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NOAH News

Yom Kippur

Wishing a meaningful Yom Kippur to all in our community who observe.

​​​​​​​Published: September 25, 2023

Are You Interested in Albinism Research?

The NOAH Research Committee is excited to share the following video, which offers a glimpse of the National Eye Institute (NEI) facility and provides information about albinism research being conducted at NEI on the National Institutes of Health (NIH) campus in Bethesda, MD. 

https://youtu.be/wr-pAYi6UN8

A special “Thank you” to the NEI Communications staff for their expert guidance; to Aman George (Staff Scientist at NEI) for being our host on the video; and to NOAH Research Committee member Kerry Goetz (Associate Director; NEI Office of Data Science & Health Informatics, NIH) for coordinating this special partnership opportunity for NOAH.

If you’d like more information about NOAH’s support of albinism research through the NOAH Research Program, please join the conversation at the NOAH Research Program Coffee Chat, on September 26th at 7pm ET // 4pm PT. We will be discussing the NOAH Research Program, sharing details about our Research Program Grant process and providing information and insight about NOAH’s ongoing support of albinism research and how you can GET INVOLVED.

Sign up today:
www.albinism.org/NOAH-Connections/#research

Published: September 25, 2023

Donté’s Popcorn Fundraiser!

NOAH Board Chair Donté Mickens is hosting a fundraiser for NOAH. From September 27th – October 1st, purchase popcorn from his Double Good Pop-Up and 50% of the profits will go directly to NOAH. 

Dontés Fundraiser: https://bit.ly/462Bcxd

Published: September 25, 2023

Bioptic Photo Challenge!

You may have heard that some PWAs use a bioptic telescope to help them drive…but did you know there are so many other uses for this handy device?!

PWAs – do YOU use a bioptic? We invite you to share a photo of you using a bioptic for activities other than driving on our recent Facebook post!

Published: September 25, 2023

Save the Date & Start Reading!

NOAH PWA Book Club is back, and we are already looking forward to our next meeting. Start reading “Hello Beautiful” by Ann Napolitano and mark your calendar to join us for a book discussion on Monday, November 13th at 9pm ET // 6pm PT.

www.albinism.org/NOAH-Connections/#pwa-book-club

Published: September 25, 2023

NOAH Night Updates!

Last Chance to Submit Your Talent!

PWAs, we know you have some fun and exciting talents to share…so don’t miss out on the chance to be included in the NOAH Has Talent! Talent Showcase at NOAH Night, sponsored by Epstein | Ostrove!! 

Submissions are due TODAY!

www.albinism.org/NOAHNight/#talent​​​​​​​

Published: September 25, 2023

Thank you, ShadeSuits!

ShadeSuits is a continued supporter of our New Parent Program, and we are pleased to include them as NOAH Night Sponsors. In honor of NOAH’s 41st birthday celebration, you can use code SS30 for 30% off your next purchase at www.shadesuits.com

Want to see YOUR name in lights? Learn more about NOAH Night sponsorship opportunities today:
albinism.org/NOAHNight/#sponsor

Published: September 25, 2023

One Week Left to Submit Your Art or Writing!

Calling all kids & adults with albinism – break out the crayons, break out the markers, grab your pen and paper; it’s that time again! 

Check out Spiffy’s Creative Arts Contest and submit by October 1stfor the chance to be featured in Albinism InSight!

www.albinism.org/NOAHNight/#spiffy

Published: September 25, 2023

NOAH Events This Week!

Check out the great opportunities to connect this week!

Published: September 25, 2023

💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
www.albinism.org/NOAH-Connections

    Tuesday: Aging with Albinism

    September 26th at 5:00pm ET // 2:00pm PT

    Aging with Albinism is Back!

    Older PWAs, we look forward to seeing you this Tuesday, September 26th, for our next session of Aging with Albinism. We can’t wait to reconnect, meet new members, and hear about your summer!

    New to the group? Now is the perfect time to sign up! 
    www.albinism.org/NOAH-Connections/#aging

    Published: September 25, 2023

    Tuesday: Research Program Coffee Chat

    September 26th at 7:00pm ET // 4:00pm PT

    JOIN THE CONVERSATION

    Are you interested in albinism research?

    Join the NOAH Research Program Committee this Tuesday, September 26th at 7pm ET // 4pm PT for a call to discuss the program, share details about our Research Program Grant process and provide information and insight about NOAH’s ongoing support of albinism research and how you can GET INVOLVED.

    Sign up today:
    www.albinism.org/NOAH-Connections/#research

    Published: September 25, 2023

    Thursday: Teen Connections

    September 28th at 8:00pm ET // 5:00pm PT

    Teens, we can’t wait to see you at our next session of Teen Connections! Join us for friendship & fun this Thursday, September 28th at 8pm ET // 5pm PT.

    New to the group? There’s still time to sign up!

    www.albinism.org/NOAH-Connections/#teens

    Published: September 25, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: September 25, 2023

    Wednesday, October 4th:
    NOAH Connections: Young Adults    		Thursday, October 5th:​​​​​​​
    NOAH Connections: Adults
    Thursday, October 12th:
    NOAH Connections: Teens     		Wednesday, October 18th:
    NOAH Workshops: Grandparenting a Child with Albinism
    NOAH Connections: Young Adults
    Thursday, October 19th:​​​​​​​
    NOAH Connections: Adults

    Happy LatinX & Hispanic Heritage Month!

    Hispanic & LatinX PWAs – how do you stay connected to your heritage or honor your culture? Send a story, photo, or video to eaubrey@albinism.org to be featured on the NOAH Website and social media this month and beyond.

    www.albinism.org/heritage

    ​​​​​​​Published: September 18, 2023

    Are You Interested in Albinism Research?

    Join the NOAH Research Program Committee on September 26th at 7pm ET // 4pm PT for a call to discuss the program, share details about our Research Program Grant process and provide information and insight about NOAH’s ongoing support of albinism research and how you can GET INVOLVED.

    Sign up today:
    www.albinism.org/NOAH-Connections/#research

    Published: September 18, 2023

    NOAH Needs YOU…to Volunteer!

    NOAHCon 2024 is less than one year away, and as anyone who has attended a NOAH national conference knows, it takes a village to plan and execute this significant event. 

    We have several volunteer positions available – learn more and apply today at albinism.org/volunteer/#NOAHCon

    Published: September 18 2023

    NOAH Night Updates!

    Thank You, 

    Epstein | Ostrove!

    We are pleased to share that Epstein | Ostrove is a NOAH Night 2023 Diamond Sponsor. Thank you, Epstein | Ostrove for your continued support of NOAH!

    Want to see YOUR name in lights?! We have exciting sponsorship opportunities available for local businesses. 

    Learn more: albinism.org/NOAHNight/#sponsor

    Published: September 18, 2023

    One Week Left to Submit Your Talent!

    Dance, sing, yo-yo, your choice! We know you’ve got the talent; now is your chance to show everyone else. 

    Send in your talent submission by September 25th for the chance to be featured in our lineup for this year’s Epstein | Ostrove NOAH Has Talent! showcase!

    www.albinism.org/NOAHNight/#talent

    Published: September 18, 2023

    Two Weeks Left to Submit Your Art or Writing!

    Calling all kids & adults with albinism – break out the crayons, break out the markers, grab your pen and paper; it’s that time again! 

    Check out Spiffy’s Creative Arts Contest and submit by October 1stfor the chance to be featured in Albinism InSight!

    www.albinism.org/NOAHNight/#spiffy

    Published: September 18, 2023

    • Have you heard about LEGO Braille Bricks? Originally distributed only to specific organizations working with children with visual impairments, LEGO Braille Bricks are now available to the public as of September 1st. LEGO says the bricks were created as “a fun and playful way to introduce braille to anyone who wants to learn.”Learn more: https://www.lego.com/en-us/braille-bricks

    • In honor of Hispanic & LatinX Heritage Month, the film “Malpaso”will stream for free Sept. 16-23. “Malpaso” centers around two orphaned siblings in the DR, one with albinism. https://www.lacla.org/cine-nepantla-2023Please note: some themes in the film may not be suitable for all viewers.

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: September 18, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Tuesday: Parenting without Pigment

    September 19th at 9:00pm ET // 6:00pm PT

    Back to School Chatter!

    Parents with albinism, join Kathi Garza and friends this Tuesday, September 19th at 9pm ET // 6pm PT to chat about parenting during the back-to-school season.

    New to the group? Sign up today!
    www.albinism.org/NOAH-Connections/#pwp

    Published: September 18, 2023

    Wednesday: Young Adult Connections

    September 20th at 9:00pm ET // 6:00pm PT

    Looking for a quiet night with friends and away from the crazy in your life? You are in luck! We’re having another Young Adult Connections session this Wednesday, September 20th. Join us for a night of fun and relaxation starting at 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#young-adults

    Published: September 18, 2023

    Thursday: Adult Connections

    September 21st at 9:00pm ET // 6:00pm PT

    Do you remember the 21st night of September? Get your Earth Wind and Fire going during our upcoming Adult Connections session! 

    Join us this Thursday, September 21st at 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#adults

    Published: September 18, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: September 18, 2023

    Tuesday, September 26th:
    NOAH Connections: Aging with Albinism    		Thursday, September 28th:
    NOAH Connections: Teens 
    Wednesday, October 4th:
    NOAH Connections: Young Adults    		Thursday, October 5th:​​​​​​​
    NOAH Connections: Adults
    Thursday, October 12th:
    NOAH Connections: Teens     		Wednesday, October 18th:
    NOAH Workshops: Grandparenting a Child with Albinism
    NOAH Connections: Young Adults
    Thursday, October 19th:​​​​​​​
    NOAH Connections: Adults

    National Day of Service and Remembrance

    Today we observe the National Day of Service and Remembrance, in memory of the nearly 3,000 people who lost their lives on September 11, 2001. 

    ​​​​​​​Published: September 11, 2023

    NOAH Night Tickets Available!

    NOAH’s 41st birthday is just around the corner, and we can’t wait to celebrate with YOU!

    Check out our many ticket options (including fun add-ons) and grab yours today:
    www.albinism.org/NOAHNight

    Published: September 11, 2023

    Share Your Skills for NOAH Night!

    NOAH Night is October 15th, and there are multiple chances for PWAs of all ages to share their skills!

    Do you have a unique talent? Submit a video for the NOAH Has Talent! showcase!

    Is writing or visual art more your style? Check out Spiffy’s Creative Arts Contest!

    Submissions for the NOAH Has Talent! Showcase are due September 25th and submissions for Spiffy’s Creative Arts Contest are due October 1st.

    Learn more and submit at:

    www.albinism.org/noahnight

    Published: September 11 2023

    Share Your Back to School Pics!

    It’s September, which means our NOAH students and educators are back to school! Whether your first day was a while ago, or you’ve just started for the year, we invite you to share your back-to-school pics with us on our recent Facebook post.

    Published: September 11, 2023

    NOAH’s Back to School Library!

    Parents & caregivers – we want to hear from YOU! ​​​​​​​

    How do you/your child share info about albinism with their teachers or classmates at the beginning of the school year? Do you/they write a letter, make a presentation, or go a different route?

    Submit your sample letters, presentations, ideas, etc. (including your child’s age/grade, and photos/videos if applicable!) to bts@albinism.org for the chance to be added to our Back to School Library!

    www.albinism.org/bts

    Published: September 11, 2023

    • Did you know that our friends at the Lighthouse Guild offer a monthly tele-support call for parents of kids with albinism? The next call will be held Thursday, September 21st at 8:30pm ET // 5:30pm PT.Learn more: http://albinism.org/wp-content/uploads/2023/08/NOAH.pdf

    • Have you heard about the new movie streaming on Netflix called “Can You See Us?” This coming-of-age drama centers around a young Zambian boy with albinism and is based on a true story. If you’ve watched the film, let us know what you thought on our recent Facebook post. 

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: September 11, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    TONIGHT: PWA Book Club

    September 11th at 9:00pm ET // 6:00pm PT

    Book Club members, join us TONIGHT at 9pm ET // 6pm PT to discuss Remarkably Bright Creatures by Shelby Van Pelt!

    www.albinism.org/NOAH-Connections/#pwa-book-club

    Published: September 11, 2023

    Thursday: Teen Connections

    September 14th at 8:00pm ET // 5:00pm PT

    Make any new friends at school? No fear, you can always make new ones or catch up with your old friends at Teen Connections! 

    Join us this Thursday, September 14th at 8:00 PM ET // 5:00 PM PT.

    www.albinism.org/NOAH-Connections/#teens

    Published: September 11, 2023

    Thursday: Establishing Independence Workshop

    September 14th at 8:30pm ET // 5:30pm PT

    Parents, grandparents, and caregivers, you won’t want to miss our next NOAH Workshop with Sheila Adamo on Thursday, September 14th! In this session, we will discuss common challenges many parents face as a child with albinism gains independence.

    Register by September 12th:
    www.albinism.org/workshops

    Published: September 11, 2023

    Thursday: Teen STEM – Python Tutorial

    September 14th at 9:00pm ET // 6:00pm PT

    Teens, did you join us for Sarah & Derek’s Python tutorial in July? We are excited to share that they will be back to continue sharing their knowledge after our Teen Connections call on September 14th!

    www.albinism.org/NOAH-Connections/#python

    Published: September 11, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: September 11, 2023

    Sunday, September 17th:
    NOAH Connections: Disney Family Trivia    		Tuesday, September 19th:
    NOAH Connections: Parenting without Pigment
    Wednesday, September 20th:
    NOAH Connections: Young Adults    		Thursday, September 21st:​​​​​​​
    NOAH Connections: Adults
    Tuesday, September 26th:
    NOAH Connections: Aging with Albinism    		Thursday, September 28th:
    NOAH Connections: Teens 
    Wednesday, October 4th:
    NOAH Connections: Young Adults    		Thursday, October 5th:​​​​​​​
    NOAH Connections: Adults

    Pop Quiz!

    Do you know what year NOAH Adult Weekend was held in New Orleans??

    Check out this #tbt photo collage from the fun times shared amongst adults with albinism in Crescent City.

    Want to be a part of the memories for Adult Weekend this fall? Register by September 8th to join us in Minneapolis:

    www.albinism.org/adult-weekend

    ​​​​​​​Published: August 28, 2023

    Establishing Independence

    Parents, grandparents, and caregivers, you won’t want to miss our next NOAH Workshop with Sheila Adamo on Thursday, September 14th! In this session, we will discuss common challenges many parents face as a child with albinism gains independence.

    Register by September 12th:
    www.albinism.org/workshops

    Published: August 28, 2023

    Share Your Skills for NOAH Night!

    NOAH Night is October 15th, and there are multiple chances for PWAs of all ages to share their skills!

    Do you have a unique talent? Submit a video for the NOAH Has Talent! showcase!

    Is writing or visual art more your style? Check out Spiffy’s Creative Arts Contest!

    Submissions for the NOAH Has Talent! Showcase are due September 25th and submissions for Spiffy’s Creative Arts Contest are due October 1st.

    Learn more and submit at:

    www.albinism.org/noahnight

    Published: August 28, 2023

    Up Hill Both Ways: Let’s Talk Back to School!

    Parents, grandparents, and caregivers join Kathi Garza, M.Ed, TVI on Wednesday, September 6th to chat about all things “back to school!”

    Register today!
    www.albinism.org/NOAH-Connections/#bts

    Published: August 28, 2023

    Disney Family Trivia!

    Are you a Disney fan? Show off your trivia prowess at Disney Trivia with Certified Child Life Specialist Jocelyn Leworthy on Sunday, September 17th at 7:30pm ET // 4:30pm PT. 

    PWAs of all ages and their families are welcome to join, so sign up today!!
    www.albinism.org/NOAH-Connections/#disney

    Published: August 28, 2023

    • Did you know that our friends at the Lighthouse Guild offer a monthly tele-support call for parents of kids with albinism? The next call will be held Thursday, September 21st at 8:30pm ET // 5:30pm PT.Learn more: http://albinism.org/wp-content/uploads/2023/08/NOAH.pdf

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: August 28, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Thursday: Teen Connections

    August 31st at 8:00pm ET // 5:00pm PT

    Teens, you’re up next! Whether you’re back to school already, or squeezing in as much fun as you can in the last few moments of summer, mark your calendar to join us this Thursday, August 31st at 8pm ET // 5pm PT!

    www.albinism.org/NOAH-Connections/#teens

    Published: August 28, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: August 28, 2023

    Wednesday, September 6th:
    NOAH Connections: Young Adults
    NOAH Connections: Up Hill Both Ways: Let’s Talk Back to School with Kathi Garza    		Thursday, September 7th:​​​​​​​
    NOAH Connections: Adults
    Monday, September 11th:
    NOAH Connections: PWA Book Club    		Thursday, September 14th:
    NOAH Workshops: Parents & Caregivers
    NOAH Connections: Teens
    NOAH Connections: Teens STEM Python Tutorial
    Sunday, September 17th:
    NOAH Connections: Disney Family Trivia    		Tuesday, September 19th:
    NOAH Connections: Parenting without Pigment
    Wednesday, September 20th:
    NOAH Connections: Young Adults    		Thursday, September 21st:​​​​​​​
    NOAH Connections: Adults
    Tuesday, September 26th:
    NOAH Connections: Aging with Albinism

    Adult Weekend 2023

    Thinking about joining us for Adults with Albinism Weekend this fall? Hear from fellow adult PWAs who are looking forward to seeing you in Minneapolis for shenanigans and fun!

    >>Check out the video

    Learn more and register by September 8th:
    www.albinism.org/adult-weekend

    ​​​​​​​Published: August 21, 2023

    Deadline Extended!

    There’s still time to share your perspective for the next issue of Albinism InSight. Check out the Autumn Features, or submit something about daily living, advocacy, technology, or another topic included in every issue.

    Learn more and submit by August 25th: 
    www.albinism.org/ai/call-for-content

    Published: August 21, 2023

    Thank you, USABA!

    This summer, NOAH partnered with the United States Association of Blind Athletes to bring the sport of Goalball to its campers and parents at NOAH Family Summer Camp. Learning Goalball from Team USA Paralympic Goalball athlete Marybai Huking was such a treat!

    Published: August 21, 2023

    Thank You, Camp Donors!

    Join us in sending a big NOAH shout-out to all the businesses that donated to NOAH Family camp this summer. 

    Thank you for your support!

    Published: August 21, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: August 21, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    TONIGHT: Parents of Newly-Diagnosed and Young Children with Albinism Workshop

    August 21st at 8:30pm ET // 5:30pm PT

    Registered Attendees: join Sheila Adamo TONIGHT at 8:30pm ET // 5:30pm PT to be welcomed into a community that will share and learn about adapting to the new role of a parent of a child with albinism. 

    Learn more about other upcoming workshops:
    www.albinism.org/workshops

    www.albinism.org/NOAH-Connections/#teens

    Published: August 21, 2023

    Tuesday: LGBTQ+ and Allies Connections

    August 22nd at 8:30pm ET // 5:30pm PT

    Join Sarah Kane and fellow LGBTQ+ PWAs and allies on Tuesday, August 22nd at 8:30pm ET // 5:30pm PT for our next session of NOAH Connections just for YOU.

    New to the group? This is the perfect chance to join us for the first time!
    www.albinism.org/NOAH-Connections/#lgbtq

    Published: August 21, 2023

    Wednesday: Young Adult Connections

    August 23rd at 9:00pm ET // 6:00pm PT

    Jive talkin’ or stayin’ alive! Got any Saturday Night Fever funkadelic dance moves to share? Share your groove (and get in that workout) this Wednesday, August 23rd at 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#young-adults

    Published: August 21, 2023

    Thursday: Adult Connections

    August 24th at 9:00pm ET // 6:00pm PT

    Once upon a time…

    Whether shooting for the stars or being the king/queen of your domain, share the rest of your story this Thursday, August 24thstarting at 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#adults

    Published: August 21, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: August 21, 2023

    Thursday, August 31st:
    NOAH Connections: Teens    		Wednesday, September 6th:
    NOAH Connections: Young Adults
    Thursday, September 7th:​​​​​​​
    NOAH Connections: Adults    		Monday, September 11th:
    NOAH Connections: PWA Book Club
    Thursday, September 14th:
    NOAH Workshops: Parents & Caregivers
    NOAH Connections: Teens
    NOAH Connections: Teens STEM Python Tutorial    		Wednesday, September 20th:
    NOAH Connections: Young Adults
    Thursday, September 21st:​​​​​​​
    NOAH Connections: Adults    		Tuesday, September 26th:
    NOAH Connections: Aging with Albinism

    Congratulations, Charlotte!

    Join us in congratulating NOAH community member Charlotte H., who was selected to receive a scholarship to Space Camp for Visually-Impaired Students this year. 

    www.albinism.org/space-camp

    ​​​​​​​Published: August 14, 2023

    Last Chance to Register!

    Parents & caregivers of newly-diagnosed or young children with albinism, join Sheila Adamo next Monday, August 21st at 8:30pm ET // 5:30pm PT to be welcomed into a community that will share and learn about adapting to the new role of a parent of a child with albinism. 

    Register by this Saturday, August 19th to reserve your spot!
    www.albinism.org/workshops

    Published: August 14, 2023

    IAAD Event Shout-Outs!

    Join us in sending a special shoutout to #TeamJAK and NI NOAH Walks for NOAH for each hosting fundraising walks in Illinois in honor of International Albinism Awareness Day this June. 

    Both teams’ IAAD walks gathered the community, collected donations, and raised awareness of albinism!

    Thank you, #TeamJAK and NI NOAH Walks for NOAH for your ongoing support of NOAH!

    Published: August 14, 2023

    Memphis Top 10 Hits!

    On the fence about attending Adult Weekend this fall? Check out Kathi Garza’s article from Albinism InSight Winter 2021 to hear more about her Adult Weekend experience in Memphis, and read the list of top ten hits compiled with the help of fellow attendees.

    Read the article.

    Learn more about our plans for Adult Weekend 2023 and register by September 8th:
    www.albinism.org/adult-weekend

    Published: August 14, 2023

    LGBTQ+ and Allies Connections!

    Join Sarah Kane and fellow LGBTQ+ PWAs and allies on Tuesday, August 22nd at 8:30pm ET // 5:30pm PT for our next session of NOAH Connections just for YOU.

    New to the group? This is the perfect chance to join us for the first time!
    www.albinism.org/NOAH-Connections/#lgbtq

    Published: August 14, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: August 14, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Thursday: Teen Connections

    August 17th at 8:00pm ET // 5:00pm PT

    Keep calm and shine on! Summer is coming to a close but that doesn’t mean the sun goes away! Tell us how you are keeping the shining light in your life this Thursday, August 17th at 8:00 PM // 5:00 PM PT.

    www.albinism.org/NOAH-Connections/#teens

    Published: August 14, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: August 14, 2023

    Monday, August 21st:
    NOAH Workshops: Parents & Caregivers    		Tuesday, August 22nd:
    NOAH Connections: LGBTQ+ and Allies
    Wednesday, August 23rd:
    NOAH Connections: Young Adults    		Thursday, August 24th:​​​​​​​
    NOAH Connections: Adults
    Thursday, August 31st:
    NOAH Connections: Teens    		Thursday, September 7th:​​​​​​​
    NOAH Connections: Adults
    Monday, September 11th:
    NOAH Connections: PWA Book Club    		Thursday, September 14th:
    NOAH Workshops: Parents & Caregivers
    NOAH Connections: Teens
    NOAH Connections: Teens STEM Python Tutorial

    NOAH Night Planning Committee!

    NOAH Night is just around the corner, and we need YOUR help to make it a success!

    PWAs & family members, share your ideas on the NOAH Night Planning Committee leading up to the big event on NOAH’s 41st birthday, October 15th!

    Interested in joining? Sign up today:
    https://app.donorview.com/e858q

    ​​​​​​​Published: August 7, 2023

    NOAH Workshop – August 21st!

    Parents & caregivers of newly-diagnosed or young children with albinism, join Sheila Adamo on August 21st at 8:30pm ET // 5:30pm PT to join a community that will share and learn about adapting to the new role of a parent of a child with albinism. 

    Register by August 19th to reserve your spot!
    www.albinism.org/workshops

    Published: August 7, 2023

    Get to Know the NOAH Board: Rapid-Fire Questions!

    You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

    Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

    This week, hear from board members Torey Alford & Elizabeth Drury, and check out our Getting to Know the Board page to see our full collection of board member videos!

    www.albinism.org/board-of-directors/gtk/

    Published: August 7, 2023

    Thank you, Delta Gamma Foundation!

    Thanks to a Delta Gamma Foundation Grant, NOAH was pleased to be able to offer a discounted registration fee to campers with albinism ages 16 and under for this summer’s NOAH Family Summer Camp!

    Thank you, Delta Gamma Foundation!

    Published: August 7, 2023

    National Eye Exam Month!

    Did you know that August is National Eye Exam Month? Doctor recommendations are one of the most common requests we receive, so if you know of an excellent low-vision optometrist or ophthalmologist, share their info on our Recommend a Medical Professional form!

    https://app.donorview.com/XWjm

    Published: August 7, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: August 7, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Wednesday: Young Adult Connections

    August 9th at 9:00pm ET // 6:00pm PT

    Beach crab or hermit crab? Come share how you’ve been spending the summer away. Join us this Wednesday, August 9th at 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#young-adults

    Published: August 7, 2023

    Thursday: Adult Connections

    August 10th at 9:00pm ET // 6:00pm PT

    How are you keeping cool? A splash in the pool or a nice refreshing drink? Turn up the laughs not the heat during our next session, this Thursday, August 10th at 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#adults

    Published: August 7, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: August 7, 2023

    Thursday, August 17th:
    NOAH Connections: Teens    		Monday, August 21st:
    NOAH Workshops: Parents & Caregivers
    Wednesday, August 23rd:
    NOAH Connections: Young Adults    		Thursday, August 24th:​​​​​​​
    NOAH Connections: Adults
    Thursday, August 31st:
    NOAH Connections: Teens    		Monday, September 11th:
    NOAH Connections: PWA Book Club
    Thursday, September 14th:
    NOAH Workshops: Parents & Caregivers

    Book Club is Back!

    NOAH’s PWA Book Club is back in action, and we are currently reading Remarkably Bright Creatures by Shelby Van Pelt.

    Grab a copy and join us on Monday, September 11th at 9pm ET // 6pm PT to discuss!

    Sign up today and start reading!
    www.albinism.org/NOAH-Connections/#pwa-book-club

    ​​​​​​​Published: July 31, 2023

    Camp Highlight!

    Did you miss Casey & Esther’s NOAH Camp Takeover earlier this month?

    Worry not! We’ve added all the camp fun as a highlight on our Instagram profile!

    Check it out: www.instagram.com/noahalbinism

    Published: July 31, 2023

    NOAH Research Program – Spotlight!

    Join us in congratulating Principal Investigators Prof. Dr. Michael B. Hoffmann and PD Dr. Wolf Harmening, who are Established Researcher Program Grant Awardees. 

    Drs. Hoffmann & Harmening and their team will utilize high-resolution multimodal imaging to understand the maldevelopment of foveal and binocular vision in albinism.

    Learn more about the NOAH Research Program and 2023 grant awardees:

    www.albinism.org/research

    Published: July 31, 2023

    Get to Know the NOAH Board: Rapid-Fire Questions!

    You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

    Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

    This week, hear from board members Donna Appell & Kris Baker and stay tuned for more videos!

    www.albinism.org/board-of-directors/gtk/

    Published: July 31, 2023

    Adult Weekend 2023!

    After some educational sessions on Saturday, we’ll head out to explore the Mall of America for the afternoon, complete with a round of golf at Rock of Ages Blacklight Mini Golf included in your registration fee!

    Learn more about our Adult Weekend itinerary & register today:
    www.albinism.org/adult-weekend

    Published: July 31, 2023

    • Happy 33rd Anniversary, ADA! 33 years ago on July 26, 1990, the Americans with Disabilities Act (ADA) was signed into law. This historic civil rights law protects the rights of people with disabilities. Learn more about the ADA: https://adata.org/ada-timeline

    • Rare Artist Scholarship Open for Entries: Submissions are open for the Rare Artist Scholarship now through August 31st. This year, a new medium has been added – poetry! Learn more about submissions guidelines: https://rareartist.awardsplatform.com/

    • Toronto, Ontario Casting Call: Jigsaw Casting seeks Blind or Partially sighted Individuals ages 18-65 for a Benefits Campaign in Toronto. Applications are due August 1st at 10am ET. Learn more: https://projectbenefits.castingcrane.com/

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: July 31, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Tuesday: Parenting without Pigment – Prospective Parents

    August 1st at 9:00pm ET // 6:00pm PT

    Let’s taco ‘bout Parenting without Pigment! 

    It’s Taco Tuesday! Come share a meal with us (a taco, if you’d like!) TOMORROW at 9pm ET // 6pm PT. It is time for prospective parents to join us to chat about parenting. If you have any questions, we are here to answer them. 

    Prospective parents & current parents with albinism are welcome to join! Sign up today:
    www.albinism.org/NOAH-Connections/#pwp

    Published: July 31, 2023

    Thursday: Teen Connections

    August 3rd at 8:00pm ET // 5:00pm PT

    Keeping cool this summer?

    Share your style and how you stay chill in this heat this Thursday, August 3rd at 8:00 PM ET // 5:00PM PT. 

    www.albinism.org/NOAH-Connections/#teens

    Published: July 31, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: July 31, 2023

    Wednesday, August 9th:
    NOAH Connections: Young Adults    		Thursday, August 10th:​​​​​​​
    NOAH Connections: Adults
    Thursday, August 17th:
    NOAH Connections: Teens    		Monday, August 21st:
    NOAH Workshops: Parents & Caregivers
    Monday, September 11th:
    NOAH Connections: PWA Book Club    		Thursday, September 14th:
    NOAH Workshops: Parents & Caregivers

    NOAH Night Planning Committee

    NOAH Night is just around the corner, and we need YOUR help to make it a success!

    PWAs & family members, share your ideas on the NOAH Night Planning Committee leading up to the big event on NOAH’s 41st birthday, October 15th!

    Interested in joining? Sign up today:

    https://app.donorview.com/e858q

    ​​​​​​​Published: July 24, 2023

    Thank you, Alison!

    When author Alison Nenon released her children’s book, Alfie Sees Love, about a rhinoceros with albinism, she pledged to donate $1 to NOAH for each book sold. One year later, 1,000 copies of Alfie Sees Love have been purchased, and Alison has donated $1,000 in proceeds to NOAH.

    Congratulations, Alison, on the incredible success of your book, and thank you for using part of the proceeds to support NOAH!

    https://www.alfieseeslove.com/

    Published: July 24, 2023

    NOAH Research Program – Spotlight!

    Join us in congratulating Principal Investigator Dr. Alexandra Rebsam, Ph.D., who is an Established Researcher Program Grant Awardee. 

    Dr. Rebsam and team aim to find the mechanisms in albinism leading to the altered retinal development, downstream of tyrosinase, known to be at the origin of OCA1.

    Learn more about the NOAH Research Program and 2023 grant awardees:

    www.albinism.org/research

    Published: July 24, 2023

    NOAH Workshop:
    ​​​​​​​August 21st!

    Parents & caregivers of newly-diagnosed or young children with albinism, you won’t want to miss our next workshop!

    Join Sheila Adamo on August 21st at 8:30pm ET // 5:30pm PT to join a community that will share and learn about adapting to the new role of a parent of a child with albinism. 

    Register by August 19th to reserve your spot!
    www.albinism.org/workshops

    Published: July 24, 2023

    Get to Know the NOAH Board: Rapid-Fire Questions!

    You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

    Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

    This week, hear from board members Donté Mickens & Emma Brinkley and stay tuned for more videos!

    www.albinism.org/board-of-directors/gtk/

    Published: July 24, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: July 24, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Wednesday: Young Adults

    July 26th at 9:00pm ET // 6:00pm PT

    Have you taken a zen moment for yourself to stop and smell the flowers?

    Tell us about your latest tranquil moments during our next Young Adult Connections call this Wednesday, July 26th at 9:00pm ET // 6:00pm PT.

    www.albinism.org/NOAH-Connections/#young-adults

    Published: July 24, 2023

    Thursday: Kids & Teens – Ice Cream in a Bag

    July 27th at 9:00pm ET // 6:00pm PT

    Kids & teens, you’re invited to a fun and simple summer activity with your NOAH friends! Join Certified Child Life Specialist Jocelyn Leworthy to make ice cream in a bag on Thursday, July 27th at 7:30pm ET // 4:30pm PT.

    Kids & teens of all ages are welcome to join, so sign up today:
    www.albinism.org/NOAH-Connections/#ice-cream

    Published: July 24, 2023

    Thursday: Adult Connections

    July 27th at 9:00pm ET // 6:00pm PT

    Beat the heat with some cool treats, including the treat of conversation. You bring the ice cream and we’ll bring the fun. Join us this Thursday, July 27th at 9:00pm ET // 6:00pm PT.

    www.albinism.org/NOAH-Connections/#adults

    Published: July 24, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: July 24, 2023

    Tuesday, August 1st:
    NOAH Connections: Parenting without Pigment – Prospective Parents    		Thursday, August 3rd:
    NOAH Connections: Teens
    Wednesday, August 9th:
    NOAH Connections: Young Adults    		Thursday, August 10th:​​​​​​​
    NOAH Connections: Adults
    Thursday, August 17th:
    NOAH Connections: Teens    		Monday, August 21st:
    NOAH Workshops: Parents & Caregivers
    Monday, September 11th:
    NOAH Connections: PWA Book Club    		Thursday, September 14th:
    NOAH Workshops: Parents & Caregivers

    Adult PWAs – Will We See YOU in Minneapolis?

    Join us in Minneapolis, MN, to make memories and forge the lifelong friendships the NOAH community is known for at Adult Weekend, Sept. 29 – Oct. 1, 2023.

    Check out our itinerary and register by September 8th:
    www.albinism.org/adult-weekend

    ​​​​​​​Published: July 17, 2023

    NOAH Night Planning Committee

    NOAH Night is just around the corner, and we need YOUR help to make it a success!

    PWAs & family members, share your ideas on the NOAH Night Planning Committee leading up to the big event on NOAH’s 41st birthday, October 15th!

    Interested in joining? Sign up today:

    https://app.donorview.com/e858q

    Published: July 17, 2023

    NOAH Research Program – Spotlight!

    Join us in congratulating Principal Investigator Dr. Jay Self, BM, FRCOphth, Ph.D., and Senior Post-doc Researcher Dr. Eloise Keeling, BSc, Ph.D., who are Established Researcher Program Grant Awardees. 

    Dr. Self and his team are utilizing high-throughput drug screening to identify potential new targets for treatment of albinism symptoms.

    ​​​​​​​Learn more about the NOAH Research Program and 2023 grant awardees: www.albinism.org/research

    Published: July 17, 2023

    Camp Takeovers!

    NOAH Family Summer Camp started this Saturday, and we have Casey & Esther sharing an inside look at what the campers are up to.

    Check out an inside look at NOAH Camp on NOAH’s social media story:

    www.instagram.com/noahalbinism

    Published: July 17, 2023

    Get to Know the NOAH Board: Rapid-Fire Questions!

    You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

    Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

    This week, hear from board members Brandi Bogan & Sonja Harris and stay tuned for more videos!

    www.albinism.org/board-of-directors/gtk/

    Published: July 17, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: July 17, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Wednesday: LGBTQ+ and Allies Connections

    July 19th at 8:30pm ET // 5:30pm PT

    LGBTQ+ PWAs and allies, see you Wednesday! 

    Join us this Wednesday at 8:30pm ET // 5:30pm PT to connect and chat with host Sarah Kane & fellow community members. This is the perfect chance to return to the group or join us for the first time!

    www.albinism.org/NOAH-Connections/#lgbtq

    Published: July 17, 2023

    Thursday: Teen Connections

    July 20th at 8:00pm ET // 5:00pm PT

    Moooo-ve over latest tik-tok challenge, we have a new obsession! It’s called Teen Connections! 

    Don’t worry about the FOMO, you can check it out this Thursday, July 20th at 8:00pm ET // 5:00pm PT

    www.albinism.org/NOAH-Connections/#teens

    Published: July 17, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: July 17, 2023

    Wednesday, July 26th:
    NOAH Connections: Young Adults    		Thursday, July 27th:
    NOAH Connections: Kids & Teens – Ice Cream in a Bag
    NOAH Connections: Adults
    Tuesday, August 1st:
    NOAH Connections: Parenting without Pigment – Prospective Parents    		Thursday, August 3rd:
    NOAH Connections: Teens
    Wednesday, August 9th:
    NOAH Connections: Young Adults    		Thursday, August 10th:​​​​​​​
    NOAH Connections: Adults
    Monday, August 21st:
    NOAH Workshops: Parents & Caregivers    		Monday, September 11th:
    NOAH Connections: PWA Book Club
    Thursday, September 14th:
    NOAH Workshops: Parents & Caregivers

    NOAH Night Planning Committee

    NOAH Night is just around the corner, and we need YOUR help to make it a success!

    PWAs & family members, share your ideas on the NOAH Night Planning Committee leading up to the big event on NOAH’s 41st birthday, October 15th!

    Interested in joining? Sign up today:

    https://app.donorview.com/e858q

    ​​​​​​​Published: July 10, 2023

    NOAH Research Program – Spotlight!

    Join us in congratulating Principal Investigator Jonathan Hale Zippin, M.D., Ph. D., F.A.A.D., who is an Established Researcher Program Grant Awardee. 

    Dr. Zippin and team are investigating “soluble adenylyl cyclase inhibitors to improve ocular pigmentation.”

    Learn more about the NOAH Research Program and 2023 grant awardees: www.albinism.org/research

    Published: July 10, 2023

    Adult Weekend Activities Spotlight!

    First up on the Adults with Albinism Weekend 2023 itinerary – join us for tasty food with even better company. Friday night, we’ll have dinner at Cowboy Jack’s, included in your registration fee!

    Learn more about our itinerary & register today:
    www.albinism.org/adult-weekend

    Published: July 10, 2023

    Camp Takeovers!

    NOAH Family Summer Camp start this Saturday, and we have some fun takeovers lined up to give you an inside look.

    First, check out Executive Director Karen Bly’s travel day on Thursday. Next, get ready for a peek into NOAH camp with Casey and Esther starting this Saturday.

    Check out what they are up to on NOAH’s social media story:

    www.instagram.com/noahalbinism

    Published: July 10, 2023

    Get to Know the NOAH Board: Rapid-Fire Questions!

    You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

    Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

    This week, hear from board members Andrew Sartorius & Elliot Ostrove and stay tuned for more videos!

    www.albinism.org/board-of-directors/gtk/

    Published: July 10, 2023

    Congratulations, Lee!

    Have you been following along with NOAH Co-Founder Lee Laughlin’s “Miles for NOAH” fundraiser challenge? Join us in congratulating Lee as she has officially reached her stretch fundraiser and mileage goal! Lee has been working tirelessly for nearly two months to reach her goal, and we can’t thank her enough for her continued support.

    ​​​​​​​​​​​​​​Feeling inspired by Lee? We are! Check out her fundraiser and start your own today: 

    Lee’s Miles for NOAH

    Published: July 10, 2023

    FUNdraising Advice from Rodney

    Rodney Ignacio has been hosting the SoCal NOAHs Bowl-a-Thon since 2014, and he shared some of his insight as a veteran event host. Check out what he has to say in our recent Facebook post, and join us in sending a special shoutout to Rodney and the SoCal NOAHs team for their ongoing support!​​​​​​​

    It’s always a great time to host a FUNdraiser…learn more:
    www.albinism.org/fun

    Published: July 10, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: July 10, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    TONIGHT: PWA Book Club

    July 10th at 9:00pm ET // 6:00pm PT

    Book Club is Back!

    Are you an adult PWA who loves to read? Join us for the re-launching of the NOAH Book Club TODAY at 9pm ET // 6pm PT! Bring your favorite beverage or snack and join us for our book club kick-off party, where we will be announcing the first book we will be reading and getting to know each other.

    www.albinism.org/NOAH-connections/#pwa-book-club

    Published: July 10, 2023

    Wednesday: Young Adult Connections

    July 12th at 9:00pm ET // 6:00pm PT

    Has your summer been out of this world, or are you looking forward to a future exploration? We wanna hear the deets 😉 

    Tell us all about it this Wednesday, July 12th at 9:00pm ET // 6:00pm PT.

    www.albinism.org/NOAH-Connections/#young-adults

    Published: July 10, 2023

    Thursday: Adult Connections

    July 13th at 9:00pm ET // 6:00pm PT

    Let’s celebrate the sun, fun and everyone at our summer soiree!

    Join us for another great session of Adult Connections this Thursday, July 13th at 9:00pm ET// 6:00pm PT.

    www.albinism.org/NOAH-Connections/#adults

    Published: July 10, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: July 10, 2023

    Wednesday, July 19th:
    NOAH Connections: LGBTQ+ and Allies    		Thursday, July 20th:
    NOAH Connections: Teens
    Wednesday, July 26th:
    NOAH Connections: Young Adults    		Thursday, July 27th:
    NOAH Connections: Adults

    NOAH’s Strategic Priorities

    Over the next three years, NOAH’s Board of Directors, staff, volunteers, and community will be working towards fulfilling our mission by concentrating on four strategic priorities.

    Learn more: www.albinism.org/strategic

    ​​​​​​​Published: July 3, 2023

    NOAH Research Program Announces 2023 Grant Recipients

    “The National Organization for Albinism and Hypopigmentation (NOAH) is pleased to announce the award of research grants totaling $125,000, presented to four institutions conducting albinism research…”

    Read the full press release:

    www.albinism.org/research/pr

    Published: July 3, 2023

    Get to Know the NOAH Board: Rapid-Fire Questions!

    You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

    Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

    This week, hear from board member Kayla Hamlin and stay tuned for more videos!

    www.albinism.org/board-of-directors/gtk/

    Published: July 3, 2023

    Lee’s Miles for NOAH!

    Have you been following along with NOAH Co-Founder Lee Laughlin’s “Miles for NOAH” fundraiser challenge? A few weeks ago, Lee reached her stretch goal for donations, raising $1,000 for NOAH, and she shared last week that she has less than 20 miles to go. Follow along as Lee completes 100 miles by July 13th!​​​​​​​

    Feeling inspired by Lee? We are! Check out her fundraiser and start your own today: 

    Lee’s Miles for NOAH

    Published: July 3, 2023

    Save the Date – NOAH Night 2023!

    NOAH’s 41st birthday is just around the corner, and we can’t wait to gather the albinism community to celebrate with our 3rd annual NOAH Night. Mark your calendars for October 15th, and stay tuned for more details. 

    www.albinism.org/noahnight

    Published: July 3, 2023

    Ice Cream in a Bag!

    Kids & teens, you’re invited to a fun and simple summer activity with your NOAH friends! Join Certified Child Life Specialist Jocelyn Leworthy to make ice cream in a bag on Thursday, July 27th at 7:30pm ET // 4:30pm PT. 

    Kids & teens of all ages are welcome to join, so sign up today:

    www.albinism.org/NOAH-Connections/#ice-cream

    Published: July 3, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: July 3, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Thursday: Teen Connections

    July 6th at 8:00pm ET // 5:00pm PT

    Discover any great summer themed tik toks, or create new ones during Independence Day?

    We want to hear about it this Thursday, July 6th at our Teen Connections call, starting at 8:00pm ET // 5:00pm PT.

    www.albinism.org/NOAH-Connections/#teens

    Published: July 3, 2023

    Thursday: Teen STEM Python Tutorial

    July 6th at 9:00pm ET // 6:00pm PT

    Teens with albinism – are you interested in STEM? 

    Join Sarah Kane and Derek Schindelman for a Python programming tutorial following our Teen Connections call on Thursday, July 6th! This will be a basic/intro-level tutorial.

    We hope to see you there!
    www.albinism.org/NOAH-Connections/#python

    Published: July 3, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: July 3, 2023

    Monday, July 10th:
    NOAH Connections: PWA Book Club    		Wednesday, July 12th:
    NOAH Connections: Young Adults
    Thursday, July 13th:
    NOAH Connections: Adults    		Wednesday, July 19th:
    NOAH Connections: LGBTQ+ and Allies
    Thursday, July 20th:
    NOAH Connections: Teens    		Wednesday, July 26th:
    NOAH Connections: Young Adults
    Thursday, July 27th:
    NOAH Connections: Adults

    NOAH 2023 iPad Assistance Program!

    The 2023 NOAH iPad Assistance Program provides PWAs who do not have access to technology the opportunity to receive an iPad. 

    Learn more and apply today at www.albinism.org/ipad

    This program is made possible by the support of the Parker Hannifin Foundation.

    ​​​​​​​Published: June 26, 2023

    Have You Registered for Adult Weekend?

    Adults with albinism – join us in Minneapolis, MN to make memories and forge the lifelong friendships the NOAH community is known for September 29 – October 1, 2023.

    Check out our itinerary and register by September 8th:
    www.albinism.org/adult-weekend

    Published: June 26, 2023

    Get to Know the NOAH Board: Rapid-Fire Questions!

    You’ve heard from the NOAH Board of Directors in their “Getting to Know the Board” interviews. Now it’s time for a little more fun! 

    Do the members of our board prefer coffee or tea? What is their favorite ice cream flavor?

    This week, hear from board members Rosalind Isom & Mine Nisanci Garlan, and stay tuned for more videos!

    www.albinism.org/board-of-directors/gtk/

    Published: June 26, 2023

    Lee’s Miles for NOAH!

    Lee’s Miles for NOAH!

    Have you been following along with NOAH Co-Founder Lee Laughlin’s “Miles for NOAH” fundraiser challenge? A few weeks ago, Lee reached her stretch goal for donations, raising $1,000 for NOAH, and she shared last week that she has officially recorded 75 miles. Follow along as Lee completes her final 25 miles by July 13th!

    Feeling inspired by Lee? We are! Check out her fundraiser and start your own today: 

    Lee’s Miles for NOAH

    Published: June 26, 2023

    IAAD Fundraiser Shout-Out: Diandra & Jennifer!

    Diandra Forrest & Jennifer Rhodes presented An International Albinism Awareness Celebration with a War of Colors film screening & trivia night hosted by Charles Washington. Their event gathered around 50 people in the Brooklyn, NY area and raised over $1,000 towards NOAHCon 2024 personal grants.

    Congratulations, Diandra & Jennifer, and thank you for supporting NOAH!

    Published: June 26, 2023

    Teens with Albinism – Are You Interested in STEM?

    Join Sarah Kane and Derek Schindelman for a Python programming tutorial following our Teen Connections call on Thursday, July 6th! This will be a basic/intro-level tutorial.

    We hope to see you there!
    www.albinism.org/NOAH-Connections/#python

    Published: June 26, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: June 26, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    • NOAH community member, Tikia Kidd, arranged one of two walks held in Illinois for International Albinism Awareness Day, and her event was featured in the local news!https://www.hfchronicle.com/2023/06/15/residents-unite-in-patriots-park-for-second-annual-walk-to-raise-albinism-awareness/

    • On June 3, NOAH Camp Director Tricia Thomas and NOAH Co-founder Lee Laughlin attended the ribbon-cutting ceremony for the new pavilion at Lions Camp Pride in New Durham, New Hampshire. LCP has been home to NOAH family camp since 2013.The new pavilion was a three-quarter of a million dollar project spearheaded by the Lions Camp Pride Board of Directors, and funded by a mix of donations and federal grants. Congratulations, Lions Camp Pride! We can’t wait to use the new pavilion at this summer’s NOAH Family Camp. https://www.facebook.com/photo?fbid=650435740459865&set=a.361146106055498

      ​​​​​​​
    • When NOAH community member Ainslee Jones was brainstorming ideas for her Girl Scout Silver Award Project, NOAH immediately came to mind. Inspired by the New Parent Toolkit her family received when she was diagnosed with albinism as a baby, Ainslee decided to collect sensory toys and books to donate to NOAH’s New Parent Program. Learn more about Ainslee’s project: www.albinism.org/ainslee/​​​​​​​

    Tuesday: Parenting without Pigment

    June 27th at 9:00pm ET // 6:00pm PT

    Parents without pigment, join Robin France and fellow PWA parents TOMORROW at 9pm ET // 6pm PTto discuss balancing kids and professional life!

    Interested in joining? Sign up now!
    www.albinism.org/NOAH-Connections/#pwp

    Published: June 26, 2023

    Wednesday: Young Adult Connections

    June 28th at 9:00pm ET // 6:00pm PT

    What’s the one thing you need to do before July comes? If you answered join a Young Adult Connections session you’d be correct! 

    Don’t miss the chance to connect before the summer takes off. Check it out this Wednesday, June 28th at 9:00pm ET // 6:00pm PT.

    www.albinism.org/NOAH-Connections/#young-adults 

    Published: June 26, 2023

    Thursday: Adult Connections

    June 29th at 9:00pm ET // 6:00pm PT

    What are your plans for the summer? Going somewhere or staying home and avoiding the checkbook? Join our next Adult Connections session and share all the wonderful ideas you have planned, or ideas you would have planned if you didn’t have to repair something. Check it out, this Thursday, June 29th at 9:00pm ET // 6:00pm PT.

    www.albinism.org/NOAH-Connections/#adults

    Published: June 26, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: June 26, 2023

    Thursday, July 6th:
    NOAH Connections: Teens
    NOAH Connections: Teens STEM – Python Tutorial    		Monday, July 10th:
    NOAH Connections: PWA Book Club
    Wednesday, July 12th:
    NOAH Connections: Young Adults    		Thursday, July 13th:
    NOAH Connections: Adults
    Wednesday, July 19th:
    NOAH Connections: LGBTQ+ and Allies    		Thursday, July 20th:
    NOAH Connections: Teens
    Wednesday, July 26th:
    NOAH Connections: Young Adults    		Thursday, July 27th:
    NOAH Connections: Adults

    Juneteenth

    “Juneteenth marks our country’s second independence day.”

    On this day commemorating the end of slavery in the US, NOAH celebrates Black individuals’ freedom, accomplishments, and contributions to our NOAH community. 

    https://nmaahc.si.edu/blog-post/historical-legacy-juneteenth

    ​​​​​​​Published: June 19, 2023

    Space Camp 2023!

    NOAH is pleased to offer one tuition scholarship for a student with albinism in our community to attend SCIVIS 2023.
    To apply, complete the Space Camp Scholarship Application Packet in full and return to NOAH by July 22, 2023. 

    www.albinism.org/space-camp

    Published: June 19, 2023

    Lee’s Miles for NOAH!

    Have you been following along with NOAH Co-Founder Lee Laughlin’s “Miles for NOAH” fundraiser challenge? As of International Albinism Awareness Day last Tuesday, Lee has logged over 67 miles and reached her stretch goal for donations, raising $1,000 for NOAH! 

    Feeling inspired by Lee? We are! Check out her fundraiser and start your own today: 

    Lee’s Miles for NOAH

    Published: June 19, 2023

    Get to Know the NOAH Board!

    NOAH’s Board of Directors plays a crucial role in furthering our organization’s mission, and we’re excited to help the community get to know new and returning board members. 

    This week, hear from Torey Alford & Elizabeth Drury, and stay tuned for more videos!

    Published: June 19, 2023

    Looking to Share a Room at Adult Weekend?

    If you’re interested in sharing a room to make Adult Weekend more affordable, email info@albinism.orgto be placed on the room share contact list!

    ​​​​​​​

    NOAH will facilitate introductions between individuals on the list (but is not providing roommate matching services).

    Published: June 19, 2023

    Book Club is Back!

    Are you an adult PWA who loves to read? Join us for the re-launching of the NOAH Book Club on Monday, July 10th at 9pm ET // 6pm PT! Bring your favorite beverage or snack and join us for our book club kick-off party, where we will be announcing the first book we will be reading and getting to know each other.

    www.albinism.org/NOAH-connections/#pwa-book-club

    Published: June 19, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: June 19, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Tuesday: Aging with Albinism

    June 20th at 5:00pm ET // 3:00pm PT

    Older PWAs, you’re invited to a NOAH Connections session just for you!

    Join June Waugh and friends TOMORROW at 5pm ET // 2pm PTfor connections and great conversation.

    New to the group? Sign up today!
    www.albinism.org/NOAH-Connections/#aging

    Published: June 19, 2023

    Thursday: Teen Connections

    June 22nd at 8:00pm ET // 5:00pm PT

    Wrapping up another year of school? Planning out your summer vacation? Whether you are taking a moment to have fun or working hard to save up, join us at our Teen Connections session and tell us all about it! 

    See you this Thursday, June 22nd at 8:00pm ET // 5:00pm PT!

    www.albinism.org/NOAH-Connections/#teens

    Published: June 19, 2023

    Sunday: PWAs in STEM Fields

    June 25th at 5:00pm ET // 2:00pm PT

    Calling All PWAs in STEM!

    Join Sarah Kane & Derek Schindelman for social time with fellow PWAs in the STEM Fields this Sunday, June 25th at 5pm ET // 2pm PT. We can’t wait to see you there!

    www.albinism.org/NOAH-Connections/#STEM

    Published: June 19, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: June 19, 2023

    Tuesday, June 27th:
    NOAH Connections: Parenting without Pigment    		Wednesday, June 28th:
    NOAH Connections: Young Adults
    Thursday, June 29th:
    NOAH Connections: Adults    		Thursday, July 6th:
    NOAH Connections: Teens
    NOAH Connections: Teens STEM – Python Tutorial
    Monday, July 10th:
    NOAH Connections: PWA Book Club    		Wednesday, July 12th:
    NOAH Connections: Young Adults
    Thursday, July 13th:
    NOAH Connections: Adults    		Wednesday, July 19th:
    NOAH Connections: LGBTQ+ and Allies
    Thursday, July 20th:
    NOAH Connections: Teens

    “Inclusion is Strength because _____”

    In honor of International Albinism Awareness Day, we are asking our community about the importance of inclusion. 

    Check out what some NOAH teens and Jayana and her mom, Hershula have to say, then share your ideas! 

    Send us a video, photo, or written submission filling in the blank: “Inclusion is Strength because ________.”

    www.albinism.org/IAAD

    ​​​​​​​Published: June 12, 2023

    Adult Weekend – Register Today!

    We are excited to announce that registration for Adults with Albinism Weekend 2023 is now open! Join us to make memories and forge the lifelong friendships the NOAH community is known for.

    Check out our itinerary and register by September 8th:

    www.albinism.org/adult-weekend

    Published: June 12, 2023

    Congratulations, Ashleigh!

    NOAH is delighted to announce that Ashleigh Rogers has been awarded the 2023 Michael J. McGowan Leadership Scholarship Award.

    Ashleigh will attend Lebanon Valley College, where she will pursue a degree in Actuarial Science with a minor in Economics. 

    Learn more about Ashleigh: www.albinism.org/leadership23

    Published: June 12, 2023

    Get to Know the NOAH Board!

    NOAH’s Board of Directors plays a crucial role in furthering our organization’s mission, and we’re excited to help the community get to know new and returning board members in the coming weeks. 

    This week, hear from Donna Appell and Kris Baker, and stay tuned to get to know more NOAH Board members!

    Published: June 12, 2023

    Lee’s Miles for NOAH!

    Have you been following along with NOAH Co-Founder Lee Laughlin’s “Miles for NOAH” fundraiser challenge? With over 50 miles logged, Lee is well on her way to reaching her goal, but there’s still time to support her fundraiser or create your own!

    Are you up for the challenge?

    Check out Lee’s progress & start your fundraiser today:

    Lee’s Miles for NOAH

    Published: June 12, 2023

    Spring for NOAH Shout-Out: Neylan’s Poppers!

    The Neylan’s Poppers team held an online popcorn fundraiser and raised over $150 for NOAH!

    Thank you, Neylan’s Poppers team, for your continued dedication to NOAH!

    Feeling inspired? We are!!
    Start YOUR fundraising page today at: www.albinism.org/fun

    Published: June 12, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: June 12, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Wednesday: Young Adult Connections

    June 14th at 9:00pm ET // 6:00pm PT

    Young adults with albinism – brighten up your day and week with a night of great conversation. Join us Wednesday, June 14th at 9:00pm ET / 6:00pm PT.

    www.albinism.org/NOAH-Connections/#young-adults

    Published: June 12, 2023

    Thursday: Adult Connections

    June 15th at 9:00pm ET // 6:00pm PT

    Like paintings, conversations start with a fresh canvas. Create new beginnings or add color to the existing relationships this Thursday, June 15th at 9:00pm ET // 6:00pm PT.

    www.albinism.org/NOAH-Connections/#adults

    Published: June 12, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: June 12, 2023

    Tuesday, June 20th:
    NOAH Connections: Aging with Albinism    		Thursday, June 22nd:
    NOAH Connections: Teens
    Tuesday, June 27th:
    NOAH Connections: Parenting without Pigment    		Wednesday, June 28th:
    NOAH Connections: Young Adults
    Thursday, June 29th:
    NOAH Connections: Adults    		Thursday, July 6th:
    NOAH Connections: Teens

    Upcoming Events – IAAD!

    Did you know that we have four NOAH community events on the calendar to celebrate International Albinism Awareness Day?! 

    IAAD is the perfect time to host an event that gathers your community, raises awareness, & supports NOAH. 

    Check out upcoming events and learn more about IAAD at: www.albinism.org/IAAD

    ​​​​​​​Published: June 5, 2023

    Announcing the NOAH 2023 iPad Assistance Program!

    The 2023 NOAH iPad Assistance Program provides PWAs who do not have access to technology the opportunity to receive an iPad.

    Learn more and apply today at www.albinism.org/ipad

    This program is made possible by the support of the Parker Hannifin Foundation.

    Published: June 5, 2023

    Announcing ~ Eye Spy for NOAH Winner!

    We are excited to announce the winner of our Eye Spy for NOAH Scavenger Hunt – Ian!

    Congratulations, Ian! 

    Published: June 5, 2023

    Get to Know the NOAH Board!

    NOAH’s Board of Directors plays a crucial role in furthering our organization’s mission, and we’re excited to help the community get to know new and returning board members in the coming weeks. 

    This week, hear from Brandi Bogan, Sonja Harris, Donté Mickens, and Emma Brinkley, and stay tuned to get to know more NOAH Board members!

    Published: June 5, 2023

    Lee’s Miles for NOAH!

    NOAH Co-Founder, Lee Laughlin, is amidst a two-month “Miles for NOAH” fundraiser, and she’s challenging you to join her by creating your own Facebook fundraiser!

    Are you up for the challenge?

    Check out Lee’s progress & start your fundraiser today:

    Lee’s Miles for NOAH

    Published: June 5, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: June 5, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Wednesday: LGBTQ+ and Allies Connections

    June 7th at 9:00pm ET // 6:00pm PT

    LGBTQ+ PWAs and allies, kick off pride month with a session of NOAH Connections just for you! Join us this Wednesday, June 7th at 9pm ET // 6pm PT to connect and chat with fellow community members.

    New to the group? Sign up today!
    www.albinism.org/NOAH-Connections/#lgbtq

    Published: June 5, 2023

    Thursday: Teen Connections

    June 8th at 8:00pm ET // 5:00pm PT

    Finals approaching? Need a break? Take time out this Thursday and join friends for a fun and relaxing chat this Thursday, June 8th @ 8:00pm ET // 5:00pm PT.

    www.albinism.org/NOAH-Connections/#teens

    Published: June 5, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: June 5, 2023

    Wednesday, June 14th:
    NOAH Connections: Young Adults    		Thursday, June 15th:
    NOAH Connections: Adults
    Tuesday, June 20th:
    NOAH Connections: Aging with Albinism    		Thursday, June 22nd:
    NOAH Connections: Teens
    Tuesday, June 27th:
    NOAH Connections: Parenting without Pigment    		Wednesday, June 28th:
    NOAH Connections: Young Adults
    Thursday, June 29th:
    NOAH Connections: Adults

    Join Spiffy’s Team!

    International Albinism Awareness Day is just under a month away, and Spiffy wants YOU to join his team and host a walk. Hosting a walk is a fun and easy way to bring together your community, raise awareness, and raise funds for NOAH.

    Join Spiffy’s Team today: https://app.donorview.com/6YJQO
    (click “Be a Fundraiser,” then select “Spiffy’s Team” under the Join a Fundraising Team dropdown)

    ​​​​​​​Published: May 22, 2023

    Get to Know the NOAH Board – Andrew Sartorius & Elliot Ostrove!

    NOAH’s Board of Directors plays a crucial role in furthering our organization’s mission, and we’re excited to help the community get to know new and returning board members in the coming weeks. 

    This week, hear from Andrew Sartorius & Elliot Ostrove, and stay tuned to get to know more NOAH Board members!

    Published: May 22, 2023

    Thanks for Playing!

    Last week, we held our Eye Spy for NOAH Scavenger Hunt on the Goosechase app, and we received many awesome submissions from the scavenger hunt missions.

    Thank you to everyone who joined us for this fun NOAH-themed scavenger hunt!

    Stay tuned – we’ll be announcing the winner later this week.

    Published: May 22, 2023

    Albinism & the Eye

    Did you miss our Parent & Grandparent Connections session, Albinism & the Eye?

    Good news – the recording is now available in our NOAH Connections session library!

    Check out this informative presentation by Rick Thompson, OD, FAAO at: albinism.org/vimeo/#connections

    Published: May 22, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: May 22, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Tuesday: Aging with Albinism

    May 23rd at 5:00pm ET // 2:00pm PT

    Older PWAs, you’re invited to a NOAH Connections session just for you!

    Join June Waugh and friends on Tuesday, May 23rd at 5pm ET // 2pm PT for connections and great conversation.

    New to the group? Sign up today!
    www.albinism.org/NOAH-Connections/#aging

    Published: May 22, 2023

    Tuesday: Parenting without Pigment

    May 23rd at 9:00pm ET // 6:00pm PT

    Mealtime Mayhem! 

    Parents without Pigment – join Marleena Barber and fellow PWA parents this Tuesday, May 23rd at 9pm ET // 6pm PT to chat about meal prep for kids. Feel free to bring a recipe to share, or just join in for friendship and great conversation!

    New to the group? Sign up today!
    www.albinism.org/NOAH-Connections/#pwp

    Published: May 22, 2023

    Thursday: Teen Connections

    May 25th at 8:00pm ET // 5:00pm PT

    Need a break from video games? Okay, we know you don’t but join us anyways!

    Let’s spend the night talking with friends about any topics that come to mind this Thursday, May 25th at 9:00pm PT // 6:00pm PT

    www.albinism.org/NOAH-Connections/#teens

    Published: May 22, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: May 22, 2023

    Wednesday, May 31st:
    NOAH Connections: Young Adults    		Thursday, June 1st:
    NOAH Connections: Adults
    Thursday, June 8th:
    NOAH Connections: Teens    		Wednesday, June 14th:
    NOAH Connections: Young Adults
    Thursday, June 15th:
    NOAH Connections: Adults

    Last Chance to Register!

    NOAH Family Summer Camp registration closes today! Don’t miss out on family fun with your NOAH friends…learn more and register now:

    www.albinism.org/nh-camp

    ​​​​​​​Published: May 15, 2023

    Get to Know the NOAH Board – Mine Nisanci Garlin & Kayla Hamlin!

    NOAH’s Board of Directors plays a crucial role in furthering our organization’s mission, and we’re excited to help the community get to know new and returning board members in the coming weeks. 

    This week, hear from Mine Nisanci Garlin & Kayla Hamlin, both newly appointed this spring, and stay tuned to get to know more NOAH Board members!

    Published: May 15, 2023

    Asian American, Native Hawaiian, and Pacific Islander Heritage Month!

    NOAH community member, Sam P., “proudly represents 🇨🇳 (Chinese flag), and states that her albinism makes her feel ‘Asian undercover.’ “

    www.albinism.org/AANHPI

    Published: May 15, 2023

    Spring for NOAH Shout-Out: Wisconsin’s White Cheddar!

    Long-time NOAH fundraising team, Wisconsin’s White Cheddar, recently held their annual Bowl-a-thon fundraiser and raised over $2,400 for NOAH!

    Thank you, White Cheddar team, for your continued dedication to NOAH!

    Feeling inspired? We are!!
    Start YOUR fundraising page today at: www.albinism.org/fun

    Published: May 15, 2023

    Spring for NOAH Shout-Out: NOAH Carolinas!

    The NOAH Carolinas team recently held a fun and unique painting fundraiser. They raised nearly $600 for NOAH through online fundraising, an online silent auction, and an in-person paint night event that brought together their community. 

    Thank you, NOAH Carolinas team, for your continued dedication to NOAH!

    Ready to create a unique fundraiser that works for YOU?
    Create your fundraising page today at: www.albinism.org/fun

    Published: May 15, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: May 15, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    TONIGHT: Dealing with Comments & Questions

    May 15th at 8:30pm ET // 5:30pm PT

    Registered attendees – join Sheila Adamo tonight at 8:30pm ET // 5:30pm PT to examine how to deal with comments and questions regarding albinism from others. We will analyze our own patterns of responses to others and explore ways of responding that will both honor our feelings and enable us to serve as role models.

    Check out future workshops:
    www.albinism.org/workshops

    Published: May 15 2023

    Starting Today: Eye Spy for NOAH!

    May 15th – May 21st

    Eye Spy for NOAH Starts TODAY!

    Join us for this fun & easy albinism-themed scavenger hunt event today (May 15th) through Sunday, May 21st. Compete against players from across the country; the top-scoring players will be entered to win a NOAH prize pack!

    www.albinism.org/NOAH-Connections/#eye-spy

    Published: May 15, 2023

    Wednesday: Young Adult Connections

    May 17th at 9:00pm ET // 6:00pm PT

    Mmmmm, donut! You bring the snacks, we’ll bring the fun! Join us this Wednesday, May 17th for a night of good times starting at 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#young-adults

    Published: May 15, 2023

    Thursday: Adult Connections

    May 18th at 9:00pm ET // 6:00pm PT

    Spring is in full bloom! Take a moment to stop and smell the roses, and join in on our Adult Connections call this Thursday, May 18th starting at 9:00 PM ET // 6:00 PM PT.

    www.albinism.org/NOAH-Connections/#adults

    Published: May 15, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: May 15, 2023

    Tuesday, May 23rd:
    NOAH Connections: Aging with Albinism
    NOAH Connections: Parenting without Pigment    		Thursday, May 25th:
    NOAH Connections: Teens
    Wednesday, May 31st:
    NOAH Connections: Young Adults    		Thursday, June 1st:
    NOAH Connections: Adults
    Thursday, June 8th:
    NOAH Connections: Teens    		Wednesday, June 14th:
    NOAH Connections: Young Adults
    Thursday, June 15th:
    NOAH Connections: Adults

    Hey NOAH!

    We have a very exciting announcement about NOAH Family Summer Camp…

    Check it out and register today!
    www.albinism.org/nh-camp

    ​​​​​​​Published: May 8, 2023

    Last Chance to Share Your Opinion!

    NOAH plans our biennial conference as a special opportunity for our community to connect with old friends, meet new friends, and attend a variety of informational sessions/forums on topics important to those touched by albinism. We understand that there are a number of key factors that can dictate a community member’s participation in our largest in-person event. 

    As we evaluate our options for the 2026 conference, we need to hear from YOU about what factors are most important. Please complete the quick survey below by TOMORROW (May 9th). Your answers will help to guide our team to continue to offer a conference that meets your needs.

    www.surveymonkey.com/r/NOAHCon

    Published: May 8, 2023

    Asian American, Native Hawaiian, and Pacific Islander Heritage Month

    In honor of Asian American, Native Hawaiian, and Pacific Islander Heritage Month this May, we want to hear from YOU!

    AA or NHPI PWAs, we invite you to share your experiences and how your heritage and albinism impact your life. Photos, videos, artwork, writing, or something else – we welcome anything you’d like to share with the community. 

    Please send submissions to eaubrey@albinism.org for the opportunity to be featured on NOAH social media and website throughout the month of May and beyond!

    Published: May 8, 2023

    Get to Know the NOAH Board – Rosalind Isom!

    NOAH’s Board of Directors plays a crucial role in furthering our organization’s mission, and we’re excited to help the community get to know new and returning board members in the coming weeks. 

    Hear from Rosalind Isom, newly appointed this spring, and stay tuned to get to know more NOAH Board members!

    Published: May 8, 2023

    There’s Still Time to Sign Up!

    Parents, grandparents, and caregivers – join Sheila Adamo on Monday, May 15th at 8:30pm ET // 5:30pm PT to examine how to deal with comments and questions regarding albinism from others. We will analyze our own patterns of responses to others and explore ways of responding that will both honor our feelings and enable us to serve as role models.

    Register by May 13th to reserve your spot!
    www.albinism.org/workshops

    Published: May 8, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: May 8, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Tuesday: Parent Connections

    May 9th at 9:00pm ET // 6:00pm PT

    Let’s Chat About the IEP!

    A lot of parents of PWAs have questions when it comes to IEPs – and that’s totally normal! Join Kathi Garza, M.Ed, TVI; Anne Corn, Ed.D; and Kayla Hamlin, TVI, COMS this Tuesday, May 9th at 9pm ET // 6pm PT to learn more about the IEP.

    www.albinism.org/NOAH-Connections/#parents​​​​​​​

    Published: May 8, 2023

    Thursday: Teen Connections

    May 11th at 8:00pm ET // 5:00pm PT

    Teens – have you missed us? We’ve missed you! Catch up with your PWA fam this Thursday, May 11th @ 8:00 pm ET // 5:00 pm PT for another Teen Connections session.

    www.albinism.org/NOAH-Connections/#teens

    Published: May 8, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: May 8, 2023

    Monday, May 15th:
    NOAH Workshops: Parents, Grandparents, and Caregivers    		Wednesday, May 17th:
    NOAH Connections: Young Adults
    Thursday, May 18th:
    NOAH Connections: Adults    		Tuesday, May 23rd:
    NOAH Connections: Aging with Albinism
    NOAH Connections: Parenting without Pigment
    Thursday, May 25th:
    NOAH Connections: Teens    		Wednesday, May 31st:
    NOAH Connections: Young Adults
    Thursday, June 1st:
    NOAH Connections: Adults

    Last Chance to Apply!

    Remind the young leaders with albinism in your life – the deadline to apply for the Michael J. McGowan Leadership Scholarship Award is TODAY!​​​​​​​

    Learn more and finish up your application today:
    www.albinism.org/leadership

    ​​​​​​​Published: May 1, 2023

    Spring for NOAH Shout-Out: Dallas Bowls for NOAH!

    On April 15th, the long-time NOAH fundraising team, Dallas Bowls for NOAH, held their annual Bowl-a-thon fundraiser and raised over $12,000 for NOAH!

    Thank you, Dallas Bowls for NOAH team, for your continued dedication to NOAH!

    Feeling inspired? We are!!
    Start YOUR fundraising page today at: www.albinism.org/fun

    Published: May 1, 2023

    Guide Dog Day!

    Wednesday was Guide Dog Day, and we invited PWAs in our community who have a guide dog to share a photo of them and their pup.

    Check out the awesome photos shared and add your own photo on our recent Facebook post!

    Published: May 1, 2023

    Spring for NOAH Shout-Out: Albinism Rocks Rock-a-Thon!

    On April 16th, the Albinism Rocks Rock-a-Thon team raised over $1,000 for NOAH at their family-friendly music event! 

    Thank you, Albinism Rocks team, for organizing this unique event to support NOAH!

    Feeling inspired? We are!!
    Start YOUR fundraising page today at: www.albinism.org/fun

    Published: May 1, 2023

    2022 Grant Updates

    2022 Grant Updates

    In 2022, the NOAH Research Program was pleased to award a total of $125,000 in albinism research grants to research laboratories in Pittsburgh, Pennsylvania, Bordeaux, France, and New York, New York. As we prepare to announce our 2023 grant recipients, we were pleased to hear a progress update from each institution. Check out our recent Facebook post for an update from Principal Investigator: Carol Ann Mason, Ph.D..
     

    To support NOAH’s Research Program, visit https://app.donorview.com/jWZ7Y.

    Published: May 1, 2023

    Welcome Back, Maria!

    We are excited to share that Maria Lepore-Stevens, director of Camp Abilities educational sports camps for athletes with visual impairments, will return as our Sports Director for NOAH Family Summer Camp this July!

    For more details on camp staff, activities, and registration, visit: www.albinism.org/nh-camp

    PS – considering attending for camp, but have questions? Check out All You Need to Know About NOAH Family Summer Camp this Thursday, featuring Camp Director Tricia Thomas and a panel of camp attendees!

    Published: May 1, 2023

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: May 1, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Wednesday: Young Adult Connections

    May 3rd at 9:00pm ET // 6:00pm PT

    Wrapping up with exams? Want to celebrate another term coming to an end, or the start of a new month? Join fellow young adult PWAs this Wednesday May 3rd @ 9:00pm PT // 6:00pm PT for a well overdue evening of relaxation and fun!

    www.albinism.org/NOAH-Connections/#young-adults

    Published: May 1, 2023

    Thursday: All You Need to Know About NOAH Family Summer Camp!

    May 4th at 8:00pm ET // 5:00pm PT

    If you’re considering attending camp for the first time and have some questions, this is the perfect session for you! Past attendees and staff are here to talk about NOAH camp and answer YOUR questions on Thursday, May 4th at 8pm ET // 5pm PT.

    Sign up now!
    www.albinism.org/NOAH-Connections/#camp 

    Published: May 1, 2023

    Thursday: Adult Connections

    May 4th at 9:00pm ET // 6:00pm PT

    May the 4th be with you! Let the power of the force guide you to an evening of fun, laughs and nostalgia. If you didn’t get the Star Wars reference, join us to find out 😉 

    See you this Thursday, May 4th at 9:00pm ET // 6:00pm PT.

    www.albinism.org/NOAH-Connections/#adults

    Published: May 1, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: May 1, 2023

    Tuesday, May 9th:
    NOAH Connections: Parents & Caregivers    		Thursday, May 11th:
    NOAH Connections: Teens
    Monday, May 15th:
    NOAH Workshops: Parents, Grandparents, and Caregivers    		Wednesday, May 17th:
    NOAH Connections: Young Adults
    Thursday, May 18th:
    NOAH Connections: Adults    		Tuesday, May 23rd:
    NOAH Connections: Aging with Albinism
    NOAH Connections: Parenting without Pigment
    Thursday, May 25th:
    NOAH Connections: Teens

    One Week Left to Apply!

    Remind the young leaders with albinism in your life – the deadline to apply for the Michael J. McGowan Leadership Scholarship Award is just one week away!

    Learn more and finish up your application today:
    www.albinism.org/leadership

    ​​​​​​​Published: April 24, 2023

    All You Need to Know About NOAH Family Summer Camp!

    If you’re considering attending camp for the first time and have some questions, this is the perfect session for you! Past attendees and staff are here to talk about NOAH camp and answer YOUR questions on Thursday, May 4th at 8pm ET // 5pm PT.

    Sign up now!
    www.albinism.org/NOAH-Connections/#camp 

    Published: April 24, 2023

    Spring for NOAH Suggestions!

    Long-time NOAH Fundraiser, Regan Gentile, shares her experiences and suggestions for hosting a fundraiser that interests you in our recent video!

    Check out her suggestions and get your fundraising page started today at: www.albinism.org/fun

    Royalty Free Music: https://www.bensound.com
    License code: JHDKPTFSTSVPBJGH

    Published: April 24, 2023

    Thanks, Marleena & the SoCal NOAH Team!

    Yesterday, Marleena Barber did a surprise takeover on the NOAH social media story, live from the SoCal NOAH Bowl-a-Thon in Anaheim, CA. Thank you, Marleena, for giving us an inside peek at this awesome event, and event host Rodney Ignacio and the SoCal NOAHs fundraising team for your continued dedication to NOAH!

    Feeling inspired by the awesome fundraisers we’ve been sharing lately? Learn more about hosting your own event at: www.albinism.org/fun

    Published: April 24, 2023

    2022 Grant Updates

    2022 Grant Updates

    In 2022, the NOAH Research Program was pleased to award a total of $125,000 in albinism research grants to research laboratories in Pittsburgh, Pennsylvania, Bordeaux, France, and New York, New York. As we prepare to announce our 2023 grant recipients, we were pleased to hear a progress update from each institution. Check out our recent Facebook post for an update from Principal Investigator: Benoit Arveiler, PharmD, PhD.
     
    To support NOAH’s Research Program, visit https://app.donorview.com/jWZ7Y.

    Published: April 24, 2023

    Thank You, Volunteers!

    Last week was Volunteer Week, and we extended our appreciation to the many volunteers involved with our organization.

    The volunteers pictured represent only a fraction of the many individuals who share their time, energy, talents, and more with NOAH. Thank you to each and every one of our volunteers!

    Do you know a NOAH volunteer who makes a difference in the albinism community? Give them a shout-out on our recent Facebook post!

    Published: April 24, 2023

    • Did you know that Sarah Kane, long-time NOAH member and 2022 recipient of the McGowan Leadership Scholarship, recently received PennGALA’s Student Leadership Award? Each year, this award recognizes an LGBTQ+ student for demonstrating leadership, exemplifying excellence, and promoting diversity at Penn through student activities or community service.Congratulations, Sarah!! https://www.instagram.com/p/CqMOR5NM0ZK/?igshid=YmMyMTA2M2Y=

    NOAH Events This Week!

    Check out the great opportunities to connect this week!

    Published: April 24, 2023

    💡 Do you know a PWA or community member who might want to join a NOAH Connections group that you are a part of? Invite them to visit our page and sign up for session reminders!
    www.albinism.org/NOAH-Connections

    Tuesday: Parenting without Pigment

    April 25th at 9:00pm ET // 6:00pm PT

    Join Andrew Sartorius and friends TOMORROW at 9pm ET // 6pm PTto discuss traveling with kids as a parent with albinism. 

    New to the group? There’s still time to sign up!
    www.albinism.org/NOAH-Connections/#pwp

    Published: April 24, 2023

    Thursday: Teen Connections

    April 27th at 8:00pm ET // 5:00pm PT

    Teens – we can’t wait to see you this Thursday! Join us at 8pm ET // 5pm PT for a good time with great company.

    www.albinism.org/NOAH-Connections/#teens

    Published: April 24, 2023

    Save the Date!

    Mark your calendars for these upcoming opportunities to connect:

    Published: April 24, 2023

    Wednesday, May 3rd:
    NOAH Connections: Young Adults    		Thursday, May 4th:
    NOAH Connections: Adults
    Thursday, May 11th:
    NOAH Connections: Teens    		Monday, May 15th:
    NOAH Workshops: Parents, Grandparents, and Caregivers
    Wednesday, May 17th:
    NOAH Connections: Young Adults    		Thursday, May 18th:
    NOAH Connections: Adults
    Tuesday, May 23rd:
    NOAH Connections: