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NOAH News Today

Northern Illinois NOAH Members Recognized for Valued Community Partnership!

We are thrilled to share that our NOAH friends in Northern Illinois recently had the honor of receiving Illinois Association for the Education and Rehabilitation of the Blind and Visually Impaired’s 2021 Community Partner Award.

Congratulations to all involved for this recognition!

Posted: February 23rd, 2021


Albinism in the News – Throwback!

Check out this inspiring article about NOAH Board member, Brandi Darby, and her journey to becoming the first blind female lifter to place at a USA Weightlifting National Competition in 2018. 

https://theshadowleague.com/black-girl-strength-brandi-darby-the-complexity-of-albino-excellence/

Posted: February 23rd, 2021


Podcasts by PWAs!

Check out this recent episode of Low Vision Moments, featuring NOAH community member and comedian, Dennis Hurley!

https://spoti.fi/3ububHS

Posted: February 23rd, 2021


FYI: AFB Study

​​Adults with low vision, AFB invites you to share your experiences with technology and accommodation in the workplace in their survey open now through February 28th.

For more information, visit: http://www.albinism.org/research/#afb

Posted: February 23rd, 2021


NOAH Events This Week

Check out the great opportunities to connect this week!

Tuesday: Aging with Albinism, The Challenges and Joys of Our Senior Years!

February 23rd at 4:00pm ET // 1:00pm PT

Join NOAH veteran June Waugh to connect, share and celebrate navigating life’s passages as adults with albinism.

http://www.albinism.org/NOAH-Connections/#aging

Posted: February 23rd, 2021


adult connections: hobbies

Thursday: Adult Connections – Hobbies

February 25th at 9:00pm ET // 6:00pm PT

Join us on Thursday to talk about hobbies! Whether you have many hobbies or are looking for something new to get into, this is a great chance to connect with the NOAH community!

www.albinism.org/NOAH-Connections/#adults-2-25​​​​​​​

Posted: February 23rd, 2021


Thursday: Parent Connections – Transitioning to College for Teens & Parents

February 25th at 9:00pm ET // 6:00pm PT

Parents of Teens, you won’t want to miss this!! Join Sue Dalton for an informative call about transitioning to college this Thursday.

Not a member? Enroll today!

http://www.albinism.org/parent-connections

Posted: February 23rd, 2021


Friday: Parenting Without Pigment

February 26th at 9:00pm ET // 6:00pm PT


Are you a PWA with kids? This is the perfect group for you! Join together with fellow parents without pigment to connect, discuss, share, and more! 

www.albinism.org/noah-connections/#parents-2-26 ​​​​​​​

Posted: February 23rd, 2021


Sunday: Military Families

February 28th at 8:30pm ET // 6:30pm PT


 Calling all Military Families! (active, reserve, retired)
Join us on Sunday to connect, share experiences, and discuss the challenges of being a military family navigating life with albinism.


www.albinism.org/NOAH-Connections/#military

Posted: February 23rd, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Thursday, March 4th
NOAH Connections: Teens

Parent Connections: Elementary Education and Albinism
NOAH Connections: Young Adults

Sunday, March 7th

NOAH Connections: Kids’ PWA Book Club

NOAH Connections: Writing About Albinism for Adults

Wednesday, March 10th
NOAH Connections: Coffee Chat – Let’s Talk About Fundraising

Friday, March 12th

Grandparent Connections: Overview of Services from Birth to Independence

Sunday, March 14th
NOAH Connections: Exploring the World of Accessible Technology Products for Low Vision Solutions with Stephen Ricci

Tuesday, March 16th

NOAH Connections: People With Albinism in the Legal Profession

Thursday, March 18th
NOAH Connections: Teens​​​​​​​
NOAH Connections: Young Adults

Sunday, March 21st

NOAH Connections: Coffee Chat – Let’s Talk About Fundraising!

Wednesday, March 24th

NOAH Connections: PWA Book Club

Posted: February 23rd, 2021


Thank You, Parent Liaisons!

An integral part of NOAH’s New Parent Program, parent liaisons are specially trained, on-call volunteers that serve as a point of contact for parents who are new to the albinism community through a recent diagnosis or adoption. Providing the perspective of someone who truly understands, our amazing volunteers are available to new parents as they embark on their albinism journey, and guide families through the many available NOAH resources.

Posted: February 15th, 2021



Share the NOAH Love NOAH Couples PWAs and their partners tell their stories to help us #ShareTheNOAHLove

NOAH Couples Share Their Love!

Join us as we celebrate love & albinism in the month of February! We invite you to read the stories of PWAs and their partners at www.albinism.org/NOAH-Couples, and submit your story to NOAHCouples@albinism.org

Posted: February 15th, 2021


Interview with Reverend Jesse Douglas

​​Want to learn more about Rev Jesse Douglas? Check out this interview where he discusses his experiences marching with Martin Luther King Jr.

CW: historical photos/videos that depict violence against Black people

Posted: February 15th, 2021


NOAH Events This Week

Check out the great opportunities to connect this week!

Monday: NOAH Connections Coffee Chat!

February 15th at 1:00pm ET // 10:00am PT

See you this afternoon for the next NOAH Connections Coffee Chat! Join NOAH staff on Zoom to share your voice, or simply join us for some social time.

There’s still time to sign up: www.albinism.org/NOAH-Connections/#coffee-2-15

Posted: February 15th, 2021


Thursday: Teen NOAH Connections

February 18th at 8:00pm ET // 5:00pm PT

NOAH Teens, join special guest hosts Mackenzie Strong and Casey Greer to talk about overcoming challenges!

www.albinism.org/NOAH-Connections/#teens-2-18​​​​​​​

Posted: February 15th, 2021


Thursday: Young Adult NOAH Connections

February 18th at 9:15pm ET // 6:15pm PT

Young Adults, join us for our next session to discuss family dynamics with albinism. This is a great chance to share our experiences and connect with fellow PWAs!

www.albinism.org/NOAH-Connections/#ya-2-18​​​​​​​

Posted: February 15th, 2021


Saturday: BIPOC NOAH Connections

February 20th at 5:00pm ET / 2:00pm PT

We hope you’ll join us on Saturday for BIPOC Connections! This gathering, facilitated by Brandi Green and Natalie Devoramonifa, is intended for adults with albinism who identify as Black, Indigenous, People of Color (BIPOC).

www.albinism.org/NOAH-Connections/#BIPOC-2-20

Posted: February 15th, 2021


Sunday: Ask the Doctors – Doctors with Albinism

February 21st at 5:00pm ET // 2:00pm PT

Join Drs. Bob Gabbay and Megan Duffey and medical student Silpa Tadavarthy to hear about becoming a doctor with albinism!​​​​​​​

Please note: medical advice will not be provided during this session

www.albinism.org/NOAH-Connections/#doctors

Posted: February 15th, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect

Tuesday, February 23rd
NOAH Connections: Aging with Albinism

Thursday, February 25th

Parent Connections: Transitioning to College for Teens and Parents

NOAH Connections: Adult Connections – Hobbies

Friday, February 26th

NOAH Connections: Parenting Without Pigment

Sunday, February 28th

NOAH Connections: Positively Unique – Celebrating What Makes us Rare

K – 5 ~ Grades 6-8 ~ Teens
NOAH Connections: Military Families

Thursday, March 4th

Parent Connections: Elementary Education and Albinism

Sunday, March 7th

NOAH Connections: Kids’ PWA Book Club

NOAH Connections: Writing About Albinism for Adults

Friday, March 12th

Grandparent Connections: Overview of Services from Birth to Independence

Tuesday, March 16th

NOAH Connections: People With Albinism in the Legal Profession

Thursday, March 18th

Parent Connections: Early Intervention – Preschool & Albinism

Wednesday, March 24th

NOAH Connections: PWA Book Club

Posted: February 15th, 2021


Black History Month

“We must never forget that Black History is American History” – Yvette Clarke, U.S. Congresswoman 🇺🇸


This Black History Month, we invite our Black community members to share their experiences. How do you celebrate or observe Black History Month?

Share your experiences on our recent Facebook post!

Posted: February 8th, 2021


NOAH Connections Aging with Albinism The Challenges and Joys of Our Senior Years

Announcing! NOAH Connections: Aging with Albinism
The Challenges and Joys of Our Senior Years – Hosted by June Waugh

Tuesday, February 23rd ~ 4:00pm ET / 1:00pm PT

Join us to discuss the challenges and joys of our senior years as adults with albinism. Together we’ll connect with others, share, renew old friendships, celebrate, and acknowledge how albinism continues to be an integral part of our lives.

​​​​​​​Sign Up Now:

https://app.donorview.com/w7yyl

Posted: February 8th, 2021


Announcing: Writing About Albinism for Adults!

Sunday, March 7th at 4:00pm ET / 1:00pm PT

Back by popular demand, Hana Schank presents Writing About Albinism, a complimentary NOAH Connections workshop for adults! 

Sign up today: 

www.albinism.org/NOAH-Connections/#writing-workshop​​​​​​

Posted: February 8th, 2021


Announcing! Albinism in the Legal Profession

Hosted by Arielle Lewis and Katy Carroll

Tuesday, March 16th at 8:30pm ET

Calling all law students, lawyers, judges, and paralegals with albinism – join with fellow PWAs in the legal profession for a NOAH Connections social time just for you.

Note: This is a social time for people with albinism in the legal profession – legal advice will not be provided. 

Sign up today!www.albinism.org/NOAH-Connections/#legal

Posted: February 8th, 2021


NOAH Events This Week

Check out the great opportunities to connect this week!

Tuesday: Preschool NOAH Connections – Friendship Day

February 9th at 12:00pm ET // 9:00am PT

NOAH Preschoolers, are you ready for Preschool NOAH Connections – Friendship Day? We’ll read “Pete the Cat – Valentine’s Day is Cool,” make a valentine, and share the love with our NOAH friends!

Don’t miss out – sign up today! www.albinism.org/NOAH-Connections/#preschool-2-9

Posted: February 8th, 2021


Thursday: Parent Connections – Parenting Teens with Albinism

February 11th at 9:00 pm ET // 6:00 pm PT

Parents of teens w/ albinism, our next Parent Connections call is just for you!! Join us this Thursday for Parenting Teens with Albinism with Sheila Adamo. 


Not a member of Parent Connections? Join today! www.albinism.org/parent-connections

Posted: February 8th, 2021


Thursday: Adult NOAH Connections

February 11th at 9pm ET // 6pm PT

Join Casey Greer for a casual get-together with fellow PWAs. New to NOAH? This relaxed gathering is a great chance to connect from the comfort of your home!

Sign up for Adult NOAH Connections now! www.albinism.org/NOAH-Connections/#adults-2-11​​​​​​​

Posted: February 8th, 2021


Saturday: NOAH Kids – Show Your Love for Albinism

A discussion and coloring session with Marleena Barber

February 13th at 1:00pm ET / 10:00am PT

NOAH Kids – join Marleena to discuss what YOU love about albinism, and color together with your NOAH friends (downloadable coloring page coming soon). See you there!

Sign up now: www.albinism.org/NOAH-Connections/#love

Posted: February 8th, 2021


Saturday: Dating with Albinism

A panel discussion hosted by Rebecca & Nick Smith

February 13th at 3:00pm ET // 12:00pm PT

Join us for an open discussion about dating with albinism from a variety of perspectives, experiences and backgrounds. Singles and couples will be represented.

Participation link will be sent to members of Adult NOAH Connections and Young Adult NOAH Connections. Not a member? Use the links to join.​​​​​​​

Posted: February 8th, 2021


Save the Date!
Mark your calendars for these upcoming opportunities to connect!

Monday, February 15th NOAH Connections: Coffee Chat​​​​​​​

Thursday, February 18th NOAH Connections: TeensNOAH Connections: Young Adults

Saturday, February 20th NOAH Connections: BIPOC Connections

Sunday, February 21st NOAH Connections: Ask the Doctors – Doctors with Albinism

Tuesday, February 23rd NOAH Connections: Aging with Albinism

Thursday, February 25th
Parent Connections: Transitioning to College for Teens and
Parents
NOAH Connections: Adult Connections – Hobbies

Friday, February 26th NOAH Connections: Parenting Without Pigment
Sunday, February 28th NOAH Connections: Positively Unique – Celebrating What Makes us RareK – 5 ~ Grades 6-8 ~ Teens

Posted: February 8th, 2021


2021 McGowan Leadership Scholarship Applications Now Open!

The Michael J. McGowan Leadership Scholarship Award aims to empower young PWAs by annually recognizing one NOAH member (enrolled in an undergraduate program) who demonstrates outstanding leadership qualities. 


Do you know a young leader in the albinism community? Encourage them to apply by May 1st!


For more information, visit: www.albinism.org/leadership

Posted: February 1st, 2021


Thank You, Kathi!

Special thanks to Kathi Garza for sharing her time and talents with NOAH again this past weekend in the Valentine’s edition of Cookies with Kathi. We had a wonderful time decorating cookies with you!​​​​​​​

Did you attend Cookies with Kathi? Be sure to tag NOAH on social media when you share your pictures!

Posted: February 1st, 2012


Albinism in the News!

Have you seen this Newsday story featuring NOAH Junior Advisory Council Member and past McGowan Leadership Scholarship Recipient, Elizabeth Schafer? You’re an inspiration, Liz! 

https://www.newsday.com/long-island/splashes-of-hope-continues-mission-to-lift-spirits-during-pandemic-1.50131708?​​​​​​​

Posted: February 1, 2021


Announcing! Preschool NOAH Connections – Friendship Day

Tuesday, February 9th at 12:00pm ET // 9:00am PT

NOAH Preschoolers, we can’t wait to see your smiling faces for our next session of Preschool NOAH Connections – Friendship Day! We’ll read “Pete the Cat – Valentine’s Day is Cool,” make a valentine, and share the love with our NOAH friends!

Don’t miss out – sign up today! www.albinism.org/NOAH-Connections/#preschool-2-9

Posted: February 1, 2021


NOAH Events This Week

Check out the great opportunities to connect this week!

Thursday: Teens – Let’s Talk About College!

February 4th at 8:00 pm ET // 5:00 pm PT

We hope you’ll join us for our next session of Teen NOAH Connections this Thursday, Feb. 4th at 8pm ET to discuss college.


Not a member? Join today! www.albinism.org/NOAH-Connections/#teens-2-4

Posted: February 1, 2021


Thursday: Young Adults – Awkward Moments with Albinism!

February 4th at 9:15 pm ET //6:15 pm PT

Young Adults, we can’t wait to see you this Thursday at 9:15pm ET to share stories about awkward moments with albinism. This will be the perfect chance to share a laugh with other PWAs who just get it!

Not a member? Join today! www.albinism.org/NOAH-Connections/#ya-2-4

Posted: February 1, 2021


Sunday: NOAH Kids’ PWA Book Club!

February 7th at 3pm ET // 12pm PT

It’s almost time for the first meeting of the NOAH Kids’ PWA Book Club!  Award-winning author (and parent of a daughter with albinism) Beth Vrabel and Certified Teacher of Students with Visual Impairments, Kathi Garza,  are ready for the official kick-off of the NOAH Kids’ PWA Book Club Sunday! 

No need to read before joining – we will discuss “A Blind Guide to Stinkville” when we meet for our second session on March 7th! NOAH Kids’ PWA Book club is recommended for NOAH Kids Grades 5-8. 

Register Today!www.albinism.org/NOAH-Connections/#book-club

Posted: February 1, 2021


Save the Date!

Mark your calendars for these upcoming opportunities to connect!

Parent Connections: Parenting Teens with Albinism

Thursday, February 11th at 9:00pm ET // 6:00pm PT

NOAH Connections: Dating with Albinism

Saturday, February 13th at 3:00pm ET // 12:00pm PT.

NOAH ConnectionsCoffee Chat 
Monday, February 15th at 1:00 pm ET / 10:00am PT

NOAH Connections: BIPOC Connections
Saturday, February 20th at 5:00pm ET // 2:00pm PT

NOAH Connections: Ask the Doctors – Doctors with Albinism

Sunday, February 21st at 5:00pm ET // 2:00pm PT

NOAH Connections: Aging with Albinism

Tuesday, February 23rd at 4:00pm ET // 1:00pm PT

Parent Connections: Transitioning to College for Teens and Parents

Thursday, February 25th at 9:00pm ET // 6:00pm PT

NOAH Connections: Positively Unique – Celebrating What Makes us Rare

Sunday, February 28th

K – 5 at 2:00pm ET // 11:00am PT

Grades 6-8 at 3:00pm ET // 12:00pm PT

Teens at 4:00pm ET // 1:00pm PT

Posted: February 1, 2021


Take a moment to stop by and have a look at the newly refreshed NOAH website! And while you’re there, be sure to check out the many upcoming opportunities to connect, as well as the new “Share with NOAH” form – think of it as a virtual suggestion box! We look forward to hearing from you! 

Posted: January 25th, 2021


What’s YOUR Superpower?

The albinism community needs your talents and your expertise for NOAH Connections! Check out this awesome video calling NOAH Superheroes to action: 

Ready to share your superpower? Answer the call at www.albinism.org/noah-connections

​​​​​​​
Video credit to the amazing and talented Sophie Ostrove, longtime NOAH member and student at the Tisch School of the Arts at NYU.

Posted: January 25th, 2021


Announcing NOAH Kids’ PWA Book Club!

Sunday, February 7th at 3pm ET // 12pm PT

Kids grades 5-8, join award-winning author (and parent of a daughter with albinism) Beth Vrabel and Certified Teacher of Students with Visual Impairments, Kathi Garza, for our first meeting and official kick-off of the NOAH Kids’ PWA Book Club. 

At our initial meeting, Kathi will introduce the first book we’ll be reading, “A Blind Guide to Stinkville” by Beth Vrabel, and Beth will provide some background on the story and read us an excerpt. No need to read the book before joining – we will discuss “A Blind Guide to Stinkville” when we meet for our second session on March 7th!

Register Today!www.albinism.org/NOAH-Connections/#book-club

Posted: January 25th, 2021


Announcing! NOAH Connections: Dating with Albinism

Join hosts Rebecca & Nick Smith for this #SharetheNOAHLove NOAH Connections panel about dating with albinism on Saturday, February 13th at 3:00 pm ET / 12:00 pm PT

Participation link will be sent to members of Adult NOAH Connections and Young Adult NOAH Connections. 

Not a member of NOAH Connections? There’s still time to sign-up to participate!

Join Adult NOAH Connections:

https://app.donorview.com/w7vjb

Join Young Adult NOAH Connections:

https://app.donorview.com/o4p07

Posted: January 25th, 2021


REMINDER: Check Your Facebook Settings to Keep NOAH in your News Feed! 


With evolving social media algorithms and notification options, we encourage our followers to take a few minutes to review their NOAH Facebook Page settings, so they don’t miss out on the latest news and information relevant to the community! Start by clicking the Like button, then click on the 3 dots on the top right to customize your Follow settings. Choose how you’ll see posts from NOAH in your News Feed, and what types of posts you want to be notified about. 

Posted: January 25th, 2021


Thank You Jennifer Renée, Diandra, Mira and Hana!

Special thanks to our awesome NOAH Connections Hosts this past weekend! Thank you, Jennifer Renée and Diandra Forrest, for hosting New Year, New Look: Makeup Fun in 2021 on Saturday, and thank you, Mira Shaklan and Hana Schank for hosting Writing About Albinism for NOAH Tweens and Teens on Sunday. 

Your generosity in sharing your time and talent with the NOAH community is truly appreciated! ​​​​​​​

Posted: January 25th, 2021


NOAH Events This Week

Check out the great opportunities to connect this week!

Parents without Pigment, Share Your Tips & Tricks!

Friday January 29th 9:00 pm ET / 6:00 pm PT

Whether you’re a brand new parent or have kids who are in college or beyond, you won’t want to miss the next session of Parenting without Pigment! Led by Marleena and Ali, we’ll share our best parenting tips and tricks. See you on Zoom!

Sign up now: www.albinism.org/NOAH-Connections/#parents-1-29

Posted: January 25th, 2021


It Would be “Crumby” to Miss Cookies with Kathi – Valentine’s edition!

Back by popular demand, Kathi is once again generously sharing her skills with NOAH for this Valentine’s cookie decorating fundraiser. Join us for one of two sessions on Sunday, January 31stFriends of NOAH at 2:00pm ET or Adults with Low Vision at 4:00pm ET.

In order to #ShareTheNOAHLove and make this Valentine’s cookie decorating class accessible to as many people as possible, a donation of any size grants access to Cookies with Kathi (suggested donation $10 per person). Be sure to invite your friends!

Sign up for Cookies with Kathi Now!

Posted: January 25th, 2021


Save the Date!

Mark your calendars for these upcoming NOAH gatherings and teleconferences:

NOAH Connections: 

Teens: Let’s Talk About College!

Thursday, February 4th at 8:00 pm ET // 5:00 pm PT

NOAH Connections

Young Adults: Awkward Moments with Albinism!

Thursday, February 4th at 9:15 pm ET //6:15 pm PT

NOAH Connections: 
Kids’ Book Club (Grades 5-8)

with author Beth Vrabel & educator Kathi Garza

Sunday, February 7th at 3:00pm ET // 12:00pm PT

Parent Connections:

Parenting Teens with Albinism

Thursday, February 11th at 9:00pm ET // 6:00pm PT

NOAH Connections:

Dating with Albinism

Saturday, February 13th at 5:00 pm ET /// 2:00 pm PT

NOAH Connections:

Coffee Chat 
Monday, February 15th at 5:00 pm ET / 2:00 pm PT

NOAH Connections:

BIPOC Connections
Saturday, February 20th at 5:00pm ET // 2:00pm PT

NOAH Connections:

Ask the Doctors – Doctors with Albinism

Sunday, February 21st at 5:00pm ET // 2:00pm PT

NOAH Connections:

Positively Unique – Celebrating What Makes us Rare

Sunday, February 28th

K – 5 at 2:00pm ET // 11:00am PT

Grades 6-8 at 3:00pm ET // 12:00pm PT

Teens at 4:00pm ET // 1:00pm PT

Posted: January 25th, 2021


Martin Luther King Jr. Day

In observance of Martin Luther King Jr. Day, we share this photo captured at a march in Selma, Alabama in 1965 that features Dr. King alongside colleague and personal friend with albinism, Rev. Jesse L. Douglas. #AlbinismInHistory #MLKDay

Posted: January 19th, 2021


Keep NOAH in your News Feed! 


With evolving social media algorithms and notification options, we encourage our followers to take a few minutes to review their NOAH Facebook Page settings, so they don’t miss out on the latest news and information relevant to the community! Start by clicking the Like button, then click on the 3 dots on the top right to customize your Follow settings. Choose how you’ll see posts from NOAH in your News Feed, and what types of posts you want to be notified about. 

Posted: January 19th, 2021


Announcing Cookies with Kathi – Valentine’s edition!

Back by popular demand, Kathi is generously sharing her skills with NOAH again in this Valentine’s cookie decorating fundraiser. Join us for one of two sessions on Sunday, January 31stFriends of NOAH at 2:00pm ET or Adults with Low Vision at 4:00pm ET.

In order to spread the love and make this Valentine’s cookie decorating class accessible to as many people as possible, a donation of any size grants access to Cookies with Kathi (suggested donation $10 per person). Be sure to invite your friends!

Sign up for Cookies with Kathi Now!

Posted: January 19th, 2021


NOAH Events This Week!

Check out the great opportunities to connect this week!

TODAY! NOAH Connections Coffee Chat

​​​​​​​Monday, January 18th

5:00pm ET // 4:00pm CT // 3:00pm MT // 2:00pm PT

Coffee Chats are an open invitation to have coffee with NOAH staff on Zoom. Share your thoughts on NOAH programming, share your voice, or simply join us for some social time.

Join NOAH Connections Coffee Chat!

Sign up for NOAH Connections Coffee Chat today, and we’ll automatically subscribe you to email reminders for future opportunities to connect.

Posted: January 19th, 2021


Thursday! Teen NOAH Connections
Bring a Friend with Albinism

​​​​​​Thursday, January 21st

8:00pm ET //7:00pm CT // 6:00pm MT // 5:00pm PT

NOAH Teens, get ready for our first social NOAH Connections of 2021! Lead by our call host, Aidan O’Connor, we’ll connect with friends new and old. Let’s kick-off the new year with a bang – invite a friend with albinism to sign up and join in the fun. See you on Zoom!

Sign up for Teen NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Teen NOAH Connections!

Posted: January 19th, 2021


Thursday! Young Adult NOAH Connections

​​​​​​Thursday, January 21st

9:15pm ET // 8:15pm CT // 7:15pm MT // 6:15pm PT

Young Adults, we are so excited for our first session of the new year, facilitated by Aidan O’Connor! We hope you’ll join us for casual discussion about socializing and dating with albinism, as we connect with friends new and old. We can’t wait to “see” you on Zoom!

Sign up for Young Adult NOAH Connections today for info on how to join this session, and we’ll automatically subscribe you to email reminders for future opportunities to connect!

Join Young Adult NOAH Connections!

Posted: January 19th, 2021


Friday! Parent Connections – Parenting a Young Child with Albinism

Friday, January 22nd
1:00PM ET // 12:00PM CT // 11:00AM MT // 10:00AM PT

Parents of young children – you won’t want to miss this informative call that will focus on the journey that parents take while adapting to the diagnosis of albinism in their child. Join Parent Connections today for the opportunity to be part of a community that will support you and provide a path for you and your child.  We will discuss adapting to the diagnosis of albinism and provide a space to deal with questions and concerns that may have arisen.  

Note: You must be a member of the Parent Connections program to participate in Parent Connections Calls. Not a member? It’s easy to join! Learn more or join now!

Posted: January 19th, 2021


Saturday! Makeup Fun in 2021 – New Year New Look!
With Beauty Influencer, Jennifer Renée & Model and Actress, Diandra Forrest.

Saturday, January 23rd
4:00pm ET // 3:00pm CT // 2:00pm MT // 1:00pm PT

People with albinism ages 16+, you’re invited to a special NOAH Connections makeup tutorial featuring Jennifer Renée and Diandra Forrest. Tune in for special tips and tricks just for PWAs, Jennifer’s personal recommendations for makeup brands and products, and fun suggestions for changing up your look in the new year!

Sign Up for Makeup Fun in 2021!

Posted: January 19th, 2021


Sunday! NOAH Connections – Writing About Albinism

Sunday, January 24th
4:00pm ET // 3:00pm CT // 2:00pm MT // 1:00pm PT

NOAH teens & tweens, you won’t want to miss this complimentary writing workshop featuring author Hana Schank and her daughter, Mira Shaklan. In this one-hour workshop, NOAH members Hana Schank and her daughter Mira Shaklan will share what they both know about writing, and specifically writing about albinism. 

Sign up today!

Posted: January 19th, 2021


Save the Date!

Mark your calendars for these upcoming NOAH gatherings and teleconferences:

NOAH Connections: 
Parenting without Pigment – Tips and Tricks 

with Marleena Barber & Ali Adema

Friday, January 29th at 9:00pm ET // 6:00pm PM

NOAH Connections: 
Kids’ Book Club (Grades 5-8)

with author Beth Vrabel & educator Kathi Garza

Sunday, February 7th at 3:00pm ET // 12:00pm PT

Parent Connections:

Parenting Teens with Albinism

Thursday, February 11th at 9:00pm ET // 6:00pm PT

NOAH Connections:

BIPOC Connections
Saturday, February 20th at 5:00pm ET // 2:00pm PT

NOAH Connections:

Ask the Doctors – Doctors with Albinism

Sunday, February 21st at 5:00pm ET // 2:00pm PT

Posted: January 19th, 2020


Have You Read the Winter Issue of Albinism InSight? 


The most recent issue of NOAH’s quarterly magazine features articles about:
– PWAs who use mobility aids to live more independent lives. 
– Celebrating ourselves as we are
– Celebrating different cultural background of PWAs
– And much more!!


You don’t want to miss this exciting issue – learn more, subscribe, or get your copy today at www.albinism.org/AI

Posted: January 13th, 2021


NOAH Connections Update

Writing About Albinism Sunday January 24, 2021

NOAH Tweens & Teens, There’s Still Time to Sign Up for “Writing About Albinism”

​​​​Date Change! Sunday, January 24th

4:00pm ET // 3:00pm CT // 2:00pm MT // 1:00pm PT

Writing about the personal experience of living with albinism is a story only you can tell. Hana Schank and her daughter Mira Shaklan will help you tell that story as they share what they both know about writing, and specifically writing about albinism. In the workshop we will discuss different types of writing, including various types of fiction, personal essays, opinion essays, and journaling.

Learn more or register now!

Posted: January 13th, 2021


NEW! Teens & Young Adults

NOAH teens & young adults, get ready for our first NOAH Connections of 2021! See you Thursday, January 21st for a chance to catch up and chat with NOAH friends.

Teens, join us at 8:00pm ET for Bring a Friend with Albinism week! We’ll start off the new year making some new friends and catching up with the old as we chat, relax, and play games. 

Young Adults, be there at 9:15pm ET. This week’s topic will be socializing and dating with albinism. 

New to the community? The first call of the new year is the perfect chance to join in for your first time! Join NOAH Connections today at www.albinism.org/NOAH-Connections

Posted: January 13th, 2021


Save the Date!

Mark your calendars for these exciting, upcoming NOAH Connections gatherings:

Makeup Fun in 2021 – New Year New Look

with Beauty Influencer, Jennifer Renée & Model and Actress, Diandra Forrest

Saturday, January 23rd – time TBA

More info coming soon!

Parenting without Pigment – Tips and Tricks 

with Marleena Barber & Ali Adema

Friday, January 29th at 9:00pm ET // 6:00pm PM

Kids’ Book Club (Grades 5-8)
Sunday, February 7th at 3:00pm ET // 12:00pm PT

More info coming soon!

Ask the Doctors – Doctors with Albinism

Sunday, February 21st at 5:00pm ET // 2:00pm PT

Posted: January 13th 2021


Parent & Grandparent Connections Update

Last Chance – Sign Up Now to Join Us for “Building Family Resilience” Tonight!

If you aren’t a member of Parent Connections, join now for info on how to attend tonight’s teleconference, “Building Family Resilience” with Sheila Adamo, L.C.S.W, C.A.D.C. at 9:00pm ET // 6:00pm PT. This informative call will give parents the chance to connect with others, while gaining tools to increase resilience for themselves and their families. 

Join Parent Connections today!

Posted: January 13th, 2021


Join Grandparent Connections today!

The next teleconference for Grandparent Connections is this Friday…which means the’re still time to join! Sign up for Grandparent Connections today, and you’ll be invited to join us for “Connecting via the Internet” this Friday, January 15th at 1:00pm ET // 10:00am PT. 

Posted: January 13th, 2021


FYI: Free Online Yoga for the NOAH Community in January!

Other News

Did you know that NOAH Interim Executive Director Diana McCown is also a yoga instructor? And her yoga studio is offering free online yoga classes to the NOAH community for the month of January! 

Take a look at the class schedule at https://www.willowstreetyoga.com/online-classes/, and if you’re interested, sign up with NOAH to receive the code for free yoga classes: https://app.donorview.com/8WqPb

Posted: January 13th, 2021


Happy New Year! 

NOAH wishes you and your loved ones a happy and healthy new year. We look forward to connecting with you in 2021!

Posted: January 10th, 2020


Opinion Writing Workshop Postponed to Late Spring

Opinion Writing WorkshopPostponed to Late Spring

Join author Hana Schank for a special 90-minute Opinion Writing Workshop. This incredible opportunity is open to the general public – spread the word! Special rates for NOAH members!

Learn more or sign-up today at: https://www.albinism.org/NOAH-workshops/

Posted: January 10th, 2020


NOAH Connections Update

Educating Others About Albinism

We can’t wait for another special session with Jocelyn, this time focusing on educating others about albinism! NOAH kids & teens, we hope you’ll join us on Sunday, January 10th to discuss strategies and explanations that you can use in your everyday life when talking about albinism. We’ll connect and share feelings while working together to make a resource that you can share with your classmates and peers!

“Educating Others About Albinism” 
Sunday, January 10th

Grades K-5 @ 2:00pm ET

Grades 6-8  @ 3:00pm ET

Teens @ 4:00pm ET

Not signed up for NOAH Connections yet? There’s still time! Select the correct age group above for more info on this session and how to join today!

Posted: January 10th, 2020


Writing About Albinism Sunday January 24, 2021

You’re Invited to “Writing About Albinism”

A complimentary NOAH Connections workshop for NOAH tweens & teens​​​​​

New Date! Sunday, January 24th

4:00pm ET // 3:00pm CT // 2:00pm MT // 1:00pm PT

We’re so excited about this special NOAH Connections writing workshop for tweens and teens featuring NOAH members Hana Schank and her daughter Mira Shaklan! Workshop participants will have the opportunity to write and share their work.

Learn more or register now!

Posted: January 10th, 2020


Parent & Grandparent Connections Update

Calling All Parents & Grandparents!


Did you know that NOAH offers opportunities to learn and connect for parents & grandparents too? Sign up for Parent Connections or Grandparent Connections today and join us for one of our upcoming teleconferences:

Parent Connections – Monday, January 11th:

Building Family Resilience

Grandparent Connections – Friday, January 15th:

Connecting via the Internet

Join Parent Connections today!

Join Grandparent Connections today!​​​​​​​

Posted: January 10th, 2020


Other News

FYI: Free Online Yoga for the NOAH Community in January!

Did you know that NOAH Interim Executive Director Diana McCown is also a yoga instructor? And her yoga studio is offering free online yoga classes to the NOAH community for the month of January! 

Take a look at the class schedule at https://www.willowstreetyoga.com/online-classes/, and if you’re interested, sign up with NOAH to receive the code for free yoga classes: https://app.donorview.com/8WqPb

Posted: January 10th, 2020