Martin Luther King Jr. Day
In observance of Martin Luther King Jr. Day, we share this photo captured at a march in Selma, Alabama in 1965 that features Dr. King alongside colleague and personal friend with albinism, Rev. Jesse L. Douglas.
Published: January 17, 2022
NOAH Research Program: Deadline Tomorrow!
The NOAH Research Program Call for Proposals deadline for LOI Forms and Expression of Interest Videos or Written Summaries is tomorrow.
Learn more:
albinism.org/research/#proposals
Spring for NOAH Coffee Chat!
If you can’t make it to our first Spring for NOAH Coffee Chat this Saturday (scroll down for more info!), worry not! We have a second chance for veteran fundraisers and newbies alike to join us to discuss FUNdraising ideas on Tuesday, January 24th at 8pm ET // 5pm PT.
Learn more & sign up now!
www.albinism.org/NOAH-Connections/#coffee
Published: January 17, 2022
Career Corner
Adults with albinism, we want to hear from you. Inspire our community by sharing information about your job or career through NOAH’s Career Corner feature.
Check out past submissions or submit information about your job or career today at:
www.albinism.org/career-corner
Published: January 17 2022
- Have you seen this recent news feature on NOAH community member, Ally M., who is a competitive gymnast with albinism? Check out the video to learn more about the accommodations she and her coaches have put into place to help her find success in her gymnastics training.https://www.wfft.com/video/fort-wayne-gymnast-vaulting-to-success-despite-vision-challenges/video_e1104bda-f395-566d-818b-4430cd6ce355.html
- Adults with HPS – did you know our friends at the HPS Network offer HPS Peer Support Group Calls just for you? Their next call in English will be held January 17th. Check out more information on their Facebook page: https://bit.ly/3HaWXkc
NOAH Events This Week!
Tuesday: Aging with Albinism
January 17th at 5:00pm ET // 2:00pm PT
Join special guest host, Karen Bly, and friends for our next session of Aging with Albinism this Tuesday at 5:00pm ET // 2:00pm PT.
New to the group? Our first session of the new year is the perfect time to join! Sign up now:
www.albinism.org/NOAH-Connections/#aging
Published: January 17, 2022
Wednesday: Newly-Diagnosed Parents of Parents of Young Children with Albinism Workshop
January 18th at 8:30pm ET // 5:30pm PT
Last Chance to Sign Up!
Parents & caregivers, join Sheila Adamo this Wednesday, January 18th at 8:30pm ET//5:30pm PT to join a community that will share and learn about adapting to the new role of a parent of a child with albinism.
Register by TODAY (1/16) to reserve your spot:
www.albinism.org/workshops
Published: January 17, 2022
Thursday: Teen Connections
January 19th at 8:00pm ET // 5:00pm PT
Teen PWAs, you’re up next! We can’t wait to see you this Thursday at 8pm ET // 5pm PT for our next session of Teen Connections.
New to the group? There’s still time to sign up!
www.albinism.org/NOAH-Connections/#teens
Published: January 17, 2022
Saturday: Spring for NOAH Coffee Chat
January 21st at 11:00am ET // 8:00am PT
Whether you’re a seasoned event host or new to the NOAH crew and not sure where to start, our Spring for NOAH Coffee Chat will be the perfect chance to connect with NOAH staff and fellow community members and brainstorm FUNdraising ideas that will be a blast for you and your loved ones, and help support NOAH!
Join us this Saturday, January 21st at 11am ET // 8am PT for our first of two Spring for NOAH Coffee Chats:
www.albinism.org/NOAH-Connections/#coffee
Published: January 17, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: January 17, 2022
| Tuesday, January 24th: NOAH Connections: Spring for NOAH Coffee Chat | Wednesday, January 25th: NOAH Connections: Young Adults |
| Thursday, January 26th: NOAH Connections: Parents NOAH Connections: Adults | Monday, February 13th: NOAH Workshops: Mothers’ Workshop |
Albinism InSight – Spring Feature: Do I Tell? Do I Ask?
Whether you are interviewing for a job, dating, making friends, or in any social situation, when is the right time and how do you explain that you have albinism? As a parent of a child with albinism, when do you talk with your child about it?
On the other hand, when you are approaching people with albinism, who and how do you ask questions for greater insight? Navigating a life with albinism is a unique journey, and education is important. How can it happen best for all parties involved?
Do you have insight to share? Consider submitting an article for the Spring Issue of Albinism InSight!
Submissions due January 18th. Learn more: www.albinism.org/ai/call-for-content
Published: January 9, 2022
You’re Invited to Aging with Albinism!
Join special guest host, Karen Bly, and friends for our next session of Aging with Albinism on Tuesday, January 17th at 5:00pm ET // 2:00pm PT.
New to the group? Our first session of the new year is the perfect time to join! Sign up now:
www.albinism.org/NOAH-Connections/#aging
Upcoming NOAH Workshops
Parents & caregivers, check out our upcoming workshop offerings & register today:
Wednesday, January 18th:
Parents of Newly Diagnosed Children & Young Children with Albinism
Monday, February 13th:
Mothers’ Virtual Workshop
Published: January 9, 2022
Parent Connections
Parents, you’re invited to our next session of Parent Connections!
Join Megan Pitt, LMHC and fellow parents of PWAs on Thursday, January 26th at 8:30pm ET // 5:30pm PT for meaningful connections in the new year.
Will we see YOU there?
www.albinism.org/NOAH-Connections/#parents
Published: January 9, 2022
- Have you heard about the new, VI accessible Kellogg’s packaging?Kellogg’s has announced that they will be adding NaviLens codes to boxes of its most popular cereal. The codes can be scanned from up to 40 feet away, and the NaviLens app will “offer verbal directions to help [shoppers] navigate to the cereal boxes.”https://www.foodnetwork.com/fn-dish/news/kellogg-navilens-cereal-packaging
- Did you know the Fine Arts Museums of San Francisco are working to expand audio descriptions of artwork to make their museums, including temporary exhibits, more accessible to the blind and visually impaired communities they serve? These new audio descriptions include “the basics of artist, medium, materials and size,” as well as “a general description of what the work depicts and from what perspective it is presented…” so that blind and visually impaired visitors can experience the works more fully. https://datebook.sfchronicle.com/art-exhibits/expanded-museum-audio-descriptions-help-the-sight-impaired-envision-the-art?mibextid=Zxz2cZ&
- XMO Sports is hosting Extreme Mobility Camps for blind and visually impaired athletes ages 14-30 and there are spots still available for their winter 2023 camps running from 2/26-3/5 in Denver, CO! Applications are due by January 10th!For more details or to apply, visit: https://www.xmocamps.org/apply
Contact Pat Malloy (pat.malloy@gmail.com) with questions!
NOAH Events This Week!
Wednesday: Young Adult Connections
January 11th at 9:00pm ET // 6:00pm PT
Young adults, see you Wednesday! We can’t wait to reconnect with old friends and meet new ones in our first Young Adult Connections session of the new year.
New the group? Sign up now!
www.albinism.org/NOAH-Connections/#young-adults
Published: January 9, 2022
Thursday: Adult Connections
January 12th at 9:00pm ET // 6:00pm PT
Adult PWAs, ready for our first connections session of 2023? We can’t wait to see you this Thursday!
Have you been thinking about joining Adult Connections, but haven’t attended a call yet? Now’s the perfect time to sign up and join us for the first time:
www.albinism.org/NOAH-Connections/#adults
Published: January 9, 2022
Sunday: LGBTQ+ and Allies
January 15th at 8:00pm ET // 5:00pm PT
LGBTQ+ PWAs and allies, we hope you’ll join us for our first NOAH Connections session just for you in 2023.
See you on Sunday, January 15th at 8pm ET // 5pm PT!
www.albinism.org/NOAH-Connections/#lgbtq
Published: January 9, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: January 9, 2022
| Tuesday, January 17th: NOAH Connections: Aging with Albinism | Wednesday, January 18th: NOAH Workshops: Parents & Caregivers |
| Thursday, January 19th: NOAH Connections: Teens | Wednesday, January 25th: NOAH Connections: Young Adults |
| Thursday, January 26th: NOAH Connections: Parents NOAH Connections: Adults |
Happy New Year!
Wishing everyone in our community a Happy New Year. We look forward to connecting with you virtually and in-person in 2023!
Published: January 2, 2022
Last Chance for Cookies with Kathi!
There’s just one week left to enjoy the Cookies with Kathi video library, and we don’t want you to miss out!
For just $20, you receive access to the Cookies with Kathi video library, including a supply list, Kathi’s favorite sugar cookie and flood icing recipes, and a complete set of instructional videos to lead you through each step of the process.
And perhaps the best part? All proceeds benefit NOAH!
What are you waiting for? Sign up now:
www.albinism.org/fundraisers/cookies
Share YOUR Story & Support NOAH!
Sharing YOUR story and the impact NOAH has made on your life is one of the easiest ways to support us this holiday season! We know you’re busy, but if you could take a few moments to share what NOAH means to you, we’d really appreciate it.
Submit a brief text, audio, or video response now:
https://www.videoask.com/f3qzarakt
Published: January 2, 2022
See You in the Twin Cities!
Adult PWAs, mark your calendars for our next Adults with Albinism Weekend, September 29 – October 1, 2023 in Minneapolis, MN!
www.albinism.org/adult-weekend
Published: January 2, 2022
NOAH Events This Week!
Thursday: Teen Connections
January 5th at 8:00pm ET // 5:00pm PT
Teens, join us this Thursday at 8pm ET // 5pm PT for our first Teen Connections session of the new year! Don’t miss out on this chance to catch up with friends and relax after the busy holiday season.
www.albinism.org/NOAH-Connections/#teens
Published: January 2, 2022
Sunday: New Year with NOAH!
January 8th at 7:00pm ET // 4:00pm PT
We can’t wait to kick off the New Year with our NOAH friends on Gatherly! We hope you’ll join us this Sunday, January 8th at 7pm ET // 4pm PT for activities, games, and good company.
All friends of NOAH are welcome, so spread the word!
www.albinism.org/NOAH-Connections/#new-year
Published: January 2, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: January 2, 2022
| Wednesday, January 11th: NOAH Connections: Young Adults | Thursday, January 12th: NOAH Connections: Adults |
| Sunday, January 15th: NOAH Connections: LGBTQ+ and Allies | Tuesday, January 17th: NOAH Connections: Aging with Albinism |
Happy Holidays!
Wishing a joyous Kwanzaa and a belated Merry Christmas to all in our community who celebrate!
Published: December 26, 2022
You’re Invited to New Year with NOAH!
We can’t wait to kick off the New Year with our NOAH friends on Gatherly! We hope you’ll join us on Sunday, January 8th at 7pm ET // 4pm PT for activities, games, and good company.
All friends of NOAH are welcome, so spread the word!
www.albinism.org/NOAH-Connections/#new-year
Share YOUR Story & Support NOAH!
Sharing YOUR story and the impact NOAH has made on your life is one of the easiest ways to support us this holiday season! We know you’re busy, but if you could take a few moments to share what NOAH means to you, we’d really appreciate it.
Submit a brief text, audio, or video response now:
https://www.videoask.com/f3qzarakt
Published: December 26, 2022
This one time at NOAH Camp…
Calling all campers with albinism and their families! Mark your calendars for our next NOAH Family Summer Camp, July 14-19, 2023.
We hope you’ll join us for slip n’ slides, s’mores, and lots of laughs with your NOAH friends!
Published: December 26, 2022
- Did you know that Giphy has partnered with Scribely to become the first GIF provider to have alt text available for their most popular content? Scribely’s writers will draft the alt text rather than using auto-generated image descriptions. https://www.facebook.com/photo/?fbid=527636842741662&set=a.464717929033554
- Have you heard of Three Pines, the new Amazon Prime Video tv series? One of the characters, Sophie, is described as having albinism. Sophie is played by Ali Hand, who refers to herself as “a disabled theatre artist and disability advocate.”https://www.imdb.com/title/tt15351648/
- Triston B. is an 8th grader with albinism who plays baseball and basketball at his school in Chicago. He and his family were recently featured in a CBS news story!https://www.cbsnews.com/chicago/news/chicago-ballplayer-triston-burns
NOAH Events This Week!
Tuesday: Winter BINGO!
December 27th at 7:00pm ET // 4:00pm PT
Ready to play BINGO?!
NOAH Kids, you’re invited to Winter BINGO with your NOAH friends. Print out your BINGO board and get ready to join Courtney & Alison on Tuesday, December 27th at 7:00pm ET // 4:00pm PT!
Sign up today:
www.albinism.org/NOAH-Connections/#BINGO
Published: December 26, 2022
Wednesday: Young Adult Connections
December 28th at 9:00pm ET // 6:00pm PT
Hey Young Adults!
Celebrate the holidays with your fellow PWAs. Join us this Wednesday, December 28th at 9pm ET // 6pm PT for our last connections session of the year!
www.albinism.org/NOAH-Connections/#young-adults
Published: December 26, 2022
Thursday: Adult Connections
December 29th at 9:00pm ET // 6:00pm PT
Wrap up this holiday season with friends! Join us this Thursday December 29th at 9pm ET // 6pm PT for our last Adult Connections session of 2022.
See you there!
www.albinism.org/NOAH-Connections/#adults
Published: December 26, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: December 26, 2022
| Thursday, January 5th: NOAH Connections: Teens | Sunday, January 8th: NOAH Connections: New Year with NOAH! |
| Wednesday, January 11th: NOAH Connections: Young Adults | Thursday, January 12th: NOAH Connections: Adults |
| Sunday, January 15th: NOAH Connections: LGBTQ+ and Allies |
Research Proposal Deadline Extended!
The NOAH Research Program Fall 2022 Call for Proposals deadline for LOI Forms and Expression of Interest Videos or Written Summaries has been extended. The new deadline for submissions is January 17, 2023.
Learn more:
www.albinism.org/research/#proposals
Published: December 19, 2022
Get Your Tickets for Cookies with Kathi!
Looking for an easy and fun activity to do with friends or family over the holidays that also supports a great cause? Look no further!
For just $20, you receive access to the Cookies with Kathi video library, including a supply list, Kathi’s favorite sugar cookie and flood icing recipes, and a complete set of instructional videos to lead you through each step of the process. Use the videos as many times as you want, now through January 8th.
All proceeds benefit NOAH!
www.albinism.org/fundraisers/cookies
Published: December 19, 2022
Hey NOAH Campers!
What’s your favorite memory from NOAH camp?
Share it here!
https://www.videoask.com/fv6yu3ycd
Published: December 19, 2022
Ready to play BINGO?!
NOAH Kids, you’re invited to Winter BINGO with your NOAH friends. Print out your BINGO board and get ready to join Alison & Courtney on Tuesday, December 27th at 7:00pm ET // 4:00pm PT!
Sign up today:
www.albinism.org/NOAH-Connections/#BINGO
Published: December 19, 2022
- Join us in congratulating NOAH community member and McGowan Leadership Scholarship recipient, Sarah Kane, who was recently announced as one of 40 Marshall Scholarship recipients for 2023. According to the Association of Marshall Scholars, recipients of this scholarship are “considered among the most accomplished undergraduate university students and recent graduates in the United States…” Congratulations, Sarah, on this incredible honor & accomplishment! https://marshallscholars.org/news-and-updates/2023-class
- Did you know that Perkins School for the Blind offers Career Launch Tech Bootcamp for blind & visually impaired adults ages 18+ with a high school diploma or college degree? Applications are currently being accepted for sessions in early 2023!Learn more: https://www.perkins.org/career-launch/career-launch-business-tech-bootcamp/?
NOAH Events This Week!
Tuesday: Parenting during the Holidays!
December 20th at 9:00pm ET // 6:00pm PT
Parents of PWAs, join Sam McClung & Kayla Hamlin for a special session of Parent Connections on Tuesday, December 20th at 9pm ET // 6pm PT. We’ll discuss parenting during the holidays and the joys and challenges that come with this time of year.
New to the group? There’s still time to sign up:
www.albinism.org/NOAH-Connections/#parents
Published: December 19, 2022
Thursday: Teen Connections
December 22nd at 8:00pm ET // 5:00pm PT
Teens, we can’t wait to see you this week! Cozy up with some tea or cocoa and your NOAH friends for our last Teen Connections call of the year this Thursday at 8pm ET // 5pm PT.
New to the group? Join today for the link to this call, and we’ll send you email reminders for future connections as well! www.albinism.org/NOAH-Connections/#teens
Published: December 19, 2022
NOAH Connections Holiday Break
December 23 – December 26th
NOAH Connections is going on a brief winter break from December 23-26th as our team and community members enjoy some quality time with family and friends.
We can’t wait to see you when we return on December 27th!
In the meantime, check out upcoming sessions including Winter BINGO, New Year with NOAH, and more at: www.albinism.org/NOAH-Connections
Published: December 19, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: December 19, 2022
| Tuesday, December 27th: NOAH Connections: NOAH BINGO | Wednesday, December 28th: NOAH Connections: Young Adults |
| Thursday, December 29th: NOAH Connections: Adults | Thursday, January 5th: NOAH Connections: Teens |
| Sunday, January 8th: NOAH Connections: New Year with NOAH! | Wednesday, January 11th: NOAH Connections: Young Adults |
| Thursday, January 12th: NOAH Connections: Adults | Sunday, January 15th: NOAH Connections: LGBTQ+ and Allies |
Announcing: Cookies with Kathi!
We are thrilled to share that cookie decorator extraordinaire Kathi Garza will be sharing an encore presentation of her popular “Cookies with Kathi” session this December!
For just $20, you receive access to the self-paced Cookies with Kathi video library, including a supply list, Kathi’s favorite sugar cookie and flood icing recipes, and a complete set of instructional videos to lead you through each step of the process.
All proceeds benefit NOAH!
www.albinism.org/fundraisers/cookies
Published: December 12, 2022
Hey NOOOAAAHH!
Got a favorite conference memory?
It doesn’t matter if it’s from Orlando in ’22, Las Vegas in ’08, or Chicago ’92, we want to hear from you!
Parenting during the Holidays!
Parents of PWAs, join Sam McClung & Kayla Hamlin for a special session of Parent Connections on Tuesday, December 20th at 9pm ET // 6pm PT. We’ll discuss parenting during the holidays and the joys and challenges that come with this time of year.
New to the group? There’s still time to sign up:
www.albinism.org/NOAH-Connections/#parents
Published: December 12, 2022
Employer Matching
Did you know that 78% of match-eligible donors have no idea whether their employer offers a matching gift program?
Employer gift matching is a great way to make your donation to NOAH go further, so ask your employer about it today!
Published: December 12, 2022
- Long-time NOAH volunteer and community member, Marleena Barber, was recently featured on Low Vision Moments, a podcast by fellow PWA Jennie Bovard. You can check out their discussion on low-vision moments of Christmas at the link below, or by searching for “Low Vision Moments” wherever you listen to your favorite podcasts! https://www.youtube.com/watch?v=3wDjOMnM_GA
- Did you know that NOAH Community member Ashley J. Hicks was recently selected as part of the 2022 Talent Showcase Cast for Disney Television Discovers? Congratulations, Ashley!!https://www.instagram.com/reel/ClooWfOAtLx/?utm_source=ig_web_copy_link
- NOAH Community member & PWA, Nuala, is a self-described “science and math enthusiast who makes fun drawings all about STEM, the vision impairment community, and other fun things too!”Interested in seeing Nuala’s artwork?
https://www.instagram.com/nsartlab/ - Join us in congratulating NOAH Board President Donté Mickens, who was recently nominated and selected for the 2023 edition of The Palm Beach 100 Most Influential Business Leaders. This is Donté’s second consecutive year of being acknowledged on this prestigious list. Congratulations, Donté!https://issuu.com/pbmg/docs/pb_100_2023-2024/36
NOAH Events This Week!
Tuesday: Aging with Albinism
December 13th at 5:00pm ET // 2:00pm PT
Older PWAs – looking to connect with those who just get it? Join June Waugh and friends for our next session of Aging with Albinism this Tuesday, December 13th at 5pm ET // 2pm PT!
Sign up today:
www.albinism.org/NOAH-Connections/#aging
Published: December 12, 2022
Wednesday: Young Adult Connections
December 14th at 9:00pm ET // 6:00pm PT
Young adults with albinism, you’re up next! Join us for our next session of Young Adult Connections this Thursday, to relax with PWA pals before the holiday madness kicks in next week.
New the group? Sign up now:
www.albinism.org/NOAH-Connections/#young-adults
Published: December 12, 2022
Thursday: Adult Connections
December 15th at 9:00pm ET // 6:00pm PT
Adult PWAs, will we see YOU on Thursday? Make sure to hop on our next call for social time with your NOAH friends!
Haven’t joined us for a call before? There’s still time to sign up:
www.albinism.org/NOAH-Connections/#adults
Published: December 12, 2022
Sunday: Kids’ Chat – Cocoa with Karen
December 18th at 7:00pm ET // 4:00pm PT
NOAH Kids, do you have a question for NOAH Executive Director Karen Bly? Now’s your chance to ask her!
Join us for NOAH Connections Kids’ Chat: Cocoa with Karen this Sunday, December 18th at 7pm ET // 4pm PT!
Sign up today:
www.albinism.org/NOAH-Connections/#cocoa
Published: December 12, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: December 12, 2022
| Tuesday, December 20th: NOAH Connections: Parents | Thursday, December 22nd: NOAH Connections: Teens |
| Tuesday, December 27th: NOAH Connections: NOAH BINGO | Wednesday, December 28th: NOAH Connections: Young Adults |
| Thursday, December 29th: NOAH Connections: Adults | Thursday, January 5th: NOAH Connections: Teens |
| Sunday, January 8th: NOAH Connections: New Year with NOAH! | Wednesday, January 11th: NOAH Connections: Young Adults |
| Thursday, January 12th: NOAH Connections: Adults | Sunday, January 15th: NOAH Connections: LGBTQ+ and Allies |
We Met Our Goal!
Thank you to everyone in our community who donated or shared our fundraiser for Giving Tuesday. We are thrilled to share that thanks to your generosity, we met our goal and earned the $4,000 NOAH Board of Directors’ Match!
If you wanted to donate but didn’t get a chance yet, there’s still time to make your gift go further by taking advantage of the Meta recurring gift match*, now through the end of the calendar year!
Published: December 5, 2022
NOAH Needs to Hear from You!
We’re collecting your NOAH stories to enhance outreach to the albinism community and support continued programming and resources.
It’s a quick and easy way to support NOAH. Click the link to learn more and share your story!
HPS Awareness – National Cookie Day!
In celebration of National Cookie Day on December 4th, we reviewed how cookies can teach us about Hermansky-Pudlak Syndrome (HPS): normal platelets look like chocolate chip cookies and HPS platelets look like butter cookies!
Learn more at:
https://www.hpsnetwork.org/hps-information/characteristics/
Published: December 5, 2022
- The Ford family attended their first NOAH Conference this July in Orlando, and shared insight on their experiences in this recent APH Family Connect article. https://familyconnect.org/blog/familyconnect-blog/parents-gain-a-new-perspective-on-their-sons-albinism-at-noah-conference/
- Did you know that Jocelyn Leworthy, NOAH volunteer and host of multiple NOAH Workshops and NOAH Connections sessions, was nominated for Georgian College’s Premier’s Award 2022 in the field of Health Sciences? Congratulations, Jocelyn!
https://www.georgiancollege.ca/blog/newsroom/georgian-proud-of-2022-premiers-awards-nominees/
NOAH Events This Week!
Wednesday: Parenting without Pigment
December 7th at 9:00pm ET // 6:00pm PT
Future parents with albinism – join Andrew & Catherine Sartorius this Wednesday, December 7th at 9pm ET // 6pm PT for another special session of Parenting without Pigment intended for PWAs who are not yet parents, but would like to have kids in the future.
www.albinism.org/NOAH-Connections/#pwp
Published: December 5, 2022
Thursday: Teen Connections
December 8th at 8:00pm ET // 5:00pm PT
Hey teens!
Don’t miss the opportunity to connect before the holidays. Join us this Thursday for another great teen connections session. See you all there!
www.albinism.org/NOAH-Connections/#teens
Published: December 5, 2022
Thursday: LGBTQ+ and Allies Connections
December 11th at 8:00pm ET // 5:00pm PT
LGBTQ+ PWAs and allies – join us on Sunday, December 11th at 8pm ET // 5pm PT for our next session of NOAH Connections just for you.
New to the group? There’s still time to sign up!
www.albinism.org/NOAH-Connections/#lgbtq or text LGBTQ+ to (417)473-2310
Published: December 5, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: December 5, 2022
| Tuesday, December 13th: NOAH Connections: Aging with Albinism | Wednesday, December 14th: NOAH Connections: Young Adults |
| Thursday, December 15th: NOAH Connections: Adults | Thursday, December 22nd: NOAH Connections: Teens |
| Wednesday, December 28th: NOAH Connections: Young Adults | Thursday, December 29th: NOAH Connections: Adults |
NOAH Needs to Hear from You!
We’re collecting your NOAH stories to enhance outreach to the albinism community and support continued programming and resources.
It’s a quick and easy way to support NOAH. Click the link to learn more and share your story!
AmazonSmile – Cyber Monday!
If you’re holiday shopping on Amazon this Cyber Monday, make sure to use AmazonSmile and select NOAH as your charity!
With AmazonSmile, you shop & Amazon gives 0.5% of every purchase directly to NOAH…it’s that easy!
Select NOAH as your charity & start shopping: https://smile.amazon.com/ch/23-2265173
Published: November 28, 2022
Giving Tuesday – TOMORROW!
Thanks to the generosity of NOAH’s Board of Directors, NOAH can earn a guaranteed $2,500 in matching funds this Giving Tuesday with YOUR support. Additionally, recurring (monthly) gifts to NOAH made via Facebook will be eligible for Meta’s recurring gift match after the second gift is processed.
Your support of NOAH goes even further this Giving Tuesday – no gift is too small!
Get ready to give TOMORROW!!
www.facebook.com/NOAH.Albinism
Published: November 28, 2022
Thank You for Coming to Friendsgiving!
We had so much fun at NOAH Friendsgiving yesterday. Thank you to our activity hosts, and to all who joined in on the festivities!
Published: November 28, 2022
- Have you seen the new LEGO ad featuring Katy Perry?This whimsical holiday commercial shows two kids with albinism receiving presents! https://www.youtube.com/watch?v=OdZS3qqW9SE
NOAH Events This Week!
Wednesday: Young Adult Connections
November 30th at 9:00pm ET // 6:00pm PT
Young adults – we can’t wait to see you this Wednesday for our next session of Young Adult connections!
New to the group? There’s still time to sign up:
www.albinism.org/NOAH-Connections/#young-adults
Published: November 28, 2022
Thursday: Adult Connections
December 1st at 9:00pm ET // 6:00pm PT
Adult PWAs, we hope you’ll join us for our first NOAH Connections call of December! This is a great chance to relax and connect with fellow friends with albinism during the busy holiday season.
www.albinism.org/NOAH-Connections/#adults
Published: November 28, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: November 28, 2022
| Wednesday, December 7th: NOAH Connections: Parenting without Pigment | Thursday, December 8th: NOAH Connections: Teens |
| Sunday, December 11th: NOAH Connections: LGBTQ+ and Allies | Tuesday, December 13th: NOAH Connections: Aging with Albinism |
| Wednesday, December 14th: NOAH Connections: Young Adults | Thursday, December 15th: NOAH Connections: Adults |
You’re Invited to NOAH Friendsgiving!
We had such a fun time celebrating NOAH Friendsgiving last year with the albinism community, so we’re bringing it back this holiday season! All friends of NOAH are invited to join us on Sunday, November 27th at 7pm ET // 4pm PT for a casual, virtual get-together to share thanks and relax with friends after Thanksgiving.
Check out the activities we have planned & sign up today!
www.albinism.org/NOAH-Connections/#friendsgiving
Giving Tuesday – Board Match!
Giving Tuesday is just one week away, and we are pleased to share that NOAH’s Board of Directors will be matching $2,500 of your gifts dollar-for-dollar on this annual day of giving!
If you’re planning to include NOAH in your year-end giving, please consider making a gift this Giving Tuesday to have an even bigger impact on the albinism community.
Published: November 21, 2022
Giving Tuesday – Meta Match!
In addition to the NOAH Board of Directors’ Match, your gift this Giving Tuesday has the chance to go even further! Meta will offer a special match for recurring gifts made through Facebook to help your recurring gift provide even more support to the albinism community.
On Giving Tuesday, every gift goes further! Stay tuned for more details and get ready to give.
Published: November 21, 2022
- Have you heard about “A Crash Course in Clashing” by Alexee Anais? Author Alexee Anais is PWA and NOAH community member who has recently released her first book, “A Crash Course in Clashing.” Congratulations, Alexee! https://www.barnesandnoble.com/w/a-crash-course-in-clashing-alexee-anais/1142544409?ean=9798987127919
- Have you heard about “Alley: I Have Albinism” by Alethea Allen? NOAH community member and PWA Alethea Allen recently released a children’s book, “Alley: I Have Albinism” about a 3rd-grade girl who wants to tell everyone about her albinism. Congratulations, Alethea! https://www.aletheaallen.com/
NOAH Events This Week!
Today – Saturday: NOAH Connections Thanksgiving Break
November 18th – November 26th
NOAH Connections is on Thanksgiving Break from November 18th through November 26th as our team & community enjoy time with loved ones over the holiday.
We’re taking a brief hiatus, be we have lots of great opportunities to connect coming in the next few weeks, starting with NOAH Friendsgiving this Sunday, November 27th!
Learn more about upcoming calls:
www.albinism.org/NOAH-Connections
Published: November 21, 2022
Sunday: Friendsgiving
November 27th at 7:00pm ET // 4:00pm PT
All friends of NOAH are invited to join us for a fun and casual get-together this Sunday at 7pm ET // 4pm PT. Choose from a number of fun activities including a recipe swap, scattergories, creating oreo turkeys, and more, or just enjoy social time with fellow NOAH community members. We can’t wait to see you there!
www.albinism.org/NOAH-Connections/#friendsgiving
Published: November 21, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: November 21, 2022
| Wednesday, November 30th: NOAH Connections: Young Adults | Thursday, December 1st: NOAH Connections: Adults |
| Wednesday, December 7th: NOAH Connections: Parenting without Pigment | Thursday, December 8th: NOAH Connections: Teens |
| Sunday, December 11th: NOAH Connections: LGBTQ+ and Allies | Tuesday, December 13th: NOAH Connections: Aging with Albinism |
| Wednesday, December 14th: NOAH Connections: Young Adults | Thursday, December 15th: NOAH Connections: Adults |
Announcing: NOAH’s 2022 Costume Contest Winners!
We received so many awesome submissions for this year’s costume contest. Thanks to everyone who participated, and a special shout-out to our 2022 costume contest winners!
Group Costume Winner:
#23 – The Lee Family
Duo Costume Winner:
#52 – Morgan & Lincoln
Individual Costume Winner:
#49 – Caiden
Fall 2022 – Call for Proposals
NOAH is proud to announce a request for proposals to support albinism research focusing on vision/visual system as it relates to albinism and, new this cycle, dermatology as it relates to albinism.
Help us spread the word! Full details:
albinism.org/research/#proposals
Published: November 14, 2022
You’re Invited to NOAH Friendsgiving!
We had such a fun time celebrating NOAH Friendsgiving last year with the albinism community, so we’re bringing it back this holiday season! All friends of NOAH are invited to join us on Sunday, November 27th at 7pm ET // 4pm PT for a casual, virtual get-together to share thanks and relax with friends after Thanksgiving.
Sign up today!
www.albinism.org/NOAH-Connections/#friendsgiving
Published: November 14, 2022
- Have you heard about Dateability? Dateability is an app created by two sisters in response to their experiences with ableism and stress about disclosing chronic illness when dating. The app aims to provide a “safe and accepting space to create meaningful connections for people with physical, intellectual, and psychiatric disabilities.” https://info.dateabilityapp.com
NOAH Events This Week!
TONIGHT: Ocular Albinism – Parents, Grandparents, and Caregivers Connections
November 14th at 9:00pm ET // 6:00pm PT
Join Pamela Tarnawa and fellow parents, grandparents, and caregivers TONIGHT for an open discussion on the unique challenges a family faces when their child or grandchild has Ocular Albinism.
There’s still time to sign up!
www.albinism.org/NOAH-Connections/#oa
Published: November 14, 2022
Tuesday: Aging with Albinism
November 15th at 5:00pm ET // 2:00pm PT
Join June Waugh and friends TOMORROW, Tuesday, November 15th, at 5pm ET // 2pm PT to connect and discuss the challenges and joys of one’s senior years with albinism.
www.albinism.org/NOAH-Connections/#aging
Published: November 14, 2022
Wednesday: Young Adult Connections
November 16th at 9:00pm ET // 6:00pm PT
Hooray! We have another PWA Young Adult virtual connections session scheduled for Wednesday November 16th @ 9:00 PM ET // 6:00 PM PT. Be sure to share the link with others and join us for another evening of great conversation.
www.albinism.org/NOAH-Connections/#young-adults
Published: November 14, 2022
Thursday: Adult Connections
November 17th at 9:00pm ET // 6:00pm PT
Looking to connect with old friends and make new ones? We are hosting another adult PWA connection session this Thursday November 17th @ 9:00 PM ET // 6:00 PM PT. Be sure to mark those calendars and join us!
www.albinism.org/NOAH-Connections/#adults
Published: November 14, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: November 14, 2022
| Sunday, November 27th: NOAH Connections: NOAH Friendsgiving | Wednesday, November 30th: NOAH Connections: Young Adults |
| Thursday, December 1st: NOAH Connections: Adults | Wednesday, December 7th: NOAH Connections: Parenting without Pigment |
| Thursday, December 8th: NOAH Connections: Teens | Sunday, December 11th: NOAH Connections: LGBTQ+ and Allies |
| Wednesday, December 14th: NOAH Connections: Young Adults | Thursday, December 15th: NOAH Connections: Adults |
Takeover Tuesday – TOMORROW!
We are so excited to check out what Amaeya D. is up to TOMORROW, November 8th, for our next takeover Tuesday! Amaeya is a Statistics major at UCLA, and we can’t wait to follow along with a day in his life.
Vote Today – NOAH’s Halloween Costume Contest!
All of our fabulous contestants have been added to our contest photo album, so make sure to check it out and “like” your favorite costume to vote.
Voting closes this Saturday, November 12th!
Published: November 7, 2022
National Adoption Awareness Month
In observance of National Adoption Awareness Month, we invite community members to share their family’s story for the chance to be featured on NOAH social media.
Comment on our recent Facebook Post or submit via email to marketing@albinism.org with your story & photos.
Photo Credit: Positive Exposure
Published: November 7, 2022
Holiday Shopping Made Easy!
The holiday season is just around the corner, and we have the perfect gift for the NOAH-lovers in your life. Check out the NOAH gear store on Zazzle to complete holiday shopping for the whole family while supporting a great cause!
Published: November 7, 2022
- UN Independent Expert on Albinism, Muluka-Anne Miti-Drummond, seeks written inputs from stakeholders to inform her next report to the 52nd session of the Human Rights Council in March 2023. Submission deadline: November 21st. Full details & submission link are included in her recent post:
https://www.facebook.com/photo/?fbid=667809804711860&set=a.290815032411341
NOAH Events This Week!
TONIGHT: Understanding and Supporting Siblings of Children with Albinism Workshop
November 7th at 8:30pm ET // 5:30pm PT
Registered attendees – join Sheila Adamo TONIGHT to better understand the experiences of siblings of PWAs, and become empowered to meet each challenge with love and support.
Registration for this workshop is now closed. For more information about future workshops, visit:
www.albinism.org/workshops
Published: November 7, 2022
Tuesday: Parenting without Pigment – Future Parents
November 8th at 9:00pm ET // 6:00pm PT
Calling all future parents with albinism!
Join Andrew Sartorius this Tuesday, November 8th at 9pm ET // 6pm PT for a special session of Parenting without Pigment intended for PWAs who are not yet parents, but would like to have kids in the future.
www.albinism.org/NOAH-Connections/#pwp
Published: November 7, 2022
Thursday: Teen Connections
November 10th at 8:00pm ET // 5:00pm PT
Teen PWAs, join us for our next session of NOAH connections just for you this Thursday November 10th @ 8:00pm ET // 5:00pm PT.
Don’t miss out! Join today:
www.albinism.org/NOAH-Connections/#teens
Published: November 7, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: November 7, 2022
| Monday, November 14th: NOAH Connections: Ocular Albinism – Parents, Grandparents, and Caregivers | Tuesday, November 15th: NOAH Connections: Aging with Albinism |
| Wednesday, November 16th: NOAH Connections: Young Adults | Thursday, November 17th: NOAH Connections: Adults |
Announcing: NOAH’s Virtual Costume Contest!
Whether it’s funny, scary, cute, or spooky, we want to see YOUR Halloween costume! PWAs – email a photo of your costume to NOAH(marketing@albinism.org) by Friday, November 4th, to enter our virtual costume contest.
Check out our contestants who have submitted so far in our Facebook album, and “like” your favorite to vote for them!
Published: October 31, 2022
Spirit of Change Award – Positive Exposure
We are pleased to share that NOAHreceived Positive Exposure’s 2022 SPIRIT OF CHANGE Award on Monday, October 24th. Executive Director Karen Bly and Board Secretary Sonja Harris accepted this prestigious honor on behalf of our community.
Thank you, Positive Exposure, for your ongoing partnership and for honoring NOAH with this meaningful award!
Published: October 31, 2022
There’s Still Time to Sign Up!
Parents, Grandparents, & Caregivers – join Sheila Adamo on Monday, November 7th to better understand the experiences of siblings of PWAs, and become empowered to meet each challenge with love and support.
Register by November 5th to secure your spot!
www.albinism.org/workshops
Published: October 31, 2022
- We are excited to share this video update from Jo Rochelle, director of Jasmine Is A Star!
https://www.facebook.com/NOAH.Albinism/videos/1079682776164146Interested in catching a screening of Jasmine Is A Star near you? Learn more at: https://www.jasminestarmovie.com/screenings - UN Independent Expert on Albinism, Mulaka-Anne Miti-Drummond, presented a report on the human rights challenges of persons with albinism on the move at the 77th session of the UNGA last week. Check out the recording of this report, as well as a video summary: https://www.facebook.com/photo/?fbid=662147918611382&set=a.290815032411341
NOAH Events This Week!
Wednesday: Young Adult Connections
November 2nd at 9:00pm ET // 6:00pm PT
Young adults, you’re up next! Join us this Wednesday at 9pm ET // 6pm PT to re-connect with old friends and make some new ones.
www.albinism.org/NOAH-Connections/#young-adults
Published: October 31, 2022
Thursday: Adult Connections
November 3rd at 9:00pm ET // 6:00pm PT
PWAs, you’re invited to our first Adult Connections of November. We can’t wait to “see” you this Thursday at 9pm ET // 6pm PT!
www.albinism.org/NOAH-Connections/#adults
Published: October 31, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: October 31, 2022
| Monday, November 7th: NOAH Workshops: Parents & Caregivers | Tuesday, November 8th: NOAH Connections: Parenting without Pigment |
| Thursday, November 10th: NOAH Connections: Teens | Monday, November 14th: NOAH Connections: Ocular Albinism – Parents, Grandparents, and Caregivers |
| Wednesday, November 16th: NOAH Connections: Young Adults | Thursday, November 17th: NOAH Connections: Adults |
Takeover Tuesday – TOMORROW!
We are so excited to share that Gabriella S. will be joining us to share a day in her life as a college student in NYC. Make sure to check out our story tomorrow to see what she’s up to!
Would you like to share a day in YOUR life on NOAH social media? Send a message to Emily at eaubrey@albinism.org with some information about yourself for the chance to be featured in a future takeover!
We Need YOUR Help with an Albinism InSight Special Photo Feature!
The upcoming 40th Anniversary Issue of Albinism InSight will include a special photo feature of NOAH memories from the past four decades. Do you have photos from NOAH events to share?
Upload YOUR photos now!
https://bit.ly/3FcBiYu
Published: October 24, 2022
Feeling some FOMO about NOAH Night?
Worry not! For a limited time only, you can join in the celebration of NOAH’s 40th and view the NOAH Night recording.
Purchase recording access today: www.albinism.org/NOAHNight
PS – NOAH Night attendees, check your inbox for recording access included FREE with your ticket purchase!
Published: October 24, 2022
Calling All Future Parents with Albinism!
Join Andrew Sartorius on Tuesday, November 8th at 9pm ET // 6pm PT for a special session of Parenting without Pigment intended for PWAs who are not yet parents, but would like to have kids in the future.
www.albinism.org/NOAH-Connections/#pwp
Published: October 24, 2022
Commemorative Coins!
NOAH’s 40th birthday celebration continues with commemorative coins, available now!
https://app.donorview.com/KgNQM
Have you ordered your commemorative coin? Comment on on our recent Facebook Post to let us know how you plan to display or use it when it arrives!
Published: October 24, 2022
Thank YOU for Shopping for NOAH!
Shoutout to our AmazonSmile shoppers, whose purchases raised over $600 for NOAH from April-June 2022! In total, AmazonSmile has donated over $10k to NOAH from community purchases.
When you shop on AmazonSmile, 0.5% of every purchase goes to NOAH. Start shopping for NOAH today: smile.amazon.com/ch/23-2265173
Published: October 24, 2022
- We are excited to share that NOAH member Sadie T. is the voice of Pearl, a bunny with albinism in Nick Jr.‘s “Blues Clues and You!” Congratulations, Sadie!! In addition to selecting a PWA to voice Pearl, the show worked with fellow NOAH member Sophie Ostrove, a Disability Inclusion Consultant for this new character, to ensure that Pearl is represented accurately and positively!Check out this clip from the most recent episode featuring Pearl:
https://www.youtube.com/watch?app=desktop&v=ehobODGB8Uw - We are pleased to share that NOAH has been selected as the recipient of Positive Exposure’s 2022 SPIRIT OF CHANGE Award. Several NOAH community members will be traveling to New York City TODAY, Monday, October 24th, as Executive Director Karen Bly and Board Secretary Sonja Harris accept this prestigious honor on behalf of our NOAH community. Stay tuned for updates from the event! https://bit.ly/3VZIoFy
- Did you know? The Global Albinism Alliance is holding an International Science Conference on Albinism on November 16-19, 2022. This virtual conference will serve as a global forum to improve the health of those with albinism.For more info & registration, visit: https://isca2022.albinismalliance.org/
NOAH Events This Week!
Thursday: Teen Connections
October 27th at 8:00pm ET // 5:00pm PT
Teens, join us this Thursday to re-connect with old friends and make new ones at our next session of Teen Connections. We can’t wait to “see” you there!
New to the group? Sign up today at:
www.albinism.org/NOAH-Connections/#teens
Published: October 24, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: October 24, 2022
| Wednesday, November 2nd: NOAH Connections: Young Adults | Wednesday, November 3rd: NOAH Connections: Adults |
| Monday, November 7th: NOAH Workshops: Parents & Caregivers | Tuesday, November 8th: NOAH Connections: Parenting without Pigment |
| Thursday, November 10th: NOAH Connections: Teens | Monday, November 14th: NOAH Connections: Ocular Albinism – Parents, Grandparents, and Caregivers |
| Wednesday, November 16th: NOAH Connections: Young Adults | Thursday, November 17th: NOAH Connections: Adults |
Albinism InSight Submissions Due Wednesday!
Submitting an article is a great way to share your knowledge and experience with the albinism community. There’s still time to contribute reflections to the 40th Anniversary Issue of Albinism InSight!
Submissions due Wednesday, October 19th.
More info: www.albinism.org/AI/call-for-content
Less Than One Week Left!
Join us for a fundraiser challenge in honor of NOAH’s 40th Birthday!
To celebrate all that NOAH has provided to the albinism community in the past 40 years, we are asking 40 community members to start a FB fundraiser as part of our challenge running now through Saturday, October 22nd.
Help us reach our goal of 40 fundraisers – create yours today!
www.facebook.com/NOAH.albinism
Published: October 17, 2022
Thank You, NOAH Night Sponsors!
Join us in thanking our NOAH Night sponsors for their support of NOAH& the albinism community:
Diamond Sponsor
Epstein | Ostrove, LLC
Bronze Sponsor
Oak St. Health
After Party Sponsor
Gatherly
Published: October 17, 2022
Thank YOU for Joining us at NOAH Night!
We had a wonderful time celebrating NOAH’s 40th birthday with the albinism community on Saturday night. Thank you to all who joined us to reflect on the past 40 years and look to NOAH’s future!
Published: October 17, 2022
Register Today!
Parents, Grandparents, & Caregivers – join Sheila Adamo on Monday, November 7th to better understand the experiences of siblings of PWAs, and become empowered to meet each challenge with love and support.
Register by November 5th to secure your spot!
www.albinism.org/workshops
Published: October 17, 2022
- Have you heard about Pearl? Pearl is a bunny with albinism who was recently introduced on Nick Jr.’s “Blue’s Clues and You!” We are proud to share that NOAH community member Sophie Ostroveis a Disability Inclusion Consultant, working closely with the show to develop Blue’s new friend, ensuring that she is represented accurately and positively!You can check out the most recent episode featuring Pearl at: http://www.nickjr.com/episodes/pvik5p/blue-s-clues-you-something-new-at-blue-s-school-season-3-ep-15 Congratulations, Sophie! We can’t wait to learn more about Pearl in future episodes.
- FYI: Humanity & Inclusion, located in Silver Spring, MD, is hiring a U.S. Grants Finance Officer. They are committed to inclusive hiring, welcome applicants with disabilities, and are flexible about remote work. For more info or to apply, visit: https://www.hi-us.org/jobs-hi-us-grants-finance-officer
NOAH Events This Week!
Tuesday: Aging with Albinism
October 18th at 5:00pm ET // 2:00pm PT
Join June Waugh and friends this Tuesday at 5pm ET // 2pm PT for a lively discussion of Technology, the vast universe of new and easy (sometimes) ways to communicate, to work, be entertained, enlightened and informed! Phones, tablets, Alexa, Siri, Bard, Audible, Libby, Hoopla, watches, air pods, Zoom, OH MY! No wonder Dorothy was overwhelmed in the Land of Oz!
New to the group? There’s still time to join!
www.albinism.org/NOAH-Connections/#aging
Published: October 17, 2022
Wednesday: Young Adult Connections
October 19th at 9:00pm ET // 6:00pm PT
Young adults, join us for our next session of NOAH Connections just for you this Wednesday at 9pm ET // 6pm PT. This is the perfect chance to connect and chat with fellow young adult PWAs.
www.albinism.org/NOAH-Connections/#young-adult
Published: October 17, 2022
Thursday: Adult Connections
October 20th at 9:00pm ET // 6:00pm PT
Adults, join us this Thursday for quality time with your PWA pals! Whether you’re new to Adult Connections or have attended in the past, don’t miss out on this upcoming chance to connect!
www.albinism.org/NOAH-Connections/#adults
Published: October 17, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: October 17, 2022
| Thursday, October 27th: NOAH Connections: Teens | Wednesday, November 2nd: NOAH Connections: Young Adults |
| Wednesday, November 3rd: NOAH Connections: Adults | Monday, November 7th: NOAH Workshops: Parents & Caregivers |
| Tuesday, November 8th: NOAH Connections: Parenting without Pigment | Thursday, November 10th: NOAH Connections: Teens |
| Wednesday, November 16th: NOAH Connections: Young Adults | Thursday, November 17th: NOAH Connections: Adults |
Announcing: NOAH’s 40th Birthday Fundraiser Challenge!
Join us for a fundraiser challenge in honor of NOAH’s 40th Birthday! To celebrate all that NOAH has provided to the albinism community in the past 40 years, we are asking 40 community members to start a FB fundraiser as part of our challenge.
Help us reach our goal of 40 fundraisers – create yours today!
Takeover Tuesday TOMORROW!
Mackenzie’s Takeover Tuesday is TOMORROW, and we can’t wait!
Tune in to NOAH’s social media story to check out a day in Mackenzie’s life as a college athlete who is also involved in theater, choir, student government, disability advocacy, and more!
Would you like to share a day in YOUR life on NOAH social media? Send a message to Emily at eaubrey@albinism.org with a little bit of info about yourself for the chance to be featured in a future takeover!
Published: October 10, 2022
LatinX & Hispanic Heritage Month!
NOAH Community member, Sarvia C., shared a family photo in honor of Hispanic & LatinX Heritage Month!
Check it out at www.albinism.org/heritage
Hispanic & LatinX PWAs – how do you stay connected to your heritage or honor your culture? Send a story, photo, or video to eaubrey@albinism.org to be featured on the NOAH Website and social media during LatinX & Hispanic Heritage Month and beyond.
Published: October 10, 2022
Sukkot
Chag Sameach to all in our community celebrating Sukkot!
Published: October 10, 2022
NOAH Night ~ This Saturday!
NOAH Night: A Cause for Celebration is a virtual gathering where people with albinism, families, and friends of NOAH will join together in celebration of NOAH’s 40th birthday! Join us for an evening that has something for everyone – a VIP social hour to kick things off, a showcase of NOAH community talent, a look at NOAH through the years, and an after-party for everyone!!
Learn more about NOAH Night at www.albinism.org/NOAHNight
Do You Have Tickets to NOAH Night?!
NOAH Night is this Saturday, and we can’t wait to celebrate the albinism community with our hosts Marleena Barber & Casey Greer (and special guest Rupert!).
Get YOUR tickets today: www.albinism.org/NOAHNight
Published: October 10, 2022
Check out more information about NOAH Night and get your tickets now at: www.albinism.org/NOAHNight
Published: October 10, 2022
Art Contest Winners Announced at NOAHNight!
In honor of NOAH’s 40th birthday, Spiffy hosted an Art Contest open to kids & teens with albinism. Many talented artists submitted Spiffy’s coloring sheet or freestyle artwork, and we can’t wait to share the winners’ creations at NOAH Night!
Get your tickets today!
www.albinism.org/NOAHNight/
Published: October 10, 2022
NOAH Events This Week!
Thursday: Teen Connections
October 13th at 8:00pm ET // 5:00pm PT
Teens – join us for a special session of NOAH Connections this Thursday at 8pm ET // 5pm PT. Kelsey Thompson will be presenting her popular session – Stares, Smirks, and Shout-outs!
New to the group? Sign up today!
www.albinism.org/NOAH-Connections/#teens
Published: October 10, 2022
Saturday: NOAH Night
October 15th at 8:00pm ET // 5:00pm PT
Friends of NOAH – we can’t wait to see you this weekend to celebrate NOAH’s 40th birthday and the albinism community.
What are you waiting for? Get your tickets to NOAH Night now!
www.albinism.org/NOAH-Connections/#young-adults
Published: October 10, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: October 10, 2022
| Tuesday, October 18th: NOAH Connections: Aging with Albinism | Wednesday, October 19th: NOAH Connections: Young Adults |
| Thursday, October 20th: NOAH Connections: Adults | Thursday, October 27th: NOAH Connections: Teens |
| Wednesday, November 2nd: NOAH Connections: Young Adults | Wednesday, November 2nd: NOAH Connections: Young Adults |
| Wednesday, November 3rd: NOAH Connections: Adults | Monday, November 7th: NOAH Workshops: Parents & Caregivers |
| Tuesday, November 8th: NOAH Connections: Parenting without Pigment |
Here Comes the Autumn Issue of Albinism InSight!
The Autumn Issue of Albinism InSight is hitting mailboxes and inboxes…is your subscription up to date?
Don’t miss out, subscribe today!
www.albinism.org/AI
Hispanic & LatinX Heritage Month
NOAH Community member, Gabriella S., shared a photo with her siblings & mom in honor of LatinX & Hispanic Heritage Month!
Check it out at www.albinism.org/heritage
Hispanic & LatinX PWAs – how do you stay connected to your heritage or honor your culture? Send a story, photo, or video to eaubrey@albinism.org to be featured on the NOAH Website and social media during LatinX & Hispanic Heritage Month and beyond.
Published: October 3, 2022
Happy Blind Sports Week!
USABA’s National Blind Sports Week is this week, and we can’t wait to check out the sessions & presentations they have planned!
Check out the details on their Facebook page: www.facebook.com/UnitedStatesABA
Published: October 3, 2022
October – World Bullying Prevention Month
Did you know that October is World Bullying Prevention Month?
World Bullying Prevention Month “encourages communities to work together to stop bullying and cyberbullying and put an end to hatred and racism by increasing awareness of the prevalence and impact of all forms of bullying on children of all ages.”
Learn more at: www.stompoutbullying.org/world-bullying-prevention-month
Published: October 3, 2022
Celebrate NOAH’s 40th Birthday!
NOAH Night: A Cause for Celebration is a virtual gathering where people with albinism, families, and friends of NOAH will join together in celebration of NOAH’s 40th birthday! Join us for an evening that has something for everyone – a VIP social hour to kick things off, a showcase of NOAH community talent, a look at NOAH through the years, and an after-party for everyone!!
Learn more about NOAH Night at www.albinism.org/NOAHNight
Get Your Tickets Today!
Hershula & Jayana are so excited for NOAH Night and we are too!
We hope to see YOU at NOAHNight on Saturday, October 15th at 8pm ET // 5pm PT to celebrate NOAH’s 40th birthday!!
Do you have your tickets yet? Don’t wait, get them today at: www.albinism.org/NOAHNight
www.albinism.org/NOAHNight/#talent
Published: October 3, 2022
NOAH Night: Red Carpet Update – Co-hosts!
First to arrive on the red carpet are our stylish co-hosts Marleena Barber & Casey Greer! Who will arrive next…?
Want to walk the red carpet? Send your full-body photo to marketing@albinism.org!
www.albinism.org/NOAHNight
Published: October 3, 2022
NOAH Night: Red Carpet Update – Special Guest!
Who is that coming down the red carpet?! It’s NOAH’s favorite fundraising friend, and NOAH Night special guest, Spiffy!!
Want to walk the red carpet? Send your full-body photo to marketing@albinism.org!
www.albinism.org/NOAHNight
Published: October 3, 2022
NOAH Events This Week!
TODAY: Parents of Newly-Diagnosed Children Workshop
October 3rd at 8:30pm ET // 5:30pm PT
Registered Attendees – join Sheila Adamo TONIGHT to become part of a community that will share and learn about adapting to your new albinism journey.
Learn more about upcoming workshop offerings at:
www.albinism.org/workshops
Published: October 3, 2022
Wednesday: Young Adult Connections
October 5th at 9:00pm ET // 6:00pm PT
Young adults, you’re up next! Join us this Wednesday at 9pm ET // 6pm PT to connect with fellow PWAs.
New to the group? There’s still time to join!
www.albinism.org/NOAH-Connections/#young-adults
Published: October 3, 2022
Thursday: Adult Connections
October 6th at 9:00pm ET // 6:00pm PT
Awkward Moments!
Adults with albinism, join us this Thursday at 9pm ET // 6pm PT to share your most awkward, funny, or embarrassing moments as a PWA.
www.albinism.org/NOAH-Connections/#adults
Published: October 3, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: October 3, 2022
| Thursday, October 13th: NOAH Connections: Teens | Tuesday, October 18th: NOAH Connections: Aging with Albinism |
| Wednesday, October 19th: NOAH Connections: Young Adults | Thursday, October 20th: NOAH Connections: Adults |
| Thursday, October 27th: NOAH Connections: Teens | Wednesday, November 2nd: NOAH Connections: Young Adults |
| Wednesday, November 3rd: NOAH Connections: Adults | Monday, November 7th: NOAH Workshops: Parents & Caregivers |
| Tuesday, November 8th: NOAH Connections: Parenting without Pigment |
Takeover Tuesday – TOMORROW!
We’re so excited that Iida will be taking over our social media TOMORROW! Don’t miss out – make sure you’re following NOAH on Facebook & Instagram to catch a day in Iida’s life as a solo traveler with albinism.
Would you like to share a day in YOUR life on NOAH social media? Send a message to Emily at eaubrey@albinism.org with a little bit of info about yourself for the chance to be featured in a future takeover!
Fundraiser Shout-out!
NOAH Grandparent, Brenda Schnitker, promoted Albinism Awareness Day, June 13th, to her Mary Kay customers. From all sales in the month of June, she donated 25% to NOAH in honor of her granddaughter, Olivia.
Thank you, Brenda!!
Published: September 26, 2022
Rosh Hashanah
Wishing a happy Rosh Hashanah to all in our community who celebrate!
Published: September 26, 2022
Celebrate NOAH’s 40th Birthday!
NOAH Night: A Cause for Celebration is a virtual gathering where people with albinism, families, and friends of NOAH will join together in celebration of NOAH’s 40th birthday! Join us for an evening that has something for everyone – a VIP social hour to kick things off, a showcase of NOAH community talent, a look at NOAH through the years, and an after-party for everyone!!
Learn more about NOAH Night at www.albinism.org/NOAHNight
Last Chance to Submit Your Talent!
Celebrate NOAH’s 40th birthday with a showcase of talent!
We know you have the skills, join us to inspire others.
Submit a video demonstrating your abilities by TODAY (Monday, September 26th) for an opportunity to take part in our NOAH Night Talent Show on October 15th.
Submit your talent today!
www.albinism.org/NOAHNight/#talent
Published: September 26, 2022
Get Your Tickets Today!
Hershula & Jayana are so excited for NOAH Night and we are too!
We hope to see YOU at NOAH Night on Saturday, October 15th at 8pm ET // 5pm PT to celebrate NOAH’s 40th birthday!!
Do you have your tickets yet? Don’t wait, get them today at: www.albinism.org/NOAHNight
Published: September 26, 2022
Spiffy’s Art Contest!
In honor of NOAH’s 40th birthday, Spiffy is having an Art Contest open to kids & teens with albinism. Artists can submit a Spiffy Coloring Page, or freestyle artwork.
Contest winners will be announced at the NOAH Night celebration, and featured in a future issue of Albinism InSight!
Learn more and submit YOUR artwork by October 1st:
www.albinism.org/NOAHNight/#spiffy
Published: September 26, 2022
Calling All White Cane Users!
In addition to being NOAH’s 40th Birthday & our NOAH Night Celebration, October 15th is also White Cane Day! In honor of this occasion, we are compiling photos and videos of white cane users in our community to be shared as part of a special feature at NOAH Night!
If you’d like the chance to be included in this special feature, upload your photos or videos to our White Cane Day album by October 1st:
Published: September 26, 2022
NOAH Events This Week!
Tuesday: Parenting without Pigment
September 27th at 9:00pm ET // 6:00pm PT
Huddle up with your fellow Parents without Pigment tomorrow at 9pm ET // 6pm PT as we chat about kids in sports. We’ll cover topics from getting the right equipment to getting to the game, and of course, we’ll chat about actually seeing your kiddo in action! Bring your wisdom and questions to help us kick off another exciting NOAH Connection!
New to the group?
Join now for the link to this call, and you’ll get the invite future calls too!
www.albinism.org/NOAH-Connections/#pwp
Published: September 26, 2022
Thursday: Teen Connections
September 29th at 8:00pm ET // 5:00pm PT
Teens with albinism, join us this Thursday at 8pm ET // 5pm PTto connect and chat with your PWA pals.
New to the group? Sign up today and we’ll send you info for this call as well as email reminders for future sessions!
www.albinism.org/NOAH-Connections/#teens
Published: September 26, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: September 26, 2022
Monday, October 3rd: NOAH Workshops: Parents & Caregivers | Wednesday, October 5th: NOAH Connections: Young Adults |
| Thursday, October 6th: NOAH Connections: Adults | Thursday, October 13th: NOAH Connections: Teens |
| Tuesday, October 18th: NOAH Connections: Aging with Albinism | Wednesday, October 19th: NOAH Connections: Young Adults |
| Thursday, October 20th: NOAH Connections: Adults |
Takeover Tuesday – Highlight!
Did you miss Yasmine’s awesome takeover this past Tuesday? No worries! We’ve saved her takeover in the highlights on NOAH’s Instagram profile.
Check it out at: www.instagram.com/noahalbinism
Would you like to share a day in YOUR life on NOAH social media? Send a message to Emily at eaubrey@albinism.org with a little bit of info about yourself for the chance to be featured in a future takeover!
LatinX & Hispanic Heritage Month!
NOAH Community member, Kathi Garza, shares some of her experiences growing up in a Mexican American family, and how she stays connected to her cultural identity now.
Check it out at www.albinism.org/heritage
Hispanic & LatinX PWAs – how do you stay connected to your heritage or honor your culture? Send a story, photo, or video to eaubrey@albinism.org to be featured on the NOAH Website and social media during LatinX & Hispanic Heritage Month and beyond.
Published: September 19, 2022
Calling All Parents with Albinism!
Huddle up with your fellow Parents without Pigment on Tuesday, September 27th at 9pm ET // 6pm PT as we chat about kids in sports. We’ll cover topics from getting the right equipment to getting to the game, and of course, we’ll chat about actually seeing your kiddo in action!. Bring your wisdom and questions to help us kick off another exciting NOAH Connection!
New to the group?
Join now for the link to this call, and you’ll get the invite future calls too!
www.albinism.org/NOAH-Connections/#pwp
Published: September 19, 2022
Celebrate NOAH’s 40th Birthday at NOAH Night!
NOAH Night: A Cause for Celebration is a virtual gathering where people with albinism, families, and friends of NOAH will join together in celebration of NOAH’s 40th birthday! Join us for an evening that has something for everyone – a VIP social hour to kick things off, a showcase of NOAH community talent, a look at NOAH through the years, and an after-party for everyone!!
Learn more about NOAH Night at www.albinism.org/NOAHNight
One Week Left to Submit Your Talent!
Celebrate NOAH’s 40th birthday with a showcase of talent!
We know you have the skills, join us to inspire others.
Submit a video demonstrating your abilities by Monday, September 26th for an opportunity to take part in our NOAH Night Talent Show on October 15th.
Submit your talent today!
www.albinism.org/NOAHNight/#talent
Published: September 19, 2022
NOAH Night Tickets Now Available!!
NOAH Night is just around the corner, and we can’t wait to celebrate the albinism community with our hosts Marleena Barber & Casey Greer (and special guest Rupert!).
Get YOUR tickets today: www.albinism.org/NOAHNight
albinism.org/NOAHNight/#sponsor
Published: September 19, 2022
- Colleagues at the University of Iowa Hospitals & Clinics and the National Advanced Driving Simulator are looking for volunteers who are required to wear a bioptic telescope while driving to participate in a research study.
For more information, visit: www.albinism.org/research/#u-iowa - NOAH community member, Marleena Barber, is having a free performance of her one-woman cabaret show, Thank You For the Music, Saturday, October 1st at 2pm. The performance and talk with the artist will be held at Positive Exposure 109 in NYC.
For more details or to RSVP: http://albinism.org/wp-content/uploads/2022/09/Thank-you-for-the-music-Poster.pdf
NOAH Events This Week!
Tuesday: Aging with Albinism
September 20th at 5:00pm ET // 3:00pm PT
Join June Waugh and friends for our next session of NOAH Connections: Aging with Albinism tomorrow, Tuesday, September 20th at 5pm ET // 2pm PT.
New to the group? There’s still time to sign up!
www.albinism.org/NOAH-Connections/#aging
Published: September 19, 2022
Tuesday: NOAH Research Program Coffee Chat
September 20th at 8:00pm ET // 5:00pm PT
Join NOAH Executive Director, Karen Bly and the NOAH Research Program Committee, for a special NOAH Connections Coffee Chat about the NOAH Research Program on Tuesday, September 20th at 8pm ET // 5pm PT.
www.albinism.org/NOAH-Connections/#coffee
Published: September 19, 2022
Wednesday: Young Adult Connections
September 21st at 9:00pm ET // 6:00pm PT
Young adults, you’re invited to our next session of NOAH Connections just for you this Wednesday, September 21st at 9pm ET // 6pm PT.
New to the group? There’s still time to sign up!
www.albinism.org/NOAH-Connections/#young-adults
Published: September 19, 2022
Thursday: Adult Connections
September 22nd at 9:00pm ET // 6:00pm PT
Adults, get ready for your next chance to chat and connect with your PWA pals!
We can’t wait to “see” YOU this Thursday at 9pm ET // 6pm PT!
www.albinism.org/NOAH-Connections/#adults
Published: September 19, 2022
Sunday: PWAs in STEM Connections
September 25th at 5:00pm ET // 2:00pm PT
Calling All PWAs in STEM!
Join Sarah Kane & Derek Schindelman for social time with fellow PWAs in the STEM Fields, Sunday, September 25th at 5pm ET // 2pm PT. We can’t wait to see you there!
www.albinism.org/NOAH-Connections/#STEM
Published: September 19, 2022
Sunday: LGBTQ+ and Allies Connections
September 25th at 8:00pm ET // 5:00pm PT
LGBTQ+ PWAs and allies – join us on Sunday, September 25th at 8pm ET // 5pm PT for our next session of NOAH Connections just for you.
New to the group? There’s still time to sign up!
www.albinism.org/NOAH-Connections/#lgbtq
Published: September 19, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: September 19, 2022
| Monday, September 27th: NOAH Workshops: Parents & Caregivers | Thursday, September 29th: NOAH Connections: Teens |
Monday, October 3rd: NOAH Workshops: Parents & Caregivers | Wednesday, October 5th: NOAH Connections: Young Adults |
| Thursday, October 6th: NOAH Connections: Adults | Thursday, October 13th: NOAH Connections: Teens |
| Wednesday, October 19th: NOAH Connections: Young Adults | Thursday, October 20th: NOAH Connections: Adults |
Takeover Tuesday – TOMORROW!
We’re so excited that Yasmine will be taking over our social media TOMORROW! Don’t miss out – make sure you’re following NOAH on Facebook & Instagram to catch a day in Yasmine’s life as a college student with albinism.
Would you like to share a day in YOUR life on NOAH social media? Send a message to Emily at eaubrey@albinism.org with a little bit of info about yourself for the chance to be featured in a future takeover!
LatinX & Hispanic Heritage Month!
Calling All LatinX & Hispanic PWAs!
LatinX & Hispanic Heritage Month is just around the corner, and we want to hear from YOU.
How do you stay connected to your heritage or honor your culture? Send a story, photo, or video to eaubrey@albinism.org to be featured on the NOAH Website and social media during LatinX & Hispanic Heritage Month and beyond.
Published: September 12, 2022
You’re Invited to a NOAH Research Program Coffee Chat!
Join NOAH Executive Director, Karen Bly and the NOAH Research Program Committee, for a special NOAH Connections Coffee Chat about the NOAH Research Program on Tuesday, September 20th at 8pm ET // 5pm PT.
www.albinism.org/NOAH-Connections/#coffee
Published: September 12, 2022
Celebrate NOAH’s 40th Birthday at NOAH Night!
NOAH Night: A Cause for Celebration is a virtual gathering where people with albinism, families, and friends of NOAH will join together in celebration of NOAH’s 40th birthday! Join us for an evening that has something for everyone – a VIP social hour to kick things off, a showcase of NOAH community talent, a look at NOAH through the years, and an after-party for everyone!!
Learn more about NOAH Night at www.albinism.org/NOAHNight
NOAH Night Tickets Now Available!!
NOAH Night is just around the corner, and we can’t wait to celebrate the albinism community with our hosts Marleena Barber & Casey Greer (and special guest Rupert!).
Get YOUR tickets today: www.albinism.org/NOAHNight
Published: September 12, 2022
Help Us Spread the Word!
Exciting NOAH Night Sponsorship opportunities are available, and we need your help finding sponsors!
Do you know someone who would be eager to celebrate NOAH’s 40th birthday and support the albinism community? Make sure they don’t miss out!
albinism.org/NOAHNight/#sponsor
Published: September 12, 2022
Announcing, Spiffy’s Art Contest!
In honor of NOAH’s 40th birthday, Spiffy is having an Art Contest open to kids & teens with albinism. Artists can submit a Spiffy Coloring Page, or freestyle artwork.
Contest winners will be announced at the NOAH Night celebration, and featured in a future issue of Albinism InSight!
Learn more and submit YOUR artwork by October 1st:
www.albinism.org/NOAHNight/#art-contest
Published: September 12, 2022
Talent Search!
Calling all PWAs! Do you have a noteworthy talent that makes YOU uniquely you? Share your skills in our talent showcase, NOAH Has Talent!, during our NOAH Night celebration on October 15th.
Learn more & submit YOUR talent by September 26th: www.albinism.org/NOAHNight/#talent
Published: September 12, 2022
Calling All White Cane Users!
In addition to being NOAH’s 40th Birthday & our NOAH Night Celebration, October 15th is also White Cane Day! In honor of this occasion, we are compiling photos and videos of white cane users in our community to be shared as part of a special feature at NOAH Night!
If you’d like the chance to be included in this special feature, upload your photos or videos to our White Cane Day album by October 1st: https://bit.ly/3DjlIJt
Published: September 12, 2022
NOAH Events This Week!
TONIGHT: Grandparent Connections
September 12th at 8:00pm ET // 5:00pm PT
Calling all grandparents!
Join Sherry Dinner & Rick Hrach for an open forum discussion just for grandparents TONIGHT at 8:00pm ET // 5:00pm PT!
New to the group? There’s still time to sign up!
www.albinism.org/NOAH-Connections/#grandparents
Published: September 12, 2022
Tuesday: Supporting the Psychosocial Well-Being of Children and Youth with Albinism
September 13th at 9:00pm ET // 6:00pm PT
Parents, caregivers, educators, clinicians, and others – join Jocelyn Leworthy this Tuesday, September 13th at 9pm ET // 6pm PT to learn about ways to support the psychosocial well-being of children & youth with albinism. This session will offer an overview of psychosocial development, as well as interactive activities and discussion.
Register today!
www.albinism.org/NOAH-Connections/#psychosocial
Published: September 12, 2022
Thursday: Teen Connections
September 15th at 8:00pm ET // 5:00pm PT
Teens, get ready to kick off September with our next session of NOAH Connections just for you!
We can’t wait to see YOU this Thursday at 8pm ET // 5pm PT!
New to the group? Sign up now!
www.albinism.org/NOAH-Connections/#teens
Published: September 12, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: September 12, 2022
| Tuesday, September 20th: NOAH Connections: NOAH Research Program Coffee Chat | Wednesday, September 21st: NOAH Connections: Young Adults |
| Thursday, September 22nd: NOAH Connections: Adults | Sunday, September 25th: NOAH Connections: PWAs in STEM NOAH Connections: LGBTQ+ and Allies |
| Monday, September 27th: NOAH Workshops: Parents & Caregivers | Thursday, September 29th: NOAH Connections: Teens |
Monday, October 3rd: NOAH Workshops: Parents & Caregivers |
Talent Search!
Calling all PWAs! Do you have a noteworthy talent that makes YOU uniquely you? Share your skills in our talent showcase, NOAH Has Talent!, during our NOAH Night celebration on October 15th.
Learn more & submit YOUR talent by September 26th: www.albinism.org/NOAHNight/#talent
#TakeoverTuesday
We are so excited to share that Yasmine Straker will be kicking off our social media takeover series on Tuesday, September 13th…which just so happens to be her birthday!
Would you like to share a day in YOUR life on NOAH social media? Send a message to Emily at eaubrey@albinism.org with a little bit of info about yourself for the chance to be featured in a future takeover!
Published: August 29, 2022
New Date – Workshop Rescheduled!
Parents & Caregivers – join Sheila Adamo on Tuesday, September 27th to become part of a community that will share and learn about adapting to your new albinism journey.
Register by September 25th to secure your spot!
www.albinism.org/workshops
Published: August 29, 2022
Back to School!
It’s that time of the year again…and we know many of our community members are back to school already. So, if you’re back in class (educators too!), show us your best back to school pics on our recent Facebook Post!
Published: August 29, 2022
Mark Your Calendar!
Parents & Caregivers – join Sheila Adamo on Thursday, September 15th to become part of a community that will share and learn about adapting to your new albinism journey.
Register by September 13th to secure your spot!
www.albinism.org/workshops
Published: August 29, 2022
- NOAH community members Casey & Cassandra host the Rare with Flair podcast, and they recently released a NOAHCon recap episode. Check it out! https://rarewithflair.com/noahcon22/
- Have you seen this article about NOAH community member, Rebecca Rosenberg? Rebecca founded ReBokeh, an app which increases accessibility for those with moderate visual impairment.https://ventures.jhu.edu/news/student-founders-disabilities/
NOAH Events This Week!
Tuesday: Parenting without Pigment
August 30th at 9:00pm ET // 6:00pm PT
Calling all parents without pigment!!
Join Marleena Barber on Tuesday at 9pm ET // 6pm PT to discuss the support systems we have as parents with albinism.
New to the group? Now’s the perfect time to join!
www.albinism.org/NOAH-Connections/#pwp
Published: August 29, 2022
Thursday: Teen Connections
September 1st at 8:00pm ET // 5:00pm PT
Teens, get ready to kick off September with our next session of NOAH Connections just for you!
We can’t wait to see YOU this Thursday at 8pm ET // 5pm PT!
New to the group? Sign up now!
www.albinism.org/NOAH-Connections/#teens
Published: August 29, 2022
Thursday: Life Hacks with Cassandra & Liz
September 1st at 9:00pm ET // 6:00pm PT
If you missed the popular Life Hacks session at NOAHCon2022, or you’d like to experience it again, sign up for the encore presentation of this crowd-favorite session today!
Liz Schafer and Cassandra Mendez will be sharing their best tips and tricks for life as a PWA on Thursday at 9pm ET // 6pm PT.
Sign up now!
www.albinism.org/NOAH-Connections/#life-hacks
Published: August 29, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: August 29, 2022
| Wednesday, September 7th: NOAH Connections: Young Adults | Thursday, September 8th: NOAH Connections: Adults |
| Monday, September 12th: NOAH Connections: Grandparents | Tuesday, September 13th: NOAH Connections: Supporting the Psychosocial Well-Being of Children and Youth with Albinism |
| Thursday, September 15th: NOAH Connections: Teens NOAH Workshops: Parents & Caregivers | Wednesday, September 21st: NOAH Connections: Young Adults |
| Thursday, September 22nd: NOAH Connections: Adults | Monday, September 27th: NOAH Workshops: Parents & Caregivers |
Congratulations, Christionna!
Join us in congratulating 2022 Space Camp Scholarship winner, Christionna S.! We look forward to hearing about your SCIVIS experience this fall.
NOAH Night Planning Committee
The planning for NOAH Night is already underway, but there’s still time for YOU to help!
PWAs & family members, share your ideas on the NOAH Night Planning Committee leading up to the big event on NOAH’s 40th birthday, October 15th!
For more details: http://albinism.org/wp-content/uploads/2022/08/NOAH-Night-Committee.pdf
Interested in joining? Send us a message at info@albinism.org
Published: August 22, 2022
Calling all Parents without Pigment!!
Join Marleena Barber on Tuesday, August 30th at 9pm ET // 6pm PT to discuss the support systems we have as parents with albinism.
New to the group? Now’s the perfect time to join!
www.albinism.org/NOAH-Connections/#pwp
Published: August 22, 2022
Life Hacks with Cassandra & Liz!
If you missed the popular Life Hacks session at NOAHCon2022, or you’d like to experience it again, sign up for the encore presentation of this crowd-favorite session today!
Liz Schafer and Cassandra Mendez will be sharing their best tips and tricks for life as a PWA on Thursday, September 1st at 9pm ET // 6pm PT.
Sign up now!
www.albinism.org/NOAH-Connections/#life-hacks
Published: August 22, 2022
Mark Your Calendar!
Parents & Caregivers – join Sheila Adamo on Thursday, September 15th to become part of a community that will share and learn about adapting to your new albinism journey.
Register by September 13th to secure your spot!
www.albinism.org/workshops
Published: August 22, 2022
- Parents of kids with albinism middle/high school, or transitioning to college – check out the Lighthouse Guild’s upcoming Tele-Support Group – Adapting as our Children Grow. The next session will be held September 22nd at 8:30pm ET // 5:30pm PT.More details: http://albinism.org/wp-content/uploads/2022/08/email-lighthouse-2nd.pdf
NOAH Events This Week!
Wednesday: Young Adult Connections
August 24th at 9:00pm ET // 6:00pm PT
Calling all young adults with albinism!
Don’t miss out on your next chance to connect with fellow PWAs – join us this Wednesday at 9pm ET // 6pm PT!
www.albinism.org/NOAH-Connections/#young-adults
Published: August 22, 2022
Thursday: Adult Connections
August 25th at 9:00pm ET // 6:00pm PT
Adults with albinism – we can’t wait to see you Thursday!
Join us on Zoom this Thursday at 9pm ET // 6pm PT to connect and chat with PWA pals old and new!
New to the group? Sign up now!
www.albinism.org/NOAH-Connections/#adults
Published: August 22, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: August 22, 2022
| Tuesday, August 30th: NOAH Connections: Parenting without Pigment | Thursday, September 1st: NOAH Connections: Teens NOAH Connections: Life Hacks with Liz & Cassandra |
| Wednesday, September 7th: NOAH Connections: Young Adults | Thursday, September 8th: NOAH Connections: Adults |
| Tuesday, September 13th: NOAH Connections: Supporting the Psychosocial Well-Being of Children and Youth with Albinism | Thursday, September 15th: NOAH Connections: Teens NOAH Workshops: Parents & Caregivers |
| Wednesday, September 21st: NOAH Connections: Young Adults | Thursday, September 22nd: NOAH Connections: Adults |
National Eye Exam Month
August is National Eye Exam Month, so we’re thinking of the awesome optometrists & ophthalmologists that help care for the eyes of PWAs everywhere.
Do you have an awesome eye doctor? Shout them out on our recent Facebook post!
Congratulations, Prize Winners!
Join us in congratulating Alicia C., Hollie W., and Benjamin F., who are the winners of Spiffy’s Scavenger Hunt prize drawing at NOAHCon22! Each prize winner will receive a voucher for $50 off registration for a future NOAH event.
Thank you to everyone who played Spiffy’s Scavenger Hunt at the NOAH conference!
Published: August 15, 2022
NOAH Helps Grandparents Connect!
In addition to providing social and educational sessions and workshops for grandparents, NOAH also helps put grandparents in touch with others who truly understand the journey of grandparenting a child with albinism.
Encourage your grandparents to send a message to grandparents@albinism.org to be connected with fellow grandparents in the NOAH community.
Published: August 15, 2022
It’s Easy to Create a Facebook Fundraiser for NOAH!
Starting a fundraiser takes just minutes, and the money raised helps us continue to provide programs and services to the community!
Follow the graphic to set up a fundraiser for NOAH today at:
facebook.com/fund/NOAH.Albinism/
Published: August 15, 2022
- Have you seen the new GapKids commercial? This recent ad highlights the interests and talents of many kids, including a drummer with albinism!Check it out: https://www.youtube.com/watch?v=fYolts75D20
- Dr. Niya Pickett Miller (parent of a PWA, longtime NOAH volunteer and NOAHCon 2022 Keynote Address Speaker) is using research to illuminate albinism identity and communication, and she needs your help! If you would be willing to share your authentic story as a PWA or someone connected to albinism, please complete Dr. Pickett Miller’s brief survey at:
https://docs.google.com/forms/d/1EsM65n5XcV9lTmVBlLB-RIH5Lk9onf_Dn38kaqu5QZA/viewform?edit_requested=true - Did you know that the US government recently expanded the availability of COVID test options for people who are blind or visually-impaired? Now, blind and low-vision users have the option to order Ellume COVID home tests, which provide audio instructions and test results through a smartphone app. For more info, visit: https://acl.gov/covid19/tests-people-who-are-blind-or-have-low-visionIf you would like to order tests, call 1-800-232-0233
NOAH Events This Week!
TODAY: Albinism and the Family Workshop
August 15th at 8:30pm ET // 5:30pm PT
Registered attendees – join Sheila Adamo tonight to deepen your understanding and provide solutions to common obstacles parents, grandparents and caregivers of children with albinism may face.
To learn more about upcoming NOAH workshops, visit:
www.albinism.org/workshops
Published: August 15, 2022
Thursday: Teen Connections
August 18th at 8:00pm ET // 5:00pm PT
Teens, you’re up next!
Join us this Thursday at 8pm ET // 5pm PT to discuss mobility and navigating our surroundings!
New to the group? Sign up now!
www.albinism.org/NOAH-Connections/#teens
Published: August 15, 2022
Saturday: PWAs in STEM
August 20th at 5:00pm ET // 2:00pm PT
Calling All PWAs in STEM!
Join Sarah Kane & Derek Schindelman for social time with fellow PWAs in the STEM Fields, Saturday, August 20th at 5pm ET // 2pm PT. We can’t wait to see you there!
www.albinism.org/NOAH-Connections/#STEM
Published: August 15, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: August 15, 2022
| Wednesday, August 24th: NOAH Connections: Young Adults | Thursday, August 25th: NOAH Connections: Adults |
| Thursday, September 1st: NOAH Connections: Teens | Wednesday, September 7th: NOAH Connections: Young Adults |
| Thursday, September 8th: NOAH Connections: Adults |
NOAH’s Back to School Library
Parents & caregivers – we want to hear from YOU!
How do you/your child share info about albinism with their teachers or classmates at the beginning of the school year? Do you/they write a letter, make a presentation, or go a different route?
Submit your sample letters, presentations, ideas, etc. (including your child’s age/grade, and photos/videos if applicable!) to bts@albinism.org for the chance to be added to our Back to School Library!
Published: August 8, 2022
Low Vision Driving Workshop Recording Now Available for Purchase!
Missed the LV Driving Workshop at NOAHCon22? No worries! The recording of this jam-packed day-long workshop is now available at the NOAH Online Store.
Purchase the recording today to check out sessions addressing the clinical low vision exam, bioptic telescopes, pre-driver readiness; behind-the-wheel training and testing; transportation as a non-driver; gaining control of transportation needs; how a bioptic driving bill becomes law, and more!
https://app.donorview.com/GnR0
Published: August 8, 2022
Register Today!
Parents, Grandparents, & Caregivers of children with albinism – join Sheila Adamo on Monday, August 15th to deepen your understanding and provide solutions to common obstacles parents, grandparents and caregivers of children with albinism may face.
Register by August 13th to secure your spot!
www.albinism.org/workshops
Published: August 8, 2022
#TakeoverTuesday
We’re very excited to start a new segment on NOAH Social media, featuring the day in the life of a PWA for #TakeoverTuesday…
But, before we get started, we want to hear from YOU! What would you like to see for #TakeoverTuesday?
Let us know on our recent Facebook Post!
Published: August 8, 2022
Spiffy Shout-Out!
Your favorite fundraising friend, Spiffy, has a special shout-out for the Kelly Family, who hosted a fundraising event and raised over $12,000 for NOAH! Way to go!!
Check out the options and create
YOUR fundraising page today:
www.albinism.org/fundraisers
Published: August 8, 2022
- Jasmine is a Star, a film following the journey of a determined 16-year-old girl with albinism, premiered last week at the BlackStar Film Festival! For more info about Jasmine is a Star and the BlackStar Film Festival, visit: https://www.blackstarfest.org/festival/events/jasmine-is-a-star-2/
- Did you know that our friends at the HPS Network offer monthly support calls for people with HPS and their families? Check out their upcoming programming at https://www.hpsnetwork.org/member-connect-calls/ For more info, contact the HPS Network at info@hpsnetwork.org
NOAH Events This Week!
TODAY: NOAHCon Recap Panel
August 8th at 9:00pm ET // 6:00pm PT
Whether you were unable to attend the NOAH conference or you attended and would like to relive the experience, join us for a NOAHCon recap panel TONIGHT at 9pm ET // 6pm PT, featuring Liz Schafer, Erika Evans, Courtney Korb, and Dale Hamilton.
We will touch on the highlights, sessions, and things learned at the 2022 conference.
All are welcome, so register now!
www.albinism.org/NOAH-Connections/#noahcon
Published: August 8, 2022
Wednesday: Young Adult Connections
August 10th at 9:00pm ET // 6:00pm PT
Young adults, let’s chat about dating!
Join us this Wednesday at 9pm ET // 6pm PT to discuss how we navigate the dating world as young adults with albinism!
www.albinism.org/NOAH-Connections/#young-adults
Published: August 8, 2022
TODAY: NOAHCon Recap Panel
August 8th at 9:00pm ET // 6:00pm PT
Whether you were unable to attend the NOAH conference or you attended and would like to relive the experience, join us for a NOAHCon recap panel TONIGHT at 9pm ET // 6pm PT, featuring Liz Schafer, Erika Evans, Courtney Korb, and Dale Hamilton.
We will touch on the highlights, sessions, and things learned at the 2022 conference.
All are welcome, so register now!
www.albinism.org/NOAH-Connections/#noahcon
Published: August 8, 2022
Sunday: LBGTQ+ & Allies Connections
August 14th at 8:00pm ET // 5:00pm PT
LGBTQ+ & Allies, you’re up next!
Join us this Sunday, August 14th at 8pm ET // 5pm PT for our next session of NOAH Connections just for you!
New to the group? Sign up now for the invite to this call & we’ll send you email reminders for future opportunities to connect!
www.albinism.org/NOAH-Connections/#lgbtq
Published: August 8, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: August 8, 2022
| Monday, August 15th: NOAH Workshops: Albinism and the Family | Thursday, August 18th: NOAH Connections: Teens |
| Saturday, August 20th: NOAH Connections: PWAs in STEM | Wednesday, August 24th: NOAH Connections: Young Adults |
| Thursday, August 25th: NOAH Connections: Adults | Thursday, September 1st: NOAH Connections: Teens |
| Wednesday, September 7th: NOAH Connections: Young Adults | Thursday, September 8th: NOAH Connections: Adults |
NOAHCon Recap Session!
Whether you were unable to attend the NOAH conference or you attended and would like to relive the experience, join us for a NOAHCon recap panel August 8th at 9pm ET // 6pm PT, featuring Liz Schafer, Erika Evans, Courtney Korb, and Dale Hamilton.
We will touch on the highlights, sessions, and things learned at the 2022 conference.
All are welcome, so register today!
www.albinism.org/NOAH-Connections/#noahcon
Published: August 1, 2022
How I See!
Whether you are a non-PWA looking to better understand a PWA’s vision, or a PWA interested in indulging in a conversation about how you see and the ways you communicate your vision to others, Elizabeth Schafer’s “How I See” is perfect for you!
This encore presentation of our NOAHCon22 session will include a series of paintings created by a PWA, an interactive activity, and a Q&A/discussion.
We hope you’ll join us on August 9th at 8pm ET // 5pm PT!
Sign up today: www.albinism.org/NOAH-Connections/#see
Published: August 1, 2022
Registration is Now Open!
Parents, Grandparents, & Caregivers of children with albinism – join Sheila Adamo on Monday, August 15th to deepen your understanding and provide solutions to common obstacles parents, grandparents and caregivers of children with albinism may face.
Register by August 13th to secure your spot!
www.albinism.org/workshops
Published: August 1, 2022
International Day of Friendship!
Last Friday was the International Day of Friendship, so we celebrated the many friendships in the NOAH Community by sharing shout-outs to NOAH friends!
Give a shout-out to one of your NOAH friends (pics encouraged!) on our recent Facebook post!
Published: August 1, 2022
- Did you know that last Tuesday was the 32nd anniversary of the Americans with Disabilities Act (ADA)? NOAH is proud to support this important civil rights law that works to ensure all people with disabilities have the same rights and opportunities as everyone else.
To learn more, visit: www.adaanniversary.org/ - Did You Know?! The Global Albinism Alliance recently announced the 2022 International Scientific Conference on Albinism – ISCA 2022, which will be held online November 16-19, 2022. Check out their recent post for more details! https://bit.ly/3zQiRpz
- Join us in congratulating former UN independent expert on albinism, I.K. Ero, who was recently awarded an honorary Doctor of Laws degreefrom Lancaster University! https://bit.ly/3JjTJul
- The United Nations Independent Expert on Albinism (UN IE), Muluka-Anne Miti-Drummond, is preparing a report for the next session of the UN General Assembly on people with albinism on the move. In support of this effort, the Global Albinism Alliance is conducting a survey to help gather information. If you have ever moved within your country for any reason(s) directly related to you or a family member’s albinism, the GAA encourages you to complete their Albinism and Moving Survey. https://bit.ly/3BBKBiO
NOAH Events This Week!
Thursday: Teen Connections
August 4th at 8:00pm ET // 5:00pm PT
Teens, you’re up next! Join us this Thursday at 8pm ET // 5pm PT for our next session of NOAH Connections just for you!
www.albinism.org/NOAH-Connections/#teens
Published: August 1, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: August 1, 2022
| Monday, August 8th: NOAH Connections: NOAH Conference Recap Panel | Tuesday, August 9th: NOAH Connections: How I See with Elizabeth Schafer |
| Wednesday, August 10th: NOAH Connections: Young Adults | Thursday, August 11th: NOAH Connections: Adults |
| Monday, August 15th: NOAH Workshops: Albinism and the Family | Thursday, August 18th: NOAH Connections: Teens |
| Saturday, August 20th: NOAH Connections: PWAs in STEM | Wednesday, August 24th: NOAH Connections: Young Adults |
| Thursday, August 25th: NOAH Connections: Adults |
Did You Know?
One year ago Tuesday was Executive Director Karen Bly’s very first day working with NOAH!
Thank you, Karen, for your dedication and leadership in the past year. We can’t wait to see what year 2 brings!
Published: July 25, 2022
In-Person Events – Save the Date!
This one time at NOAH Camp…
Calling all campers with albinism and their families! Mark your calendars for our next NOAH Family Summer Camp, July 14-19, 2023.
We hope you’ll join us for slip n’ slides, s’mores, and lots of laughs with your NOAH friends!
Published: July 25, 2022
See You in the Twin Cities!
Adult PWAs, mark your calendars for our next Adults with Albinism Weekend, September 29 – October 1, 2023 in Minneapolis, MN!
Are you planning to join in on the fun? We hope so!
Published: July 25, 2022
See You in Orange County!
NOAHCon 2022 just ended, but we’re already looking forward to our next conference! Mark your calendars and get ready to join us in Orange County, California July 11-14, 2024!
Published: July 25, 2022
- Remember Cat in the Hat and Gertrude McFuzz? These precious pups with albinism have officially arrived at their forever homes! Check out this recent video from Red Desert Doodles sharing their journey to meet their new owners: https://www.facebook.com/watch/?v=457678289510655&ref=sharing
- Check out these photos of NOAH community members, Aiden & Nate M., who recently competed in the The Windy City Blind Hockey Showdown! https://bit.ly/3vf0EiK
NOAH Events This Week!
Wednesday: Young Adult Connections
July 27th at 9:00pm ET // 6:00pm PT
Young adults, you’re up next! We hope you’ll join us this Wednesday at 9:00pm ET // 6:00pm PT to connect and chat with your PWA pals!
New to the group? Sign up today!
www.albinism.org/NOAH-Connections/#young-adults
Published: July 25, 2022
Thursday: Adult Connections
July 28th at 9:00pm ET // 6:00pm PT
Adult PWAs, we can’t wait to “see” you! Join us this Thursday at 9pm ET // 6pm PT to re-connect with old friends, and make some new ones!
www.albinism.org/NOAH-Connections/#adults
Published: July 25, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: July 25, 2022
| Thursday, August 4th: NOAH Connections: Teens | Wednesday, August 10th: NOAH Connections: Young Adults |
| Thursday, August 11th: NOAH Connections: Adults | Thursday, August 18th: NOAH Connections: Teens |
Thank YOU for Joining Us at NOAHCon!
Looking back at this weekend’s conference, we want to thank all of our awesome attendees who joined us for education, connection, and camaraderie in our first in-person conference in four years. As you think back on this jam-packed weekend, share a favorite memory (or two!) that made your conference experience memorable on our recent Facebook post.
Published: July 18, 2022
Thank You, Special Guests!
Join us in sending a special shout-out to our 6 special guests who shared their conference experience on NOAH’s social media this weekend.
Thank you Courtney, Gabriella, Sarah, Casey, Yasmine, and Jessica for taking time out of your day at NOAHCon to share your perspective and experience with our community!
Published: July 18, 2022
We Want YOU For Albinism InSight!
Submitting an article to Albinism InSight is a great way for you to share your knowledge and experience with the albinism community! Submissions are due this Wednesday, July 20th.
For more information, visit: www.albinism.org/AI/call-for-content
Published: July 18, 2022
Tell Your Teachers!
NOAH Ed U is a complimentary supplement of Albinism InSight geared specifically towards educators, and the Summer 2022 Issue is now available. Tell all of the teachers in your life to check it out today!
Published: July 18, 2022
- Check out this video feature on NOAH Community member, Elizabeth Schafer, and her work with Splashes of Hope, creating art installations at children’s hospitals! https://www.youtube.com/watch?v=0AWCXt761ho
NOAH Events This Week!
Thursday: Teen Connections
July 21st at 8:00pm ET // 5:00pm PT
Teens, get ready for our next session of NOAH Connections just for you! Join us this Thursday at 8pm ET // 5pm PT to connect and chat with fellow teens with albinism.
www.albinism.org/NOAH-Connections/#teens
Published: July 18, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: July 18, 2022
| Wednesday, July 27th: NOAH Connections: Young Adults | Thursday, July 28th: NOAH Connections: Adults |
Spiffy Made it to Orlando!
Thanks to our many awesome fundraisers, Spiffy finally made it to Orlando, and he can’t wait to meet you at NOAHCon 2022!
Check out his recent video update.
Published: July 11, 2022
Thank You, NOAHCon Sponsors!
Join us in sending a special shout-out to our NOAHCon 2022 Sponsors:
Epstein | Ostrove
Under the Same Sun
iYellow Group
Encore
Published: July 11, 2022
Conference Attendees – Check Your Inbox!
The NOAHCon 2022 conference schedule & more were sent via email on Friday! If this info-packed message didn’t reach you, send us a message at info@albinism.org.
Published: July 11, 2022
Amazon Prime Day!
Amazon Prime Day is this week, July 12-13th, and this is the perfect chance to snag some great deals while shopping for a good cause.
Designate NOAH as your charity today & we’ll receive 0.5% of all of your purchases through AmazonSmile on Prime Day and everyday!
smile.amazon.com/ch/23-2265173
Published: July 11, 2022
Thank YOU for Shopping for NOAH!
Shoutout to our AmazonSmile shoppers, whose purchases raised over $700 for NOAH from January-March 2022!
When you shop on AmazonSmile, 0.5% of every purchase goes to NOAH.
Start shopping for NOAH today: smile.amazon.com/ch/23-2265173
Published: July 11, 2022
NOAH Events This Week!
Thursday – Sunday: NOAHCon 2022!
July 14-17th
We can’t wait to see YOU in Orlando!
Published: July 11, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: July 11, 2022
| Thursday, July 21st: NOAH Connections: Teens | Wednesday, July 27th: NOAH Connections: Young Adults |
| Thursday, July 28th: NOAH Connections: Adults |
So Close!
Thanks to our many awesome fundraisers who have started their Adopt-a-Day calendars or planned events, Spiffy is getting closer to Orlando every day!
Can YOU help Spiffy make it to FL in time for NOAHCon 2022??
Create your fundraising page today:
www.albinism.org/fundraisers
Published: June 27, 2022
Limited NOAHCon Volunteer Opportunities Still Available!
We have an amazing two days of fun planned for our youngest conference attendees, but we need YOU to help make it happen!
Help make the conference extra special for NOAH Kids and earn a registration fee rebate. Learn more & sign up to volunteer today at:
albinism.org/NOAHCon/volunteer
Published: June 27, 2022
Calling all PWA writers!
THREE spots available for a free manuscript evaluation in advance of the 2022 NOAH Conference.
What: Submit 10-20 pages of your manuscript-in-progress of any genre and receive FREE written feedback followed by a 30-minute meeting at the NOAH conference in Orlando or via Zoom at a mutually decided time.
Who: My name is Emily Urquhart and I am a freelance journalist, writer, editor, and educator. I’ve published two works of nonfiction and a collection of essays that will be out this fall. I’m also the parent of a child with albinism, and I’ve been a parent liaison with NOAH for the past four years.
Contact: emily.urquhart@albinism.org
Published: June 27, 2022
Thank You, Banz!
Join us in sending a special shout-out to New Parent Toolkit Donor, Banz! Thank you, Banz, for donating your careware for kids to families with newly-diagnosed children with albinism.
www.albinism.org/new-parent-program
Published: June 27, 2022
NOAH Events This Week!
Wednesday: Young Adult Connections
June 29th at 9:00pm ET // 6:00pm PT
Young adults, you’re up next! Join us to share experiences and connect with fellow PWAs.
www.albinism.org/NOAH-Connections/#young-adults
Published: June 27, 2022
Thursday: Adult Connections
June 30th at 9:00pm ET // 6:00pm PT
Adults with albinism, we can’t wait to “see” you this Thursday at 9pm ET // 6pm PT!
New to the group? Now’s the perfect time to join in the fun! Sign up today:
www.albinism.org/NOAH-Connections/#adults
Published: June 27, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: June 27, 2022
| Thursday, July 6th: NOAH Connections: Teens | Thursday, July 21st: NOAH Connections: Teens |
| Wednesday, July 27th: NOAH Connections: Young Adults | Thursday, July 28th: NOAH Connections: Adults |
Juneteenth
“The historical legacy of Juneteenth shows the value of never giving up hope in uncertain times.”
On this day commemorating the end of slavery in the US, NOAH celebrates the freedom, accomplishments, and contributions of Black individuals to our NOAH community.
https://nmaahc.si.edu/blog-post/historical-legacy-juneteenth
Published: June 20, 2022
IAAD Fundraiser Shout-Out!
Join us in sending a special shout-out to the NI NOAH and South Chicagoland & NW Indiana IAAD Walk groups, who both hosted events last weekend! Thank you for spreading albinism awareness and raising funds for NOAH.
Want to host your own fundraiser? Check out the easy & fun options at www.albinism.org/fundraisers
Published: June 20, 2022
Sponsor Spotlight!
Join us in giving a special shout-out to our NOAHCon 2022 Opening Session Sponsor, Epstein | Ostrove!
Do you know a company that would benefit from exposure at NOAHCon? Help us spread the word of limited sponsorship opportunities available!
www.albinism.org/NOAHCon/sponsor
Published: June 20, 2022
Fundraiser Shout-Out!
Join us in sending a special shout-out to Marleena, Kathi, Caroline, Betty, Karen, Casey, & Cassandra who are all participating in our Adopt-A-Day Countdown to NOAHCon Fundraiser!
Are you working on filling your calendar? Let us know on our recent Facebook Post.
Thanks to these awesome fundraisers, Spiffy is getting closer to Orlando! If you haven’t started your calendar, it’s not too late to help Spiffy on his journey! Check it out today:
www.albinism.org/fun/adopt-a-day
Published: June 20, 2022
Congratulations, Mackenzie!
NOAH is delighted to announce that Mackenzie Strong has been selected as the honorable mention applicant for the 2022 Michael J. McGowan Leadership Scholarship Award.
Mackenzie is a rising junior at Illinois College, where she is studying secondary education and history, with a minor in political science.
Learn more about Mackenzie: www.albinism.org/leadership22
Published: June 20, 2022
- NOAH community member, Colleen Young, earned her 4th gold medal of the night and set an American record in the Women’s 100M Breaststroke SB13 at the 2022 Para Swimming World Championships last week. Congratulations, Colleen! https://bit.ly/3tOijNo
NOAH Events This Week!
Tuesday: Parenting without Pigment
June 21st at 9:00pm ET // 6:00pm PT
Calling All Parents without Pigment!
Join Robin French this Tuesday, June 21st at 9pm ET // 6pm PT to share your worst & funniest parenting stories!
www.albinism.org/NOAH-Connections/#pwp
Published: June 20, 2022
Thursday: Teen Connections
June 23rd at 8:00pm ET // 5:00pm PT
Teen PWAs – school’s out, and we can’t wait to kick off summer with YOU! Join us this Thursday at 8pm ET // 5pm PT to start summer relaxation with your friends with albinism.
www.albinism.org/NOAH-Connections/#teens
Published: June 20, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: June 20, 2022
| Wednesday, June 29th: NOAH Connections: Young Adults | Thursday, June 30th: NOAH Connections: Adults |
| Thursday, July 6th: NOAH Connections: Teens |
Happy International Albinism Awareness Day!
We hope you’ll join us TONIGHT at 8pm ET // 5pm PT for NOAH’s IAAD celebration on Gatherly. All friends of NOAH are welcome to join, so RSVP now & get ready for games and fun with the albinism community!
www.albinism.org/NOAH-Connections/#iaad
Published: June 13, 2022
NOAH’s Adopt-a-Day Fundraiser Starts Today!
Want to spread albinism awareness and support NOAH but not sure where to start? Join us for the Adopt-a-Day Fundraiser!
Download your own calendar and collect donations in the amount listed to “adopt” each day as we celebrate albinism in a “Countdown to NOAHCon!” Everyone who fills their calendar will have the chance to win a NOAH Prize Pack!
Learn more and start YOUR calendar today:
www.albinism.org/fun/adopt-a-day
Published: June 13, 2022
Donations Needed for NOAHCon Silent Auction!
The conference is fast approaching! Here’s an easy way to give back, whether or not you are attending the conference. NOAH is looking for donations to the silent auction. If you have a great item you would like to donate or know someone you can ask to donate an item in support of NOAH, please let the silent auction team know. All funds go to support NOAH.
Ideal donations are those you would like to bid on. Donations should be new or homemade items such as, electronics, gift certificates, children’s items. For further information please contact auction@albinism.org
Published: June 13, 2022
Limited Late Registrations Available!
We are excited to share that a limited number of adult late registrations will be accepted through June 22nd!
Don’t miss out on the magic of NOAH’s national conference…register today: albinism.org/NOAHCon/registration
Published: June 13, 2022
Last Call for Kennedy Space Center & Icon Park!
Want to join us for a pre-conference excursions to the Kennedy Space Center or Icon Park?
Add your name to the waitlist by June 15th – if we get enough interest, we will add another bus to each trip!
www.albinism.org/NOAHCon
Published: June 13, 2022
- NOAH community member, Ashley J. Hicks, was recently cast in the 2022 Disney Television Discovers: Talent Showcase. Congratulations, Ashley! https://www.instagram.com/p/CeebpnfuOn1/
- FYI: Submissions for the Rare Artist Program are now Open!The Rare Artist Contest provides a national platform for rare artists to showcase their artwork and highlight their stories.Learn more or submit your art at: https://everylifefoundation.org/rare-artist/
NOAH Events This Week!
TODAY: IAAD Party on Gatherly!
June 13th at 8:00pm ET // 5:00pm PT
Join us on Gatherly for a virtual IAAD celebration with the NOAH Community, TONIGHT at 8pm ET // 5pm PT.
All friends of NOAH are welcome – RSVP now!
www.albinism.org/NOAH-Connections/#iaad
Published: June 13, 2022
Tuesday: PWAs in the Legal Profession
June 14th at 8:00pm ET // 5:00pm PT
Calling all law students, lawyers, judges, and paralegals with albinism!
Join fellow PWAs in the legal profession for conversation and connections this Tuesday at 9pm ET // 6pm PT.
New to the group? Join today!
www.albinism.org/NOAH-Connections/#legal
Published: June 13, 2022
Wednesday: Young Adult Connections
June 15th at 9:00pm ET // 6:00pm PT
Young adults, join us this Wednesday for a special session of NOAH Connections.
We’ll discuss applying for jobs!
www.albinism.org/NOAH-Connections/#young-adults
Published: June 13, 2022
Thursday: Adult Connections
June 16th at 9:00pm ET // 6:00pm PT
Adults with albinism, join special guest host, Erika Evans, this Thursday for our next session of Adult NOAH Connections. We can’t wait to see you there!
www.albinism.org/NOAH-Connections/#adults
Published: June 13, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: June 13, 2022
| Tuesday, June 22nd: NOAH Connections: Parenting without Pigment | Thursday, June 23rd: NOAH Connections: Teens |
| Wednesday, June 29th: NOAH Connections: Young Adults | Thursday, June 30th: NOAH Connections: Adults |
Announcing: NOAH’s Adopt-a-Day Fundraiser!
Want to spread albinism awareness and support NOAH but not sure where to start? Join us for the Adopt-a-Day Fundraiser!
Download your own calendar and collect donations in the amount listed to “adopt” each day as we celebrate albinism in a “Countdown to NOAHCon!” Everyone who fills their calendar will have the chance to win a prize!
Learn more and start YOUR calendar today:
www.albinism.org/fun/adopt-a-day
Published: June 6, 2022
You’re Invited!
Join us on Gatherly for a virtual IAAD celebration with the NOAH Community, Monday, June 13th at 8pm ET // 5pm PT.
Sign up today!
www.albinism.org/NOAH-Connections/#iaad
Published: June 6, 2022
Congratulations, Sarah!
NOAH is delighted to announce that Sarah Kane has been awarded the 2022 Michael J. McGowan Leadership Scholarship Award.
Sarah is a rising senior at University of Pennsylvania, where she is studying astrophysics with a minor in philosophy.
Learn more about Sarah: www.albinism.org/leadership22
Published: June 6, 2022
Sponsor Spotlight!
Join us in giving a special shout-out to our NOAHCon 2022 Welcome Reception Sponsor, Under the Same Sun!
Do you know a company that would benefit from exposure at NOAHCon? The sponsorship deadline has passed, but we still have limited sponsorship opportunities available.
Encourage them to learn more at: www.albinism.org/NOAHCon/sponsor
and contact sponsors@albinism.org to set up a conference sponsorship today!
Published: June 6, 2022
Support the HPS Network!
On Friday, June 10th the HPS Network will be hosting an interactive virtual event devoted entirely to listening and learning from patients & caregivers living with HPS.
All NOAH community members are encourage to attend to support the HPS Network & our community members with HPS!
For more info or to register, visit www.hpsnetwork.org/el-pfdd
Published: June 6, 2022
High-Contrast Baby Books Needed!
NOAH’s New Parent Program is in need of books for New Parent Toolkits and we need YOUR help. If you’d like to purchase a book (or a few!) to donate to this program, check out our Amazon Charity List:
Published: June 6, 2022
- Join us in congratulating NOAH Board Vice Chair Elliot Ostrove for being recognized by NJBIZ for his leadership in the legal community. NOAH is so fortunate that Elliot shares his time and talents as a dedicated volunteer. https://bit.ly/3tjia49
- FYI: Access to Resources in Individuals with Albinism Study – Researchers at the Medical College of Wisconsin are conducting an anonymous research survey to learn more about access to genetic testing, vision care, and other resources for individuals with albinism. Respondents ages 18+, or parents/guardians of minors, who have been diagnosed with albinism, wanted for survey study. For more information or to take the survey visit: https://redcap.mcw.edu/surveys/?s=43XCTF43EK
NOAH Events This Week!
Thursday: Teen Connections
June 9th at 8:00pm ET // 5:00pm PT
Teens, you’re up next! Join us this Thursday for our next session of NOAH Connections just for you.
See you there!
www.albinism.org/NOAH-Connections/#teens
Published: June 6, 2022
Save the Date!
Mark your calendars for these upcoming opportunities to connect:
Published: June 6, 2022
| Monday, June 13th: NOAH Connections: IAAD Party on Gatherly! | Monday, June 14th: NOAH Connections: PWAs in the Legal Profession (rescheduled!) |
| Wednesday, June 15th: NOAH Connections: Young Adults | Thursday, June 16th: NOAH Connections: Adults |
| Tuesday, June 22nd: NOAH Connections: Parenting without Pigment | Thursday, June 23rd: NOAH Connections: Teens |
| Wednesday, June 29th: NOAH Connections: Young AdultsThursday, June 23rd: NOAH Connections: Teens | Thursday, June 30th: NOAH Connections: Adults |