NOAH News

Register by Saturday!!

Registration for NOAHCon 2022 closes this Saturday, May 21st.

Don’t miss out on the magical experience of NOAH’s national conference…register today!!

www.albinism.org/NOAHCon

Published: May 16, 2022

YOU Belong Here!

As we approach the conference, it is common to experience some anxiety.

Check our recent video that talks about our diverse experiences as people with albinism, and how there’s a place for ALL of us with NOAH: 

​​​​​​​https://www.facebook.com/watch/?v=1114088269137594

We can’t wait for YOU to join us at NOAHCon 2022!

www.albinism.org/NOAHCon

Published: May 16, 2022

Run, Spiffy, Run!!

​​​​​​​Spiffy is on his way to Orlando thanks to our awesome fundraising teams!

Can YOU help Spiffy make it to FL in time for NOAHCon 2022 this July??

Make your fundraising page today:
www.albinism.org/fundraisers

Published: May 16, 2022

Albinism in Color: Parents

Three families of color share their narratives about raising children without melanin. Join us on Wednesday, May 25th at 8pm ET // 5pm PT to hear how our advocacy, mindset, support and strength makes albinism accepted and beautiful to ALL!

Sign up now!
www.albinism.org/NOAH-Connections/#in-color

Published: May 16, 2022

Wednesday: Young Adult Connections

May 18th at 9:00pm ET // 6:00pm PT

Young adults, join us to play Jackbox games with your PWA pals! Make sure to have two devices – one for zoom, and one for games. 

See you Wednesday!
www.albinism.org/NOAHCon/#young-adults

Published: May 16, 2022

Thursday: Adult Connections

May 19th at 9:00pm ET // 6:00pm PT

Adults with albinism, you’re up next! Join us this Thursday to chat and connect with fellow PWAs. 

New to the group? There’s still time to sign up!
www.albinism.org/NOAH-Connections/#adults

Published: May 16, 2022

Sunday: LGBTQ+ and Allies Connections

May 22nd at 8:00pm ET // 5:00pm PT

LGBTQ+ and Allies, join us for our next session of NOAH Connections just for YOU, this Sunday at 8pm ET // 5pm PT.

New to the group? Sign up today for info on joining this call, and you’ll get email reminders for future chances to connect, too!
www.albinism.org/NOAH-Connections/#lgbtq

Published: May 16, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: May 16, 2022

Two Weeks Left!

There are just under two weeks left to register for NOAHCon 2022.

Don’t miss out on the magical experience of NOAH’s national conference… register by May 21st!

www.albinism.org/NOAHCon

Published: May 9, 2022

Spiffy Shout-Outs!

Our favorite fundraising friend, Spiffy, has been sending special shout-outs to our awesome NOAH fundraisers. Check out Spiffy’s messages to Dallas Bowls for NOAH, Bunker Bowlers, March Madness for NOAH, and MuttStruts for NOAH. 

Feeling inspired to start your own fundraiser? Check out the options & create your fundraising page today at: www.albinism.org/fundraisers

Published: May 9, 2022

Run, Spiffy, Run!!

​​​​​​​

Spiffy is on his way to Orlando thanks to our awesome fundraising teams!

Can YOU help Spiffy make it to FL in time for NOAHCon 2022 this July??

Make your fundraising page today:
www.albinism.org/fundraisers

Published: May 9, 2022

NOAHCon Sponsorship Opportunities!

Do YOU know a company that would love to have their brand or logo prominently featured on NOAHCon 2022 lanyards, tote bags, and more?

Spread the word about limited NOAHCon 2022 sponsorship opportunities today!​​​​​​​
www.albinism.org/NOAHCon/sponsor

Published: May 9, 2022

Bly on the Fly: Board Edition!

Get to know NOAH board members with rapid fire questions in this special edition of Bly on the Fly.

Up first, we have Donna Appell, RN, who is the founder and president of the Hermansky-Pudlak Syndrome (HPS) Network. Donna serves on NOAH’s Board of Directors and Board of Scientific Advisors.

Bly on the Fly: Board Edition – Donna Appell

Published: May 9, 2022

Thursday: Teen Connections

May 12th at 8:00pm ET // 5:00pm PT

Teens, you’re up next! We can’t wait to see YOU this Thursday for our next session of teen connections.

New to the group? Join today for the invite to this call, and we’ll send you email reminders for future chances to connect.

www.albinism.org/NOAH-Connections/#teens 

Published: May 9, 2022

Saturday: Kids Scavenger Hunt

May 14th at 2:00pm ET // 11:00am PT

Calling All NOAH Kids Grades K-5!

Join Casey and Caroline for a NOAH Kids Scavenger Hunt, this Saturday, May 14th at 2pm ET // 11am PT. Get ready to search around your house for all of the items…you may win a prize!

www.albinism.org/NOAH-Connections/#scavenger

Published: May 9, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: May 9, 2022

T-minus 73 days until NOAHCon 2022! 

Learn more about the magic of NOAH’s Biennial National Conference & register today at: www.albinism.org/NOAHCon 

Spiffy Runs to Orlando!

Our favorite fundraising friend, Spiffy, is trying to get to the NOAH Conference in Orlando…but he needs YOUR help to make it in time!

Check out Spiffy’s message and create YOUR fundraising page today!
www.albinism.org/fundraisers

Published: May 2, 2022

Spiffy Shout-Outs!

Our favorite fundraising friend, Spiffy, has been sending some special shout-outs to awesome NOAH fundraisers. Check out Spiffy’s messages to Dallas Bowls for NOAH, Bunker Bowlers, and March Madness for NOAH. 

Feeling inspired to start your own fundraiser? Check out the options & create your fundraising page today at: www.albinism.org/fundraisers

Published: May 2, 2022

NOAHCon Sponsorship Opportunities!

Do YOU know a company that would love to have their brand or logo prominently featured on NOAHCon 2022 lanyards, tote bags, and more?

Send them to our site for more details on NOAHCon 2022 sponsorship opportunities today!
www.albinism.org/NOAHCon/sponsor

Published: May 2, 2022

Are You Ready to Lend a Hand at NOAHCon?

 
We are looking for awesome volunteers to lend a hand with the Teens & Tweens and Preschoolers at NOAHCon 2022. Don’t miss out on this chance to connect with awesome NOAH kids and make a difference.

Call for Teens & Tweens Volunteers!

Call for Preschool Volunteers!

Learn more & sign up to volunteer today at: 
www.albinism.org/NOAHCon/volunteer​​​​​​​

Published: May 2, 2022

Announcing: IAAD 2022 Theme!

We are excited to share that the theme for International Albinism Awareness Day 2022 is United in Making Our Voice Heard.

How do YOU plan to spread awareness and celebrate this IAAD? Share your plans on our recent Facebook post!

Published: May 2, 2022

Wednesday: Young Adult Connections

May 4th at 9:00pm ET // 6:00pm PT

Young adults, we can’t wait to “see” you this week for our next session of Young Adult Connections. Grab your devices and get ready for quality time with your friends with albinism!

Sign up today for the invite to this call, and we’ll send you email reminders for future chances to connect, too!

​​​​​​​http://​​​​​​​www.albinism.org/NOAH-Connections/#young-adults

Published: May 2, 2022

Thursday: Adult Connections

May 5th at 9:00pm ET // 6:00pm PT

Adults, join us this week to look back on our school days! Get ready with your best funny or embarrassing stories…pictures encouraged!

New to the group? There’s still time to sign up!

​​​​​​​http://​​​​​​​www.albinism.org/NOAH-Connections/#adults

Published: May 2, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: May 2, 2022

A message from Beth to our NOAHCon Flamingos!

Hey everybody! Here’s a special message from Beth to our NOAHCon 2022 Preschoolers – the flamingos.

Check it out, then remind your grown-ups to visit www.albinism.org/NOAHCon/registration& register today!

Published: April 25, 2022

Hey NOAH Tweens & Teens!

Meet Kimberly, the Manatees & Alligators Program Lead for NOAHCon 2022. She has tons of fun activities planned for us this summer!!

Check out Kimberly’s message & register today:
www.albinism.org/NOAHCon

Published: April 25, 2022

Pre-Conference Workshops!

Did you know that there are two pre-conference workshops offered in addition to NOAHCon 2022 programming? Learn more about the Mothers’ Workshop and Low Vision Driving Workshop, and register today!

www.albinism.org/NOAHCon/pre-conference

Published: April 25, 2022

Get YOUR SPF Commemorative Finisher T-shirt!

Do you want a commemorative finisher t-shirt from NOAH’s 2nd Annual SPF 3K-5K-10K? Don’t wait – sign up today! 

Register by May 16th and select “Entry with Shirt” or “SPF Super Supporter with Shirt” to get your very own, stylish SPF race shirt!
www.albinism.org/spf​

Published: April 25, 2022

Applications Due this Sunday!

Know a young leader with albinism? Remind them to finish up their application…there are 6 days left to apply for the Michael J. McGowan Leadership Scholarship Award!

Learn more & submit your application by this Sunday, May 1st:
www.albinism.org/leadership

Published: April 25, 2022

Thursday: Teen Connections

April 28th at 8:00pm ET // 5:00pm PT

Teens, you’re up next! Join us this Thursday for social time with your PWA pals. 

New to the group? There’s still time to sign up!

​​​​​​​http://​​​​​​​www.albinism.org/NOAH-Connections/#teens

Published: April 25, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: April 25, 2022

Spiffy Runs to Orlando!

Our favorite fundraising friend, Spiffy, is trying to get to the NOAH Conference in Orlando…but he needs YOUR help to make it in time!

Check out Spiffy’s message and create YOUR fundraising page today!
www.albinism.org/fundraisers

Published: April 18, 2022

Sign Up Today!

Parents, Grandparents, & Caregivers of young children with albinism – join Sheila Adamo on Thursday, June 2nd to join a community that will share and learn about adapting to your new albinism journey. 

Register by 5/31 to secure your spot!
www.albinism.org/workshops

Published: April 18, 2022

Two Weeks Left to Apply!

Know a young leader with albinism? Remind them to finish up their application…there are 2 weeks leftto apply for the Michael J. McGowan Leadership Scholarship Award!

Learn more & submit your application by May 1st:
www.albinism.org/leadership

Published: April 18, 2022

Happy National Volunteer Week!

Thank you to the countless volunteers who offer their time, energy, and talents to help NOAH further its mission of providing acceptance, support, and fellowship for PWAs. ​​​​​​​

Published: April 18, 2022

Looking to Share a Room at NOAHCon?

If you’re interested in sharing a room to make NOAHCon 2022 more affordable, email info@albinism.orgto be placed on the room share contact list! 

NOAH will facilitate introductions between individuals on the list (but is not providing roommate matching services).

Published: April 18, 2022

NOAH 2022 iPad Assistance Program

The 2022 NOAH iPad Assistance Program provides PWAs who do not have access to technology, the opportunity to receive an iPad. 

Learn more and apply today at www.albinism.org/ipad

Applications due Friday, April 22nd!

This program is made possible by the support of the Parker Hannifin Foundation.

Published: April 18, 2022

Tuesday: Aging with Albinism

April 19th at 5:00pm ET // 2:00pm PT

You’re invited to our next session of Aging with Albinism! 

Join June Waugh and friends this Tuesday, April 19th at 5pm ET // 2pm PT. 

www.albinism.org/NOAH-Connections/#aging

Published: April 18, 2022

Wednesday: Young Adult Connections

April 20th at 9:00pm ET // 6:00pm PT

Young adults with albinism, join us this Wednesday to discuss traveling as a person with low vision. Do you have any tips and tricks to share? 

www.albinism.org/NOAH-Connections/#young-adults

Published: April 18, 2022

Thursday: Adult Connections

April 21st at 9:00pm ET // 6:00pm PT

Adults, you’re up next! Join us this Thursday at 9pm ET // 6pm PT to connect and chat with fellow PWAs.  

www.albinism.org/NOAH-Connections/#adults

Published: April 18, 2022

Sunday: BIPOC Connections

April 24th at 4:30pm ET // 1:30pm PT

Calling all BIPOC PWAs! Join us as we gather socially and share ideas for future programming.  

Torey Alford hosts our next session of BIPOC NOAH Connections this Sunday, April 24th at 4:30pm ET // 1:30pm PT.  

New to the group? Sign up today!
www.albinism.org/NOAH-Connections/#bipoc

Published: April 18, 2022

Sunday: LGBTQ+ and Allies Connections

April 24th at 8:00pm ET // 5:00pm PT

You’re Invited! 

Join us for our next session of LGBTQ+ and Allies NOAH Connections on Sunday, April 24th at 8pm ET // 5pm PT.

New to the group? We can’t wait to meet you! 
text LGBTQ+ to (417)473-2310 or visit www.albinism.org/NOAH-Connections/#lgbtq to sign up now!

Published: April 18, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: April 18 2022

You’re Invited to the 2nd Annual SPF 3K-5K-10K!

We just got a letter from Spiffy, our favorite fundraising friend! Check out what he has to say:

“Dear Friend,

You’re invited to NOAH’s 2nd Annual SPF 3K-5K-10K! You can run, bike, hike, or do any activity you’d like.

It’s soooo easy to make a difference. Make a fundraising page today!

Love, Spiffy”

Want to join Spiffy for NOAH’s 2nd Annual SPF 3K-5K-10K? Sign up today!
www.albinism.org/spf

Published: April 11, 2022

NOAHCon Keynote Address

NOAH is thrilled to share that NOAHCon 2022 will feature a Keynote Address by Dr. Niya Pickett Miller,  “The Magic of Your story” Using Narratives to Empower Albinism Identity.

Learn more and register for NOAHCon 2022 today!
www.albinism.org/NOAHCon

Published: April 11, 2022

NOAH Research Program Spotlight!

Join us in congratulating Principal Investigator Carol Ann Mason, PhD, who is an Established Researcher Program Grant Awardee. 

Dr. Mason and team are conducting a study that “aims to reveal the causes of altered connections between the albino retina and the brain, which ultimately lead to poor stereo vision.”

Learn more about the NOAH Research Program and 2022 grant awardees: www.albinism.org/research

Support the NOAH Research Program: https://app.donorview.com/jWZ7Y

Published: April 11, 2022

Albinism InSight’s New Look!

Have you seen Albinism InSight‘s new look?! 

Don’t miss out on this fresh new design & great content for the whole family…subscribe to NOAH’s quarterly magazine today!
www.albinism.org/AI

Published: April 11, 2022

NOAH 2022 iPad Assistance Program

The 2022 NOAH iPad Assistance Program provides PWAs who do not have access to technology, the opportunity to receive an iPad. 

Learn more and apply today at www.albinism.org/ipad

Applications due Friday, April 22nd!

This program is made possible by the support of the Parker Hannifin Foundation.

Published: April 11, 2022

Wednesday: Parenting without Pigment

April 13th at 9:00pm ET // 6:00pm PT

Calling All Parents Without Pigment!

Join Marleena Barber this Wednesday for a special session of Adults with Albinism: Parenting without Pigment to discuss tips and tricks for self-care this spring. 

New the group? There’s still time to join!
www.albinism.org/NOAH-Connections/#pwp

Published: April 11, 2022

Thursday: Teen Connections

April 14th at 8:00pm ET // 5:00pm PT

Teens, you’re up next! Join us this Thursday for our next session of teen connections to make new friends and catch up with old ones. 

New to the group? This is the perfect chance to join for your first time! 

www.albinism.org/NOAH-Connections/#teens

Published: April 11, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: April 11 2022

Conference Volunteers Needed!

Many different talents are required to hold a NOAH conference, and YOU might have what it takes to be the perfect volunteer. Take a look at the NOAHCon 2022 volunteer opportunities and please consider helping to make NOAH magic!

www.albinism.org/NOAHCon/volunteer

Published: April 4, 2022

It’s So Easy to Make a Difference!

NOAH has been working hard to keep the albinism community connected, and we need YOUR help to continue our mission. Join us to celebrate you, your child, family member, friend, and our community! 

Check out the options and create a fundraising page today!
www.albinism.org/fundraisers

Published: April 4, 2022

NOAH Research Program

Join us in congratulating Principal Investigators, Carol Ann Mason, PhD; Benoit Arveiler, PharmD, PhD; and Leah Byrne, PhD who are recipients of NOAH’s Inaugural Research Program Grants.

Learn more about their research: www.albinism.org/research/#meet

Support the NOAH Research Program: https://app.donorview.com/jWZ7Y

Published: April 4, 2022

NOAH 2022 iPad Assistance Program

The 2022 NOAH iPad Assistance Program provides PWAs who do not have access to technology, the opportunity to receive an iPad. 

Learn more and apply today at www.albinism.org/ipad

Applications due Friday, April 22nd!

This program is made possible by the support of the Parker Hannifin Foundation.

Published: April 4, 2022

McGowan Leadership Scholarship – Where Are They Now?

Aidan O’Connor, 2020 scholarship recipient, graduated magna cum laude from Yale University last May and is currently working as a management consultant in Chicago!

Young leaders with albinism – check out Aidan’s full update and start YOUR application for the McGowan Leadership Scholarship today!!

www.albinism.org/leadership

Applications due May 1st!

Published: April 4, 2022

Wednesday: Young Adult Connections

April 6th at 9:00pm ET // 6:00pm PT

Young adults, we can’t wait to “see” you this Wednesday! Grab your devices and get ready for social time with your PWA pals. 

New to the group? There’s still time to join! Sign up today at: www.albinism.org/NOAH-Connections/#young-adults

Published: April 4, 2022

Thursday: Adult Connections

April 7th at 9:00pm ET // 6:00pm PT

Adults with albinism, get ready to join us for our next session of NOAH Connections that’s just for you! Bring a drink or your favorite snack, and get ready to connect with fellow PWAs this Thursday at 9pm ET // 6pm PT.

www.albinism.org/NOAH-Connections/#adults

Published: April 4, 2022

Saturday: NOAH Kids Dance Party!

April 9th at 3:00pm ET // 12:00pm PT

NOAH kids of all ages, get ready to dance the day away with Casey Greer and Mackenzie Strong this Saturday at 3:00pm ET // 12:00pm PT! 

Have a song request? Send it to cgreer@albinism.org

www.albinism.org/NOAH-Connections/#dance-party

Published: April 4, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: April 4 2022

Conference Funding!

In an effort to help attendees figure out conference funding, NOAH is delighted to offer two great resources! The Funding Sources Information Packet provides tips and suggestions for conference funding assistance, and NOAH’s Conference Personal Grant Program is an additional resource to help bridge the funding gap for those who, without assistance, would be unable to attend. 

www.albinism.org/NOAHCon/funding

Published: March 28, 2022

Calling All Parents Without Pigment!

Join Marleena Barber for a special session of Adults with Albinism: Parenting without Pigment on Wednesday, April 13th to discuss tips and tricks for self-care this spring. 

New the group? There’s still time to join!
www.albinism.org/NOAH-Connections/#pwp

Published: March 28, 2022

NOAH Kids Dance Party!

NOAH kids of all ages, get ready to dance the day away with Casey Greer and Mackenzie Strong on Saturday, April 9th at 3:00pm ET // 12:00pm PT! 

Have a song request? Send it to cgreer@albinism.org

www.albinism.org/NOAH-Connections/#dance-party

Published: March 28, 2022

Aging with Albinism!

Mark your calendars to join June Waugh and friends for the next session of Aging with Albinism.

We can’t wait to see YOU Tuesday, April 19th at 5pm ET // 2pm PT!

www.albinism.org/NOAH-Connections/#aging

Published: March 28, 2022

Tuesday: Grandparent Connections

March 29th at 8:00pm ET // 5:00pm PT

Calling All Grandparents!

Join Sue Dalton to connect with fellow grandparents of PWAs this Tuesday at 8pm ET // 5pm PT. Grandparents of PWAs of all ages are invited to join our discussion on visual fatigue.

New to the group? There’s still time to sign up!
www.albinism.org/NOAH-Connections/#grandparents

Published: March 28, 2022

Thursday: Teen Connections

March 31st at 8:00pm ET // 5:00pm PT

Teens, don’t miss out! Our next session of Teen NOAHConnections is this Thursday at 8pm ET // 5pm PT, and there’s still time to sign up if you’re new to the group.​​​​​​​

We can’t wait to see YOU there!
www.albinism.org/NOAH-Connections/#teens

Published: March 28, 2022

Thursday: Dads Connections

March 31st at 9:00pm ET // 6:00pm PT

Calling All Super Dads! 

Join Sam McClung and fellow dads of kids with albinism to connect and share in our unique experiences as fathers of PWAs.

There’s still time to sign up!
Visit www.albinism.org/NOAH-Connections/#dads or text DADS to (417)473-2310

Published: March 28, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: March 28, 2022

NOAHCon Registration Now Open!

Your favorite fundraising friend, Spiffy, has an important message for you…

Registration is now open for NOAHCon 2022!

Will we see YOU in Orlando?!

www.albinism.org/NOAHCon

Published: March 21, 2022

NOAH Awards Inaugural Grants to Fund Albinism Research!

NOAH is pleased to announce the award of research grants totaling $125,000, presented to three institutions conducting albinism research. This funding is provided through the NOAH Research Program, established in 2021, to support and fund patient-centered research that leads to developing a greater understanding of albinism…

www.albinism.org/research/pr

Published: March 21, 2022

Wednesday: Young Adult Connections

March 23rd at 9:00pm ET // 6:00pm PT

Young adults with albinism, you’re up next! Join us on Wednesday for our next session just for you. 

New to the group? There’s still time to sign up!

www.albinism.org/NOAH-Connections/#young-adults​​​​​​​

Published: March 21, 2022

Thursday: Adult Connections

March 24th at 9:00pm ET // 6:00pm PT

Adults, we can’t wait to see YOU! Join us this Thursday at 9pm ET // 6pm PT to connect and chat with fellow PWAs.

www.albinism.org/NOAH-Connections/#adults​​​​​​​

Published: March 21, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: March 21, 2022

NOAHCon Site Visit!

Did you know that our Conference Core Team recently visited the beautiful conference hotel in Orlando, FL to prepare for NOAHCon2022?

Stay tuned to meet the team, learn about conference programming, and more!

www.albinism.org/NOAHCon

Published: March 14, 2022

Last Chance – Get Your Disney Tickets Before Prices Increase!

NOAH is thrilled to share that Walt Disney World will provide exclusive ticket discounts to NOAHCon 2022 attendees that are not available at the Disney Ticket Windows. 

Purchase your tickets by TOMORROW (3/15) at 3pm ET to lock in extra-discounted pricing! This is the lowest ticket prices will go!​​​​​​​
www.albinism.org/NOAHCon/#disney-tix

Published: March 14, 2022

We Want to Hear From YOU!

Since our founding in 1982, NOAH has served the albinism community by providing information and support.  As our 40th anniversary approaches, we have engaged The BenderStone Group to help the Board of Directors and Leadership team frame critical choices about our strategic direction.  An important part of our this process is incorporating feedback and input from those whose lives we touch.

We invite you to participate in a survey to help us understand how YOU perceive, value, and engage with us.

Thank you for taking a few minutes to share your confidential insights and ideas to help NOAH set a direction for the future. 

Take the survey:

https://bit.ly/35we8fT

Published: March 14, 2022

7 Weeks Left to Apply!

Know a young leader with albinism? Remind them to start their application…there are just under 7 weeks left to apply for the Michael J. McGowan Leadership Scholarship Award!

Learn more & get that application started today at:
www.albinism.org/leadership

Published: March 14, 2022

Call Recording Available!

Are you planning to visit Universal Studios while in Orlando for NOAHCon 2022, but missed the tips & tricks shared on our recent NOAH Connections call?

Check out the call recording & other resources shared by call hosts Andrew & Nick at: www.albinism.org/NOAHCon/#park-tips

Published: March 14, 2022

Tuesday: Aging with Albinism

March 15th at 5:00pm ET // 2:00pm PT

Get ready to join June Waugh and friends for our next session of Aging with Albinism, What Happens After Cataract Surgery? TOMORROW at 5pm ET // 2pm PT!

New to the group? Sign up today!
www.albinism.org/NOAH-Connections/#aging

Published: March 14, 2022

Thursday: Parent Connections

March 17th at 7:00pm ET // 4:00pm PT

Parents, you’re up next!

Join Laicee Burkhart and fellow parents of kids with albinism for a social session of Parent Connections, this Thursday at 7pm ET // 4pm PT.

New to Parent Connections? Sign up today!
www.albinism.org/NOAH-Connections/#parents

Published: March 14, 2022

Thursday: Teen Connections

March 17th at 8:00pm ET // 5:00pm PT

Teens, this one’s for YOU! Join us Thursday at 8pm ET // 5pm PT to connect with fellow teens with albinism!

New to the group? There’s still time to sign up!
www.albinism.org/NOAH-Connections/#teens

Published: March 14, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: March 14, 2022

Albinism InSight is getting a new look!

Check out NOAH’s quarterly magazine through the years in our recent video, and get ready for the big reveal of its redesign, just in time for the Spring 2022 issue.

Don’t miss out – subscribe today!
www.albinism.org/AI

Published: March 7, 2022

Where are they now?

2014 McGowan Leadership Scholarship recipient, Arielle Lewis, is in law school, and is an intern at the Health Law Partnership Legal Services Clinic & is an incoming intern at the Georgia Department of Law’s Medicaid Fraud Control Unit. 

Young leaders with albinism – check out Arielle’s full update and start YOUR application for the McGowan Leadership Scholarship today!!

www.albinism.org/leadership

Published: March 7, 2022

Parents, Grandparents, and Caregivers…oh my!

Did you know that there are 3 NOAH Connections calls for parents, grandparents, and caregivers coming up later this month?!

Check out our upcoming NOAH Connections offerings & sign up today!
www.albinism.org/NOAH-Connections/#p-g-c

Published: March 7, 2022

We Want to Hear From YOU!

Since our founding in 1982, NOAH has served the albinism community by providing information and support.  As our 40th anniversary approaches, we have engaged The BenderStone Group to help the Board of Directors and Leadership team frame critical choices about our strategic direction.  An important part of our this process is incorporating feedback and input from those whose lives we touch.  

We invite you to participate in a survey to help us understand how YOU perceive, value, and engage with us.

Thank you for taking a few minutes to share your confidential insights and ideas to help NOAH set a direction for the future. 

Take the survey: https://bit.ly/35we8fT

Published: March 7, 2022

Calling All Siblings of People with Albinism!

In an attempt to get to know our population better and to meet the needs of our NOAH family, we would like to invite siblings of all ages to share their experiences, ideas and their unique point of view as someone growing up with albinism in their family. The survey is anonymous and can be used for children as well as adult siblings. Feel free to expand as much as you like. The results of this survey will be used to help direct programming as well as used within the NOAH Workshops.

Take the survey today! 

Published: March 7, 2022

TODAY: Parents of Newly Diagnosed Children Workshop

March 7th at 8:30pm ET // 5:30pm PT

Registered attendees – join Sheila Adamo TONIGHT at 8:30pm ET // 5:30pm PT to begin building a community of fellow parents that understand and support each other in adapting to parenting a child with albinism.

Learn more about NOAH Workshops: www.albinism.org/workshops

Published: March 7, 2022

Thursday: Young Adult Connections

March 9th at 9:00pm ET // 6:00pm PT

Young adults, you’re up next! Get ready to join us this Wednesday at 9pm ET // 6pm PT for friendship & fun with NOAH friends!

New to NOAH Connections? Now is the perfect time to join!

www.albinism.org/NOAH-Connections/#young-adults

Published: March 7, 2022

Thursday: Adult Connections

March 10th at 9:00pm ET // 6:00pm PT

Adults with albinism – are you looking to reconnect with PWA pals or meet some new friends with albinism? We have the perfect group for you! 

Join us for Adult Connections this Thursday at 9pm ET // 6pm PT. 

www.albinism.org/NOAH-Connections/#adults

Published: March 7, 2022

Saturday: Kids’ PWA Book Club

March 12th at 3:00pm ET // 12:00pm PT

Book Club Members:

Courtney & Alison can’t wait to see you for our final book discussion this Saturday at 3pm ET // 12pm PT! Please finish reading “Roll With It” for this meeting.

www.albinism.org/NOAH-Connections/#kids-book-club

Published: March 7, 2022

Sunday: BIPOC Connections

March 13th at 4:30pm ET // 1:30pm PT

BIPOC adults with albinism, join Mashall Zaheer for our next session of BIPOC Connections this Sunday at 4:30pm ET.

​​​​​​​New to the group? Sign up today for info for this call, and you’ll be invited to future gatherings too!

www.albinism.org/NOAH-Connections/#bipoc

Published: March 7, 2022

Sunday: LGBTQ+ & Allies Connections

March 13th at 8:00pm ET // 5:00pm PT

LGBTQ+ PWAs & Allies, you’re invited to our next session of NOAH Connections just for you! 

Join us this Sunday to reconnect with old friends, and make new ones!

New to the group? There’s still time to sign up:
www.albinism.org/NOAH-Connections/#lgbtq

Published: March 7, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: March 7, 2022

EXTRA! EXTRA! Breaking News!

NOAH is thrilled to announce that Walt Disney World will provide exclusive ticket discounts to NOAHCon 2022 attendees that are not available at the Disney Ticket Windows. 

Purchase your tickets by March 15th to lock in extra-discounted pricing!
www.albinism.org/NOAHCon/#disney-tix

Published: February 28, 2022

Why do teens love the NOAH Connections Teen calls?

For so many reasons! (Hear about a few reasons in our recent video)

Teens, don’t miss out! Sign up to join us for our next session of Teen Connections, this Thursday at 8pm ET // 5pm PT.

www.albinism.org/NOAH-Connections/#teens

Published: February 28, 2022

We Want to Hear From YOU!

Since our founding in 1982, NOAH has served the albinism community by providing information and support.  As our 40th anniversary approaches, we have engaged The BenderStone Group to help the Board of Directors and Leadership team frame critical choices about the our strategic direction.  An important part of our this process is incorporating feedback and input from those whose lives we touch.  

We invite you to participate in a survey to help us understand how YOU perceive, value, and engage with us.

Thank you for taking a few minutes to share your confidential insights and ideas to help NOAH set a direction for the future. 

Take the survey:
https://bit.ly/35we8fT

Published: February 28, 2022

Calling All Siblings of People with Albinism!

In an attempt to get to know our population better and to meet the needs of our NOAH family, we would like to invite siblings of all ages to share their experiences, ideas and their unique point of view as someone growing up with albinism in their family. The survey is anonymous and can be used for children as well as adult siblings. Feel free to expand as much as you like. The results of this survey will be used to help direct programming as well as used within the NOAH Workshops.

Take the survey today! 

Published: February 28, 2022

Wednesday: PWA Book Club

March 2nd at 9:00pm ET // 6:00pm PT

Book club members – finish up reading “The English Patient” by Michael Ondaatje, and join us to discuss this Wednesday, March 2nd. We can’t wait to “see” you!

www.albinism.org/NOAH-Connections/#pwa-book-club

Published: February 28, 2022

Thursday: Teen Connections

March 3rd at 8:00pm ET // 5:00pm PT

Teens with albinism, get ready for game night! Join us for a fun night of Jackbox Games with friends – make sure to have two devices ready (1 for zoom and one for Jackbox!). 

www.albinism.org/NOAH-Connections/#teens

Published: February 28, 2022

Saturday: Kids’ PWA Book Club

March 5th at 3:00pm ET // 12:00pm PT

Book Club Members:

Courtney & Alison can’t wait to see YOU for our next book discussion this Saturday at 3pm ET // 12pm PT! 

www.albinism.org/NOAH-Connections/#kids-book-club

Published: February 28, 2022

Sunday: Canadian Parent Connections

March 6th at 3:00pm ET // 12:00pm PT

Canadian Parents, you’re invited to our next session of NOAH Connections! 

Join Rebekah Zigby  to connect and chat with fellow parents of PWAs from Canada this Sunday, March 6th at 3pm ET // 12pm PT.

New to the group? There’s still time to sign up!
www.albinism.org/NOAH-Connections/#canadian-parents

Published: February 28, 2022

Sunday: Universal Studios Theme Park Planning

March 6th at 4:00pm ET // 1:00pm PT

Are you planning to visit Universal Studios while in Florida for NOAHCon2022? 

Join Nick Smith & Andrew Sartorius this Sunday, March 6th as they share their personal experiences, tips, & tricks for planning a visit to this popular theme park.

www.albinism.org/NOAH-Connections/#universal

Published: February 28, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: February 28, 2022

Happy Presidents’ Day!

Happy Presidents’ Day from NOAH! 

Published: February 21, 2022

Calling All Siblings of People with Albinism!

In an attempt to get to know our population better and to meet the needs of our NOAH family, we would like to invite siblings of all ages to share their experiences, ideas and their unique point of view as someone growing up with albinism in their family. The survey is anonymous and can be used for children as well as adult siblings. Feel free to expand as much as you like. The results of this survey will be used to help direct programming as well as used within the NOAH Workshops.

Take the survey today! 

Published: February 21, 2022

There’s Still Time to Sign Up!

Parents & caregivers, join Sheila Adamo for the Parents of Newly Diagnosed Children workshop March 7th at 8:30pm ET, to begin building a community of fellow parents that understand  and support each other in adapting to parenting a child with albinism. 

Register by March 5th! 
www.albinism.org/workshops

Published: February 21, 2022

BIPOC Connections

BIPOC adults with albinism, join Mashall Zaheer for our next session of BIPOC Connections, Sunday, March 13th at 4:30pm ET.

New to the group? Sign up today for info for this call, and you’ll be invited to future gatherings too!
www.albinism.org/NOAH-Connections/#bipoc

Published: February 21, 2022

Did You Know?

Did you know that the NOAHCon 2022 hotel offers 50% off self-parking for all guests staying in the NOAHCon attendee room block?!​​​​​​​

The NOAHCon room block is filling fast, so book your room today! www.albinism.org/NOAHCon

Published: February 21, 2022

Giving Tuesday Match!

We’ve heard from some community members that their Giving Tuesday donation to NOAH was matched at 10% by Facebook!

If you donated to NOAH through Facebook for Giving Tuesday, let us know on our recent post – did you receive a notification that your donation was matched?

Published: February 21, 2022

Tuesday: Parenting without Pigment

February 22nd at 9:00pm ET // 6:00pm PT

PWPs (parents without pigment), we can’t wait to see YOU this Tuesday at 9:00pm ET // 6:00pm PT for our next session of Parenting without Pigment! Join host Andrew S. to discuss travel. 

www.albinism.org/NOAH-Connections/#pwp

Published: February 21, 2022

Wednesday: Young Adult Connections

February 23rd at 9:00pm ET // 6:00pm PT

Young adults, we can’t wait to “see” you Wednesday for our next session of NOAH Connections just for you! Grab your computer and get ready for an evening of fun with your NOAH friends.

New to the group? There’s still time to join:
www.albinism.org/NOAH-Connections/#young-adults

Published: February 21, 2022

Thursday: Adult Connections

February 24th at 9:00pm ET // 6:00pm PT

Adult PWAs, you’re invited to our final Adult Connections call of February! Get ready to join us on Zoom this Thursday at 9pm ET // 6pm PT.

www.albinism.org/NOAH-Connections/#adults

Published: February 21, 2022

Saturday: Kids’ PWA Book Club

February 26th at 3:00pm ET // 12:00pm PT

Book Club Members:

Courtney & Alison can’t wait to see YOU for our next book discussion this Saturday at 3pm ET // 12pm PT! Finish reading Chapters 3-5 of “Roll with It” by Jamie Sumner, and get ready to discuss.

www.albinism.org/NOAH-Connections/#kids-book-club

Published: February 21, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: February 21, 2022

Happy Valentine’s Day!

Roses are red
Violets are blue
Our NOAH family appreciates YOU! 

Happy Valentine’s Day from NOAH! 

Published: February 14, 2022

Parenting without Pigment

PWPs (parents without pigment), we can’t wait to see you for our next get-together on Tuesday, February 22nd at 9:00pm ET // 6:00pm PT! 

Join host Andrew S. to discuss travel. 

www.albinism.org/NOAH-Connections/#pwp

Published: February 14, 2022

Get Ready to Read!

PWAs who love to read, now is the perfect time to join NOAH’s Book Club! We’ve just begun “The English Patient” by Michael Ondaatje and will meet to discuss March 2nd.

Sign up today!

www.albinism.org/NOAH-Connections/#pwa-book-club

Published: February 14, 2022

Did You Know?

Did you know that the NOAHCon 2022 hotel has 4 onsite dining options? 

Citrus 28 is gourmet market and café featuring Starbucks coffee, freshly prepared light meals, gourmet bites and local favorites prepared daily by an expert culinary team.

The NOAHCon room block is filling fast, so book your room today! www.albinism.org/NOAHCon

Published: February 14, 2022

Tuesday: Aging with Albinism

February 15th at 5:00pm ET // 2:00pm PT

Cataract surgery can be a daunting prospect for those considering it, and a liberating experience for those who have already gone through it. Join us TOMORROW at 5pm ET to discuss! 

www.albinism.org/NOAH-Connections/#aging

Published: February 14, 2022

Thursday: Teen Connections

February 17th at 8:00pm ET // 5:00pm PT

Teens, we can’t wait to “see” you Thursday! 

New to the group? Sign up today for the info for this call, and you’ll get email reminders for future calls too! 

www.albinism.org/NOAH-Connections/#teens

Published: February 14, 2022

Saturday: Kids’ PWA Book Club

February 19th at 3:00pm ET // 12:00pm PT

Courtney & Alison can’t wait to see YOU for our first book discussion this Saturday! Make sure to read chapters 1 & 2 of “Roll with It” by Jamie Sumner before we meet this weekend. 

Missed the first meeting? No worries – read chapters 1 & 2, and get ready to join us this weekend!

www.albinism.org/NOAH-Connections/#kids-book-club

Published: February 14, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: February 14, 2022

Black History Month

“Diversity is not about how we differ. Diversity is about embracing one another’s uniqueness” – Ola Joseph

This Black History Month, we invite our community members to share their diverse experiences. Black PWAs – what does Black History Month mean to you? Let us know on our recent Facebook post!

Published: February 7, 2022

ONE Week Left to Submit!

Do you have an idea for a NOAHCon 2022 presentation that would benefit the albinism community? There’s still time to submit a proposal!​​​​​​​

NOAH welcomes professionals, vendors, and our community members to submit proposals. This is an open call, so help us spread the word! 

Submit by Feb. 14th at 5pm ET

www.albinism.org/NOAHCon/presentations

Published: February 7, 2022

2022 McGowan Leadership Scholarship Application Now Open!

The Michael J. McGowan Leadership Scholarship Award aims to empower young PWAs by annually recognizing one NOAH member (enrolled in an undergraduate program) who demonstrates outstanding leadership qualities. 

Do you know a young leader in the albinism community? Encourage them to apply by May 1st!

For more information, visit: www.albinism.org/leadership

Published: February 7, 2022

Shop for NOAH!

Did you know, you can support NOAH while shopping for your sweetheart?! 

Check out NOAH Love heart mugs and other cute products on the NOAH Zazzle store, and grab a gift for your Valentine while supporting a great cause.

What are you waiting for? Start shopping!
www.zazzle.com/store/noahgear

Published: February 7, 2022

Tuesday: Career Corner

February 8th at 8:00pm ET // 5:00pm PT

Join us TOMORROW at 8pm ET for a NOAH Connections Career Corner Panel!  Panelists Rebecca Smith, Mayia Warren, Hafeez Shaka, & Jocelyn Leworthy will share info about their careers & answer questions about being a PWA in their fields.

Sign up today! www.albinism.org/NOAH-Connections/#career-corner

Published: February 7, 2022

Wednesday: Young Adult Connections

February 9th at 9:00pm ET // 6:00pm PT

Young adults, we can’t wait to “see” you this Wednesday. Don’t miss out on social time with your friends with albinism – mark YA Connections on your calendar now!

New to the group? Join today at: www.albinism.org/NOAH-Connections/#young-adults

Published: February 7, 2022

Thursday: Adult Connections

February 10th at 9:00pm ET // 6:00pm PT

Adults with albinism, grab your phone, computer, or tablet and hop on Zoom this Thursday at 9pm ET // 6pm PT for camaraderie & connection with your PWA pals!

www.albinism.org/NOAH-Connections/#adults

Published: February 7, 2022

Saturday: Kids’ PWA Book Club

February 12th at 3:00pm ET // 12:00pm PT

Middle grade kids with albinism, get ready to read! 

Alison is so excited for our new kids’ book club, and we hope you are too! Check out what book we’ll be reading, and get ready to join our first book club meeting this  Saturday!

Sign up today:
www.albinism.org/NOAH-Connections/#kids-book-club

Published: February 7, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: February 7, 2022

Deadline Extended!

Do you have an idea for a NOAHCon 2022 presentation that would benefit the albinism community? There’s still time to submit a proposal!​​​​​​​

NOAH welcomes professionals, vendors, and our community members to submit proposals. This is an open call, so help us spread the word! 

Submit by Feb. 14th at 5pm ET

www.albinism.org/NOAHCon/presentations

Published: January 31, 2022

2022 McGowan Leadership Scholarship Application Now Open!

The Michael J. McGowan Leadership Scholarship Award aims to empower young PWAs by annually recognizing one NOAH member (enrolled in an undergraduate program) who demonstrates outstanding leadership qualities. 

Do you know a young leader in the albinism community? Encourage them to apply by May 1st!

For more information, visit: www.albinism.org/leadership

Published: January 31, 2022

Middle Grade Kids’ Book Club!

Middle grade kids with albinism, get ready to read! 

Alison is so excited for our new kids’ book club, and we hope you are too! Check out what book we’ll be reading, and get ready to join our first book club meeting Saturday, February 12th at 3pm ET.

Sign up today:
www.albinism.org/NOAH-Connections/#kids-book-club

Published: January 31, 2022

Parents of Newly Diagnosed Children Workshop!

Parents & caregivers, join Sheila Adamo for the Parents of Newly Diagnosed Children workshop March 7th at 8:30pm ET, to begin building a community of fellow parents that understand  and support each other in adapting to parenting a child with albinism. 

Register by March 5th! 
www.albinism.org/workshops

Published: January 31, 2022

Did You Know?

Did You Know that the #NOAHCon2022 hotel has a fitness center with cardio machines, weights, and other workout equipment? 

Rooms are filling up fast – book your room today at: www.albinism.org/NOAHCon

Published: January 31, 2022

Wednesday: PWA Book Club

February 2nd at 9:00pm ET // 6:00pm PT

Book Club members, finish up reading “Night” by Elie Wiesel, and join us to discuss this Wednesday, February 2nd. 

www.albinism.org/NOAH-Connections/#pwa-book-club

Published: January 31, 2022

Thursday: Teen Connections

February 3rd at 8:00pm ET // 5:00pm PT

Teens with albinism, we can’t wait to “see” you this Thursday for our next session of NOAH Connections.​​​​​​​

New to the group? Join today!
www.albinism.org/NOAH-Connections/#teens

Published: January 31, 2022

Sunday: BIPOC Connections

February 6th at 4:00pm ET // 1:00pm PT

BIPOC adults with albinism, get ready to join Dale Hamilton for our next session of BIPOC Connections, this Sunday, February 6th at 4pm ET.

New to the group? Sign up today for info for this call, and you’ll be invited to future gatherings too!
www.albinism.org/NOAH-Connections/#bipoc

Published: January 31, 2022

Sunday: LGBTQ+ & Allies Connections

February 6th at 8:00pm ET // 5:00pm PT

LGBTQ+ PWAs and Allies, we can’t wait to see YOU  this Sunday, February 6th at 8pm ET // 5pm PT on Zoom!

Feel free to join with audio only, if you prefer.

New to the group? Sign up today for info on joining this call, and you’ll be invited to future gatherings too!
www.albinism.org/NOAH-Connections/#lgbtq

Published: January 31, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: January 31, 2022

Parent Liaison Openings

NOAH Parent Liaisons guide parents of newly diagnosed children with albinism through the many resources NOAH has to offer and provide the opportunity to speak directly to a parent of a child with albinism who truly understands. If you are interested in learning more and sharing your experiences as a parent of a child with albinism, please complete the NOAH Parent Liaison Volunteer Interest Form to begin the process.

To be considered for limited Parent Liaison openings in the next training cycle, complete the interest form by February 1st.

https://app.donorview.com/ljy6V

Published: January 24, 2022

Book Your Room Today!

Rooms are still available in the NOAHCon 2022 conference attendee room block. ​​Book your room now to secure special, discounted rates just for the NOAH community.

www.albinism.org/NOAHCon

Published: January 24, 2022

PWA Book Club!

PWAs who love to read, you’re invited to join NOAH’s Book Club! Read “Night” by Elie Wiesel, and join us to discuss on Wednesday, February 2nd. 

Sign up today! www.albinism.org/NOAH-Connections/#pwa-book-club

Published: January 24, 2022

Calling All Middle Grade Kids with Albinism!

You’re invited to join the new NOAH Kids’ Book Club! 

Fill out the book club survey so we can plan for our meeting times, and stay tuned to find out the first book we’ll be reading together! 

https://forms.gle/7fo45YbArroGTStp6

Published: January 24, 2022

Inquire to Inspire!

Did you see Kathi’s most recent i2i? Check it out and join in the conversation on our recent Facebook post:

Hey everyone! With the wintery weather, I’m betting we’re all doing a lot of binge watching. Relaxing in front of the tv this weekend led me to inquire about how my PWA pals access their favorite shows. Inspire me with how you like to watch your weekly favorites. Do you use devices or descriptive audio on the tv or watch on a hand-held device? ​​​​​​​

Published: January 24, 2022

Wednesday: Young Adult Connections

January 26th at 9:00pm ET // 6:00pm PT

Young adults, you’re up next! Grab your computer, tablet, or phone and get ready to join us on Zoom.

New to the group? There’s still time to sign up:​​​​​​​

www.albinism.org/NOAH-Connections/#young-adults

Published: January 24, 2022

Thursday: Adult Connections

January 27th at 9:00pm ET // 6:00pm PT

Adult PWAs, join us this Thursday for our next session of Young Adult Connections! Will we “see” you there?

www.albinism.org/NOAH-Connections/#adults​​​​​​​

Published: January 24, 2022

Sunday: Walt Disney World Theme Park Planning

January 30th at 4:00pm ET // 1:00pm PT

Planning to come to NOAHCon2022 and want to visit Walt Disney World Theme Parks during your trip? 

Join Nick Smith, Sunday, January 30th at 4pm ET to share tips, tricks, and planning ideas!

www.albinism.org/NOAH-Connections/#disney

Published: January 24, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: January 24, 2022

Martin Luther King Jr. Day

In observance of Martin Luther King Jr. Day, we share this interview with Rev. Jesse Douglas Sr., an African American PWA who was a colleague and personal friend of Rev. King.

https://www.youtube.com/watch?v=M8YLSeg9LmA

Published: January 17, 2022

Community Members:

Do you have a presentation in mind you’d like to give at NOAHCon? Would you like to provide information, share your skills or hobbies, or provide knowledge to the NOAH community on a specific topic? 

NOAH would love to hear your ideas! 

Click here to submit a Community Session Presentation Proposal

Deadline: Tuesday February 1, 2022 at 5pm ET

Published: January 17, 2022

Professionals:

Do you have information to share with members of the albinism community? Would you like the opportunity to provide the NOAH community with knowledge and/or resources that are relevant to people with albinism and their loved ones?​​​​​​​

NOAH welcomes your proposal for session or poster presentation.

Click here to submit a (Scientific) Session or Poster Presentation Proposal.

Deadline: Tuesday February 1, 2022 at 5pm ET

Published: January 17, 2022

Deadline Extended!

Submitting an article is a great way to share your knowledge and experience with the albinism community, and there’s still time to contribute to the Spring Issue of Albinism InSight! 

Deadline extended – submissions due Monday, January 24th.

More info: www.albinism.org/AI/call-for-content

Published: January 17, 2022

Parent Liaison Openings

NOAH Parent Liaisons guide parents of newly diagnosed children with albinism through the many resources NOAH has to offer and provide the opportunity to speak directly to a parent of a child with albinism who truly understands.

If you are interested in learning more and sharing your experiences as a parent of a child with albinism, please complete the NOAH Parent Liaison Volunteer Interest Form to begin the process. To be considered for limited Parent Liaison openings in the next training cycle, complete the interest form by February 1st.

https://app.donorview.com/ljy6V

Published: January 17, 2022

Calling All Middle Grade Kids with Albinism!

You’re invited to join the new NOAH Kids’ Book Club! 

Fill out the book club survey so we can plan for our meeting times, and stay tuned to find out the first book we’ll be reading together! 

https://forms.gle/7fo45YbArroGTStp6

Published: January 17, 2022

Tuesday: Aging with Albinism

January 18th at 5:00pm ET // 2:00pm PT

You’re invited to Aging with Albinism: Self-Disclosure, tomorrow at 5pm ET // 2pm PT. 

How do you decide how much to share about your life with Albinism – the positives and/or the negatives? Join us for a lively discussion!

www.albinism.org/NOAH-Connections/#aging

Published: January 17, 2022

Tuesday: Parenting without Pigment

January 18th at 9:00pm ET // 6:00pm PT

Calling All Parents without Pigment – NOAH Connections: Parenting without Pigment is back.

Join Kathi Garza on Tuesday for a fun game of Never Have I Ever, Parenting without Pigment edition!

New to the group? Sign up now:
www.albinism.org/NOAH-Connections/#pwp

Published: January 17, 2022

Thursday: Teen Connections

January 20th at 8:00pm ET // 5:00pm PT

NOAH teens, join us for our next teen connections call! 

New to the group? There’s still time to sign up!

www.albinism.org/NOAH-Connections/#teens

Published: January 17, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: January 17, 2022

Announcing…the NOAHCon2022 Theme!

Check out our recent conference theme announcement & the latest conference information at www.albinism.org/NOAHCon

Published: January 10, 2022

Conference Hotel Room Block is Now Open!

Orlando, here we come!!

​​​​The conference attendee room block is now open for NOAHCon2022! Book your room now to secure special, discounted rates just for the NOAH community.

www.albinism.org/NOAHCon

Published: January 10, 2022

NOAH Text Alerts

Have you signed up for NOAH texts? Let us know if our call reminders are reaching you! 

Not signed up yet but want a text reminder for your favorite NOAH Connections calls?

Sign up now! https://app.donorview.com/Wb7R7

Published: January 10, 2022

Make New Connections in the New Year!

Have you heard about our upcoming NOAH Connections calls? We hope you’ll join us for one of our many upcoming opportunities to connect including NOAH Connections calls for BIPOC, LBGTQ+ and Allies, Parenting without Pigment, and more!

Check out the full schedule at www.albinism.org/NOAH-Connections

Published: January 10, 2022

TONIGHT: Career Corner

January 10th at 8:00pm ET // 5:00pm PT

Join us TONIGHT at 8pm ET for a NOAH Connections Career Corner Panel!  Panelists Kathi Garza, Nick Smith, Claire Sterling, and Marshall Cohen will share information about their careers, and answer participant questions about being a PWA in their respective fields.

All are welcome, so spread the word, and sign up today!
www.albinism.org/NOAH-Connections/#career-corner

Published: January 10, 2022

Tuesday: NOAH Kids – Create an Empower Flower

January 11th at 8:00pm ET // 5:00pm PT

NOAH kids, join Casey & Marleena this Tuesday at 8pm ET // 5pm PT to create your very own “Empower Flower” of affirmations and motivations to start the New Year.

Sign up today!
www.albinism.org/NOAH-Connections/#empower

Published: January 10, 2022

Tuesday: Word of the Year!

January 11th at 9:00pm ET // 6:00pm PT

Are you looking for some extra motivation as you head into 2022?

Join Casey Greer and Marleena Barber this Tuesday for a guided session in choosing a “Word of the Year.” Your WOTY will represent what you want to be, feel, do, and bring into your life for the coming year. 

Open to adults and young adults with albinism!
Sign up now: www.albinism.org/NOAH-Connections/#word

Published: January 10, 2022

Wednesday: Young Adult Connections

January 12th at 9:00pm ET // 6:00pm PT

Young adults, you’re up next! Join us Wednesday at 9pm ET // 6pm PT to connect with fellow young adult PWAs. 

www.albinism.org/NOAH-Connections/#young-adults

Published: January 10, 2022

Thursday: Adult Connections

January 13th at 9:00pm ET // 6:00pm PT

Adults with Albinism, join special guest host, NOAH Executive Director Karen Bly for our next session of Adult Connections, this Thursday at 9pm ET // 6pm PT.

New to the group? Sign up now!
www.albinism.org/NOAH-Connections/#adults

Published: January 10, 2022

Sunday: Your Mind Matters Workshop

January 15th at 4:00pm ET // 1:00pm PT

Teens & Parents, there’s still time to sign up!

Join Bianca Rivera MSW, LCSW & Ashley Ullyot MA, LMFT for Your Mind Matters – A Parent & Teen Guide on January 15th.  This workshop will empower parents and teens to develop an individualized plan that focuses on the unique stress that teens with albinism face in school. 

Register by Thursday, 1/13! 
www.albinism.org/workshops

Published: January 10, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: January 10, 2022

Conference Hotel Room Block Opens Friday!

With NOAHCon2022 just over 6 months away, we are thrilled to announce that the hotel room block, with special pricing for conference attendees, will open this Friday, January 7th. Stay tuned for more details…

www.albinism.org/NOAHCon

Published: January 3, 2022

NOAH Kids: Create an Empower Flower!

NOAH kids, join Casey & Marleena next Tuesday (1/11) at 8pm ET // 5pm PT to create your very own “Empower Flower” of affirmations and motivations to start the New Year.

Sign up today!
www.albinism.org/NOAH-Connections/#empower

Published: January 3, 2022

Adult PWAs: You’re Invited to Word of the Year!

Are you looking for some extra motivation as you head into 2022?

Join Casey Greer and Marleena Barber on Tuesday, January 11th for a guided session in choosing a “Word of the Year.” Your WOTY will represent what you want to be, feel, do, and bring into your life for the coming year. 

Open to adults and young adults with albinism!

Sign up now: www.albinism.org/NOAH-Connections/#word

Published: January 3, 2022

Thank YOU for Shopping for NOAH!

NOAH received over $600 from AmazonSmile purchases between September & December. Thank you, shoppers!

It’s so easy to support NOAH through AmazonSmile! Select NOAH as your designated charity today & Amazon will donate 0.5% from every purchase you make through AmazonSmile: 
https://smile.amazon.com/ch/23-2265173

Published: January 3, 2022

Thursday: Teen Connections

January 6th at 8:00pm ET // 5:00pm PT

Teens, kick off the new year right and join us for our next session of Teen Connections, this Thursday at 8pm ET // 5pm PT. 

New to the group? The first call of the new year is the perfect time to join in for your first time!

Sign up today: www.albinism.org/NOAH-Connections/#teens

Published: January 3, 2022

Sunday: LGBTQ+ and Allies Connections

January 9th at 8:00pm ET // 5:00pm PT

YOU belong here! 

Join us for a social gathering open to all LGBTQ+ and allies with albinism this Sunday, January 9th at 8pm ET. Feel free to leave your camera off or dial in via phone if video isn’t your style. We look forward to connecting with you!

www.albinism.org/NOAH-Connections/#lgbtq

Published: January 3, 2022

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: January 3, 2022

Thank YOU for considering an end-of-year gift to NOAH!

“I’ve never felt more relatable and normal than I have with you guys.” – Chelsie (PWA and first time Adults with Albinism Weekend attendee)

With your donation, NOAH can continue to provide a space for the albinism community to meet at in-person events where attendees are able to enjoy a fun and relaxing time together with their NOAH friends and family. Thank you for considering an end-of-year gift to NOAH!

https://app.donorview.com/VX4R

Published: December 27, 2021

Activity Leaders Needed for New Year with NOAH!

We need YOUR help to start the new year right! If you’d be willing to lead a brief game or activity at New Year with NOAH on Gatherly, send us a message! Bonus points if you have an activity in mind.

www.albinism.org/NOAH-Connections/#new-year

Published: December 27, 2021

Your Mind Matters!

Teens & Parents, our next NOAH Workshop is just for YOU!

Join Bianca Rivera MSW, LCSW and Ashley Ullyot MA, LMFT on January 15th for Your Mind Matters – A Parent & Teen Guide.  This workshop will empower parents and teens to develop an individualized plan that focuses on the unique stress that teens with albinism face in school. 

Register by January 13th! 
www.albinism.org/workshops

Published: December 27, 2021

Wednesday: Young Adult Connections

December 29th at 9:00pm ET // 6:00pm PT

Young adults – join us this Thursday at 9pm ET for some much-needed relaxation time with NOAH friends! 

Will we see your smiling face on zoom for our last Young Adult Connections call of 2021? 

www.albinism.org/NOAH-Connections/#young-adults

Published: December 27, 2021

Thursday: Adult Connections

December 30th at 9:00pm ET // 6:00pm PT

Adult PWAs, you’re invited to our final Adult Connections call of 2021, this Thursday at 9pm ET! We know the holidays can be stressful, and this is the perfect chance to relax and connect with your NOAH friends from the comfort of your couch.

www.albinism.org/NOAH-Connections/#adults

Published: December 27, 2021

Sunday: New Year with NOAH! on Gatherly

January 2nd at 7:00pm ET // 4:00pm PT

You’re Invited to New Year with NOAH! 

Join NOAH to start the year off right, Sunday, January 2nd at 7pm ET // 4pm PT on Gatherly. Show off your skills in games & activities, or just log on for some social time and relaxation with NOAH Friends!

RSVP now: www.albinism.org/NOAH-Connections/#new-year

Published: December 27, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: December 27, 2021

You’re Invited to New Year with NOAH!

Join NOAH to start the year off right, Sunday, January 2nd at 7pm ET // 4pm PT on Gatherly. Show off your skills in games & activities, or just log on for some social time and relaxation with NOAH Friends!

RSVP now: www.albinism.org/NOAH-Connections/#new-year

Published: December 20, 2021

Did You Know? NOAHCon2022

Did you know that the NOAHCon2022 hotel is connected by pedestrian skybridge to Disney Springs®, including more than 150 dining, shopping, and entertainment venues? 

Learn more about this summer’s conference hotel at: www.albinism.org/NOAHCon

*Room block opens January 2022!

Published: December 20, 2021

Announcing: Career Corner Panel!

Join us Monday, January 10th at 8pm ET for a NOAH Connections Career Corner Panel!  Panelists Kathi Garza, Nick Smith, Claire Sterling, and Marshall Cohen will share information about their careers, and answer participant questions about being a PWA in their respective fields. 

All are welcome, so spread the word, and sign up today! www.albinism.org/NOAH-Connections/#career-corner

Published: December 20, 2021

Travel Tips!

With holiday travel just around the corner, we invite you to share your best low-vision travel tips!

Check out the awesome tips shared or add your own on our recent Facebook Post.

Published: December 20, 2021

Thursday: Teen Connections

December 23rd at 8:00pm ET // 5:00pm PT

Teens with albinism – we can’t wait to see YOU this Thursday! Get ready to join us on Zoom for our final Teen Connections call of 2021!

www.albinism.org/NOAH-Connections/#teens

Published: December 20, 2021

NOAH Connections Holiday Break

December 24th – 29th

NOAH Connections is taking a Holiday Break from December 24th – 29th. We look forward to seeing you at future sessions at the end of December, and in the new year!

While we’re away, check out our upcoming offerings at: www.albinism.org/NOAH-Connections

Published: December 20, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: December 20, 2021

Looking for a way to help?

Joining a NOAH Connections Advisory Task Force is the perfect way to let your voice be heard! We are currently looking for members for the following task force groups:​​​​​​​

• LBGTQ+
• Young Adults
• Parenting without Pigment 
• BIPOC Adults 
• Parents & Caregivers 
• Adults with Albinism 
• Grandparents 

Learn more or apply to join a NOAH Connections Task Force today at: www.albinism.org/NOAH-Connections/task-force

Published: December 13, 2021

Thank you, Facebook Fundraisers!

Thank you, Facebook Fundraisers!

Join us in thanking everyone who hosted a Facebook fundraiser to benefit NOAH in the month of November!

Creating a FB fundraiser for NOAH is so easy, and really makes a difference. Create your own fundraiser today: https://bit.ly/3pQHLyV

Published: December 13, 2021

Are you bothered by the flicker?

Many people with albinism say the flicker of some LED lights bothers them – especially in holiday displays. What is your experience?​​​​​​ 

Join in on the discussion on our recent Facebook post: https://bit.ly/3DRmkCQ

Published: December 13, 2021

Thank YOU for donating to NOAH’s Amazon Wish List!

Check out all of these awesome donations! Sending a special shoutout to our generous community members who donated items for New Parent Toolkits through our Amazon Wish List!

Looking for a way to support?
Check out our Wish List at https://amzn.to/3y4dKj3

Published: December 13, 2021

Tuesday: Aging with Albinism

December 14th at 5:00pm ET // 2:00pm PT

We can’t wait to see YOU for our next session of Aging with Albinism! Join June Waugh and friends on December 14th to discuss ways you’ve enhanced your mental health over the years. 

All ideas and experiences are welcome!
www.albinism.org/NOAH-Connections/#aging

Published: December 13, 2021

Wednesday: Young Adult Connections

December 15th at 9:00pm ET // 6:00pm PT

Young adults, you’re up next! Join us this Wednesday for the perfect chance to relax and unwind with your NOAH friends during the busy holiday season!

www.albinism.org/NOAH-Connections/#young-adults

Published: December 13, 2021

Thursday: Adult Connections

December 16th at 9:00pm ET // 6:00pm PT

Adult PWAs, you’re invited to our next session of NOAH Connections, this Thursday at 9pm ET // 6pm PT. 

New to NOAH Connections? There’s still time to sign up! 

www.albinism.org/NOAH-Connections/#adults

Published: December 13, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: December 13, 2021

THANK YOU!

We are thrilled to share that we have earned the $4,000 NOAH Board of Directors match and EXCEEDED our GivingTuesday goal, thanks to the generosity of our community members! Thank you so much to all who have donated and shared our fundraiser.​​​​​​​

Published: December 6, 2021

Career Corner – Rebecca Smith​​​​​​​

Rebecca Smith is an educator who works with kids preschool through grade 12 with moderate/intensive disabilities & visual impairments! 

Check out her story (or submit info about YOUR job or career) at: www.albinism.org/career-corner

Published: December 6, 2021

Parent Liaison Spotlight!​​​​​​​

This week, we featured Parent Liaisons, Anne Contant & Regan Gentile as part of our Parent Liaison spotlight. Get to know Anne, Regan, and other Parent Liaisons at www.albinism.org/new-parent-program/PL

Published: December 6, 2021

Did You Know?

Did you know that the #NOAHCon2022 hotel has a float lagoon (lazy river) with beach-style entry & complimentary floats? 

Learn more about this summer’s conference at www.albinism.org/NOAHCon

*Room block opens January 2022!

Published: December 6, 2021

Thursday: Teen Connections

December 9th at 8:00pm ET // 5:00pm PT

Teens, we look forward to seeing you again this week at our regularly scheduled time. Join us Thursday at  8:00pm ET // 5:00pm PT. We can’t wait to see you!

www.albinism.org/NOAH-Connections/#teens

Published: December 6, 2021

Thursday: LGBTQ+ and Allies

December 9th at 9:00pm ET // 6:00pm PT

PWAs who identify as LGBTQ+ and allies, mark your calendars for our next session of NOAH Connections, Thursday, December 9th at 9pm ET // 6pm PT. New to the group? Sign up now for the invite to this session, and future ones too!

www.albinism.org/NOAH-Connections/#lgbtq

Published: December 6, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: December 6, 2021

TOMORROW – Giving Tuesday!

Thanks to the generosity of NOAH’s Board of Directors, NOAH can earn a guaranteed $4,000 in matching funds this Giving Tuesday with YOUR support. Additionally, beginning TOMORROW at 8:00am ET, gifts to NOAH made via Facebook will be eligible for the $8 million Facebook match until funds run out. Your support of NOAH goes even further this Giving Tuesday – no gift is too small! 

Get ready to give TOMORROW at 8am ET!!

Donate or share NOAH’s GivingTuesday Fundraiser: ​​​​​https://bit.ly/3ptMeHV

OR create your own fundraiser: https://bit.ly/31cuJmC

Published: November 29, 2021

NOAH is Thankful for YOU!​​​​​​​

This holiday season, NOAH is thankful for our Board of Directors, Parent Liaisons, community members, fundraisers, and volunteers! We are so grateful that YOU are part of our NOAH family!​​​​​​​

Published: November 29, 2021

Career Corner – Mayia Warren!​​​​​​​

Mayia Warren is an advocate & content creator with albinism! 

Check out her story (or submit info about YOUR job or career) at: www.albinism.org/career-corner

Published: November 29, 2021

Friday Favorites

This past Friday, we shared a special Black Friday edition of Jessica’s Friday Favorites…but we know the deals have been continuing all weekend. Check out the awesome products shared, and add your own suggestions to our recent Jessica’s Friday Favorites Post!

Let’s help make this gift-giving season easier for everyone.

Published: November 29, 2021

Wednesday: Young Adult Connections

December 1st at 9:00pm ET // 6:00pm PT

Young adults – you’re up next! Grab your computer, tablet, or phone, and get ready to join us for our next session of NOAH Connections. This is the perfect chance to relax and unwind with friends during the busy holiday season.

www.albinism.org/NOAH-Connections/#young-adults

Published: November 29, 2021

Thursday: Teen Connections

December 2nd at 8:00pm ET // 5:00pm PT

Teens, we know you were busy with Thanksgiving last week, so we rescheduled our Teen Connections call to this Thursday! Log on at 8:00pm ET // 5:00pm PT to let us know how your Thanksgiving was, fill us in on your upcoming holiday plans, and more.

www.albinism.org/NOAH-Connections/#teens

Published: November 29, 2021

Thursday: Grandparenting a Child with Albinism Workshop

December 2nd at 8:30pm ET // 5:30pm PT

NOAH Grandparents – join Sheila Adamo this Thursday to explore some typical emotions and fears many grandparents experience and discuss strategies to help the family adjust and thrive. 

Register by November 30th! 
www.albinism.org/workshops

Published: November 29, 2021

Thursday: Adult Connections

December 2nd at 9:00pm ET // 6:00pm PT

Adults with albinism, join us this Thursday at 9pm ET // 6pm PT to connect and relax with your NOAH friends! 

New to the group? There’s still time to join!
www.albinism.org/NOAH-Connections/#adults

Published: November 29, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: November 29, 2021

Thanks for Coming to NOAH Friendsgiving!

We had a blast at NOAH Friendsgiving yesterday! 

Special shoutout to our wonderful game and activity leaders, and everyone who attended this holiday celebration with the albinism community.

Published: November 22, 2021

Career Corner​​​​​​​

Dr. Hafeez Shaka is a Board Certified Internist and Illinois-Licensed Physician with albinism! 

Check out his story (or submit info about YOUR job or career) at: www.albinism.org/career-corner​​​​​​​

Published: November 22, 2021

i2i – Inquire to Inspire!​​​​​​​

It’s time for Inquire to Inspire. Here comes Kathi with an i2i!

Thanksgiving is this week and my most favorite holiday. I’ve always loved being in the kitchen cooking with my mom, at least until we start getting bossy with one another.

Let’s talk kitchen hacks! What tricks do you use to help you get the job done, or what helped you learn how to handle the swords and fire in the kitchen?

Join the conversation on our recent Facebook Post!​​​​​​​

Published: November 22, 2021

Adoption Stories: Morrow Family

FROM CONGO TO CHINA: AN ADOPTEE & ADOPTIVE DAD SHARES HIS STORY

“My story begins in a small village in Eastern Congo. My mother passed away while giving birth to me. And per the customs I was born into, my tribe blamed me for her death. Tradition determined I should be buried with my mother…”

Check out the Morrow Family’s full story at www.albinism.org/adoption-stories or submit your story to info@albinism.org to share with the community!​​​​​​​

Published: November 22, 2021

TODAY: Canadian Parents Education Session

November 22nd at 8:15pm ET // 5:15pm PT