NOAH News

Parent Liaison Openings

NOAH Parent Liaisons guide parents of newly diagnosed children with albinism through the many resources NOAH has to offer and provide the opportunity to speak directly to a parent of a child with albinism who truly understands. If you are interested in learning more and sharing your experiences as a parent of a child with albinism, please complete the NOAH Parent Liaison Volunteer Interest Form to begin the process.

To be considered for limited Parent Liaison openings in the next training cycle, complete the interest form by February 1st.

https://app.donorview.com/ljy6V

Published: January 24, 2021

Book Your Room Today!

Rooms are still available in the NOAHCon 2022 conference attendee room block. ​​Book your room now to secure special, discounted rates just for the NOAH community.

www.albinism.org/NOAHCon

Published: January 24, 2021

PWA Book Club!

PWAs who love to read, you’re invited to join NOAH’s Book Club! Read “Night” by Elie Wiesel, and join us to discuss on Wednesday, February 2nd. 

Sign up today! www.albinism.org/NOAH-Connections/#pwa-book-club

Published: January 24, 2021

Calling All Middle Grade Kids with Albinism!

You’re invited to join the new NOAH Kids’ Book Club! 

Fill out the book club survey so we can plan for our meeting times, and stay tuned to find out the first book we’ll be reading together! 

https://forms.gle/7fo45YbArroGTStp6

Published: January 24, 2021

Inquire to Inspire!

Did you see Kathi’s most recent i2i? Check it out and join in the conversation on our recent Facebook post:

Hey everyone! With the wintery weather, I’m betting we’re all doing a lot of binge watching. Relaxing in front of the tv this weekend led me to inquire about how my PWA pals access their favorite shows. Inspire me with how you like to watch your weekly favorites. Do you use devices or descriptive audio on the tv or watch on a hand-held device? ​​​​​​​

Wednesday: Young Adult Connections

January 26th at 9:00pm ET // 6:00pm PT

Young adults, you’re up next! Grab your computer, tablet, or phone and get ready to join us on Zoom.

New to the group? There’s still time to sign up:​​​​​​​

www.albinism.org/NOAH-Connections/#young-adults

Published: January 24, 2021

Thursday: Adult Connections

January 27th at 9:00pm ET // 6:00pm PT

Adult PWAs, join us this Thursday for our next session of Young Adult Connections! Will we “see” you there?

www.albinism.org/NOAH-Connections/#adults​​​​​​​

Published: January 24, 2021

Sunday: Walt Disney World Theme Park Planning

January 30th at 4:00pm ET // 1:00pm PT

Planning to come to NOAHCon2022 and want to visit Walt Disney World Theme Parks during your trip? 

Join Nick Smith, Sunday, January 30th at 4pm ET to share tips, tricks, and planning ideas!

www.albinism.org/NOAH-Connections/#disney

Published: January 24, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: January 24, 2021

Martin Luther King Jr. Day

In observance of Martin Luther King Jr. Day, we share this interview with Rev. Jesse Douglas Sr., an African American PWA who was a colleague and personal friend of Rev. King.

https://www.youtube.com/watch?v=M8YLSeg9LmA

Published: January 17, 2021

Community Members:

Do you have a presentation in mind you’d like to give at NOAHCon? Would you like to provide information, share your skills or hobbies, or provide knowledge to the NOAH community on a specific topic? 

NOAH would love to hear your ideas! 

Click here to submit a Community Session Presentation Proposal

Deadline: Tuesday February 1, 2022 at 5pm ET

Published: January 17, 2021

Professionals:

Do you have information to share with members of the albinism community? Would you like the opportunity to provide the NOAH community with knowledge and/or resources that are relevant to people with albinism and their loved ones?​​​​​​​

NOAH welcomes your proposal for session or poster presentation.

Click here to submit a (Scientific) Session or Poster Presentation Proposal.

Deadline: Tuesday February 1, 2022 at 5pm ET

Published: January 17, 2021

Deadline Extended!

Submitting an article is a great way to share your knowledge and experience with the albinism community, and there’s still time to contribute to the Spring Issue of Albinism InSight! 

Deadline extended – submissions due Monday, January 24th.

More info: www.albinism.org/AI/call-for-content

Published: January 17, 2021

Parent Liaison Openings

NOAH Parent Liaisons guide parents of newly diagnosed children with albinism through the many resources NOAH has to offer and provide the opportunity to speak directly to a parent of a child with albinism who truly understands.

If you are interested in learning more and sharing your experiences as a parent of a child with albinism, please complete the NOAH Parent Liaison Volunteer Interest Form to begin the process. To be considered for limited Parent Liaison openings in the next training cycle, complete the interest form by February 1st.

https://app.donorview.com/ljy6V

Published: January 17, 2021

Calling All Middle Grade Kids with Albinism!

You’re invited to join the new NOAH Kids’ Book Club! 

Fill out the book club survey so we can plan for our meeting times, and stay tuned to find out the first book we’ll be reading together! 

https://forms.gle/7fo45YbArroGTStp6

Published: January 17, 2021

Tuesday: Aging with Albinism

January 18th at 5:00pm ET // 2:00pm PT

You’re invited to Aging with Albinism: Self-Disclosure, tomorrow at 5pm ET // 2pm PT. 

How do you decide how much to share about your life with Albinism – the positives and/or the negatives? Join us for a lively discussion!

www.albinism.org/NOAH-Connections/#aging

Published: January 17, 2021

Tuesday: Parenting without Pigment

January 18th at 9:00pm ET // 6:00pm PT

Calling All Parents without Pigment – NOAH Connections: Parenting without Pigment is back.

Join Kathi Garza on Tuesday for a fun game of Never Have I Ever, Parenting without Pigment edition!

New to the group? Sign up now:
www.albinism.org/NOAH-Connections/#pwp

Published: January 17, 2021

Thursday: Teen Connections

January 20th at 8:00pm ET // 5:00pm PT

NOAH teens, join us for our next teen connections call! 

New to the group? There’s still time to sign up!

www.albinism.org/NOAH-Connections/#teens

Published: January 17, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: January 17, 2021

Announcing…the NOAHCon2022 Theme!

Check out our recent conference theme announcement & the latest conference information at www.albinism.org/NOAHCon

Published: January 10, 2021

Conference Hotel Room Block is Now Open!

Orlando, here we come!!

​​​​The conference attendee room block is now open for NOAHCon2022! Book your room now to secure special, discounted rates just for the NOAH community.

www.albinism.org/NOAHCon

Published: January 10, 2021

NOAH Text Alerts

Have you signed up for NOAH texts? Let us know if our call reminders are reaching you! 

Not signed up yet but want a text reminder for your favorite NOAH Connections calls?

Sign up now! https://app.donorview.com/Wb7R7

Published: January 10, 2021

Make New Connections in the New Year!

Have you heard about our upcoming NOAH Connections calls? We hope you’ll join us for one of our many upcoming opportunities to connect including NOAH Connections calls for BIPOC, LBGTQ+ and Allies, Parenting without Pigment, and more!

Check out the full schedule at www.albinism.org/NOAH-Connections

Published: January 10, 2021

TONIGHT: Career Corner

January 10th at 8:00pm ET // 5:00pm PT

Join us TONIGHT at 8pm ET for a NOAH Connections Career Corner Panel!  Panelists Kathi Garza, Nick Smith, Claire Sterling, and Marshall Cohen will share information about their careers, and answer participant questions about being a PWA in their respective fields.

All are welcome, so spread the word, and sign up today!
www.albinism.org/NOAH-Connections/#career-corner

Published: January 10, 2021

Tuesday: NOAH Kids – Create an Empower Flower

January 11th at 8:00pm ET // 5:00pm PT

NOAH kids, join Casey & Marleena this Tuesday at 8pm ET // 5pm PT to create your very own “Empower Flower” of affirmations and motivations to start the New Year.

Sign up today!
www.albinism.org/NOAH-Connections/#empower

Published: January 10, 2021

Tuesday: Word of the Year!

January 11th at 9:00pm ET // 6:00pm PT

Are you looking for some extra motivation as you head into 2022?

Join Casey Greer and Marleena Barber this Tuesday for a guided session in choosing a “Word of the Year.” Your WOTY will represent what you want to be, feel, do, and bring into your life for the coming year. 

Open to adults and young adults with albinism!
Sign up now: www.albinism.org/NOAH-Connections/#word

Published: January 10, 2021

Wednesday: Young Adult Connections

January 12th at 9:00pm ET // 6:00pm PT

Young adults, you’re up next! Join us Wednesday at 9pm ET // 6pm PT to connect with fellow young adult PWAs. 

www.albinism.org/NOAH-Connections/#young-adults

Published: January 10, 2021

Thursday: Adult Connections

January 13th at 9:00pm ET // 6:00pm PT

Adults with Albinism, join special guest host, NOAH Executive Director Karen Bly for our next session of Adult Connections, this Thursday at 9pm ET // 6pm PT.

New to the group? Sign up now!
www.albinism.org/NOAH-Connections/#adults

Published: January 10, 2021

Sunday: Your Mind Matters Workshop

January 15th at 4:00pm ET // 1:00pm PT

Teens & Parents, there’s still time to sign up!

Join Bianca Rivera MSW, LCSW & Ashley Ullyot MA, LMFT for Your Mind Matters – A Parent & Teen Guide on January 15th.  This workshop will empower parents and teens to develop an individualized plan that focuses on the unique stress that teens with albinism face in school. 

Register by Thursday, 1/13! 
www.albinism.org/workshops

Published: January 10, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: January 10, 2021

Conference Hotel Room Block Opens Friday!

With NOAHCon2022 just over 6 months away, we are thrilled to announce that the hotel room block, with special pricing for conference attendees, will open this Friday, January 7th. Stay tuned for more details…

www.albinism.org/NOAHCon

Published: January 3, 2021

NOAH Kids: Create an Empower Flower!

NOAH kids, join Casey & Marleena next Tuesday (1/11) at 8pm ET // 5pm PT to create your very own “Empower Flower” of affirmations and motivations to start the New Year.

Sign up today!
www.albinism.org/NOAH-Connections/#empower

Published: January 3, 2021

Adult PWAs: You’re Invited to Word of the Year!

Are you looking for some extra motivation as you head into 2022?

Join Casey Greer and Marleena Barber on Tuesday, January 11th for a guided session in choosing a “Word of the Year.” Your WOTY will represent what you want to be, feel, do, and bring into your life for the coming year. 

Open to adults and young adults with albinism!

Sign up now: www.albinism.org/NOAH-Connections/#word

Published: January 3, 2021

Thank YOU for Shopping for NOAH!

NOAH received over $600 from AmazonSmile purchases between September & December. Thank you, shoppers!

It’s so easy to support NOAH through AmazonSmile! Select NOAH as your designated charity today & Amazon will donate 0.5% from every purchase you make through AmazonSmile: 
https://smile.amazon.com/ch/23-2265173

Published: January 3, 2021

Thursday: Teen Connections

January 6th at 8:00pm ET // 5:00pm PT

Teens, kick off the new year right and join us for our next session of Teen Connections, this Thursday at 8pm ET // 5pm PT. 

New to the group? The first call of the new year is the perfect time to join in for your first time!

Sign up today: www.albinism.org/NOAH-Connections/#teens

Published: January 3, 2021

Sunday: LGBTQ+ and Allies Connections

January 9th at 8:00pm ET // 5:00pm PT

YOU belong here! 

Join us for a social gathering open to all LGBTQ+ and allies with albinism this Sunday, January 9th at 8pm ET. Feel free to leave your camera off or dial in via phone if video isn’t your style. We look forward to connecting with you!

www.albinism.org/NOAH-Connections/#lgbtq

Published: January 3, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: January 3, 2021

Thank YOU for considering an end-of-year gift to NOAH!

“I’ve never felt more relatable and normal than I have with you guys.” – Chelsie (PWA and first time Adults with Albinism Weekend attendee)

With your donation, NOAH can continue to provide a space for the albinism community to meet at in-person events where attendees are able to enjoy a fun and relaxing time together with their NOAH friends and family. Thank you for considering an end-of-year gift to NOAH!

https://app.donorview.com/VX4R

Published: December 27, 2021

Activity Leaders Needed for New Year with NOAH!

We need YOUR help to start the new year right! If you’d be willing to lead a brief game or activity at New Year with NOAH on Gatherly, send us a message! Bonus points if you have an activity in mind.

www.albinism.org/NOAH-Connections/#new-year

Published: December 27, 2021

Your Mind Matters!

Teens & Parents, our next NOAH Workshop is just for YOU!

Join Bianca Rivera MSW, LCSW and Ashley Ullyot MA, LMFT on January 15th for Your Mind Matters – A Parent & Teen Guide.  This workshop will empower parents and teens to develop an individualized plan that focuses on the unique stress that teens with albinism face in school. 

Register by January 13th! 
www.albinism.org/workshops

Published: December 27, 2021

Wednesday: Young Adult Connections

December 29th at 9:00pm ET // 6:00pm PT

Young adults – join us this Thursday at 9pm ET for some much-needed relaxation time with NOAH friends! 

Will we see your smiling face on zoom for our last Young Adult Connections call of 2021? 

www.albinism.org/NOAH-Connections/#young-adults

Published: December 27, 2021

Thursday: Adult Connections

December 30th at 9:00pm ET // 6:00pm PT

Adult PWAs, you’re invited to our final Adult Connections call of 2021, this Thursday at 9pm ET! We know the holidays can be stressful, and this is the perfect chance to relax and connect with your NOAH friends from the comfort of your couch.

www.albinism.org/NOAH-Connections/#adults

Published: December 27, 2021

Sunday: New Year with NOAH! on Gatherly

January 2nd at 7:00pm ET // 4:00pm PT

You’re Invited to New Year with NOAH! 

Join NOAH to start the year off right, Sunday, January 2nd at 7pm ET // 4pm PT on Gatherly. Show off your skills in games & activities, or just log on for some social time and relaxation with NOAH Friends!

RSVP now: www.albinism.org/NOAH-Connections/#new-year

Published: December 27, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: December 27, 2021

You’re Invited to New Year with NOAH!

Join NOAH to start the year off right, Sunday, January 2nd at 7pm ET // 4pm PT on Gatherly. Show off your skills in games & activities, or just log on for some social time and relaxation with NOAH Friends!

RSVP now: www.albinism.org/NOAH-Connections/#new-year

Published: December 20, 2021

Did You Know? NOAHCon2022

Did you know that the NOAHCon2022 hotel is connected by pedestrian skybridge to Disney Springs®, including more than 150 dining, shopping, and entertainment venues? 

Learn more about this summer’s conference hotel at: www.albinism.org/NOAHCon

*Room block opens January 2022!

Published: December 20, 2021

Announcing: Career Corner Panel!

Join us Monday, January 10th at 8pm ET for a NOAH Connections Career Corner Panel!  Panelists Kathi Garza, Nick Smith, Claire Sterling, and Marshall Cohen will share information about their careers, and answer participant questions about being a PWA in their respective fields. 

All are welcome, so spread the word, and sign up today! www.albinism.org/NOAH-Connections/#career-corner

Published: December 20, 2021

Travel Tips!

With holiday travel just around the corner, we invite you to share your best low-vision travel tips!

Check out the awesome tips shared or add your own on our recent Facebook Post.

Published: December 20, 2021

Thursday: Teen Connections

December 23rd at 8:00pm ET // 5:00pm PT

Teens with albinism – we can’t wait to see YOU this Thursday! Get ready to join us on Zoom for our final Teen Connections call of 2021!

www.albinism.org/NOAH-Connections/#teens

Published: December 20, 2021

NOAH Connections Holiday Break

December 24th – 29th

NOAH Connections is taking a Holiday Break from December 24th – 29th. We look forward to seeing you at future sessions at the end of December, and in the new year!

While we’re away, check out our upcoming offerings at: www.albinism.org/NOAH-Connections

Published: December 20, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: December 20, 2021

Looking for a way to help?

Joining a NOAH Connections Advisory Task Force is the perfect way to let your voice be heard! We are currently looking for members for the following task force groups:​​​​​​​

• LBGTQ+
• Young Adults
• Parenting without Pigment 
• BIPOC Adults 
• Parents & Caregivers 
• Adults with Albinism 
• Grandparents 

Learn more or apply to join a NOAH Connections Task Force today at: www.albinism.org/NOAH-Connections/task-force

Published: December 13, 2021

Thank you, Facebook Fundraisers!

Thank you, Facebook Fundraisers!

Join us in thanking everyone who hosted a Facebook fundraiser to benefit NOAH in the month of November!

Creating a FB fundraiser for NOAH is so easy, and really makes a difference. Create your own fundraiser today: https://bit.ly/3pQHLyV

Published: December 13, 2021

Are you bothered by the flicker?

Many people with albinism say the flicker of some LED lights bothers them – especially in holiday displays. What is your experience?​​​​​​ 

Join in on the discussion on our recent Facebook post: https://bit.ly/3DRmkCQ

Published: December 13, 2021

Thank YOU for donating to NOAH’s Amazon Wish List!

Check out all of these awesome donations! Sending a special shoutout to our generous community members who donated items for New Parent Toolkits through our Amazon Wish List!

Looking for a way to support?
Check out our Wish List at https://amzn.to/3y4dKj3

Published: December 13, 2021

Tuesday: Aging with Albinism

December 14th at 5:00pm ET // 2:00pm PT

We can’t wait to see YOU for our next session of Aging with Albinism! Join June Waugh and friends on December 14th to discuss ways you’ve enhanced your mental health over the years. 

All ideas and experiences are welcome!
www.albinism.org/NOAH-Connections/#aging

Published: December 13, 2021

Wednesday: Young Adult Connections

December 15th at 9:00pm ET // 6:00pm PT

Young adults, you’re up next! Join us this Wednesday for the perfect chance to relax and unwind with your NOAH friends during the busy holiday season!

www.albinism.org/NOAH-Connections/#young-adults

Published: December 13, 2021

Thursday: Adult Connections

December 16th at 9:00pm ET // 6:00pm PT

Adult PWAs, you’re invited to our next session of NOAH Connections, this Thursday at 9pm ET // 6pm PT. 

New to NOAH Connections? There’s still time to sign up! 

www.albinism.org/NOAH-Connections/#adults

Published: December 13, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: December 13, 2021

THANK YOU!

We are thrilled to share that we have earned the $4,000 NOAH Board of Directors match and EXCEEDED our GivingTuesday goal, thanks to the generosity of our community members! Thank you so much to all who have donated and shared our fundraiser.​​​​​​​

Published: December 6, 2021

Career Corner – Rebecca Smith​​​​​​​

Rebecca Smith is an educator who works with kids preschool through grade 12 with moderate/intensive disabilities & visual impairments! 

Check out her story (or submit info about YOUR job or career) at: www.albinism.org/career-corner

Published: December 6, 2021

Parent Liaison Spotlight!​​​​​​​

This week, we featured Parent Liaisons, Anne Contant & Regan Gentile as part of our Parent Liaison spotlight. Get to know Anne, Regan, and other Parent Liaisons at www.albinism.org/new-parent-program/PL

Published: December 6, 2021

Did You Know?

Did you know that the #NOAHCon2022 hotel has a float lagoon (lazy river) with beach-style entry & complimentary floats? 

Learn more about this summer’s conference at www.albinism.org/NOAHCon

*Room block opens January 2022!

Published: December 6, 2021

Thursday: Teen Connections

December 9th at 8:00pm ET // 5:00pm PT

Teens, we look forward to seeing you again this week at our regularly scheduled time. Join us Thursday at  8:00pm ET // 5:00pm PT. We can’t wait to see you!

www.albinism.org/NOAH-Connections/#teens

Published: December 6, 2021

Thursday: LGBTQ+ and Allies

December 9th at 9:00pm ET // 6:00pm PT

PWAs who identify as LGBTQ+ and allies, mark your calendars for our next session of NOAH Connections, Thursday, December 9th at 9pm ET // 6pm PT. New to the group? Sign up now for the invite to this session, and future ones too!

www.albinism.org/NOAH-Connections/#lgbtq

Published: December 6, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: December 6, 2021

TOMORROW – Giving Tuesday!

Thanks to the generosity of NOAH’s Board of Directors, NOAH can earn a guaranteed $4,000 in matching funds this Giving Tuesday with YOUR support. Additionally, beginning TOMORROW at 8:00am ET, gifts to NOAH made via Facebook will be eligible for the $8 million Facebook match until funds run out. Your support of NOAH goes even further this Giving Tuesday – no gift is too small! 

Get ready to give TOMORROW at 8am ET!!

Donate or share NOAH’s GivingTuesday Fundraiser: ​​​​​https://bit.ly/3ptMeHV

OR create your own fundraiser: https://bit.ly/31cuJmC

Published: November 29, 2021

NOAH is Thankful for YOU!​​​​​​​

This holiday season, NOAH is thankful for our Board of Directors, Parent Liaisons, community members, fundraisers, and volunteers! We are so grateful that YOU are part of our NOAH family!​​​​​​​

Published: November 29, 2021

Career Corner – Mayia Warren!​​​​​​​

Mayia Warren is an advocate & content creator with albinism! 

Check out her story (or submit info about YOUR job or career) at: www.albinism.org/career-corner

Published: November 29, 2021

Friday Favorites

This past Friday, we shared a special Black Friday edition of Jessica’s Friday Favorites…but we know the deals have been continuing all weekend. Check out the awesome products shared, and add your own suggestions to our recent Jessica’s Friday Favorites Post!

Let’s help make this gift-giving season easier for everyone.

Published: November 29, 2021

Wednesday: Young Adult Connections

December 1st at 9:00pm ET // 6:00pm PT

Young adults – you’re up next! Grab your computer, tablet, or phone, and get ready to join us for our next session of NOAH Connections. This is the perfect chance to relax and unwind with friends during the busy holiday season.

www.albinism.org/NOAH-Connections/#young-adults

Published: November 29, 2021

Thursday: Teen Connections

December 2nd at 8:00pm ET // 5:00pm PT

Teens, we know you were busy with Thanksgiving last week, so we rescheduled our Teen Connections call to this Thursday! Log on at 8:00pm ET // 5:00pm PT to let us know how your Thanksgiving was, fill us in on your upcoming holiday plans, and more.

www.albinism.org/NOAH-Connections/#teens

Published: November 29, 2021

Thursday: Grandparenting a Child with Albinism Workshop

December 2nd at 8:30pm ET // 5:30pm PT

NOAH Grandparents – join Sheila Adamo this Thursday to explore some typical emotions and fears many grandparents experience and discuss strategies to help the family adjust and thrive. 

Register by November 30th! 
www.albinism.org/workshops

Published: November 29, 2021

Thursday: Adult Connections

December 2nd at 9:00pm ET // 6:00pm PT

Adults with albinism, join us this Thursday at 9pm ET // 6pm PT to connect and relax with your NOAH friends! 

New to the group? There’s still time to join!
www.albinism.org/NOAH-Connections/#adults

Published: November 29, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: November 29, 2021

Thanks for Coming to NOAH Friendsgiving!

We had a blast at NOAH Friendsgiving yesterday! 

Special shoutout to our wonderful game and activity leaders, and everyone who attended this holiday celebration with the albinism community.

Published: November 22, 2021

Career Corner​​​​​​​

Dr. Hafeez Shaka is a Board Certified Internist and Illinois-Licensed Physician with albinism! 

Check out his story (or submit info about YOUR job or career) at: www.albinism.org/career-corner​​​​​​​

Published: November 22, 2021

i2i – Inquire to Inspire!​​​​​​​

It’s time for Inquire to Inspire. Here comes Kathi with an i2i!

Thanksgiving is this week and my most favorite holiday. I’ve always loved being in the kitchen cooking with my mom, at least until we start getting bossy with one another.

Let’s talk kitchen hacks! What tricks do you use to help you get the job done, or what helped you learn how to handle the swords and fire in the kitchen?

Join the conversation on our recent Facebook Post!​​​​​​​

Published: November 22, 2021

Adoption Stories: Morrow Family

FROM CONGO TO CHINA: AN ADOPTEE & ADOPTIVE DAD SHARES HIS STORY

“My story begins in a small village in Eastern Congo. My mother passed away while giving birth to me. And per the customs I was born into, my tribe blamed me for her death. Tradition determined I should be buried with my mother…”

Check out the Morrow Family’s full story at www.albinism.org/adoption-stories or submit your story to info@albinism.org to share with the community!​​​​​​​

Published: November 22, 2021

TODAY: Canadian Parents Education Session

November 22nd at 8:15pm ET // 5:15pm PT

Calling all Canadian parents! Join Amanda Grant, TVI, for a session about the education system TONIGHT at 8:15pm ET // 5:15pm PT. This call will be focused on Ontario, but parents from all provinces are welcome to attend.

www.albinism.org/NOAH-Connections/#canadian-parents

Published: November 22, 2021

NOAH Connections Thanksgiving Break!

November 23rd – 30th

NOAH Connections is taking a Thanksgiving Break from November 23rd – 30th. We look forward to seeing you at future sessions in December!

While we’re away, check out our upcoming offerings at: www.albinism.org/NOAH-Connections

Published: November 22, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: November 22, 2021

Costume Contest Winners!

Congratulations to the winners of NOAH’s first-ever, virtual costume contest! 

#14 – Hayden M.
#18 – submitted by Jodi V.
#31 – Rachel E.
#66 – submitted by Tanily B.

Winners – please contact us with your mailing address so we can send you a NOAH prize pack!

Special shoutout to our honorable mention costume submission #21 – The Lee Family!

Published: November 15, 2021

Adoption Stories!​​​​​​​

In honor of National Adoption Awareness Month, we’ve been sharing stories from community members on social media and our website. 

Check out the adoption stories of NOAH families at www.albinism.org/adoption-stories, or submit your story to info@albinism.org to share with the community!

Published: November 15, 2021

Holiday Shopping Made Easy!​​​​​​​

The holiday season is just around the corner, and we have the perfect gift for the NOAH-lovers in your life.

Check out the NOAH gear store on Zazzle to complete holiday shopping for the whole family while supporting a great cause!

www.zazzle.com/noahgear

Published: November 15, 2021

Spotlight on Albinism InSight!

6 year old Madelyn shared information about albinism, how she sees, and the tools she uses, with her kindergarten class. 

Get your copy of AI now to read the full story! www.albinism.org/AI

Published: November 15, 2021

Tuesday: Stares, Smirks, and Shoutouts Workshop

November 16th at 8:00pm ET // 5:00pm PT

Registered attendees, we look forward to seeing you at our upcoming NOAH Workshop, Stares, Smirks, & Shout-outs, facilitated by Kelsey Thompson! We’ll discuss dealing with negative experiences in public & more.

Registration deadline extended! 

Want to join us but haven’t signed up yet? Register by midnight ET!

 www.albinism.org/workshops

Published: November 15, 2021

Wednesday: Young Adult Connections

November 17th ​​​​​​​at 9:00pm ET // 6:00pm PT

Game Night – 90s Trivia! 

Young adults, we can’t wait to see you this Wednesday at 9pm ET // 6pm PT for a 90’s Trivia & Game Night!! 

Who will be the 90’s trivia champion? Grab a friend and join us on zoom to find out!

www.albinism.org/NOAH-Connections/#young-adults

Published: November 15, 2021

Thursday: Practical Considerations for Early Literacy

November 18th ​​​​​​​at 8:00pm ET // 5:00pm PT

Parents, grandparents, & caregivers of PWAs ages 0-5, you won’t want to miss this informative session with Kathi Garza! 

All members of Parent or Grandparent Connections will get the invite, so join today:
www.albinism.org/NOAH-Connections/#p-g-c

Published: November 15, 2021

Thursday: Adult Connections

November 18th ​​​​​​​at 9:00pm ET // 6:00pm PT

Trivia night!

Adult PWAs, join us on Thursday, November 18th at 9pm ET // 6pm PT to test your knowledge with trivia on a variety of fun topics! 

Who will emerge the trivia champion? You’ll have to log on to find out…

www.albinism.org/NOAH-Connections/#adults

Published: November 15, 2021

Sunday: Kids’ Mindfulness Workshop

November 21st at 3:00pm ET // 12:00pm PT

Are YOU registered for the Kids’ Mindfulness workshop? 

NOAH kids & families, get ready to join Jocelyn this Sunday, November 21st to make a calming glitter jar and learn about mindfulness!

Register by November 19th
www.albinism.org/workshops

Published: November 15, 2021

Sunday: NOAH Friendsgiving on Gatherly!

November 21st at 7:00pm ET // 4:00pm PT

Friendsgiving doesn’t have to be fancy!

No need to look fabulous or cook a gourmet meal…come as you are to NOAH Friendsgiving on Gatherly this Sunday. Enjoy social time, or participate in your choice of games and activities, including a recipe swap with NOAH friends. Sweatpants & microwave meals are welcome.

RSVP today: www.albinism.org/NOAH-Connections/#friendsgiving

Published: November 15, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: November 15, 2021

Halloween Costume Contest – Vote Today!!

We received so many awesome subimssions for our first-ever, virtual Halloween costume contest, and we are so excited to share them with you! Check out all of our contestants in our Halloween Costume Contest Album on Facebook, and “like” your favorite costume to vote. 

Vote by November 12th to help us pick our contest winners!

Published: November 8, 2021

Looking for a way to help NOAH?​​​​​​​

We have the perfect opportunity for YOU! Let your voice be heard –  represent the interests of the community in planning for future NOAH Connections sessions through volunteering on a NOAH Connections Advisory Task Force. 

Learn more or apply to join a NOAH Connections Advisory Task Force today at:
www.albinism.org/NOAH-Connections/task-force

Published: November 8, 2021

Research Program Update!​​​​​​​

Excitement is building as our Research Program Committee and Scientific Advisory Board have received all of the applications for NOAH’s FIRST RESEARCH GRANTS! The team is currently reviewing applications to determine grant awardees.

STAY TUNED – Awardees will be announced in JANUARY 2022!!

www.albinism.org/research

Published: November 8, 2021

Help us choose the #NOAHCon2022 theme!

Thank goodness we had #AVisionBeyond 2020…and now NOAHCon 2022 is fast-approaching and we can’t wait to bring together the albinism community, in-person! 

What do YOU think our next conference theme should be? Share your ideas on our recent Facebook post or submit via email by Friday, November 12th. 

Published: November 8, 2021

National Adoption Awareness Month

In observance of National Adoption Awareness Month, we invite community members to share their family’s story for the chance to be featured on NOAH social media. 

Submit your story & photos via email today!

Use the Share with NOAH form or email us at info@albinism.org

Photo Credit: Positive Exposure

Published: November 8, 2021

Today: NOAH Connections – Dads!

November 8th at 8:00pm ET // 5:00pm PT

Calling All Super Dads!

Join host Sam McClung TONIGHT at 8pm ET for a call just for dads! You won’t want to miss this chance to share experiences & join together in the goal of being the best dad we can be for our kids with albinism. 

Sign up now:
www.albinism.org/NOAH-Connections/#dads

Published: November 8, 2021

Wednesday: Could Adults with Albinism Miss HPS?

November 9th ​​​​​​​at 8:00pm ET // 5:00pm PT

Adult PWAs, don’t miss this informative session about Hermansky-Pudlak Syndrome (HPS) presented by Donna Appell. Knowledge of HPS eliminates the risk of not knowing about something that may affect your well-being.

www.albinism.org/NOAH-Connections/#hps

Published: November 8, 2021

Thursday: Teen Connections

November 11th ​​​​​​​at 8:00pm ET // 5:00pm PT

Teens- we can’t wait to see you Thursday for our next session of NOAH Connections. First-timers welcome!

www.albinism.org/NOAH-Connections/#teens

Published: November 8, 2021

Thursday: LGBTQ+ & Allies Connections

November 11th ​​​​​​​at 9:00pm ET // 6:00pm PT

We’re Saving a Square for YOU!

PWAs who identify as LGBTQ+ and allies – join us this Thursday for our next NOAH Connections session just for you! Feel free to join with voice only if preferred.

Sign up today:
www.albinism.org/NOAH-Connections/#lgbtq

Published: November 8, 2021

Sunday: Podcast Panel

November 14th at 4:00pm ET // 1:00pm PT

Join us on this Sunday as Jennie Bovard, Dale Hamilton, Casey Greer, & Cassandra Mendez share their experiences as PWAs who host podcasts!

All are welcome, so spread the word & sign up today!
www.albinism.org/NOAH-Connections/#podcast

Published: November 8, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: November 8, 2021

Submit YOUR costume for NOAH’s Halloween Costume Contest!

Whether it’s funny, scary, cute, or spooky, we want to see YOUR Halloween costume! PWAs – share a photo of your costume with NOAH by Friday, November 5th to be entered into our first ever, virtual costume contest. Costume photos can be sent via email, social media DM, or posted in the comments on our recent Facebook Post.

Published: November 1, 2021

Looking for a way to help? Let YOUR voice be heard!​​​​​​​

NOAH seeks volunteers to represent the interests of the community in planning for future NOAH Connections sessions. 

Learn more or apply to join a NOAH Connections Advisory Task Force today at: www.albinism.org/NOAH-Connections/task-force

Published: November 1, 2021

Help us choose the #NOAHCon2022 theme!

Thank goodness we had #AVisionBeyond 2020…and now NOAHCon 2022 is fast-approaching and we can’t wait to bring together the albinism community, in-person! 

What do YOU think our next conference theme should be? Share your ideas on our recent Facebook post or submit via email by Friday, November 12th. 

Published: November 1, 2021

Announcing: Podcast Panel!

Join us on Sunday, November 14that 4pm ET // 1pm PT as Jennie Bovart, Dale Hamilton, Casey Greer, & Cassandra Mendez share their experiences as PWAs who host podcasts!

All are welcome, so spread the word & sign up today!
www.albinism.org/NOAH-Connections/#podcast

Published: November 1, 2021

Wednesday: Young Adult Connections

November 3rd at 9:00pm ET // 6:00pm PT

Extra, extra, read all about it! The next Young Adult Connections call is sure to be newsworthy. Join us this Wednesday for the full scoop. 

New to the group? Sign up today and you’ll get reminders for future sessions, too!
www.albinism.org/NOAH-Connections/#young-adults

Published: November 1, 2021

Thursday: Dealing with Comments & Questions

November 4th ​​​​​​​at 8:30pm ET // 5:30pm PT

Parents, grandparents, & caregivers – don’t miss out on our upcoming NOAH Workshop: Dealing with Comments & Questions this Thursday, November 4th. We hope you’ll join Sheila Adamo for this wonderful opportunity to connect and learn!

Registration closes TOMORROW (November 2nd)!
www.albinism.org/workshops

Published: November 1, 2021

Thursday: Adult Connections

November 4th ​​​​​​​at 9:00pm ET // 6:00pm PT

Adults with albinism, don’t miss out! We can’t wait to see you on Thursday for our next session of NOAH Connections.

www.albinism.org/NOAH-Connections/#adults

Published: November 1, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: November 1, 2021

Announcing NOAH’s Halloween Costume Contest!

Whether it’s funny, scary, cute, or spooky, we want to see YOUR Halloween costume! PWAs – share a photo of your costume with NOAH by Friday, November 5th to be entered into our first ever, virtual costume contest. Costume photos can be sent via email, social media DM, or posted in the comments on our recent Facebook Post.

Published: October 25, 2021

NOAH Connections Holiday Activities!​​​​​​​

The holiday season is just around the corner, and we can’t wait to celebrate with the albinism community! 

What NOAH Connections holiday activities would YOU like to attend in the coming months? Let us know by commenting on our recent Facebook post, or sending us an email!

Published: October 25, 2021

The Dads’ Call is Back!

Calling all NOAH Dads! Sam McClung invites YOU to join us for a call just for dads, to share in our unique experiences & join together in the goal of being the best dad we can be for our children with albinism. 

Sign up now at: www.albinism.org/NOAH-Connections/#dads or text DADS to (417) 473-2310

Published: October 25, 2021

You’re Invited to NOAH Friendsgiving!

Mark your calendars to join together with NOAH friends for a virtual meal and friendsgiving celebration on Gatherly.

www.albinism.org/NOAH-Connections/#friendsgiving

Published: October 25, 2021

Tuesday: PWAs in the Legal Profession

October 26th at 8:30pm ET // 5:30pm PT

Lawyers, paralegals, law students, and judges – we can’t wait to see you Tuesday at 8:30pm ET // 5:30pm PT! 

New to PWAs in the Legal Profession? Join today for the link to this call, and we’ll invite you to future sessions, too!
www.albinism.org/NOAH-Connections/#legal

Published: October 25, 2021

Thursday: Teen Connections

October 28th ​​​​​​​at 8:00pm ET // 5:00pm PT

Teens, it’s your turn to share your story. Come discuss your journey with Albinism from your childhood until now on our next Teen Connections call, Thursday, October 28th at 8pm ET // 5pm PT.

See you there!
www.albinism.org/NOAH-Connections/#teens

Published: October 25, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: October 25, 2021

Happy 39th Birthday, NOAH!

This past Friday, we celebrated NOAH’s 39th birthday with a fundraiser, BINGO Birthday Bash, and and After Hours Game Night!

Thank you to everyone who joined us in celebrating! Congratulations to all of our BINGO and Game Night winners!

PS – It’s not too late to give NOAH a belated “birthday gift” and help us reach our goal of 39 gifts of any size in honor of 39 years of NOAH!

Published: October 18, 2021

Oh! The Places My White Cane Takes Me!​​​​​​​

In addition to being NOAH’s 39th Birthday, Friday was also White Cane Day! In honor of this occasion, we invited the white cane users in our community to share a photo of a place their white can has taken them. Check out the fun photos shared and add your own on our recent Facebook post!

Published: October 18, 2021

National Disability Employment Awareness Month & NOAH’s Career Corner

October is National Disability Employment Awareness Month (NDEAM)! 

Held each October, NDEAM aims to educate about disability employment issues and celebrate the many and varied contributions of America’s workers with disabilities.
Learn more at: www.dol.gov/NDEAM 

NOAH is thrilled to launch our Career Corner during NDEAM to highlight the jobs and careers of PWAs in our community this October and beyond!

If you are an adult PWA willing to share about your career, please fill out this form:
https://app.donorview.com/pExwA

Published: October 18, 2021

*1* Unread Message

Don’t miss out! Sign up for NOAH text messages today, and we’ll send you reminders for upcoming NOAH Connections sessions! 

Sign up here: https://app.donorview.com/Wb7R7

Published: October 18, 2021

Could Adults with Albinism Miss HPS?

Adult PWAs, don’t miss this informative session about Hermansky-Pudlak Syndrome (HPS) presented by Donna Appell. Knowledge of HPS eliminates the risk of not knowing about something that may affect your well-being.

www.albinism.org/NOAH-Connections/#hps

Published: October 18, 2021

Sign up for NOAH Text Messages Today!

Don’t miss out! sign up for NOAH text messages today, and we’ll remind you about upcoming sessions and other opportunities to connect:

Subscribe here: https://app.donorview.com/Wb7R7

Published: October 18, 2021

TODAY: Adapting to the Diagnosis of Albinism as a Family

October 18th at 8:30pm ET // 5:30pm PT

Pre-registered parents & caregivers – Sheila Adamo looks forward to seeing you for Adapting to the Diagnosis of Albinism as a Family at 8:30pm ET. We’ll learn together and connect with our supportive community. 

Registration for this session closed Saturday, but we invite you to check out the NOAH Workshops page for information about other upcoming workshops:

www.albinism.org/workshops

Published: October 18, 2021

Tuesday: Aging with Albinism

October 19th ​​​​​​​at 5:00pm ET // 2:00pm PT

Join June Waugh & friends this Tuesday at 5:00pm ET / 2:00pm PT to discuss some of the many issues our families had to face: explaining our appearance, learning about vision & sun sensitivity, and more.

Join today!
www.albinism.org/NOAH-Connections/#aging

Published: October 18, 2021

Wednesday: Young Adult Connections

October 20th at 9:00pm ET // 6:00pm PT

Your Albinism Journey

Young Adults PWAs, join us to share your experiences as a young person living with albinism. How has entering adulthood changed your experience?

Sign up today!
www.albinism.org/NOAH-Connections/#young-adults

Published: October 18, 2021

Thursday: Adult Connections

October 21st at 9:00pm ET // 6:00pm PT

Your Albinism Journey

Adult PWAs, come join us this Thursday at 9pm ET/6pm PT as we discuss our albinism journey from diagnosis until now. What have you learned throughout this journey?

Sign up today!
www.albinism.org/NOAH-Connections/#adults

Published: October 18, 2021

Sunday: All the Feels Workshop

October 24th at 3:00pm ET // 12:00pm PT

NOAH kids – how do YOU feel about having albinism? Join Jocelyn for NOAH’s All the Feels Workshop on Oct. 24th to talk about our feelings with a fun story, science experiment, and arts activity!

Register by Oct. 22nd! 
www.albinism.org/workshops

Published: October 18, 2021

Sunday: Paralympian Panel!

October 24th at 4:30pm ET // 1:30pm PT

Join us on Sunday, October 24th at 4:30pm ET for a star-studded panel of Paralympian PWAs hosted by Pam McGonigle & Donté Mickens. This exciting opportunity is open to all NOAH community members, so spread the word & sign up now!

www.albinism.org/NOAH-Connections/#paralympian

Published: October 18, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: October 18, 2021

Last Chance to Register!

Parents, grandparents, & caregivers, have you registered for NOAH’s Adapting to the Diagnosis of Albinism as a Family Workshop? You won’t want to miss this opportunity to learn and connect with our supportive community, facilitated by Sheila Adamo. 

Don’t miss out – register by Saturday, October 16th! 
www.albinism.org/workshops

Published: October 11, 2021

Sign up for NOAH Text Messages Today!

Don’t miss out! sign up for NOAH text messages today, and we’ll remind you about upcoming sessions and other opportunities to connect:

Subscribe here: https://app.donorview.com/Wb7R7

Published: October 11, 2021

Thursday: LGBTQ+ & Allies

October 14th ​​​​​​​at 9:00pm ET // 6:00pm PT

YOU belong here! Join us for a social gathering open to all LGBTQ+ and allies with albinism this Thursday, October 14th at 9pm ET. Feel free to leave your camera off or dial in via phone if video isn’t your style. We look forward to connecting with you!

www.albinism.org/NOAH-Connections/#lgbtq

Published: October 11, 2021

Friday: After Hours 18+ Birthday Game Night!

October 15th at 9:00pm ET // 6:00pm PT

NOAH Adults, you’re invited to NOAH’s 39th Birthday after-party! Join us following the BINGO Birthday Bash for a NOAH After Hours 18+ Game Night this Friday, October 15th at 9pm ET / 6pm PT. 

Sign up now: www.albinism.org/NOAH-Connections/#after-hours

or text AFTER-HOURS to (417) 473-2310 to join the party!

Published: October 11, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: October 11, 2021

Adapting to the Diagnosis of Albinism as a Family Workshop

Parents, grandparents, & caregivers, join Sheila Adamo for NOAH’s Adapting to the Diagnosis of Albinism as a Family Workshop to learn and connect with our supportive community. 

Register by October 16th! 
www.albinism.org/workshops

Published: October 4, 2021

Resilience & Self-care

Living with albinism isn’t always easy. To be happy, self-actualized adults, people with albinism and their families need to find ways to cope with and learn from the not-so-good experiences. 

Check out Kelsey Thompson’s practical tips for developing resiliency in her NOAHCon 2020 session, Resilience & Self-Care:  https://vimeo.com/445334134

For access to more educational video content, visit NOAH’s full Video Library at: www.albinism.org/vimeo

Published: October 4, 2021

Wednesday: PWA Book Club

October 6th ​​​​​​​at 9:00pm ET // 6:00pm PT

Book Club members, finish up reading “Killers of the Flower Moon: The Osage Murders and the Birth of the FBI” by David Grann and get ready to discuss this Wednesday at 9pm ET/6pm PT.

www.albinism.org/NOAH-Connections/#pwa-book-club

Published: October 4, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: October 4, 2021

NOAH’s Back to School Library

Parents & caregivers – we want to hear from YOU! ​​​​​​​

How do you/your child share info about albinism with their teachers or classmates at the beginning of the school year? Do you/they write a letter, make a presentation, or go a different route?

Submit your sample letters, presentations, ideas, etc. (including your child’s age/grade, and photos/videos if applicable!) to bts@albinism.org for the chance to be included in our Back to School Library!

See www.albinism.org/bts

Published: September 27, 2021

Employer Matching

Did you know that 78% of match-eligible donors have no idea whether their employer offers a matching gift program?

Employer gift matching is a great way to make your donation to NOAH go further, so ask your employer about it today!

See www.albinism.org/ways-to-give

Published: September 27, 2021

Thursday: Teen Connections

September 30th ​​​​​​​at 8:00pm ET // 5:00pm PT

Teens, you’re up next! Join us this Thursday at 8pm ET to make new friends and re-connect with old ones. 

Sign up now!
www.albinism.org/NOAH-Connections/#teens

Published: September 27, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: September 27, 2021

Congratulations, 2021 SCIVIS Scholarship Winners!

We are thrilled to announce that Aleena H. and Axel D. have each been selected to receive a scholarship for Space Camp 2021! 

Congratulations, Aleena & Axel!

Learn more about Space Camp for Interested Visually Impaired Students: 
www.albinism.org/space-camp

Published: September 20, 2021

Happy National Hispanic Heritage Month!

Hispanic Heritage Month celebrates the histories, cultures and contributions of Americans descended from Spain, Mexico, the Caribbean, and Central and South America. The celebration begins each year on September 15th, which is the anniversary of independence for Latin American countries Costa Rica, El Salvador, Guatemala, Honduras and Nicaragua. 

Hispanic PWAs and families – how are you celebrating or observing National Hispanic Heritage Month?
Let us know on our recent Facebook Post!

Published: September 20, 2021

Thursday: Adult Connections

September 23rd ​​​​​​​at 9:00pm ET // 6:00pm PT

Apple cider or pumpkin spice? 

Adults with albinism, join us this Thursday at 9pm ET/6pm PT to talk about all things fall! 

New to Adult NOAH Connections?
Sign up now to join this session and you’ll be invited to future get-togethers too!
www.albinism.org/NOAH-Connections/#adults

Published: September 20, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: September 20, 2021

Worry Creatures Workshop

Children & families, join Jocelyn Leworthy Sunday, September 26th to decorate your very own worry creature! Worries are a normal part of life, everyone experiences them – together we’ll share ways to cope with our worries as people with albinism.

Register by September 24th!
www.albinism.org/workshops

Published: September 13, 2021

National Guide Dog Month!

September is National Guide Dog Month, so join us in sending an extra-special shoutout to the canines in our community who assist their owners with albinism in navigating all of life’s adventures.​​​​​​​

Check out our recent Facebook post and share a photo of an awesome guide dog in your life!

Published: September 13, 2021

Thursday: Teen Connections

September 16th ​​​​​​​at 8:00pm ET // 5:00pm PT

NOAH Teens, join us this Thursday, September 16th at 8pm ET // 5:00pm PT to talk about all things Back to School.

New to Teen Connections? Join today! 
www.albinism.org/NOAH-Connections/#teens

Published: September 13, 2021

Sunday: NOAH Kids Dance Party

September 19th at 3:30pm ET // 12:30pm PT

NOAH kids of all ages, there’s still time to sign up for an epic dance party with Casey Greer and Mackenzie Strong, September 19th at 3:30pm ET // 12:30pm PT!

Have a song request? Send it to cgreer@albinism.org 

Signup here: www.albinism.org/NOAH-Connections/#dance-party

Published: September 13, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: September 13, 2021

NOAH Workshop: Adapting to the Diagnosis of Albinism as a Family

Parents, grandparents, & caregivers, join Sheila Adamo on Monday, October 18th at 8:30pm ET to discuss adapting to a diagnosis of albinism & learn strategies to support each other.

Register by October 16th! 
www.albinism.org/workshops

Published: September 6, 2021

Thursday: Adult Connections

September 9th ​​​​​​​at 9:00pm ET // 6:00pm PT

Adults with albinism, start September on a high note – join us for our next session of NOAH connections for adult PWAs! 

www.albinism.org/NOAH-Connections/#adults

Published: September 6, 2021

Sunday: Bioptic Driving in Ontario

September 12th at 4:00pm ET // 1:00pm PT

PWAs from Ontario, join Dr. Tammy Labreche for a Q&A about Bioptic Driving, this Sunday, September 12th at 4pm ET!

Any questions you’d like to have answered during the session? 
Send them to Shelly at safas23@gmail.com 

www.albinism.org/NOAH-Connections/#canadian-pwas

Published: September 6, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: September 6, 2021

Will We See YOU on Beale St?!​​​​​​​

Our adult weekend crew is growing, and we can wait to recreate our “group photo” in Memphis!

Don’t miss out on this unique opportunity for connection and camaraderie with fellow PWAs  – register by September 10th! 🗓️
www.albinism.org/adult-weekend

Published: August 30, 2021

Paralympic Spotlight!

The 2020 Paralympic Games kicked off on August 25th, and we’ve been spotlighting awesome athletes with albinism representing Team USA & Team Canada over the past week.

Check out their spotlights on NOAH’s Facebook, Instagram, and Twitter, and don’t forget to tune in to watch the remaining Paralympic events!

Published: August 30, 2021

Wednesday: NOAH Book Club

September 1st ​​​​​​​at 9:00pm ET // 6:00pm PT

Book club members, finish up reading “The Martian” by Andy Weird, and get ready to discuss this Wednesday at 9pm ET! 

www.albinism.org/NOAH-Connections/#pwa-book-club

Published: August 30, 2021

Thursday: Young Adult Connections

September 2nd at 9:15pm ET // 6:15pm PT

Young adults, you’re up next! Kick off September on the right foot & join us for our first Young Adult Connections of the month this Thursday at 9:15pm ET.

www.albinism.org/NOAH-Connections/#young-adults

Published: August 30, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: August 30, 2021

Bioptic Driving in Ontario​​​​​​​

PWAs from Ontario, join Dr. Tammy Labreche for a Q&A about Bioptic Driving, Sunday, September 12th at 4pm ET!

Any questions you’d like to have answered during the session? 
Send them to Shelly at safas23@gmail.com 

www.albinism.org/NOAH-Connections/#canadian-pwas​​​​​​​

Published: August 23, 2021

Jessica’s Friday Favorites!

This past Friday, we heard from the NOAH community for another Jessica’s Friday Favorites! This time, we shared favorite tech products and apps. 

Check out community member suggestions and add your own on our recent Facebook post.

Published: August 23, 2021

Thursday: Adult Connections

August 26th at 9:00pm ET // 6:00pm PT

Adults with albinism, join Casey Greer this Thursday for social time with fellow PWAs.

New to Adult Connections? Now’s the perfect time to join for the first time! Sign up today for the invite to this session and future chances to connect:

www.albinism.org/NOAH-Connections/#adults

Published: August 23, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: August 23, 2021

Contribute to NOAH’s Back to School Library!​​​​​​​

Last week, we launched NOAH’s new Back to School Library, a place for parents to share ideas for teachers and classmates about what it means to have albinism. We’ve received a few wonderful submissions, but we are still in search of more ideas to help grow our library!

Submit your sample letters, presentations, ideas, etc. (including your child’s age/grade, and photos/videos if applicable!) to bts@albinism.org to help grow this wonderful resource for parents!

www.albinism.org/bts

Published: August 16, 2021

Fundraiser Shout-out!​​​​​​​

6-year-old community member, Hunter, learned that NOAH provides information for PWAs interested in driving – something that he wants to do when he gets older. So, he created a business plan for a lemonade stand to support NOAH, and was able to donate over $100 after selling lemonade at his local boat ramp!

Thank you, Hunter! ​​​​​​​​​​​​​​

Published: August 16, 2021

Thursday: Teen Connections

August 19th at 8:00pm ET // 5:00pm PT

Teens with albinism, you’re up next! Join us this Thursday for social time with fellow PWAs.

New to Teen Connections? Now’s the perfect time to join for the first time! Sign up today for the invite to this session and future chances to connect:

www.albinism.org/NOAH-Connections/#teens

Published: August 16, 2021

Save the Date!

Mark your calendars for these upcoming opportunities to connect:

Published: August 16, 2021