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NOAH News

McGowan Scholarship Application Now Open!

We are pleased to share that the application for the 2024 Michael J. McGowan Leadership Scholarship Award is now open. PWAs residing in the US or Canada enrolled in an undergraduate program at a U.S. or Canadian institution of higher education are invited to apply.

Learn more and apply by May 1st:
www.albinism.org/leadership

​​​​​​​Published: January 29, 2024


Last Chance to Submit!

Submissions for our Spring Issue of Albinism InSight are due this Wednesday, January 31st. We can’t wait to hear your perspective on one of our spring features, or a topic included in every issue!

Learn more & submit by Wednesday, January 31st:
www.albinism.org/AI/call-for-content

Published: January 29, 2024


Poster & Presentation Proposals Due Friday!

NOAH is currently accepting proposals for both community session presentations and scientific presentations & posters at NOAHCon 2024 in Garden Grove, CA, July 11-14, 2024.

This is an open call. NOAH welcomes professionals, vendors, and our community members to submit proposals for sessions and poster presentations at NOAHCon 2024.

Learn more and submit by Friday, February 2nd!
albinism.org/NOAHCon/presentations/

Published: January 29, 2024


Take 2 Tuesday

The NOAHCon hotel has lots of great dining options – including OC Brewhouse, which features a laid-back atmosphere for dinner, bar food, and drinks, open from 4pm-midnight every day.  

The NOAHCon 2024 room block is now open, so book your room today, and stay tuned for more conference updates and highlights every Tuesday!

www.albinism.org/NOAHCon​​​​​​​

Published: January 29, 2024


Parents & Caregivers – You’re Invited to Our Next NOAH Workshop!

Join Sheila Adamo & Megan Pitt on Monday, February 12th at 8:30pm ET // 5:30pm PT for the Parents of Newly-Diagnosed Children & Young Children with Albinism workshop to join a community that will share and learn about adapting to the new role of a parent of a child with albinism. We will discuss the common challenges and struggles parents may face and provide a guide to managing them while providing the best possible support for your child. 

Learn more & register by February 10th!
www.albinism.org/workshops

Published: January 29, 2024


We Want to Hear from YOU!

The NOAHCon 2024 Planning Committee is seeking input from our community in a brief, anonymous survey. 

Scan the QR code or click the link below to share your thoughts:
https://bit.ly/48KQAjc

Published: January 29, 2024


  • NOAH community member and Paralympic Goalball Athlete with albinism, Marybai Huking recently shared a video of her adventures red rock cave climbing. Check out her post to read about why she likes red rock cave climbing specifically as a climber with a visual-impairment. https://bit.ly/3Sz063h

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: January 29, 2024

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections


      Tuesday: Parents, Grandparents, and Caregivers – Ocular Albinism Connections

      January 30th at 9:00pm ET // 6:00pm PT

      Parents, grandparents, and caregivers – If you have questions about Ocular Albinism, you’re invited to a NOAH Connections session just for you! Join Dr. Richard Lewis & Pamela Tarnawa this Tuesday, January 30th at 9pm ET // 6pm PTto discuss Ocular Albinism and the unique challenges of caring for a child with OA.

      Sign up today!
      www.albinism.org/NOAH-Connections/#oa

      Published: January 29, 2024


      Thursday: Teen Connections

      February 1st at 8:00pm ET // 5:00pm PT

      Another semester down and a new one beginning, how are you staying on top of it all? Join us for our next Teen Connections session and share all of your tricks for success, this Thursday at 8:00 PM ET // 5:00 PM PT.

      www.albinism.org/NOAH-Connections/#teens

      Published: January 29, 2024


      Thursday: Low Vision Driving Chat

      February 1st at 9:00pm ET // 6:00pm PT

      Adults with albinism, join Bonny Reinhardt and friends to discuss your experiences with low vision driving this Thursday, February 1st at 9pm ET // 6pm PT.

      Sign up today:
      www.albinism.org/NOAH-Connections/#driving

      Published: January 29, 2024


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: January 29, 2024

      Wednesday, February 7th:
      NOAH Connections: Young Adults
      Thursday, February 8th:​​​​​​​
      NOAH Connections: Adults
      Monday, February 12th:
      NOAH Workshops: Parents and Caregivers
      Thursday, February 15th:
      NOAH Connections: Teens
      Thursday, February 20th:
      NOAH Connections: Aging with Albinism
      Wednesday, February 21st:
      NOAH Connections: Young Adults
      Thursday, February 22nd:​​​​​​​
      NOAH Connections: Adults
      Monday, March 11th:
      NOAH Connections: PWA Book Club

      Will we see YOU in Orange County?!

      The NOAHCon 2024 room block is officially open! 

      Learn more & book your room today: www.albinism.org/NOAHCon/#room​​​​​​​

      Published: January 22, 2024


      Takeover Tuesday: TOMORROW!

      We are so excited to get a glimpse into a day in the life of Sarah K!

      Sarah is a PhD student in astronomy at the University of Cambridge. Follow along on the NOAH instagram story TOMORROW for a day of astronomy research, working with a guide dog, and living in the city of Cambridge, England.

      www.instagram.com/noahalbinism

      Published: January 22, 2024


      Take 2 Tuesday

      Did you know that the NOAHCon 2024 hotel has a 24-hour fitness center? 

      The NOAHCon 2024 room block is now open, so book your room today, and stay tuned for more conference updates and highlights every Tuesday!

      www.albinism.org/NOAHCon​​​​​​​

      Published: January 22, 2024


      Ocular Albinism Connections!

      Parents, grandparents, and caregivers – If you have questions about Ocular Albinism, you’re invited to a NOAH Connections session just for you! Join Dr. Richard Lewis & Pamela Tarnawa on Tuesday, January 30th at 9pm ET // 6pm PT to discuss Ocular Albinism and the unique challenges of caring for a child with OA.

      Sign up today!
      www.albinism.org/NOAH-Connections/#oa

      Published: January 22, 2024


      Low Vision Driving Chat!

      Adults with albinism, join Bonny Reinhardt and friends to discuss your experiences with low vision driving on Thursday, February 1st at 9pm ET // 6pm PT.

      Sign up today:
      www.albinism.org/NOAH-Connections/#driving

      Published: January 22, 2024


      Call for Proposals!

      NOAH is currently accepting proposals for both community session presentations and scientific presentations & posters at NOAHCon 2024 in Garden Grove, CA, July 11-14, 2024.

      ​​​​​​​This is an open call. NOAH welcomes professionals, vendors, and our community members to submit proposals for sessions and poster presentations at NOAHCon 2024. 

      Learn more and submit by February 2nd!

      www.albinism.org/NOAHCon

      Published: January 22, 2024


      • NOAH community member Nuala was recently selected as Youth of the Year in her city. Check out this great photo of Nuala receiving her Youth of the Year plaque from the Mayor in our recent Facebook post.Join us in congratulating Nuala on this incredible achievement!

      • Have you ever wondered how common albinism is around the world? Check out this post from the Global Albinism Alliance to learn more about a recent study aiming to more accurately determine the prevalence of albinism worldwide. https://www.facebook.com/photo/?fbid=688352853475891&set=a.404105798567266

      • Have you heard about Voice-enabled Makeup Assistant? This new app was created to help blind and low-vision people check their makeup application. NOAH community member Esha was part of beta testing for the app, and shared her experiences in a recent Cosmopolitan articlehttps://www.cosmopolitan.com/style-beauty/beauty/a46056865/estee-lauder-voice-enabled-makeup-assistant/

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: January 22, 2024

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      January 24th at 9:00pm ET // 6:00pm PT

      Brr, it’s cold outside! How are you staying warm in this winter weather? Share all your tips for staying cozy this Wednesday during our next Young Adult Connections session, starting at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#young-adults

      Published: January 22, 2024


      Thursday: Teen Connections

      January 18th at 8:00pm ET // 5:00pm PT

      Happy new year! Start 2024 having fun with your PWA friends and join us for our first Teen Connections session of the year! 

      Tune in this Thursday, January 18 at 8:00 PM ET // 5:00 PM PT. 

      www.albinism.org/NOAH-Connections/#teens

      Published: January 22, 2024


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: January 22, 2024

      Tuesday, January 30th:
      NOAH Connections: Ocular Albinism – Parents, Grandparents, and Caregivers
      Thursday, February 1st:
      NOAH Connections: Teens
      Wednesday, February 7th:
      NOAH Connections: Young Adults
      Thursday, February 8th:​​​​​​​
      NOAH Connections: Adults
      Thursday, February 15th:
      NOAH Connections: Teens
      Monday, March 11th:
      NOAH Connections: PWA Book Club

      Martin Luther King Jr. Day

      In observance of Martin Luther King Jr. Day, we share this interview with Rev. Jesse Douglas Sr., an African American PWA who was a colleague and personal friend of Rev. Martin Luther King Jr.

      https://www.youtube.com/watch?v=M8YLSeg9LmA

      Published: January 15, 2024


      Takeover Tuesday is Back!

      We are so excited to share that Sarah Kane will join us for our next Takeover Tuesday: Day in the Life of a PWA segment on January 23rd

      Sarah is a PhD student in astronomy at the University of Cambridge. Follow along for a day of astronomy research, working with a guide dog, and living in the city of Cambridge, England.

      Published: January 15, 2024


      Take 2 Tuesday

      There are great dining options at the NOAHCon 2024 hotel – today, we’re highlighting TusCA, which serves breakfast every day from 6:30-11:30am. 

      ​​​​​​​Stay tuned for more conference updates and highlights every Tuesday!

      www.albinism.org/NOAHCon​​​​​​​

      Published: January 15, 2024


      What similarities are there between Ocular Albinism (OA) and Oculocutaneous Albinism (OCA)?

       
      Individuals with OA may have similar vision-related symptoms to those with OCA. 

      Parents, grandparents, and caregivers – If you have questions about Ocular Albinism, you’re invited to a NOAH Connections session just for you! Join Dr. Richard Lewis & Pamela Tarnawa on Tuesday, January 30th at 9pm ET // 6pm PTto discuss Ocular Albinism and the unique challenges of caring for a child with OA.

      Sign up today!
      www.albinism.org/NOAH-Connections/#oa

      Published: January 15, 2024



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: January 15, 2024

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Aging with Albinism

      January 16th at 5:00pm ET // 2:00pm PT

      PWAs 55+, join Mike Sikes and friends for our next session of Aging with Albinism, this Tuesday, January 16th at 5pm ET // 2pm PT.

      New to the group? There’s still time to sign up!
      www.albinism.org/NOAH-Connections/#aging

      Published: January 15, 2024


      Tuesday: PWAs in the Legal Profession

      January 16th at 8:00pm ET // 5:00pm PT

      Ring in the New Year with PWAs in the Legal Profession! 

      If you are entering, working in, or retired from the legal profession, please join us this Tuesday, January 16th at 8pm ET // 5pm PTto connect with fellow PWAs in your field. 

      Sign up today:
      www.albinism.org/NOAH-Connections/#legal

      Published: January 15, 2024


      Thursday: Teen Connections

      January 18th at 8:00pm ET // 5:00pm PT

      Happy new year! Start 2024 having fun with your PWA friends and join us for our first Teen Connections session of the year! 

      Tune in this Thursday, January 18 at 8:00 PM ET // 5:00 PM PT. 

      www.albinism.org/NOAH-Connections/#teens

      Published: January 15, 2024


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: January 15, 2024

      Wednesday, January 24th:
      NOAH Connections: Young Adults
      Thursday, January 25th:​​​​​​​
      NOAH Connections: Adults
      Tuesday, January 30th:
      NOAH Connections: Ocular Albinism – Parents, Grandparents, and Caregivers
      Thursday, February 1st:
      NOAH Connections: Teens
      Wednesday, February 7th:
      NOAH Connections: Young Adults
      Thursday, February 8th:​​​​​​​
      NOAH Connections: Adults
      Thursday, February 15th:
      NOAH Connections: Teens
      Monday, March 11th:
      NOAH Connections: PWA Book Club

      Happy New Year!

      Wishing a healthy and happy New Year to all in our community!

      Published: January 8, 2024


      Is it Ocular Albinism?

      Does your family member have brown hair, nystagmus, and low vision? Do they have “vision issues” that include nystagmus that occurred for generations with males in your family? It could be Ocular Albinism!

      Parents, grandparents, and caregivers – If you have questions about Ocular Albinism, you’re invited to a NOAH Connections session just for you! Join Dr. Richard Lewis & Pamela Tarnawa on Tuesday, January 30th at 9pm ET // 6pm PTto discuss Ocular Albinism and the unique challenges of caring for a child with OA.

      Sign up today!
      www.albinism.org/NOAH-Connections/#oa

      Published: January 8, 2024


      Take 2 Tuesday – Jasmine is a Star!

      Check out this special message from Jo Rochelle, director of the film Jasmine is a Star! We are so excited to include a special film screening as an optional social activity at NOAHCon 2024.

      Stay tuned for more NOAHCon updates and highlights every Tuesday!

      www.albinism.org/NOAHCon

      Published: January 8, 2024


      Take 2 Tuesday

      Did you know that the NOAHCon 2024 hotel has TWO pools?!

      We can’t wait to see YOU in Orange County this summer! The conference room block opens in mid-January.

      Stay tuned for more conference updates and highlights every Tuesday!

      www.albinism.org/NOAHCon

      Published: January 8, 2024


      Fundraiser Shout-Out!

      Join us in sending a special shout-out to Dennis Hurley, who hosted a film and comedy Variety Show this December and raised over $200 for NOAH. Congratulations on a successful event, Dennis, and thank you for your ongoing support of NOAH!

      Published: January 8, 2024


      There Are So Many Ways to Spring for NOAH!

      NOAH Bowl-a-thons are one of our most popular fundraisers, but did you know that there are endless options for Spring for NOAH events?! In the past, we’ve had community members host concerts, paint nights, 5k runs, and more.

      Check out our full list of suggestions at http://3.19.125.119/spring-1234/, or come up with your own!

      Get started today: www.albinism.org/fun

      Published: January 8, 2024


      Albinism InSight Winter Issue!

      The Winter Issue of Albinism InSight has hit mailboxes and inboxes…is your subscription up to date? 

      Don’t miss out, subscribe today!
      www.albinism.org/AI

      Published: January 8, 2024



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: January 8, 2024

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TONIGHT: PWA Book Club

      January 8th at 8:00pm ET // 5:00pm PT

      Book club members, we can’t wait to see you TONIGHT at 8pm ET // 5pm PT to discuss “Babel” by R.F. Kuang!

      Are you a PWA who loves to read? Sign up for Book Club today and you’ll get the invite to future meet-ups!

      www.albinism.org/NOAH-Connections/#pwa-book-club

      Published: January 8, 2024


      Wednesday: Young Adult Connections

      January 10th at 9:00pm ET // 6:00pm PT

      Looking to start the new year making new friends from the PWA community? Don’t miss the opportunity this Wednesday, January 10th at 9:00 PM ET// 6:00 PM PT.

      Sign up today!

      www.albinism.org/NOAH-Connections/#young-adults 

      Published: January 8, 2024


      Thursday: Adult Connections

      January 11th at 9:00pm ET // 6:00pm PT

      Can you believe we’re in 2024 already? Join us for an Adult Connections session and tell us all about your plans to make this year special. Check it out this Thursday, January 11th at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#adults 

      Published: January 8, 2024


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: January 8, 2024

      Tuesday, January 16th:
      NOAH Connections: PWAs in the Legal Profession
      Thursday, January 18th:
      NOAH Connections: Teens
      Wednesday, January 24th:
      NOAH Connections: Young Adults
      Thursday, January 25th:​​​​​​​
      NOAH Connections: Adults
      Tuesday, January 30th:
      NOAH Connections: Ocular Albinism – Parents, Grandparents, and Caregivers
      Thursday, February 1st:
      NOAH Connections: Teens

      Happy Hanukkah!

      Join us in wishing a Happy Hanukkah to all in our community who celebrated last week!

      ​​​​​​​Published: December 18, 2023


      Happy Holidays!

      With the holidays in full swing, we invite you to share a favorite holiday photo or memory on our recent Facebook post!

      Published: December 18, 2023


      Take 2 Tuesday – Jasmine is a Star!

      Check out this special message from Jo Rochelle, director of the film Jasmine is a Star! We are so excited to include a special film screening as an optional social activity at NOAHCon 2024.

      Stay tuned for more NOAHCon updates and highlights every Tuesday!

      www.albinism.org/NOAHCon

      Published: December 18, 2023


      PayPal Giving Fund Covers Fees!

      Prefer online giving, but don’t want part of your hard-earned money to be lost to processing fees? You’re in luck – PayPal Giving Fund covers fees for gifts to nonprofits, so NOAH receives the full amount you give.

      Make a fee-free gift today!

      Published: December 18, 2023


      Announcing: 2024 McGowan Leadership Scholarship!

      We are pleased to share that the application for the 2024 Michael J. McGowan Leadership Scholarship Award will open on January 29th. Applications will be due May 1st. 

      Learn more:
      www.albinism.org/leadership

      Published: December 18, 2023


      Be a Star for NOAH!

      You can help NOAH continue to shine by hosting an event during our annual Bowl-a-thon and Community Fundraisers, March 22-24, 2024, or a date of your choice!

      Learn more:
      www.albinism.org/fun

      Published: December 18, 2023


      My Vision for 2024!

      Kick off the new year on a positive note – join Marleena Barber and Casey Greer on Wednesday, January 3rd for a special NOAH Connections session to explore your vision for the year ahead!

      Kids & Teens, join us 8pm ET // 5pm PT.

      Adults, we’ll see you at 9pm ET // 6pm PT.  

      Sign up today: www.albinism.org/NOAH-Connections/#vision​​​​​​​

      Published: December 18, 2023


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: December 18, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Aging with Albinism

      December 19th at 5:00pm ET // 2:00pm PT

      PWAs 55+, join Mike Sikes and friends for our next session of Aging with Albinism this Tuesday, December 19th at 5pm ET // 2pm PT.

      New to the group? Sign up today for the invite to this call, and we’ll send you email reminders for future sessions, too!
      www.albinism.org/NOAH-Connections/#aging

      Published: December 18, 2023


      Thursday: Teen Connections

      December 21st at 8:00pm ET // 5:00pm PT

      Teens – don’t miss your chance to join our last chat of 2023! Share your holiday plans and what made your year special, besides our connection sessions of course.

      Join us this Thursday, December 21st at 8:00 PM ET // 5:00 PM PT.

      www.albinism.org/NOAH-Connections/#teens

      Published: December 18, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: December 18, 2023

      Wednesday, December 27th:
      NOAH Connections: Young Adults
      Thursday, December 28th:​​​​​​​
      NOAH Connections: Adults
      Wednesday, January 3rd:
      NOAH Connections: My Vision for 2024
      Thursday, January 4th:
      NOAH Connections: Teens
      Monday, January 8th:
      NOAH Connections: PWA Book Club
      Tuesday, January 16th:
      NOAH Connections: PWAs in the Legal Profession
      Tuesday, January 30th:
      NOAH Connections: Ocular Albinism – Parents, Grandparents, and Caregivers

      Happy Hanukkah!

      Join us in wishing a Happy Hanukkah to all in our community who celebrate!

      ​​​​​​​Published: December 11, 2023


      Parenting without Pigment: Parenting During the Holidays!

      Parents with albinism, join Kathi Garza and friends next Tuesday, December 12th at 9pm ET // 6pm PT to discuss parenting during the holidays.

      New to the group? Sign up today!
      www.albinism.org/NOAH-Connections/#pwp

      Published: December 11, 2023


      Announcing: Take 2 Tuesdays!

      NOAHCon 2024 is less than 31 weeks away, and we can’t wait to share more details with you! Check out more info about our conference hotel at www.albinism.org/NOAHCon and stay tuned for more conference highlights coming your way on NOAH social media every Tuesday as part of our Take 2 Tuesdays series!

      Published: December 11, 2023


      Aging with Albinism!

      PWAs 55+, join Mike Sikes and friends for our next session of Aging with Albinism on Tuesday, December 19th at 5pm ET // 2pm PT.

      New to the group? Sign up today for the invite to this call, and we’ll send you email reminders for future sessions, too!
      www.albinism.org/NOAH-Connections/#aging

      Published: December 11, 2023


      Ocular Albinism Connections!

      Parents, grandparents, and caregivers of kids with Ocular Albinism, you’re invited to a NOAH Connections session just for you! Join Dr. Richard Lewis & Pamela Tarnawa on Tuesday, January 30th at 9pm ET // 6pm PT to discuss the unique challenges of parenting or grandparenting a child with OA. 

      Sign up today!
      www.albinism.org/NOAH-Connections/#oa

      Published: December 11, 2023


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: December 11, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Parenting without Pigment – Parenting During the Holidays

      December 12th at 9:00pm ET // 6:00pm PT

      Parents with albinism, join Kathi Garza and friends this Tuesday, December 12th at 9pm ET // 6pm PT to discuss parenting during the holidays.

      New to the group? Sign up today!
      www.albinism.org/NOAH-Connections/#pwp

      Published: December 11, 2023


      Thursday: Adult Connections

      December 14th at 9:00pm ET // 6:00pm PT

      Christmas is almost here which means it’s eggnog season! Grab a cup, or your favorite holiday warm-up and join us for a pre-holiday Connections session this Thursday, December 14th at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#adults

      Published: December 11, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: December 11, 2023

      Tuesday, December 19th:
      NOAH Connections: Aging with Albinism
      Thursday, December 21st:
      NOAH Connections: Teens
      Wednesday, December 27th:
      NOAH Connections: Young Adults
      Thursday, December 28th:​​​​​​​
      NOAH Connections: Adults
      Thursday, January 4th:
      NOAH Connections: Teens
      Monday, January 8th:
      NOAH Connections: PWA Book Club

      Holiday Gift Ideas!

      Let’s talk about holiday gift ideas for visually impaired loved ones of all ages! 

      What creative or practical gifts have you given or received? Check out the suggestions from our community and add your ideas on our recent Facebook post

      ​​​​​​​Published: December 4, 2023


      Parenting without Pigment: Parenting During the Holidays!

      Parents with albinism, join Kathi Garza and friends next Tuesday, December 12th at 9pm ET // 6pm PT to discuss parenting during the holidays.

      New to the group? Sign up today!
      www.albinism.org/NOAH-Connections/#pwp

      Published: December 4, 2023


      Save the Date & Start Reading!

      NOAH PWA Book Club is back, and we are already looking forward to our next meeting. Start reading “Babel” by R.F. Kuang and mark your calendar to join us for a book discussion on Monday, January 8th at 8pm ET // 5pm PT.

      www.albinism.org/NOAH-Connections/#pwa-book-club

      Published: December 4, 2023


      Give the Gift of Albinism InSight!

      A subscription to Albinism InSight is a wonderful gift for a PWA in your life that will keep giving all year long. Gift a subscription today, and your loved one will receive 4 issues of NOAH’s quarterly magazine to stay up-to-date with happenings in the community!

      www.albinism.org/AI

      Published: December 4, 2023


      National Cookie Day – HPS Awareness!

      In celebration of National Cookie Day, we review how cookies can teach us about Hermansky-Pudlak Syndrome (HPS): normal platelets look like chocolate chip cookies and HPS platelets look like butter cookies! 

      Learn more at: https://www.hpsnetwork.org/hps-information/characteristics/

      Published: December 4, 2023

      • Research Study about Racial Identity Development in African Americans with Albinism
        Jasmyn Irvin at the Michigan School of Psychology is seeking African Americans with oculocutaneous albinism ages 18+ to participate in her research study.Learn more: www.albinism.org/research/#racial-identity

      • Free K-12 Teaching Resources!Did you know the National Institutes of Health offers free STEM resources for K-12 teachers on their website?Learn more: https://science.education.nih.gov/​​​​​​​

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: December 4, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Parent Connections – Parenting During the Holidays

      December 6th at 9:00pm ET // 6:00pm PT

      Parents, you’re invited to join Ashley Maynard and Kayla Hamlin on Wednesday, December 6th at 9pm ET // 6pm PT to discuss parenting during the holidays.

      New to Parent Connections? Sign up today for the invite to this call, and we’ll also send you email reminders for future sessions!

      www.albinism.org/NOAH-Connections/#parents

      Published: December 4, 2023


      Thursday: Teen Connections

      December 7th at 8:00pm ET // 5:00pm PT

      Light the menorah and get your jingle bells ready – the holiday season is here! Whether you’re celebrating the first night of Hanukkah or looking forward to Christmas, join us for a holiday connections session this Thursday, December 7th at 8:00 PM ET // 5:00 PM PT.

      www.albinism.org/NOAH-Connections/#teens 

      Published: December 4, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: December 4, 2023

      Tuesday, December 12th:
      NOAH Connections: Parenting without Pigment
      Wednesday, December 13th:
      NOAH Connections: Young Adults
      Thursday, December 14th:​​​​​​​
      NOAH Connections: Adults
      Tuesday, December 19th:
      NOAH Connections: Aging with Albinism
      Thursday, December 21st:
      NOAH Connections: Teens
      Wednesday, December 27th:
      NOAH Connections: Young Adults
      Thursday, December 28th:​​​​​​​
      NOAH Connections: Adults
      Thursday, January 4th:
      NOAH Connections: Teens
      Monday, January 8th:
      NOAH Connections: PWA Book Club

      Giving Tuesday NOAH Board Match INCREASED!

      We are thrilled to share that NOAH’s Board, overwhelmed by the generosity of our community, has increased their commitment to match up to $6,500 for NOAH’s Giving Tuesday fundraiser!

      Every little bit makes a difference, and this is a great chance to make a gift of any size go further for NOAH this holiday season!

      Donate today:https://app.donorview.com/JQbz

      ​​​​​​​Published: November 27, 2023


      Tell Your Story Tuesday!

      Each Tuesday in November, we will highlight community member stories about the impact of NOAH on their lives. Keep an eye out for our next community story tomorrow on NOAH social media!

      Today, hear from former NOAH board chair, Kelsey Thompson, in this video recorded in celebration of NOAH’s 35th birthday. Kelsey talks about how, from her earliest childhood memories, NOAH has always been a part of her life.

      Check out Kelsey’s video! 

      Inspired by Kelsey’s story?Consider making a gift to NOAH this holiday season, and take advantage of our $6,500 Board of Directors match now through November 28th!

      Donate today: https://app.donorview.com/JQbz

      Published: November 27, 2023


      NOAH is thankful for…YOU!

      Thank YOU for being an essential part of our community and supporting NOAH’s mission!  We are so grateful for the support of community members over the past 41 years.

      Published: November 27, 2023


      • Did you know American Printing House for the Blind is hosting a National Coding Symposium & Day of Code? Educators & students K-college are invited to join this virtual event December 4th-6th to learn about accessible coding for users who rely on screen access software, hear from coding pros, and more! https://www.aph.org/2023-national-coding-symposium-for-students/


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: November 27, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      November 29th at 9:00pm ET // 6:00pm PT

      Young adults, ready for a little time to unwind with friends after a busy holiday weekend? Join us this Wednesday at 9pm ET // 6pm PTfor great company and conversation!

      www.albinism.org/NOAH-Connections/#young-adults

      Published: November 27, 2023


      Thursday: Adult Connections

      November 30th at 9:00pm ET // 6:00pm PT

      Adults with albinism – don’t miss out on the next chance to connect with your “PWA Pals!” Set a reminder on your calendar to join us this Thursday at 9pm ET // 6pm PT. 

      www.albinism.org/NOAH-Connections/#adults

      Published: November 27, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: November 27, 2023

      Wednesday, December 6th:
      NOAH Connections: Parents
      Thursday, December 7th:
      NOAH Connections: Teens
      Wednesday, December 13th:
      NOAH Connections: Young Adults
      Thursday, December 14th:​​​​​​​
      NOAH Connections: Adults
      Thursday, December 21st:
      NOAH Connections: Teens
      Wednesday, December 27th:
      NOAH Connections: Young Adults
      Thursday, December 28th:​​​​​​​
      NOAH Connections: Adults
      Thursday, January 4th:
      NOAH Connections: Teens
      Monday, January 8th:
      NOAH Connections: PWA Book Club

      Thank you, Barber Family!

      Join us in sending a special shout-out to the Barber family for hosting the SoCal Ice Cream Social. This free event was a great chance for local NOAH community members to enjoy a sweet treat and get to know the NOAH Board of Directors.

      ​​​​​​​Published: November 20, 2023


      Tell Your Story Tuesday!

      Each Tuesday in November, we will highlight community member stories about the impact of NOAH on their lives. Keep an eye out for our next community story tomorrow on NOAH social media!

      Last Tuesday, we heard from NOAH Board Member Rosalind Isom, who shared her experiences from her first time connecting with NOAH at NOAHCon 2018 in Kansas City and the impact of the connection and community she has found with NOAH since then.

      Check out Rosalind’s video! 

      Inspired by Rosalind’s story?Consider making a gift to NOAH this holiday season, and take advantage of our $4,500 Board of Directors match now through November 28th!

      Donate today: https://app.donorview.com/JQbz

      Published: November 20, 2023


      NOAH Research Program ~ Our Commitment

      NOAH will become a leading voice in albinism research through the work of its Research Program. Funded research will be community-centered and help develop a greater understanding of albinism. This is an opportunity not just to fund albinism research, but also to shape research to answer questions most important to people with albinism.

      If albinism research is an area of interest for you…Get Involved!

      Fundraise! Efforts are ongoing for NOAH programs, including the Research Program. Your designated gift could help support the next NOAH Research Program Grant! 


      Stay current on the projects and findings of NOAH’s Research Program Grant recipients and any current opportunities available for participation in studies related to albinism.
       
      We want to hear from YOU! The NOAH Research Program Committee would welcome broader input from the community, including questions about albinism research. Contact NOAH to share your comments and questions related to albinism research.

      Visit http://3.19.125.119/research/ to find out more!

      Published: November 20, 2023


      Have You Heard About the NOAH Board of Directors Giving Tuesday Match?

      We are thrilled to share that our Board of Directors will match the first $4,500 of donations to NOAH now through Giving Tuesday (November 28th). Every little bit makes a difference, and this is a great chance to make a gift of any size go further for NOAH this holiday season!

      Donate today: https://app.donorview.com/JQbz

      Published: November 20, 2023


      Albinism in Africa

      Check out our session recording from NOAHCon 2022, Albinism in Africa: Exciting Opportunities Ahead presented by Francis Tiangson from Under the Same Sun.

      Interested in more session recordings and video content? Visit NOAH’s Video Library at www.albinism.org/video

      Published: November 20, 2023


      Holiday Travel Tips!

      The holiday season is just around the corner, and many will travel to see loved ones near and far!

      PWAs – we want to hear from YOU! Do you have any tips and tricks to share with fellow PWAs navigating airports, bus and train terminals, or unfamiliar places?

      Share your suggestions on our recent Facebook Post

      Published: November 20, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: November 20, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TONIGHT: PWA Book Club

      November 20th at 8:00pm ET // 5:00pm PT

      Book club members – we can’t wait to see you tonight to discuss “Hello Beautiful” by Ann Napolitano!

      www.albinism.org/NOAH-Connections/#pwa-book-club

      Published: November 20, 2023


      Tuesday: Aging with Albinism

      November 21st at 5:00pm ET // 2:00pm PT

      Older PWAs – join Mike Sikes and friends for our next session of Aging with Albinism this Tuesday, November 21st at 5:00pm ET // 2:00pm PT. We hope to see you there!

      www.albinism.org/NOAH-Connections/#aging

      Published: November 20, 2023


      Wednesday – Tuesday: NOAH Connections Thanksgiving Break

      November 22nd – November 28th

      We’ll take a NOAH Connections Thanksgiving Break from November 22-28th for our staff and community members to enjoy time with loved ones over the holiday.

      We can’t wait to see YOU when we resume our usual NOAH Connections calls starting November 29th. Check out our upcoming meet-ups:
      www.albinism.org/NOAH-Connections

      Published: November 20, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: November 20, 2023

      Wednesday, November 29th:
      NOAH Connections: Young Adults
      Thursday, November 30th:​​​​​​​
      NOAH Connections: Adults
      Thursday, December 7th:
      NOAH Connections: Teens
      Wednesday, December 13th:
      NOAH Connections: Young Adults
      Thursday, December 14th:​​​​​​​
      NOAH Connections: Adults
      Thursday, December 21st:
      NOAH Connections: Teens

      Happy Veterans Day from NOAH

      In honor of Veterans Day on Friday, join us in extending our appreciation to the veterans in our NOAH community!​​​​​​​

      ​​​​​​​Published: November 13, 2023


      Costume Contest Winners!

      We had so many awesome submissions for this year’s costume contest – thank you to everyone who participated!

      Join us in congratulating our 2023 NOAH Halloween Costume Contest winners:

      Group Costume:

      #22 – Maxwell & Siblings

      Individual Costume:

      #25 – Briella

      Duo Costume:

      #4 – Felix & Brynn​​​​​​​

      Published: November 13, 2023


      NOAH Programs Promote Acceptance and Awareness

      NOAH continues to encourage self-acceptance and improved awareness that will hopefully lead to better understanding and acceptance outside our community. NOAH encourages every member of the albinism community to make the choices best suited to meet their needs and goals. NOAH offers a buffet of programming. NOAH hosts NOAHCon national conferences, Adults with Albinism Weekend, NOAH Family Camp, and NOAH Virtual Connections which provide numerous opportunities for support, growth and fellowship. In addition to the newly established NOAH Research Program, NOAH offers the New Parent/Parent Liaison Program, a Leadership Scholarship, and other various education, outreach and awareness programs.

      Visit http://3.19.125.119 for more information on NOAH programs, events, and resources.

      Published: November 13, 2023


      Announcing: NOAH Board of Directors Giving Tuesday Match

      We are thrilled to share that our Board of Directors will match the first $4,500 of donations to NOAH now through Giving Tuesday (November 28th). Every little bit makes a difference, and this is a great chance to make a gift of any size go further for NOAH this holiday season!

      Donate today: https://app.donorview.com/JQbz

      Published: November 13, 2023


      Tell Your Story Tuesday!

      Each Tuesday in November, we will highlight community member stories about the impact of NOAH on their lives. Keep an eye out for our next community story tomorrow on NOAH social media!

      Last Tuesday, we heard from NOAH Board Member Andrew Sartorius as he shared his experiences from his first ever NOAH Conference and the community NOAH provides for his family.

      Check out Andrew’s video.

      Inspired by Andrew’s story?Consider making a gift to NOAH this holiday season, and take advantage of our $4,500 Board of Directors match now through November 28th!

      Donate today: https://app.donorview.com/JQbz

      Published: November 13, 2023


      Young Adults with Albinism – We Want to Hear From You!

      Joining the NOAH Connections Young Adults Advisory Task Force is a great chance to let your voice be heard. Advisory Task Force members share feedback on programming specifically for the Young Adult Connections Group.

      Learn more & apply to join today:
      www.albinism.org/NOAH-Connections/task-force

      Published: November 13, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: November 13, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Newly Diagnosed Parents of Parents of Young Children with Albinism

      November 15th at 8:30pm ET // 5:30pm PT

      Last Chance to Register!

      Parents & caregivers of newly-diagnosed or young children with albinism – you won’t want to miss our next workshop with Sheila Adamo!

      Join us on Wednesday, November 15th at 8:30pm ET // 5:30pm PT to share and learn about adapting to the new role of a parent of a child with albinism. We’ll discuss tools and strategies, share concerns, and gain support from a community of fellow parents. 

      Register by TODAY, November 13th:
      www.albinism.org/workshops

      Published: November 13, 2023


      Wednesday: Young Adult Connections

      November 15th at 9:00pm ET // 6:00pm PT

      Thanksgiving is upon us, are you visiting with family or taking a break from them and chilling with friends this year? Tell us all about your long weekend plans for the holidays this Wednesday, November 15th at 9:00 PM // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#young-adults

      Published: November 13, 2023


      Thursday: Adult Connections

      November 16th at 9:00pm ET // 6:00pm PT

      Do you have your Black Friday lists ready? Are you an online shopper or do you brave the stores?

      Shopping season is upon us and we want to hear about your wish list! Share your tips and join us this Thursday, November 16th at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#adults

      Published: November 13, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: November 13, 2023

      Monday, November 20th:
      NOAH Connections: PWA Book Club
      Tuesday, November 21st:
      NOAH Connections: Aging with Albinism​​​​​​​
      Wednesday, November 29th:
      NOAH Connections: Young Adults
      Thursday, November 30th:​​​​​​​
      NOAH Connections: Adults

      There’s Still Time to Submit!

      Want to be a part of NOAH’s Halloween Costume Contest? You’re in luck – there’s still time to submit your photo!

      Email your photo to marketing@3.19.125.119 by TOMORROW – Tuesday, November 7th!

      In the meantime, check out our current contestants and “like” to vote for your favorite:
      https://www.facebook.com/media/set/?set=a.728912155945556&type=3

      ​​​​​​​Published: November 6, 2023


      NOAH Research Program Aims

      NOAH has always been and will always be a place that supports the beauty of albinism. We realize having albinism is a big part of a person’s identity. The NOAH Research Program aims not to alter that in any way, but to support the ongoing research of the condition, which could provide positive outcomes or interventions for those seeking them within the albinism community.

      Through research, a greater understanding of the vision system and skin pigmentation can be obtained and lead to outcomes that impact and advance equity and accessibility for people with albinism through improved technology development and/or enhanced management/support. While research often answers some questions, it frequently generates more, and it’s not uncommon to have unexpected outcomes that benefit a wider population.  For example – research using modern technology to study the back of the eye is currently providing advances in eyeglasses and low-vision aids, which could help provide focus and clarity to facial features/expressions.

      Visit http://3.19.125.119/research/for more information about projects funded by NOAH Research Program Grants.

      Published: November 6, 2023


      Grandparents – We Want to Hear From YOU!

      We are seeking a few more members to join our NOAH Connections Grandparents Advisory Task Force. Members of the Task Force meet once per month on Zoom to provide topic recommendations and review topic suggestions to assist NOAH in formalizing program offerings for grandparents in the community. 

      Learn more & apply today:
      www.albinism.org/NOAH-Connections/task-force

      Published: November 6, 2023


      Register Today!

      Parents & caregivers of newly-diagnosed or young children with albinism – you won’t want to miss our next workshop with Sheila Adamo!

      Join us on Wednesday, November 15th at 8:30pm ET // 5:30pm PT to share and learn about adapting to the new role of a parent of a child with albinism. We’ll discuss tools and strategies, share concerns, and gain support from a community of fellow parents. 

      Register by November 13th:
      www.albinism.org/workshops

      Published: November 6, 2023


      LGBTQ+ PWAs – Let Your Voice Be Heard!

      We are seeking a few additional members for our NOAH Connections LGBTQ+ Advisory Task Force to assist in formalizing programming offerings for our LGBTQ+ & Allies NOAH Connections group. 

      Learn more and apply today:
      www.albinism.org/NOAH-Connections/task-force

      Published: November 6, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: November 6, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: People with Albinism in the Legal Profession

      November 7th at 8:00pm ET // 5:00pm PT

      We are so excited for the return of PWAs in the Legal Profession to NOAH Connections! 

      If you are entering, working in, or retired from the legal profession, please join us Tuesday, November 7th at 8pm ET // 5pm PT to connect with fellow PWAs in your field. 

      Sign up today:
      www.albinism.org/NOAH-Connections/#legal

      Published: November 6, 2023


      Thursday: Teen Connections

      November 9th at 8:00pm ET // 5:00pm PT

      Do you have plans for this Thursday night? Well, you do now!

      Join us for another Teen Connections session this Thursday, November 9th at 8:00 PM ET // 5:00 PM PT.

      www.albinism.org/NOAH-Connections/#teens

      Published: November 6, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: November 6, 2023

      Wednesday, November 15th:
      NOAH Workshop: Parents & Caregivers
      NOAH Connections: Young Adults
      Thursday, November 16th:​​​​​​​
      NOAH Connections: Adults
      Monday, November 20th:
      NOAH Connections: PWA Book Club
      Tuesday, November 21st:
      NOAH Connections: Aging with Albinism​​​​​​​
      Wednesday, November 29th:
      NOAH Connections: Young Adults
      Thursday, November 30th:​​​​​​​
      NOAH Connections: Adults

      You’re Invited to a SoCal Ice Cream Social!

      Community members in the SoCal area, we hope you’ll join us to meet the NOAH Board at a SoCal Ice Cream Social hosted by the Barber Family. This free event will be held Friday, November 10th, from 6:00-8:00pm in Anaheim, CA

      RSVP by November 3rd at: app.donorview.com/w8PVg

      ​​​​​​​Published: October 30, 2023


      NOAH’s Scientific Advisory Board

      Since 1982, NOAH has relied on the experience and expertise of professionals in the fields of scientific and medical research that will improve the understanding, diagnosis and management of all forms of albinism. As part of the newly established NOAH Research Program, we maintain a Scientific Advisory Board that reviews and advises on research presented to NOAH for funding and/or community participation/dissemination. With each new grant we award, we extend our network of advisors in albinism research. To say, “we don’t know what we don’t know,” is as true today as it was in 1982. The genetics of albinism – the science of the condition – and the unique spectrum of diversity albinism represents are all areas that have been supported through the efforts of albinism researchers and their findings.

      Visit http://3.19.125.119/research/for more information about the NOAH Research Program.

      Published: October 30, 2023


      PWAs in the Legal Profession

      We are so excited for the return of PWAs in the Legal Profession to NOAH Connections! 

      If you are entering, working in, or retired from the legal profession, please join us Tuesday, November 7th at 8pm ET // 5pm PT to connect with fellow PWAs in your field. 

      Sign up today:
      www.albinism.org/NOAH-Connections/#legal

      Published: October 30, 2023


      Aging with Albinism – Save the Date!
       

      Join Mike Sikes and friends for our next session of Aging with Albinism on Tuesday, November 21st at 5:00pm ET // 2:00pm PT. We hope to see you there!

      www.albinism.org/NOAH-Connections/#aging

      Published: October 30, 2023


      Thank You, Marleena & Casey!

      Marleena Barber & Casey Greer have been our fabulous NOAH Night hosts since our first celebration in 2021, and NOAH Night wouldn’t be the same without them! Thank you, Marleena & Casey, for helping us celebrate NOAH’s 41st birthday last weekend with an entertaining evening for the albinism community!

      Missed the event? You can still join in on the fun! Purchase a ticket to view the recording at: 
      www.albinism.org/NOAHNight

      Published: October 30, 2023


      • United Nations Independent Expert (UNIE) Survey – UNIE Muluka-Anne Miti-Drummond is conducting a survey to inform her next report about education and albinism, and she is seeking additional responses from PWAs in North America to ensure all regions are represented. Interested in sharing your experiences? You can learn more about access to education and employment for PWAs in the UN’s video, and complete the survey by November 3rd at:   https://www.surveymonkey.com/r/UNIEHRC55  

      • AI-Learners (www.ai-learners.com) is an educational platform that helps students with all abilities learn foundational math, literacy, and daily life skills through personalized computer games and analytics. Inspired by her younger sister, who has Rett Syndrome, Adele wanted to create a learning resource that was accessible for students with disabilities and inclusive for all learners. The platform is inclusive to all students, is compatible with assistant technology, and has specific features for students with autism, vision impairment, and other learning challenges. Learn more: https://www.youtube.com/watch?v=fVuSQQCCumA&feature=youtu.be AI-Learners offers subscriptions for schools at a group rate and subscriptions for parents to use the platform at home. Thousands of students are already using AI-Learners! Reach out to Adele for questions on how to create accounts at adele@ai-learners.com

      • Check out this awesome photo shared by Space Camp for Interested Visually Impaired Students (SCIVIS) director Dan Oates. Featured is Charlotte H., who received the NOAH Space Camp Scholarship this year! Charlotte attended space camp with nearly two dozen other students with albinism from around the country and the world. Learn more about SCIVIS & the NOAH Space Camp Scholarship: http://3.19.125.119/space-camp/

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: October 30, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      November 1st at 9:00pm ET // 6:00pm PT

      Do you know what November 1st is? It’s discount Halloween candy day! So pick up your favorite snack and join us for a GOAT candy debate, this Wednesday, November 1st at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#young-adults

      Published: October 30, 2023


      Thursday: Adult Connections

      November 2nd at 9:00pm ET // 6:00pm PT

      Are your holidays like a Disney classic or more National Lampoon? As we gear up for the holiday season, we want to hear all about your experiences! Join us this Thursday, November 2nd at 9:00 PM ET// 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#adults 

      Published: October 30, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: October 30, 2023

      Tuesday, November 7th:
      NOAH Connections: PWAs in the Legal Profession
      Thursday, November 9th:
      NOAH Connections: Teens
      Wednesday, November 15th:
      NOAH Workshop: Parents & Caregivers
      NOAH Connections: Young Adults
      Thursday, November 16th:​​​​​​​
      NOAH Connections: Adults
      Monday, November 20th:
      NOAH Connections: PWA Book Club
      Tuesday, November 21st:
      NOAH Connections: Aging with Albinism​​​​​​​
      Tuesday, November 28th:
      NOAH Connections: Ocular Albinism Connections: Parents, Grandparents, & Caregivers

      Last Chance to Submit!

      Submitting to Albinism InSight is an excellent way to share your experience with the albinism community. Do you have something to say about our Winter Features? Want to share a noteworthy event or discuss your perspective on one of our topics in every issue?

      Learn more and submit by October 25th:
      www.albinism.org/AI/call-for-content

      ​​​​​​​Published: October 23, 2023


      NOAH Research Program Established

      In 2021, NOAH’s Board of Directors was honored to be selected as a steward of generous funds specifically designated for albinism research. This restricted donation was the catalyst for extending NOAH’s support of albinism research to form the NOAH Research Program.

      The NOAH Research Program was established to support albinism research by formalizing a grant funding process, shaping research to answer questions most important to people with albinism, and developing a network of researchers engaged in the albinism community. This natural progression of NOAH’s research support allows NOAH and the albinism community to impact what researchers study and which projects are funded. Since 2021, NOAH has received additional funding designated for albinism research. To date, all NOAH Research Program grants awarded have been entirely funded through donor-restricted gifts.

      Visit www.albinism.org/research/#support for a direct link to donate to the NOAH Research Program.

      Published: October 23, 2023


      NOAH Night Recording Available!

      We had a blast at NOAH Night last Sunday – thank you to everyone who joined us for the celebration!

      If you couldn’t make it, we have good news – you can purchase a ticket to view the NOAH Night recording!

      Purchase your ticket now:
      https://app.donorview.com/RpPP1

      Published: October 23, 2023


      NOAH Needs YOU…to Volunteer!
       

      NOAHCon 2024 is less than one year away, and as anyone who has attended a NOAH national conference knows, it takes a village to plan and execute this significant event. 

      We have several volunteer positions available – learn more and apply today at albinism.org/volunteer/#NOAHCon

      Published: October 23, 2023


      National Estate Planning Week!

      In honor of National Estate Planning Week last week, we wanted to share more with our community about how you can involve NOAH in your estate planning. 

      A Planned Gift is a contribution arranged in the present and allocated at a future date. Commonly donated through a will or trust, planned gifts are most often granted once the donor has passed away. If you have already planned for or are considering donating to NOAH in your will, then you may wish to join NOAH’s Legacy Circle. 

      To learn more about including NOAH in your estate planning, visit http://3.19.125.119/planned-giving/

      Published: October 23, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: October 23, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Parenting without Pigment

      October 24th at 9:00pm ET // 6:00pm PT

      Parents without Pigment – let’s discuss getting your kids ready for Halloween, making or picking out costumes, doing the whole trick-or-treating in the dark, and more!!

      Join us TOMORROW at 9pm ET // 6pm PT to share your tips, tricks, and funny stories from Halloweens past!

      www.albinism.org/NOAH-Connections/#pwp

      Published: October 23, 2023


      Thursday: Teen Connections

      October 26th at 8:00pm ET // 5:00pm PT

      So what’s your deal? Got a party to go to, or are you stuck at home giving out candy? Tell us all about your Halloween plans this Thursday, October 26th at 8:00 PM ET// 5:00 PM PT

      Costumes welcome!

      www.albinism.org/NOAH-Connections/#teens

      Published: October 23, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: October 23, 2023

      Wednesday, November 1st:
      NOAH Connections: Young Adults
      Thursday, November 2nd:​​​​​​​
      NOAH Connections: Adults
      Tuesday, November 7th:
      NOAH Connections: PWAs in the Legal Profession
      Thursday, November 9th:
      NOAH Connections: Teens
      Wednesday, November 15th:
      NOAH Workshop: Parents & Caregivers
      NOAH Connections: Young Adults
      Thursday, November 16th:​​​​​​​
      NOAH Connections: Adults
      Monday, November 20th:
      NOAH Connections: PWA Book Club
      Tuesday, November 21st:
      NOAH Connections: Aging with Albinism​​​​​​​

      Parenting without Pigment – Halloween!

      Parents without Pigment – let’s discuss getting your kids ready for Halloween, making or picking out costumes, doing the whole trick-or-treating in the dark, and more!!

      Join us on Tuesday, October 24th at 9pm ET // 6pm PT to share your tips, tricks, and funny stories from Halloweens past!

      www.albinism.org/NOAH-Connections/#pwp

      ​​​​​​​Published: October 16, 2023


      NOAH Supports Albinism Research

      Supporting albinism research has been part of the National Organization for Albinism and Hypopigmentation (NOAH) since its inception. In 1982, Dr. Carl Witkop – an albinism researcher from the University of Minnesota and seminal contributor to our understanding of albinism – attended a workshop in Philadelphia for people with albinism, where he is credited as one of NOAH’s founders.

      Throughout NOAH’s 40-year history, our organization has drafted letters of support for those conducting albinism research projects, invited professionals to share information at our national conferences about current scientific findings and new technologies available to people with albinism, and provided information to our community for those interested in participating in research studies that may lead to a better understanding of the genetic condition of albinism.

      Visit http://3.19.125.119/research for more information about how NOAH supports albinism research.

      Published: October 16, 2023


      Have you seen the Autumn Issue of Albinism InSight?!

      Autumn AI has arrived in the mailboxes and inboxes of subscribers, but it’s not too late to get YOUR copy!

      With annual subscriptions starting at just $10, subscribing to AI is an affordable and fun way to keep up with the albinism community. 

      Learn more & subscribe today:
      www.albinism.org/ai

      Published: October 16, 2023


      Book Club Rescheduled!
       

      Mark your calendars – our next NOAH PWA Book Club meeting has been rescheduled to Monday, November 20th, at 8pm ET // 5pm PT.

      Are you an adult with albinism who loves to read? Grab a copy of “Hello Beautiful” by Ann Napolitano and sign up to join us!


      www.albinism.org/NOAH-Connections/#pwa-book-club

      Published: October 16, 2023


      All About Albinism for Kids

      Is there a kid in your life who is interested in learning more about albinism? Share “All About Albinism for Kids” from NOAHCon 2020 with them! This session will help kids with albinism & their siblings or friends better understand albinism. 

      vimeo.com/albinism/albinismkids

      Published: October 16, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: October 16, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Aging with Albinism

      October 17th at 5:00pm ET // 2:00pm PT

      Older PWAs, join Mike Sikes and friends for our next session of Aging with Albinism this Tuesday, October 17th at 5:00pm ET // 2:00pm PT.

      New to the group? Sign up today, and you’ll also get email reminders for future calls!
      www.albinism.org/NOAH-Connections/#aging

      Published: October 16, 2023


      Wednesday: Grandparenting a Child with Albinism Workshop

      October 18th at 8:30pm ET // 5:30pm PT

      Join Sheila Adamo, LCSW, CADC, this Wednesday, October 18th, for a workshop that will provide information, guidance, and support for grandparents of children with albinism of all ages. We will explore typical emotions and discuss strategies to help the family adjust and thrive. 

      Don’t miss out – today is your last chance to register!
      www.albinism.org/workshops

      Published: October 16, 2023


      Wednesday: Young Adult Connections

      October 18th at 9:00pm ET // 6:00pm PT

      🎵 I wish I’d never grown up🎵

      As you hear Taylor Swift’s voice in your head, remember you are not alone! Reflect on growing up – leave those teenage years behind and embrace the next chapter with a new set of friends! 

      Join us for a special session where we welcome former Teen Connections friends to our Young Adult Connections group, this Wednesday, October 18th at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#young-adults

      Published: October 16, 2023


      Thursday: Adult Connections

      October 19th at 9:00pm ET // 6:00pm PT

      Did you attend NOAH Night? Got any favorite clips or highlights? In case you missed it or want to relive those great moments, join us during our Adult Connections session this Thursday, October 19th at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#adults 

      Published: October 16, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: October 16, 2023

      Tuesday, October 24th:
      NOAH Connections: Parenting without Pigment
      Thursday, October 26th:
      NOAH Connections: Teens
      Wednesday, November 1st:
      NOAH Connections: Young Adults
      Thursday, November 2nd:​​​​​​​
      NOAH Connections: Adults
      Thursday, November 9th:
      NOAH Connections: Teens
      Wednesday, November 15th:
      NOAH Workshop: Parents & Caregivers
      Wednesday, November 15th:
      NOAH Connections: Young Adults
      Thursday, November 16th:​​​​​​​
      NOAH Connections: Adults
      Monday, November 20th:
      NOAH Connections: PWA Book Club

      We Want YOU for the Next Issue of Albinism InSight!

      Submitting to Albinism InSight is an excellent way to share your experience with the albinism community. Do you have something to say about our Winter Features? Want to share a noteworthy event or discuss your perspective on one of our topics in every issue?

      Learn more and submit by October 25th:
      www.albinism.org/AI/call-for-content​​​​

      ​​​​​​​Published: October 9, 2023


      Aging with Albinism

      Older PWAs, join Mike Sikes and friends for our next session of Aging with Albinism on Tuesday, October 17th at 5:00pm ET // 2:00pm PT.

      New to the group? Sign up today, and you’ll also get email reminders for future calls!

      www.albinism.org/NOAH-Connections/#aging

      Published: October 9, 2023


      Ayden B. – iPad Recipient!

      Check out NOAH community member Ayden B. with his new iPad from the NOAH iPad Assistance Program! Ayden’s mom shares that he has been using the iPad for drawing, homework, videos, and more.

      Many thanks to the Parker Hannifin Foundation for their generous support of the NOAH iPad Program.

      Published: October 9, 2023


      NOAH Night Updates!

      Do YOU Want to Be a NOAHCon VIP?!
       
      We are so excited to announce a new DOOR PRIZE to be awarded at NOAH Night 2023! 
       
       All registered NOAH Night 2023 ticket holders will be entered to win the exclusive honor of being a NOAHCon 2024 VIP, which includes special recognition at the opening session, reserved VIP seating for you and up to 3 friends at all conference meals and sessions, and of course, bragging rights!
        
      We know you’ve always wanted to be NOAHCon royalty, so what are you waiting for? Get your tickets today and join us for NOAH Night 2023 on Sunday, October 15th.

      https://app.donorview.com/RpPP1

      A limited number of NOAHCon 2024 VIPs will be selected throughout the evening. Selected ticket holder MUST be present to claim; if not present, a new ticket will be drawn. One winner per household. 

      Winner is responsible for all travel and related expenses to attend NOAHCon 2024.

      Published: October 9, 2023


      NOAH Night Tickets – SPF Grateful

      Want to attend NOAH Night but tickets don’t fit your budget? Don’t worry, you can still join in the celebration!

      Select the “SPF Grateful” ticket level, and give what you can at checkout:

      https://app.donorview.com/RpPP1

      Published: October 9, 2023


      Announcing The NOAH Night Red Carpet!

      The NOAH Night Red Carpet is ready for guests, and we can’t wait to see who will arrive first…

      Anyone with a ticket to NOAH Night can walk the Red Carpet! Send your full-body photo to marketing@3.19.125.119 to join in on the fun.

      www.albinism.org/NOAHNight

      Published: October 9, 2023


      • FYI: TELUS Remote Work Opportunities – TELUS International AI has remote work opportunities for people with limited prospects and access to sustainable employment. Learn more: https://www.telusinternational.com/careers/ai-communityPlease note: NOAH is not affiliated with this job opportunity – it is shared as a courtesy to our community. All questions should be directed to TELUS.

      • Have you heard about the twin para-athletes training to compete in the triathlon at the 2024 Paralympic Games? Learn more about Chloe and Judith MacCombe, twins with albinism from Northern Ireland, in their recent feature on BBC news: https://www.bbc.com/news/uk-northern-ireland-66738375

      • NOAH Community member Dan Ankeman recently had an article published in the American Journal of Law and Equality. The article, titled “HOW UNFOUNDED FEAR DISENFRANCHISES VOTERS WITH DISABILITIES,” discusses the “persistent gap in voter participation between those with and without disabilities in the United States that has not been remedied by the Americans with Disabilities Act or other federal protections for voters with disabilities…” Congratulations, Dan! Interested in reading Dan’s article? Check it out at: https://direct.mit.edu/ajle/article/doi/10.1162/ajle_a_00055/117630/HOW-UNFOUNDED-FEAR-DISENFRANCHISES-VOTERS-WITH

      • WMAR-2 News Baltimore recently featured an interview with NOAH community member and creator of the Rebokeh app, Rebecca Rosenberg. Rebecca created the app specifically for low-vision users after identifying a gap in assistive technology, with most products being geared towards those who are legally blind. Check out the interview: https://www.youtube.com/watch?v=s4oivqtyR1s 

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: October 9, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Thursday: Teen Connections

      October 12th at 8:00pm ET // 5:00pm PT

      Fall is here! The leaves are changing and the days are getting shorter! Before you hibernate for the evening, join us for our Teen Connections call this Thursday, October 12th at 8:00 PM ET// 5:00 PM PT.

      www.albinism.org/NOAH-Connections/#teens

      Published: October 9, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: October 9, 2023

      Tuesday, October 17th:
      NOAH Connections: Aging with Albinism
      Wednesday, October 18th:
      NOAH Workshops: Grandparenting a Child with Albinism
      NOAH Connections: Young Adults
      Thursday, October 19th:​​​​​​​
      NOAH Connections: Adults
      Tuesday, October 24th:
      NOAH Connections: Parenting without Pigment
      Thursday, October 26th:
      NOAH Connections: Teens
      Wednesday, November 1st:
      NOAH Connections: Young Adults
      Thursday, November 2nd:​​​​​​​
      NOAH Connections: Adults

      Last Chance to Submit Your Talent!

      PWAs, we know you have some fun and exciting talents to share…so don’t miss out on the chance to be included in the NOAH Has Talent! Talent Showcase at NOAH Night, sponsored by Epstein | Ostrove!! 

      Submissions are due TODAY!

      www.albinism.org/NOAHNight/#talent​​​​​​​

      ​​​​​​​Published: October 2, 2023


      Are you interested in serving on the NOAH Research Program Committee?

      Applications are currently being accepted to invite new members to NOAH’s Research Program Committee.


      For more information or to apply, visit: www.albinism.org/research/committee

      Since 1982, NOAH has supported ongoing research that could provide positive outcomes or interventions for those seeking them within the albinism community. The NOAH Research Program is committed to becoming a leading voice in albinism research by funding impactful research that will help develop a greater understanding of albinism and build a community of top-notch researchers who are engaged with the albinism community. 

      The NOAH Research Program Committee is tasked with the overall management of the grant review process, making appropriate recommendations on research-oriented content and program offerings, and promoting community engagement/fundraising efforts.

      NOAH is currently seeking applicants from across our diverse community for nomination to the NOAH Research Program Committee. Are you ready to help shape research and answer questions most important to people with albinism?

      Visit 

      www.albinism.org/research/committeeto apply.

      Published: October 2, 2023


      Donté & Sonja’s Popcorn Fundraiser Update!

      NOAH Board Chair Donté Mickens and Board Member Sonja Harris both hosted a fundraiser for NOAH last week. In total, they sold $2,355 worth of popcorn, which means they raised over $1,000 for NOAH!

      Thank you, Sonja & Donté!

      Published: October 2, 2023


      Grandparenting a Child with Albinism

      Grandparents – join Sheila Adamo, LCSW, CADC, on Wednesday, October 18th, for a workshop that will provide information, guidance, and support for grandparents of children with albinism of all ages. We will explore typical emotions and discuss strategies to help the family adjust and thrive.

      Register by October 16th:
      www.albinism.org/workshops

      Published: October 2, 2023


      National Blind Sports Month

      October is USABA’s National Blind Sports Month, and we want to see what sports the PWAs in our community enjoy. Share your pictures or videos for the chance to be featured in NOAH’s story throughout October. 

      Learn more about Blind Sports Month events on the USABA website:
      https://www.usaba.org/2023-national-blind-sports-month/

      Published: October 2, 2023


      • Volunteers, including NOAH community members Tricia Thomas, Drake Thomas, and Lee Laughlin, recently offered a helping hand at Lions Camp Pride in New Durham, NH. This crew helped to straighten up the Arts and Crafts building that our campers enjoy during NOAH Family Camp. Great job, everyone!
        ​​​​​​​Check out the photo in our recent Facebook post.

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: October 2, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      October 4th at 9:00pm ET // 6:00pm PT

      Break out the pumpkin spice, it is that time of year again! Whether you are pro or no to the Fall phenomenon, break out your fav beverage and spill the tea with us this Wednesday, October 4th from 9:00 PM ET // 6:00 PM PT!

      www.albinism.org/NOAH-Connections/#young-adults

      Published: October 2, 2023


      Thursday: Adult Connections

      October 5th at 9:00pm ET // 6:00pm PT

      Don’t Panic! The leaves on the trees may be changing but Fall just started. Catch your Autumn highlights and simmer in for a relaxing conversation this Thursday, October 5th from 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#adults

      Published: October 2, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: October 2, 2023

      Thursday, October 12th:
      NOAH Connections: Teens 
      Tuesday, October 17th:
      NOAH Connections: Aging with Albinism
      Wednesday, October 18th:
      NOAH Workshops: Grandparenting a Child with Albinism
      NOAH Connections: Young Adults
      Thursday, October 19th:​​​​​​​
      NOAH Connections: Adults
      Thursday, October 26th:
      NOAH Connections: Teens

      Yom Kippur

      Wishing a meaningful Yom Kippur to all in our community who observe.

      ​​​​​​​Published: September 25, 2023


      Are You Interested in Albinism Research?

      The NOAH Research Committee is excited to share the following video, which offers a glimpse of the National Eye Institute (NEI) facility and provides information about albinism research being conducted at NEI on the National Institutes of Health (NIH) campus in Bethesda, MD. 

      https://youtu.be/wr-pAYi6UN8

      A special “Thank you” to the NEI Communications staff for their expert guidance; to Aman George (Staff Scientist at NEI) for being our host on the video; and to NOAH Research Committee member Kerry Goetz (Associate Director; NEI Office of Data Science & Health Informatics, NIH) for coordinating this special partnership opportunity for NOAH.

      If you’d like more information about NOAH’s support of albinism research through the NOAH Research Program, please join the conversation at the NOAH Research Program Coffee Chat, on September 26th at 7pm ET // 4pm PT. We will be discussing the NOAH Research Program, sharing details about our Research Program Grant process and providing information and insight about NOAH’s ongoing support of albinism research and how you can GET INVOLVED.

      Sign up today:
      www.albinism.org/NOAH-Connections/#research

      Published: September 25, 2023


      Donté’s Popcorn Fundraiser!

      NOAH Board Chair Donté Mickens is hosting a fundraiser for NOAH. From September 27th – October 1st, purchase popcorn from his Double Good Pop-Up and 50% of the profits will go directly to NOAH. 

      Dontés Fundraiser: https://bit.ly/462Bcxd

      Published: September 25, 2023


      Bioptic Photo Challenge!

      You may have heard that some PWAs use a bioptic telescope to help them drive…but did you know there are so many other uses for this handy device?!

      PWAs – do YOU use a bioptic? We invite you to share a photo of you using a bioptic for activities other than driving on our recent Facebook post!

      Published: September 25, 2023


      Save the Date & Start Reading!

      NOAH PWA Book Club is back, and we are already looking forward to our next meeting. Start reading “Hello Beautiful” by Ann Napolitano and mark your calendar to join us for a book discussion on Monday, November 13th at 9pm ET // 6pm PT.

      www.albinism.org/NOAH-Connections/#pwa-book-club

      Published: September 25, 2023


      NOAH Night Updates!

      Last Chance to Submit Your Talent!

      PWAs, we know you have some fun and exciting talents to share…so don’t miss out on the chance to be included in the NOAH Has Talent! Talent Showcase at NOAH Night, sponsored by Epstein | Ostrove!! 

      Submissions are due TODAY!

      www.albinism.org/NOAHNight/#talent​​​​​​​

      Published: September 25, 2023


      Thank you, ShadeSuits!

      ShadeSuits is a continued supporter of our New Parent Program, and we are pleased to include them as NOAH Night Sponsors. In honor of NOAH’s 41st birthday celebration, you can use code SS30 for 30% off your next purchase at www.shadesuits.com

      Want to see YOUR name in lights? Learn more about NOAH Night sponsorship opportunities today:
      albinism.org/NOAHNight/#sponsor

      Published: September 25, 2023


      One Week Left to Submit Your Art or Writing!

      Calling all kids & adults with albinism – break out the crayons, break out the markers, grab your pen and paper; it’s that time again! 

      Check out Spiffy’s Creative Arts Contest and submit by October 1stfor the chance to be featured in Albinism InSight!

      www.albinism.org/NOAHNight/#spiffy

      Published: September 25, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: September 25, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Aging with Albinism

      September 26th at 5:00pm ET // 2:00pm PT

      Aging with Albinism is Back!

      Older PWAs, we look forward to seeing you this Tuesday, September 26th, for our next session of Aging with Albinism. We can’t wait to reconnect, meet new members, and hear about your summer!

      New to the group? Now is the perfect time to sign up! 
      www.albinism.org/NOAH-Connections/#aging

      Published: September 25, 2023


      Tuesday: Research Program Coffee Chat

      September 26th at 7:00pm ET // 4:00pm PT

      JOIN THE CONVERSATION

      Are you interested in albinism research?

      Join the NOAH Research Program Committee this Tuesday, September 26th at 7pm ET // 4pm PT for a call to discuss the program, share details about our Research Program Grant process and provide information and insight about NOAH’s ongoing support of albinism research and how you can GET INVOLVED.

      Sign up today:
      www.albinism.org/NOAH-Connections/#research

      Published: September 25, 2023


      Thursday: Teen Connections

      September 28th at 8:00pm ET // 5:00pm PT

      Teens, we can’t wait to see you at our next session of Teen Connections! Join us for friendship & fun this Thursday, September 28th at 8pm ET // 5pm PT.

      New to the group? There’s still time to sign up!

      www.albinism.org/NOAH-Connections/#teens

      Published: September 25, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: September 25, 2023

      Wednesday, October 4th:
      NOAH Connections: Young Adults
      Thursday, October 5th:​​​​​​​
      NOAH Connections: Adults
      Thursday, October 12th:
      NOAH Connections: Teens 
      Wednesday, October 18th:
      NOAH Workshops: Grandparenting a Child with Albinism
      NOAH Connections: Young Adults
      Thursday, October 19th:​​​​​​​
      NOAH Connections: Adults

      Happy LatinX & Hispanic Heritage Month!

      Hispanic & LatinX PWAs – how do you stay connected to your heritage or honor your culture? Send a story, photo, or video to eaubrey@3.19.125.119 to be featured on the NOAH Website and social media this month and beyond.

      www.albinism.org/heritage

      ​​​​​​​Published: September 18, 2023


      Are You Interested in Albinism Research?

      Join the NOAH Research Program Committee on September 26th at 7pm ET // 4pm PT for a call to discuss the program, share details about our Research Program Grant process and provide information and insight about NOAH’s ongoing support of albinism research and how you can GET INVOLVED.

      Sign up today:
      www.albinism.org/NOAH-Connections/#research

      Published: September 18, 2023


      NOAH Needs YOU…to Volunteer!

      NOAHCon 2024 is less than one year away, and as anyone who has attended a NOAH national conference knows, it takes a village to plan and execute this significant event. 

      We have several volunteer positions available – learn more and apply today at albinism.org/volunteer/#NOAHCon

      Published: September 18 2023


      NOAH Night Updates!

      Thank You, 

      Epstein | Ostrove!

      We are pleased to share that Epstein | Ostrove is a NOAH Night 2023 Diamond Sponsor. Thank you, Epstein | Ostrove for your continued support of NOAH!

      Want to see YOUR name in lights?! We have exciting sponsorship opportunities available for local businesses. 

      Learn more: albinism.org/NOAHNight/#sponsor

      Published: September 18, 2023


      One Week Left to Submit Your Talent!

      Dance, sing, yo-yo, your choice! We know you’ve got the talent; now is your chance to show everyone else. 

      Send in your talent submission by September 25th for the chance to be featured in our lineup for this year’s Epstein | Ostrove NOAH Has Talent! showcase!

      www.albinism.org/NOAHNight/#talent

      Published: September 18, 2023


      Two Weeks Left to Submit Your Art or Writing!

      Calling all kids & adults with albinism – break out the crayons, break out the markers, grab your pen and paper; it’s that time again! 

      Check out Spiffy’s Creative Arts Contest and submit by October 1stfor the chance to be featured in Albinism InSight!

      www.albinism.org/NOAHNight/#spiffy

      Published: September 18, 2023


      • Have you heard about LEGO Braille Bricks? Originally distributed only to specific organizations working with children with visual impairments, LEGO Braille Bricks are now available to the public as of September 1st. LEGO says the bricks were created as “a fun and playful way to introduce braille to anyone who wants to learn.”Learn more: https://www.lego.com/en-us/braille-bricks

      • In honor of Hispanic & LatinX Heritage Month, the film “Malpaso”will stream for free Sept. 16-23. “Malpaso” centers around two orphaned siblings in the DR, one with albinism. https://www.lacla.org/cine-nepantla-2023Please note: some themes in the film may not be suitable for all viewers.

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: September 18, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Parenting without Pigment

      September 19th at 9:00pm ET // 6:00pm PT

      Back to School Chatter!

      Parents with albinism, join Kathi Garza and friends this Tuesday, September 19th at 9pm ET // 6pm PT to chat about parenting during the back-to-school season.

      New to the group? Sign up today!
      www.albinism.org/NOAH-Connections/#pwp

      Published: September 18, 2023


      Wednesday: Young Adult Connections

      September 20th at 9:00pm ET // 6:00pm PT

      Looking for a quiet night with friends and away from the crazy in your life? You are in luck! We’re having another Young Adult Connections session this Wednesday, September 20th. Join us for a night of fun and relaxation starting at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#young-adults

      Published: September 18, 2023


      Thursday: Adult Connections

      September 21st at 9:00pm ET // 6:00pm PT

      Do you remember the 21st night of September? Get your Earth Wind and Fire going during our upcoming Adult Connections session! 

      Join us this Thursday, September 21st at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#adults

      Published: September 18, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: September 18, 2023

      Tuesday, September 26th:
      NOAH Connections: Aging with Albinism
      Thursday, September 28th:
      NOAH Connections: Teens 
      Wednesday, October 4th:
      NOAH Connections: Young Adults
      Thursday, October 5th:​​​​​​​
      NOAH Connections: Adults
      Thursday, October 12th:
      NOAH Connections: Teens 
      Wednesday, October 18th:
      NOAH Workshops: Grandparenting a Child with Albinism
      NOAH Connections: Young Adults
      Thursday, October 19th:​​​​​​​
      NOAH Connections: Adults

      National Day of Service and Remembrance

      Today we observe the National Day of Service and Remembrance, in memory of the nearly 3,000 people who lost their lives on September 11, 2001. 

      ​​​​​​​Published: September 11, 2023


      NOAH Night Tickets Available!

      NOAH’s 41st birthday is just around the corner, and we can’t wait to celebrate with YOU!

      Check out our many ticket options (including fun add-ons) and grab yours today:
      www.albinism.org/NOAHNight

      Published: September 11, 2023


      Share Your Skills for NOAH Night!

      NOAH Night is October 15th, and there are multiple chances for PWAs of all ages to share their skills!

      Do you have a unique talent? Submit a video for the NOAH Has Talent! showcase!

      Is writing or visual art more your style? Check out Spiffy’s Creative Arts Contest!

      Submissions for the NOAH Has Talent! Showcase are due September 25th and submissions for Spiffy’s Creative Arts Contest are due October 1st.

      Learn more and submit at:

      www.albinism.org/noahnight

      Published: September 11 2023


      Share Your Back to School Pics!

      It’s September, which means our NOAH students and educators are back to school! Whether your first day was a while ago, or you’ve just started for the year, we invite you to share your back-to-school pics with us on our recent Facebook post.

      Published: September 11, 2023


      NOAH’s Back to School Library!

      Parents & caregivers – we want to hear from YOU! ​​​​​​​

      How do you/your child share info about albinism with their teachers or classmates at the beginning of the school year? Do you/they write a letter, make a presentation, or go a different route?

      Submit your sample letters, presentations, ideas, etc. (including your child’s age/grade, and photos/videos if applicable!) to bts@3.19.125.119 for the chance to be added to our Back to School Library!

      www.albinism.org/bts

      Published: September 11, 2023


      • Did you know that our friends at the Lighthouse Guild offer a monthly tele-support call for parents of kids with albinism? The next call will be held Thursday, September 21st at 8:30pm ET // 5:30pm PT.Learn more: http://3.19.125.119/wp-content/uploads/2023/08/NOAH.pdf

      • Have you heard about the new movie streaming on Netflix called “Can You See Us?” This coming-of-age drama centers around a young Zambian boy with albinism and is based on a true story. If you’ve watched the film, let us know what you thought on our recent Facebook post

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: September 11, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TONIGHT: PWA Book Club

      September 11th at 9:00pm ET // 6:00pm PT

      Book Club members, join us TONIGHT at 9pm ET // 6pm PT to discuss Remarkably Bright Creatures by Shelby Van Pelt!

      www.albinism.org/NOAH-Connections/#pwa-book-club

      Published: September 11, 2023


      Thursday: Teen Connections

      September 14th at 8:00pm ET // 5:00pm PT

      Make any new friends at school? No fear, you can always make new ones or catch up with your old friends at Teen Connections! 

      Join us this Thursday, September 14th at 8:00 PM ET // 5:00 PM PT.

      www.albinism.org/NOAH-Connections/#teens

      Published: September 11, 2023


      Thursday: Establishing Independence Workshop

      September 14th at 8:30pm ET // 5:30pm PT

      Parents, grandparents, and caregivers, you won’t want to miss our next NOAH Workshop with Sheila Adamo on Thursday, September 14th! In this session, we will discuss common challenges many parents face as a child with albinism gains independence.

      Register by September 12th:
      www.albinism.org/workshops

      Published: September 11, 2023


      Thursday: Teen STEM – Python Tutorial

      September 14th at 9:00pm ET // 6:00pm PT

      Teens, did you join us for Sarah & Derek’s Python tutorial in July? We are excited to share that they will be back to continue sharing their knowledge after our Teen Connections call on September 14th!

      www.albinism.org/NOAH-Connections/#python

      Published: September 11, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: September 11, 2023

      Sunday, September 17th:
      NOAH Connections: Disney Family Trivia
      Tuesday, September 19th:
      NOAH Connections: Parenting without Pigment
      Wednesday, September 20th:
      NOAH Connections: Young Adults
      Thursday, September 21st:​​​​​​​
      NOAH Connections: Adults
      Tuesday, September 26th:
      NOAH Connections: Aging with Albinism
      Thursday, September 28th:
      NOAH Connections: Teens 
      Wednesday, October 4th:
      NOAH Connections: Young Adults
      Thursday, October 5th:​​​​​​​
      NOAH Connections: Adults

      Pop Quiz!

      Do you know what year NOAH Adult Weekend was held in New Orleans??

      Check out this #tbt photo collage from the fun times shared amongst adults with albinism in Crescent City.

      Want to be a part of the memories for Adult Weekend this fall? Register by September 8th to join us in Minneapolis:

      www.albinism.org/adult-weekend

      ​​​​​​​Published: August 28, 2023


      Establishing Independence

      Parents, grandparents, and caregivers, you won’t want to miss our next NOAH Workshop with Sheila Adamo on Thursday, September 14th! In this session, we will discuss common challenges many parents face as a child with albinism gains independence.

      Register by September 12th:
      www.albinism.org/workshops

      Published: August 28, 2023


      Share Your Skills for NOAH Night!

      NOAH Night is October 15th, and there are multiple chances for PWAs of all ages to share their skills!

      Do you have a unique talent? Submit a video for the NOAH Has Talent! showcase!

      Is writing or visual art more your style? Check out Spiffy’s Creative Arts Contest!

      Submissions for the NOAH Has Talent! Showcase are due September 25th and submissions for Spiffy’s Creative Arts Contest are due October 1st.

      Learn more and submit at:

      www.albinism.org/noahnight

      Published: August 28, 2023


      Up Hill Both Ways: Let’s Talk Back to School!

      Parents, grandparents, and caregivers join Kathi Garza, M.Ed, TVI on Wednesday, September 6th to chat about all things “back to school!”

      Register today!
      www.albinism.org/NOAH-Connections/#bts

      Published: August 28, 2023


      Disney Family Trivia!

      Are you a Disney fan? Show off your trivia prowess at Disney Trivia with Certified Child Life Specialist Jocelyn Leworthy on Sunday, September 17th at 7:30pm ET // 4:30pm PT

      PWAs of all ages and their families are welcome to join, so sign up today!!
      www.albinism.org/NOAH-Connections/#disney

      Published: August 28, 2023


      • Did you know that our friends at the Lighthouse Guild offer a monthly tele-support call for parents of kids with albinism? The next call will be held Thursday, September 21st at 8:30pm ET // 5:30pm PT.Learn more: http://3.19.125.119/wp-content/uploads/2023/08/NOAH.pdf

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: August 28, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Thursday: Teen Connections

      August 31st at 8:00pm ET // 5:00pm PT

      Teens, you’re up next! Whether you’re back to school already, or squeezing in as much fun as you can in the last few moments of summer, mark your calendar to join us this Thursday, August 31st at 8pm ET // 5pm PT!

      www.albinism.org/NOAH-Connections/#teens

      Published: August 28, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: August 28, 2023

      Wednesday, September 6th:
      NOAH Connections: Young Adults
      NOAH Connections: Up Hill Both Ways: Let’s Talk Back to School with Kathi Garza
      Thursday, September 7th:​​​​​​​
      NOAH Connections: Adults
      Monday, September 11th:
      NOAH Connections: PWA Book Club
      Thursday, September 14th:
      NOAH Workshops: Parents & Caregivers
      NOAH Connections: Teens
      NOAH Connections: Teens STEM Python Tutorial
      Sunday, September 17th:
      NOAH Connections: Disney Family Trivia
      Tuesday, September 19th:
      NOAH Connections: Parenting without Pigment
      Wednesday, September 20th:
      NOAH Connections: Young Adults
      Thursday, September 21st:​​​​​​​
      NOAH Connections: Adults
      Tuesday, September 26th:
      NOAH Connections: Aging with Albinism

      Adult Weekend 2023

      Thinking about joining us for Adults with Albinism Weekend this fall? Hear from fellow adult PWAs who are looking forward to seeing you in Minneapolis for shenanigans and fun!

      >>Check out the video

      Learn more and register by September 8th:
      www.albinism.org/adult-weekend

      ​​​​​​​Published: August 21, 2023


      Deadline Extended!

      There’s still time to share your perspective for the next issue of Albinism InSight. Check out the Autumn Features, or submit something about daily living, advocacy, technology, or another topic included in every issue.

      Learn more and submit by August 25th
      www.albinism.org/ai/call-for-content

      Published: August 21, 2023


      Thank you, USABA!

      This summer, NOAH partnered with the United States Association of Blind Athletes to bring the sport of Goalball to its campers and parents at NOAH Family Summer Camp. Learning Goalball from Team USA Paralympic Goalball athlete Marybai Huking was such a treat!

      Published: August 21, 2023


      Thank You, Camp Donors!

      Join us in sending a big NOAH shout-out to all the businesses that donated to NOAH Family camp this summer. 

      Thank you for your support!

      Published: August 21, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: August 21, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TONIGHT: Parents of Newly-Diagnosed and Young Children with Albinism Workshop

      August 21st at 8:30pm ET // 5:30pm PT

      Registered Attendees: join Sheila Adamo TONIGHT at 8:30pm ET // 5:30pm PT to be welcomed into a community that will share and learn about adapting to the new role of a parent of a child with albinism. 

      Learn more about other upcoming workshops:
      www.albinism.org/workshops

      www.albinism.org/NOAH-Connections/#teens

      Published: August 21, 2023


      Tuesday: LGBTQ+ and Allies Connections

      August 22nd at 8:30pm ET // 5:30pm PT

      Join Sarah Kane and fellow LGBTQ+ PWAs and allies on Tuesday, August 22nd at 8:30pm ET // 5:30pm PT for our next session of NOAH Connections just for YOU.

      New to the group? This is the perfect chance to join us for the first time!
      www.albinism.org/NOAH-Connections/#lgbtq

      Published: August 21, 2023


      Wednesday: Young Adult Connections

      August 23rd at 9:00pm ET // 6:00pm PT

      Jive talkin’ or stayin’ alive! Got any Saturday Night Fever funkadelic dance moves to share? Share your groove (and get in that workout) this Wednesday, August 23rd at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#young-adults

      Published: August 21, 2023


      Thursday: Adult Connections

      August 24th at 9:00pm ET // 6:00pm PT

      Once upon a time…

      Whether shooting for the stars or being the king/queen of your domain, share the rest of your story this Thursday, August 24thstarting at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#adults

      Published: August 21, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: August 21, 2023

      Thursday, August 31st:
      NOAH Connections: Teens
      Wednesday, September 6th:
      NOAH Connections: Young Adults
      Thursday, September 7th:​​​​​​​
      NOAH Connections: Adults
      Monday, September 11th:
      NOAH Connections: PWA Book Club
      Thursday, September 14th:
      NOAH Workshops: Parents & Caregivers
      NOAH Connections: Teens
      NOAH Connections: Teens STEM Python Tutorial
      Wednesday, September 20th:
      NOAH Connections: Young Adults
      Thursday, September 21st:​​​​​​​
      NOAH Connections: Adults
      Tuesday, September 26th:
      NOAH Connections: Aging with Albinism

      Congratulations, Charlotte!

      Join us in congratulating NOAH community member Charlotte H., who was selected to receive a scholarship to Space Camp for Visually-Impaired Students this year. 

      www.albinism.org/space-camp

      ​​​​​​​Published: August 14, 2023


      Last Chance to Register!

      Parents & caregivers of newly-diagnosed or young children with albinism, join Sheila Adamo next Monday, August 21st at 8:30pm ET // 5:30pm PT to be welcomed into a community that will share and learn about adapting to the new role of a parent of a child with albinism. 

      Register by this Saturday, August 19th to reserve your spot!
      www.albinism.org/workshops

      Published: August 14, 2023


      IAAD Event Shout-Outs!

      Join us in sending a special shoutout to #TeamJAK and NI NOAH Walks for NOAH for each hosting fundraising walks in Illinois in honor of International Albinism Awareness Day this June. 

      Both teams’ IAAD walks gathered the community, collected donations, and raised awareness of albinism!

      Thank you, #TeamJAK and NI NOAH Walks for NOAH for your ongoing support of NOAH!

      Published: August 14, 2023


      Memphis Top 10 Hits!

      On the fence about attending Adult Weekend this fall? Check out Kathi Garza’s article from Albinism InSight Winter 2021 to hear more about her Adult Weekend experience in Memphis, and read the list of top ten hits compiled with the help of fellow attendees.

      Read the article.

      Learn more about our plans for Adult Weekend 2023 and register by September 8th:
      www.albinism.org/adult-weekend

      Published: August 14, 2023


      LGBTQ+ and Allies Connections!

      Join Sarah Kane and fellow LGBTQ+ PWAs and allies on Tuesday, August 22nd at 8:30pm ET // 5:30pm PT for our next session of NOAH Connections just for YOU.

      New to the group? This is the perfect chance to join us for the first time!
      www.albinism.org/NOAH-Connections/#lgbtq

      Published: August 14, 2023


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: August 14, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Thursday: Teen Connections

      August 17th at 8:00pm ET // 5:00pm PT

      Keep calm and shine on! Summer is coming to a close but that doesn’t mean the sun goes away! Tell us how you are keeping the shining light in your life this Thursday, August 17th at 8:00 PM // 5:00 PM PT.

      www.albinism.org/NOAH-Connections/#teens

      Published: August 14, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: August 14, 2023

      Monday, August 21st:
      NOAH Workshops: Parents & Caregivers
      Tuesday, August 22nd:
      NOAH Connections: LGBTQ+ and Allies
      Wednesday, August 23rd:
      NOAH Connections: Young Adults
      Thursday, August 24th:​​​​​​​
      NOAH Connections: Adults
      Thursday, August 31st:
      NOAH Connections: Teens
      Thursday, September 7th:​​​​​​​
      NOAH Connections: Adults
      Monday, September 11th:
      NOAH Connections: PWA Book Club
      Thursday, September 14th:
      NOAH Workshops: Parents & Caregivers
      NOAH Connections: Teens
      NOAH Connections: Teens STEM Python Tutorial

      NOAH Night Planning Committee!

      NOAH Night is just around the corner, and we need YOUR help to make it a success!

      PWAs & family members, share your ideas on the NOAH Night Planning Committee leading up to the big event on NOAH’s 41st birthday, October 15th!

      Interested in joining? Sign up today:
      https://app.donorview.com/e858q

      ​​​​​​​Published: August 7, 2023


      NOAH Workshop – August 21st!

      Parents & caregivers of newly-diagnosed or young children with albinism, join Sheila Adamo on August 21st at 8:30pm ET // 5:30pm PT to join a community that will share and learn about adapting to the new role of a parent of a child with albinism. 

      Register by August 19th to reserve your spot!
      www.albinism.org/workshops

      Published: August 7, 2023


      Get to Know the NOAH Board: Rapid-Fire Questions!

      You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

      Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

      This week, hear from board members Torey Alford & Elizabeth Drury, and check out our Getting to Know the Board page to see our full collection of board member videos!

      www.albinism.org/board-of-directors/gtk/

      Published: August 7, 2023


      Thank you, Delta Gamma Foundation!

      Thanks to a Delta Gamma Foundation Grant, NOAH was pleased to be able to offer a discounted registration fee to campers with albinism ages 16 and under for this summer’s NOAH Family Summer Camp!

      Thank you, Delta Gamma Foundation!

      Published: August 7, 2023


      National Eye Exam Month!

      Did you know that August is National Eye Exam Month? Doctor recommendations are one of the most common requests we receive, so if you know of an excellent low-vision optometrist or ophthalmologist, share their info on our Recommend a Medical Professional form!

      https://app.donorview.com/XWjm

      Published: August 7, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: August 7, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      August 9th at 9:00pm ET // 6:00pm PT

      Beach crab or hermit crab? Come share how you’ve been spending the summer away. Join us this Wednesday, August 9th at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#young-adults

      Published: August 7, 2023


      Thursday: Adult Connections

      August 10th at 9:00pm ET // 6:00pm PT

      How are you keeping cool? A splash in the pool or a nice refreshing drink? Turn up the laughs not the heat during our next session, this Thursday, August 10th at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#adults

      Published: August 7, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: August 7, 2023

      Thursday, August 17th:
      NOAH Connections: Teens
      Monday, August 21st:
      NOAH Workshops: Parents & Caregivers
      Wednesday, August 23rd:
      NOAH Connections: Young Adults
      Thursday, August 24th:​​​​​​​
      NOAH Connections: Adults
      Thursday, August 31st:
      NOAH Connections: Teens
      Monday, September 11th:
      NOAH Connections: PWA Book Club
      Thursday, September 14th:
      NOAH Workshops: Parents & Caregivers

      Book Club is Back!

      NOAH’s PWA Book Club is back in action, and we are currently reading Remarkably Bright Creatures by Shelby Van Pelt.

      Grab a copy and join us on Monday, September 11th at 9pm ET // 6pm PT to discuss!

      Sign up today and start reading!
      www.albinism.org/NOAH-Connections/#pwa-book-club

      ​​​​​​​Published: July 31, 2023


      Camp Highlight!

      Did you miss Casey & Esther’s NOAH Camp Takeover earlier this month?

      Worry not! We’ve added all the camp fun as a highlight on our Instagram profile!

      Check it out: www.instagram.com/noahalbinism

      Published: July 31, 2023


      NOAH Research Program – Spotlight!

      Join us in congratulating Principal Investigators Prof. Dr. Michael B. Hoffmann and PD Dr. Wolf Harmening, who are Established Researcher Program Grant Awardees. 

      Drs. Hoffmann & Harmening and their team will utilize high-resolution multimodal imaging to understand the maldevelopment of foveal and binocular vision in albinism.

      Learn more about the NOAH Research Program and 2023 grant awardees:

      www.albinism.org/research

      Published: July 31, 2023


      Get to Know the NOAH Board: Rapid-Fire Questions!

      You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

      Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

      This week, hear from board members Donna Appell & Kris Baker and stay tuned for more videos!

      www.albinism.org/board-of-directors/gtk/

      Published: July 31, 2023


      Adult Weekend 2023!

      After some educational sessions on Saturday, we’ll head out to explore the Mall of America for the afternoon, complete with a round of golf at Rock of Ages Blacklight Mini Golf included in your registration fee!

      Learn more about our Adult Weekend itinerary & register today:
      www.albinism.org/adult-weekend

      Published: July 31, 2023


      • Happy 33rd Anniversary, ADA! 33 years ago on July 26, 1990, the Americans with Disabilities Act (ADA) was signed into law. This historic civil rights law protects the rights of people with disabilities. Learn more about the ADA: https://adata.org/ada-timeline

      • Rare Artist Scholarship Open for Entries: Submissions are open for the Rare Artist Scholarship now through August 31st. This year, a new medium has been added – poetry! Learn more about submissions guidelines: https://rareartist.awardsplatform.com/

      • Toronto, Ontario Casting Call: Jigsaw Casting seeks Blind or Partially sighted Individuals ages 18-65 for a Benefits Campaign in Toronto. Applications are due August 1st at 10am ET. Learn more: https://projectbenefits.castingcrane.com/


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: July 31, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Parenting without Pigment – Prospective Parents

      August 1st at 9:00pm ET // 6:00pm PT

      Let’s taco ‘bout Parenting without Pigment! 

      It’s Taco Tuesday! Come share a meal with us (a taco, if you’d like!) TOMORROW at 9pm ET // 6pm PT. It is time for prospective parents to join us to chat about parenting. If you have any questions, we are here to answer them. 

      Prospective parents & current parents with albinism are welcome to join! Sign up today:
      www.albinism.org/NOAH-Connections/#pwp

      Published: July 31, 2023


      Thursday: Teen Connections

      August 3rd at 8:00pm ET // 5:00pm PT

      Keeping cool this summer?

      Share your style and how you stay chill in this heat this Thursday, August 3rd at 8:00 PM ET // 5:00PM PT

      www.albinism.org/NOAH-Connections/#teens

      Published: July 31, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: July 31, 2023

      Wednesday, August 9th:
      NOAH Connections: Young Adults
      Thursday, August 10th:​​​​​​​
      NOAH Connections: Adults
      Thursday, August 17th:
      NOAH Connections: Teens
      Monday, August 21st:
      NOAH Workshops: Parents & Caregivers
      Monday, September 11th:
      NOAH Connections: PWA Book Club
      Thursday, September 14th:
      NOAH Workshops: Parents & Caregivers

      NOAH Night Planning Committee

      NOAH Night is just around the corner, and we need YOUR help to make it a success!

      PWAs & family members, share your ideas on the NOAH Night Planning Committee leading up to the big event on NOAH’s 41st birthday, October 15th!

      Interested in joining? Sign up today:

      https://app.donorview.com/e858q

      ​​​​​​​Published: July 24, 2023


      Thank you, Alison!

      When author Alison Nenon released her children’s book, Alfie Sees Love, about a rhinoceros with albinism, she pledged to donate $1 to NOAH for each book sold. One year later, 1,000 copies of Alfie Sees Love have been purchased, and Alison has donated $1,000 in proceeds to NOAH.

      Congratulations, Alison, on the incredible success of your book, and thank you for using part of the proceeds to support NOAH!

      https://www.alfieseeslove.com/

      Published: July 24, 2023


      NOAH Research Program – Spotlight!

      Join us in congratulating Principal Investigator Dr. Alexandra Rebsam, Ph.D., who is an Established Researcher Program Grant Awardee. 

      Dr. Rebsam and team aim to find the mechanisms in albinism leading to the altered retinal development, downstream of tyrosinase, known to be at the origin of OCA1.

      Learn more about the NOAH Research Program and 2023 grant awardees:

      www.albinism.org/research

      Published: July 24, 2023


      NOAH Workshop:
      ​​​​​​​August 21st!

      Parents & caregivers of newly-diagnosed or young children with albinism, you won’t want to miss our next workshop!

      Join Sheila Adamo on August 21st at 8:30pm ET // 5:30pm PT to join a community that will share and learn about adapting to the new role of a parent of a child with albinism. 

      Register by August 19th to reserve your spot!
      www.albinism.org/workshops

      Published: July 24, 2023


      Get to Know the NOAH Board: Rapid-Fire Questions!

      You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

      Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

      This week, hear from board members Donté Mickens & Emma Brinkley and stay tuned for more videos!

      www.albinism.org/board-of-directors/gtk/

      Published: July 24, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: July 24, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adults

      July 26th at 9:00pm ET // 6:00pm PT

      Have you taken a zen moment for yourself to stop and smell the flowers?

      Tell us about your latest tranquil moments during our next Young Adult Connections call this Wednesday, July 26th at 9:00pm ET // 6:00pm PT.

      www.albinism.org/NOAH-Connections/#young-adults

      Published: July 24, 2023


      Thursday: Kids & Teens – Ice Cream in a Bag

      July 27th at 9:00pm ET // 6:00pm PT

      Kids & teens, you’re invited to a fun and simple summer activity with your NOAH friends! Join Certified Child Life Specialist Jocelyn Leworthy to make ice cream in a bag on Thursday, July 27th at 7:30pm ET // 4:30pm PT.

      Kids & teens of all ages are welcome to join, so sign up today:
      www.albinism.org/NOAH-Connections/#ice-cream

      Published: July 24, 2023


      Thursday: Adult Connections

      July 27th at 9:00pm ET // 6:00pm PT

      Beat the heat with some cool treats, including the treat of conversation. You bring the ice cream and we’ll bring the fun. Join us this Thursday, July 27th at 9:00pm ET // 6:00pm PT.

      www.albinism.org/NOAH-Connections/#adults

      Published: July 24, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: July 24, 2023

      Tuesday, August 1st:
      NOAH Connections: Parenting without Pigment – Prospective Parents
      Thursday, August 3rd:
      NOAH Connections: Teens
      Wednesday, August 9th:
      NOAH Connections: Young Adults
      Thursday, August 10th:​​​​​​​
      NOAH Connections: Adults
      Thursday, August 17th:
      NOAH Connections: Teens
      Monday, August 21st:
      NOAH Workshops: Parents & Caregivers
      Monday, September 11th:
      NOAH Connections: PWA Book Club
      Thursday, September 14th:
      NOAH Workshops: Parents & Caregivers

      Adult PWAs – Will We See YOU in Minneapolis?

      Join us in Minneapolis, MN, to make memories and forge the lifelong friendships the NOAH community is known for at Adult Weekend, Sept. 29 – Oct. 1, 2023.

      Check out our itinerary and register by September 8th:
      www.albinism.org/adult-weekend

      ​​​​​​​Published: July 17, 2023


      NOAH Night Planning Committee

      NOAH Night is just around the corner, and we need YOUR help to make it a success!

      PWAs & family members, share your ideas on the NOAH Night Planning Committee leading up to the big event on NOAH’s 41st birthday, October 15th!

      Interested in joining? Sign up today:

      https://app.donorview.com/e858q

      Published: July 17, 2023


      NOAH Research Program – Spotlight!

      Join us in congratulating Principal Investigator Dr. Jay Self, BM, FRCOphth, Ph.D., and Senior Post-doc Researcher Dr. Eloise Keeling, BSc, Ph.D., who are Established Researcher Program Grant Awardees. 

      Dr. Self and his team are utilizing high-throughput drug screening to identify potential new targets for treatment of albinism symptoms.

      ​​​​​​​Learn more about the NOAH Research Program and 2023 grant awardees: www.albinism.org/research

      Published: July 17, 2023


      Camp Takeovers!

      NOAH Family Summer Camp started this Saturday, and we have Casey & Esther sharing an inside look at what the campers are up to.

      Check out an inside look at NOAH Camp on NOAH’s social media story:

      www.instagram.com/noahalbinism

      Published: July 17, 2023


      Get to Know the NOAH Board: Rapid-Fire Questions!

      You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

      Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

      This week, hear from board members Brandi Bogan & Sonja Harris and stay tuned for more videos!

      www.albinism.org/board-of-directors/gtk/

      Published: July 17, 2023


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: July 17, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: LGBTQ+ and Allies Connections

      July 19th at 8:30pm ET // 5:30pm PT

      LGBTQ+ PWAs and allies, see you Wednesday! 

      Join us this Wednesday at 8:30pm ET // 5:30pm PT to connect and chat with host Sarah Kane & fellow community members. This is the perfect chance to return to the group or join us for the first time!

      www.albinism.org/NOAH-Connections/#lgbtq

      Published: July 17, 2023


      Thursday: Teen Connections

      July 20th at 8:00pm ET // 5:00pm PT

      Moooo-ve over latest tik-tok challenge, we have a new obsession! It’s called Teen Connections! 

      Don’t worry about the FOMO, you can check it out this Thursday, July 20th at 8:00pm ET // 5:00pm PT

      www.albinism.org/NOAH-Connections/#teens

      Published: July 17, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: July 17, 2023

      Wednesday, July 26th:
      NOAH Connections: Young Adults
      Thursday, July 27th:
      NOAH Connections: Kids & Teens – Ice Cream in a Bag
      NOAH Connections: Adults
      Tuesday, August 1st:
      NOAH Connections: Parenting without Pigment – Prospective Parents
      Thursday, August 3rd:
      NOAH Connections: Teens
      Wednesday, August 9th:
      NOAH Connections: Young Adults
      Thursday, August 10th:​​​​​​​
      NOAH Connections: Adults
      Monday, August 21st:
      NOAH Workshops: Parents & Caregivers
      Monday, September 11th:
      NOAH Connections: PWA Book Club
      Thursday, September 14th:
      NOAH Workshops: Parents & Caregivers

      NOAH Night Planning Committee

      NOAH Night is just around the corner, and we need YOUR help to make it a success!

      PWAs & family members, share your ideas on the NOAH Night Planning Committee leading up to the big event on NOAH’s 41st birthday, October 15th!

      Interested in joining? Sign up today:

      https://app.donorview.com/e858q

      ​​​​​​​Published: July 10, 2023


      NOAH Research Program – Spotlight!

      Join us in congratulating Principal Investigator Jonathan Hale Zippin, M.D., Ph. D., F.A.A.D., who is an Established Researcher Program Grant Awardee. 

      Dr. Zippin and team are investigating “soluble adenylyl cyclase inhibitors to improve ocular pigmentation.”

      Learn more about the NOAH Research Program and 2023 grant awardees: www.albinism.org/research

      Published: July 10, 2023


      Adult Weekend Activities Spotlight!

      First up on the Adults with Albinism Weekend 2023 itinerary – join us for tasty food with even better company. Friday night, we’ll have dinner at Cowboy Jack’s, included in your registration fee!

      Learn more about our itinerary & register today:
      www.albinism.org/adult-weekend

      Published: July 10, 2023


      Camp Takeovers!

      NOAH Family Summer Camp start this Saturday, and we have some fun takeovers lined up to give you an inside look.

      First, check out Executive Director Karen Bly’s travel day on Thursday. Next, get ready for a peek into NOAH camp with Casey and Esther starting this Saturday.

      Check out what they are up to on NOAH’s social media story:

      www.instagram.com/noahalbinism

      Published: July 10, 2023


      Get to Know the NOAH Board: Rapid-Fire Questions!

      You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

      Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

      This week, hear from board members Andrew Sartorius & Elliot Ostrove and stay tuned for more videos!

      www.albinism.org/board-of-directors/gtk/

      Published: July 10, 2023


      Congratulations, Lee!

      Have you been following along with NOAH Co-Founder Lee Laughlin’s “Miles for NOAH” fundraiser challenge? Join us in congratulating Lee as she has officially reached her stretch fundraiser and mileage goal! Lee has been working tirelessly for nearly two months to reach her goal, and we can’t thank her enough for her continued support.

      ​​​​​​​​​​​​​​Feeling inspired by Lee? We are! Check out her fundraiser and start your own today: 

      Lee’s Miles for NOAH

      Published: July 10, 2023


      FUNdraising Advice from Rodney

      Rodney Ignacio has been hosting the SoCal NOAHs Bowl-a-Thon since 2014, and he shared some of his insight as a veteran event host. Check out what he has to say in our recent Facebook post, and join us in sending a special shoutout to Rodney and the SoCal NOAHs team for their ongoing support!​​​​​​​

      It’s always a great time to host a FUNdraiser…learn more:
      www.albinism.org/fun

      Published: July 10, 2023


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: July 10, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TONIGHT: PWA Book Club

      July 10th at 9:00pm ET // 6:00pm PT

      Book Club is Back!

      Are you an adult PWA who loves to read? Join us for the re-launching of the NOAH Book Club TODAY at 9pm ET // 6pm PT! Bring your favorite beverage or snack and join us for our book club kick-off party, where we will be announcing the first book we will be reading and getting to know each other.

      www.albinism.org/NOAH-connections/#pwa-book-club

      Published: July 10, 2023


      Wednesday: Young Adult Connections

      July 12th at 9:00pm ET // 6:00pm PT

      Has your summer been out of this world, or are you looking forward to a future exploration? We wanna hear the deets 😉 

      Tell us all about it this Wednesday, July 12th at 9:00pm ET // 6:00pm PT.

      www.albinism.org/NOAH-Connections/#young-adults

      Published: July 10, 2023


      Thursday: Adult Connections

      July 13th at 9:00pm ET // 6:00pm PT

      Let’s celebrate the sun, fun and everyone at our summer soiree!

      Join us for another great session of Adult Connections this Thursday, July 13th at 9:00pm ET// 6:00pm PT.

      www.albinism.org/NOAH-Connections/#adults

      Published: July 10, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: July 10, 2023

      Wednesday, July 19th:
      NOAH Connections: LGBTQ+ and Allies
      Thursday, July 20th:
      NOAH Connections: Teens
      Wednesday, July 26th:
      NOAH Connections: Young Adults
      Thursday, July 27th:
      NOAH Connections: Adults

      NOAH’s Strategic Priorities

      Over the next three years, NOAH’s Board of Directors, staff, volunteers, and community will be working towards fulfilling our mission by concentrating on four strategic priorities.

      Learn more: www.albinism.org/strategic

      ​​​​​​​Published: July 3, 2023


      NOAH Research Program Announces 2023 Grant Recipients

      “The National Organization for Albinism and Hypopigmentation (NOAH) is pleased to announce the award of research grants totaling $125,000, presented to four institutions conducting albinism research…”

      Read the full press release:

      www.albinism.org/research/pr

      Published: July 3, 2023


      Get to Know the NOAH Board: Rapid-Fire Questions!

      You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

      Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

      This week, hear from board member Kayla Hamlin and stay tuned for more videos!

      www.albinism.org/board-of-directors/gtk/

      Published: July 3, 2023


      Lee’s Miles for NOAH!

      Have you been following along with NOAH Co-Founder Lee Laughlin’s “Miles for NOAH” fundraiser challenge? A few weeks ago, Lee reached her stretch goal for donations, raising $1,000 for NOAH, and she shared last week that she has less than 20 miles to go. Follow along as Lee completes 100 miles by July 13th!​​​​​​​

      Feeling inspired by Lee? We are! Check out her fundraiser and start your own today: 

      Lee’s Miles for NOAH

      Published: July 3, 2023


      Save the Date – NOAH Night 2023!

      NOAH’s 41st birthday is just around the corner, and we can’t wait to gather the albinism community to celebrate with our 3rd annual NOAH Night. Mark your calendars for October 15th, and stay tuned for more details. 

      www.albinism.org/noahnight

      Published: July 3, 2023


      Ice Cream in a Bag!

      Kids & teens, you’re invited to a fun and simple summer activity with your NOAH friends! Join Certified Child Life Specialist Jocelyn Leworthy to make ice cream in a bag on Thursday, July 27th at 7:30pm ET // 4:30pm PT

      Kids & teens of all ages are welcome to join, so sign up today:

      www.albinism.org/NOAH-Connections/#ice-cream

      Published: July 3, 2023


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: July 3, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections



      Thursday: Teen Connections

      July 6th at 8:00pm ET // 5:00pm PT

      Discover any great summer themed tik toks, or create new ones during Independence Day?

      We want to hear about it this Thursday, July 6th at our Teen Connections call, starting at 8:00pm ET // 5:00pm PT.

      www.albinism.org/NOAH-Connections/#teens

      Published: July 3, 2023


      Thursday: Teen STEM Python Tutorial

      July 6th at 9:00pm ET // 6:00pm PT

      Teens with albinism – are you interested in STEM? 

      Join Sarah Kane and Derek Schindelman for a Python programming tutorial following our Teen Connections call on Thursday, July 6th! This will be a basic/intro-level tutorial.

      We hope to see you there!
      www.albinism.org/NOAH-Connections/#python

      Published: July 3, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: July 3, 2023

      Monday, July 10th:
      NOAH Connections: PWA Book Club
      Wednesday, July 12th:
      NOAH Connections: Young Adults
      Thursday, July 13th:
      NOAH Connections: Adults
      Wednesday, July 19th:
      NOAH Connections: LGBTQ+ and Allies
      Thursday, July 20th:
      NOAH Connections: Teens
      Wednesday, July 26th:
      NOAH Connections: Young Adults
      Thursday, July 27th:
      NOAH Connections: Adults

      NOAH 2023 iPad Assistance Program!

      The 2023 NOAH iPad Assistance Program provides PWAs who do not have access to technology the opportunity to receive an iPad. 

      Learn more and apply today at www.albinism.org/ipad

      This program is made possible by the support of the Parker Hannifin Foundation.

      ​​​​​​​Published: June 26, 2023


      Have You Registered for Adult Weekend?

      Adults with albinism – join us in Minneapolis, MN to make memories and forge the lifelong friendships the NOAH community is known for September 29 – October 1, 2023.

      Check out our itinerary and register by September 8th:
      www.albinism.org/adult-weekend

      Published: June 26, 2023


      Get to Know the NOAH Board: Rapid-Fire Questions!

      You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

      Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

      This week, hear from board members Rosalind Isom & Mine Nisanci Garlan, and stay tuned for more videos!

      www.albinism.org/board-of-directors/gtk/

      Published: June 26, 2023


      Lee’s Miles for NOAH!

      Lee’s Miles for NOAH!

      Have you been following along with NOAH Co-Founder Lee Laughlin’s “Miles for NOAH” fundraiser challenge? A few weeks ago, Lee reached her stretch goal for donations, raising $1,000 for NOAH, and she shared last week that she has officially recorded 75 miles. Follow along as Lee completes her final 25 miles by July 13th!

      Feeling inspired by Lee? We are! Check out her fundraiser and start your own today: 

      Lee’s Miles for NOAH

      Published: June 26, 2023


      IAAD Fundraiser Shout-Out: Diandra & Jennifer!

      Diandra Forrest & Jennifer Rhodes presented An International Albinism Awareness Celebration with a War of Colors film screening & trivia night hosted by Charles Washington. Their event gathered around 50 people in the Brooklyn, NY area and raised over $1,000 towards NOAHCon 2024 personal grants.

      Congratulations, Diandra & Jennifer, and thank you for supporting NOAH!

      Published: June 26, 2023


      Teens with Albinism – Are You Interested in STEM?

      Join Sarah Kane and Derek Schindelman for a Python programming tutorial following our Teen Connections call on Thursday, July 6th! This will be a basic/intro-level tutorial.

      We hope to see you there!
      www.albinism.org/NOAH-Connections/#python

      Published: June 26, 2023


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: June 26, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      • NOAH community member, Tikia Kidd, arranged one of two walks held in Illinois for International Albinism Awareness Day, and her event was featured in the local news!https://www.hfchronicle.com/2023/06/15/residents-unite-in-patriots-park-for-second-annual-walk-to-raise-albinism-awareness/

      • On June 3, NOAH Camp Director Tricia Thomas and NOAH Co-founder Lee Laughlin attended the ribbon-cutting ceremony for the new pavilion at Lions Camp Pride in New Durham, New Hampshire. LCP has been home to NOAH family camp since 2013.The new pavilion was a three-quarter of a million dollar project spearheaded by the Lions Camp Pride Board of Directors, and funded by a mix of donations and federal grants. Congratulations, Lions Camp Pride! We can’t wait to use the new pavilion at this summer’s NOAH Family Camp. https://www.facebook.com/photo?fbid=650435740459865&set=a.361146106055498

        ​​​​​​​
      • When NOAH community member Ainslee Jones was brainstorming ideas for her Girl Scout Silver Award Project, NOAH immediately came to mind. Inspired by the New Parent Toolkit her family received when she was diagnosed with albinism as a baby, Ainslee decided to collect sensory toys and books to donate to NOAH’s New Parent Program. Learn more about Ainslee’s project: www.albinism.org/ainslee/​​​​​​​

      Tuesday: Parenting without Pigment

      June 27th at 9:00pm ET // 6:00pm PT

      Parents without pigment, join Robin France and fellow PWA parents TOMORROW at 9pm ET // 6pm PTto discuss balancing kids and professional life!

      Interested in joining? Sign up now!
      www.albinism.org/NOAH-Connections/#pwp

      Published: June 26, 2023


      Wednesday: Young Adult Connections

      June 28th at 9:00pm ET // 6:00pm PT

      What’s the one thing you need to do before July comes? If you answered join a Young Adult Connections session you’d be correct! 

      Don’t miss the chance to connect before the summer takes off. Check it out this Wednesday, June 28th at 9:00pm ET // 6:00pm PT.

      www.albinism.org/NOAH-Connections/#young-adults 

      Published: June 26, 2023


      Thursday: Adult Connections

      June 29th at 9:00pm ET // 6:00pm PT

      What are your plans for the summer? Going somewhere or staying home and avoiding the checkbook? Join our next Adult Connections session and share all the wonderful ideas you have planned, or ideas you would have planned if you didn’t have to repair something. Check it out, this Thursday, June 29th at 9:00pm ET // 6:00pm PT.

      www.albinism.org/NOAH-Connections/#adults

      Published: June 26, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: June 26, 2023

      Thursday, July 6th:
      NOAH Connections: Teens
      NOAH Connections: Teens STEM – Python Tutorial
      Monday, July 10th:
      NOAH Connections: PWA Book Club
      Wednesday, July 12th:
      NOAH Connections: Young Adults
      Thursday, July 13th:
      NOAH Connections: Adults
      Wednesday, July 19th:
      NOAH Connections: LGBTQ+ and Allies
      Thursday, July 20th:
      NOAH Connections: Teens
      Wednesday, July 26th:
      NOAH Connections: Young Adults
      Thursday, July 27th:
      NOAH Connections: Adults

      Juneteenth

      “Juneteenth marks our country’s second independence day.”

      On this day commemorating the end of slavery in the US, NOAH celebrates Black individuals’ freedom, accomplishments, and contributions to our NOAH community. 

      https://nmaahc.si.edu/blog-post/historical-legacy-juneteenth

      ​​​​​​​Published: June 19, 2023


      Space Camp 2023!

      NOAH is pleased to offer one tuition scholarship for a student with albinism in our community to attend SCIVIS 2023.
      To apply, complete the Space Camp Scholarship Application Packet in full and return to NOAH by July 22, 2023

      www.albinism.org/space-camp

      Published: June 19, 2023


      Lee’s Miles for NOAH!

      Have you been following along with NOAH Co-Founder Lee Laughlin’s “Miles for NOAH” fundraiser challenge? As of International Albinism Awareness Day last Tuesday, Lee has logged over 67 miles and reached her stretch goal for donations, raising $1,000 for NOAH! 

      Feeling inspired by Lee? We are! Check out her fundraiser and start your own today: 

      Lee’s Miles for NOAH

      Published: June 19, 2023


      Get to Know the NOAH Board!

      NOAH’s Board of Directors plays a crucial role in furthering our organization’s mission, and we’re excited to help the community get to know new and returning board members. 

      This week, hear from Torey Alford & Elizabeth Drury, and stay tuned for more videos!

      Published: June 19, 2023


      Looking to Share a Room at Adult Weekend?

      If you’re interested in sharing a room to make Adult Weekend more affordable, email info@3.19.125.119to be placed on the room share contact list!

      ​​​​​​​

      NOAH will facilitate introductions between individuals on the list (but is not providing roommate matching services).

      Published: June 19, 2023


      Book Club is Back!

      Are you an adult PWA who loves to read? Join us for the re-launching of the NOAH Book Club on Monday, July 10th at 9pm ET // 6pm PT! Bring your favorite beverage or snack and join us for our book club kick-off party, where we will be announcing the first book we will be reading and getting to know each other.

      www.albinism.org/NOAH-connections/#pwa-book-club

      Published: June 19, 2023


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: June 19, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Aging with Albinism

      June 20th at 5:00pm ET // 3:00pm PT

      Older PWAs, you’re invited to a NOAH Connections session just for you!

      Join June Waugh and friends TOMORROW at 5pm ET // 2pm PTfor connections and great conversation.

      New to the group? Sign up today!
      www.albinism.org/NOAH-Connections/#aging

      Published: June 19, 2023


      Thursday: Teen Connections

      June 22nd at 8:00pm ET // 5:00pm PT

      Wrapping up another year of school? Planning out your summer vacation? Whether you are taking a moment to have fun or working hard to save up, join us at our Teen Connections session and tell us all about it! 

      See you this Thursday, June 22nd at 8:00pm ET // 5:00pm PT!

      www.albinism.org/NOAH-Connections/#teens

      Published: June 19, 2023


      Sunday: PWAs in STEM Fields

      June 25th at 5:00pm ET // 2:00pm PT

      Calling All PWAs in STEM!

      Join Sarah Kane & Derek Schindelman for social time with fellow PWAs in the STEM Fields this Sunday, June 25th at 5pm ET // 2pm PT. We can’t wait to see you there!

      www.albinism.org/NOAH-Connections/#STEM

      Published: June 19, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: June 19, 2023

      Tuesday, June 27th:
      NOAH Connections: Parenting without Pigment
      Wednesday, June 28th:
      NOAH Connections: Young Adults
      Thursday, June 29th:
      NOAH Connections: Adults
      Thursday, July 6th:
      NOAH Connections: Teens
      NOAH Connections: Teens STEM – Python Tutorial
      Monday, July 10th:
      NOAH Connections: PWA Book Club
      Wednesday, July 12th:
      NOAH Connections: Young Adults
      Thursday, July 13th:
      NOAH Connections: Adults
      Wednesday, July 19th:
      NOAH Connections: LGBTQ+ and Allies
      Thursday, July 20th:
      NOAH Connections: Teens

      “Inclusion is Strength because _____”

      In honor of International Albinism Awareness Day, we are asking our community about the importance of inclusion. 

      Check out what some NOAH teens and Jayana and her mom, Hershula have to say, then share your ideas! 

      Send us a video, photo, or written submission filling in the blank: “Inclusion is Strength because ________.”

      www.albinism.org/IAAD

      ​​​​​​​Published: June 12, 2023


      Adult Weekend – Register Today!

      We are excited to announce that registration for Adults with Albinism Weekend 2023 is now open! Join us to make memories and forge the lifelong friendships the NOAH community is known for.

      Check out our itinerary and register by September 8th:

      www.albinism.org/adult-weekend

      Published: June 12, 2023


      Congratulations, Ashleigh!

      NOAH is delighted to announce that Ashleigh Rogers has been awarded the 2023 Michael J. McGowan Leadership Scholarship Award.

      Ashleigh will attend Lebanon Valley College, where she will pursue a degree in Actuarial Science with a minor in Economics. 

      Learn more about Ashleigh: www.albinism.org/leadership23

      Published: June 12, 2023


      Get to Know the NOAH Board!

      NOAH’s Board of Directors plays a crucial role in furthering our organization’s mission, and we’re excited to help the community get to know new and returning board members in the coming weeks. 

      This week, hear from Donna Appell and Kris Baker, and stay tuned to get to know more NOAH Board members!

      Published: June 12, 2023


      Lee’s Miles for NOAH!

      Have you been following along with NOAH Co-Founder Lee Laughlin’s “Miles for NOAH” fundraiser challenge? With over 50 miles logged, Lee is well on her way to reaching her goal, but there’s still time to support her fundraiser or create your own!

      Are you up for the challenge?

      Check out Lee’s progress & start your fundraiser today:

      Lee’s Miles for NOAH

      Published: June 12, 2023


      Spring for NOAH Shout-Out: Neylan’s Poppers!

      The Neylan’s Poppers team held an online popcorn fundraiser and raised over $150 for NOAH!

      Thank you, Neylan’s Poppers team, for your continued dedication to NOAH!

      Feeling inspired? We are!!
      Start YOUR fundraising page today at: www.albinism.org/fun

      Published: June 12, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: June 12, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      June 14th at 9:00pm ET // 6:00pm PT

      Young adults with albinism – brighten up your day and week with a night of great conversation. Join us Wednesday, June 14th at 9:00pm ET / 6:00pm PT.

      www.albinism.org/NOAH-Connections/#young-adults

      Published: June 12, 2023


      Thursday: Adult Connections

      June 15th at 9:00pm ET // 6:00pm PT

      Like paintings, conversations start with a fresh canvas. Create new beginnings or add color to the existing relationships this Thursday, June 15th at 9:00pm ET // 6:00pm PT.

      www.albinism.org/NOAH-Connections/#adults

      Published: June 12, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: June 12, 2023

      Tuesday, June 20th:
      NOAH Connections: Aging with Albinism
      Thursday, June 22nd:
      NOAH Connections: Teens
      Tuesday, June 27th:
      NOAH Connections: Parenting without Pigment
      Wednesday, June 28th:
      NOAH Connections: Young Adults
      Thursday, June 29th:
      NOAH Connections: Adults
      Thursday, July 6th:
      NOAH Connections: Teens

      Upcoming Events – IAAD!

      Did you know that we have four NOAH community events on the calendar to celebrate International Albinism Awareness Day?! 

      IAAD is the perfect time to host an event that gathers your community, raises awareness, & supports NOAH. 

      Check out upcoming events and learn more about IAAD at: www.albinism.org/IAAD

      ​​​​​​​Published: June 5, 2023


      Announcing the NOAH 2023 iPad Assistance Program!

      The 2023 NOAH iPad Assistance Program provides PWAs who do not have access to technology the opportunity to receive an iPad.

      Learn more and apply today at www.albinism.org/ipad

      This program is made possible by the support of the Parker Hannifin Foundation.

      Published: June 5, 2023


      Announcing ~ Eye Spy for NOAH Winner!

      We are excited to announce the winner of our Eye Spy for NOAH Scavenger Hunt – Ian!

      Congratulations, Ian! 

      Published: June 5, 2023


      Get to Know the NOAH Board!

      NOAH’s Board of Directors plays a crucial role in furthering our organization’s mission, and we’re excited to help the community get to know new and returning board members in the coming weeks. 

      This week, hear from Brandi BoganSonja HarrisDonté Mickens, and Emma Brinkley, and stay tuned to get to know more NOAH Board members!

      Published: June 5, 2023


      Lee’s Miles for NOAH!

      NOAH Co-Founder, Lee Laughlin, is amidst a two-month “Miles for NOAH” fundraiser, and she’s challenging you to join her by creating your own Facebook fundraiser!

      Are you up for the challenge?

      Check out Lee’s progress & start your fundraiser today:

      Lee’s Miles for NOAH

      Published: June 5, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: June 5, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: LGBTQ+ and Allies Connections

      June 7th at 9:00pm ET // 6:00pm PT

      LGBTQ+ PWAs and allies, kick off pride month with a session of NOAH Connections just for you! Join us this Wednesday, June 7th at 9pm ET // 6pm PT to connect and chat with fellow community members.

      New to the group? Sign up today!
      www.albinism.org/NOAH-Connections/#lgbtq

      Published: June 5, 2023


      Thursday: Teen Connections

      June 8th at 8:00pm ET // 5:00pm PT

      Finals approaching? Need a break? Take time out this Thursday and join friends for a fun and relaxing chat this Thursday, June 8th @ 8:00pm ET // 5:00pm PT.

      www.albinism.org/NOAH-Connections/#teens

      Published: June 5, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: June 5, 2023

      Wednesday, June 14th:
      NOAH Connections: Young Adults
      Thursday, June 15th:
      NOAH Connections: Adults
      Tuesday, June 20th:
      NOAH Connections: Aging with Albinism
      Thursday, June 22nd:
      NOAH Connections: Teens
      Tuesday, June 27th:
      NOAH Connections: Parenting without Pigment
      Wednesday, June 28th:
      NOAH Connections: Young Adults
      Thursday, June 29th:
      NOAH Connections: Adults

      Join Spiffy’s Team!

      International Albinism Awareness Day is just under a month away, and Spiffy wants YOU to join his team and host a walk. Hosting a walk is a fun and easy way to bring together your community, raise awareness, and raise funds for NOAH.

      Join Spiffy’s Team today: https://app.donorview.com/6YJQO
      (click “Be a Fundraiser,” then select “Spiffy’s Team” under the Join a Fundraising Team dropdown)

      ​​​​​​​Published: May 22, 2023


      Get to Know the NOAH Board – Andrew Sartorius & Elliot Ostrove!

      NOAH’s Board of Directors plays a crucial role in furthering our organization’s mission, and we’re excited to help the community get to know new and returning board members in the coming weeks. 

      This week, hear from Andrew Sartorius & Elliot Ostrove, and stay tuned to get to know more NOAH Board members!

      Published: May 22, 2023


      Thanks for Playing!

      Last week, we held our Eye Spy for NOAH Scavenger Hunt on the Goosechase app, and we received many awesome submissions from the scavenger hunt missions.

      Thank you to everyone who joined us for this fun NOAH-themed scavenger hunt!

      Stay tuned – we’ll be announcing the winner later this week.

      Published: May 22, 2023


      Albinism & the Eye

      Did you miss our Parent & Grandparent Connections session, Albinism & the Eye?

      Good news – the recording is now available in our NOAH Connections session library!

      Check out this informative presentation by Rick Thompson, OD, FAAO at: albinism.org/vimeo/#connections

      Published: May 22, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: May 22, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Aging with Albinism

      May 23rd at 5:00pm ET // 2:00pm PT

      Older PWAs, you’re invited to a NOAH Connections session just for you!

      Join June Waugh and friends on Tuesday, May 23rd at 5pm ET // 2pm PT for connections and great conversation.

      New to the group? Sign up today!
      www.albinism.org/NOAH-Connections/#aging

      Published: May 22, 2023


      Tuesday: Parenting without Pigment

      May 23rd at 9:00pm ET // 6:00pm PT

      Mealtime Mayhem! 

      Parents without Pigment – join Marleena Barber and fellow PWA parents this Tuesday, May 23rd at 9pm ET // 6pm PT to chat about meal prep for kids. Feel free to bring a recipe to share, or just join in for friendship and great conversation!

      New to the group? Sign up today!
      www.albinism.org/NOAH-Connections/#pwp

      Published: May 22, 2023


      Thursday: Teen Connections

      May 25th at 8:00pm ET // 5:00pm PT

      Need a break from video games? Okay, we know you don’t but join us anyways!

      Let’s spend the night talking with friends about any topics that come to mind this Thursday, May 25th at 9:00pm PT // 6:00pm PT

      www.albinism.org/NOAH-Connections/#teens

      Published: May 22, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: May 22, 2023

      Wednesday, May 31st:
      NOAH Connections: Young Adults
      Thursday, June 1st:
      NOAH Connections: Adults
      Thursday, June 8th:
      NOAH Connections: Teens
      Wednesday, June 14th:
      NOAH Connections: Young Adults
      Thursday, June 15th:
      NOAH Connections: Adults

      Last Chance to Register!

      NOAH Family Summer Camp registration closes today! Don’t miss out on family fun with your NOAH friends…learn more and register now:

      www.albinism.org/nh-camp

      ​​​​​​​Published: May 15, 2023


      Get to Know the NOAH Board – Mine Nisanci Garlin & Kayla Hamlin!

      NOAH’s Board of Directors plays a crucial role in furthering our organization’s mission, and we’re excited to help the community get to know new and returning board members in the coming weeks. 

      This week, hear from Mine Nisanci Garlin & Kayla Hamlin, both newly appointed this spring, and stay tuned to get to know more NOAH Board members!

      Published: May 15, 2023


      Asian American, Native Hawaiian, and Pacific Islander Heritage Month!

      NOAH community member, Sam P., “proudly represents 🇨🇳 (Chinese flag), and states that her albinism makes her feel ‘Asian undercover.’ “

      www.albinism.org/AANHPI

      Published: May 15, 2023


      Spring for NOAH Shout-Out: Wisconsin’s White Cheddar!

      Long-time NOAH fundraising team, Wisconsin’s White Cheddar, recently held their annual Bowl-a-thon fundraiser and raised over $2,400 for NOAH!

      Thank you, White Cheddar team, for your continued dedication to NOAH!

      Feeling inspired? We are!!
      Start YOUR fundraising page today at: www.albinism.org/fun

      Published: May 15, 2023


      Spring for NOAH Shout-Out: NOAH Carolinas!

      The NOAH Carolinas team recently held a fun and unique painting fundraiser. They raised nearly $600 for NOAH through online fundraising, an online silent auction, and an in-person paint night event that brought together their community. 

      Thank you, NOAH Carolinas team, for your continued dedication to NOAH!

      Ready to create a unique fundraiser that works for YOU?
      Create your fundraising page today at: www.albinism.org/fun

      Published: May 15, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: May 15, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TONIGHT: Dealing with Comments & Questions

      May 15th at 8:30pm ET // 5:30pm PT

      Registered attendees – join Sheila Adamo tonight at 8:30pm ET // 5:30pm PT to examine how to deal with comments and questions regarding albinism from others. We will analyze our own patterns of responses to others and explore ways of responding that will both honor our feelings and enable us to serve as role models.

      Check out future workshops:
      www.albinism.org/workshops

      Published: May 15 2023


      Starting Today: Eye Spy for NOAH!

      May 15th – May 21st

      Eye Spy for NOAH Starts TODAY!

      Join us for this fun & easy albinism-themed scavenger hunt event today (May 15th) through Sunday, May 21st. Compete against players from across the country; the top-scoring players will be entered to win a NOAH prize pack!

      www.albinism.org/NOAH-Connections/#eye-spy

      Published: May 15, 2023


      Wednesday: Young Adult Connections

      May 17th at 9:00pm ET // 6:00pm PT

      Mmmmm, donut! You bring the snacks, we’ll bring the fun! Join us this Wednesday, May 17th for a night of good times starting at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#young-adults

      Published: May 15, 2023


      Thursday: Adult Connections

      May 18th at 9:00pm ET // 6:00pm PT

      Spring is in full bloom! Take a moment to stop and smell the roses, and join in on our Adult Connections call this Thursday, May 18th starting at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#adults

      Published: May 15, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: May 15, 2023

      Tuesday, May 23rd:
      NOAH Connections: Aging with Albinism
      NOAH Connections: Parenting without Pigment
      Thursday, May 25th:
      NOAH Connections: Teens
      Wednesday, May 31st:
      NOAH Connections: Young Adults
      Thursday, June 1st:
      NOAH Connections: Adults
      Thursday, June 8th:
      NOAH Connections: Teens
      Wednesday, June 14th:
      NOAH Connections: Young Adults
      Thursday, June 15th:
      NOAH Connections: Adults

      Hey NOAH!

      We have a very exciting announcement about NOAH Family Summer Camp…

      Check it out and register today!
      www.albinism.org/nh-camp

      ​​​​​​​Published: May 8, 2023


      Last Chance to Share Your Opinion!

      NOAH plans our biennial conference as a special opportunity for our community to connect with old friends, meet new friends, and attend a variety of informational sessions/forums on topics important to those touched by albinism. We understand that there are a number of key factors that can dictate a community member’s participation in our largest in-person event. 

      As we evaluate our options for the 2026 conference, we need to hear from YOU about what factors are most important. Please complete the quick survey below by TOMORROW (May 9th). Your answers will help to guide our team to continue to offer a conference that meets your needs.

      www.surveymonkey.com/r/NOAHCon

      Published: May 8, 2023


      Asian American, Native Hawaiian, and Pacific Islander Heritage Month

      In honor of Asian American, Native Hawaiian, and Pacific Islander Heritage Month this May, we want to hear from YOU!

      AA or NHPI PWAs, we invite you to share your experiences and how your heritage and albinism impact your life. Photos, videos, artwork, writing, or something else – we welcome anything you’d like to share with the community. 

      Please send submissions to eaubrey@3.19.125.119 for the opportunity to be featured on NOAH social media and website throughout the month of May and beyond!

      Published: May 8, 2023


      Get to Know the NOAH Board – Rosalind Isom!

      NOAH’s Board of Directors plays a crucial role in furthering our organization’s mission, and we’re excited to help the community get to know new and returning board members in the coming weeks. 

      Hear from Rosalind Isom, newly appointed this spring, and stay tuned to get to know more NOAH Board members!

      Published: May 8, 2023


      There’s Still Time to Sign Up!

      Parents, grandparents, and caregivers – join Sheila Adamo on Monday, May 15th at 8:30pm ET // 5:30pm PT to examine how to deal with comments and questions regarding albinism from others. We will analyze our own patterns of responses to others and explore ways of responding that will both honor our feelings and enable us to serve as role models.

      Register by May 13th to reserve your spot!
      www.albinism.org/workshops

      Published: May 8, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: May 8, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Parent Connections

      May 9th at 9:00pm ET // 6:00pm PT

      Let’s Chat About the IEP!

      A lot of parents of PWAs have questions when it comes to IEPs – and that’s totally normal! Join Kathi Garza, M.Ed, TVI; Anne Corn, Ed.D; and Kayla Hamlin, TVI, COMS this Tuesday, May 9th at 9pm ET // 6pm PT to learn more about the IEP.

      www.albinism.org/NOAH-Connections/#parents​​​​​​​

      Published: May 8, 2023


      Thursday: Teen Connections

      May 11th at 8:00pm ET // 5:00pm PT

      Teens – have you missed us? We’ve missed you! Catch up with your PWA fam this Thursday, May 11th @ 8:00 pm ET // 5:00 pm PT for another Teen Connections session.

      www.albinism.org/NOAH-Connections/#teens

      Published: May 8, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: May 8, 2023

      Monday, May 15th:
      NOAH Workshops: Parents, Grandparents, and Caregivers
      Wednesday, May 17th:
      NOAH Connections: Young Adults
      Thursday, May 18th:
      NOAH Connections: Adults
      Tuesday, May 23rd:
      NOAH Connections: Aging with Albinism
      NOAH Connections: Parenting without Pigment
      Thursday, May 25th:
      NOAH Connections: Teens
      Wednesday, May 31st:
      NOAH Connections: Young Adults
      Thursday, June 1st:
      NOAH Connections: Adults

      Last Chance to Apply!

      Remind the young leaders with albinism in your life – the deadline to apply for the Michael J. McGowan Leadership Scholarship Award is TODAY!​​​​​​​

      Learn more and finish up your application today:
      www.albinism.org/leadership

      ​​​​​​​Published: May 1, 2023


      Spring for NOAH Shout-Out: Dallas Bowls for NOAH!

      On April 15th, the long-time NOAH fundraising team, Dallas Bowls for NOAH, held their annual Bowl-a-thon fundraiser and raised over $12,000 for NOAH!

      Thank you, Dallas Bowls for NOAH team, for your continued dedication to NOAH!

      Feeling inspired? We are!!
      Start YOUR fundraising page today at: www.albinism.org/fun

      Published: May 1, 2023


      Guide Dog Day!

      Wednesday was Guide Dog Day, and we invited PWAs in our community who have a guide dog to share a photo of them and their pup.

      Check out the awesome photos shared and add your own photo on our recent Facebook post!

      Published: May 1, 2023


      Spring for NOAH Shout-Out: Albinism Rocks Rock-a-Thon!

      On April 16th, the Albinism Rocks Rock-a-Thon team raised over $1,000 for NOAH at their family-friendly music event! 

      Thank you, Albinism Rocks team, for organizing this unique event to support NOAH!

      Feeling inspired? We are!!
      Start YOUR fundraising page today at: www.albinism.org/fun

      Published: May 1, 2023


      2022 Grant Updates

      2022 Grant Updates

      In 2022, the NOAH Research Program was pleased to award a total of $125,000 in albinism research grants to research laboratories in Pittsburgh, Pennsylvania, Bordeaux, France, and New York, New York. As we prepare to announce our 2023 grant recipients, we were pleased to hear a progress update from each institution. Check out our recent Facebook post for an update from Principal Investigator: Carol Ann Mason, Ph.D..
       

      To support NOAH’s Research Program, visit https://app.donorview.com/jWZ7Y.

      Published: May 1, 2023


      Welcome Back, Maria!

      We are excited to share that Maria Lepore-Stevens, director of Camp Abilities educational sports camps for athletes with visual impairments, will return as our Sports Director for NOAH Family Summer Camp this July!

      For more details on camp staff, activities, and registration, visit: www.albinism.org/nh-camp

      PS – considering attending for camp, but have questions? Check out All You Need to Know About NOAH Family Summer Camp this Thursday, featuring Camp Director Tricia Thomas and a panel of camp attendees!

      Published: May 1, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: May 1, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      May 3rd at 9:00pm ET // 6:00pm PT

      Wrapping up with exams? Want to celebrate another term coming to an end, or the start of a new month? Join fellow young adult PWAs this Wednesday May 3rd @ 9:00pm PT // 6:00pm PT for a well overdue evening of relaxation and fun!

      www.albinism.org/NOAH-Connections/#young-adults

      Published: May 1, 2023


      Thursday: All You Need to Know About NOAH Family Summer Camp!

      May 4th at 8:00pm ET // 5:00pm PT

      If you’re considering attending camp for the first time and have some questions, this is the perfect session for you! Past attendees and staff are here to talk about NOAH camp and answer YOUR questions on Thursday, May 4th at 8pm ET // 5pm PT.

      Sign up now!
      www.albinism.org/NOAH-Connections/#camp 

      Published: May 1, 2023


      Thursday: Adult Connections

      May 4th at 9:00pm ET // 6:00pm PT

      May the 4th be with you! Let the power of the force guide you to an evening of fun, laughs and nostalgia. If you didn’t get the Star Wars reference, join us to find out 😉 

      See you this Thursday, May 4th at 9:00pm ET // 6:00pm PT.

      www.albinism.org/NOAH-Connections/#adults

      Published: May 1, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: May 1, 2023

      Tuesday, May 9th:
      NOAH Connections: Parents & Caregivers
      Thursday, May 11th:
      NOAH Connections: Teens
      Monday, May 15th:
      NOAH Workshops: Parents, Grandparents, and Caregivers
      Wednesday, May 17th:
      NOAH Connections: Young Adults
      Thursday, May 18th:
      NOAH Connections: Adults
      Tuesday, May 23rd:
      NOAH Connections: Aging with Albinism
      NOAH Connections: Parenting without Pigment
      Thursday, May 25th:
      NOAH Connections: Teens

      One Week Left to Apply!

      Remind the young leaders with albinism in your life – the deadline to apply for the Michael J. McGowan Leadership Scholarship Award is just one week away!

      Learn more and finish up your application today:
      www.albinism.org/leadership

      ​​​​​​​Published: April 24, 2023


      All You Need to Know About NOAH Family Summer Camp!

      If you’re considering attending camp for the first time and have some questions, this is the perfect session for you! Past attendees and staff are here to talk about NOAH camp and answer YOUR questions on Thursday, May 4th at 8pm ET // 5pm PT.

      Sign up now!
      www.albinism.org/NOAH-Connections/#camp 

      Published: April 24, 2023


      Spring for NOAH Suggestions!

      Long-time NOAH Fundraiser, Regan Gentile, shares her experiences and suggestions for hosting a fundraiser that interests you in our recent video!

      Check out her suggestions and get your fundraising page started today at: www.albinism.org/fun

      Royalty Free Music: https://www.bensound.com
      License code: JHDKPTFSTSVPBJGH

      Published: April 24, 2023


      Thanks, Marleena & the SoCal NOAH Team!

      Yesterday, Marleena Barber did a surprise takeover on the NOAH social media story, live from the SoCal NOAH Bowl-a-Thon in Anaheim, CA. Thank you, Marleena, for giving us an inside peek at this awesome event, and event host Rodney Ignacio and the SoCal NOAHs fundraising team for your continued dedication to NOAH!

      Feeling inspired by the awesome fundraisers we’ve been sharing lately? Learn more about hosting your own event at: www.albinism.org/fun

      Published: April 24, 2023


      2022 Grant Updates

      2022 Grant Updates

      In 2022, the NOAH Research Program was pleased to award a total of $125,000 in albinism research grants to research laboratories in Pittsburgh, Pennsylvania, Bordeaux, France, and New York, New York. As we prepare to announce our 2023 grant recipients, we were pleased to hear a progress update from each institution. Check out our recent Facebook post for an update from Principal Investigator: Benoit Arveiler, PharmD, PhD.
       
      To support NOAH’s Research Program, visit https://app.donorview.com/jWZ7Y.

      Published: April 24, 2023


      Thank You, Volunteers!

      Last week was Volunteer Week, and we extended our appreciation to the many volunteers involved with our organization.

      The volunteers pictured represent only a fraction of the many individuals who share their time, energy, talents, and more with NOAH. Thank you to each and every one of our volunteers!

      Do you know a NOAH volunteer who makes a difference in the albinism community? Give them a shout-out on our recent Facebook post!

      Published: April 24, 2023


      • Did you know that Sarah Kane, long-time NOAH member and 2022 recipient of the McGowan Leadership Scholarship, recently received PennGALA’s Student Leadership Award? Each year, this award recognizes an LGBTQ+ student for demonstrating leadership, exemplifying excellence, and promoting diversity at Penn through student activities or community service.Congratulations, Sarah!! https://www.instagram.com/p/CqMOR5NM0ZK/?igshid=YmMyMTA2M2Y=

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: April 24, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Parenting without Pigment

      April 25th at 9:00pm ET // 6:00pm PT

      Join Andrew Sartorius and friends TOMORROW at 9pm ET // 6pm PTto discuss traveling with kids as a parent with albinism. 

      New to the group? There’s still time to sign up!
      www.albinism.org/NOAH-Connections/#pwp

      Published: April 24, 2023


      Thursday: Teen Connections

      April 27th at 8:00pm ET // 5:00pm PT

      Teens – we can’t wait to see you this Thursday! Join us at 8pm ET // 5pm PT for a good time with great company.

      www.albinism.org/NOAH-Connections/#teens

      Published: April 24, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: April 24, 2023

      Wednesday, May 3rd:
      NOAH Connections: Young Adults
      Thursday, May 4th:
      NOAH Connections: Adults
      Thursday, May 11th:
      NOAH Connections: Teens
      Monday, May 15th:
      NOAH Workshops: Parents, Grandparents, and Caregivers
      Wednesday, May 17th:
      NOAH Connections: Young Adults
      Thursday, May 18th:
      NOAH Connections: Adults
      Tuesday, May 23rd:
      NOAH Connections: Aging with Albinism
      NOAH Connections: Parenting without Pigment

      Happy National Volunteer Week!

      National Volunteer Week is April 16-22, and if you’ve been around for even a little while, you probably know that NOAH has a ton of fantastic volunteers who make it possible to continue our mission.

      Join us in sending a special shout-out to NOAH’s many volunteers this week and beyond!

      Want to learn more about volunteering for NOAH? 
      http://3.19.125.119/volunteer/

      ​​​​​​​Published: April 17, 2023


      One Month Left to Register!

      Games, crafts, campfires, NOAH pals, and more await you in NH this July…so what are you waiting for? Register today for NOAH Family Summer Camp!

      Registration Deadline – May 15th:
      www.albinism.org/nh-camp

      Published: April 17, 2023


      Bunker Bowlers Through the Years!

      Remember the Bunker Bowlers team who raised over $1,300 for NOAH with their recent Bowl-a-Thon event this March? This year was also their 16th annual Bowl-a-Thon for NOAH (!!), and Frankie Bunker made a video slideshow to commemorate their family’s past 16 years of fundraising events. 

      Check out Frankie’s video: https://youtu.be/_5JGGLMa69Y

      Published: April 17, 2023


      Dealing with Comments and Questions

      Parents, grandparents, and caregivers – join Sheila Adamo on Monday, May 15th at 8:30pm ET // 5:30pm PT to examine how to deal with comments and questions regarding albinism from others. We will analyze our own patterns of responses to others and explore ways of responding that will both honor our feelings and enable us to serve as role models.

      Register by May 13th to reserve your spot!
      www.albinism.org/workshops

      Published: April 17, 2023


      2022 Grant Updates

      2022 Grant Updates

      In 2022, the NOAH Research Program was pleased to award a total of $125,000 in albinism research grants to research laboratories in Pittsburgh, Pennsylvania, Bordeaux, France, and New York, New York. As we prepare to announce our 2023 grant recipients, we were pleased to hear a progress update from each institution. Check out our recent Facebook post for an update from Principal Investigator: Leah Byrne, PhD. 

      To support NOAH’s Research Program, visit https://app.donorview.com/jWZ7Y.

      Published: April 17, 2023


      Teen Spotlight – Update!

      Adam W. had sent in a Teen Spotlight submission a few years ago that highlighted his involvement in his school’s JROTC program. We recently received an update from Adam that we are excited to share!

      Check out his full update at www.albinism.org/teenspotlight

      Published: April 17, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: April 17, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TODAY: Parents of Newly-Diagnosed Children & Young Children with Albinism Workshop

      April 17th at 8:30pm ET // 5:30pm PT

      Registered Attendees – join Sheila Adamo TONIGHT at 8:30pm ET//5:30pm PT to join a community that will share and learn about adapting to the new role of a parent of a child with albinism.

      Learn more about upcoming workshops:
      www.albinism.org/workshops

      Published: April 17, 2023


      Tuesday: Aging with Albinism

      April 18th at 5:00pm ET // 2:00pm PT

      Join Us for Aging with Albinism!

      Older PWAs, join June Waugh and friends on Tuesday, April 18th at 5pm ET // 2pm PT for connections and great conversation.

      New to the group? Sign up today!
      www.albinism.org/NOAH-Connections/#aging

      Published: April 17, 2023


      Wednesday: Young Adult Connections

      April 19th at 9:00pm ET // 6:00pm PT

      Check out our Young Adult Connections session for fun, good company, and virtual sunshine this Wednesday from 9:00 PM ET // 6:00 PM PT!

      New to the group? There’s still time to sign up!

      www.albinism.org/NOAH-Connections/#young-adults

      Published: April 17, 2023


      Thursday: Adult Connections

      April 20th at 9:00pm ET // 6:00pm PT

      Start planting the seed of friendship and watch your relationships blossom! 

      Adults with albinism – join us for a night of fun and laughter while growing strong connections this Thursday at 9:00 PM ET // 6:00 PM PT.

      www.albinism.org/NOAH-Connections/#adults

      Published: April 17, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: April 17, 2023

      Tuesday, April 25th:
      NOAH Connections: Parenting without Pigment
      Thursday, April 27th:
      NOAH Connections: Teens
      Wednesday, May 3rd:
      NOAH Connections: Young Adults
      Thursday, May 4th:
      NOAH Connections: Adults
      Thursday, May 11th:
      NOAH Connections: Teens
      Monday, May 15th:
      NOAH Workshops: Parents, Grandparents, and Caregivers
      Wednesday, May 17th:
      NOAH Connections: Young Adults
      Thursday, May 18th:
      NOAH Connections: Adults

      Holiday Greetings!

      To all in our community who celebrate, we wish you joy and prosperity this Passover.

      We also extend a belated Happy Easter to all in our community who celebrate.

      ​​​​​​​Published: April 10, 2023


      HPS Awareness Day – April 6th!

      Last Thursday was HPS Awareness day, and NOAH believes that everyone in the albinism community should know about HPS (Hermansky-Pudlak Syndrome).  Knowledge of HPS eliminates the risk of not knowing about something that may affect your well-being and makes preventative health management possible.

      Looking for more information about this rare condition? Visit www.hpsnetwork.org

      Published: April 10, 2023


      Spring for NOAH Takeover – This Saturday!!

      We are thrilled to share that Casey Greer will be taking over the NOAH social media story this Saturday, April 15th, live from the Dallas Bowls for NOAH Bowl-a-Thon in Plano, TX. We can’t wait to take a peek into this exciting fundraiser!

      Check out NOAH’s Facebook or Instagram stories this Saturday for an inside peek at the Dallas Bowls for NOAH Bowl-a-Thon…you might even see some special guests from NOAH’s Board of Directors and staff make an appearance!

      Learn more about Spring for NOAH and start a fundraiser today at: www.albinism.org/fun

      Published: April 10, 2023


      Fundraising Tips from the Wade Family!

      Long-time NOAH Fundraisers, the Wade family, have some tips for hosting a successful bowl-a-thon event! 

      Check out their suggestions in our recent video and get your fundraising page started today at: www.albinism.org/fun

      Music: Bensound.com/free-music-for-videos
      License code: ZGDYOOVIZZ8WVCMO

      Published: April 10, 2023


      Where are they now?

      2014 McGowan Leadership Scholarship recipient, Arielle Lewis, will graduate with her Health Law Certificate this spring and was recently awarded GSU College of Law’s Pro Bono Program Award.

      Young leaders with albinism – check out Arielle’s full update and start YOUR application for the McGowan Leadership Scholarship today!!
      www.albinism.org/leadership

      Published: April 10, 2023


      Last Chance to Sign Up!

      Parents & caregivers, join Sheila Adamo Monday, April 17th at 8:30pm ET // 5:30pm PT to join a community that will share and learn about adapting to the new role of a parent of a child with albinism.

      Register by this Saturday, April 15th to reserve your spot:
      www.albinism.org/workshops

      Published: April 10, 2023


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: April 10, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Grandparent Connections

      April 11th at 7:30pm ET // 4:30pm PT

      Grandparents – See You Tuesday! 

      Join Sherry Dinner and fellow grandparents this Tuesday, April 11th at 7:30pm ET // 4:30pm PT. We’ll discuss overstepping when it comes to being a grandparent of a child with albinism.

      New to the group? Sign up today!
      www.albinism.org/NOAH-Connections/#grandparents

      Published: April 10, 2023


      Tuesday: Military Families Connections

      April 11th at 9:00pm ET // 6:00pm PT

      NOAH Connections: Military Families is back!!

      Join Ashley Maynard and fellow NOAH Military Families for a time of connection, support, and fellowship this Tuesday, April 11th at 9pm ET // 6pm PT.

      Sign up today: www.albinism.org/NOAH-Connections/#military

      Published: April 10, 2023


      Thursday: Teen Connections

      April 13th at 8:00pm ET // 5:00pm PT

      Teens with albinism – spring is in the air and we want to celebrate with you. Come for the fun, stay for the company! 

      Join us for our next session of Teen Connections this Thursday, April 13th starting at 8:00 pm ET // 5:00 pm PT.

      New to the group? There’s still time to sign up:

      www.albinism.org/NOAH-Connections/#teens

      Published: April 10, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: April 10, 2023

      Monday, April 17th:
      NOAH Workshops: Parents & Caregivers
      Tuesday, April 18th:
      NOAH Connections: Aging with Albinism
      Wednesday, April 19th:
      NOAH Connections: Young Adults
      Thursday, April 20th:
      NOAH Connections: Adults
      Tuesday, April 25th:
      NOAH Connections: Parenting without Pigment
      Thursday, April 27th:
      NOAH Connections: Teens
      Wednesday, May 3rd:
      NOAH Connections: Young Adults
      Thursday, May 4th:
      NOAH Connections: Adults

      You’re Invited!

      NOAH friends in Dallas, TX and Los Angeles, CA – check out our upcoming fundraising events in your area!

      Join the Dallas Bowls for NOAH team on Saturday, April 15th in Plano, TX, or the Albinism Rocks Rockathon on Sunday, April 16th in Los Angeles, CA to support NOAH.

      Check out more upcoming events, or start your FUNdraising page today at www.albinism.org/fun

      ​​​​​​​Published: April 3, 2023


      MARCH MADNESS with NOAH Research Program

      NOAH’s Research Program Committee shares why research is important to each of them. Check out the video in our recent Facebook post.

      Our committee consists of the following members:
      Donna Appell, RN – Executive Director of the HPS Network
      Susan Ballis, M.D. – Founder, Vision for Tomorrow Foundation
      Karen Bly – Executive Director, NOAH
      Emma Brinkley, MS – Director of Scientific Services at IQVIA
      Kerry Goetz, PhD Candidate – Associate Director, NEI Office of Data Science & Health Informatics, NIH
      Diana McCown, MEd – Chief Operating Officer, TCS Interpreting and Captions/TCS Access

      STAY TUNED as the “Madness” continues with the NOAH Research Program as we prepare to announce the 2023 Grant recipients in April!

      You can support NOAH’s Research Program at: https://app.donorview.com/jWZ7Y

      Published: April 3, 2023


      Register Today!

      We are thrilled to share that registration for NOAH Family Summer Camp 2023 is now open! 

      Thanks to a Delta Gamma Foundation Grant, we are able to offer a $200 registration discount to a limited number of campers with albinism ages 16 and under…so don’t delay. Register Today!

      www.albinism.org/nh-camp

      Published: April 3, 2023


      One Month Left to Apply!

      Remind the young leaders with albinism in your life – the deadline to apply for the Michael J. McGowan Leadership Scholarship Award is just one month away!

      Learn more and start your application today:
      www.albinism.org/leadership

      Published: April 3, 2023


      Grandparents – Mark Your Calendars!

      Join Sherry Dinner and fellow grandparents on Tuesday, April 11th at 7:30pm ET // 4:30pm PT. We’ll discuss overstepping when it comes to being a grandparent of a child with albinism.

      New to the group? Sign up today!
      www.albinism.org/NOAH-Connections/#grandparents

      Published: April 3, 2023


      There’s Still Time to Sign Up!

      Parents & caregivers, join Sheila Adamo Monday, April 17th at 8:30pm ET // 5:30pm PT to join a community that will share and learn about adapting to the new role of a parent of a child with albinism.

      Register by April 15th to reserve your spot:
      www.albinism.org/workshops

      Published: April 3, 2023


      • Future In Sight has upcoming workshops, events, and meet-ups for children and adults who are blind or visually impaired. In-person events are hosted in New Hampshire, and there are many virtual offerings too!To learn more about their upcoming offerings, visit: https://futureinsight.org/calendar/

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: April 3, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      April 5th at 9:00pm ET // 6:00pm PT

      Have you missed a few connections? Come together, connect with others, and make memories. Join us this Wednesday, April 5th at 9:00 pm ET // 6:00 pm PT.

      www.albinism.org/NOAH-Connections/#young-adults

      Published: April 3, 2023


      Thursday: Adult Connections

      April 6th at 9:00pm ET // 6:00pm PT

      Join us for a night of laughter, friendship, and good vibes at our upcoming Adult Connections session! See you this Thursday, April 6th at 9:00 pm ET // 6:00 pm PT.​​​​​​​

      Published: April 3, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: April 3, 2023

      Tuesday, April 11th:
      NOAH Connections: Military Families
      Thursday, April 13th:
      NOAH Connections: Teens
      Monday, April 17th:
      NOAH Workshops: Parents & Caregivers
      Tuesday, April 18th:
      NOAH Connections: Aging with Albinism
      Wednesday, April 19th:
      NOAH Connections: Young Adults
      Thursday, April 20th:
      NOAH Connections: Adults
      Tuesday, April 25th:
      NOAH Connections: Parenting without Pigment
      Thursday, April 27th:
      NOAH Connections: Teens

      Spring for NOAH Shout-Out: Bunker Bowlers!

      This weekend, the long-time NOAH fundraising team, Bunker Bowlers, held their annual Bowl-a-thon fundraiser and raised over $1,300 for NOAH!

      Thank you, Bunker Bowlers, for your continued dedication to NOAH!

      Feeling inspired by the Bunker Bowlers team? We are!!
      Start YOUR fundraising page today at: www.albinism.org/fun

      ​​​​​​​Published: March 27, 2023


      CJ thinks YOU should host a FUNdraiser for NOAH!

      CJ’s Crew is one of many fundraising teams that host events to help support NOAH, and we want to add YOUR team to our list!

      Check out CJ’s Video, then get started today at: www.albinism.org/fun

      Music: Bensound.com
      License code: ZSB7GCGRY5GXZWI5

      Published: March 27, 2023


      National Puppy Day!

      Remember Cat in the Hat and Gertrude McFuzz, the two puppies with albinism from Red Desert Doodles who found their forever homes last summer? 

      In honor of puppy day (3/23), we got in touch with one of the families who received a puppy for an update. 

      Cara S. says: “Pearl is an energetic, lovable puppy! She loves to snuggle, play fetch, chew on her toys, run around outside, and get into all kinds of mischief with our 1-year-old! She knows how to sit, shake, and “place” on her bed.  Her favorite toy is her stuffed chocolate-covered strawberry we gave her for Valentine’s Day! We’ve loved adding Pearl to our family and look forward to many years of fun with her.”

      ​​​​​​​Check out the puppy update!

      Published: March 27, 2023


      Parents without Pigment – Mark Your Calendars!

      Join Andrew Sartorius and friends Tuesday, April 25th at 9pm ET // 6pm PT to discuss traveling with kids as a parent with albinism.

      New to the group? Sign up now!
      www.albinism.org/NOAH-Connections/#pwp

      Published: March 27, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: March 27, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TODAY: NOAH Connections – Dads!

      March 27th at 9:00pm ET // 6:00pm PT

      Calling All Super Dads! 

      Join Sam McClung and fellow dads of kids with albinism TONIGHT at 9pm ET // 6pm PT to connect with a community of those who just get it.

      Whether you’re a brand new dad or have older kiddos with albinism, all are welcome to join!

      www.albinism.org/NOAH-Connections/#dads

      Published: March 27, 2023


      Tuesday: Theater and Albinism – Tips & Tricks

      March 21st at 9:00pm ET // 6:00pm PT

      Join Marleena Barber, Casey Greer, and Dennis Hurley for a special session of NOAH Connections on Tuesday, March 28th at 9pm ET // 6pm PT. These talented actors with albinism will share their tips and tricks for PWAs in theater, followed by a Q&A!

      All are welcome to join, so sign up today:
      www.albinism.org/NOAH-Connections/#theater

      Published: March 27, 2023


      Thursday: Teen Connections

      March 30th at 8:00pm ET // 5:00pm PT

      Spring is in the air! Say goodbye to winter and hello to friends this Thursday, March 30th at our Teen Connections session starting at 8pm ET // 5:00pm PT.

      www.albinism.org/NOAH-Connections/#teens

      Published: March 27, 2023


      Saturday: NOAH Kids’ PWA Book Club

      April 1st at 5:00pm ET // 2:00pm PT

      Kids with albinism, join Courtney & Alison K. for our final book club meeting this Saturday, April 1st at 5pm ET // 2pm PT.

      ​​​​​​​Book club attendees should finish the book before this weekend’s meeting!

      www.albinism.org/NOAH-Connections/#kids-book-club

      Published: March 27, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: March 27, 2023

      Wednesday, April 5th:
      NOAH Connections: Young Adults
      Thursday, April 6th:
      NOAH Connections: Adults
      Tuesday, April 11th:
      NOAH Connections: Military Families
      Thursday, April 13th:
      NOAH Connections: Teens
      Monday, April 17th:
      NOAH Workshops: Parents & Caregivers
      Wednesday, April 19th:
      NOAH Connections: Young Adults
      Thursday, April 20th:
      NOAH Connections: Adults
      Tuesday, April 25th:
      NOAH Connections: Parenting without Pigment
      Thursday, April 27th:
      NOAH Connections: Teens

      Spring for NOAH!

      NOAH Board Member, Elizabeth Drury, has an important message for YOU about our Spring for NOAH fundraising season! 

      As a long time community member, volunteer, and current Board Member, Elizabeth has a unique perspective on the importance of fundraising to help NOAH continue its work with the albinism community.

      Check out her video message to the NOAH Community.

      Inspired to jump into action? We are too! Check out www.albinism.org/funto get started today.

      ​​​​​​​Published: March 20, 2023


      Parents of Newly-Diagnosed Children & Young Children with Albinism!

      Parents & caregivers, join Sheila Adamo Monday, April 17th at 8:30pm ET // 5:30pm PT to join a community that will share and learn about adapting to the new role of a parent of a child with albinism.

      Register by April 15th to reserve your spot:
      www.albinism.org/workshops

      Published: March 20, 2023


      NOAH Connections: Military Families is Back!

      Join Ashley Maynard and fellow NOAH Military Families for a time of connection, support, and fellowship on Tuesday, April 11th at 9pm ET // 6pm PT.

      Sign up today: www.albinism.org/NOAH-Connections/#military

      Published: March 20, 2023


      Goodbye, Winter. Hello, Spring!

      Today is the official first day of spring, and we are looking forward to warmer weather just around the corner. 

      What are you looking forward to this spring? Let us know on our recent Facebook post

      Published: March 20, 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: March 20, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Aging with Albinism

      March 21st at 5:00pm ET // 2:00pm PT

      Older PWAs, you’re invited to join June Waugh and friends this Tuesday, March 21st, for our next session of Aging with Albinism!

      New to the group? There’s still time to sign up!
      www.albinism.org/NOAH-Connections/#aging

      Published: March 20, 2023


      Tuesday: Parenting without Pigment

      March 21st at 9:00pm ET // 6:00pm PT

      Calling all Parents without Pigment!

      Join Kathi Garza and friends to discuss playtime and how to navigate all of the tiny toys.

      New to the group? Sign up now!
      www.albinism.org/NOAH-Connections/#pwp

      Published: March 20, 2023


      Wednesday: Young Adult Connections

      March 22nd at 9:00pm ET // 6:00pm PT

      Spring has begun and what better way to kick off the new season than with friends! Join us this Wednesday, March 22nd for a night of fun and laughter starting at 9pm ET // 6pm PT. 

      www.albinism.org/NOAH-Connections/#young-adults

      Published: March 20, 2023


      Thursday: Adult Connections

      March 23rd at 9:00pm ET // 6:00pm PT

      Getting caught up in all the March madness? Be sure to take a moment for yourself by relaxing with friends this Thursday, March 23rd at 9pm ET // 6pm PT. 

      www.albinism.org/NOAH-Connections/#adults

      Published: March 20, 2023


      Saturday: NOAH Kids’ PWA Book Club

      March 25th at 4:00pm ET // 1:00pm PT

      Kids with albinism, join Courtney & Alison K. for our third meeting of book club this Saturday, March 25th at 4pm ET // 1pm PT.

      Book club attendees should read Chapters 13-18 for this weekend’s meeting!

      www.albinism.org/NOAH-Connections/#kids-book-club​​​​​​​

      Published: March 20, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: March 20, 2023

      Monday, March 27th:
      NOAH Connections: Dads
      Tuesday, March 28th:
      NOAH Connections: Theater and Albinism: Tips & Tricks
      Thursday, March 30th:
      NOAH Connections: Teens
      Saturday, April 1st:
      NOAH Connections: NOAH Kids’ Book Club
      Wednesday, April 5th:
      NOAH Connections: Young Adults
      Thursday, April 6th:
      NOAH Connections: Adults
      Tuesday, April 11th:
      NOAH Connections: Military Families
      Thursday, April 13th:
      NOAH Connections: Teens
      Monday, April 17th:
      NOAH Workshops: Parents & Caregivers
      Wednesday, April 19th:
      NOAH Connections: Young Adults
      Thursday, April 20th:
      NOAH Connections: Adults
      Tuesday, April 25th:
      NOAH Connections: Parenting without Pigment

      NOAH Research Program: About the Program

      Learn more about the NOAH Research Program in our recent video, and stay tuned for more info!​​​​​​​

      Support NOAH’s Research Program – “Get in the Game” at https://app.donorview.com/jWZ7Y

      ​​​​​​​Published: March 13, 2023


      Want to host a fundraiser, but don’t want to do it alone?

      We’re here to help! Comment on this post or email us at fundraise@3.19.125.119, and we’ll help you connect with NOAH community members in your area.

      www.albinism.org/fun

      Published: March 13, 2023


      Where Are They Now?

      2016 McGowan Leadership Scholarship recipient, Lee-Anne Thompson, had a busy 2022 educating her community and building awareness and accessibility for people with sight loss!

      Young leaders with albinism – check out Lee-Anne’s full update and start YOUR application for the McGowan Leadership Scholarship today!!

      www.albinism.org/leadership

      Published: March 13, 2023


      Do you know how NOAH was founded 40 years ago?

      In honor of International Women’s Day last Wednesday, we shared a video interview with two of NOAH’s founders, Janice Knuth and Lee Laughlin, conducted by Alix Laughlin. Check out the video to hear Jan and Lee share how they initially got in touch, and began planning the first conference for PWAs.

      Published: March 13, 2023


      Announcing: IAAD 2023 Theme!

      This year’s theme for International Albinism Awareness Day (June 13th) is Inclusion is Strength. The theme builds on last year’s theme of ensuring the inclusion of the voices of persons with albinism in all sectors of life.

      www.albinism.org/IAAD

      Published: March 13, 2023


      • Visually Impaired students in NH ages 14-21 are invited to Journey into Many Possibilities! 6/23-6/25 in Manchester, NH. Students will work with the TSA to learn about the airport security line/screening process. More details & RSVP: Dana at DanaTrahan@comcast.net

      • Tactile Transmissions is a free 90-minute Access Program geared toward visitors who are blind or partially sighted, focusing on Chaim Gross’s work and the Renee & Chaim Gross Foundation‘s current exhibition, “Artists and Immigrants.” Learn more: https://www.rcgrossfoundation.org/events

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: March 13, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Parent & Grandparent Connections with Rick Thompson: Albinism and the Eye

      March 15th at 9:00pm ET // 6:00pm PT

      Parents, grandparents, and caregivers, you’re invited to a special session of NOAH Connections hosted by Rick Thompson, OD, FAAO. Join Rick, an optometrist and parent of a PWA, for an informative presentation about albinism and the eye.

      www.albinism.org/NOAH-Connections/#parents

      Published: March 13, 2023


      Thursday: Teen Connections

      March 16th at 8:00pm ET // 5:00pm PT

      Teens – are you on March break? How are you spending your time off?

      Take some time to gather with friends! Join us this Thursday, March 16th at 8:00pm ET // 5:00pm PT for a night of fun!

      www.albinism.org/NOAH-Connections/#teens

      Published: March 13, 2023


      Saturday: NOAH Kids’ PWA Book Club

      March 18th at 4:00pm ET // 1:00pm PT

      Kids with albinism, join Courtney & Alison K. for our second meeting of book club this Saturday, March 18th at 4pm ET // 1pm PT.

      Book club attendees should read Chapters 8-12 for this weekend’s meeting!

      www.albinism.org/NOAH-Connections/#kids-book-club​​​​​​​

      Published: March 13, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: March 13, 2023

      Tuesday, March 21st:
      NOAH Connections: Aging with Albinism
      Wednesday, March 22nd:
      NOAH Connections: Young Adults
      Thursday, March 23rd:
      NOAH Connections: Adults
      Saturday, March 25th:
      NOAH Connections: NOAH Kids’ Book Club
      Monday, March 27th:
      NOAH Connections: Dads
      Tuesday, March 28th:
      NOAH Connections: Theater and Albinism: Tips & Tricks
      Thursday, March 30th:
      NOAH Connections: Teens
      Saturday, April 1st:
      NOAH Connections: NOAH Kids’ Book Club
      Wednesday, April 5th:
      NOAH Connections: Young Adults
      Thursday, April 6th:
      NOAH Connections: Adults

      Announcing: NOAH Research Program March Madness!

      Check out this special video announcement from NOAH Executive Director Karen Bly, and stay tuned for more info!

      ​​​​​​​Published: March 6, 2023


      Two Months Left to Apply!

      Remind the young leaders with albinism in your life – the deadline to apply for the Michael J. McGowan Leadership Scholarship Award is just under two months away!

      Learn more and start your application today:
      www.albinism.org/leadership

      Published: March 6, 2023


      Low Vision Tips & Tricks

      In honor of Low Vision Awareness Month this February, we asked our community to share how they visually access their hobbies. February may be over, but we’re still adding more tips and tricks!

      Check out the tips we’ve shared so far, and stay tuned for more submissions!

      www.albinism.org/lv-tips

      Published: March 6, 2023


      Low Vision Tips & Tricks

      In honor of Low Vision Awareness Month this February, we asked our community to share how they visually access their hobbies. Check out the great submissions we’ve received so far and stay tuned for more tips & tricks from PWAs in our community!

      www.albinism.org/lv-tips

      Published: March 6, 2023


      Calling all Parents without Pigment!

      Join Kathi Garza and friends Tuesday, March 21st at 9pm ET // 6pm PT to discuss playtime and how to navigate all of the tiny toys.

      New to the group? Sign up now!
      www.albinism.org/NOAH-Connections/#pwp

      Published: March 6, 2023


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: March 6, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      March 8th at 9:00pm ET // 6:00pm PT

      Have you been keeping busy? Hopefully not too busy to miss out on our next Young Adult Connections. 

      Carve out some time this Wednesday, March 8th at 9:00 PM ET // 6:00 PM PT and relax with good friends!

      www.albinism.org/NOAH-Connections/#young-adults

      Published: March 6, 2023


      Thursday: Adult Connections

      March 9th at 9:00pm ET // 6:00pm PT

      Can’t believe it’s March already?

      Don’t miss out on catching up with your PWA friends! Join us this Thursday, March 9th at 9:00 PM ET // 6:00 PM PT for a night of fun and laughs.

      www.albinism.org/NOAH-Connections/#adults

      Published: March 6, 2023


      Saturday: NOAH Kids’ PWA Book Club

      March 11th at 4:00pm ET // 1:00pm PT

      Kids with albinism, join Courtney & Alison K. for book club Saturdays at 4pm ET // 1pm PT beginning March 11th. We’ll be reading “The Thing About Georgie” by Lisa Graff.

      Kids’ PWA Book Club is recommended for kids ages 7-10.

      Sign up today!
      www.albinism.org/NOAH-Connections/#kids-book-club

      Published: March 6, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: March 6, 2023

      Wednesday, March 15th:
      NOAH Connections: Parents, Grandparents, and Caregivers
      Thursday, March 16th:
      NOAH Connections: Teens
      Saturday, March 18th:
      NOAH Connections: NOAH Kids’ Book Club
      Tuesday, March 21st:
      NOAH Connections: Aging with Albinism
      Wednesday, March 22nd:
      NOAH Connections: Young Adults
      Thursday, March 23rd:
      NOAH Connections: Adults
      Saturday, March 25th:
      NOAH Connections: NOAH Kids’ Book Club
      Monday, March 27th:
      NOAH Connections: Dads
      Thursday, March 30th:
      NOAH Connections: Teens
      Saturday, April 1st:
      NOAH Connections: NOAH Kids’ Book Club

      You’re Invited to Cookies with Kathi!

      Don’t miss out on the chance to get your cookie-decorating on with Kathi Garza while supporting NOAH! For just $10, you can join Kathi to decorate cookies from the comfort of your home in two live sessions this Sunday, March 5th!

      Friends & Families, join us at 3pm ET // 12pm PT. Adult PWAs, we can’t wait to see you at 5pm ET // 2pm PT.

      Don’t miss out! Get your tickets now: www.albinism.org/fundraisers/cookies

      ​​​​​​​Published: February 27, 2023


      Calling All BIPOC PWAs!

      To help the BIPOC Task Force and Connections Advisory Committee better understand the needs of the Black, Indigenous, and People of Color within our NOAH community, we invite you to fill out a brief survey.

      All responses will remain anonymous unless you choose to share your contact information for further discussion with the committee. 

      https://forms.gle/S7fuDarauFy2n4rB8

      ​​​​​​​Published: February 27, 2023


      Let YOUR Voice Be Heard!

      LGBTQ+ PWAs – looking for a way to help? Let YOUR voice be heard by joining the LGBTQ+ Advisory Task Force!

      Learn more or apply to join the NOAH Connections LGBTQ+ Advisory Task Force today at:
      www.albinism.org/NOAH-Connections/task-force

      Published: February 27, 2023


      Low Vision Tips & Tricks

      In honor of Low Vision Awareness Month this February, we asked our community to share how they visually access their hobbies. Check out the great submissions we’ve received so far and stay tuned for more tips & tricks from PWAs in our community!

      www.albinism.org/lv-tips

      Published: February 27, 2023


      Announcing: NOAH Kids’ PWA Book Club!

      Kids with albinism, join Courtney & Alison K. for book club Saturdays at 4pm ET // 1pm PT beginning March 11th. We’ll be reading “The Thing About Georgie” by Lisa Graff.

      Kids’ PWA Book Club is recommended for kids ages 7-10.

      Sign up today!
      www.albinism.org/NOAH-Connections/#kids-book-club

      Published: February 27, 2023


      • Remember NOAH community member Lyra T., who was on team “Little Red Hens” for the PBS show, Make48? We are excited to share that the episode featuring Lyra’s team aired last Wednesday (2/22) on This Old House Makers Channel (Roku Channel #458). Congratulations, Lyra!​​​​​​​


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: February 27, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Thursday: Teen Connections

      March 2nd at 8:00pm ET // 6:00pm PT

      Teens, we can’t wait to see you Thursday! Join us for friends and good conversation at 8pm ET // 5pm PT.

      New to the group? Sign up now!
      www.albinism.org/NOAH-Connections/#teens

      Published: February 27, 2023


      Sunday: Cookies with Kathi!

      March 5th at 3:00pm ET // 12:00pm PT

      and 5:00pm ET // 2:00pm PT

      Baker-extraordinaire Kathi Garza will be hosting a spring session of her popular Cookies with Kathi live virtual course to raise funds for NOAH and we hope to see you there!​​​​​​​

      Learn more and purchase your tickets today at: www.albinism.org/fundraisers/cookies

      Published: February 27, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: February 27, 2023

      Wednesday, March 8th:
      NOAH Connections: Young Adults
      Thursday, March 9th:
      NOAH Connections: Adults
      Saturday, March 11th:
      NOAH Connections: NOAH Kids’ Book Club
      Wednesday, March 15th:
      NOAH Connections: Parents, Grandparents, and Caregivers
      Thursday, March 16th:
      NOAH Connections: Teens
      Saturday, March 18th:
      NOAH Connections: NOAH Kids’ Book Club
      Tuesday, March 21st:
      NOAH Connections: Aging with Albinism
      Wednesday, March 22nd:
      NOAH Connections: Young Adults
      Thursday, March 23rd:
      NOAH Connections: Adults
      Saturday, March 25th:
      NOAH Connections: NOAH Kids’ Book Club
      Monday, March 27th:
      NOAH Connections: Dads

      Black History Month – Community Submission

      “I am twenty years old, I have albinism, and I am Black. 

      I was seventeen when the latter part of that… sentence started to trouble me…” – Yasmine Straker

      We invited Black PWAs in our community to share their experiences in honor of Black History Month. Read the rest of Yasmine’s submission at www.albinism.org/Black-History 

      ​​​​​​​Published: February 20, 2023


      Low Vision Awareness Month – Community Submission

      In honor of Low Vision Awareness Month, we asked PWAs in our community to share how they visually access their hobbies. 

      Becca Evans shared a tip she uses with her dog, Tilly, when doing nosework.

      Check it out on our new Low Vision Tips & Tricks page: www.albinism.org/lv-tips

      Published: February 20, 2023


      Thank You, Winter Burn Bowl-a-Thon Team!

      This weekend, Angela Adamo took over the NOAH social media story to share a peek into the NI NOAH Winter Burn Bowl-a-Thon. Thank you, Angela & team for letting us tune in to your event as you kicked off Spring for NOAH fundraising season! 

      Feeling inspired by the Winter Burn team? Learn more about setting up your own FUNdraiser today at: www.albinism.org/fun

      Published: February 20, 2023


      McGowan Leadership Scholarship

      Young leaders with albinism – 2022 McGowan Leadership Scholarship recipient, Sarah Kane, is encouraging YOU to apply for this year’s scholarship. 

      Hear more about Sarah’s exciting future plans & why she recommends applying in our recent video!

      www.albinism.org/leadership

      Published: February 20, 2023


      Calling All AmazonSmile Shoppers!

      Looking for a different way to shop for NOAH? 

      iGive offers donations to NOAH on purchases at over 2,000 stores through their web browser extension or phone app, and it’s free to join. Amazon isn’t on their list, but some of your other favorite online retailers may be!

      Learn more: https://www.igive.com/albinism

      Published: February 20, 2023


      • Users of the ReBokeh app are invited to complete a brief survey to help app developers better understand how people use the app, and which additional features would be most valuable. Anyone who completes the survey will be entered to win a $100 Amazon gift card. https://forms.gle/rMbVF8zUdrht3LgG9


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: February 20, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Aging with Albinism

      February 21st at 5:00pm ET // 2:00pm PT

      Older PWAs, you’re invited to join June Waugh and friends this Tuesday, February 21st, for our next session of Aging with Albinism!

      New to the group? There’s still time to sign up!
      www.albinism.org/NOAH-Connections/#aging

      Published: February 20, 2023


      Tuesday: Informational Call for Prospective Board Members

      February 21st at 8:00pm ET // 5:00pm PT

      Applications are currently being accepted to fill open positions on the NOAH Board of Directors. 

      Interested applicants are strongly encouraged to attend the informational call Tuesday, February 21st at 8pm ET // 5pm PT to fully understand the commitment necessary to become a Board Member. 

      Learn more at: http://3.19.125.119/board-of-directors/board-service/

      Published: February 20, 2023


      Wednesday: Young Adult Connections

      February 22nd at 9:00pm ET // 6:00pm PT

      Feel like time is passing by too quickly? 

      We’ll stop the clock and catch up with friends this Wednesday, February 22nd at 9:00pm ET // 6:00pm PT!

      www.albinism.org/NOAH-Connections/#young-adults

      Published: February 20, 2023


      Thursday: Adult Connections

      February 23rd at 9:00pm ET // 6:00pm PT

      Feeling the February blues? Break out of the monotony and cheer up with your fellow PWAs. 

      Join us for fun, laughs, and good stories this Thursday, February 23rd at 9:00pm ET // 6:00pm PT!

      www.albinism.org/NOAH-Connections/#adults

      Published: February 20, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: February 20, 2023

      Thursday, March 2nd:
      NOAH Connections: Teens
      Sunday, March 5th:
      NOAH Fundraiser: Cookies with Kathi
      Wednesday, March 8th:
      NOAH Connections: Young Adults
      Thursday, March 9th:
      NOAH Connections: Adults
      Saturday, March 11th:
      NOAH Connections: NOAH Kids’ Book Club
      Wednesday, March 15th:
      NOAH Connections: Parents, Grandparents, and Caregivers
      Thursday, March 16th:
      NOAH Connections: Teens
      Saturday, March 18th:
      NOAH Connections: NOAH Kids’ Book Club

      Are you interested in serving on the NOAH Board of Directors?

      Applications are currently being accepted to fill open positions on the NOAH Board of Directors. 

      Interested applicants are strongly encouraged to attend the informational call Tuesday, February 21st at 8pm ET // 5pm PT to fully understand the commitment necessary to become a Board Member. 

      Learn more at: http://3.19.125.119/board-of-directors/board-service/

      ​​​​​​​Published: February 13, 2023


      BIPOC Survey

      To help the BIPOC Task Force and Connections Advisory Committee better understand the needs of the Black, Indigenous, and People of Color within our NOAH community, we invite you to fill out a brief survey. All responses will remain anonymous unless you choose to share your contact information for further discussion with the committee. 

      https://forms.gle/S7fuDarauFy2n4rB8

      Published: February 13, 2023


      Looking for a Way to Help?

      Let YOUR voice be heard!

      NOAH seeks volunteers to represent the community’s interests in planning for future NOAH Connections sessions. 

      Learn more or apply to join a NOAH Connections Advisory Task Force today at:
      www.albinism.org/NOAH-Connections/task-force

      Published: February 13, 2023


      Re-Connecting with NOAH Connections!

      As we continue into 2023, our programming team is eager to reconnect with YOU and provide virtual connections and workshops that meet the needs of our community. Do you have an idea for a topic? Would you like more information about a new product or service? Let us know!

      Submit your ideas for virtual programs to connections@3.19.125.119.

      Published: February 13, 2023


      You’re Invited to Cookies with Kathi!

      We are so excited to share that baker-extraordinaire, Kathi Garza, will be hosting a spring session of her popular Cookies with Kathi live virtual course to raise funds for NOAH.

      There will be one session for families on Sunday, March 5th at 3pm ET // 12pm PT, followed by a session for adults with albinism on Sunday, March 5th at 5pm ET // 2pm PT

      Learn more and purchase your tickets today at: www.albinism.org/fundraisers/cookies

      Published: February 13, 2023


      Aging with Albinism!

      Older PWAs, you’re invited to join June Waugh and friends on Tuesday, February 21st for our next session of Aging with Albinism! 

      New to the group? There’s still time to sign up! 

      www.albinism.org/NOAH-Connections/#aging

      Published: February 13, 2023


      • We are excited to share that NOAH community member & PWA, Lyra T., will be featured in an upcoming episode of the PBS show, Make48. Lyra and her classmates on team “Little Red Hens” had to develop an idea, make a prototype, then pitch their ideas to a panel of industry judges – all in 48 hours. Congratulations, Lyra – we can’t wait to see the episode! Check out a preview: https://www.youtube.com/watch?v=MYJ5aHVeDEY

      • In honor of Black History Month, we share this insightful interview with model, lawyer, and activist with albinism, Thando Hopa. Interviewed by Molly Burke, Thando discusses her experiences being a Black PWA, the importance of representation, and more. https://www.facebook.com/watch/?v=984147518741493

      • Did you know that NOAH community member & photographer with albinism, Benjamin Powell, recently released a photography book? His book, titled “Albinism Seen: A Story Through My Eyes,”expresses “…not only what we see, but how we feel on the inside while breaking through challenges on a daily basis [as PWAs].” To learn more about Albinism Seen, visit: www.benjaminpowell.org/albinismseen

      • Amber Gabriel, author of The Edge of the Sword series, has made available a limited number of free audiobooks for the NOAH community. Gabriel writes “clean,” medieval action-adventure fantasy-romance for adults. Her series grapples with difficult topics like PTSD, human trafficking, polygamy, domestic violence, and discrimination without becoming dark or explicit. The Edge of the Sword series includes a character with oculocutaneous albinism, Princess Bashalis, who is introduced in book 3. Though the condition is unnamed in her fictional world, Gabriel’s goal in including this character is to promote understanding and offer a positive portrayal of albinism in a fantasy setting. If this sounds like your type of series, contact @amber_gabriel on Instagram or email her at amber.gabriel13@gmail.com and mention NOAH to receive a complimentary code for Spotify (books 1-4) and/or Audible (book 5). Though it is a series, each book can stand alone, so please specify where you wish to start. 

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: February 13, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TODAY: Mothers’ Workshop

      February 13th at 8:30pm ET // 5:30pm PT

      Registered Attendees, join Sheila Adamo TONIGHT for our Mothers’ Virtual Workshop, inspired by the popular NOAHCon Mothers’ Workshop! This insightful workshop will provide information, guidance and support for mothers of children with albinism of all ages in the comfort of your own home.

      To learn more about future workshops, visit:
      www.albinism.org/workshops

      Published: February 13, 2023


      Thursday: Teen Connections

      February 16th at 8:00pm ET // 5:00pm PT

      Teens, we can’t wait to see you Thursday! Join us for our next session of teen connections for a good time with even better company.

      www.albinism.org/NOAH-Connections/#teens

      Published: February 13, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: February 13, 2023

      Tuesday, February 21st:
      NOAH Connections: Aging with Albinism
      Wednesday, February 22nd:
      NOAH Connections: Young Adults
      Thursday, February 23rd:
      NOAH Connections: Adults
      Thursday, March 2nd:
      NOAH Connections: Teens
      Sunday, March 5th:
      NOAH Fundraiser: Cookies with Kathi
      Wednesday, March 8th:
      NOAH Connections: Young Adults
      Thursday, March 9th:
      NOAH Connections: Adults
      Wednesday, March 15th:
      NOAH Connections: Parents, Grandparents, and Caregivers

      Double Takeover Tuesday Tomorrow!

      Are You Ready to Change Lives?

      Would you like to apply for nomination to the NOAH Board of Directors? 


      Since 2017, the National Organization for Albinism and Hypopigmentation has operated with a board consisting of directors nominated from our diverse community and elected by our current board membership. An annual rotation of up to one fourth of the board and any unexpected vacancies require the Board Development Committee to identify potential directors ready to serve.

      The programs and services that NOAH provides to the albinism community supply essential information and support like no other organization – and NOAH’s board of directors play a crucial role in the work that NOAH does. Members of the board are responsible for governance, serve a four-year term, volunteer on a board standing committee, support efforts to fund NOAH programs and attend up to two in-person meetings annually.

      If you’re interested in changing lives in the albinism community through service on NOAH’s Board of Directors, visit http://3.19.125.119/board-of-directors/board-service/ to learn more! 

      ​​​​​​​Published: February 6, 2023


      Black History Month

      February is Black History Month, and we want to hear from YOU! 

      Black PWAs, we invite you to share your experiences as a Black person with albinism throughout February and beyond. We welcome written submissions, photos, videos, and more!

      Please send submissions to eaubrey@3.19.125.119 for the chance to be featured on NOAH social media and the NOAH website. 

      Published: February 6, 2023


      Low Vision Awareness Month

      February is Low Vision Awareness Month, and we want to hear from the PWAs in our community. 

      How do you visually access your hobbies? Whether you enjoy participating in arts, sports, or something else, share one tip or trick you use along with a photo (of the tip, or of you doing your hobby!). 

      Selected submissions will be featured on NOAH social media and included on our new Low Vision Tips & Tricks page! 

      Please send your tips, tricks, and photos to Emily at eaubrey@3.19.125.119

      PS – prefer to share a video, or have a different way you’d like to share? We welcome all types of submissions!

      Published: February 6, 2023


      Get Ready to Spring for NOAH!

      Our Spring for NOAH fundraising weekend isn’t until April, but you can host a fundraiser any time that works for YOU! 

      Up first on the NOAH fundraising calendar is the 16th annual 🤩 Winter Burn Bowl-a-Thon in Illinois on February 19th.

      Check out upcoming events and start your fundraising page today!
      www.albinism.org/fun

      Published: February 6, 2023


      Announcing: Cookies with Kathi!

      We are so excited to share that baker-extraordinaire, Kathi Garza, will be hosting a spring session of her popular Cookies with Kathi live virtual course to raise funds for NOAH.

      There will be one session for families on Sunday, March 5th at 3pm ET // 12pm PT, followed by a session for adults with albinism on Sunday, March 5th at 5pm ET // 2pm PT

      Learn more and purchase your tickets today at: www.albinism.org/fundraisers/cookies

      Published: February 6, 2023


      There’s Still Time to Sign Up!

      NOAH moms, join Sheila Adamo on Monday, February 13th at 8:30pm ET // 5:30pm PT for our Mothers’ Virtual Workshop, inspired by the popular NOAHCon Mothers’ Workshop! This insightful workshop will provide information, guidance and support for mothers of children with albinism of all ages in the comfort of your own home.

      Register by Saturday, February 11th to reserve your spot!
      www.albinism.org/workshops

      Published: February 6, 2023


      • Did you know that the American Council for the Blind’s Audio Description Project has compiled a list of Oscar-nominated filmsand where to watch them with audio descriptions? Learn more at:
        https://acb.org/2023-oscars-AD-films?

      • Have you heard of CVS Spoken RX? Using the CVS app, or a Stand Alone Reader, Spoken RX will read your full prescription info in English or Spanish! Spoken RX was created for blind/low-vision patients to ensure that full prescription details, including dosing instructions & more, are readily accessible without having to read fine-print text. https://www.cvs.com/content/pharmacy/spoken-rx​​​​​​​

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: February 6, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Parenting without Pigment

      February 7th at 9:00pm ET // 6:00pm PT

      Join Kathi Garza and friends this Tuesday, February 7th at 9pm ET // 6pm PT to discuss VI parenting hacks. We’ll talk about having food delivered, tips with Uber, getting help from neighbors, and more!

      New to the group? There’s still time to sign up:

      http://3.19.125.119/NOAH-Connections/#pwp 

      Published: February 6, 2023


      Wednesday: Young Adult Connections

      February 8th at 9:00pm ET // 6:00pm PT

      Survey says, final answer, Yahtzee!

      If you’re thinking the answer is ‘what is game night?’, you are correct! Try your luck at this week’s special edition young adult game night! 

      Join us this Wednesday, February 8th, 9:00 PM ET // 6:00 PM PTwww.albinism.org/NOAH-Connections/#young-adults

      Published: February 6, 2023


      Thursday: Adult Connections

      February 9th at 9:00pm ET // 6:00pm PT

      Do you have random facts of knowledge? Find yourself watching a game show and answering the questions before the contestant? Well you’re in luck! Bring your expertise to this Thursday’s adult connections game night and show us all that competitive spirit! 

      We’ll start the first round February 9th at 9:00 PM ET // 6:00 PM PT!

      www.albinism.org/NOAH-Connections/#adults

      Published: February 6, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: February 6, 2023

      Monday, February 13th:
      NOAH Workshops: Mothers’ Workshop
      Thursday, February 16th:
      NOAH Connections: Teens
      Tuesday, February 21st:
      NOAH Connections: Aging with Albinism
      Wednesday, February 22nd:
      NOAH Connections: Young Adults
      Thursday, February 23rd:
      NOAH Connections: Adults
      Sunday, March 5th:
      NOAH Fundraiser: Cookies with Kathi

      Double Takeover Tuesday Tomorrow!

      Up next for Takeover Tuesday, we have a double takeover featuring doctors with albinism, Megan Duffey & Bob Gabbay!

      Megan is trained as an Internist and Pediatrician, and is currently in training to be an Infectious Diseases physician in Houston, Texas. She sees patients both in the clinic and hospital and treats a wide variety of infections. 

      Bob is the Chief Scientific and Medical Officer for the American Diabetes Association (ADA), the global authority on diabetes.

      Make sure to check out the NOAH social media story tomorrow as they share a day in their lives!

      www.instagram.com/noahalbinism

      ​​​​​​​Published: January 30, 2023


      You’ve Heard About the McGowan Leadership Scholarship…

      …but do you know who is eligible? 

      The McGowan Leadership Scholarship isn’t just for high school seniors…young leaders with albinism living in the US/Canada, who are enrolled in an undergraduate program in the US/Canada as of Fall 2023, are encouraged to apply!

      For more details or to start your application, visit:
      www.albinism.org/leadership

      Published: January 30, 2023


      Parents without Pigment, You’re Up Next!

      Join Kathi Garza and friends on Tuesday, February 7th at 9pm ET // 6pm PT to discuss VI parenting hacks. We’ll talk about having food delivered, tips with Uber, getting help from neighbors, and more!

      Join us!
      www.albinism.org/NOAH-Connections/#pwp 

      Published: January 30, 2023


      • Did you know that Perkins School for the Blind offers Career Launch Tech Bootcamp for blind & visually impaired adults ages 18+ with a high school diploma or college degree? Applications are currently being accepted for sessions in early February! Learn more: https://www.perkins.org/career-launch/career-launch-business-tech-bootcamp/?

      • NORD’s Rare Impact Awards & Living Rare, Living Stronger Patient and Family Forum will be held on Saturday, May 6, 2023 in Washington, DC. For more details, check out their recent FB post:
        https://www.facebook.com/photo?fbid=556198436534556&set=a.326614779492924

      • Join us in congratulating Liza Corso & Kym Crosby, NOAH community members & athletes with albinism who were recently selected to join the 2023 U.S. Paralympics Track & Field National Team. Congratulations, Liza & Kym!! https://bit.ly/3kJMRy4

      • Join us in congratulating Colleen Young, NOAH community member and athlete with albinism who was recently selected to join the 2023 National Paralympic Swim Team. Congratulations, Colleen! https://bit.ly/3wIfC0O

      • NOAH community member and ReBokeh CEO & founder, Rebecca Rosenberg, was recently featured in a BBC News segment about the app she designed to help people with low vision navigate the world around them. Check it out! https://youtu.be/WwJvlKEDmdA

      • The Paraclimbing Nationals will be held March 4-5 in Austin, TX, this year, with a category for visually impaired athletes. NOAH community member Linn Poston, previously featured at NOAH Night in the NOAH Has Talent! segment, will be competing! For more details and registration, visit: www.usaclimbing.org/compete/paraclimbing​​​​​​​​

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: January 30, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Thursday: Teen Connections

      February 2nd at 8:00pm ET // 5:00pm PT

      Spend your Groundhog day with fellow PWAs! Whether we have 6 weeks of winter or spring is coming early, join us for fun and good times this Thursday, February 2nd at 8:00 PM ET // 5:00 PM PT.

      www.albinism.org/NOAH-Connections/#teens

      Published: January 30, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: January 30, 2023

      Tuesday, February 7th:
      NOAH Connections: Parenting without Pigment
      Wednesday, February 8th:
      NOAH Connections: Young Adults
      Thursday, February 9th:
      NOAH Connections: Adults
      Monday, February 13th:
      NOAH Workshops: Mothers’ Workshop
      Thursday, February 16th:
      NOAH Connections: Teens
      Tuesday, February 21st:
      NOAH Connections: Aging with Albinism
      Wednesday, February 22nd:
      NOAH Connections: Young Adults
      Thursday, February 23rd:
      NOAH Connections: Adults

      Takeover Tuesday is Back!

      We are so excited to share that we will be resuming our #TakeoverTuesday series TOMORROW!

      Make sure to check out the NOAH social media story tomorrow, as Kristen Dalton, a pediatric nurse practitioner, wife, and mother of two boys with albinism shares her busy day with the NOAH community. Tune in as she discusses her career in healthcare, living in a busy city, raising kids with albinism, and some of the tips, tricks, and tools that help her along the way! 

      www.instagram.com/noahalbinism

      ​​​​​​​Published: January 23, 2023


      Announcing: The 15th Anniversary McGowan Leadership Scholarship!

      Do you know a young leader with albinism? Encourage them to apply for the McGowan Leadership Scholarship. Now in its 15th anniversary year, this scholarship recognizes and nurtures the creativity, passion and focus of the next generation of leaders in the albinism community.

      Learn more:
      www.albinism.org/leadership

      Published: January 23, 2023


      Calling all NOAH Moms!

      Join Sheila Adamo on Monday, February 13th at 8:30pm ET // 5:30pm PT for our Mothers’ Virtual Workshop, inspired by the popular NOAHCon Mothers’ Workshop! This insightful workshop will provide information, guidance and support for mothers of children with albinism of all ages in the comfort of your own home.

      Register by February 11th to reserve your spot!
      www.albinism.org/workshops

      Published: January 23, 2023


      • UN Independent Expert, Muluka-Anne Miti-Drummond shared an update about our friends at the Global Albinism Alliance and their ongoing work since 2020. Learn more in her recent Facebook post: https://bit.ly/3D71npS 

      • Join us in congratulating Canadian Paralympic goalball athlete & PWA, Amy Burk, who was recently elected onto the Canadian Paralympic Athletes’ Councilhttps://bit.ly/3ZYsrBK

      • Our friends at ReBokeh are currently seeking a social media intern to help keep up engagement, coordinate with their marketing company, and help create and post additional content ad hoc. This is a paid position at about 10-15 hours per week starting ASAP. For more details, contact Rebecca Rosenberg at rebecca@rebokeh.com

      • Did you know the the American Foundation for the Blind has Talent Lab internships available for college students in computer science, design, and engineering? Applications for the 2023 summer cohort are open now. Learn more: https://www.afb.org/talentlab​​​​​​​

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: January 23, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Spring for NOAH Coffee Chat

      January 24th at 8:00pm ET // 5:00pm PT

      ANYTHING can be a fundraiser!!

      Walks, Bowl-a-thon, BBQ, Cookies, Swimming…the possibilities are endless.

      Join us this Tuesday, January 24th at 8pm ET // 5pm PT to share FUNdraiser ideas and connect with fellow NOAH supporters:
      www.albinism.org/NOAH-Connections/#coffee

      Published: January 23, 2023


      Wednesday: Young Adult Connections

      January 25th at 9:00pm ET // 6:00pm PT

      Stay out of the cold and wet weather (New England, we’re looking at you!) and join us for an hour of fun! We’ll kick off our next Young Adult Connections call this Wednesday January 25th at 9:00 PM ET // 6:00 PM PT. 

      www.albinism.org/NOAH-Connections/#young-adults​​​​​​​

      Published: January 23, 2023


      Thursday: Parent Connections

      January 26th at 8:30pm ET // 5:30pm PT

      Parents, you’re invited to our next session of Parent Connections!

      Join Megan Pitt, LMHC and fellow parents of PWAs this Thursday, January 26th at 8:30pm ET // 5:30pm PT for meaningful connections in the new year.

      Will we see YOU there? 
      www.albinism.org/NOAH-Connections/#parents

      Published: January 23, 2023


      Connections

      January 26th at 9:00pm ET // 6:00pm PT

      Keep the new year vibes magic going by joining us this Thursday January 26th for our Adult Connections! We’ll begin at 9:00 PM ET // 6:00 PM ET, don’t miss out! 

      www.albinism.org/NOAH-Connections/#adults

      Published: January 23, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: January 23, 2023

      Thursday, February 2nd:
      NOAH Connections: Teens
      Wednesday, February 8th:
      NOAH Connections: Young Adults
      Thursday, February 9th:
      NOAH Connections: Adults
      Monday, February 13th:
      NOAH Workshops: Mothers’ Workshop

      Martin Luther King Jr. Day

      In observance of Martin Luther King Jr. Day, we share this photo captured at a march in Selma, Alabama in 1965 that features Dr. King alongside colleague and personal friend with albinism, Rev. Jesse L. Douglas.​​​​​​​

      ​​​​​​​Published: January 17, 2023


      NOAH Research Program: Deadline Tomorrow!

      The NOAH Research Program Call for Proposals deadline for LOI Forms and Expression of Interest Videos or Written Summaries is tomorrow.

      Learn more:
      albinism.org/research/#proposals

      Published: January 17, 2023


      Spring for NOAH Coffee Chat!

      If you can’t make it to our first Spring for NOAH Coffee Chat this Saturday (scroll down for more info!), worry not! We have a second chance for veteran fundraisers and newbies alike to join us to discuss FUNdraising ideas on Tuesday, January 24th at 8pm ET // 5pm PT

      Learn more & sign up now!

      www.albinism.org/NOAH-Connections/#coffee

      Published: January 17, 2023


      Career Corner

      Adults with albinism, we want to hear from you. Inspire our community by sharing information about your job or career through NOAH’s Career Corner feature. 

      Check out past submissions or submit information about your job or career today at:
      www.albinism.org/career-corner

      Published: January 17 2023



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: January 17, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Aging with Albinism

      January 17th at 5:00pm ET // 2:00pm PT

      Join special guest host, Karen Bly, and friends for our next session of Aging with Albinism this Tuesday at 5:00pm ET // 2:00pm PT.

      New to the group? Our first session of the new year is the perfect time to join! Sign up now:
      www.albinism.org/NOAH-Connections/#aging

      Published: January 17, 2023


      Wednesday: Newly-Diagnosed Parents of Parents of Young Children with Albinism Workshop

      January 18th at 8:30pm ET // 5:30pm PT

      Last Chance to Sign Up!

      Parents & caregivers, join Sheila Adamo this Wednesday, January 18th at 8:30pm ET//5:30pm PT to join a community that will share and learn about adapting to the new role of a parent of a child with albinism.

      Register by TODAY (1/16) to reserve your spot:
      www.albinism.org/workshops

      Published: January 17, 2023


      Thursday: Teen Connections

      January 19th at 8:00pm ET // 5:00pm PT

      Teen PWAs, you’re up next! We can’t wait to see you this Thursday at 8pm ET // 5pm PT for our next session of Teen Connections.

      New to the group? There’s still time to sign up!

      www.albinism.org/NOAH-Connections/#teens

      Published: January 17, 2023


      Saturday: Spring for NOAH Coffee Chat

      January 21st at 11:00am ET // 8:00am PT

      Whether you’re a seasoned event host or new to the NOAH crew and not sure where to start, our Spring for NOAH Coffee Chat will be the perfect chance to connect with NOAH staff and fellow community members and brainstorm FUNdraising ideas that will be a blast for you and your loved ones, and help support NOAH!

      Join us this Saturday, January 21st at 11am ET // 8am PT for our first of two Spring for NOAH Coffee Chats:
      www.albinism.org/NOAH-Connections/#coffee

      Published: January 17, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: January 17, 2023

      Tuesday, January 24th:
      NOAH Connections: Spring for NOAH Coffee Chat
      Wednesday, January 25th:
      NOAH Connections: Young Adults
      Thursday, January 26th:
      NOAH Connections: Parents
      NOAH Connections: Adults
      Monday, February 13th:
      NOAH Workshops: Mothers’ Workshop

      Albinism InSight – Spring Feature: Do I Tell? Do I Ask?

      Whether you are interviewing for a job, dating, making friends, or in any social situation, when is the right time and how do you explain that you have albinism? As a parent of a child with albinism, when do you talk with your child about it?

      On the other hand, when you are approaching people with albinism, who and how do you ask questions for greater insight? Navigating a life with albinism is a unique journey, and education is important. How can it happen best for all parties involved?

      Do you have insight to share? Consider submitting an article for the Spring Issue of Albinism InSight!

      Submissions due January 18th. Learn more: www.albinism.org/ai/call-for-content

      ​​​​​​​Published: January 9, 2023


      You’re Invited to Aging with Albinism!

      Join special guest host, Karen Bly, and friends for our next session of Aging with Albinism on Tuesday, January 17th at 5:00pm ET // 2:00pm PT.

      New to the group? Our first session of the new year is the perfect time to join! Sign up now:
      www.albinism.org/NOAH-Connections/#aging

      Published: January 9, 2023


      Upcoming NOAH Workshops

      Parents & caregivers, check out our upcoming workshop offerings & register today:

      Wednesday, January 18th:

      Parents of Newly Diagnosed Children & Young Children with Albinism

      Monday, February 13th:

      Mothers’ Virtual Workshop

      www.albinism.org/workshops

      Published: January 9, 2023


      Parent Connections

      Parents, you’re invited to our next session of Parent Connections!

      Join Megan Pitt, LMHC and fellow parents of PWAs on Thursday, January 26th at 8:30pm ET // 5:30pm PT for meaningful connections in the new year.

      Will we see YOU there?
      www.albinism.org/NOAH-Connections/#parents

      Published: January 9, 2023


      • Have you heard about the new, VI accessible Kellogg’s packaging?Kellogg’s has announced that they will be adding NaviLens codes to boxes of its most popular cereal. The codes can be scanned from up to 40 feet away, and the NaviLens app will “offer verbal directions to help [shoppers] navigate to the cereal boxes.”https://www.foodnetwork.com/fn-dish/news/kellogg-navilens-cereal-packaging

      • Did you know the Fine Arts Museums of San Francisco are working to expand audio descriptions of artwork to make their museums, including temporary exhibits, more accessible to the blind and visually impaired communities they serve? These new audio descriptions include “the basics of artist, medium, materials and size,” as well as “a general description of what the work depicts and from what perspective it is presented…” so that blind and visually impaired visitors can experience the works more fully. https://datebook.sfchronicle.com/art-exhibits/expanded-museum-audio-descriptions-help-the-sight-impaired-envision-the-art?mibextid=Zxz2cZ&

      • XMO Sports is hosting Extreme Mobility Camps for blind and visually impaired athletes ages 14-30 and there are spots still available for their winter 2023 camps running from 2/26-3/5 in Denver, CO! Applications are due by January 10th!For more details or to apply, visit: https://www.xmocamps.org/apply
        Contact Pat Malloy (pat.malloy@gmail.com) with questions!

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: January 9, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      January 11th at 9:00pm ET // 6:00pm PT

      Young adults, see you Wednesday! We can’t wait to reconnect with old friends and meet new ones in our first Young Adult Connections session of the new year.

      New the group? Sign up now!

      www.albinism.org/NOAH-Connections/#young-adults

      Published: January 9, 2023


      Thursday: Adult Connections

      January 12th at 9:00pm ET // 6:00pm PT

      Adult PWAs, ready for our first connections session of 2023? We can’t wait to see you this Thursday! 

      Have you been thinking about joining Adult Connections, but haven’t attended a call yet? Now’s the perfect time to sign up and join us for the first time:​​​​​​​

      www.albinism.org/NOAH-Connections/#adults 

      Published: January 9, 2023


      Sunday: LGBTQ+ and Allies

      January 15th at 8:00pm ET // 5:00pm PT

      LGBTQ+ PWAs and allies, we hope you’ll join us for our first NOAH Connections session just for you in 2023. 

      See you on Sunday, January 15th at 8pm ET // 5pm PT!

      www.albinism.org/NOAH-Connections/#lgbtq

      Published: January 9, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: January 9, 2023

      Tuesday, January 17th:
      NOAH Connections: Aging with Albinism
      Wednesday, January 18th:
      NOAH Workshops: Parents & Caregivers
      Thursday, January 19th:
      NOAH Connections: Teens
      Wednesday, January 25th:
      NOAH Connections: Young Adults
      Thursday, January 26th:
      NOAH Connections: Parents
      NOAH Connections: Adults

      Happy New Year!

      Wishing everyone in our community a Happy New Year. We look forward to connecting with you virtually and in-person in 2023!​​​​​​​

      ​​​​​​​Published: January 2, 2023


      Last Chance for Cookies with Kathi!

      There’s just one week left to enjoy the Cookies with Kathi video library, and we don’t want you to miss out! 

      For just $20, you receive access to the Cookies with Kathi video library, including a supply list, Kathi’s favorite sugar cookie and flood icing recipes, and a complete set of instructional videos to lead you through each step of the process. 

      And perhaps the best part? All proceeds benefit NOAH!

      What are you waiting for? Sign up now:
      www.albinism.org/fundraisers/cookies

      Published: January 2, 2023


      Share YOUR Story & Support NOAH!

      Sharing YOUR story and the impact NOAH has made on your life is one of the easiest ways to support us this holiday season! We know you’re busy, but if you could take a few moments to share what NOAH means to you, we’d really appreciate it.

      Submit a brief text, audio, or video response now: 

      https://www.videoask.com/f3qzarakt

      Published: January 2, 2023


      See You in the Twin Cities!

      Adult PWAs, mark your calendars for our next Adults with Albinism Weekend, September 29 – October 1, 2023 in Minneapolis, MN! 

      www.albinism.org/adult-weekend

      Published: January 2, 2023


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: January 2, 2023

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Thursday: Teen Connections

      January 5th at 8:00pm ET // 5:00pm PT

      Teens, join us this Thursday at 8pm ET // 5pm PT for our first Teen Connections session of the new year! Don’t miss out on this chance to catch up with friends and relax after the busy holiday season.

      www.albinism.org/NOAH-Connections/#teens

      Published: January 2, 2023


      Sunday: New Year with NOAH!

      January 8th at 7:00pm ET // 4:00pm PT

      We can’t wait to kick off the New Year with our NOAH friends on Gatherly! We hope you’ll join us this Sunday, January 8th at 7pm ET // 4pm PT for activities, games, and good company.

      All friends of NOAH are welcome, so spread the word!
      www.albinism.org/NOAH-Connections/#new-year

      Published: January 2, 2023


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: January 2, 2023

      Wednesday, January 11th:
      NOAH Connections: Young Adults
      Thursday, January 12th:
      NOAH Connections: Adults
      Sunday, January 15th:
      NOAH Connections: LGBTQ+ and Allies
      Tuesday, January 17th:
      NOAH Connections: Aging with Albinism

      Happy Holidays!

      Wishing a joyous Kwanzaa and a belated Merry Christmas to all in our community who celebrate! 

      ​​​​​​​Published: December 26, 2022


      You’re Invited to New Year with NOAH!

      We can’t wait to kick off the New Year with our NOAH friends on Gatherly! We hope you’ll join us on Sunday, January 8th at 7pm ET // 4pm PT for activities, games, and good company.

      All friends of NOAH are welcome, so spread the word!
      www.albinism.org/NOAH-Connections/#new-year

      Published: December 26, 2022


      Share YOUR Story & Support NOAH!

      Sharing YOUR story and the impact NOAH has made on your life is one of the easiest ways to support us this holiday season! We know you’re busy, but if you could take a few moments to share what NOAH means to you, we’d really appreciate it.

      Submit a brief text, audio, or video response now: 

      https://www.videoask.com/f3qzarakt

      Published: December 26, 2022


      This one time at NOAH Camp… 

      Calling all campers with albinism and their families! Mark your calendars for our next NOAH Family Summer Camp, July 14-19, 2023.

      We hope you’ll join us for slip n’ slides, s’mores, and lots of laughs with your NOAH friends!

      www.albinism.org/nh-camp

      Published: December 26, 2022



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: December 26, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Winter BINGO!

      December 27th at 7:00pm ET // 4:00pm PT

      Ready to play BINGO?!

      NOAH Kids, you’re invited to Winter BINGO with your NOAH friends. Print out your BINGO board and get ready to join Courtney & Alison on Tuesday, December 27th at 7:00pm ET // 4:00pm PT!

      Sign up today:
      www.albinism.org/NOAH-Connections/#BINGO

      Published: December 26, 2022


      Wednesday: Young Adult Connections

      December 28th at 9:00pm ET // 6:00pm PT

      Hey Young Adults!

      Celebrate the holidays with your fellow PWAs. Join us this Wednesday, December 28th at 9pm ET // 6pm PT for our last connections session of the year!

      www.albinism.org/NOAH-Connections/#young-adults

      Published: December 26, 2022


      Thursday: Adult Connections

      December 29th at 9:00pm ET // 6:00pm PT

      Wrap up this holiday season with friends! Join us this Thursday December 29th at 9pm ET // 6pm PT for our last Adult Connections session of 2022. 

      See you there!

      www.albinism.org/NOAH-Connections/#adults

      Published: December 26, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: December 26, 2022

      Thursday, January 5th:
      NOAH Connections: Teens
      Sunday, January 8th:
      NOAH Connections: New Year with NOAH!
      Wednesday, January 11th:
      NOAH Connections: Young Adults
      Thursday, January 12th:
      NOAH Connections: Adults
      Sunday, January 15th:
      NOAH Connections: LGBTQ+ and Allies

      Research Proposal Deadline Extended!

      The NOAH Research Program Fall 2022 Call for Proposals deadline for LOI Forms and Expression of Interest Videos or Written Summaries has been extended. The new deadline for submissions is January 17, 2023. 

      Learn more:
      www.albinism.org/research/#proposals

      ​​​​​​​Published: December 19, 2022


      Happy Hanukkah!

      Happy Hanukkah to all in our community who celebrate! ​​​​​​​

      Published: December 19, 2022


      Get Your Tickets for Cookies with Kathi!

      Looking for an easy and fun activity to do with friends or family over the holidays that also supports a great cause? Look no further! 

      For just $20, you receive access to the Cookies with Kathi video library, including a supply list, Kathi’s favorite sugar cookie and flood icing recipes, and a complete set of instructional videos to lead you through each step of the process. Use the videos as many times as you want, now through January 8th.

      All proceeds benefit NOAH!

      www.albinism.org/fundraisers/cookies

      Published: December 19, 2022


      Hey NOAH Campers!

      What’s your favorite memory from NOAH camp?
       
      Share it here! 
      https://www.videoask.com/fv6yu3ycd

      Published: December 19, 2022


      Ready to play BINGO?!

      NOAH Kids, you’re invited to Winter BINGO with your NOAH friends. Print out your BINGO board and get ready to join Alison & Courtney on Tuesday, December 27th at 7:00pm ET // 4:00pm PT!

      Sign up today:
      www.albinism.org/NOAH-Connections/#BINGO

      Published: December 19, 2022


      • Join us in congratulating NOAH community member and McGowan Leadership Scholarship recipient, Sarah Kane, who was recently announced as one of 40 Marshall Scholarship recipients for 2023. According to the Association of Marshall Scholars, recipients of this scholarship are “considered among the most accomplished undergraduate university students and recent graduates in the United States…” Congratulations, Sarah, on this incredible honor & accomplishment! https://marshallscholars.org/news-and-updates/2023-class

      • Did you know that Perkins School for the Blind offers Career Launch Tech Bootcamp for blind & visually impaired adults ages 18+ with a high school diploma or college degree? Applications are currently being accepted for sessions in early 2023!Learn more: https://www.perkins.org/career-launch/career-launch-business-tech-bootcamp/?

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: December 19, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Parenting during the Holidays!

      December 20th at 9:00pm ET // 6:00pm PT

      Parents of PWAs, join Sam McClung & Kayla Hamlin for a special session of Parent Connections on Tuesday, December 20th at 9pm ET // 6pm PT. We’ll discuss parenting during the holidays and the joys and challenges that come with this time of year.

      New to the group? There’s still time to sign up:
      www.albinism.org/NOAH-Connections/#parents

      Published: December 19, 2022


      Thursday: Teen Connections

      December 22nd at 8:00pm ET // 5:00pm PT

      Teens, we can’t wait to see you this week! Cozy up with some tea or cocoa and your NOAH friends for our last Teen Connections call of the year this Thursday at 8pm ET // 5pm PT. 

      New to the group? Join today for the link to this call, and we’ll send you email reminders for future connections as well! www.albinism.org/NOAH-Connections/#teens

      Published: December 19, 2022


      NOAH Connections Holiday Break

      December 23 – December 26th

      NOAH Connections is going on a brief winter break from December 23-26th as our team and community members enjoy some quality time with family and friends.

      We can’t wait to see you when we return on December 27th!

      In the meantime, check out upcoming sessions including Winter BINGO, New Year with NOAH, and more at: www.albinism.org/NOAH-Connections

      Published: December 19, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: December 19, 2022

      Tuesday, December 27th:
      NOAH Connections: NOAH BINGO
      Wednesday, December 28th:
      NOAH Connections: Young Adults
      Thursday, December 29th:
      NOAH Connections: Adults
      Thursday, January 5th:
      NOAH Connections: Teens
      Sunday, January 8th:
      NOAH Connections: New Year with NOAH!
      Wednesday, January 11th:
      NOAH Connections: Young Adults
      Thursday, January 12th:
      NOAH Connections: Adults
      Sunday, January 15th:
      NOAH Connections: LGBTQ+ and Allies

      Announcing: Cookies with Kathi!

      We are thrilled to share that cookie decorator extraordinaire Kathi Garza will be sharing an encore presentation of her popular “Cookies with Kathi” session this December!

      For just $20, you receive access to the self-paced Cookies with Kathi video library, including a supply list, Kathi’s favorite sugar cookie and flood icing recipes, and a complete set of instructional videos to lead you through each step of the process.

      All proceeds benefit NOAH!

      www.albinism.org/fundraisers/cookies

      ​​​​​​​Published: December 12, 2022


      Hey NOOOAAAHH!

      Got a favorite conference memory?

      It doesn’t matter if it’s from Orlando in ’22, Las Vegas in ’08, or Chicago ’92, we want to hear from you!

      https://www.videoask.com/fhms6168c

      Published: December 12, 2022


      Parenting during the Holidays!

      Parents of PWAs, join Sam McClung & Kayla Hamlin for a special session of Parent Connections on Tuesday, December 20th at 9pm ET // 6pm PT. We’ll discuss parenting during the holidays and the joys and challenges that come with this time of year.

      New to the group? There’s still time to sign up:
      www.albinism.org/NOAH-Connections/#parents

      Published: December 12, 2022


      Employer Matching

      Did you know that 78% of match-eligible donors have no idea whether their employer offers a matching gift program?

      Employer gift matching is a great way to make your donation to NOAH go further, so ask your employer about it today!

      www.albinism.org/ways-to-give

      Published: December 12, 2022


      • Long-time NOAH volunteer and community member, Marleena Barber, was recently featured on Low Vision Moments, a podcast by fellow PWA Jennie Bovard. You can check out their discussion on low-vision moments of Christmas at the link below, or by searching for “Low Vision Moments” wherever you listen to your favorite podcasts! https://www.youtube.com/watch?v=3wDjOMnM_GA 

      • Did you know that NOAH Community member Ashley J. Hicks was recently selected as part of the 2022 Talent Showcase Cast for Disney Television Discovers? Congratulations, Ashley!!https://www.instagram.com/reel/ClooWfOAtLx/?utm_source=ig_web_copy_link

      • NOAH Community member & PWA, Nuala, is a self-described “science and math enthusiast who makes fun drawings all about STEM, the vision impairment community, and other fun things too!”Interested in seeing Nuala’s artwork?
        https://www.instagram.com/nsartlab/

      • Join us in congratulating NOAH Board President Donté Mickens, who was recently nominated and selected for the 2023 edition of The Palm Beach 100 Most Influential Business Leaders. This is Donté’s second consecutive year of being acknowledged on this prestigious list. Congratulations, Donté!https://issuu.com/pbmg/docs/pb_100_2023-2024/36

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: December 12, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Aging with Albinism

      December 13th at 5:00pm ET // 2:00pm PT

      Older PWAs – looking to connect with those who just get it? Join June Waugh and friends for our next session of Aging with Albinism this Tuesday, December 13th at 5pm ET // 2pm PT

      Sign up today:
      www.albinism.org/NOAH-Connections/#aging

      Published: December 12, 2022


      Wednesday: Young Adult Connections

      December 14th at 9:00pm ET // 6:00pm PT

      Young adults with albinism, you’re up next! Join us for our next session of Young Adult Connections this Thursday, to relax with PWA pals before the holiday madness kicks in next week. 

      New the group? Sign up now:

      www.albinism.org/NOAH-Connections/#young-adults

      Published: December 12, 2022


      Thursday: Adult Connections

      December 15th at 9:00pm ET // 6:00pm PT

      Adult PWAs, will we see YOU on Thursday? Make sure to hop on our next call for social time with your NOAH friends! 

      Haven’t joined us for a call before? There’s still time to sign up:

      www.albinism.org/NOAH-Connections/#adults

      Published: December 12, 2022


      Sunday: Kids’ Chat – Cocoa with Karen

      December 18th at 7:00pm ET // 4:00pm PT

      NOAH Kids, do you have a question for NOAH Executive Director Karen Bly? Now’s your chance to ask her! 

      Join us for NOAH Connections Kids’ Chat: Cocoa with Karen this Sunday, December 18th at 7pm ET // 4pm PT! 

      Sign up today:
      www.albinism.org/NOAH-Connections/#cocoa

      Published: December 12, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: December 12, 2022

      Tuesday, December 20th:
      NOAH Connections: Parents
      Thursday, December 22nd:
      NOAH Connections: Teens
      Tuesday, December 27th:
      NOAH Connections: NOAH BINGO
      Wednesday, December 28th:
      NOAH Connections: Young Adults
      Thursday, December 29th:
      NOAH Connections: Adults
      Thursday, January 5th:
      NOAH Connections: Teens
      Sunday, January 8th:
      NOAH Connections: New Year with NOAH!
      Wednesday, January 11th:
      NOAH Connections: Young Adults
      Thursday, January 12th:
      NOAH Connections: Adults
      Sunday, January 15th:
      NOAH Connections: LGBTQ+ and Allies

      We Met Our Goal!

      Thank you to everyone in our community who donated or shared our fundraiser for Giving Tuesday. We are thrilled to share that thanks to your generosity, we met our goal and earned the $4,000 NOAH Board of Directors’ Match!

      If you wanted to donate but didn’t get a chance yet, there’s still time to make your gift go further by taking advantage of the Meta recurring gift match*, now through the end of the calendar year! 

      https://bit.ly/3VRVljX

      ​​​​​​​Published: December 5, 2022


      NOAH Needs to Hear from You!

      We’re collecting your NOAH stories to enhance outreach to the albinism community and support continued programming and resources.

      It’s a quick and easy way to support NOAH. Click the link to learn more and share your story! 

      https://www.videoask.com/f3qzarakt

      Published: December 5, 2022


      HPS Awareness – National Cookie Day!

      In celebration of National Cookie Day on December 4th, we reviewed how cookies can teach us about Hermansky-Pudlak Syndrome (HPS): normal platelets look like chocolate chip cookies and HPS platelets look like butter cookies! 

      Learn more at: 
      https://www.hpsnetwork.org/hps-information/characteristics/

      Published: December 5, 2022



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: December 5, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Parenting without Pigment

      December 7th at 9:00pm ET // 6:00pm PT

      Future parents with albinism – join Andrew & Catherine Sartorius this Wednesday, December 7th at 9pm ET // 6pm PT for another special session of Parenting without Pigment intended for PWAs who are not yet parents, but would like to have kids in the future. 

      www.albinism.org/NOAH-Connections/#pwp

      Published: December 5, 2022


      Thursday: Teen Connections

      December 8th at 8:00pm ET // 5:00pm PT

      Hey teens! 

      Don’t miss the opportunity to connect before the holidays. Join us this Thursday for another great teen connections session. See you all there!

      www.albinism.org/NOAH-Connections/#teens

      Published: December 5, 2022


      Thursday: LGBTQ+ and Allies Connections

      December 11th at 8:00pm ET // 5:00pm PT

      LGBTQ+ PWAs and allies – join us on Sunday, December 11th at 8pm ET // 5pm PT for our next session of NOAH Connections just for you. 

      ​​​​​New to the group? There’s still time to sign up!

      www.albinism.org/NOAH-Connections/#lgbtq or text LGBTQ+ to (417)473-2310

      Published: December 5, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: December 5, 2022

      ​​​​​​​Tuesday, December 13th:
      NOAH Connections: Aging with Albinism
      Wednesday, December 14th:
      NOAH Connections: Young Adults
      Thursday, December 15th:
      NOAH Connections: Adults
      Thursday, December 22nd:
      NOAH Connections: Teens
      Wednesday, December 28th:
      NOAH Connections: Young Adults
      Thursday, December 29th:
      NOAH Connections: Adults

      NOAH Needs to Hear from You!

      We’re collecting your NOAH stories to enhance outreach to the albinism community and support continued programming and resources.

      It’s a quick and easy way to support NOAH. Click the link to learn more and share your story! 

      https://www.videoask.com/f3qzarakt

      Published: November 28, 2022


      AmazonSmile – Cyber Monday!

      If you’re holiday shopping on Amazon this Cyber Monday, make sure to use AmazonSmile and select NOAH as your charity! 

      With AmazonSmile, you shop & Amazon gives 0.5% of every purchase directly to NOAH…it’s that easy!

      Select NOAH as your charity & start shopping: https://smile.amazon.com/ch/23-2265173

      ​​​​​​​Published: November 28, 2022


      Giving Tuesday – TOMORROW!

      Thanks to the generosity of NOAH’s Board of Directors, NOAH can earn a guaranteed $2,500 in matching funds this Giving Tuesday with YOUR support. Additionally, recurring (monthly) gifts to NOAH made via Facebook will be eligible for Meta’s recurring gift match after the second gift is processed.

      Your support of NOAH goes even further this Giving Tuesday – no gift is too small!

      Get ready to give TOMORROW!!

      www.facebook.com/NOAH.Albinism​​​​​​​

      Published: November 28, 2022


      Thank You for Coming to Friendsgiving!

      We had so much fun at NOAH Friendsgiving yesterday. Thank you to our activity hosts, and to all who joined in on the festivities! 

      Published: November 28, 2022



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: November 28, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      November 30th at 9:00pm ET // 6:00pm PT

      Young adults – we can’t wait to see you this Wednesday for our next session of Young Adult connections!

      New to the group? There’s still time to sign up: 

      www.albinism.org/NOAH-Connections/#young-adults

      Published: November 28, 2022


      Thursday: Adult Connections

      December 1st at 9:00pm ET // 6:00pm PT

      Adult PWAs, we hope you’ll join us for our first NOAH Connections call of December! This is a great chance to relax and connect with fellow friends with albinism during the busy holiday season. 

      www.albinism.org/NOAH-Connections/#adults

      Published: November 28, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: November 28, 2022

      Wednesday, December 7th:
      NOAH Connections: Parenting without Pigment
      Thursday, December 8th:
      NOAH Connections: Teens
      Sunday, December 11th:
      NOAH Connections: LGBTQ+ and Allies
      ​​​​​​​Tuesday, December 13th:
      NOAH Connections: Aging with Albinism
      Wednesday, December 14th:
      NOAH Connections: Young Adults
      Thursday, December 15th:
      NOAH Connections: Adults

      You’re Invited to NOAH Friendsgiving!

      We had such a fun time celebrating NOAH Friendsgiving last year with the albinism community, so we’re bringing it back this holiday season! All friends of NOAH are invited to join us on Sunday, November 27th at 7pm ET // 4pm PT for a casual, virtual get-together to share thanks and relax with friends after Thanksgiving. 

      Check out the activities we have planned & sign up today!
      www.albinism.org/NOAH-Connections/#friendsgiving

      Published: November 21, 2022


      Giving Tuesday – Board Match!

      Giving Tuesday is just one week away, and we are pleased to share that NOAH’s Board of Directors will be matching $2,500 of your gifts dollar-for-dollar on this annual day of giving! 

      If you’re planning to include NOAH in your year-end giving, please consider making a gift this Giving Tuesday to have an even bigger impact on the albinism community. ​​​​​​​ 

      ​​​​​​​Published: November 21, 2022


      Giving Tuesday – Meta Match!

      In addition to the NOAH Board of Directors’ Match, your gift this Giving Tuesday has the chance to go even further! Meta will offer a special match for recurring gifts made through Facebook to help your recurring gift provide even more support to the albinism community.

      ​​​​​​​On Giving Tuesday, every gift goes further! Stay tuned for more details and get ready to give.

      Published: November 21, 2022



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: November 21, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Today – Saturday: NOAH Connections Thanksgiving Break

      November 18th – November 26th

      NOAH Connections is on Thanksgiving Break from  November 18th through November 26th as our team & community enjoy time with loved ones over the holiday. 

      We’re taking a brief hiatus, be we have lots of great opportunities to connect coming in the next few weeks, starting with NOAH Friendsgiving this Sunday, November 27th! 

      Learn more about upcoming calls: 
      www.albinism.org/NOAH-Connections

      Published: November 21, 2022


      Sunday: Friendsgiving

      November 27th at 7:00pm ET // 4:00pm PT

      All friends of NOAH are invited to join us for a fun and casual get-together this Sunday at 7pm ET // 4pm PT. Choose from a number of fun activities including a recipe swap, scattergories, creating oreo turkeys, and more, or just enjoy social time with fellow NOAH community members. We can’t wait to see you there!

      www.albinism.org/NOAH-Connections/#friendsgiving

      Published: November 21, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: November 21, 2022

      Wednesday, November 30th:
      NOAH Connections: Young Adults
      Thursday, December 1st:
      NOAH Connections: Adults
      Wednesday, December 7th:
      NOAH Connections: Parenting without Pigment
      Thursday, December 8th:
      NOAH Connections: Teens
      Sunday, December 11th:
      NOAH Connections: LGBTQ+ and Allies
      ​​​​​​​Tuesday, December 13th:
      NOAH Connections: Aging with Albinism
      Wednesday, December 14th:
      NOAH Connections: Young Adults
      Thursday, December 15th:
      NOAH Connections: Adults

      Announcing: NOAH’s 2022 Costume Contest Winners!

      We received so many awesome submissions for this year’s costume contest. Thanks to everyone who participated, and a special shout-out to our 2022 costume contest winners!

      Group Costume Winner:
      #23 – The Lee Family

      Duo Costume Winner:
      #52 – Morgan & Lincoln

      Individual Costume Winner:
      #49 – Caiden ​​​​​​​

      Published: November 14, 2022


      Fall 2022 – Call for Proposals

      NOAH is proud to announce a request for proposals to support albinism research focusing on vision/visual system as it relates to albinism and, new this cycle, dermatology as it relates to albinism.

      Help us spread the word! Full details:

      albinism.org/research/#proposals

      ​​​​​​​Published: November 14, 2022


      You’re Invited to NOAH Friendsgiving!

      We had such a fun time celebrating NOAH Friendsgiving last year with the albinism community, so we’re bringing it back this holiday season! All friends of NOAH are invited to join us on Sunday, November 27th at 7pm ET // 4pm PT for a casual, virtual get-together to share thanks and relax with friends after Thanksgiving. 

      Sign up today!
      www.albinism.org/NOAH-Connections/#friendsgiving

      Published: November 14, 2022


      • Have you heard about Dateability? Dateability is an app created by two sisters in response to their experiences with ableism and stress about disclosing chronic illness when dating. The app aims to provide a “safe and accepting space to create meaningful connections for people with physical, intellectual, and psychiatric disabilities.” https://info.dateabilityapp.com​​​

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: November 14, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TONIGHT: Ocular Albinism – Parents, Grandparents, and Caregivers Connections

      November 14th at 9:00pm ET // 6:00pm PT

      Join Pamela Tarnawa and fellow parents, grandparents, and caregivers TONIGHT for an open discussion on the unique challenges a family faces when their child or grandchild has Ocular Albinism. 

      There’s still time to sign up!
      www.albinism.org/NOAH-Connections/#oa

      Published: November 14, 2022


      Tuesday: Aging with Albinism

      November 15th at 5:00pm ET // 2:00pm PT

      Join June Waugh and friends TOMORROW, Tuesday, November 15th, at 5pm ET // 2pm PT to connect and discuss the challenges and joys of one’s senior years with albinism.

      www.albinism.org/NOAH-Connections/#aging

      Published: November 14, 2022


      Wednesday: Young Adult Connections

      November 16th at 9:00pm ET // 6:00pm PT

      Hooray! We have another PWA Young Adult virtual connections session scheduled for Wednesday November 16th @ 9:00 PM ET // 6:00 PM PT. Be sure to share the link with others and join us for another evening of great conversation.

      www.albinism.org/NOAH-Connections/#young-adults​​​​​​​

      Published: November 14, 2022


      Thursday: Adult Connections

      November 17th at 9:00pm ET // 6:00pm PT

      Looking to connect with old friends and make new ones? We are hosting another adult PWA connection session this Thursday November 17th @ 9:00 PM ET // 6:00 PM PT. Be sure to mark those calendars and join us!

      www.albinism.org/NOAH-Connections/#adults​​​​​​​

      Published: November 14, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: November 14, 2022

      Sunday, November 27th:
      NOAH Connections: NOAH Friendsgiving
      Wednesday, November 30th:
      NOAH Connections: Young Adults
      Thursday, December 1st:
      NOAH Connections: Adults
      Wednesday, December 7th:
      NOAH Connections: Parenting without Pigment
      Thursday, December 8th:
      NOAH Connections: Teens
      Sunday, December 11th:
      NOAH Connections: LGBTQ+ and Allies
      Wednesday, December 14th:
      NOAH Connections: Young Adults
      Thursday, December 15th:
      NOAH Connections: Adults

      Takeover Tuesday – TOMORROW!

      We are so excited to check out what Amaeya D. is up to TOMORROW, November 8th, for our next takeover Tuesday! Amaeya is a Statistics major at UCLA, and we can’t wait to follow along with a day in his life.

      www.instagram.com/noahalbinism​​​​​​​

      Published: November 7, 2022


      Vote Today – NOAH’s Halloween Costume Contest!

      All of our fabulous contestants have been added to our contest photo album, so make sure to check it out and “like” your favorite costume to vote.

      Voting closes this Saturday, November 12th!

      ​​​​​​​Published: November 7, 2022


      National Adoption Awareness Month

      In observance of National Adoption Awareness Month, we invite community members to share their family’s story for the chance to be featured on NOAH social media.

      Comment on our recent Facebook Post or submit via email to marketing@3.19.125.119 with your story & photos. 

      Photo Credit: Positive Exposure

      Published: November 7, 2022


      Holiday Shopping Made Easy!

      The holiday season is just around the corner, and we have the perfect gift for the NOAH-lovers in your life. Check out the NOAH gear store on Zazzle to complete holiday shopping for the whole family while supporting a great cause!

      www.zazzle.com/noahgear

      Published: November 7, 2022


      • UN Independent Expert on Albinism, Muluka-Anne Miti-Drummond, seeks written inputs from stakeholders to inform her next report to the 52nd session of the Human Rights Council in March 2023. Submission deadline: November 21st. Full details & submission link are included in her recent post:
        https://www.facebook.com/photo/?fbid=667809804711860&set=a.290815032411341​​​

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: November 7, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TONIGHT: Understanding and Supporting Siblings of Children with Albinism Workshop

      November 7th at 8:30pm ET // 5:30pm PT

      Registered attendees – join Sheila Adamo TONIGHT to better understand the experiences of siblings of PWAs, and become empowered to meet each challenge with love and support.

      Registration for this workshop is now closed. For more information about future workshops, visit:
      www.albinism.org/workshops

      Published: November 7, 2022


      Tuesday: Parenting without Pigment – Future Parents

      November 8th at 9:00pm ET // 6:00pm PT

      Calling all future parents with albinism! 

      Join Andrew Sartorius this Tuesday, November 8th at 9pm ET // 6pm PT for a special session of Parenting without Pigment intended for PWAs who are not yet parents, but would like to have kids in the future. 

      www.albinism.org/NOAH-Connections/#pwp

      Published: November 7, 2022


      Thursday: Teen Connections

      November 10th at 8:00pm ET // 5:00pm PT

      Teen PWAs, join us for our next session of NOAH connections just for you this Thursday November 10th @ 8:00pm ET // 5:00pm PT

      Don’t miss out! Join today:

      www.albinism.org/NOAH-Connections/#teens

      Published: November 7, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: November 7, 2022

      Monday, November 14th:
      NOAH Connections: Ocular Albinism – Parents, Grandparents, and Caregivers
      Tuesday, November 15th:
      NOAH Connections: Aging with Albinism
      Wednesday, November 16th:
      NOAH Connections: Young Adults
      Thursday, November 17th:
      NOAH Connections: Adults

      Happy Halloween from NOAH!​​​​​​​

      Published: October 31, 2022


      Announcing: NOAH’s Virtual Costume Contest!

      Whether it’s funny, scary, cute, or spooky, we want to see YOUR Halloween costume! PWAs – email a photo of your costume to NOAH(marketing@3.19.125.119) by Friday, November 4th, to enter our virtual costume contest. 

      Check out our contestants who have submitted so far in our Facebook album, and “like” your favorite to vote for them!

      ​​​​​​​Published: October 31, 2022


      Spirit of Change Award – Positive Exposure

      We are pleased to share that NOAHreceived Positive Exposure’s 2022 SPIRIT OF CHANGE Award on Monday, October 24th. Executive Director Karen Bly and Board Secretary Sonja Harris accepted this prestigious honor on behalf of our community. 

      ​​​​​​​Thank you, Positive Exposure, for your ongoing partnership and for honoring NOAH with this meaningful award!

      Published: October 31, 2022


      There’s Still Time to Sign Up!

      Parents, Grandparents, & Caregivers – join Sheila Adamo on Monday, November 7th to better understand the experiences of siblings of PWAs, and become empowered to meet each challenge with love and support.

      Register by November 5th to secure your spot!
      www.albinism.org/workshops

      Published: October 31, 2022



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: October 31, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      November 2nd at 9:00pm ET // 6:00pm PT

      Young adults, you’re up next! Join us this Wednesday at 9pm ET // 6pm PT to re-connect with old friends and make some new ones.

      www.albinism.org/NOAH-Connections/#young-adults

      Published: October 31, 2022


      Thursday: Adult Connections

      November 3rd at 9:00pm ET // 6:00pm PT

      PWAs, you’re invited to our first Adult Connections of November. We can’t wait to “see” you this Thursday at 9pm ET // 6pm PT!

      www.albinism.org/NOAH-Connections/#adults

      Published: October 31, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: October 31, 2022

      Monday, November 7th:
      NOAH Workshops: Parents & Caregivers
      Tuesday, November 8th:
      NOAH Connections: Parenting without Pigment
      Thursday, November 10th:
      NOAH Connections: Teens
      Monday, November 14th:
      NOAH Connections: Ocular Albinism – Parents, Grandparents, and Caregivers
      Wednesday, November 16th:
      NOAH Connections: Young Adults
      Thursday, November 17th:
      NOAH Connections: Adults

      Takeover Tuesday – TOMORROW!

      We are so excited to share that Gabriella S. will be joining us to share a day in her life as a college student in NYC. Make sure to check out our story tomorrow to see what she’s up to!

      Would you like to share a day in YOUR life on NOAH social media? Send a message to Emily at eaubrey@3.19.125.119 with some information about yourself for the chance to be featured in a future takeover!

      Published: October 24, 2022


      We Need YOUR Help with an Albinism InSight  Special Photo Feature!

      ​​​​​​​The upcoming 40th Anniversary Issue of Albinism InSight will include a special photo feature of NOAH memories from the past four decades. Do you have photos from NOAH events to share?

      Upload YOUR photos now!
      https://bit.ly/3FcBiYu

      ​​​​​​​Published: October 24, 2022


      Feeling some FOMO about NOAH Night?

      Worry not! For a limited time only, you can join in the celebration of NOAH’s 40th and view the NOAH Night recording. 

      Purchase recording access today: www.albinism.org/NOAHNight

      PS – NOAH Night attendees, check your inbox for recording access included FREE with your ticket purchase!

      Published: October 24, 2022


      Calling All Future Parents with Albinism!

      Join Andrew Sartorius on Tuesday, November 8th at 9pm ET // 6pm PT for a special session of Parenting without Pigment intended for PWAs who are not yet parents, but would like to have kids in the future. 

      www.albinism.org/NOAH-Connections/#pwp

      Published: October 24, 2022


      Commemorative Coins!

      NOAH’s 40th birthday celebration continues with commemorative coins, available now!

      https://app.donorview.com/KgNQM

      Have you ordered your commemorative coin? Comment on on our recent Facebook Post to let us know how you plan to display or use it when it arrives!​​​​​​​

      Published: October 24, 2022


      Thank YOU for Shopping for NOAH!

      Shoutout to our AmazonSmile shoppers, whose purchases raised over $600 for NOAH from April-June 2022! In total, AmazonSmile has donated over $10k to NOAH from community purchases.

      When you shop on AmazonSmile, 0.5% of every purchase goes to NOAH. Start shopping for NOAH today: smile.amazon.com/ch/23-2265173

      Published: October 24, 2022


      • We are excited to share that NOAH member Sadie T. is the voice of Pearl, a bunny with albinism in Nick Jr.‘s “Blues Clues and You!” Congratulations, Sadie!! In addition to selecting a PWA to voice Pearl, the show worked with fellow NOAH member Sophie Ostrove, a Disability Inclusion Consultant for this new character, to ensure that Pearl is represented accurately and positively!Check out this clip from the most recent episode featuring Pearl:
        https://www.youtube.com/watch?app=desktop&v=ehobODGB8Uw

      • We are pleased to share that NOAH has been selected as the recipient of Positive Exposure’s 2022 SPIRIT OF CHANGE Award. Several NOAH community members will be traveling to New York City TODAY, Monday, October 24th, as Executive Director Karen Bly and Board Secretary Sonja Harris accept this prestigious honor on behalf of our NOAH community. Stay tuned for updates from the event! https://bit.ly/3VZIoFy

      • Did you know? The Global Albinism Alliance is holding an International Science Conference on Albinism on November 16-19, 2022. This virtual conference will serve as a global forum to improve the health of those with albinism.For more info & registration, visit: https://isca2022.albinismalliance.org/
        ​​​​​​​

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: October 24, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Thursday: Teen Connections

      October 27th at 8:00pm ET // 5:00pm PT

      Teens, join us this Thursday to re-connect with old friends and make new ones at our next session of Teen Connections. We can’t wait to “see” you there!

      New to the group? Sign up today at:
      www.albinism.org/NOAH-Connections/#teens

      Published: October 24, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: October 24, 2022

      Wednesday, November 2nd:
      NOAH Connections: Young Adults
      Wednesday, November 3rd:
      NOAH Connections: Adults
      Monday, November 7th:
      NOAH Workshops: Parents & Caregivers
      Tuesday, November 8th:
      NOAH Connections: Parenting without Pigment
      Thursday, November 10th:
      NOAH Connections: Teens
      Monday, November 14th:
      NOAH Connections: Ocular Albinism – Parents, Grandparents, and Caregivers
      Wednesday, November 16th:
      NOAH Connections: Young Adults
      Thursday, November 17th:
      NOAH Connections: Adults

      Albinism InSight Submissions Due Wednesday!

      Submitting an article is a great way to share your knowledge and experience with the albinism community. There’s still time to contribute reflections to the 40th Anniversary Issue of Albinism InSight

      Submissions due Wednesday, October 19th.

      More info: www.albinism.org/AI/call-for-content

      Published: October 17, 2022


      Less Than One Week Left!

      ​​​​​​​Join us for a fundraiser challenge in honor of NOAH’s 40th Birthday!

      To celebrate all that NOAH has provided to the albinism community in the past 40 years, we are asking 40 community members to start a FB fundraiser as part of our challenge running now through Saturday, October 22nd.

      Help us reach our goal of 40 fundraisers – create yours today!
      www.facebook.com/NOAH.albinism

      ​​​​​​​Published: October 17, 2022


      Thank You, NOAH Night Sponsors!

      Join us in thanking our NOAH Night sponsors for their support of NOAH& the albinism community:

      Diamond Sponsor
      Epstein | Ostrove, LLC

      Bronze Sponsor
      Oak St. Health

      After Party Sponsor
      Gatherly

      www.albinism.org/NOAHNight

      Published: October 17, 2022


      Thank YOU for Joining us at NOAH Night!

      We had a wonderful time celebrating NOAH’s 40th birthday with the albinism community on Saturday night. Thank you to all who joined us to reflect on the past 40 years and look to NOAH’s future!

      www.albinism.org/NOAHNight

      Published: October 17, 2022


      Register Today!

      Parents, Grandparents, & Caregivers – join Sheila Adamo on Monday, November 7th to better understand the experiences of siblings of PWAs, and become empowered to meet each challenge with love and support.

      Register by November 5th to secure your spot!
      www.albinism.org/workshops

      Published: October 17, 2022


      • Have you heard about Pearl? Pearl is a bunny with albinism who was recently introduced on Nick Jr.’s “Blue’s Clues and You!” We are proud to share that NOAH community member Sophie Ostroveis a Disability Inclusion Consultant, working closely with the show to develop Blue’s new friend, ensuring that she is represented accurately and positively!You can check out the most recent episode featuring Pearl at: http://www.nickjr.com/episodes/pvik5p/blue-s-clues-you-something-new-at-blue-s-school-season-3-ep-15 Congratulations, Sophie! We can’t wait to learn more about Pearl in future episodes.

      • FYI: Humanity & Inclusion, located in Silver Spring, MD, is hiring a U.S. Grants Finance Officer. They are committed to inclusive hiring, welcome applicants with disabilities, and are flexible about remote work. For more info or to apply, visit: https://www.hi-us.org/jobs-hi-us-grants-finance-officer

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: October 17, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Aging with Albinism

      October 18th at 5:00pm ET // 2:00pm PT

      Join June Waugh and friends this Tuesday at 5pm ET // 2pm PT for a lively discussion of Technology, the vast universe of new and easy (sometimes) ways to communicate, to work, be entertained, enlightened and informed! Phones, tablets, Alexa, Siri, Bard, Audible, Libby, Hoopla, watches, air pods, Zoom,  OH MY! No wonder Dorothy was overwhelmed in the Land of Oz! 

      New to the group? There’s still time to join!
      www.albinism.org/NOAH-Connections/#aging

      Published: October 17, 2022


      Wednesday: Young Adult Connections

      October 19th at 9:00pm ET // 6:00pm PT

      Young adults, join us for our next session of NOAH Connections just for you this Wednesday at 9pm ET // 6pm PT. This is the perfect chance to connect and chat with fellow young adult PWAs. ​​​​​​​

      www.albinism.org/NOAH-Connections/#young-adult​​​​​​​

      Published: October 17, 2022


      Thursday: Adult Connections

      October 20th at 9:00pm ET // 6:00pm PT

      Adults, join us this Thursday for quality time with your PWA pals! Whether you’re new to Adult Connections or have attended in the past, don’t miss out on this upcoming chance to connect!​​​​​​​

      www.albinism.org/NOAH-Connections/#adults

      Published: October 17, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: October 17, 2022

      Thursday, October 27th:
      NOAH Connections: Teens
      Wednesday, November 2nd:
      NOAH Connections: Young Adults
      Wednesday, November 3rd:
      NOAH Connections: Adults
      Monday, November 7th:
      NOAH Workshops: Parents & Caregivers
      Tuesday, November 8th:
      NOAH Connections: Parenting without Pigment
      Thursday, November 10th:
      NOAH Connections: Teens
      Wednesday, November 16th:
      NOAH Connections: Young Adults
      Thursday, November 17th:
      NOAH Connections: Adults

      Announcing: NOAH’s 40th Birthday Fundraiser Challenge!

      Join us for a fundraiser challenge in honor of NOAH’s 40th Birthday! To celebrate all that NOAH has provided to the albinism community in the past 40 years, we are asking 40 community members to start a FB fundraiser as part of our challenge.

      Help us reach our goal of 40 fundraisers – create yours today!

      www.facebook.com/NOAH.Albinism/

      Published: October 10, 2022


      Takeover Tuesday TOMORROW!

      ​​​​​​​Mackenzie’s Takeover Tuesday is TOMORROW, and we can’t wait!

      Tune in to NOAH’s social media story to check out a day in Mackenzie’s life as a college athlete who is also involved in theater, choir, student government, disability advocacy, and more!

      Would you like to share a day in YOUR life on NOAH social media? Send a message to Emily at eaubrey@3.19.125.119 with a little bit of info about yourself for the chance to be featured in a future takeover!

      ​​​​​​​Published: October 10, 2022


      LatinX & Hispanic Heritage Month!

      NOAH Community member, Sarvia C., shared a family photo in honor of Hispanic & LatinX Heritage Month!

      Check it out at www.albinism.org/heritage 

      Hispanic & LatinX PWAs – how do you stay connected to your heritage or honor your culture? Send a story, photo, or video to eaubrey@3.19.125.119 to be featured on the NOAH Website and social media during LatinX & Hispanic Heritage Month and beyond. 

      Published: October 10, 2022


      Sukkot

      Chag Sameach to all in our community celebrating Sukkot!​​​​​​​

      Published: October 10, 2022


      NOAH Night ~ This Saturday!

      NOAH Night: A Cause for Celebration is a virtual gathering where people with albinism, families, and friends of NOAH will join together in celebration of NOAH’s 40th birthday! Join us for an evening that has something for everyone – a VIP social hour to kick things off, a showcase of NOAH community talent, a look at NOAH through the years, and an after-party for everyone!!​​​​​​​

      Learn more about NOAH Night at www.albinism.org/NOAHNight

      Do You Have Tickets to NOAH Night?!

      NOAH Night is this Saturday, and we can’t wait to celebrate the albinism community with our hosts Marleena Barber & Casey Greer  (and special guest Rupert!). 

      Get YOUR tickets today: www.albinism.org/NOAHNight

      Published: October 10, 2022


      Check out more information about NOAH Night and get your tickets now at:​​​​​​​ www.albinism.org/NOAHNight

      Published: October 10, 2022


      Art Contest Winners Announced at NOAHNight!

      In honor of NOAH’s 40th birthday, Spiffy hosted an Art Contest open to kids & teens with albinism. Many talented artists submitted Spiffy’s coloring sheet or freestyle artwork, and we can’t wait to share the winners’ creations at NOAH Night!

      Get your tickets today!
      www.albinism.org/NOAHNight/

      Published: October 10, 2022


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: October 10, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Thursday: Teen Connections

      October 13th at 8:00pm ET // 5:00pm PT

      Teens – join us for a special session of NOAH Connections this Thursday at 8pm ET // 5pm PT. Kelsey Thompson will be presenting her popular session – Stares, Smirks, and Shout-outs!

      New to the group? Sign up today!
      www.albinism.org/NOAH-Connections/#teens

      Published: October 10, 2022


      Saturday: NOAH Night

      October 15th at 8:00pm ET // 5:00pm PT

      Friends of NOAH – we can’t wait to see you this weekend to celebrate NOAH’s 40th birthday and the albinism community. 

      What are you waiting for? Get your tickets to NOAH Night now!​​​​​​​
      www.albinism.org/NOAH-Connections/#young-adults​​

      Published: October 10, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: October 10, 2022

      Tuesday, October 18th:
      NOAH Connections: Aging with Albinism
      Wednesday, October 19th:
      NOAH Connections: Young Adults
      Thursday, October 20th:
      NOAH Connections: Adults
      Thursday, October 27th:
      NOAH Connections: Teens
      Wednesday, November 2nd:
      NOAH Connections: Young Adults
      Wednesday, November 2nd:
      NOAH Connections: Young Adults
      Wednesday, November 3rd:
      NOAH Connections: Adults
      Monday, November 7th:
      NOAH Workshops: Parents & Caregivers
      Tuesday, November 8th:
      NOAH Connections: Parenting without Pigment

      Here Comes the Autumn Issue of Albinism InSight!

      The Autumn Issue of Albinism InSight is hitting mailboxes and inboxes…is your subscription up to date? 

      Don’t miss out, subscribe today!
      www.albinism.org/AI

      Published: October 3, 2022


      Hispanic & LatinX Heritage Month​​​​​​​

      NOAH Community member, Gabriella S., shared a photo with her siblings & mom in honor of LatinX & Hispanic Heritage Month!

      Check it out at www.albinism.org/heritage 

      Hispanic & LatinX PWAs – how do you stay connected to your heritage or honor your culture? Send a story, photo, or video to eaubrey@3.19.125.119 to be featured on the NOAH Website and social media during LatinX & Hispanic Heritage Month and beyond. 

      ​​​​​​​Published: October 3, 2022


      Happy Blind Sports Week!

      USABA’s National Blind Sports Week is this week, and we can’t wait to check out the sessions & presentations they have planned!

      Check out the details on their Facebook page: www.facebook.com/UnitedStatesABA

      Published: October 3, 2022


      October – World Bullying Prevention Month

      Did you know that October is World Bullying Prevention Month?

      World Bullying Prevention Month “encourages communities to work together to stop bullying and cyberbullying and put an end to hatred and racism by increasing awareness of the prevalence and impact of all forms of bullying on children of all ages.”

      Learn more at: www.stompoutbullying.org/world-bullying-prevention-month

      Published: October 3, 2022


      Celebrate NOAH’s 40th Birthday!

      NOAH Night: A Cause for Celebration is a virtual gathering where people with albinism, families, and friends of NOAH will join together in celebration of NOAH’s 40th birthday! Join us for an evening that has something for everyone – a VIP social hour to kick things off, a showcase of NOAH community talent, a look at NOAH through the years, and an after-party for everyone!!​​​​​​​

      Learn more about NOAH Night at www.albinism.org/NOAHNight

      Get Your Tickets Today!

      Hershula & Jayana are so excited for NOAH Night and we are too! 

      We hope to see YOU at NOAHNight on Saturday, October 15th at 8pm ET // 5pm PT to celebrate NOAH’s 40th birthday!!

      Do you have your tickets yet? Don’t wait, get them today at: www.albinism.org/NOAHNight

      www.albinism.org/NOAHNight/#talent​​​​​​​

      Published: October 3, 2022


      NOAH Night: Red Carpet Update – Co-hosts!

      First to arrive on the red carpet are our stylish co-hosts Marleena Barber & Casey Greer! Who will arrive next…?

      Want to walk the red carpet? Send your full-body photo to marketing@3.19.125.119!

      www.albinism.org/NOAHNight

      Published: October 3, 2022


      NOAH Night: Red Carpet Update – Special Guest!

      Who is that coming down the red carpet?! It’s NOAH’s favorite fundraising friend, and NOAH Night special guest, Spiffy!!

      Want to walk the red carpet? Send your full-body photo to marketing@3.19.125.119!

      www.albinism.org/NOAHNight​​​​​​​

      Published: October 3, 2022


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: October 3, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TODAY: Parents of Newly-Diagnosed Children Workshop

      October 3rd at 8:30pm ET // 5:30pm PT

      Registered Attendees – join Sheila Adamo TONIGHT to become part of a community that will share and learn about adapting to your new albinism journey. 

      Learn more about upcoming workshop offerings at:
      www.albinism.org/workshops

      Published: October 3, 2022


      Wednesday: Young Adult Connections

      October 5th at 9:00pm ET // 6:00pm PT

      Young adults, you’re up next! Join us this Wednesday at 9pm ET // 6pm PT to connect with fellow PWAs.

      New to the group? There’s still time to join!

      www.albinism.org/NOAH-Connections/#young-adults​​

      Published: October 3, 2022


      Thursday: Adult Connections

      October 6th at 9:00pm ET // 6:00pm PT

      Awkward Moments!

      Adults with albinism, join us this Thursday at 9pm ET // 6pm PT to share your most awkward, funny, or embarrassing moments as a PWA. 

      www.albinism.org/NOAH-Connections/#adults​​

      Published: October 3, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: October 3, 2022

      Thursday, October 13th:
      NOAH Connections: Teens
      Tuesday, October 18th:
      NOAH Connections: Aging with Albinism
      Wednesday, October 19th:
      NOAH Connections: Young Adults
      Thursday, October 20th:
      NOAH Connections: Adults
      Thursday, October 27th:
      NOAH Connections: Teens
      Wednesday, November 2nd:
      NOAH Connections: Young Adults
      Wednesday, November 3rd:
      NOAH Connections: Adults
      Monday, November 7th:
      NOAH Workshops: Parents & Caregivers
      Tuesday, November 8th:
      NOAH Connections: Parenting without Pigment

      Takeover Tuesday – TOMORROW!

      We’re so excited that Iida will be taking over our social media TOMORROW! Don’t miss out – make sure you’re following NOAH on Facebook & Instagram to catch a day in Iida’s life as a solo traveler with albinism.

      Would you like to share a day in YOUR life on NOAH social media? Send a message to Emily at eaubrey@3.19.125.119 with a little bit of info about yourself for the chance to be featured in a future takeover!

      Published: September 26, 2022


      Fundraiser Shout-out!

      NOAH Grandparent, Brenda Schnitker, promoted Albinism Awareness Day, June 13th, to her Mary Kay customers. From all sales in the month of June, she donated 25% to NOAH in honor of her granddaughter, Olivia.

      ​​​​​​​Thank you, Brenda!!

      ​​​​​​​Published: September 26, 2022


      Rosh Hashanah

      Wishing a happy Rosh Hashanah to all in our community who celebrate! 

      Published: September 26, 2022


      Celebrate NOAH’s 40th Birthday!

      NOAH Night: A Cause for Celebration is a virtual gathering where people with albinism, families, and friends of NOAH will join together in celebration of NOAH’s 40th birthday! Join us for an evening that has something for everyone – a VIP social hour to kick things off, a showcase of NOAH community talent, a look at NOAH through the years, and an after-party for everyone!!​​​​​​​

      Learn more about NOAH Night at www.albinism.org/NOAHNight

      Last Chance to Submit Your Talent!

      Celebrate NOAH’s 40th birthday with a showcase of talent!

      We know you have the skills, join us to inspire others.

      Submit a video demonstrating your abilities by TODAY (Monday, September 26th) for an opportunity to take part in our NOAH Night Talent Show on October 15th.

      Submit your talent today!

      www.albinism.org/NOAHNight/#talent​​​​​​​

      Published: September 26, 2022


      Get Your Tickets Today!

      Hershula & Jayana are so excited for NOAH Night and we are too! 

      We hope to see YOU at NOAH Night on Saturday, October 15th at 8pm ET // 5pm PT to celebrate NOAH’s 40th birthday!!

      Do you have your tickets yet? Don’t wait, get them today at: www.albinism.org/NOAHNight

      Published: September 26, 2022


      Spiffy’s Art Contest!

      In honor of NOAH’s 40th birthday, Spiffy is having an Art Contest open to kids & teens with albinism. Artists can submit a Spiffy Coloring Page, or freestyle artwork.

      Contest winners will be announced at the NOAH Night celebration, and featured in a future issue of Albinism InSight!

      Learn more and submit YOUR artwork by October 1st:
      www.albinism.org/NOAHNight/#spiffy

      Published: September 26, 2022


      Calling All White Cane Users!

      In addition to being NOAH’s 40th Birthday & our NOAH Night Celebration, October 15th is also White Cane Day! In honor of this occasion, we are compiling photos and videos of white cane users in our community to be shared as part of a special feature at NOAH Night!

      If you’d like the chance to be included in this special feature, upload your photos or videos to our White Cane Day album by October 1st:

      https://bit.ly/3DjlIJt

      Published: September 26, 2022


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: September 26, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Parenting without Pigment

      September 27th at 9:00pm ET // 6:00pm PT

      Huddle up with your fellow Parents without Pigment tomorrow at 9pm ET // 6pm PT as we chat about kids in sports. We’ll cover topics from getting the right equipment to getting to the game, and of course, we’ll chat about actually seeing your kiddo in action! Bring your wisdom and questions to help us kick off another exciting NOAH Connection!

      New to the group? 

      Join now for the link to this call, and you’ll get the invite future calls too!
      www.albinism.org/NOAH-Connections/#pwp

      Published: September 26, 2022


      Thursday: Teen Connections

      September 29th at 8:00pm ET // 5:00pm PT

      Teens with albinism, join us this Thursday at 8pm ET // 5pm PTto connect and chat with your PWA pals. 

      New to the group? Sign up today and we’ll send you info for this call as well as email reminders for future sessions!

      www.albinism.org/NOAH-Connections/#teens​​

      Published: September 26, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: September 26, 2022


      Monday, October 3rd:

      NOAH Workshops: Parents & Caregivers
      Wednesday, October 5th:
      NOAH Connections: Young Adults
      Thursday, October 6th:
      NOAH Connections: Adults
      Thursday, October 13th:
      NOAH Connections: Teens
      Tuesday, October 18th:
      NOAH Connections: Aging with Albinism
      Wednesday, October 19th:
      NOAH Connections: Young Adults
      Thursday, October 20th:
      NOAH Connections: Adults

      Takeover Tuesday – Highlight!

      Did you miss Yasmine’s awesome takeover this past Tuesday? No worries! We’ve saved her takeover in the highlights on NOAH’s Instagram profile.

      Check it out at: www.instagram.com/noahalbinism

      Would you like to share a day in YOUR life on NOAH social media? Send a message to Emily at eaubrey@3.19.125.119 with a little bit of info about yourself for the chance to be featured in a future takeover!

      Published: September 19, 2022


      LatinX & Hispanic Heritage Month!

      NOAH Community member, Kathi Garza, shares some of her experiences growing up in a Mexican American family, and how she stays connected to her cultural identity now. 

      Check it out at www.albinism.org/heritage 

      ​​​​​Hispanic & LatinX PWAs – how do you stay connected to your heritage or honor your culture? Send a story, photo, or video to eaubrey@3.19.125.119 to be featured on the NOAH Website and social media during LatinX & Hispanic Heritage Month and beyond. 

      ​​​​​​​Published: September 19, 2022


      Calling All Parents with Albinism!


      Huddle up with your fellow Parents without Pigment on Tuesday, September 27th at 9pm ET // 6pm PT as we chat about kids in sports. We’ll cover topics from getting the right equipment to getting to the game, and of course, we’ll chat about actually seeing your kiddo in action!. Bring your wisdom and questions to help us kick off another exciting NOAH Connection!

      New to the group? 

      Join now for the link to this call, and you’ll get the invite future calls too!
      www.albinism.org/NOAH-Connections/#pwp

      Published: September 19, 2022


      Celebrate NOAH’s 40th Birthday at NOAH Night!

      NOAH Night: A Cause for Celebration is a virtual gathering where people with albinism, families, and friends of NOAH will join together in celebration of NOAH’s 40th birthday! Join us for an evening that has something for everyone – a VIP social hour to kick things off, a showcase of NOAH community talent, a look at NOAH through the years, and an after-party for everyone!!​​​​​​​

      Learn more about NOAH Night at www.albinism.org/NOAHNight

      One Week Left to Submit Your Talent!

      Celebrate NOAH’s 40th birthday with a showcase of talent!

      We know you have the skills, join us to inspire others.
       
      Submit a video demonstrating your abilities by Monday, September 26th for an opportunity to take part in our NOAH Night Talent Show on October 15th.

      Submit your talent today!
      www.albinism.org/NOAHNight/#talent​​​​​​​

      Published: September 19, 2022


      NOAH Night Tickets Now Available!!

      NOAH Night is just around the corner, and we can’t wait to celebrate the albinism community with our hosts Marleena Barber & Casey Greer  (and special guest Rupert!). 

      Get YOUR tickets today: www.albinism.org/NOAHNight

      albinism.org/NOAHNight/#sponsor

      Published: September 19, 2022


      • Colleagues at the University of Iowa Hospitals & Clinics and the National Advanced Driving Simulator are looking for volunteers who are required to wear a bioptic telescope while driving to participate in a research study.
        For more information, visit: www.albinism.org/research/#u-iowa

      • NOAH community member, Marleena Barber, is having a free performance of her one-woman cabaret show, Thank You For the Music, Saturday, October 1st at 2pm. The performance and talk with the artist will be held at Positive Exposure 109 in NYC.
        ​​​​​​​For more details or to RSVP: http://3.19.125.119/wp-content/uploads/2022/09/Thank-you-for-the-music-Poster.pdf


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: September 19, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Aging with Albinism

      September 20th at 5:00pm ET // 3:00pm PT

      Join June Waugh and friends for our next session of NOAH Connections: Aging with Albinism tomorrow, Tuesday, September 20th at 5pm ET // 2pm PT.

      New to the group? There’s still time to sign up!
      www.albinism.org/NOAH-Connections/#aging

      Published: September 19, 2022


      Tuesday: NOAH Research Program Coffee Chat

      September 20th at 8:00pm ET // 5:00pm PT

      Join NOAH Executive Director, Karen Bly and the NOAH Research Program Committee, for a special NOAH Connections Coffee Chat about the NOAH Research Program on Tuesday, September 20th at 8pm ET // 5pm PT.

      www.albinism.org/NOAH-Connections/#coffee

      Published: September 19, 2022


      Wednesday: Young Adult Connections

      September 21st at 9:00pm ET // 6:00pm PT

      Young adults, you’re invited to our next session of NOAH Connections just for you this Wednesday, September 21st at 9pm ET // 6pm PT

      New to the group? There’s still time to sign up!

      www.albinism.org/NOAH-Connections/#young-adults

      Published: September 19, 2022


      Thursday: Adult Connections

      September 22nd at 9:00pm ET // 6:00pm PT

      Adults, get ready for your next chance to chat and connect with your PWA pals! 

      We can’t wait to “see” YOU this Thursday at 9pm ET // 6pm PT!

      www.albinism.org/NOAH-Connections/#adults

      Published: September 19, 2022


      Sunday: PWAs in STEM Connections

      September 25th at 5:00pm ET // 2:00pm PT

      Calling All PWAs in STEM!

      Join Sarah Kane & Derek Schindelman for social time with fellow PWAs in the STEM Fields, Sunday, September 25th at 5pm ET // 2pm PT. We can’t wait to see you there!

      www.albinism.org/NOAH-Connections/#STEM

      Published: September 19, 2022


      Sunday: LGBTQ+ and Allies Connections

      September 25th at 8:00pm ET // 5:00pm PT

      LGBTQ+ PWAs and allies – join us on Sunday, September 25th at 8pm ET // 5pm PT for our next session of NOAH Connections just for you. 

      New to the group? There’s still time to sign up!
      www.albinism.org/NOAH-Connections/#lgbtq

      Published: September 19, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: September 19, 2022

      Monday, September 27th:
      NOAH Workshops: Parents & Caregivers
      Thursday, September 29th:
      NOAH Connections: Teens

      Monday, October 3rd:

      NOAH Workshops: Parents & Caregivers
      Wednesday, October 5th:
      NOAH Connections: Young Adults
      Thursday, October 6th:
      NOAH Connections: Adults
      Thursday, October 13th:
      NOAH Connections: Teens
      Wednesday, October 19th:
      NOAH Connections: Young Adults
      Thursday, October 20th:
      NOAH Connections: Adults

      Takeover Tuesday – TOMORROW!

      We’re so excited that Yasmine will be taking over our social media TOMORROW! Don’t miss out – make sure you’re following NOAH on Facebook & Instagram to catch a day in Yasmine’s life as a college student with albinism.

      Would you like to share a day in YOUR life on NOAH social media? Send a message to Emily at eaubrey@3.19.125.119 with a little bit of info about yourself for the chance to be featured in a future takeover!

      Published: September 12, 2022


      LatinX & Hispanic Heritage Month!

      Calling All LatinX & Hispanic PWAs!

      LatinX & Hispanic Heritage Month is just around the corner, and we want to hear from YOU.

      How do you stay connected to your heritage or honor your culture? Send a story, photo, or video to eaubrey@3.19.125.119 to be featured on the NOAH Website and social media during LatinX & Hispanic Heritage Month and beyond. 

      ​​​​​​​Published: September 12, 2022


      You’re Invited to a NOAH Research Program Coffee Chat!

      Join NOAH Executive Director, Karen Bly and the NOAH Research Program Committee, for a special NOAH Connections Coffee Chat about the NOAH Research Program on Tuesday, September 20th at 8pm ET // 5pm PT.

      www.albinism.org/NOAH-Connections/#coffee

      Published: September 12, 2022


      Celebrate NOAH’s 40th Birthday at NOAH Night!

      NOAH Night: A Cause for Celebration is a virtual gathering where people with albinism, families, and friends of NOAH will join together in celebration of NOAH’s 40th birthday! Join us for an evening that has something for everyone – a VIP social hour to kick things off, a showcase of NOAH community talent, a look at NOAH through the years, and an after-party for everyone!!​​​​​​​

      Learn more about NOAH Night at www.albinism.org/NOAHNight

      NOAH Night Tickets Now Available!!

      NOAH Night is just around the corner, and we can’t wait to celebrate the albinism community with our hosts Marleena Barber & Casey Greer  (and special guest Rupert!). 

      Get YOUR tickets today: www.albinism.org/NOAHNight

      Published: September 12, 2022


      Help Us Spread the Word!

      Exciting NOAH Night Sponsorship opportunities are available, and we need your help finding sponsors! 

      Do you know someone who would be eager to celebrate NOAH’s 40th birthday and support the albinism community? Make sure they don’t miss out!

      albinism.org/NOAHNight/#sponsor

      Published: September 12, 2022


      Announcing, Spiffy’s Art Contest!

      In honor of NOAH’s 40th birthday, Spiffy is having an Art Contest open to kids & teens with albinism. Artists can submit a Spiffy Coloring Page, or freestyle artwork.

      Contest winners will be announced at the NOAH Night celebration, and featured in a future issue of Albinism InSight!

      Learn more and submit YOUR artwork by October 1st:
      www.albinism.org/NOAHNight/#art-contest

      Published: September 12, 2022


      Talent Search!

      Calling all PWAs! Do you have a noteworthy talent that makes YOU uniquely you? Share your skills in our talent showcase, NOAH Has Talent!, during our NOAH Night celebration on October 15th.

      ​​​​​​​Learn more & submit YOUR talent by September 26thwww.albinism.org/NOAHNight/#talent

      Published: September 12, 2022


      Calling All White Cane Users!

      In addition to being NOAH’s 40th Birthday & our NOAH Night Celebration, October 15th is also White Cane Day! In honor of this occasion, we are compiling photos and videos of white cane users in our community to be shared as part of a special feature at NOAH Night!

      If you’d like the chance to be included in this special feature, upload your photos or videos to our White Cane Day album by October 1sthttps://bit.ly/3DjlIJt

      Published: September 12, 2022


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: September 12, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TONIGHT: Grandparent Connections

      September 12th at 8:00pm ET // 5:00pm PT

      Calling all grandparents!

      Join Sherry Dinner & Rick Hrach for an open forum discussion just for grandparents TONIGHT at 8:00pm ET // 5:00pm PT!

      New to the group? There’s still time to sign up!
      www.albinism.org/NOAH-Connections/#grandparents

      Published: September 12, 2022


      Tuesday: Supporting the Psychosocial Well-Being of Children and Youth with Albinism

      September 13th at 9:00pm ET // 6:00pm PT

      Parents, caregivers, educators, clinicians, and others – join Jocelyn Leworthy this Tuesday, September 13th at 9pm ET // 6pm PT to learn about ways to support the psychosocial well-being of children & youth with albinism. This session will offer an overview of psychosocial development, as well as interactive activities and discussion. 

      Register today!
      www.albinism.org/NOAH-Connections/#psychosocial

      Published: September 12, 2022


      Thursday: Teen Connections

      September 15th at 8:00pm ET // 5:00pm PT

      Teens, get ready to kick off September with our next session of NOAH Connections just for you!

      We can’t wait to see YOU this Thursday at 8pm ET // 5pm PT!

      New to the group? Sign up now!

      www.albinism.org/NOAH-Connections/#teens

      Published: September 12, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: September 12, 2022

      Tuesday, September 20th:
      NOAH Connections: NOAH Research Program Coffee Chat
      Wednesday, September 21st:
      NOAH Connections: Young Adults
      Thursday, September 22nd:
      NOAH Connections: Adults
      Sunday, September 25th:
      NOAH Connections: PWAs in STEM
      NOAH Connections: LGBTQ+ and Allies
      Monday, September 27th:
      NOAH Workshops: Parents & Caregivers
      Thursday, September 29th:
      NOAH Connections: Teens

      Monday, October 3rd:

      NOAH Workshops: Parents & Caregivers

      Talent Search!

      Calling all PWAs! Do you have a noteworthy talent that makes YOU uniquely you? Share your skills in our talent showcase, NOAH Has Talent!, during our NOAH Night celebration on October 15th.

      ​​​​​​​Learn more & submit YOUR talent by September 26thwww.albinism.org/NOAHNight/#talent

      Published: August 29, 2022


      #TakeoverTuesday

      We are so excited to share that Yasmine Straker will be kicking off our social media takeover series on Tuesday, September 13th…which just so happens to be her birthday! 

      Would you like to share a day in YOUR life on NOAH social media? Send a message to Emily at eaubrey@3.19.125.119 with a little bit of info about yourself for the chance to be featured in a future takeover!​​​​​​​

      ​​​​​​​Published: August 29, 2022


      New Date – Workshop Rescheduled!

      Parents & Caregivers – join Sheila Adamo on Tuesday, September 27th to become part of a community that will share and learn about adapting to your new albinism journey. 

      Register by September 25th to secure your spot!
      www.albinism.org/workshops

      Published: August 29, 2022


      Back to School!

      It’s that time of the year again…and we know many of our community members are back to school already. So, if you’re back in class (educators too!), show us your best back to school pics on our recent Facebook Post!

      Published: August 29, 2022


      Mark Your Calendar!

      Parents & Caregivers – join Sheila Adamo on Thursday, September 15th to become part of a community that will share and learn about adapting to your new albinism journey. 

      Register by September 13th to secure your spot!
      www.albinism.org/workshops

      Published: August 29, 2022



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: August 29, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Parenting without Pigment

      August 30th at 9:00pm ET // 6:00pm PT

      Calling all parents without pigment!!

      Join Marleena Barber on Tuesday at 9pm ET // 6pm PT to discuss the support systems we have as parents with albinism.

      New to the group? Now’s the perfect time to join!
      www.albinism.org/NOAH-Connections/#pwp

      Published: August 29, 2022


      Thursday: Teen Connections

      September 1st at 8:00pm ET // 5:00pm PT

      Teens, get ready to kick off September with our next session of NOAH Connections just for you!

      We can’t wait to see YOU this Thursday at 8pm ET // 5pm PT!

      New to the group? Sign up now!

      www.albinism.org/NOAH-Connections/#teens

      Published: August 29, 2022


      Thursday: Life Hacks with Cassandra & Liz

      September 1st at 9:00pm ET // 6:00pm PT

      If you missed the popular Life Hacks session at NOAHCon2022, or you’d like to experience it again, sign up for the encore presentation of this crowd-favorite session today!

      Liz Schafer and Cassandra Mendez will be sharing their best tips and tricks for life as a PWA on Thursday at 9pm ET // 6pm PT.

      Sign up now!
      www.albinism.org/NOAH-Connections/#life-hacks

      Published: August 29, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: August 29, 2022

      Wednesday, September 7th:
      NOAH Connections: Young Adults
      Thursday, September 8th:
      NOAH Connections: Adults
      Monday, September 12th:
      NOAH Connections: Grandparents
      Tuesday, September 13th:
      NOAH Connections: Supporting the Psychosocial Well-Being of Children and Youth with Albinism
      Thursday, September 15th:
      NOAH Connections: Teens
      NOAH Workshops: Parents & Caregivers
      Wednesday, September 21st:
      NOAH Connections: Young Adults
      Thursday, September 22nd:
      NOAH Connections: Adults

      Monday, September 27th:

      NOAH Workshops: Parents & Caregivers

      Congratulations, Christionna!

      Join us in congratulating 2022 Space Camp Scholarship winner, Christionna S.! We look forward to hearing about your SCIVIS experience this fall.

      www.albinism.org/space-camp

      Published: August 22, 2022


      NOAH Night Planning Committee

      The planning for NOAH Night is already underway, but there’s still time for YOU to help!

      PWAs & family members, share your ideas on the NOAH Night Planning Committee leading up to the big event on NOAH’s 40th birthday, October 15th!

      For more details: http://3.19.125.119/wp-content/uploads/2022/08/NOAH-Night-Committee.pdf

      Interested in joining? Send us a message at info@3.19.125.119

      ​​​​​​​Published: August 22, 2022


      Calling all Parents without Pigment!!

      Join Marleena Barber on Tuesday, August 30th at 9pm ET // 6pm PT to discuss the support systems we have as parents with albinism.

      New to the group? Now’s the perfect time to join!
      www.albinism.org/NOAH-Connections/#pwp

      Published: August 22, 2022


      Life Hacks with Cassandra & Liz!

      If you missed the popular Life Hacks session at NOAHCon2022, or you’d like to experience it again, sign up for the encore presentation of this crowd-favorite session today!

      Liz Schafer and Cassandra Mendez will be sharing their best tips and tricks for life as a PWA on Thursday, September 1st at 9pm ET // 6pm PT.

      Sign up now!
      www.albinism.org/NOAH-Connections/#life-hacks

      Published: August 22, 2022


      Mark Your Calendar!

      Parents & Caregivers – join Sheila Adamo on Thursday, September 15th to become part of a community that will share and learn about adapting to your new albinism journey. 

      Register by September 13th to secure your spot!
      www.albinism.org/workshops

      Published: August 22, 2022



      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: August 22, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      August 24th at 9:00pm ET // 6:00pm PT

      Calling all young adults with albinism!

      Don’t miss out on your next chance to connect with fellow PWAs – join us this Wednesday at 9pm ET // 6pm PT!

      www.albinism.org/NOAH-Connections/#young-adults

      Published: August 22, 2022


      Thursday: Adult Connections

      August 25th at 9:00pm ET // 6:00pm PT

      Adults with albinism – we can’t wait to see you Thursday!

      Join us on Zoom this Thursday at 9pm ET // 6pm PT to connect and chat with PWA pals old and new!

      New to the group? Sign up now!

      www.albinism.org/NOAH-Connections/#adults

      Published: August 22, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: August 22, 2022

      Tuesday, August 30th:
      NOAH Connections: Parenting without Pigment
      Thursday, September 1st:
      NOAH Connections: Teens
      NOAH Connections: Life Hacks with Liz & Cassandra
      Wednesday, September 7th:
      NOAH Connections: Young Adults
      Thursday, September 8th:
      NOAH Connections: Adults
      Tuesday, September 13th:
      NOAH Connections: Supporting the Psychosocial Well-Being of Children and Youth with Albinism
      Thursday, September 15th:
      NOAH Connections: Teens
      NOAH Workshops: Parents & Caregivers
      Wednesday, September 21st:
      NOAH Connections: Young Adults
      Thursday, September 22nd:
      NOAH Connections: Adults

      National Eye Exam Month

      August is National Eye Exam Month, so we’re thinking of the awesome optometrists &  ophthalmologists that help care for the eyes of PWAs everywhere.

      Do you have an awesome eye doctor? Shout them out on our recent Facebook post!

      Published: August 15, 2022


      Congratulations, Prize Winners!

      Join us in congratulating Alicia C., Hollie W., and Benjamin F., who are the winners of Spiffy’s Scavenger Hunt prize drawing at NOAHCon22! Each prize winner will receive a voucher for $50 off registration for a future NOAH event.

      ​​​​​​​Thank you to everyone who played Spiffy’s Scavenger Hunt at the NOAH conference!

      ​​​​​​​Published: August 15, 2022


      NOAH Helps Grandparents Connect!

      In addition to providing social and educational sessions and workshops for grandparents, NOAH also helps put grandparents in touch with others who truly understand the journey of grandparenting a child with albinism. 

      Encourage your grandparents to send a message to grandparents@3.19.125.119 to be connected with fellow grandparents in the NOAH community.

      Published: August 15, 2022


      It’s Easy to Create a Facebook Fundraiser for NOAH!

      Starting a fundraiser takes just minutes, and the money raised helps us continue to provide programs and services to the community! 

      Follow the graphic to set up a fundraiser for NOAH today at:

      facebook.com/fund/NOAH.Albinism/​​​​​​​​​​​​​​

      Published: August 15, 2022


      • Have you seen the new GapKids commercial? This recent ad highlights the interests and talents of many kids, including a drummer with albinism!Check it out: https://www.youtube.com/watch?v=fYolts75D20

      • Dr. Niya Pickett Miller (parent of a PWA, longtime NOAH volunteer and NOAHCon 2022 Keynote Address Speaker) is using research to illuminate albinism identity and communication, and she needs your help! If you would be willing to share your authentic story as a PWA or someone connected to albinism, please complete Dr. Pickett Miller’s brief survey at:
        https://docs.google.com/forms/d/1EsM65n5XcV9lTmVBlLB-RIH5Lk9onf_Dn38kaqu5QZA/viewform?edit_requested=true

      • Did you know that the US government recently expanded the availability of COVID test options for people who are blind or visually-impaired? Now, blind and low-vision users have the option to order Ellume COVID home tests, which provide audio instructions and test results through a smartphone app. For more info, visit: https://acl.gov/covid19/tests-people-who-are-blind-or-have-low-visionIf you would like to order tests, call 1-800-232-0233

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: August 15, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TODAY: Albinism and the Family Workshop

      August 15th at 8:30pm ET // 5:30pm PT

      Registered attendees – join Sheila Adamo tonight to deepen your understanding and provide solutions to common obstacles parents, grandparents and caregivers of children with albinism may face.

      To learn more about upcoming NOAH workshops, visit:
      www.albinism.org/workshops

      Published: August 15, 2022


      Thursday: Teen Connections

      August 18th at 8:00pm ET // 5:00pm PT

      Teens, you’re up next! 

      Join us this Thursday at 8pm ET // 5pm PT to discuss mobility and navigating our surroundings!

      New to the group? Sign up now!

      www.albinism.org/NOAH-Connections/#teens

      Published: August 15, 2022


      Saturday: PWAs in STEM

      August 20th at 5:00pm ET // 2:00pm PT

      Calling All PWAs in STEM!

      Join Sarah Kane & Derek Schindelman for social time with fellow PWAs in the STEM Fields, Saturday, August 20th at 5pm ET // 2pm PT. We can’t wait to see you there!

      www.albinism.org/NOAH-Connections/#STEM

      Published: August 15, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: August 15, 2022

      Wednesday, August 24th:
      NOAH Connections: Young Adults
      Thursday, August 25th:
      NOAH Connections: Adults
      Thursday, September 1st:
      NOAH Connections: Teens
      Wednesday, September 7th:
      NOAH Connections: Young Adults
      Thursday, September 8th:
      NOAH Connections: Adults

      NOAH’s Back to School Library

      Parents & caregivers – we want to hear from YOU! ​​​​​​​

      How do you/your child share info about albinism with their teachers or classmates at the beginning of the school year? Do you/they write a letter, make a presentation, or go a different route?

      Submit your sample letters, presentations, ideas, etc. (including your child’s age/grade, and photos/videos if applicable!) to bts@3.19.125.119 for the chance to be added to our Back to School Library!

      www.albinism.org/bts

      Published: August 8, 2022


      Low Vision Driving Workshop Recording Now Available for Purchase!

      Missed the LV Driving Workshop at NOAHCon22? No worries! The recording of this jam-packed day-long workshop is now available at the NOAH Online Store. 

      Purchase the recording today to check out sessions addressing the clinical low vision exam, bioptic telescopes, pre-driver readiness; behind-the-wheel training and testing; transportation as a non-driver; gaining control of transportation needs; how a bioptic driving bill becomes law, and more! 

      https://app.donorview.com/GnR0

      ​​​​​​​Published: August 8, 2022


      Register Today!

      Parents, Grandparents, & Caregivers of children with albinism – join Sheila Adamo on Monday, August 15th to deepen your understanding and provide solutions to common obstacles parents, grandparents and caregivers of children with albinism may face.

      Register by August 13th to secure your spot!
      www.albinism.org/workshops

      Published: August 8, 2022


      #TakeoverTuesday

      We’re very excited to start a new segment on NOAH Social media, featuring the day in the life of a PWA for #TakeoverTuesday…

      But, before we get started, we want to hear from YOU! What would you like to see for #TakeoverTuesday?

      Let us know on our recent Facebook Post!

      Published: August 8, 2022


      Spiffy Shout-Out!

      Your favorite fundraising friend, Spiffy, has a special shout-out for the Kelly Family, who hosted a fundraising event and raised over $12,000 for NOAH! Way to go!!

      Check out the options and create 

      YOUR fundraising page today:
      www.albinism.org/fundraisers

      Published: August 8, 2022


      • ​​​​​Jasmine is a Star, a film following the journey of a determined 16-year-old girl with albinism, premiered last week at the BlackStar Film Festival! For more info about Jasmine is a Star and the BlackStar Film Festival, visit: https://www.blackstarfest.org/festival/events/jasmine-is-a-star-2/​​​​​​​​​​​​​

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: August 8, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TODAY: NOAHCon Recap Panel

      August 8th at 9:00pm ET // 6:00pm PT

      Whether you were unable to attend the NOAH conference or you attended and would like to relive the experience, join us for a NOAHCon recap panel TONIGHT at 9pm ET // 6pm PT, featuring Liz Schafer, Erika Evans, Courtney Korb, and Dale Hamilton. 

      We will touch on the highlights, sessions, and things learned at the 2022 conference.

      All are welcome, so register now!
      www.albinism.org/NOAH-Connections/#noahcon

      Published: August 8, 2022


      Wednesday: Young Adult Connections

      August 10th at 9:00pm ET // 6:00pm PT

      Young adults, let’s chat about dating! 

      Join us this Wednesday at 9pm ET // 6pm PT to discuss how we navigate the dating world as young adults with albinism!

      www.albinism.org/NOAH-Connections/#young-adults

      Published: August 8, 2022


      TODAY: NOAHCon Recap Panel

      August 8th at 9:00pm ET // 6:00pm PT

      Whether you were unable to attend the NOAH conference or you attended and would like to relive the experience, join us for a NOAHCon recap panel TONIGHT at 9pm ET // 6pm PT, featuring Liz Schafer, Erika Evans, Courtney Korb, and Dale Hamilton. 

      We will touch on the highlights, sessions, and things learned at the 2022 conference.

      All are welcome, so register now!
      www.albinism.org/NOAH-Connections/#noahcon

      Published: August 8, 2022


      Sunday: LBGTQ+ & Allies Connections

      August 14th at 8:00pm ET // 5:00pm PT

      LGBTQ+ & Allies, you’re up next! 

      Join us this Sunday, August 14th at 8pm ET // 5pm PT for our next session of NOAH Connections just for you!

      New to the group? Sign up now for the invite to this call & we’ll send you email reminders for future opportunities to connect!
      www.albinism.org/NOAH-Connections/#lgbtq

      Published: August 8, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: August 8, 2022

      Monday, August 15th:
      NOAH Workshops: Albinism and the Family
      Thursday, August 18th:
      NOAH Connections: Teens
      Saturday, August 20th:
      NOAH Connections: PWAs in STEM
      Wednesday, August 24th:
      NOAH Connections: Young Adults
      Thursday, August 25th:
      NOAH Connections: Adults
      Thursday, September 1st:
      NOAH Connections: Teens
      Wednesday, September 7th:
      NOAH Connections: Young Adults
      Thursday, September 8th:
      NOAH Connections: Adults

      NOAHCon Recap Session!

      Whether you were unable to attend the NOAH conference or you attended and would like to relive the experience, join us for a NOAHCon recap panel August 8th at 9pm ET // 6pm PT, featuring Liz Schafer, Erika Evans, Courtney Korb, and Dale Hamilton. 

      We will touch on the highlights, sessions, and things learned at the 2022 conference.

      All are welcome, so register today!
      www.albinism.org/NOAH-Connections/#noahcon

      Published: August 1, 2022


      How I See!

      Whether you are a non-PWA looking to better understand a PWA’s vision, or a PWA interested in indulging in a conversation about how you see and the ways you communicate your vision to others, Elizabeth Schafer’s “How I See” is perfect for you! 

      This encore presentation of our NOAHCon22 session will include a series of paintings created by a PWA, an interactive activity, and a Q&A/discussion.

      We hope you’ll join us on August 9th at 8pm ET // 5pm PT!

      Sign up today: www.albinism.org/NOAH-Connections/#see

      ​​​​​​​Published: August 1, 2022


      Registration is Now Open!

      Parents, Grandparents, & Caregivers of children with albinism – join Sheila Adamo on Monday, August 15th to deepen your understanding and provide solutions to common obstacles parents, grandparents and caregivers of children with albinism may face.

      Register by August 13th to secure your spot!
      www.albinism.org/workshops

      Published: August 1, 2022


      International Day of Friendship!

      Last Friday was the International Day of Friendship, so we celebrated the many friendships in the NOAH Community by sharing shout-outs to NOAH friends! 

      Give a shout-out to one of your NOAH friends (pics encouraged!) on our recent Facebook post!

      Published: August 1, 2022


      • Did you know that last Tuesday was the 32nd anniversary of the Americans with Disabilities Act (ADA)? NOAH is proud to support this important civil rights law that works to ensure all people with disabilities have the same rights and opportunities as everyone else. 
        To learn more, visit: www.adaanniversary.org/ 

      • Did You Know?! The Global Albinism Alliance recently announced the 2022 International Scientific Conference on Albinism – ISCA 2022, which will be held online November 16-19, 2022. Check out their recent post for more details! https://bit.ly/3zQiRpz

      • Join us in congratulating former UN independent expert on albinism, I.K. Ero, who was recently awarded an honorary Doctor of Laws degreefrom Lancaster University! https://bit.ly/3JjTJul

      • The United Nations Independent Expert on Albinism (UN IE), Muluka-Anne Miti-Drummond, is preparing a report for the next session of the UN General Assembly on people with albinism on the move. In support of this effort, the Global Albinism Alliance is conducting a survey to help gather information. If you have ever moved within your country for any reason(s) directly related to you or a family member’s albinism, the GAA encourages you to complete their Albinism and Moving Surveyhttps://bit.ly/3BBKBiO​​​​​

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: August 1, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Thursday: Teen Connections

      August 4th at 8:00pm ET // 5:00pm PT

      Teens, you’re up next! Join us this Thursday at 8pm ET // 5pm PT for our next session of NOAH Connections just for you!

      www.albinism.org/NOAH-Connections/#teens

      Published: August 1, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: August 1, 2022

      Monday, August 8th:
      NOAH Connections: NOAH Conference Recap Panel
      Tuesday, August 9th:
      NOAH Connections: How I See with Elizabeth Schafer
      Wednesday, August 10th:
      NOAH Connections: Young Adults
      Thursday, August 11th:
      NOAH Connections: Adults
      Monday, August 15th:
      NOAH Workshops: Albinism and the Family
      Thursday, August 18th:
      NOAH Connections: Teens
      Saturday, August 20th:
      NOAH Connections: PWAs in STEM
      Wednesday, August 24th:
      NOAH Connections: Young Adults
      Thursday, August 25th:
      NOAH Connections: Adults

      Did You Know?

      One year ago Tuesday was Executive Director Karen Bly’s very first day working with NOAH!

      Thank you, Karen, for your dedication and leadership in the past year. We can’t wait to see what year 2 brings! 

      Published: July 25, 2022


      In-Person Events – Save the Date!

      This one time at NOAH Camp…

      Calling all campers with albinism and their families! Mark your calendars for our next NOAH Family Summer Camp, July 14-19, 2023.

      We hope you’ll join us for slip n’ slides, s’mores, and lots of laughs with your NOAH friends!

      www.albinism.org/nh-camp

      ​​​​​​​Published: July 25, 2022


      See You in the Twin Cities!

      Adult PWAs, mark your calendars for our next Adults with Albinism Weekend, September 29 – October 1, 2023 in Minneapolis, MN! 

      Are you planning to join in on the fun? We hope so!

      Published: July 25, 2022


      See You in Orange County!

      NOAHCon 2022 just ended, but we’re already looking forward to our next conference! Mark your calendars and get ready to join us in Orange County, California July 11-14, 2024!

      Published: July 25, 2022


      • Remember Cat in the Hat and Gertrude McFuzz? These precious pups with albinism have officially arrived at their forever homes! Check out this recent video from Red Desert Doodles sharing their journey to meet their new owners: https://www.facebook.com/watch/?v=457678289510655&ref=sharing

      • Check out these photos of NOAH community members, Aiden & Nate M., who recently competed in the The Windy City Blind Hockey Showdown! https://bit.ly/3vf0EiK​​​​

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: July 25, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      July 27th at 9:00pm ET // 6:00pm PT

      Young adults, you’re up next! We hope you’ll join us this Wednesday at 9:00pm ET // 6:00pm PT to connect and chat with your PWA pals!

      New to the group? Sign up today!

      www.albinism.org/NOAH-Connections/#young-adults

      Published: July 25, 2022


      Thursday: Adult Connections

      July 28th at 9:00pm ET // 6:00pm PT

      Adult PWAs, we can’t wait to “see” you! Join us this Thursday at 9pm ET // 6pm PT to re-connect with old friends, and make some new ones!

      www.albinism.org/NOAH-Connections/#adults

      Published: July 25, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: July 25, 2022

      Thursday, August 4th:
      NOAH Connections: Teens
      Wednesday, August 10th:
      NOAH Connections: Young Adults
      Thursday, August 11th:
      NOAH Connections: Adults
      Thursday, August 18th:
      NOAH Connections: Teens

      Thank YOU for Joining Us at NOAHCon!

      Looking back at this weekend’s conference, we want to thank all of our awesome attendees who joined us for education, connection, and camaraderie in our first in-person conference in four years. As you think back on this jam-packed weekend, share a favorite memory (or two!) that made your conference experience memorable on our recent Facebook post.

      Published: July 18, 2022


      Thank You, Special Guests!

      Join us in sending a special shout-out to our 6 special guests who shared their conference experience on NOAH’s social media this weekend.

      Thank you Courtney, Gabriella, Sarah, Casey, Yasmine, and Jessica for taking time out of your day at NOAHCon to share your perspective and experience with our community! 

      Published: July 18, 2022


      We Want YOU For Albinism InSight!

      Submitting an article to Albinism InSight is a great way for you to share your knowledge and experience with the albinism community! Submissions are due this Wednesday, July 20th.

      For more information, visit: www.albinism.org/AI/call-for-content

      ​​​​​​​Published: July 18, 2022


      Tell Your Teachers!

      NOAH Ed U is a complimentary supplement of Albinism InSight geared specifically towards educators, and the Summer 2022 Issue is now available. Tell all of the teachers in your life to check it out today!

      www.albinism.org/ed-u

      Published: July 18, 2022


      • Check out this video feature on NOAH Community member, Elizabeth Schafer, and her work with Splashes of Hope, creating art installations at children’s hospitals! https://www.youtube.com/watch?v=0AWCXt761ho​​​​

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: July 18, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Thursday: Teen Connections

      July 21st at 8:00pm ET // 5:00pm PT

      Teens, get ready for our next session of NOAH Connections just for you! Join us this Thursday at 8pm ET // 5pm PT to connect and chat with fellow teens with albinism.

      www.albinism.org/NOAH-Connections/#teens

      Published: July 18, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: July 18, 2022

      Wednesday, July 27th:
      NOAH Connections: Young Adults
      Thursday, July 28th:
      NOAH Connections: Adults

      T-minus 3 days until NOAHCon 2022! 

      Learn more about the magic of NOAH’s Biennial National Conference & register today at: www.albinism.org/NOAHCon 


      Spiffy Made it to Orlando!

      Thanks to our many awesome fundraisers, Spiffy finally made it to Orlando, and he can’t wait to meet you at NOAHCon 2022! 

      Check out his recent video update.

      Published: July 11, 2022


      Thank You, NOAHCon Sponsors!

      Join us in sending a special shout-out to our NOAHCon 2022 Sponsors:

      Epstein | Ostrove

      Under the Same Sun

      iYellow Group

      Encore

      www.albinism.org/NOAHCon

      Published: July 11, 2022


      Conference Attendees – Check Your Inbox!

      The NOAHCon 2022 conference schedule & more were sent via email on Friday! If this info-packed message didn’t reach you, send us a message at info@3.19.125.119.

      www.albinism.org/NOAHCon

      ​​​​​​​Published: July 11, 2022


      ANNOUNCING: NOAHCon 2022 Story Takeover!

      We can’t wait to have special guests takeover our story this week to share their NOAHCon 2022 experience! 

      Who will be making an appearance? Make sure you’re following NOAH on Facebook & Instagram to find out!

      www.albinism.org/NOAHCon

      Published: July 11, 2022


      Amazon Prime Day!​​​​​​​

      Amazon Prime Day is this week, July 12-13th, and this is the perfect chance to snag some great deals while shopping for a good cause. 

      Designate NOAH as your charity today & we’ll receive 0.5% of all of your purchases through AmazonSmile on Prime Day and everyday!

      smile.amazon.com/ch/23-2265173

      Published: July 11, 2022


      Thank YOU for Shopping for NOAH!​​​​​​​

      Shoutout to our AmazonSmile shoppers, whose purchases raised over $700 for NOAH from January-March 2022! 

      When you shop on AmazonSmile, 0.5% of every purchase goes to NOAH. 

      Start shopping for NOAH today: smile.amazon.com/ch/23-2265173

      Published: July 11, 2022


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: July 11, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Thursday – Sunday: NOAHCon 2022!

      July 14-17th

      We can’t wait to see YOU in Orlando!

      www.albinism.org/NOAHCon

      Published: July 11, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: July 11, 2022

      Thursday, July 21st:
      NOAH Connections: Teens
      Wednesday, July 27th:
      NOAH Connections: Young Adults
      Thursday, July 28th:
      NOAH Connections: Adults

      T-minus 17 days until NOAHCon 2022! 

      Learn more about the magic of NOAH’s Biennial National Conference & register today at: www.albinism.org/NOAHCon 


      So Close!

      Thanks to our many awesome fundraisers who have started their Adopt-a-Day calendars or planned events, Spiffy is getting closer to Orlando every day!

      Can YOU help Spiffy make it to FL in time for NOAHCon 2022??

      Create your fundraising page today:
      www.albinism.org/fundraisers

      Published: June 27, 2022


      Limited NOAHCon Volunteer Opportunities Still Available!

      We have an amazing two days of fun planned for our youngest conference attendees, but we need YOU to help make it happen!

      Help make the conference extra special for NOAH Kids and earn a registration fee rebate. Learn more & sign up to volunteer today at:

      albinism.org/NOAHCon/volunteer​​​​​​​

      Published: June 27, 2022


      Calling all PWA writers!​​​​​​​

      THREE spots available for a free manuscript evaluation in advance of the 2022 NOAH Conference.

      What: Submit 10-20 pages of your manuscript-in-progress of any genre and receive FREE written feedback followed by a 30-minute meeting at the NOAH conference in Orlando or via Zoom at a mutually decided time.

      Who: My name is Emily Urquhart and I am a freelance journalist, writer, editor, and educator. I’ve published two works of nonfiction and a collection of essays that will be out this fall. I’m also the parent of a child with albinism, and I’ve been a parent liaison with NOAH for the past four years.

      Contact: emily.urquhart@3.19.125.119

      ​​​​​​​Published: June 27, 2022


      Thank You, Banz!

      Join us in sending a special shout-out to New Parent Toolkit Donor, Banz! Thank you, Banz, for donating your careware for kids to families with newly-diagnosed children with albinism.

      www.albinism.org/new-parent-program

      Published: June 27, 2022


      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: June 27, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Wednesday: Young Adult Connections

      June 29th at 9:00pm ET // 6:00pm PT

      Young adults, you’re up next! Join us to share experiences and connect with fellow PWAs. 

      www.albinism.org/NOAH-Connections/#young-adults

      Published: June 27, 2022


      Thursday: Adult Connections

      June 30th at 9:00pm ET // 6:00pm PT

      Adults with albinism, we can’t wait to “see” you this Thursday at 9pm ET // 6pm PT

      New to the group? Now’s the perfect time to join in the fun! Sign up today:

      www.albinism.org/NOAH-Connections/#adults

      Published: June 27, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: June 27, 2022

      Thursday, July 6th:
      NOAH Connections: Teens
      Thursday, July 21st:
      NOAH Connections: Teens
      Wednesday, July 27th:
      NOAH Connections: Young Adults
      Thursday, July 28th:
      NOAH Connections: Adults

      Juneteenth

      “The historical legacy of Juneteenth shows the value of never giving up hope in uncertain times.”

      On this day commemorating the end of slavery in the US, NOAH celebrates the freedom, accomplishments, and contributions of Black individuals to our NOAH community. 

      https://nmaahc.si.edu/blog-post/historical-legacy-juneteenth

      Published: June 20, 2022


      IAAD Fundraiser Shout-Out!

      Join us in sending a special shout-out to the NI NOAH and South Chicagoland & NW Indiana IAAD Walk groups, who both hosted events last weekend! Thank you for spreading albinism awareness and raising funds for NOAH.

      Want to host your own fundraiser? Check out the easy & fun options at www.albinism.org/fundraisers

      Published: June 20, 2022


      Sponsor Spotlight!

      Join us in giving a special shout-out to our NOAHCon 2022 Opening Session Sponsor, Epstein | Ostrove! 

      Do you know a company that would benefit from exposure at NOAHCon? Help us spread the word of limited sponsorship opportunities available!
      www.albinism.org/NOAHCon/sponsor

      ​​​​​​​Published: June 20, 2022


      Fundraiser Shout-Out!

      Join us in sending a special shout-out to Marleena, Kathi, Caroline, Betty, Karen, Casey, & Cassandra who are all participating in our Adopt-A-Day Countdown to NOAHCon Fundraiser!

      Are you working on filling your calendar? Let us know on our recent Facebook Post.

      Thanks to these awesome fundraisers, Spiffy is getting closer to Orlando! If you haven’t started your calendar, it’s not too late to help Spiffy on his journey! Check it out today:
      www.albinism.org/fun/adopt-a-day

      Published: June 20, 2022


      Congratulations, Mackenzie!​​​​​​​

      NOAH is delighted to announce that Mackenzie Strong has been selected as the honorable mention applicant for the 2022 Michael J. McGowan Leadership Scholarship Award.

      Mackenzie is a rising junior at Illinois College, where she is studying secondary education and history, with a minor in political science.

      Learn more about Mackenzie: www.albinism.org/leadership22

      ​​​​​​​Published: June 20, 2022


      • NOAH community member, Colleen Young, earned her 4th gold medal of the night and set an American record in the Women’s 100M Breaststroke SB13 at the 2022 Para Swimming World Championships last week. Congratulations, Colleen! https://bit.ly/3tOijNo

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: June 20, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Tuesday: Parenting without Pigment

      June 21st at 9:00pm ET // 6:00pm PT

      Calling All Parents without Pigment!

      Join Robin French this Tuesday, June 21st at 9pm ET // 6pm PT to share your worst & funniest parenting stories! 

      www.albinism.org/NOAH-Connections/#pwp

      Published: June 20, 2022


      Thursday: Teen Connections

      June 23rd at 8:00pm ET // 5:00pm PT

      Teen PWAs – school’s out, and we can’t wait to kick off summer with YOU! Join us this Thursday at 8pm ET // 5pm PT to start summer relaxation with your friends with albinism.

      www.albinism.org/NOAH-Connections/#teens

      Published: June 20, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: June 20, 2022

      Wednesday, June 29th:
      NOAH Connections: Young Adults
      Thursday, June 30th:
      NOAH Connections: Adults
      Thursday, July 6th:
      NOAH Connections: Teens

      T-minus 31 days until NOAHCon 2022! 

      Learn more about the magic of NOAH’s Biennial National Conference & register today at: www.albinism.org/NOAHCon 


      Happy International Albinism Awareness Day!

      We hope you’ll join us TONIGHT at 8pm ET // 5pm PT for NOAH’s IAAD celebration on Gatherly. All friends of NOAH are welcome to join, so RSVP now & get ready for games and fun with the albinism community!

      www.albinism.org/NOAH-Connections/#iaad

      Published: June 13, 2022


      NOAH’s Adopt-a-Day Fundraiser Starts Today!

      Want to spread albinism awareness and support NOAH but not sure where to start? Join us for the Adopt-a-Day Fundraiser!

      Download your own calendar and collect donations in the amount listed to “adopt” each day as we celebrate albinism in a “Countdown to NOAHCon!” Everyone who fills their calendar will have the chance to win a NOAH Prize Pack!

      Learn more and start YOUR calendar today:
      www.albinism.org/fun/adopt-a-day​​​​​​​

      Published: June 13, 2022


      Donations Needed for NOAHCon Silent Auction!

      The conference is fast approaching! Here’s an easy way to give back, whether or not you are attending the conference. NOAH is looking for donations to the silent auction. If you have a great item you would like to donate or know someone you can ask to donate an item in support of NOAH, please let the silent auction team know. All funds go to support NOAH.

      Ideal donations are those you would like to bid on. Donations should be new or homemade items such as, electronics, gift certificates, children’s items. For further information please contact auction@3.19.125.119

      ​​​​​​​Published: June 13, 2022


      Limited Late Registrations Available!​​​​​​​

      We are excited to share that a limited number of adult late registrations will be accepted through June 22nd!

      Don’t miss out on the magic of NOAH’s national conference…register today: albinism.org/NOAHCon/registration​​​​

      Published: June 13, 2022


      Last Call for Kennedy Space Center & Icon Park!

      Want to join us for a pre-conference excursions to the Kennedy Space Center or Icon Park? 

      Add your name to the waitlist by June 15th – if we get enough interest, we will add another bus to each trip!

      www.albinism.org/NOAHCon​​​​​​​

      Published: June 13, 2022


      • NOAH community member, Ashley J. Hicks, was recently cast in the 2022 Disney Television Discovers: Talent Showcase. Congratulations, Ashley! https://www.instagram.com/p/CeebpnfuOn1/

      • FYI: Submissions for the Rare Artist Program are now Open!The Rare Artist Contest provides a national platform for rare artists to showcase their artwork and highlight their stories.Learn more or submit your art at: https://everylifefoundation.org/rare-artist/

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: June 13, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      TODAY: IAAD Party on Gatherly!

      June 13th at 8:00pm ET // 5:00pm PT

      Join us on Gatherly for a virtual IAAD celebration with the NOAH Community, TONIGHT at 8pm ET // 5pm PT.

      All friends of NOAH are welcome – RSVP now!
      www.albinism.org/NOAH-Connections/#iaad

      Published: June 13, 2022


      Tuesday: PWAs in the Legal Profession

      June 14th at 8:00pm ET // 5:00pm PT

      Calling all law students, lawyers, judges, and paralegals with albinism!

      Join fellow PWAs in the legal profession for conversation and connections this Tuesday at 9pm ET // 6pm PT.

      New to the group? Join today!
      www.albinism.org/NOAH-Connections/#legal

      Published: June 13, 2022


      Wednesday: Young Adult Connections

      June 15th at 9:00pm ET // 6:00pm PT

      Young adults, join us this Wednesday for a special session of NOAH Connections. 

      We’ll discuss applying for jobs!

      www.albinism.org/NOAH-Connections/#young-adults

      Published: June 13, 2022


      Thursday: Adult Connections

      June 16th at 9:00pm ET // 6:00pm PT

      Adults with albinism, join special guest host, Erika Evans, this Thursday for our next session of Adult NOAH Connections. We can’t wait to see you there!

      www.albinism.org/NOAH-Connections/#adults

      Published: June 13, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: June 13, 2022

      Tuesday, June 22nd:
      ​​​​​​​​​​​​​​NOAH Connections: Parenting without Pigment
      Thursday, June 23rd:
      NOAH Connections: Teens
      Wednesday, June 29th:
      NOAH Connections: Young Adults
      Thursday, June 30th:
      NOAH Connections: Adults

      T-minus 38 days until NOAHCon 2022! 

      Learn more about the magic of NOAH’s Biennial National Conference & register today at: www.albinism.org/NOAHCon 


      Announcing: NOAH’s Adopt-a-Day Fundraiser!

      Want to spread albinism awareness and support NOAH but not sure where to start? Join us for the Adopt-a-Day Fundraiser!

      Download your own calendar and collect donations in the amount listed to “adopt” each day as we celebrate albinism in a “Countdown to NOAHCon!” Everyone who fills their calendar will have the chance to win a prize!

      Learn more and start YOUR calendar today:
      www.albinism.org/fun/adopt-a-day

      Published: June 6, 2022


      You’re Invited!

      Join us on Gatherly for a virtual IAAD celebration with the NOAH Community, Monday, June 13th at 8pm ET // 5pm PT.

      Sign up today!
      www.albinism.org/NOAH-Connections/#iaad

      Published: June 6, 2022


      Congratulations, Sarah!​​​​​​​

      NOAH is delighted to announce that Sarah Kane has been awarded the 2022 Michael J. McGowan Leadership Scholarship Award.

      Sarah is a rising senior at University of Pennsylvania, where she is studying astrophysics with a minor in philosophy.

      Learn more about Sarah: www.albinism.org/leadership22

      Published: June 6, 2022


      Sponsor Spotlight!

      Join us in giving a special shout-out to our NOAHCon 2022 Welcome Reception Sponsor, Under the Same Sun! 

      Do you know a company that would benefit from exposure at NOAHCon? The sponsorship deadline has passed, but we still have limited sponsorship opportunities available.

      Encourage them to learn more at: www.albinism.org/NOAHCon/sponsor

      and contact sponsors@3.19.125.119 to set up a conference sponsorship today!

      Published: June 6, 2022


      Support the HPS Network!

      On Friday, June 10th the HPS Network will be hosting an interactive virtual event devoted entirely to listening and learning from patients & caregivers living with HPS.  

      All NOAH community members are encourage to attend to support the HPS Network & our community members with HPS!

      For more info or to register, visit www.hpsnetwork.org/el-pfdd

      Published: June 6, 2022


      High-Contrast Baby Books Needed!

      NOAH’s New Parent Program is in need of books for New Parent Toolkits and we need YOUR help. If you’d like to purchase a book (or a few!) to donate to this program, check out our Amazon Charity List:

      https://amzn.to/3kSR2VP

      Published: June 6, 2022


      • Join us in congratulating NOAH Board Vice Chair Elliot Ostrove for being recognized by NJBIZ for his leadership in the legal community. NOAH is so fortunate that Elliot shares his time and talents as a dedicated volunteer.  https://bit.ly/3tjia49
      • FYI: Access to Resources in Individuals with Albinism Study – Researchers at the Medical College of Wisconsin are conducting an anonymous research survey to learn more about access to genetic testing, vision care, and other resources for individuals with albinism. Respondents ages 18+, or parents/guardians of minors, who have been diagnosed with albinism, wanted for survey study.  For more information or to take the survey visit:  https://redcap.mcw.edu/surveys/?s=43XCTF43EK

      NOAH Events This Week!

      Check out the great opportunities to connect this week!

      Published: June 6, 2022

      💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
      www.albinism.org/NOAH-Connections


      Thursday: Teen Connections

      June 9th at 8:00pm ET // 5:00pm PT

      Teens, you’re up next! Join us this Thursday for our next session of NOAH Connections just for you. 

      See you there!
      www.albinism.org/NOAH-Connections/#teens

      Published: June 6, 2022


      Save the Date!

      Mark your calendars for these upcoming opportunities to connect:

      Published: June 6, 2022

      Monday, June 13th:
      NOAH Connections: IAAD Party on Gatherly!
      Monday, June 14th:
      NOAH Connections: PWAs in the Legal Profession (rescheduled!)
      Wednesday, June 15th:
      NOAH Connections: Young Adults
      Thursday, June 16th:
      NOAH Connections: Adults​​​​​​​​​​​​​​
      Tuesday, June 22nd:
      ​​​​​​​​​​​​​​NOAH Connections: Parenting without Pigment
      Thursday, June 23rd:
      NOAH Connections: Teens
      Wednesday, June 29th:
      NOAH Connections: Young AdultsThursday, June 23rd:
      NOAH Connections: Teens
      Thursday, June 30th:
      NOAH Connections: Adults