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NOAH News

Giving Tuesday NOAH Board Match INCREASED!

We are thrilled to share that NOAH’s Board, overwhelmed by the generosity of our community, has increased their commitment to match up to $6,500 for NOAH’s Giving Tuesday fundraiser!

Every little bit makes a difference, and this is a great chance to make a gift of any size go further for NOAH this holiday season!

Donate today:https://app.donorview.com/JQbz

​​​​​​​Published: November 27, 2023

Tell Your Story Tuesday!

Each Tuesday in November, we will highlight community member stories about the impact of NOAH on their lives. Keep an eye out for our next community story tomorrow on NOAH social media!

Today, hear from former NOAH board chair, Kelsey Thompson, in this video recorded in celebration of NOAH’s 35th birthday. Kelsey talks about how, from her earliest childhood memories, NOAH has always been a part of her life.

Check out Kelsey’s video! 

Inspired by Kelsey’s story?Consider making a gift to NOAH this holiday season, and take advantage of our $6,500 Board of Directors match now through November 28th!

Donate today: https://app.donorview.com/JQbz

Published: November 27, 2023

NOAH is thankful for…YOU!

Thank YOU for being an essential part of our community and supporting NOAH’s mission!  We are so grateful for the support of community members over the past 41 years.

Published: November 27, 2023

  • Did you know American Printing House for the Blind is hosting a National Coding Symposium & Day of Code? Educators & students K-college are invited to join this virtual event December 4th-6th to learn about accessible coding for users who rely on screen access software, hear from coding pros, and more! https://www.aph.org/2023-national-coding-symposium-for-students/

NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: November 27, 2023

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections

    Wednesday: Young Adult Connections

    November 29th at 9:00pm ET // 6:00pm PT

    Young adults, ready for a little time to unwind with friends after a busy holiday weekend? Join us this Wednesday at 9pm ET // 6pm PTfor great company and conversation!

    www.albinism.org/NOAH-Connections/#young-adults

    Published: November 27, 2023

    Thursday: Adult Connections

    November 30th at 9:00pm ET // 6:00pm PT

    Adults with albinism – don’t miss out on the next chance to connect with your “PWA Pals!” Set a reminder on your calendar to join us this Thursday at 9pm ET // 6pm PT. 

    www.albinism.org/NOAH-Connections/#adults

    Published: November 27, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: November 27, 2023

    Wednesday, December 6th:
    NOAH Connections: Parents    		Thursday, December 7th:
    NOAH Connections: Teens
    Wednesday, December 13th:
    NOAH Connections: Young Adults    		Thursday, December 14th:​​​​​​​
    NOAH Connections: Adults
    Thursday, December 21st:
    NOAH Connections: Teens    		Wednesday, December 27th:
    NOAH Connections: Young Adults
    Thursday, December 28th:​​​​​​​
    NOAH Connections: Adults    		Thursday, January 4th:
    NOAH Connections: Teens
    Monday, January 8th:
    NOAH Connections: PWA Book Club

    Thank you, Barber Family!

    Join us in sending a special shout-out to the Barber family for hosting the SoCal Ice Cream Social. This free event was a great chance for local NOAH community members to enjoy a sweet treat and get to know the NOAH Board of Directors.

    ​​​​​​​Published: November 20, 2023

    Tell Your Story Tuesday!

    Each Tuesday in November, we will highlight community member stories about the impact of NOAH on their lives. Keep an eye out for our next community story tomorrow on NOAH social media!

    Last Tuesday, we heard from NOAH Board Member Rosalind Isom, who shared her experiences from her first time connecting with NOAH at NOAHCon 2018 in Kansas City and the impact of the connection and community she has found with NOAH since then.

    Check out Rosalind’s video! 

    Inspired by Rosalind’s story?Consider making a gift to NOAH this holiday season, and take advantage of our $4,500 Board of Directors match now through November 28th!

    Donate today: https://app.donorview.com/JQbz

    Published: November 20, 2023

    NOAH Research Program ~ Our Commitment

    NOAH will become a leading voice in albinism research through the work of its Research Program. Funded research will be community-centered and help develop a greater understanding of albinism. This is an opportunity not just to fund albinism research, but also to shape research to answer questions most important to people with albinism.

    If albinism research is an area of interest for you…Get Involved!

    Fundraise! Efforts are ongoing for NOAH programs, including the Research Program. Your designated gift could help support the next NOAH Research Program Grant! 


    Stay current on the projects and findings of NOAH’s Research Program Grant recipients and any current opportunities available for participation in studies related to albinism.
     
    We want to hear from YOU! The NOAH Research Program Committee would welcome broader input from the community, including questions about albinism research. Contact NOAH to share your comments and questions related to albinism research.

    Visit https://albinism.org/research/ to find out more!

    Published: November 20, 2023

    Have You Heard About the NOAH Board of Directors Giving Tuesday Match?

    We are thrilled to share that our Board of Directors will match the first $4,500 of donations to NOAH now through Giving Tuesday (November 28th). Every little bit makes a difference, and this is a great chance to make a gift of any size go further for NOAH this holiday season!

    Donate today: https://app.donorview.com/JQbz

    Published: November 20, 2023

    Albinism in Africa

    Check out our session recording from NOAHCon 2022, Albinism in Africa: Exciting Opportunities Ahead presented by Francis Tiangson from Under the Same Sun.

    Interested in more session recordings and video content? Visit NOAH’s Video Library at www.albinism.org/video

    Published: November 20, 2023

    Holiday Travel Tips!

    The holiday season is just around the corner, and many will travel to see loved ones near and far!

    PWAs – we want to hear from YOU! Do you have any tips and tricks to share with fellow PWAs navigating airports, bus and train terminals, or unfamiliar places?

    Share your suggestions on our recent Facebook Post! 

    Published: November 20, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: November 20, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    TONIGHT: PWA Book Club

    November 20th at 8:00pm ET // 5:00pm PT

    Book club members – we can’t wait to see you tonight to discuss “Hello Beautiful” by Ann Napolitano!

    www.albinism.org/NOAH-Connections/#pwa-book-club

    Published: November 20, 2023

    Tuesday: Aging with Albinism

    November 21st at 5:00pm ET // 2:00pm PT

    Older PWAs – join Mike Sikes and friends for our next session of Aging with Albinism this Tuesday, November 21st at 5:00pm ET // 2:00pm PT. We hope to see you there!

    www.albinism.org/NOAH-Connections/#aging

    Published: November 20, 2023

    Wednesday – Tuesday: NOAH Connections Thanksgiving Break

    November 22nd – November 28th

    We’ll take a NOAH Connections Thanksgiving Break from November 22-28th for our staff and community members to enjoy time with loved ones over the holiday.

    We can’t wait to see YOU when we resume our usual NOAH Connections calls starting November 29th. Check out our upcoming meet-ups:
    www.albinism.org/NOAH-Connections

    Published: November 20, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: November 20, 2023

    Wednesday, November 29th:
    NOAH Connections: Young Adults    		Thursday, November 30th:​​​​​​​
    NOAH Connections: Adults
    Thursday, December 7th:
    NOAH Connections: Teens    		Wednesday, December 13th:
    NOAH Connections: Young Adults
    Thursday, December 14th:​​​​​​​
    NOAH Connections: Adults    		Thursday, December 21st:
    NOAH Connections: Teens

    Happy Veterans Day from NOAH

    In honor of Veterans Day on Friday, join us in extending our appreciation to the veterans in our NOAH community!​​​​​​​

    ​​​​​​​Published: November 13, 2023

    Costume Contest Winners!

    We had so many awesome submissions for this year’s costume contest – thank you to everyone who participated!

    Join us in congratulating our 2023 NOAH Halloween Costume Contest winners:

    Group Costume:

    #22 – Maxwell & Siblings

    Individual Costume:

    #25 – Briella

    Duo Costume:

    #4 – Felix & Brynn​​​​​​​

    Published: November 13, 2023

    NOAH Programs Promote Acceptance and Awareness

    NOAH continues to encourage self-acceptance and improved awareness that will hopefully lead to better understanding and acceptance outside our community. NOAH encourages every member of the albinism community to make the choices best suited to meet their needs and goals. NOAH offers a buffet of programming. NOAH hosts NOAHCon national conferences, Adults with Albinism Weekend, NOAH Family Camp, and NOAH Virtual Connections which provide numerous opportunities for support, growth and fellowship. In addition to the newly established NOAH Research Program, NOAH offers the New Parent/Parent Liaison Program, a Leadership Scholarship, and other various education, outreach and awareness programs.

    Visit https://albinism.org for more information on NOAH programs, events, and resources.

    Published: November 13, 2023

    Announcing: NOAH Board of Directors Giving Tuesday Match

    We are thrilled to share that our Board of Directors will match the first $4,500 of donations to NOAH now through Giving Tuesday (November 28th). Every little bit makes a difference, and this is a great chance to make a gift of any size go further for NOAH this holiday season!

    Donate today: https://app.donorview.com/JQbz

    Published: November 13, 2023

    Tell Your Story Tuesday!

    Each Tuesday in November, we will highlight community member stories about the impact of NOAH on their lives. Keep an eye out for our next community story tomorrow on NOAH social media!

    Last Tuesday, we heard from NOAH Board Member Andrew Sartorius as he shared his experiences from his first ever NOAH Conference and the community NOAH provides for his family.

    Check out Andrew’s video.

    Inspired by Andrew’s story?Consider making a gift to NOAH this holiday season, and take advantage of our $4,500 Board of Directors match now through November 28th!

    Donate today: https://app.donorview.com/JQbz

    Published: November 13, 2023

    Young Adults with Albinism – We Want to Hear From You!

    Joining the NOAH Connections Young Adults Advisory Task Force is a great chance to let your voice be heard. Advisory Task Force members share feedback on programming specifically for the Young Adult Connections Group.

    Learn more & apply to join today:
    www.albinism.org/NOAH-Connections/task-force

    Published: November 13, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: November 13, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Wednesday: Newly Diagnosed Parents of Parents of Young Children with Albinism

    November 15th at 8:30pm ET // 5:30pm PT

    Last Chance to Register!

    Parents & caregivers of newly-diagnosed or young children with albinism – you won’t want to miss our next workshop with Sheila Adamo!

    Join us on Wednesday, November 15th at 8:30pm ET // 5:30pm PT to share and learn about adapting to the new role of a parent of a child with albinism. We’ll discuss tools and strategies, share concerns, and gain support from a community of fellow parents. 

    Register by TODAY, November 13th:
    www.albinism.org/workshops

    Published: November 13, 2023

    Wednesday: Young Adult Connections

    November 15th at 9:00pm ET // 6:00pm PT

    Thanksgiving is upon us, are you visiting with family or taking a break from them and chilling with friends this year? Tell us all about your long weekend plans for the holidays this Wednesday, November 15th at 9:00 PM // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#young-adults

    Published: November 13, 2023

    Thursday: Adult Connections

    November 16th at 9:00pm ET // 6:00pm PT

    Do you have your Black Friday lists ready? Are you an online shopper or do you brave the stores?

    Shopping season is upon us and we want to hear about your wish list! Share your tips and join us this Thursday, November 16th at 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#adults

    Published: November 13, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: November 13, 2023

    Monday, November 20th:
    NOAH Connections: PWA Book Club    		Tuesday, November 21st:
    NOAH Connections: Aging with Albinism​​​​​​​
    Wednesday, November 29th:
    NOAH Connections: Young Adults    		Thursday, November 30th:​​​​​​​
    NOAH Connections: Adults

    There’s Still Time to Submit!

    Want to be a part of NOAH’s Halloween Costume Contest? You’re in luck – there’s still time to submit your photo!

    Email your photo to marketing@albinism.org by TOMORROW – Tuesday, November 7th!

    In the meantime, check out our current contestants and “like” to vote for your favorite:
    https://www.facebook.com/media/set/?set=a.728912155945556&type=3

    ​​​​​​​Published: November 6, 2023

    NOAH Research Program Aims

    NOAH has always been and will always be a place that supports the beauty of albinism. We realize having albinism is a big part of a person’s identity. The NOAH Research Program aims not to alter that in any way, but to support the ongoing research of the condition, which could provide positive outcomes or interventions for those seeking them within the albinism community.

    Through research, a greater understanding of the vision system and skin pigmentation can be obtained and lead to outcomes that impact and advance equity and accessibility for people with albinism through improved technology development and/or enhanced management/support. While research often answers some questions, it frequently generates more, and it’s not uncommon to have unexpected outcomes that benefit a wider population.  For example – research using modern technology to study the back of the eye is currently providing advances in eyeglasses and low-vision aids, which could help provide focus and clarity to facial features/expressions.

    Visit https://albinism.org/research/for more information about projects funded by NOAH Research Program Grants.

    Published: November 6, 2023

    Grandparents – We Want to Hear From YOU!

    We are seeking a few more members to join our NOAH Connections Grandparents Advisory Task Force. Members of the Task Force meet once per month on Zoom to provide topic recommendations and review topic suggestions to assist NOAH in formalizing program offerings for grandparents in the community. 

    Learn more & apply today:
    www.albinism.org/NOAH-Connections/task-force

    Published: November 6, 2023

    Register Today!

    Parents & caregivers of newly-diagnosed or young children with albinism – you won’t want to miss our next workshop with Sheila Adamo!

    Join us on Wednesday, November 15th at 8:30pm ET // 5:30pm PT to share and learn about adapting to the new role of a parent of a child with albinism. We’ll discuss tools and strategies, share concerns, and gain support from a community of fellow parents. 

    Register by November 13th:
    www.albinism.org/workshops

    Published: November 6, 2023

    LGBTQ+ PWAs – Let Your Voice Be Heard!

    We are seeking a few additional members for our NOAH Connections LGBTQ+ Advisory Task Force to assist in formalizing programming offerings for our LGBTQ+ & Allies NOAH Connections group. 

    Learn more and apply today:
    www.albinism.org/NOAH-Connections/task-force

    Published: November 6, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: November 6, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Tuesday: People with Albinism in the Legal Profession

    November 7th at 8:00pm ET // 5:00pm PT

    We are so excited for the return of PWAs in the Legal Profession to NOAH Connections! 

    If you are entering, working in, or retired from the legal profession, please join us Tuesday, November 7th at 8pm ET // 5pm PT to connect with fellow PWAs in your field. 

    Sign up today:
    www.albinism.org/NOAH-Connections/#legal

    Published: November 6, 2023

    Thursday: Teen Connections

    November 9th at 8:00pm ET // 5:00pm PT

    Do you have plans for this Thursday night? Well, you do now!

    Join us for another Teen Connections session this Thursday, November 9th at 8:00 PM ET // 5:00 PM PT.

    www.albinism.org/NOAH-Connections/#teens

    Published: November 6, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: November 6, 2023

    Wednesday, November 15th:
    NOAH Workshop: Parents & Caregivers
    NOAH Connections: Young Adults    		Thursday, November 16th:​​​​​​​
    NOAH Connections: Adults
    Monday, November 20th:
    NOAH Connections: PWA Book Club    		Tuesday, November 21st:
    NOAH Connections: Aging with Albinism​​​​​​​
    Wednesday, November 29th:
    NOAH Connections: Young Adults    		Thursday, November 30th:​​​​​​​
    NOAH Connections: Adults

    You’re Invited to a SoCal Ice Cream Social!

    Community members in the SoCal area, we hope you’ll join us to meet the NOAH Board at a SoCal Ice Cream Social hosted by the Barber Family. This free event will be held Friday, November 10th, from 6:00-8:00pm in Anaheim, CA. 

    RSVP by November 3rd at: app.donorview.com/w8PVg

    ​​​​​​​Published: October 30, 2023

    NOAH’s Scientific Advisory Board

    Since 1982, NOAH has relied on the experience and expertise of professionals in the fields of scientific and medical research that will improve the understanding, diagnosis and management of all forms of albinism. As part of the newly established NOAH Research Program, we maintain a Scientific Advisory Board that reviews and advises on research presented to NOAH for funding and/or community participation/dissemination. With each new grant we award, we extend our network of advisors in albinism research. To say, “we don’t know what we don’t know,” is as true today as it was in 1982. The genetics of albinism – the science of the condition – and the unique spectrum of diversity albinism represents are all areas that have been supported through the efforts of albinism researchers and their findings.

    Visit https://albinism.org/research/for more information about the NOAH Research Program.

    Published: October 30, 2023

    PWAs in the Legal Profession

    We are so excited for the return of PWAs in the Legal Profession to NOAH Connections! 

    If you are entering, working in, or retired from the legal profession, please join us Tuesday, November 7th at 8pm ET // 5pm PT to connect with fellow PWAs in your field. 

    Sign up today:
    www.albinism.org/NOAH-Connections/#legal

    Published: October 30, 2023

    Aging with Albinism – Save the Date!
     

    Join Mike Sikes and friends for our next session of Aging with Albinism on Tuesday, November 21st at 5:00pm ET // 2:00pm PT. We hope to see you there!

    www.albinism.org/NOAH-Connections/#aging

    Published: October 30, 2023

    Thank You, Marleena & Casey!

    Marleena Barber & Casey Greer have been our fabulous NOAH Night hosts since our first celebration in 2021, and NOAH Night wouldn’t be the same without them! Thank you, Marleena & Casey, for helping us celebrate NOAH’s 41st birthday last weekend with an entertaining evening for the albinism community!

    Missed the event? You can still join in on the fun! Purchase a ticket to view the recording at: 
    www.albinism.org/NOAHNight

    Published: October 30, 2023

    • United Nations Independent Expert (UNIE) Survey – UNIE Muluka-Anne Miti-Drummond is conducting a survey to inform her next report about education and albinism, and she is seeking additional responses from PWAs in North America to ensure all regions are represented. Interested in sharing your experiences? You can learn more about access to education and employment for PWAs in the UN’s video, and complete the survey by November 3rd at:   https://www.surveymonkey.com/r/UNIEHRC55  

    • AI-Learners (www.ai-learners.com) is an educational platform that helps students with all abilities learn foundational math, literacy, and daily life skills through personalized computer games and analytics. Inspired by her younger sister, who has Rett Syndrome, Adele wanted to create a learning resource that was accessible for students with disabilities and inclusive for all learners. The platform is inclusive to all students, is compatible with assistant technology, and has specific features for students with autism, vision impairment, and other learning challenges. Learn more: https://www.youtube.com/watch?v=fVuSQQCCumA&feature=youtu.be AI-Learners offers subscriptions for schools at a group rate and subscriptions for parents to use the platform at home. Thousands of students are already using AI-Learners! Reach out to Adele for questions on how to create accounts at adele@ai-learners.com

    • Check out this awesome photo shared by Space Camp for Interested Visually Impaired Students (SCIVIS) director Dan Oates. Featured is Charlotte H., who received the NOAH Space Camp Scholarship this year! Charlotte attended space camp with nearly two dozen other students with albinism from around the country and the world. Learn more about SCIVIS & the NOAH Space Camp Scholarship: https://albinism.org/space-camp/

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: October 30, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Wednesday: Young Adult Connections

    November 1st at 9:00pm ET // 6:00pm PT

    Do you know what November 1st is? It’s discount Halloween candy day! So pick up your favorite snack and join us for a GOAT candy debate, this Wednesday, November 1st at 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#young-adults

    Published: October 30, 2023

    Thursday: Adult Connections

    November 2nd at 9:00pm ET // 6:00pm PT

    Are your holidays like a Disney classic or more National Lampoon? As we gear up for the holiday season, we want to hear all about your experiences! Join us this Thursday, November 2nd at 9:00 PM ET// 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#adults 

    Published: October 30, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: October 30, 2023

    Tuesday, November 7th:
    NOAH Connections: PWAs in the Legal Profession    		Thursday, November 9th:
    NOAH Connections: Teens
    Wednesday, November 15th:
    NOAH Workshop: Parents & Caregivers
    NOAH Connections: Young Adults    		Thursday, November 16th:​​​​​​​
    NOAH Connections: Adults
    Monday, November 20th:
    NOAH Connections: PWA Book Club    		Tuesday, November 21st:
    NOAH Connections: Aging with Albinism​​​​​​​
    Tuesday, November 28th:
    NOAH Connections: Ocular Albinism Connections: Parents, Grandparents, & Caregivers

    Last Chance to Submit!

    Submitting to Albinism InSight is an excellent way to share your experience with the albinism community. Do you have something to say about our Winter Features? Want to share a noteworthy event or discuss your perspective on one of our topics in every issue?

    Learn more and submit by October 25th:
    www.albinism.org/AI/call-for-content

    ​​​​​​​Published: October 23, 2023

    NOAH Research Program Established

    In 2021, NOAH’s Board of Directors was honored to be selected as a steward of generous funds specifically designated for albinism research. This restricted donation was the catalyst for extending NOAH’s support of albinism research to form the NOAH Research Program.

    The NOAH Research Program was established to support albinism research by formalizing a grant funding process, shaping research to answer questions most important to people with albinism, and developing a network of researchers engaged in the albinism community. This natural progression of NOAH’s research support allows NOAH and the albinism community to impact what researchers study and which projects are funded. Since 2021, NOAH has received additional funding designated for albinism research. To date, all NOAH Research Program grants awarded have been entirely funded through donor-restricted gifts.

    Visit www.albinism.org/research/#support for a direct link to donate to the NOAH Research Program.

    Published: October 23, 2023

    NOAH Night Recording Available!

    We had a blast at NOAH Night last Sunday – thank you to everyone who joined us for the celebration!

    If you couldn’t make it, we have good news – you can purchase a ticket to view the NOAH Night recording!

    Purchase your ticket now:
    https://app.donorview.com/RpPP1

    Published: October 23, 2023

    NOAH Needs YOU…to Volunteer!
     

    NOAHCon 2024 is less than one year away, and as anyone who has attended a NOAH national conference knows, it takes a village to plan and execute this significant event. 

    We have several volunteer positions available – learn more and apply today at albinism.org/volunteer/#NOAHCon

    Published: October 23, 2023

    National Estate Planning Week!

    In honor of National Estate Planning Week last week, we wanted to share more with our community about how you can involve NOAH in your estate planning. 

    A Planned Gift is a contribution arranged in the present and allocated at a future date. Commonly donated through a will or trust, planned gifts are most often granted once the donor has passed away. If you have already planned for or are considering donating to NOAH in your will, then you may wish to join NOAH’s Legacy Circle. 

    To learn more about including NOAH in your estate planning, visit https://albinism.org/planned-giving/

    Published: October 23, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: October 23, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Tuesday: Parenting without Pigment

    October 24th at 9:00pm ET // 6:00pm PT

    Parents without Pigment – let’s discuss getting your kids ready for Halloween, making or picking out costumes, doing the whole trick-or-treating in the dark, and more!!

    Join us TOMORROW at 9pm ET // 6pm PT to share your tips, tricks, and funny stories from Halloweens past!

    www.albinism.org/NOAH-Connections/#pwp

    Published: October 23, 2023

    Thursday: Teen Connections

    October 26th at 8:00pm ET // 5:00pm PT

    So what’s your deal? Got a party to go to, or are you stuck at home giving out candy? Tell us all about your Halloween plans this Thursday, October 26th at 8:00 PM ET// 5:00 PM PT

    Costumes welcome!

    www.albinism.org/NOAH-Connections/#teens

    Published: October 23, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: October 23, 2023

    Wednesday, November 1st:
    NOAH Connections: Young Adults    		Thursday, November 2nd:​​​​​​​
    NOAH Connections: Adults
    Tuesday, November 7th:
    NOAH Connections: PWAs in the Legal Profession    		Thursday, November 9th:
    NOAH Connections: Teens
    Wednesday, November 15th:
    NOAH Workshop: Parents & Caregivers
    NOAH Connections: Young Adults    		Thursday, November 16th:​​​​​​​
    NOAH Connections: Adults
    Monday, November 20th:
    NOAH Connections: PWA Book Club    		Tuesday, November 21st:
    NOAH Connections: Aging with Albinism​​​​​​​

    Parenting without Pigment – Halloween!

    Parents without Pigment – let’s discuss getting your kids ready for Halloween, making or picking out costumes, doing the whole trick-or-treating in the dark, and more!!

    Join us on Tuesday, October 24th at 9pm ET // 6pm PT to share your tips, tricks, and funny stories from Halloweens past!

    www.albinism.org/NOAH-Connections/#pwp

    ​​​​​​​Published: October 16, 2023

    NOAH Supports Albinism Research

    Supporting albinism research has been part of the National Organization for Albinism and Hypopigmentation (NOAH) since its inception. In 1982, Dr. Carl Witkop – an albinism researcher from the University of Minnesota and seminal contributor to our understanding of albinism – attended a workshop in Philadelphia for people with albinism, where he is credited as one of NOAH’s founders.

    Throughout NOAH’s 40-year history, our organization has drafted letters of support for those conducting albinism research projects, invited professionals to share information at our national conferences about current scientific findings and new technologies available to people with albinism, and provided information to our community for those interested in participating in research studies that may lead to a better understanding of the genetic condition of albinism.

    Visit https://albinism.org/research for more information about how NOAH supports albinism research.

    Published: October 16, 2023

    Have you seen the Autumn Issue of Albinism InSight?!

    Autumn AI has arrived in the mailboxes and inboxes of subscribers, but it’s not too late to get YOUR copy!

    With annual subscriptions starting at just $10, subscribing to AI is an affordable and fun way to keep up with the albinism community. 

    Learn more & subscribe today:
    www.albinism.org/ai

    Published: October 16, 2023

    Book Club Rescheduled!
     

    Mark your calendars – our next NOAH PWA Book Club meeting has been rescheduled to Monday, November 20th, at 8pm ET // 5pm PT.

    Are you an adult with albinism who loves to read? Grab a copy of “Hello Beautiful” by Ann Napolitano and sign up to join us!


    www.albinism.org/NOAH-Connections/#pwa-book-club

    Published: October 16, 2023

    All About Albinism for Kids

    Is there a kid in your life who is interested in learning more about albinism? Share “All About Albinism for Kids” from NOAHCon 2020 with them! This session will help kids with albinism & their siblings or friends better understand albinism. 

    vimeo.com/albinism/albinismkids

    Published: October 16, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: October 16, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Tuesday: Aging with Albinism

    October 17th at 5:00pm ET // 2:00pm PT

    Older PWAs, join Mike Sikes and friends for our next session of Aging with Albinism this Tuesday, October 17th at 5:00pm ET // 2:00pm PT.

    New to the group? Sign up today, and you’ll also get email reminders for future calls!
    www.albinism.org/NOAH-Connections/#aging

    Published: October 16, 2023

    Wednesday: Grandparenting a Child with Albinism Workshop

    October 18th at 8:30pm ET // 5:30pm PT

    Join Sheila Adamo, LCSW, CADC, this Wednesday, October 18th, for a workshop that will provide information, guidance, and support for grandparents of children with albinism of all ages. We will explore typical emotions and discuss strategies to help the family adjust and thrive. 

    Don’t miss out – today is your last chance to register!
    www.albinism.org/workshops

    Published: October 16, 2023

    Wednesday: Young Adult Connections

    October 18th at 9:00pm ET // 6:00pm PT

    🎵 I wish I’d never grown up🎵

    As you hear Taylor Swift’s voice in your head, remember you are not alone! Reflect on growing up – leave those teenage years behind and embrace the next chapter with a new set of friends! 

    Join us for a special session where we welcome former Teen Connections friends to our Young Adult Connections group, this Wednesday, October 18th at 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#young-adults

    Published: October 16, 2023

    Thursday: Adult Connections

    October 19th at 9:00pm ET // 6:00pm PT

    Did you attend NOAH Night? Got any favorite clips or highlights? In case you missed it or want to relive those great moments, join us during our Adult Connections session this Thursday, October 19th at 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#adults 

    Published: October 16, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: October 16, 2023

    Tuesday, October 24th:
    NOAH Connections: Parenting without Pigment    		Thursday, October 26th:
    NOAH Connections: Teens
    Wednesday, November 1st:
    NOAH Connections: Young Adults    		Thursday, November 2nd:​​​​​​​
    NOAH Connections: Adults
    Thursday, November 9th:
    NOAH Connections: Teens    		Wednesday, November 15th:
    NOAH Workshop: Parents & Caregivers
    Wednesday, November 15th:
    NOAH Connections: Young Adults    		Thursday, November 16th:​​​​​​​
    NOAH Connections: Adults
    Monday, November 20th:
    NOAH Connections: PWA Book Club

    We Want YOU for the Next Issue of Albinism InSight!

    Submitting to Albinism InSight is an excellent way to share your experience with the albinism community. Do you have something to say about our Winter Features? Want to share a noteworthy event or discuss your perspective on one of our topics in every issue?

    Learn more and submit by October 25th:
    www.albinism.org/AI/call-for-content​​​​

    ​​​​​​​Published: October 9, 2023

    Aging with Albinism

    Older PWAs, join Mike Sikes and friends for our next session of Aging with Albinism on Tuesday, October 17th at 5:00pm ET // 2:00pm PT.

    New to the group? Sign up today, and you’ll also get email reminders for future calls!

    www.albinism.org/NOAH-Connections/#aging

    Published: October 9, 2023

    Ayden B. – iPad Recipient!

    Check out NOAH community member Ayden B. with his new iPad from the NOAH iPad Assistance Program! Ayden’s mom shares that he has been using the iPad for drawing, homework, videos, and more.

    Many thanks to the Parker Hannifin Foundation for their generous support of the NOAH iPad Program.

    Published: October 9, 2023

    NOAH Night Updates!

    Do YOU Want to Be a NOAHCon VIP?!
     
    We are so excited to announce a new DOOR PRIZE to be awarded at NOAH Night 2023! 
     
     All registered NOAH Night 2023 ticket holders will be entered to win the exclusive honor of being a NOAHCon 2024 VIP, which includes special recognition at the opening session, reserved VIP seating for you and up to 3 friends at all conference meals and sessions, and of course, bragging rights!
      
    We know you’ve always wanted to be NOAHCon royalty, so what are you waiting for? Get your tickets today and join us for NOAH Night 2023 on Sunday, October 15th.

    https://app.donorview.com/RpPP1

    A limited number of NOAHCon 2024 VIPs will be selected throughout the evening. Selected ticket holder MUST be present to claim; if not present, a new ticket will be drawn. One winner per household. 

    Winner is responsible for all travel and related expenses to attend NOAHCon 2024.

    Published: October 9, 2023

    NOAH Night Tickets – SPF Grateful

    Want to attend NOAH Night but tickets don’t fit your budget? Don’t worry, you can still join in the celebration!

    Select the “SPF Grateful” ticket level, and give what you can at checkout:

    https://app.donorview.com/RpPP1

    Published: October 9, 2023

    Announcing The NOAH Night Red Carpet!

    The NOAH Night Red Carpet is ready for guests, and we can’t wait to see who will arrive first…

    Anyone with a ticket to NOAH Night can walk the Red Carpet! Send your full-body photo to marketing@albinism.org to join in on the fun.

    www.albinism.org/NOAHNight

    Published: October 9, 2023

    • FYI: TELUS Remote Work Opportunities – TELUS International AI has remote work opportunities for people with limited prospects and access to sustainable employment. Learn more: https://www.telusinternational.com/careers/ai-communityPlease note: NOAH is not affiliated with this job opportunity – it is shared as a courtesy to our community. All questions should be directed to TELUS.

    • Have you heard about the twin para-athletes training to compete in the triathlon at the 2024 Paralympic Games? Learn more about Chloe and Judith MacCombe, twins with albinism from Northern Ireland, in their recent feature on BBC news: https://www.bbc.com/news/uk-northern-ireland-66738375

    • NOAH Community member Dan Ankeman recently had an article published in the American Journal of Law and Equality. The article, titled “HOW UNFOUNDED FEAR DISENFRANCHISES VOTERS WITH DISABILITIES,” discusses the “persistent gap in voter participation between those with and without disabilities in the United States that has not been remedied by the Americans with Disabilities Act or other federal protections for voters with disabilities…” Congratulations, Dan! Interested in reading Dan’s article? Check it out at: https://direct.mit.edu/ajle/article/doi/10.1162/ajle_a_00055/117630/HOW-UNFOUNDED-FEAR-DISENFRANCHISES-VOTERS-WITH

    • WMAR-2 News Baltimore recently featured an interview with NOAH community member and creator of the Rebokeh app, Rebecca Rosenberg. Rebecca created the app specifically for low-vision users after identifying a gap in assistive technology, with most products being geared towards those who are legally blind. Check out the interview: https://www.youtube.com/watch?v=s4oivqtyR1s 

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: October 9, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Thursday: Teen Connections

    October 12th at 8:00pm ET // 5:00pm PT

    Fall is here! The leaves are changing and the days are getting shorter! Before you hibernate for the evening, join us for our Teen Connections call this Thursday, October 12th at 8:00 PM ET// 5:00 PM PT.

    www.albinism.org/NOAH-Connections/#teens

    Published: October 9, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: October 9, 2023

    Tuesday, October 17th:
    NOAH Connections: Aging with Albinism    		Wednesday, October 18th:
    NOAH Workshops: Grandparenting a Child with Albinism
    NOAH Connections: Young Adults
    Thursday, October 19th:​​​​​​​
    NOAH Connections: Adults    		Tuesday, October 24th:
    NOAH Connections: Parenting without Pigment
    Thursday, October 26th:
    NOAH Connections: Teens    		Wednesday, November 1st:
    NOAH Connections: Young Adults
    Thursday, November 2nd:​​​​​​​
    NOAH Connections: Adults

    Last Chance to Submit Your Talent!

    PWAs, we know you have some fun and exciting talents to share…so don’t miss out on the chance to be included in the NOAH Has Talent! Talent Showcase at NOAH Night, sponsored by Epstein | Ostrove!! 

    Submissions are due TODAY!

    www.albinism.org/NOAHNight/#talent​​​​​​​

    ​​​​​​​Published: October 2, 2023

    Are you interested in serving on the NOAH Research Program Committee?

    Applications are currently being accepted to invite new members to NOAH’s Research Program Committee.


    For more information or to apply, visit: www.albinism.org/research/committee

    Since 1982, NOAH has supported ongoing research that could provide positive outcomes or interventions for those seeking them within the albinism community. The NOAH Research Program is committed to becoming a leading voice in albinism research by funding impactful research that will help develop a greater understanding of albinism and build a community of top-notch researchers who are engaged with the albinism community. 

    The NOAH Research Program Committee is tasked with the overall management of the grant review process, making appropriate recommendations on research-oriented content and program offerings, and promoting community engagement/fundraising efforts.

    NOAH is currently seeking applicants from across our diverse community for nomination to the NOAH Research Program Committee. Are you ready to help shape research and answer questions most important to people with albinism?

    Visit 

    www.albinism.org/research/committeeto apply.

    Published: October 2, 2023

    Donté & Sonja’s Popcorn Fundraiser Update!

    NOAH Board Chair Donté Mickens and Board Member Sonja Harris both hosted a fundraiser for NOAH last week. In total, they sold $2,355 worth of popcorn, which means they raised over $1,000 for NOAH!

    Thank you, Sonja & Donté!

    Published: October 2, 2023

    Grandparenting a Child with Albinism

    Grandparents – join Sheila Adamo, LCSW, CADC, on Wednesday, October 18th, for a workshop that will provide information, guidance, and support for grandparents of children with albinism of all ages. We will explore typical emotions and discuss strategies to help the family adjust and thrive.

    Register by October 16th:
    www.albinism.org/workshops

    Published: October 2, 2023

    National Blind Sports Month

    October is USABA’s National Blind Sports Month, and we want to see what sports the PWAs in our community enjoy. Share your pictures or videos for the chance to be featured in NOAH’s story throughout October. 

    Learn more about Blind Sports Month events on the USABA website:
    https://www.usaba.org/2023-national-blind-sports-month/

    Published: October 2, 2023

    • Volunteers, including NOAH community members Tricia Thomas, Drake Thomas, and Lee Laughlin, recently offered a helping hand at Lions Camp Pride in New Durham, NH. This crew helped to straighten up the Arts and Crafts building that our campers enjoy during NOAH Family Camp. Great job, everyone!
      ​​​​​​​Check out the photo in our recent Facebook post.

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: October 2, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Wednesday: Young Adult Connections

    October 4th at 9:00pm ET // 6:00pm PT

    Break out the pumpkin spice, it is that time of year again! Whether you are pro or no to the Fall phenomenon, break out your fav beverage and spill the tea with us this Wednesday, October 4th from 9:00 PM ET // 6:00 PM PT!

    www.albinism.org/NOAH-Connections/#young-adults

    Published: October 2, 2023

    Thursday: Adult Connections

    October 5th at 9:00pm ET // 6:00pm PT

    Don’t Panic! The leaves on the trees may be changing but Fall just started. Catch your Autumn highlights and simmer in for a relaxing conversation this Thursday, October 5th from 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#adults

    Published: October 2, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: October 2, 2023

    Thursday, October 12th:
    NOAH Connections: Teens     		Tuesday, October 17th:
    NOAH Connections: Aging with Albinism
    Wednesday, October 18th:
    NOAH Workshops: Grandparenting a Child with Albinism
    NOAH Connections: Young Adults    		Thursday, October 19th:​​​​​​​
    NOAH Connections: Adults
    Thursday, October 26th:
    NOAH Connections: Teens

    Yom Kippur

    Wishing a meaningful Yom Kippur to all in our community who observe.

    ​​​​​​​Published: September 25, 2023

    Are You Interested in Albinism Research?

    The NOAH Research Committee is excited to share the following video, which offers a glimpse of the National Eye Institute (NEI) facility and provides information about albinism research being conducted at NEI on the National Institutes of Health (NIH) campus in Bethesda, MD. 

    https://youtu.be/wr-pAYi6UN8

    A special “Thank you” to the NEI Communications staff for their expert guidance; to Aman George (Staff Scientist at NEI) for being our host on the video; and to NOAH Research Committee member Kerry Goetz (Associate Director; NEI Office of Data Science & Health Informatics, NIH) for coordinating this special partnership opportunity for NOAH.

    If you’d like more information about NOAH’s support of albinism research through the NOAH Research Program, please join the conversation at the NOAH Research Program Coffee Chat, on September 26th at 7pm ET // 4pm PT. We will be discussing the NOAH Research Program, sharing details about our Research Program Grant process and providing information and insight about NOAH’s ongoing support of albinism research and how you can GET INVOLVED.

    Sign up today:
    www.albinism.org/NOAH-Connections/#research

    Published: September 25, 2023

    Donté’s Popcorn Fundraiser!

    NOAH Board Chair Donté Mickens is hosting a fundraiser for NOAH. From September 27th – October 1st, purchase popcorn from his Double Good Pop-Up and 50% of the profits will go directly to NOAH. 

    Dontés Fundraiser: https://bit.ly/462Bcxd

    Published: September 25, 2023

    Bioptic Photo Challenge!

    You may have heard that some PWAs use a bioptic telescope to help them drive…but did you know there are so many other uses for this handy device?!

    PWAs – do YOU use a bioptic? We invite you to share a photo of you using a bioptic for activities other than driving on our recent Facebook post!

    Published: September 25, 2023

    Save the Date & Start Reading!

    NOAH PWA Book Club is back, and we are already looking forward to our next meeting. Start reading “Hello Beautiful” by Ann Napolitano and mark your calendar to join us for a book discussion on Monday, November 13th at 9pm ET // 6pm PT.

    www.albinism.org/NOAH-Connections/#pwa-book-club

    Published: September 25, 2023

    NOAH Night Updates!

    Last Chance to Submit Your Talent!

    PWAs, we know you have some fun and exciting talents to share…so don’t miss out on the chance to be included in the NOAH Has Talent! Talent Showcase at NOAH Night, sponsored by Epstein | Ostrove!! 

    Submissions are due TODAY!

    www.albinism.org/NOAHNight/#talent​​​​​​​

    Published: September 25, 2023

    Thank you, ShadeSuits!

    ShadeSuits is a continued supporter of our New Parent Program, and we are pleased to include them as NOAH Night Sponsors. In honor of NOAH’s 41st birthday celebration, you can use code SS30 for 30% off your next purchase at www.shadesuits.com

    Want to see YOUR name in lights? Learn more about NOAH Night sponsorship opportunities today:
    albinism.org/NOAHNight/#sponsor

    Published: September 25, 2023

    One Week Left to Submit Your Art or Writing!

    Calling all kids & adults with albinism – break out the crayons, break out the markers, grab your pen and paper; it’s that time again! 

    Check out Spiffy’s Creative Arts Contest and submit by October 1stfor the chance to be featured in Albinism InSight!

    www.albinism.org/NOAHNight/#spiffy

    Published: September 25, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: September 25, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Tuesday: Aging with Albinism

    September 26th at 5:00pm ET // 2:00pm PT

    Aging with Albinism is Back!

    Older PWAs, we look forward to seeing you this Tuesday, September 26th, for our next session of Aging with Albinism. We can’t wait to reconnect, meet new members, and hear about your summer!

    New to the group? Now is the perfect time to sign up! 
    www.albinism.org/NOAH-Connections/#aging

    Published: September 25, 2023

    Tuesday: Research Program Coffee Chat

    September 26th at 7:00pm ET // 4:00pm PT

    JOIN THE CONVERSATION

    Are you interested in albinism research?

    Join the NOAH Research Program Committee this Tuesday, September 26th at 7pm ET // 4pm PT for a call to discuss the program, share details about our Research Program Grant process and provide information and insight about NOAH’s ongoing support of albinism research and how you can GET INVOLVED.

    Sign up today:
    www.albinism.org/NOAH-Connections/#research

    Published: September 25, 2023

    Thursday: Teen Connections

    September 28th at 8:00pm ET // 5:00pm PT

    Teens, we can’t wait to see you at our next session of Teen Connections! Join us for friendship & fun this Thursday, September 28th at 8pm ET // 5pm PT.

    New to the group? There’s still time to sign up!

    www.albinism.org/NOAH-Connections/#teens

    Published: September 25, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: September 25, 2023

    Wednesday, October 4th:
    NOAH Connections: Young Adults    		Thursday, October 5th:​​​​​​​
    NOAH Connections: Adults
    Thursday, October 12th:
    NOAH Connections: Teens     		Wednesday, October 18th:
    NOAH Workshops: Grandparenting a Child with Albinism
    NOAH Connections: Young Adults
    Thursday, October 19th:​​​​​​​
    NOAH Connections: Adults

    Happy LatinX & Hispanic Heritage Month!

    Hispanic & LatinX PWAs – how do you stay connected to your heritage or honor your culture? Send a story, photo, or video to eaubrey@albinism.org to be featured on the NOAH Website and social media this month and beyond.

    www.albinism.org/heritage

    ​​​​​​​Published: September 18, 2023

    Are You Interested in Albinism Research?

    Join the NOAH Research Program Committee on September 26th at 7pm ET // 4pm PT for a call to discuss the program, share details about our Research Program Grant process and provide information and insight about NOAH’s ongoing support of albinism research and how you can GET INVOLVED.

    Sign up today:
    www.albinism.org/NOAH-Connections/#research

    Published: September 18, 2023

    NOAH Needs YOU…to Volunteer!

    NOAHCon 2024 is less than one year away, and as anyone who has attended a NOAH national conference knows, it takes a village to plan and execute this significant event. 

    We have several volunteer positions available – learn more and apply today at albinism.org/volunteer/#NOAHCon

    Published: September 18 2023

    NOAH Night Updates!

    Thank You, 

    Epstein | Ostrove!

    We are pleased to share that Epstein | Ostrove is a NOAH Night 2023 Diamond Sponsor. Thank you, Epstein | Ostrove for your continued support of NOAH!

    Want to see YOUR name in lights?! We have exciting sponsorship opportunities available for local businesses. 

    Learn more: albinism.org/NOAHNight/#sponsor

    Published: September 18, 2023

    One Week Left to Submit Your Talent!

    Dance, sing, yo-yo, your choice! We know you’ve got the talent; now is your chance to show everyone else. 

    Send in your talent submission by September 25th for the chance to be featured in our lineup for this year’s Epstein | Ostrove NOAH Has Talent! showcase!

    www.albinism.org/NOAHNight/#talent

    Published: September 18, 2023

    Two Weeks Left to Submit Your Art or Writing!

    Calling all kids & adults with albinism – break out the crayons, break out the markers, grab your pen and paper; it’s that time again! 

    Check out Spiffy’s Creative Arts Contest and submit by October 1stfor the chance to be featured in Albinism InSight!

    www.albinism.org/NOAHNight/#spiffy

    Published: September 18, 2023

    • Have you heard about LEGO Braille Bricks? Originally distributed only to specific organizations working with children with visual impairments, LEGO Braille Bricks are now available to the public as of September 1st. LEGO says the bricks were created as “a fun and playful way to introduce braille to anyone who wants to learn.”Learn more: https://www.lego.com/en-us/braille-bricks

    • In honor of Hispanic & LatinX Heritage Month, the film “Malpaso”will stream for free Sept. 16-23. “Malpaso” centers around two orphaned siblings in the DR, one with albinism. https://www.lacla.org/cine-nepantla-2023Please note: some themes in the film may not be suitable for all viewers.

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: September 18, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Tuesday: Parenting without Pigment

    September 19th at 9:00pm ET // 6:00pm PT

    Back to School Chatter!

    Parents with albinism, join Kathi Garza and friends this Tuesday, September 19th at 9pm ET // 6pm PT to chat about parenting during the back-to-school season.

    New to the group? Sign up today!
    www.albinism.org/NOAH-Connections/#pwp

    Published: September 18, 2023

    Wednesday: Young Adult Connections

    September 20th at 9:00pm ET // 6:00pm PT

    Looking for a quiet night with friends and away from the crazy in your life? You are in luck! We’re having another Young Adult Connections session this Wednesday, September 20th. Join us for a night of fun and relaxation starting at 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#young-adults

    Published: September 18, 2023

    Thursday: Adult Connections

    September 21st at 9:00pm ET // 6:00pm PT

    Do you remember the 21st night of September? Get your Earth Wind and Fire going during our upcoming Adult Connections session! 

    Join us this Thursday, September 21st at 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#adults

    Published: September 18, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: September 18, 2023

    Tuesday, September 26th:
    NOAH Connections: Aging with Albinism    		Thursday, September 28th:
    NOAH Connections: Teens 
    Wednesday, October 4th:
    NOAH Connections: Young Adults    		Thursday, October 5th:​​​​​​​
    NOAH Connections: Adults
    Thursday, October 12th:
    NOAH Connections: Teens     		Wednesday, October 18th:
    NOAH Workshops: Grandparenting a Child with Albinism
    NOAH Connections: Young Adults
    Thursday, October 19th:​​​​​​​
    NOAH Connections: Adults

    National Day of Service and Remembrance

    Today we observe the National Day of Service and Remembrance, in memory of the nearly 3,000 people who lost their lives on September 11, 2001. 

    ​​​​​​​Published: September 11, 2023

    NOAH Night Tickets Available!

    NOAH’s 41st birthday is just around the corner, and we can’t wait to celebrate with YOU!

    Check out our many ticket options (including fun add-ons) and grab yours today:
    www.albinism.org/NOAHNight

    Published: September 11, 2023

    Share Your Skills for NOAH Night!

    NOAH Night is October 15th, and there are multiple chances for PWAs of all ages to share their skills!

    Do you have a unique talent? Submit a video for the NOAH Has Talent! showcase!

    Is writing or visual art more your style? Check out Spiffy’s Creative Arts Contest!

    Submissions for the NOAH Has Talent! Showcase are due September 25th and submissions for Spiffy’s Creative Arts Contest are due October 1st.

    Learn more and submit at:

    www.albinism.org/noahnight

    Published: September 11 2023

    Share Your Back to School Pics!

    It’s September, which means our NOAH students and educators are back to school! Whether your first day was a while ago, or you’ve just started for the year, we invite you to share your back-to-school pics with us on our recent Facebook post.

    Published: September 11, 2023

    NOAH’s Back to School Library!

    Parents & caregivers – we want to hear from YOU! ​​​​​​​

    How do you/your child share info about albinism with their teachers or classmates at the beginning of the school year? Do you/they write a letter, make a presentation, or go a different route?

    Submit your sample letters, presentations, ideas, etc. (including your child’s age/grade, and photos/videos if applicable!) to bts@albinism.org for the chance to be added to our Back to School Library!

    www.albinism.org/bts

    Published: September 11, 2023

    • Did you know that our friends at the Lighthouse Guild offer a monthly tele-support call for parents of kids with albinism? The next call will be held Thursday, September 21st at 8:30pm ET // 5:30pm PT.Learn more: http://albinism.org/wp-content/uploads/2023/08/NOAH.pdf

    • Have you heard about the new movie streaming on Netflix called “Can You See Us?” This coming-of-age drama centers around a young Zambian boy with albinism and is based on a true story. If you’ve watched the film, let us know what you thought on our recent Facebook post. 

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: September 11, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    TONIGHT: PWA Book Club

    September 11th at 9:00pm ET // 6:00pm PT

    Book Club members, join us TONIGHT at 9pm ET // 6pm PT to discuss Remarkably Bright Creatures by Shelby Van Pelt!

    www.albinism.org/NOAH-Connections/#pwa-book-club

    Published: September 11, 2023

    Thursday: Teen Connections

    September 14th at 8:00pm ET // 5:00pm PT

    Make any new friends at school? No fear, you can always make new ones or catch up with your old friends at Teen Connections! 

    Join us this Thursday, September 14th at 8:00 PM ET // 5:00 PM PT.

    www.albinism.org/NOAH-Connections/#teens

    Published: September 11, 2023

    Thursday: Establishing Independence Workshop

    September 14th at 8:30pm ET // 5:30pm PT

    Parents, grandparents, and caregivers, you won’t want to miss our next NOAH Workshop with Sheila Adamo on Thursday, September 14th! In this session, we will discuss common challenges many parents face as a child with albinism gains independence.

    Register by September 12th:
    www.albinism.org/workshops

    Published: September 11, 2023

    Thursday: Teen STEM – Python Tutorial

    September 14th at 9:00pm ET // 6:00pm PT

    Teens, did you join us for Sarah & Derek’s Python tutorial in July? We are excited to share that they will be back to continue sharing their knowledge after our Teen Connections call on September 14th!

    www.albinism.org/NOAH-Connections/#python

    Published: September 11, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: September 11, 2023

    Sunday, September 17th:
    NOAH Connections: Disney Family Trivia    		Tuesday, September 19th:
    NOAH Connections: Parenting without Pigment
    Wednesday, September 20th:
    NOAH Connections: Young Adults    		Thursday, September 21st:​​​​​​​
    NOAH Connections: Adults
    Tuesday, September 26th:
    NOAH Connections: Aging with Albinism    		Thursday, September 28th:
    NOAH Connections: Teens 
    Wednesday, October 4th:
    NOAH Connections: Young Adults    		Thursday, October 5th:​​​​​​​
    NOAH Connections: Adults

    Pop Quiz!

    Do you know what year NOAH Adult Weekend was held in New Orleans??

    Check out this #tbt photo collage from the fun times shared amongst adults with albinism in Crescent City.

    Want to be a part of the memories for Adult Weekend this fall? Register by September 8th to join us in Minneapolis:

    www.albinism.org/adult-weekend

    ​​​​​​​Published: August 28, 2023

    Establishing Independence

    Parents, grandparents, and caregivers, you won’t want to miss our next NOAH Workshop with Sheila Adamo on Thursday, September 14th! In this session, we will discuss common challenges many parents face as a child with albinism gains independence.

    Register by September 12th:
    www.albinism.org/workshops

    Published: August 28, 2023

    Share Your Skills for NOAH Night!

    NOAH Night is October 15th, and there are multiple chances for PWAs of all ages to share their skills!

    Do you have a unique talent? Submit a video for the NOAH Has Talent! showcase!

    Is writing or visual art more your style? Check out Spiffy’s Creative Arts Contest!

    Submissions for the NOAH Has Talent! Showcase are due September 25th and submissions for Spiffy’s Creative Arts Contest are due October 1st.

    Learn more and submit at:

    www.albinism.org/noahnight

    Published: August 28, 2023

    Up Hill Both Ways: Let’s Talk Back to School!

    Parents, grandparents, and caregivers join Kathi Garza, M.Ed, TVI on Wednesday, September 6th to chat about all things “back to school!”

    Register today!
    www.albinism.org/NOAH-Connections/#bts

    Published: August 28, 2023

    Disney Family Trivia!

    Are you a Disney fan? Show off your trivia prowess at Disney Trivia with Certified Child Life Specialist Jocelyn Leworthy on Sunday, September 17th at 7:30pm ET // 4:30pm PT. 

    PWAs of all ages and their families are welcome to join, so sign up today!!
    www.albinism.org/NOAH-Connections/#disney

    Published: August 28, 2023

    • Did you know that our friends at the Lighthouse Guild offer a monthly tele-support call for parents of kids with albinism? The next call will be held Thursday, September 21st at 8:30pm ET // 5:30pm PT.Learn more: http://albinism.org/wp-content/uploads/2023/08/NOAH.pdf

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: August 28, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Thursday: Teen Connections

    August 31st at 8:00pm ET // 5:00pm PT

    Teens, you’re up next! Whether you’re back to school already, or squeezing in as much fun as you can in the last few moments of summer, mark your calendar to join us this Thursday, August 31st at 8pm ET // 5pm PT!

    www.albinism.org/NOAH-Connections/#teens

    Published: August 28, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: August 28, 2023

    Wednesday, September 6th:
    NOAH Connections: Young Adults
    NOAH Connections: Up Hill Both Ways: Let’s Talk Back to School with Kathi Garza    		Thursday, September 7th:​​​​​​​
    NOAH Connections: Adults
    Monday, September 11th:
    NOAH Connections: PWA Book Club    		Thursday, September 14th:
    NOAH Workshops: Parents & Caregivers
    NOAH Connections: Teens
    NOAH Connections: Teens STEM Python Tutorial
    Sunday, September 17th:
    NOAH Connections: Disney Family Trivia    		Tuesday, September 19th:
    NOAH Connections: Parenting without Pigment
    Wednesday, September 20th:
    NOAH Connections: Young Adults    		Thursday, September 21st:​​​​​​​
    NOAH Connections: Adults
    Tuesday, September 26th:
    NOAH Connections: Aging with Albinism

    Adult Weekend 2023

    Thinking about joining us for Adults with Albinism Weekend this fall? Hear from fellow adult PWAs who are looking forward to seeing you in Minneapolis for shenanigans and fun!

    >>Check out the video

    Learn more and register by September 8th:
    www.albinism.org/adult-weekend

    ​​​​​​​Published: August 21, 2023

    Deadline Extended!

    There’s still time to share your perspective for the next issue of Albinism InSight. Check out the Autumn Features, or submit something about daily living, advocacy, technology, or another topic included in every issue.

    Learn more and submit by August 25th: 
    www.albinism.org/ai/call-for-content

    Published: August 21, 2023

    Thank you, USABA!

    This summer, NOAH partnered with the United States Association of Blind Athletes to bring the sport of Goalball to its campers and parents at NOAH Family Summer Camp. Learning Goalball from Team USA Paralympic Goalball athlete Marybai Huking was such a treat!

    Published: August 21, 2023

    Thank You, Camp Donors!

    Join us in sending a big NOAH shout-out to all the businesses that donated to NOAH Family camp this summer. 

    Thank you for your support!

    Published: August 21, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: August 21, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    TONIGHT: Parents of Newly-Diagnosed and Young Children with Albinism Workshop

    August 21st at 8:30pm ET // 5:30pm PT

    Registered Attendees: join Sheila Adamo TONIGHT at 8:30pm ET // 5:30pm PT to be welcomed into a community that will share and learn about adapting to the new role of a parent of a child with albinism. 

    Learn more about other upcoming workshops:
    www.albinism.org/workshops

    www.albinism.org/NOAH-Connections/#teens

    Published: August 21, 2023

    Tuesday: LGBTQ+ and Allies Connections

    August 22nd at 8:30pm ET // 5:30pm PT

    Join Sarah Kane and fellow LGBTQ+ PWAs and allies on Tuesday, August 22nd at 8:30pm ET // 5:30pm PT for our next session of NOAH Connections just for YOU.

    New to the group? This is the perfect chance to join us for the first time!
    www.albinism.org/NOAH-Connections/#lgbtq

    Published: August 21, 2023

    Wednesday: Young Adult Connections

    August 23rd at 9:00pm ET // 6:00pm PT

    Jive talkin’ or stayin’ alive! Got any Saturday Night Fever funkadelic dance moves to share? Share your groove (and get in that workout) this Wednesday, August 23rd at 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#young-adults

    Published: August 21, 2023

    Thursday: Adult Connections

    August 24th at 9:00pm ET // 6:00pm PT

    Once upon a time…

    Whether shooting for the stars or being the king/queen of your domain, share the rest of your story this Thursday, August 24thstarting at 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#adults

    Published: August 21, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: August 21, 2023

    Thursday, August 31st:
    NOAH Connections: Teens    		Wednesday, September 6th:
    NOAH Connections: Young Adults
    Thursday, September 7th:​​​​​​​
    NOAH Connections: Adults    		Monday, September 11th:
    NOAH Connections: PWA Book Club
    Thursday, September 14th:
    NOAH Workshops: Parents & Caregivers
    NOAH Connections: Teens
    NOAH Connections: Teens STEM Python Tutorial    		Wednesday, September 20th:
    NOAH Connections: Young Adults
    Thursday, September 21st:​​​​​​​
    NOAH Connections: Adults    		Tuesday, September 26th:
    NOAH Connections: Aging with Albinism

    Congratulations, Charlotte!

    Join us in congratulating NOAH community member Charlotte H., who was selected to receive a scholarship to Space Camp for Visually-Impaired Students this year. 

    www.albinism.org/space-camp

    ​​​​​​​Published: August 14, 2023

    Last Chance to Register!

    Parents & caregivers of newly-diagnosed or young children with albinism, join Sheila Adamo next Monday, August 21st at 8:30pm ET // 5:30pm PT to be welcomed into a community that will share and learn about adapting to the new role of a parent of a child with albinism. 

    Register by this Saturday, August 19th to reserve your spot!
    www.albinism.org/workshops

    Published: August 14, 2023

    IAAD Event Shout-Outs!

    Join us in sending a special shoutout to #TeamJAK and NI NOAH Walks for NOAH for each hosting fundraising walks in Illinois in honor of International Albinism Awareness Day this June. 

    Both teams’ IAAD walks gathered the community, collected donations, and raised awareness of albinism!

    Thank you, #TeamJAK and NI NOAH Walks for NOAH for your ongoing support of NOAH!

    Published: August 14, 2023

    Memphis Top 10 Hits!

    On the fence about attending Adult Weekend this fall? Check out Kathi Garza’s article from Albinism InSight Winter 2021 to hear more about her Adult Weekend experience in Memphis, and read the list of top ten hits compiled with the help of fellow attendees.

    Read the article.

    Learn more about our plans for Adult Weekend 2023 and register by September 8th:
    www.albinism.org/adult-weekend

    Published: August 14, 2023

    LGBTQ+ and Allies Connections!

    Join Sarah Kane and fellow LGBTQ+ PWAs and allies on Tuesday, August 22nd at 8:30pm ET // 5:30pm PT for our next session of NOAH Connections just for YOU.

    New to the group? This is the perfect chance to join us for the first time!
    www.albinism.org/NOAH-Connections/#lgbtq

    Published: August 14, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: August 14, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Thursday: Teen Connections

    August 17th at 8:00pm ET // 5:00pm PT

    Keep calm and shine on! Summer is coming to a close but that doesn’t mean the sun goes away! Tell us how you are keeping the shining light in your life this Thursday, August 17th at 8:00 PM // 5:00 PM PT.

    www.albinism.org/NOAH-Connections/#teens

    Published: August 14, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: August 14, 2023

    Monday, August 21st:
    NOAH Workshops: Parents & Caregivers    		Tuesday, August 22nd:
    NOAH Connections: LGBTQ+ and Allies
    Wednesday, August 23rd:
    NOAH Connections: Young Adults    		Thursday, August 24th:​​​​​​​
    NOAH Connections: Adults
    Thursday, August 31st:
    NOAH Connections: Teens    		Thursday, September 7th:​​​​​​​
    NOAH Connections: Adults
    Monday, September 11th:
    NOAH Connections: PWA Book Club    		Thursday, September 14th:
    NOAH Workshops: Parents & Caregivers
    NOAH Connections: Teens
    NOAH Connections: Teens STEM Python Tutorial

    NOAH Night Planning Committee!

    NOAH Night is just around the corner, and we need YOUR help to make it a success!

    PWAs & family members, share your ideas on the NOAH Night Planning Committee leading up to the big event on NOAH’s 41st birthday, October 15th!

    Interested in joining? Sign up today:
    https://app.donorview.com/e858q

    ​​​​​​​Published: August 7, 2023

    NOAH Workshop – August 21st!

    Parents & caregivers of newly-diagnosed or young children with albinism, join Sheila Adamo on August 21st at 8:30pm ET // 5:30pm PT to join a community that will share and learn about adapting to the new role of a parent of a child with albinism. 

    Register by August 19th to reserve your spot!
    www.albinism.org/workshops

    Published: August 7, 2023

    Get to Know the NOAH Board: Rapid-Fire Questions!

    You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

    Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

    This week, hear from board members Torey Alford & Elizabeth Drury, and check out our Getting to Know the Board page to see our full collection of board member videos!

    www.albinism.org/board-of-directors/gtk/

    Published: August 7, 2023

    Thank you, Delta Gamma Foundation!

    Thanks to a Delta Gamma Foundation Grant, NOAH was pleased to be able to offer a discounted registration fee to campers with albinism ages 16 and under for this summer’s NOAH Family Summer Camp!

    Thank you, Delta Gamma Foundation!

    Published: August 7, 2023

    National Eye Exam Month!

    Did you know that August is National Eye Exam Month? Doctor recommendations are one of the most common requests we receive, so if you know of an excellent low-vision optometrist or ophthalmologist, share their info on our Recommend a Medical Professional form!

    https://app.donorview.com/XWjm

    Published: August 7, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: August 7, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Wednesday: Young Adult Connections

    August 9th at 9:00pm ET // 6:00pm PT

    Beach crab or hermit crab? Come share how you’ve been spending the summer away. Join us this Wednesday, August 9th at 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#young-adults

    Published: August 7, 2023

    Thursday: Adult Connections

    August 10th at 9:00pm ET // 6:00pm PT

    How are you keeping cool? A splash in the pool or a nice refreshing drink? Turn up the laughs not the heat during our next session, this Thursday, August 10th at 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#adults

    Published: August 7, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: August 7, 2023

    Thursday, August 17th:
    NOAH Connections: Teens    		Monday, August 21st:
    NOAH Workshops: Parents & Caregivers
    Wednesday, August 23rd:
    NOAH Connections: Young Adults    		Thursday, August 24th:​​​​​​​
    NOAH Connections: Adults
    Thursday, August 31st:
    NOAH Connections: Teens    		Monday, September 11th:
    NOAH Connections: PWA Book Club
    Thursday, September 14th:
    NOAH Workshops: Parents & Caregivers

    Book Club is Back!

    NOAH’s PWA Book Club is back in action, and we are currently reading Remarkably Bright Creatures by Shelby Van Pelt.

    Grab a copy and join us on Monday, September 11th at 9pm ET // 6pm PT to discuss!

    Sign up today and start reading!
    www.albinism.org/NOAH-Connections/#pwa-book-club

    ​​​​​​​Published: July 31, 2023

    Camp Highlight!

    Did you miss Casey & Esther’s NOAH Camp Takeover earlier this month?

    Worry not! We’ve added all the camp fun as a highlight on our Instagram profile!

    Check it out: www.instagram.com/noahalbinism

    Published: July 31, 2023

    NOAH Research Program – Spotlight!

    Join us in congratulating Principal Investigators Prof. Dr. Michael B. Hoffmann and PD Dr. Wolf Harmening, who are Established Researcher Program Grant Awardees. 

    Drs. Hoffmann & Harmening and their team will utilize high-resolution multimodal imaging to understand the maldevelopment of foveal and binocular vision in albinism.

    Learn more about the NOAH Research Program and 2023 grant awardees:

    www.albinism.org/research

    Published: July 31, 2023

    Get to Know the NOAH Board: Rapid-Fire Questions!

    You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

    Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

    This week, hear from board members Donna Appell & Kris Baker and stay tuned for more videos!

    www.albinism.org/board-of-directors/gtk/

    Published: July 31, 2023

    Adult Weekend 2023!

    After some educational sessions on Saturday, we’ll head out to explore the Mall of America for the afternoon, complete with a round of golf at Rock of Ages Blacklight Mini Golf included in your registration fee!

    Learn more about our Adult Weekend itinerary & register today:
    www.albinism.org/adult-weekend

    Published: July 31, 2023

    • Happy 33rd Anniversary, ADA! 33 years ago on July 26, 1990, the Americans with Disabilities Act (ADA) was signed into law. This historic civil rights law protects the rights of people with disabilities. Learn more about the ADA: https://adata.org/ada-timeline

    • Rare Artist Scholarship Open for Entries: Submissions are open for the Rare Artist Scholarship now through August 31st. This year, a new medium has been added – poetry! Learn more about submissions guidelines: https://rareartist.awardsplatform.com/

    • Toronto, Ontario Casting Call: Jigsaw Casting seeks Blind or Partially sighted Individuals ages 18-65 for a Benefits Campaign in Toronto. Applications are due August 1st at 10am ET. Learn more: https://projectbenefits.castingcrane.com/

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: July 31, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Tuesday: Parenting without Pigment – Prospective Parents

    August 1st at 9:00pm ET // 6:00pm PT

    Let’s taco ‘bout Parenting without Pigment! 

    It’s Taco Tuesday! Come share a meal with us (a taco, if you’d like!) TOMORROW at 9pm ET // 6pm PT. It is time for prospective parents to join us to chat about parenting. If you have any questions, we are here to answer them. 

    Prospective parents & current parents with albinism are welcome to join! Sign up today:
    www.albinism.org/NOAH-Connections/#pwp

    Published: July 31, 2023

    Thursday: Teen Connections

    August 3rd at 8:00pm ET // 5:00pm PT

    Keeping cool this summer?

    Share your style and how you stay chill in this heat this Thursday, August 3rd at 8:00 PM ET // 5:00PM PT. 

    www.albinism.org/NOAH-Connections/#teens

    Published: July 31, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: July 31, 2023

    Wednesday, August 9th:
    NOAH Connections: Young Adults    		Thursday, August 10th:​​​​​​​
    NOAH Connections: Adults
    Thursday, August 17th:
    NOAH Connections: Teens    		Monday, August 21st:
    NOAH Workshops: Parents & Caregivers
    Monday, September 11th:
    NOAH Connections: PWA Book Club    		Thursday, September 14th:
    NOAH Workshops: Parents & Caregivers

    NOAH Night Planning Committee

    NOAH Night is just around the corner, and we need YOUR help to make it a success!

    PWAs & family members, share your ideas on the NOAH Night Planning Committee leading up to the big event on NOAH’s 41st birthday, October 15th!

    Interested in joining? Sign up today:

    https://app.donorview.com/e858q

    ​​​​​​​Published: July 24, 2023

    Thank you, Alison!

    When author Alison Nenon released her children’s book, Alfie Sees Love, about a rhinoceros with albinism, she pledged to donate $1 to NOAH for each book sold. One year later, 1,000 copies of Alfie Sees Love have been purchased, and Alison has donated $1,000 in proceeds to NOAH.

    Congratulations, Alison, on the incredible success of your book, and thank you for using part of the proceeds to support NOAH!

    https://www.alfieseeslove.com/

    Published: July 24, 2023

    NOAH Research Program – Spotlight!

    Join us in congratulating Principal Investigator Dr. Alexandra Rebsam, Ph.D., who is an Established Researcher Program Grant Awardee. 

    Dr. Rebsam and team aim to find the mechanisms in albinism leading to the altered retinal development, downstream of tyrosinase, known to be at the origin of OCA1.

    Learn more about the NOAH Research Program and 2023 grant awardees:

    www.albinism.org/research

    Published: July 24, 2023

    NOAH Workshop:
    ​​​​​​​August 21st!

    Parents & caregivers of newly-diagnosed or young children with albinism, you won’t want to miss our next workshop!

    Join Sheila Adamo on August 21st at 8:30pm ET // 5:30pm PT to join a community that will share and learn about adapting to the new role of a parent of a child with albinism. 

    Register by August 19th to reserve your spot!
    www.albinism.org/workshops

    Published: July 24, 2023

    Get to Know the NOAH Board: Rapid-Fire Questions!

    You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

    Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

    This week, hear from board members Donté Mickens & Emma Brinkley and stay tuned for more videos!

    www.albinism.org/board-of-directors/gtk/

    Published: July 24, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: July 24, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Wednesday: Young Adults

    July 26th at 9:00pm ET // 6:00pm PT

    Have you taken a zen moment for yourself to stop and smell the flowers?

    Tell us about your latest tranquil moments during our next Young Adult Connections call this Wednesday, July 26th at 9:00pm ET // 6:00pm PT.

    www.albinism.org/NOAH-Connections/#young-adults

    Published: July 24, 2023

    Thursday: Kids & Teens – Ice Cream in a Bag

    July 27th at 9:00pm ET // 6:00pm PT

    Kids & teens, you’re invited to a fun and simple summer activity with your NOAH friends! Join Certified Child Life Specialist Jocelyn Leworthy to make ice cream in a bag on Thursday, July 27th at 7:30pm ET // 4:30pm PT.

    Kids & teens of all ages are welcome to join, so sign up today:
    www.albinism.org/NOAH-Connections/#ice-cream

    Published: July 24, 2023

    Thursday: Adult Connections

    July 27th at 9:00pm ET // 6:00pm PT

    Beat the heat with some cool treats, including the treat of conversation. You bring the ice cream and we’ll bring the fun. Join us this Thursday, July 27th at 9:00pm ET // 6:00pm PT.

    www.albinism.org/NOAH-Connections/#adults

    Published: July 24, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: July 24, 2023

    Tuesday, August 1st:
    NOAH Connections: Parenting without Pigment – Prospective Parents    		Thursday, August 3rd:
    NOAH Connections: Teens
    Wednesday, August 9th:
    NOAH Connections: Young Adults    		Thursday, August 10th:​​​​​​​
    NOAH Connections: Adults
    Thursday, August 17th:
    NOAH Connections: Teens    		Monday, August 21st:
    NOAH Workshops: Parents & Caregivers
    Monday, September 11th:
    NOAH Connections: PWA Book Club    		Thursday, September 14th:
    NOAH Workshops: Parents & Caregivers

    Adult PWAs – Will We See YOU in Minneapolis?

    Join us in Minneapolis, MN, to make memories and forge the lifelong friendships the NOAH community is known for at Adult Weekend, Sept. 29 – Oct. 1, 2023.

    Check out our itinerary and register by September 8th:
    www.albinism.org/adult-weekend

    ​​​​​​​Published: July 17, 2023

    NOAH Night Planning Committee

    NOAH Night is just around the corner, and we need YOUR help to make it a success!

    PWAs & family members, share your ideas on the NOAH Night Planning Committee leading up to the big event on NOAH’s 41st birthday, October 15th!

    Interested in joining? Sign up today:

    https://app.donorview.com/e858q

    Published: July 17, 2023

    NOAH Research Program – Spotlight!

    Join us in congratulating Principal Investigator Dr. Jay Self, BM, FRCOphth, Ph.D., and Senior Post-doc Researcher Dr. Eloise Keeling, BSc, Ph.D., who are Established Researcher Program Grant Awardees. 

    Dr. Self and his team are utilizing high-throughput drug screening to identify potential new targets for treatment of albinism symptoms.

    ​​​​​​​Learn more about the NOAH Research Program and 2023 grant awardees: www.albinism.org/research

    Published: July 17, 2023

    Camp Takeovers!

    NOAH Family Summer Camp started this Saturday, and we have Casey & Esther sharing an inside look at what the campers are up to.

    Check out an inside look at NOAH Camp on NOAH’s social media story:

    www.instagram.com/noahalbinism

    Published: July 17, 2023

    Get to Know the NOAH Board: Rapid-Fire Questions!

    You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

    Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

    This week, hear from board members Brandi Bogan & Sonja Harris and stay tuned for more videos!

    www.albinism.org/board-of-directors/gtk/

    Published: July 17, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: July 17, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Wednesday: LGBTQ+ and Allies Connections

    July 19th at 8:30pm ET // 5:30pm PT

    LGBTQ+ PWAs and allies, see you Wednesday! 

    Join us this Wednesday at 8:30pm ET // 5:30pm PT to connect and chat with host Sarah Kane & fellow community members. This is the perfect chance to return to the group or join us for the first time!

    www.albinism.org/NOAH-Connections/#lgbtq

    Published: July 17, 2023

    Thursday: Teen Connections

    July 20th at 8:00pm ET // 5:00pm PT

    Moooo-ve over latest tik-tok challenge, we have a new obsession! It’s called Teen Connections! 

    Don’t worry about the FOMO, you can check it out this Thursday, July 20th at 8:00pm ET // 5:00pm PT

    www.albinism.org/NOAH-Connections/#teens

    Published: July 17, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: July 17, 2023

    Wednesday, July 26th:
    NOAH Connections: Young Adults    		Thursday, July 27th:
    NOAH Connections: Kids & Teens – Ice Cream in a Bag
    NOAH Connections: Adults
    Tuesday, August 1st:
    NOAH Connections: Parenting without Pigment – Prospective Parents    		Thursday, August 3rd:
    NOAH Connections: Teens
    Wednesday, August 9th:
    NOAH Connections: Young Adults    		Thursday, August 10th:​​​​​​​
    NOAH Connections: Adults
    Monday, August 21st:
    NOAH Workshops: Parents & Caregivers    		Monday, September 11th:
    NOAH Connections: PWA Book Club
    Thursday, September 14th:
    NOAH Workshops: Parents & Caregivers

    NOAH Night Planning Committee

    NOAH Night is just around the corner, and we need YOUR help to make it a success!

    PWAs & family members, share your ideas on the NOAH Night Planning Committee leading up to the big event on NOAH’s 41st birthday, October 15th!

    Interested in joining? Sign up today:

    https://app.donorview.com/e858q

    ​​​​​​​Published: July 10, 2023

    NOAH Research Program – Spotlight!

    Join us in congratulating Principal Investigator Jonathan Hale Zippin, M.D., Ph. D., F.A.A.D., who is an Established Researcher Program Grant Awardee. 

    Dr. Zippin and team are investigating “soluble adenylyl cyclase inhibitors to improve ocular pigmentation.”

    Learn more about the NOAH Research Program and 2023 grant awardees: www.albinism.org/research

    Published: July 10, 2023

    Adult Weekend Activities Spotlight!

    First up on the Adults with Albinism Weekend 2023 itinerary – join us for tasty food with even better company. Friday night, we’ll have dinner at Cowboy Jack’s, included in your registration fee!

    Learn more about our itinerary & register today:
    www.albinism.org/adult-weekend

    Published: July 10, 2023

    Camp Takeovers!

    NOAH Family Summer Camp start this Saturday, and we have some fun takeovers lined up to give you an inside look.

    First, check out Executive Director Karen Bly’s travel day on Thursday. Next, get ready for a peek into NOAH camp with Casey and Esther starting this Saturday.

    Check out what they are up to on NOAH’s social media story:

    www.instagram.com/noahalbinism

    Published: July 10, 2023

    Get to Know the NOAH Board: Rapid-Fire Questions!

    You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

    Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

    This week, hear from board members Andrew Sartorius & Elliot Ostrove and stay tuned for more videos!

    www.albinism.org/board-of-directors/gtk/

    Published: July 10, 2023

    Congratulations, Lee!

    Have you been following along with NOAH Co-Founder Lee Laughlin’s “Miles for NOAH” fundraiser challenge? Join us in congratulating Lee as she has officially reached her stretch fundraiser and mileage goal! Lee has been working tirelessly for nearly two months to reach her goal, and we can’t thank her enough for her continued support.

    ​​​​​​​​​​​​​​Feeling inspired by Lee? We are! Check out her fundraiser and start your own today: 

    Lee’s Miles for NOAH

    Published: July 10, 2023

    FUNdraising Advice from Rodney

    Rodney Ignacio has been hosting the SoCal NOAHs Bowl-a-Thon since 2014, and he shared some of his insight as a veteran event host. Check out what he has to say in our recent Facebook post, and join us in sending a special shoutout to Rodney and the SoCal NOAHs team for their ongoing support!​​​​​​​

    It’s always a great time to host a FUNdraiser…learn more:
    www.albinism.org/fun

    Published: July 10, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: July 10, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    TONIGHT: PWA Book Club

    July 10th at 9:00pm ET // 6:00pm PT

    Book Club is Back!

    Are you an adult PWA who loves to read? Join us for the re-launching of the NOAH Book Club TODAY at 9pm ET // 6pm PT! Bring your favorite beverage or snack and join us for our book club kick-off party, where we will be announcing the first book we will be reading and getting to know each other.

    www.albinism.org/NOAH-connections/#pwa-book-club

    Published: July 10, 2023

    Wednesday: Young Adult Connections

    July 12th at 9:00pm ET // 6:00pm PT

    Has your summer been out of this world, or are you looking forward to a future exploration? We wanna hear the deets 😉 

    Tell us all about it this Wednesday, July 12th at 9:00pm ET // 6:00pm PT.

    www.albinism.org/NOAH-Connections/#young-adults

    Published: July 10, 2023

    Thursday: Adult Connections

    July 13th at 9:00pm ET // 6:00pm PT

    Let’s celebrate the sun, fun and everyone at our summer soiree!

    Join us for another great session of Adult Connections this Thursday, July 13th at 9:00pm ET// 6:00pm PT.

    www.albinism.org/NOAH-Connections/#adults

    Published: July 10, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: July 10, 2023

    Wednesday, July 19th:
    NOAH Connections: LGBTQ+ and Allies    		Thursday, July 20th:
    NOAH Connections: Teens
    Wednesday, July 26th:
    NOAH Connections: Young Adults    		Thursday, July 27th:
    NOAH Connections: Adults

    NOAH’s Strategic Priorities

    Over the next three years, NOAH’s Board of Directors, staff, volunteers, and community will be working towards fulfilling our mission by concentrating on four strategic priorities.

    Learn more: www.albinism.org/strategic

    ​​​​​​​Published: July 3