      Thursday: Teen Connections

      November 9th at 8:00pm ET // 5:00pm PT

      Do you have plans for this Thursday night? Well, you do now!

      Join us for another Teen Connections session this Thursday, November 9th at 8:00 PM ET // 5:00 PM PT.

      www.albinism.org/NOAH-Connections/#teens

      Published: November 6, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: November 6, 2023

      Wednesday, November 15th:
      NOAH Workshop: Parents & Caregivers
      NOAH Connections: Young Adults
      Thursday, November 16th:​​​​​​​
      NOAH Connections: Adults
      Monday, November 20th:
      NOAH Connections: PWA Book Club
      Tuesday, November 21st:
      NOAH Connections: Aging with Albinism​​​​​​​
      Wednesday, November 29th:
      NOAH Connections: Young Adults
      Thursday, November 30th:​​​​​​​
      NOAH Connections: Adults

      You’re Invited to a SoCal Ice Cream Social!

      Community members in the SoCal area, we hope you’ll join us to meet the NOAH Board at a SoCal Ice Cream Social hosted by the Barber Family. This free event will be held Friday, November 10th, from 6:00-8:00pm in Anaheim, CA

      RSVP by November 3rd at: app.donorview.com/w8PVg

      ​​​​​​​Published: October 30, 2023


      NOAH’s Scientific Advisory Board

      Since 1982, NOAH has relied on the experience and expertise of professionals in the fields of scientific and medical research that will improve the understanding, diagnosis and management of all forms of albinism. As part of the newly established NOAH Research Program, we maintain a Scientific Advisory Board that reviews and advises on research presented to NOAH for funding and/or community participation/dissemination. With each new grant we award, we extend our network of advisors in albinism research. To say, “we don’t know what we don’t know,” is as true today as it was in 1982. The genetics of albinism – the science of the condition – and the unique spectrum of diversity albinism represents are all areas that have been supported through the efforts of albinism researchers and their findings.

      Visit http://3.19.125.119/research/for more information about the NOAH Research Program.

      Published: October 30, 2023


      PWAs in the Legal Profession

      We are so excited for the return of PWAs in the Legal Profession to NOAH Connections! 

      If you are entering, working in, or retired from the legal profession, please join us Tuesday, November 7th at 8pm ET // 5pm PT to connect with fellow PWAs in your field. 

      Sign up today:
      www.albinism.org/NOAH-Connections/#legal

      Published: October 30, 2023


      Aging with Albinism – Save the Date!
       

      Join Mike Sikes and friends for our next session of Aging with Albinism on Tuesday, November 21st at 5:00pm ET // 2:00pm PT. We hope to see you there!

      www.albinism.org/NOAH-Connections/#aging

      Published: October 30, 2023


      Thank You, Marleena & Casey!

      Marleena Barber & Casey Greer have been our fabulous NOAH Night hosts since our first celebration in 2021, and NOAH Night wouldn’t be the same without them! Thank you, Marleena & Casey, for helping us celebrate NOAH’s 41st birthday last weekend with an entertaining evening for the albinism community!

      Missed the event? You can still join in on the fun! Purchase a ticket to view the recording at: 
      www.albinism.org/NOAHNight

      Published: October 30, 2023


      • United Nations Independent Expert (UNIE) Survey – UNIE Muluka-Anne Miti-Drummond is conducting a survey to inform her next report about education and albinism, and she is seeking additional responses from PWAs in North America to ensure all regions are represented. Interested in sharing your experiences? You can learn more about access to education and employment for PWAs in the UN’s video, and complete the survey by November 3rd at:   https://www.surveymonkey.com/r/UNIEHRC55  

      • AI-Learners (www.ai-learners.com) is an educational platform that helps students with all abilities learn foundational math, literacy, and daily life skills through personalized computer games and analytics. Inspired by her younger sister, who has Rett Syndrome, Adele wanted to create a learning resource that was accessible for students with disabilities and inclusive for all learners. The platform is inclusive to all students, is compatible with assistant technology, and has specific features for students with autism, vision impairment, and other learning challenges. Learn more: https://www.youtube.com/watch?v=fVuSQQCCumA&feature=youtu.be AI-Learners offers subscriptions for schools at a group rate and subscriptions for parents to use the platform at home. Thousands of students are already using AI-Learners! Reach out to Adele for questions on how to create accounts at adele@ai-learners.com

      • Check out this awesome photo shared by Space Camp for Interested Visually Impaired Students (SCIVIS) director Dan Oates. Featured is Charlotte H., who received the NOAH Space Camp Scholarship this year! Charlotte attended space camp with nearly two dozen other students with albinism from around the country and the world. Learn more about SCIVIS & the NOAH Space Camp Scholarship: http://3.19.125.119/space-camp/

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: October 30, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      November 1st at 9:00pm ET // 6:00pm PT

      Do you know what November 1st is? It’s discount Halloween candy day! So pick up your favorite snack and join us for a GOAT candy debate, this Wednesday, November 1st at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#young-adults

      Published: October 30, 2023


      Thursday: Adult Connections

      November 2nd at 9:00pm ET // 6:00pm PT

      Are your holidays like a Disney classic or more National Lampoon? As we gear up for the holiday season, we want to hear all about your experiences! Join us this Thursday, November 2nd at 9:00 PM ET// 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#adults 

      Published: October 30, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: October 30, 2023

      Tuesday, November 7th:
      NOAH Connections: PWAs in the Legal Profession
      Thursday, November 9th:
      NOAH Connections: Teens
      Wednesday, November 15th:
      NOAH Workshop: Parents & Caregivers
      NOAH Connections: Young Adults
      Thursday, November 16th:​​​​​​​
      NOAH Connections: Adults
      Monday, November 20th:
      NOAH Connections: PWA Book Club
      Tuesday, November 21st:
      NOAH Connections: Aging with Albinism​​​​​​​
      Tuesday, November 28th:
      NOAH Connections: Ocular Albinism Connections: Parents, Grandparents, & Caregivers

      Last Chance to Submit!

      Submitting to Albinism InSight is an excellent way to share your experience with the albinism community. Do you have something to say about our Winter Features? Want to share a noteworthy event or discuss your perspective on one of our topics in every issue?

      Learn more and submit by October 25th:
      www.albinism.org/AI/call-for-content

      ​​​​​​​Published: October 23, 2023


      NOAH Research Program Established

      In 2021, NOAH’s Board of Directors was honored to be selected as a steward of generous funds specifically designated for albinism research. This restricted donation was the catalyst for extending NOAH’s support of albinism research to form the NOAH Research Program.

      The NOAH Research Program was established to support albinism research by formalizing a grant funding process, shaping research to answer questions most important to people with albinism, and developing a network of researchers engaged in the albinism community. This natural progression of NOAH’s research support allows NOAH and the albinism community to impact what researchers study and which projects are funded. Since 2021, NOAH has received additional funding designated for albinism research. To date, all NOAH Research Program grants awarded have been entirely funded through donor-restricted gifts.

      Visit www.albinism.org/research/#support for a direct link to donate to the NOAH Research Program.

      Published: October 23, 2023


      NOAH Night Recording Available!

      We had a blast at NOAH Night last Sunday – thank you to everyone who joined us for the celebration!

      If you couldn’t make it, we have good news – you can purchase a ticket to view the NOAH Night recording!

      Purchase your ticket now:
      https://app.donorview.com/RpPP1

      Published: October 23, 2023


      NOAH Needs YOU…to Volunteer!
       

      NOAHCon 2024 is less than one year away, and as anyone who has attended a NOAH national conference knows, it takes a village to plan and execute this significant event. 

      We have several volunteer positions available – learn more and apply today at albinism.org/volunteer/#NOAHCon

      Published: October 23, 2023


      National Estate Planning Week!

      In honor of National Estate Planning Week last week, we wanted to share more with our community about how you can involve NOAH in your estate planning. 

      A Planned Gift is a contribution arranged in the present and allocated at a future date. Commonly donated through a will or trust, planned gifts are most often granted once the donor has passed away. If you have already planned for or are considering donating to NOAH in your will, then you may wish to join NOAH’s Legacy Circle. 

      To learn more about including NOAH in your estate planning, visit http://3.19.125.119/planned-giving/

      Published: October 23, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: October 23, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Parenting without Pigment

      October 24th at 9:00pm ET // 6:00pm PT

      Parents without Pigment – let’s discuss getting your kids ready for Halloween, making or picking out costumes, doing the whole trick-or-treating in the dark, and more!!

      Join us TOMORROW at 9pm ET // 6pm PT to share your tips, tricks, and funny stories from Halloweens past!

      www.albinism.org/NOAH-Connections/#pwp

      Published: October 23, 2023


      Thursday: Teen Connections

      October 26th at 8:00pm ET // 5:00pm PT

      So what’s your deal? Got a party to go to, or are you stuck at home giving out candy? Tell us all about your Halloween plans this Thursday, October 26th at 8:00 PM ET// 5:00 PM PT

      Costumes welcome!

      www.albinism.org/NOAH-Connections/#teens

      Published: October 23, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: October 23, 2023

      Wednesday, November 1st:
      NOAH Connections: Young Adults
      Thursday, November 2nd:​​​​​​​
      NOAH Connections: Adults
      Tuesday, November 7th:
      NOAH Connections: PWAs in the Legal Profession
      Thursday, November 9th:
      NOAH Connections: Teens
      Wednesday, November 15th:
      NOAH Workshop: Parents & Caregivers
      NOAH Connections: Young Adults
      Thursday, November 16th:​​​​​​​
      NOAH Connections: Adults
      Monday, November 20th:
      NOAH Connections: PWA Book Club
      Tuesday, November 21st:
      NOAH Connections: Aging with Albinism​​​​​​​

      Parenting without Pigment – Halloween!

      Parents without Pigment – let’s discuss getting your kids ready for Halloween, making or picking out costumes, doing the whole trick-or-treating in the dark, and more!!

      Join us on Tuesday, October 24th at 9pm ET // 6pm PT to share your tips, tricks, and funny stories from Halloweens past!

      www.albinism.org/NOAH-Connections/#pwp

      ​​​​​​​Published: October 16, 2023


      NOAH Supports Albinism Research

      Supporting albinism research has been part of the National Organization for Albinism and Hypopigmentation (NOAH) since its inception. In 1982, Dr. Carl Witkop – an albinism researcher from the University of Minnesota and seminal contributor to our understanding of albinism – attended a workshop in Philadelphia for people with albinism, where he is credited as one of NOAH’s founders.

      Throughout NOAH’s 40-year history, our organization has drafted letters of support for those conducting albinism research projects, invited professionals to share information at our national conferences about current scientific findings and new technologies available to people with albinism, and provided information to our community for those interested in participating in research studies that may lead to a better understanding of the genetic condition of albinism.

      Visit http://3.19.125.119/research for more information about how NOAH supports albinism research.

      Published: October 16, 2023


      Have you seen the Autumn Issue of Albinism InSight?!

      Autumn AI has arrived in the mailboxes and inboxes of subscribers, but it’s not too late to get YOUR copy!

      With annual subscriptions starting at just $10, subscribing to AI is an affordable and fun way to keep up with the albinism community. 

      Learn more & subscribe today:
      www.albinism.org/ai

      Published: October 16, 2023


      Book Club Rescheduled!
       

      Mark your calendars – our next NOAH PWA Book Club meeting has been rescheduled to Monday, November 20th, at 8pm ET // 5pm PT.

      Are you an adult with albinism who loves to read? Grab a copy of “Hello Beautiful” by Ann Napolitano and sign up to join us!


      www.albinism.org/NOAH-Connections/#pwa-book-club

      Published: October 16, 2023


      All About Albinism for Kids

      Is there a kid in your life who is interested in learning more about albinism? Share “All About Albinism for Kids” from NOAHCon 2020 with them! This session will help kids with albinism & their siblings or friends better understand albinism. 

      vimeo.com/albinism/albinismkids

      Published: October 16, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: October 16, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Aging with Albinism

      October 17th at 5:00pm ET // 2:00pm PT

      Older PWAs, join Mike Sikes and friends for our next session of Aging with Albinism this Tuesday, October 17th at 5:00pm ET // 2:00pm PT.

      New to the group? Sign up today, and you’ll also get email reminders for future calls!
      www.albinism.org/NOAH-Connections/#aging

      Published: October 16, 2023


      Wednesday: Grandparenting a Child with Albinism Workshop

      October 18th at 8:30pm ET // 5:30pm PT

      Join Sheila Adamo, LCSW, CADC, this Wednesday, October 18th, for a workshop that will provide information, guidance, and support for grandparents of children with albinism of all ages. We will explore typical emotions and discuss strategies to help the family adjust and thrive. 

      Don’t miss out – today is your last chance to register!
      www.albinism.org/workshops

      Published: October 16, 2023


      Wednesday: Young Adult Connections

      October 18th at 9:00pm ET // 6:00pm PT

      🎵 I wish I’d never grown up🎵

      As you hear Taylor Swift’s voice in your head, remember you are not alone! Reflect on growing up – leave those teenage years behind and embrace the next chapter with a new set of friends! 

      Join us for a special session where we welcome former Teen Connections friends to our Young Adult Connections group, this Wednesday, October 18th at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#young-adults

      Published: October 16, 2023


      Thursday: Adult Connections

      October 19th at 9:00pm ET // 6:00pm PT

      Did you attend NOAH Night? Got any favorite clips or highlights? In case you missed it or want to relive those great moments, join us during our Adult Connections session this Thursday, October 19th at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#adults 

      Published: October 16, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: October 16, 2023

      Tuesday, October 24th:
      NOAH Connections: Parenting without Pigment
      Thursday, October 26th:
      NOAH Connections: Teens
      Wednesday, November 1st:
      NOAH Connections: Young Adults
      Thursday, November 2nd:​​​​​​​
      NOAH Connections: Adults
      Thursday, November 9th:
      NOAH Connections: Teens
      Wednesday, November 15th:
      NOAH Workshop: Parents & Caregivers
      Wednesday, November 15th:
      NOAH Connections: Young Adults
      Thursday, November 16th:​​​​​​​
      NOAH Connections: Adults
      Monday, November 20th:
      NOAH Connections: PWA Book Club

      We Want YOU for the Next Issue of Albinism InSight!

      Submitting to Albinism InSight is an excellent way to share your experience with the albinism community. Do you have something to say about our Winter Features? Want to share a noteworthy event or discuss your perspective on one of our topics in every issue?

      Learn more and submit by October 25th:
      www.albinism.org/AI/call-for-content​​​​

      ​​​​​​​Published: October 9, 2023


      Aging with Albinism

      Older PWAs, join Mike Sikes and friends for our next session of Aging with Albinism on Tuesday, October 17th at 5:00pm ET // 2:00pm PT.

      New to the group? Sign up today, and you’ll also get email reminders for future calls!

      www.albinism.org/NOAH-Connections/#aging

      Published: October 9, 2023


      Ayden B. – iPad Recipient!

      Check out NOAH community member Ayden B. with his new iPad from the NOAH iPad Assistance Program! Ayden’s mom shares that he has been using the iPad for drawing, homework, videos, and more.

      Many thanks to the Parker Hannifin Foundation for their generous support of the NOAH iPad Program.

      Published: October 9, 2023


      NOAH Night Updates!

      Do YOU Want to Be a NOAHCon VIP?!
       
      We are so excited to announce a new DOOR PRIZE to be awarded at NOAH Night 2023! 
       
       All registered NOAH Night 2023 ticket holders will be entered to win the exclusive honor of being a NOAHCon 2024 VIP, which includes special recognition at the opening session, reserved VIP seating for you and up to 3 friends at all conference meals and sessions, and of course, bragging rights!
        
      We know you’ve always wanted to be NOAHCon royalty, so what are you waiting for? Get your tickets today and join us for NOAH Night 2023 on Sunday, October 15th.

      https://app.donorview.com/RpPP1

      A limited number of NOAHCon 2024 VIPs will be selected throughout the evening. Selected ticket holder MUST be present to claim; if not present, a new ticket will be drawn. One winner per household. 

      Winner is responsible for all travel and related expenses to attend NOAHCon 2024.

      Published: October 9, 2023


      NOAH Night Tickets – SPF Grateful

      Want to attend NOAH Night but tickets don’t fit your budget? Don’t worry, you can still join in the celebration!

      Select the “SPF Grateful” ticket level, and give what you can at checkout:

      https://app.donorview.com/RpPP1

      Published: October 9, 2023


      Announcing The NOAH Night Red Carpet!

      The NOAH Night Red Carpet is ready for guests, and we can’t wait to see who will arrive first…

      Anyone with a ticket to NOAH Night can walk the Red Carpet! Send your full-body photo to marketing@3.19.125.119 to join in on the fun.

      www.albinism.org/NOAHNight

      Published: October 9, 2023


      • FYI: TELUS Remote Work Opportunities – TELUS International AI has remote work opportunities for people with limited prospects and access to sustainable employment. Learn more: https://www.telusinternational.com/careers/ai-communityPlease note: NOAH is not affiliated with this job opportunity – it is shared as a courtesy to our community. All questions should be directed to TELUS.

      • Have you heard about the twin para-athletes training to compete in the triathlon at the 2024 Paralympic Games? Learn more about Chloe and Judith MacCombe, twins with albinism from Northern Ireland, in their recent feature on BBC news: https://www.bbc.com/news/uk-northern-ireland-66738375

      • NOAH Community member Dan Ankeman recently had an article published in the American Journal of Law and Equality. The article, titled “HOW UNFOUNDED FEAR DISENFRANCHISES VOTERS WITH DISABILITIES,” discusses the “persistent gap in voter participation between those with and without disabilities in the United States that has not been remedied by the Americans with Disabilities Act or other federal protections for voters with disabilities…” Congratulations, Dan! Interested in reading Dan’s article? Check it out at: https://direct.mit.edu/ajle/article/doi/10.1162/ajle_a_00055/117630/HOW-UNFOUNDED-FEAR-DISENFRANCHISES-VOTERS-WITH

      • WMAR-2 News Baltimore recently featured an interview with NOAH community member and creator of the Rebokeh app, Rebecca Rosenberg. Rebecca created the app specifically for low-vision users after identifying a gap in assistive technology, with most products being geared towards those who are legally blind. Check out the interview: https://www.youtube.com/watch?v=s4oivqtyR1s 

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: October 9, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Thursday: Teen Connections

      October 12th at 8:00pm ET // 5:00pm PT

      Fall is here! The leaves are changing and the days are getting shorter! Before you hibernate for the evening, join us for our Teen Connections call this Thursday, October 12th at 8:00 PM ET// 5:00 PM PT.

      www.albinism.org/NOAH-Connections/#teens

      Published: October 9, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: October 9, 2023

      Tuesday, October 17th:
      NOAH Connections: Aging with Albinism
      Wednesday, October 18th:
      NOAH Workshops: Grandparenting a Child with Albinism
      NOAH Connections: Young Adults
      Thursday, October 19th:​​​​​​​
      NOAH Connections: Adults
      Tuesday, October 24th:
      NOAH Connections: Parenting without Pigment
      Thursday, October 26th:
      NOAH Connections: Teens
      Wednesday, November 1st:
      NOAH Connections: Young Adults
      Thursday, November 2nd:​​​​​​​
      NOAH Connections: Adults

      Last Chance to Submit Your Talent!

      PWAs, we know you have some fun and exciting talents to share…so don’t miss out on the chance to be included in the NOAH Has Talent! Talent Showcase at NOAH Night, sponsored by Epstein | Ostrove!! 

      Submissions are due TODAY!

      www.albinism.org/NOAHNight/#talent​​​​​​​

      ​​​​​​​Published: October 2, 2023


      Are you interested in serving on the NOAH Research Program Committee?

      Applications are currently being accepted to invite new members to NOAH’s Research Program Committee.


      For more information or to apply, visit: www.albinism.org/research/committee

      Since 1982, NOAH has supported ongoing research that could provide positive outcomes or interventions for those seeking them within the albinism community. The NOAH Research Program is committed to becoming a leading voice in albinism research by funding impactful research that will help develop a greater understanding of albinism and build a community of top-notch researchers who are engaged with the albinism community. 

      The NOAH Research Program Committee is tasked with the overall management of the grant review process, making appropriate recommendations on research-oriented content and program offerings, and promoting community engagement/fundraising efforts.

      NOAH is currently seeking applicants from across our diverse community for nomination to the NOAH Research Program Committee. Are you ready to help shape research and answer questions most important to people with albinism?

      Visit 

      www.albinism.org/research/committeeto apply.

      Published: October 2, 2023


      Donté & Sonja’s Popcorn Fundraiser Update!

      NOAH Board Chair Donté Mickens and Board Member Sonja Harris both hosted a fundraiser for NOAH last week. In total, they sold $2,355 worth of popcorn, which means they raised over $1,000 for NOAH!

      Thank you, Sonja & Donté!

      Published: October 2, 2023


      Grandparenting a Child with Albinism

      Grandparents – join Sheila Adamo, LCSW, CADC, on Wednesday, October 18th, for a workshop that will provide information, guidance, and support for grandparents of children with albinism of all ages. We will explore typical emotions and discuss strategies to help the family adjust and thrive.

      Register by October 16th:
      www.albinism.org/workshops

      Published: October 2, 2023


      National Blind Sports Month

      October is USABA’s National Blind Sports Month, and we want to see what sports the PWAs in our community enjoy. Share your pictures or videos for the chance to be featured in NOAH’s story throughout October. 

      Learn more about Blind Sports Month events on the USABA website:
      https://www.usaba.org/2023-national-blind-sports-month/

      Published: October 2, 2023


      • Volunteers, including NOAH community members Tricia Thomas, Drake Thomas, and Lee Laughlin, recently offered a helping hand at Lions Camp Pride in New Durham, NH. This crew helped to straighten up the Arts and Crafts building that our campers enjoy during NOAH Family Camp. Great job, everyone!
        ​​​​​​​Check out the photo in our recent Facebook post.

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: October 2, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      October 4th at 9:00pm ET // 6:00pm PT

      Break out the pumpkin spice, it is that time of year again! Whether you are pro or no to the Fall phenomenon, break out your fav beverage and spill the tea with us this Wednesday, October 4th from 9:00 PM ET // 6:00 PM PT!

      www.albinism.org/NOAH-Connections/#young-adults

      Published: October 2, 2023


      Thursday: Adult Connections

      October 5th at 9:00pm ET // 6:00pm PT

      Don’t Panic! The leaves on the trees may be changing but Fall just started. Catch your Autumn highlights and simmer in for a relaxing conversation this Thursday, October 5th from 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#adults

      Published: October 2, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: October 2, 2023

      Thursday, October 12th:
      NOAH Connections: Teens 
      Tuesday, October 17th:
      NOAH Connections: Aging with Albinism
      Wednesday, October 18th:
      NOAH Workshops: Grandparenting a Child with Albinism
      NOAH Connections: Young Adults
      Thursday, October 19th:​​​​​​​
      NOAH Connections: Adults
      Thursday, October 26th:
      NOAH Connections: Teens

      Yom Kippur

      Wishing a meaningful Yom Kippur to all in our community who observe.

      ​​​​​​​Published: September 25, 2023


      Are You Interested in Albinism Research?

      The NOAH Research Committee is excited to share the following video, which offers a glimpse of the National Eye Institute (NEI) facility and provides information about albinism research being conducted at NEI on the National Institutes of Health (NIH) campus in Bethesda, MD. 

      https://youtu.be/wr-pAYi6UN8

      A special “Thank you” to the NEI Communications staff for their expert guidance; to Aman George (Staff Scientist at NEI) for being our host on the video; and to NOAH Research Committee member Kerry Goetz (Associate Director; NEI Office of Data Science & Health Informatics, NIH) for coordinating this special partnership opportunity for NOAH.

      If you’d like more information about NOAH’s support of albinism research through the NOAH Research Program, please join the conversation at the NOAH Research Program Coffee Chat, on September 26th at 7pm ET // 4pm PT. We will be discussing the NOAH Research Program, sharing details about our Research Program Grant process and providing information and insight about NOAH’s ongoing support of albinism research and how you can GET INVOLVED.

      Sign up today:
      www.albinism.org/NOAH-Connections/#research

      Published: September 25, 2023


      Donté’s Popcorn Fundraiser!

      NOAH Board Chair Donté Mickens is hosting a fundraiser for NOAH. From September 27th – October 1st, purchase popcorn from his Double Good Pop-Up and 50% of the profits will go directly to NOAH. 

      Dontés Fundraiser: https://bit.ly/462Bcxd

      Published: September 25, 2023


      Bioptic Photo Challenge!

      You may have heard that some PWAs use a bioptic telescope to help them drive…but did you know there are so many other uses for this handy device?!

      PWAs – do YOU use a bioptic? We invite you to share a photo of you using a bioptic for activities other than driving on our recent Facebook post!

      Published: September 25, 2023


      Save the Date & Start Reading!

      NOAH PWA Book Club is back, and we are already looking forward to our next meeting. Start reading “Hello Beautiful” by Ann Napolitano and mark your calendar to join us for a book discussion on Monday, November 13th at 9pm ET // 6pm PT.

      www.albinism.org/NOAH-Connections/#pwa-book-club

      Published: September 25, 2023


      NOAH Night Updates!

      Last Chance to Submit Your Talent!

      PWAs, we know you have some fun and exciting talents to share…so don’t miss out on the chance to be included in the NOAH Has Talent! Talent Showcase at NOAH Night, sponsored by Epstein | Ostrove!! 

      Submissions are due TODAY!

      www.albinism.org/NOAHNight/#talent​​​​​​​

      Published: September 25, 2023


      Thank you, ShadeSuits!

      ShadeSuits is a continued supporter of our New Parent Program, and we are pleased to include them as NOAH Night Sponsors. In honor of NOAH’s 41st birthday celebration, you can use code SS30 for 30% off your next purchase at www.shadesuits.com

      Want to see YOUR name in lights? Learn more about NOAH Night sponsorship opportunities today:
      albinism.org/NOAHNight/#sponsor

      Published: September 25, 2023


      One Week Left to Submit Your Art or Writing!

      Calling all kids & adults with albinism – break out the crayons, break out the markers, grab your pen and paper; it’s that time again! 

      Check out Spiffy’s Creative Arts Contest and submit by October 1stfor the chance to be featured in Albinism InSight!

      www.albinism.org/NOAHNight/#spiffy

      Published: September 25, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: September 25, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Aging with Albinism

      September 26th at 5:00pm ET // 2:00pm PT

      Aging with Albinism is Back!

      Older PWAs, we look forward to seeing you this Tuesday, September 26th, for our next session of Aging with Albinism. We can’t wait to reconnect, meet new members, and hear about your summer!

      New to the group? Now is the perfect time to sign up! 
      www.albinism.org/NOAH-Connections/#aging

      Published: September 25, 2023


      Tuesday: Research Program Coffee Chat

      September 26th at 7:00pm ET // 4:00pm PT

      JOIN THE CONVERSATION

      Are you interested in albinism research?

      Join the NOAH Research Program Committee this Tuesday, September 26th at 7pm ET // 4pm PT for a call to discuss the program, share details about our Research Program Grant process and provide information and insight about NOAH’s ongoing support of albinism research and how you can GET INVOLVED.

      Sign up today:
      www.albinism.org/NOAH-Connections/#research

      Published: September 25, 2023


      Thursday: Teen Connections

      September 28th at 8:00pm ET // 5:00pm PT

      Teens, we can’t wait to see you at our next session of Teen Connections! Join us for friendship & fun this Thursday, September 28th at 8pm ET // 5pm PT.

      New to the group? There’s still time to sign up!

      www.albinism.org/NOAH-Connections/#teens

      Published: September 25, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: September 25, 2023

      Wednesday, October 4th:
      NOAH Connections: Young Adults
      Thursday, October 5th:​​​​​​​
      NOAH Connections: Adults
      Thursday, October 12th:
      NOAH Connections: Teens 
      Wednesday, October 18th:
      NOAH Workshops: Grandparenting a Child with Albinism
      NOAH Connections: Young Adults
      Thursday, October 19th:​​​​​​​
      NOAH Connections: Adults

      Happy LatinX & Hispanic Heritage Month!

      Hispanic & LatinX PWAs – how do you stay connected to your heritage or honor your culture? Send a story, photo, or video to eaubrey@3.19.125.119 to be featured on the NOAH Website and social media this month and beyond.

      www.albinism.org/heritage

      ​​​​​​​Published: September 18, 2023


      Are You Interested in Albinism Research?

      Join the NOAH Research Program Committee on September 26th at 7pm ET // 4pm PT for a call to discuss the program, share details about our Research Program Grant process and provide information and insight about NOAH’s ongoing support of albinism research and how you can GET INVOLVED.

      Sign up today:
      www.albinism.org/NOAH-Connections/#research

      Published: September 18, 2023


      NOAH Needs YOU…to Volunteer!

      NOAHCon 2024 is less than one year away, and as anyone who has attended a NOAH national conference knows, it takes a village to plan and execute this significant event. 

      We have several volunteer positions available – learn more and apply today at albinism.org/volunteer/#NOAHCon

      Published: September 18 2023


      NOAH Night Updates!

      Thank You, 

      Epstein | Ostrove!

      We are pleased to share that Epstein | Ostrove is a NOAH Night 2023 Diamond Sponsor. Thank you, Epstein | Ostrove for your continued support of NOAH!

      Want to see YOUR name in lights?! We have exciting sponsorship opportunities available for local businesses. 

      Learn more: albinism.org/NOAHNight/#sponsor

      Published: September 18, 2023


      One Week Left to Submit Your Talent!

      Dance, sing, yo-yo, your choice! We know you’ve got the talent; now is your chance to show everyone else. 

      Send in your talent submission by September 25th for the chance to be featured in our lineup for this year’s Epstein | Ostrove NOAH Has Talent! showcase!

      www.albinism.org/NOAHNight/#talent

      Published: September 18, 2023


      Two Weeks Left to Submit Your Art or Writing!

      Calling all kids & adults with albinism – break out the crayons, break out the markers, grab your pen and paper; it’s that time again! 

      Check out Spiffy’s Creative Arts Contest and submit by October 1stfor the chance to be featured in Albinism InSight!

      www.albinism.org/NOAHNight/#spiffy

      Published: September 18, 2023


      • Have you heard about LEGO Braille Bricks? Originally distributed only to specific organizations working with children with visual impairments, LEGO Braille Bricks are now available to the public as of September 1st. LEGO says the bricks were created as “a fun and playful way to introduce braille to anyone who wants to learn.”Learn more: https://www.lego.com/en-us/braille-bricks

      • In honor of Hispanic & LatinX Heritage Month, the film “Malpaso”will stream for free Sept. 16-23. “Malpaso” centers around two orphaned siblings in the DR, one with albinism. https://www.lacla.org/cine-nepantla-2023Please note: some themes in the film may not be suitable for all viewers.

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: September 18, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Parenting without Pigment

      September 19th at 9:00pm ET // 6:00pm PT

      Back to School Chatter!

      Parents with albinism, join Kathi Garza and friends this Tuesday, September 19th at 9pm ET // 6pm PT to chat about parenting during the back-to-school season.

      New to the group? Sign up today!
      www.albinism.org/NOAH-Connections/#pwp

      Published: September 18, 2023


      Wednesday: Young Adult Connections

      September 20th at 9:00pm ET // 6:00pm PT

      Looking for a quiet night with friends and away from the crazy in your life? You are in luck! We’re having another Young Adult Connections session this Wednesday, September 20th. Join us for a night of fun and relaxation starting at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#young-adults

      Published: September 18, 2023


      Thursday: Adult Connections

      September 21st at 9:00pm ET // 6:00pm PT

      Do you remember the 21st night of September? Get your Earth Wind and Fire going during our upcoming Adult Connections session! 

      Join us this Thursday, September 21st at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#adults

      Published: September 18, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: September 18, 2023

      Tuesday, September 26th:
      NOAH Connections: Aging with Albinism
      Thursday, September 28th:
      NOAH Connections: Teens 
      Wednesday, October 4th:
      NOAH Connections: Young Adults
      Thursday, October 5th:​​​​​​​
      NOAH Connections: Adults
      Thursday, October 12th:
      NOAH Connections: Teens 
      Wednesday, October 18th:
      NOAH Workshops: Grandparenting a Child with Albinism
      NOAH Connections: Young Adults
      Thursday, October 19th:​​​​​​​
      NOAH Connections: Adults

      National Day of Service and Remembrance

      Today we observe the National Day of Service and Remembrance, in memory of the nearly 3,000 people who lost their lives on September 11, 2001. 

      ​​​​​​​Published: September 11, 2023


      NOAH Night Tickets Available!

      NOAH’s 41st birthday is just around the corner, and we can’t wait to celebrate with YOU!

      Check out our many ticket options (including fun add-ons) and grab yours today:
      www.albinism.org/NOAHNight

      Published: September 11, 2023


      Share Your Skills for NOAH Night!

      NOAH Night is October 15th, and there are multiple chances for PWAs of all ages to share their skills!

      Do you have a unique talent? Submit a video for the NOAH Has Talent! showcase!

      Is writing or visual art more your style? Check out Spiffy’s Creative Arts Contest!

      Submissions for the NOAH Has Talent! Showcase are due September 25th and submissions for Spiffy’s Creative Arts Contest are due October 1st.

      Learn more and submit at:

      www.albinism.org/noahnight

      Published: September 11 2023


      Share Your Back to School Pics!

      It’s September, which means our NOAH students and educators are back to school! Whether your first day was a while ago, or you’ve just started for the year, we invite you to share your back-to-school pics with us on our recent Facebook post.

      Published: September 11, 2023


      NOAH’s Back to School Library!

      Parents & caregivers – we want to hear from YOU! ​​​​​​​

      How do you/your child share info about albinism with their teachers or classmates at the beginning of the school year? Do you/they write a letter, make a presentation, or go a different route?

      Submit your sample letters, presentations, ideas, etc. (including your child’s age/grade, and photos/videos if applicable!) to bts@3.19.125.119 for the chance to be added to our Back to School Library!

      www.albinism.org/bts

      Published: September 11, 2023


      • Did you know that our friends at the Lighthouse Guild offer a monthly tele-support call for parents of kids with albinism? The next call will be held Thursday, September 21st at 8:30pm ET // 5:30pm PT.Learn more: http://3.19.125.119/wp-content/uploads/2023/08/NOAH.pdf

      • Have you heard about the new movie streaming on Netflix called “Can You See Us?” This coming-of-age drama centers around a young Zambian boy with albinism and is based on a true story. If you’ve watched the film, let us know what you thought on our recent Facebook post

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: September 11, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TONIGHT: PWA Book Club

      September 11th at 9:00pm ET // 6:00pm PT

      Book Club members, join us TONIGHT at 9pm ET // 6pm PT to discuss Remarkably Bright Creatures by Shelby Van Pelt!

      www.albinism.org/NOAH-Connections/#pwa-book-club

      Published: September 11, 2023