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# National Organization for Albinism and Hypopigmentation

Where people with albinism and their families can find acceptance, support and fellowship.

## Sitemaps

- [XML Sitemap](https://albinism.org/sitemap.xml): Contains all public & indexable URLs for this website.

## Pages

- [National Organization for Albinism and Hypopigmentation](https://albinism.org/) - Welcome to NOAH - accurate and authoritative information about all aspects of living with albinism.
- [McGowan Leadership Scholarship](https://albinism.org/leadership/) - NOAH established the Michael J. McGowan Leadership Scholarship Award in 2008 to recognize leadership and empower young people with albinism.
- [2026 McGowan Leadership Memorial Scholarship Award Winner](https://albinism.org/leadership26/) - Owen Delatte A hearty congratulations to Owen Delatte, the 2026 recipient of the McGowan Leadership Scholarship. A lifelong NOAH member, Owen attended his first NOAH conference at the age of 1, and has been involved ever since. Owen has a long history of advocating and educating about albinism, and says that the connections he and
- [Albinism InSight Specific Call for Content](https://albinism.org/ai/call-for-content/) - Ethan Cohen - Editor, Albinism InSight Contribute Your Writing for the Autumn Edition of Albinism InSight! Albinism InSight provides the albinism community with a forum for sharing knowledge and experiences. Any creative writing related to albinism is welcome! We are especially looking for contributions related to: AUTUMN FEATURES: Conference Experiences! What were your favorite moments of
- [New E-News Page](https://albinism.org/e-news/) - Please click the links below to view past issues of NOAH E-News. Want to be added to our email list? Join NOAH and we'll automatically subscribe you to E-News for weekly updates on the albinism community! Join NOAH Today! 2026 2025 2024 December 16 December 9 December 2 November 25 November 18 November 11th November
- [Meet the Parent Liaisons!](https://albinism.org/new-parent-program/pl/) - NOAH’s New Parent Program offers a trained parent liaison volunteer to families. The parent liaison will guide you through the many resources NOAH has to offer and provide you the opportunity to speak directly to a parent of a child with albinism who truly understands. If you are interested in learning more and sharing your
- [NOAH Connections](https://albinism.org/noah-connections/) - NOAH Connections View upcoming NOAH Connections offerings for:Youth with Albinism ~ Teens with Albinism ~ Adults with Albinism ~ Parents & Caregivers ~ Grandparents Inspired by our early pandemic “Social Distancing with Friends” series, as well as the heart-warming connections created during #VirtualNOAHCon2020, NOAH has been offering virtual opportunities for our community to connect through
- [NOAHCon Surveys](https://albinism.org/surveys/) - NOAHCon Surveys Share Your Feedback and Enter for the Chance to Win $50 Off a Future NOAH Event Registration Fee! When you submit a Conference Evaluation or Session Evaluation you help inform future NOAH programming! Session Evaluation Conference Evaluation Registered conference attendees who provide an email address at the end of their evaluations* will be
- [Offsite Activities](https://albinism.org/columbus/offsite/) - Return to the NOAHCon 2026 Attendee Page Offsite Activities If you're joining us for an offsite activity before or during NOAHCon, please see full details below! KayakingWednesday, July 15th ~ 4:00 - 10:00 PM 402 Tower - meet in the lobby seating area near the registration desk Event location is Adaptive Sports Connection ~ 6000 Harriott Rd,
- [Pre-Conference Sessions 2026 Attendee](https://albinism.org/columbus/pre-conf26/) - Return to the NOAHCon 2026 Attendee Page Pre-Conference Sessions If you've signed up for a pre-conference session, please see the details below! Bioptic Driving: Addressing the Transportation Needs of Persons with Visual Challenges*Thursday, July 16th ~ 8:00 AM - 4:30 PM402 Tower - Third Floor - Alfred Tibor Room Interested in joining us? Limited spots
- [Local Events](https://albinism.org/local/) - Get involved locally and enjoy fun and fellowship in the albinism community. It’s a place where questions can be asked and answered about living with this rare genetic condition.
- [Kids' Conference Attendee Page 2026](https://albinism.org/columbus/kids-conf/) - Return to the NOAHCon 2026 Attendee Page All parents of Lollipop Kids are invited to join us Thursday evening from 5:45 - 6:15 PM during our open house to meet Miss Beth and Miss Kelly! Yellow Brick Roadies (1st - 6th grade) Parent Orientation Video: All parents of Yellow Brick Roadies are invited to tour
- [Columbus Hotel Info](https://albinism.org/columbus/hotel-info/) - Return to the NOAHCon 2026 Attendee Page Thank you to our NOAHCon 2026 Social Activities Coordinators ~ Nick & Rebecca Smith for putting together this video!
- [Silent Auction & Raffle Info NOAHCON 2026](https://albinism.org/columbus/auction-raffle/) - Return to the NOAHCon 2026 Attendee Page Silent Auction & Raffle Info Don’t miss your chance to join the fun at the Saturday Dessert Reception, Dance Party, and NOAH Fundraiser! Be sure to register to place your bids, purchase tickets for our raffles, and compete for one-of-a-kind items throughout the evening. Every winning bid and
- [Onsite Research Opportunities](https://albinism.org/columbus/onsite-research/) - Return to the NOAHCon 2026 Attendee Page Onsite Research Opportunities We are pleased to share that NOAHCon attendees will have the opportunity to participate in onsite albinism research during the conference! Research opportunities will be available on the 5th floor of the 402 Tower in the Dax & Barnes Meeting Rooms on the following days/times:
- [Volunteer Information](https://albinism.org/columbus/volunteer-info/) - Return to the NOAHCon 2026 Attendee Page Volunteer Information Thank you so much for being willing to volunteer for NOAHCon 2026! We appreciate your help bringing the NOAH magic to life & helping create a positive conference experience for everyone attending. If you signed up to volunteer, you should have received an email detailing your
- [It's Not Too Late](https://albinism.org/columbus/its-not-too-late/) - Return to the NOAHCon 2026 Attendee Page It's Not Too Late! Wishing you added more social activities to your conference registration? You're in luck! We have space available in the following activities - feel free to join us. North Market Scavenger HuntThursday, July 16th at 8:00 AM – Saturday, July 18th at 5:00 PM59 Spruce
- [Share Your Experiences](https://albinism.org/columbus/video/) - Return to the NOAHCon 2026 Attendee Page Do you feel the NOAHCon magic? We'd love to chat with you! Looking for a simple & easy way to give back to NOAH? Set up a time to chat with Emily or Tim during NOAHCon and share your experiences! Emily & Tim will be capturing footage all
- [Transportation Tips & Info NOAHCon Attendee 2026](https://albinism.org/columbus/transport-tips/) - Return to the NOAHCon 2026 Attendee Page Many thanks to our NOAHCon 2026 Social Activities Coordinators, Nick & Rebecca Smith, for putting together this video to help our conference attendees navigate the John Glenn Columbus International Airport (CMH)! Please use the chapter markers listed in the video description to jump to the section that pertains
- [NOAH Biennial National Conferences](https://albinism.org/noahcon/) - Registration for NOAHCon 2026 is now closed. We look forward to seeing you in Columbus! Remote participants interested in attending our Low Vision Driving Workshop - register today! NOAHCon 2026 Information Station! We are pleased to share our 2026 conference theme... Together We're Unlimited! Because when the albinism community comes together, something powerful happens. New
- [Sun Gear Swap](https://albinism.org/columbus/sun-gear/) - Return to the NOAHCon 2026 Attendee Page Sun Protective Gear Swap Drop Off - If you brought sun-protective clothing, hats, sunglasses, goggles, or other helpful items that are gently used, clean, and in good condition to share with other families, please drop off during the swap: Thursday from 3:00 - 7:00 PM and Friday at
- [T-Shirt & Ticket Pick-Up NOAHCon 2026](https://albinism.org/columbus/t-shirt/) - Return to the NOAHCon 2026 Attendee Page T-Shirt & Ticket Pick-Up NOAHCon 2026 T-Shirts If you pre-ordered a conference t-shirt, they will be available for pickup ________________. Discounted Tickets If you pre-ordered discounted tickets for COSI (Center of Science and Industry) or Gamegrounds and Otherworld at the time of your NOAHCon registration, they will be
- [Conference Check-In](https://albinism.org/columbus/check-in/) - Return to the NOAHCon 2026 Attendee Page Conference Check-In The registration check-in desk is located in Kojo Kamau Prefunction in the 402 Tower on the Fourth Floor! Check in is available: Thursday, July 16th from 3:00 - 8:00 PMFriday, July 17th from 8:00 AM - 5:00 PM At the time of check-in, the head of
- [Silent Auction & Raffle NOAHCon 2026](https://albinism.org/noahcon/auction-26/) - Did you know there's a way to get involved with NOAHCon even if you can't join us in person? We are currently seeking donations for the Silent Auction, Kids' Raffle, and Adult Raffle at NOAHCon 2026. Donating an item is an easy way to give back, whether or not you are attending the conference, and all funds raised will
- [Conference Registration](https://albinism.org/noahcon/registration/) - Return to NOAHCon Main Page NOAHCon Registration Registration for NOAHCon 2026 is now closed. We look forward to seeing you in Columbus! View our Registration Help Guide Registration: Staying at the conference hotel as part of the discounted room block pays off! In addition to being an important part of the social conference experience for
- [Space Camp Scholarship](https://albinism.org/space-camp/) - Learn about scholarships NOAH offers to the Space Camp for Interested Visually Impaired Students (SCIVIS) at the U.S. Space & Rocket Center in Huntsville, AL.
- [Volunteer Opportunities](https://albinism.org/noahcon/volunteer/) - Return to NOAHCon Main Page NOAHCon Volunteer Opportunities Hello Volunteers! Thank you so much for considering volunteering at NOAHCon 2026! Many different talents are required to hold a NOAH conference, and YOU might have what it takes to be the perfect volunteer. Take a look at these volunteer opportunities and please consider helping to make
- [Sonja Harris](https://albinism.org/board-of-directors-sonja-harris/) - Board Member Sonja Harris
- [Conference Hotel](https://albinism.org/noahcon/hotel/) - Return to NOAHCon Main Page NOAHCon 2026 Hotel Information Jump to: General Hotel Info ~ Room Rates ~ Suites Parking ~ Looking for a Roommate? The NOAHCon 2026 room block is now closed! We look forward to seeing you in Columbus :) General Hotel Info: Hilton Columbus Downtown402 N High St. Columbus, OH 43215 USAwww.hiltoncolumbusdowntown.com
- [Teen Spotlight](https://albinism.org/teenspotlight/) - Stories from the teenage NOAH community that will inspire and comfort countless individuals – peers, pre-teens and their parents, among many others.
- [Chloe M. Teen Spotlight](https://albinism.org/teenspotlight/chloe-m/) - Hi, I’m Chloe and I’m 13 years old, born in China, adopted, then raised in Tennessee. I would like to take this opportunity to share some of my personal struggles growing up with and living with albinism, specifically OC1A. I never realized how different I was until about 2nd grade when I noticed how oddly
- [Kris Baker](https://albinism.org/board-of-directors-kris-baker/) - Board Member Kris Baker
- [Emma Brinkley](https://albinism.org/board-of-directors-emma-brinkley/) - Board Vice Chair Director, Data Science, Analytics, and Technology SolutionsIQVIARaleigh, NC Current Term: 2026 - 2030 Emma is the mother of a child with albinism and has been a member of NOAH since 2018. While new to the organization, her and her family have participated in NOAH through Parent Connection’s Calls, a local bowl-a-thon, InSight
- [International Albinism Awareness Day](https://albinism.org/iaad/) - IAAD 2026! The theme for IAAD 2026 is: “Proudly In My Skin: Celebrating All Skin Tones." The theme calls for a shift from seeing albinism mainly through appearance to recognizing the full humanity, rights, and lived experiences of persons with albinism. It highlights how color-based discrimination — rooted in myths, stigma, and social bias — affects their
- [Andrew Sartorius](https://albinism.org/board-of-directors/andrew-sartorius/) - Board Secretary Continuing Legal Education Attorney at The Missouri BarJefferson City, Missouri Current Term: 2024-2028 Andrew is a person with albinism. Andrew attended his first conference in 2012 in St. Louis. Since that time, Andrew has served on the NOAH Advocacy Team and has joined the Parenting without Pigment Task Force to help guide programming
- [Donté A. Mickens](https://albinism.org/board-of-directors-donte-a-mickens/) - Board Chair Donté A. Mickens
- [Rosalind Isom](https://albinism.org/board-of-directors/rosalind-isom/) - Juvenile Court JudgeClayton CountyJonesboro, Georgia Current Term: 2023 - 2027 Rosalind is a person with albinism. She discovered NOAH as an adult in 2018. She attended her first NOAH conference in Kansas City. After attending the conference, she wrote articles for Albinism InSight, participated as a panel speaker and served on the Adult Weekend Planning
- [Kayla Hamlin](https://albinism.org/board-of-directors/kayla-hamlin/) - Teacher for the Visually Impaired and Certified Orientation and Mobility SpecialistOhio State School for the BlindColumbus, OH Current Term: 2026 - 2030 Kayla Hamlin is the mother of two children, one is a child with Albinism. Kayla has been a member of NOAH since 2015. Her involvement includes hosting bowl-a-thons, attending community NOAH events, attending
- [Mine Nisanci Garlin](https://albinism.org/board-of-directors/mine-nisanci-garlin/) - Director, Product Development, BNY MellonNew York, New York Current Term: 2025 - 2029 Mine (pronounced "Mee-neh") is a person with albinism who lives in the Bronx, New York. She is a director in product development at BNY Mellon. She holds an MBA from Columbia Business School and an undergraduate degree in political science from Freie Universitaet
- [In Memory of Reverend James Morehead](https://albinism.org/morehead/) - Make a gift in memory of Reverend James Morehead IN LOVING MEMORY Reverend James Otis Morehead June 5, 1946 – May 23, 2026 On the morning of Saturday, May 23, 2026, Reverend James Otis Morehead was called home to be with the Lord just two weeks shy of his 80th birthday. James was born on
- [About NOAH](https://albinism.org/about-noah/) - Founded in 1982, NOAH serves the albinism community by providing information and support.
- [Niedre M. Heckman Growth and Empowerment Scholarship](https://albinism.org/empowerment/) - The Niedre M. Heckman Growth and Empowerment Scholarship is awarded to individuals with albinism residing in the United States or Canada who are pursuing their goals in fields that align with their passions and strengths, including trades, business, science, technology, and the fine arts. Both new and returning undergraduate students making satisfactory progress through their
- [Pre-Conference Activities](https://albinism.org/noahcon/pre-conference/) - Return to NOAHCon Main Page Pre-Conference Activities Please note: some pre-conference sessions & activities begin early Thursday morning. It is recommended that registrants participating in a pre-conference activity beginning Thursday morning plan to arrive on Wednesday evening. All excursions will be open to a limited number of guests, and spots may fill quickly. For certain
- [Spring for NOAH](https://albinism.org/fun/) - Spring for NOAH – Spiffy's Seeds of Hope: Help NOAH Grow! This year’s Spring for NOAH theme, Spiffy’s Seeds of Hope, is our virtual community fundraiser, bringing us together to share stories, raise awareness, and grow connection. Join us in planting seeds of hope for individuals and families living with albinism. Together, we'll highlight NOAH's life-changing
- [NOAH Family Camp](https://albinism.org/nh-camp/) - NOAH Camp held at Lions Camp ride in New Hampshire is an opportunity for children with albinism and their families to share a fun-filled outdoor vacation with others like them.
- [NOAH Newsstand](https://albinism.org/newsstand/) - Albinism InSight Albinism InSight (AI) is NOAH’s official magazine which is available in print or electronically (PDF). This full-color publication discusses many aspects of living with this genetic condition as well as other topics of interest to the albinism community. For the latest news, events and information about the albinism community, subscribe to Albinism InSight today! NOAH Books &
- [Albinism Insight](https://albinism.org/ai/) - Subscribe Today! What is Albinism InSight? ~ Why Subscribe? ~ Missed an Issue? ~ Just for Educators ~ Submit Content to AI ~ Sponsorship Opportunities What is Albinism InSight? Albinism InSight (AI) is NOAH’s official magazine which is available in print or electronically (PDF). This full-color publication discusses many aspects of living with this genetic
- [NOAH Ed U](https://albinism.org/ed-u/) - NOAH presents this complimentary supplement, geared toward educators, based on its quarterly magazine, Albinism InSight. Sign up to receive the to be placed on the distribution list.
- [Current Fundraiser Teams](https://albinism.org/fun/current-fundraisers/) - Current Fundraisers Looking to make a donation to your favorite team or individual fundraiser? Find them in the table below and click on the button to go directly to their fundraising page. Feeling inspired by their awesome efforts? We are too! Share Spiffy's page or personalize your own page and join in on the FUNdraising!
- [Why Donate to NOAH](https://albinism.org/why-donate-to-noah/) - You make a difference in the lives of those living with albinism by donating to NOAH. Learn how your donations help the albinism community.
- [Get Started New](https://albinism.org/fun/in-person/get-started-new/) - Let's Get Started! Thank you so much for hosting a fundraiser! Remember, your event doesn't have to be big or complicated to make a difference for the albinism community. If you have questions along the way or would like more assistance at any point, you can always send us an email at fundraise@albinism.org or request
- [Fundraiser Resources](https://albinism.org/fun/fundraiser-resources/) - In-Person Fundraiser Resources Thanks so much for participating in Spring for NOAH - Spiffy's Seeds of Hope: Help NOAH Grow. The resources below will provide you with the tools you need for a successful event, but please feel free to reach out to us at fundraise@albinism.org if you have any concerns that aren't covered on
- [In-Person Fundraising Event](https://albinism.org/fun/in-person/) - THANK YOU so much for considering hosting an in-person fundraising event! NOAH relies on fundraisers like YOU to make it possible for us to continue our important work for the albinism community. We know that hosting a fundraising event can seem a little daunting at first...but you don't have to host a big or complicated
- [Online Fundraiser](https://albinism.org/fun/online-fundraiser/) - Let's Get Started! Thank you so much for personalizing your own page to fundraise for NOAH! Sharing your story & photos on your own page encourages your network to support your fundraiser and helps expand NOAH’s reach. You can always share Spiffy’s fundraising page instead if you change your mind, but having your own page also makes
- [Personalize Your Fundraising Page](https://albinism.org/fun/personalize/) - We are so excited that you've chosen to personalize your own fundraising page! Sharing your story & photos on your own page encourages your network to support your fundraiser and helps expand NOAH's reach. You can always share Spiffy's fundraising page if preferred, but having your own page also makes it fun and simple to
- [Conference Funding](https://albinism.org/noahcon/funding/) - Return to NOAHCon Main Page Conference Funding Funding Sources Information We would like EVERYONE in and around the albinism community to be able to attend NOAH's National Conference. However, we know many people could use some help with travel and conference expenses. To help, we've created the following Funding Sources Information Packet. NOAH Conference Personal
- [Honora H. - Teen Spotlight](https://albinism.org/teenspotlight/honora-h/) - Hi! My name is Honora H, and I have albinism. Growing up in the Sunshine State with albinism hasn’t been easy. Constantly reapplying sunscreen on sunny days and wearing sunglasses and a hat when I go outside has definitely been a challenge. For a long time, I felt frustrate that I always had to prepare before going
- [Additional Activities](https://albinism.org/noahcon/activities/) - Return to NOAHCon Main Page NOAHCon Additional Activities Some of the best NOAHCon memories happen outside the meeting rooms. Our Social Activities Coordinators have created a fun and welcoming lineup of activities designed to help attendees connect, relax, and build community. Whether you’re looking for adventure, creativity, or simply time to socialize with friends old
- [Programming for Adults](https://albinism.org/noahcon/adults/) - Return to NOAHCon Main Page Programming for Adults Educational Programming ~ Social Activities Meet our Adult Programming Coordinator! Kathi Garza is a certified teacher of students with visual impairments (TVI) and works as an Early Childhood Educational Consultant in the Outreach Department at Texas School for the Blind and Visually Impaired (TSBVI). Before joining the
- [Exhibit & Sponsor Information](https://albinism.org/noahcon/sponsor/) - Return to NOAHCon Main Page NOAHCon Partnership & Exhibitor Opportunities! The NOAH Exchange provides an opportunity for companies and non-profits to showcase their products and services, and to provide important information and resources to the albinism community. We have many exciting opportunities for sponsorship at NOAHCon 2026. Check out the information below, and contact us at sponsors@albinism.org for more
- [Discounted Tickets](https://albinism.org/noahcon/tickets/) - Return to NOAHCon Main Page Discounted Tickets NOAH is pleased to announce that we have arranged for discounted tickets for conference attendees to enjoy some local Columbus attractions! Discounted tickets are for sale only to registered NOAHCon 2026 attendees for use by event attendees and their travel party. Tickets can be purchased at time of
- [Mothers Workshop Presenters](https://albinism.org/noahcon/pre-conference/mothers-workshop-presenters/) - Learn more about the presenters for our pre-conference Mothers' Workshop! Sheila Adamo, LCSW, CADC is a Licensed Clinical Social Worker with additional certification in Alcohol and Drug Abuse Counseling. She currently serves as Clinical Director and provides individual, couples, and family therapy in private practice. Sheila is also the co-owner of Building Parent Connections, an
- [Low Vision Driving Workshop Presenter Bios](https://albinism.org/noahcon/pre-conference/lv-driving-bios/) - Learn more about our presenters for the pre-conference session - Bioptic Driving: Addressing the Transportation Needs of Persons with Visual Challenges Rebecca A. Deffler, OD, PhD, FAAO Dr. Deffler is an Assistant Professor at The Ohio State University College of Optometry, where a portion of her duties include supervising fourth-year interns as a clinical attending
- [Low Vision Driving Workshop Session Abstracts](https://albinism.org/noahcon/pre-conference/lvd-abstracts/) - Rebecca A. Deffler, OD, PhD, FAAO"Information and Referral: First Point of Contact" For individuals beginning to think about bioptic driving, it can be helpful to consider experiences that are like — and different from — operating a motor vehicle and any previous driving experience. This presentation will highlight observations and situations for the potential bioptic
- [Kids' Conference](https://albinism.org/noahcon/kids/) - Return to NOAHCon Main Page Kids' Conference Get ready for Kids' Conference! While their adults attend Educational & Social Sessions, NOAH kids, tweens, and teens get to learn, play, and socialize at the awesome Kids' Conference. Attendees are divided into groups by grade level/age and provided with exciting, age-appropriate activities throughout the conference. This year,
- [First Timer Tips](https://albinism.org/noahcon/tips/) - Return to NOAHCon Main Page NOAHCon Tips for First Timers! We are happy you’re here! You’ll find that NOAH conferences are like family reunions where you may not know many people but you still have a special bond with everyone. There is a special magic for people with albinism and their families when they come
- [All About NOAHCon!](https://albinism.org/noahcon/about/) - Return to NOAHCon Main Page What is NOAHCon? ~ Kids' Conference ~ What is there to do? Who Should Attend? What is NOAHCon? Often described as a fun, festive family reunion, NOAHCon offers the most comprehensive albinism education program anywhere and affords plenty of time to socialize and enjoy fellowship. Authorities in a variety of
- [conference travel Information](https://albinism.org/noahcon/travel/) - Return to NOAHCon Main Page NOAHCon Travel Information When Should I Travel? Optional pre-conference educational sessions generally begin Thursday morning. Optional pre-conference social activities will be offered beginning Wednesday afternoon/evening and will also take place on Thursday. Attendees who plan to participate in any pre-conference activities are encouraged to arrive by Wednesday, July 15, 2026.
- [NOAHCon General Schedule](https://albinism.org/noahcon/schedule/) - General NOAHCon Schedule
- [NOAH iPad Assistance Program](https://albinism.org/ipad/) - NOAH iPad & Technology Assistance Program supported by the Parker Foundation The NOAH iPad Assistance Program was founded in 2015 to provide people with albinism, who do not have access to technology, the opportunity to receive an iPad. Originating in the Northern Illinois (NI) NOAH community, NOAH increased the geographic reach of the iPad Assistance
- [Low Vision Tips & Tricks](https://albinism.org/lv-tips/) - February is Low Vision Awareness Month, and we want to hear from the PWAs in our community. How do you visually access your hobbies? Whether you enjoy participating in arts, sports, or something else, share one tip or trick you use along with a photo (of the tip, or of you doing your hobby!). Selected
- [Donate](https://albinism.org/donate/) - Give Today! Make a Year-End Gift ~ Make a Memorial Gift Make a Gift in Memory of Eric Downes Double your impact! Help us Meet or Beat the Board! Give Today Give what you can today to make an immediate impact! Donate Now! ~ Other Ways to Give ~ Double Your Impact Learn more about
- [New Parent Program](https://albinism.org/new-parent-program/) - Welcome to the NOAH family! Whether your child has been newly diagnosed with albinism or newly adopted, NOAH has a team of parents, professionals and adults with albinism who would like to assure you that you are not alone and that there are plenty of resources available to your family. Meet Our New Parent Program
- [Grandparent Connections](https://albinism.org/grandparentconnections/) - Teleconferences for Grandparents that provide an opportunity to connect with other grandparents, as well as specialists in the field of albinism.
- [Parent Connections](https://albinism.org/parent-connections/) - Parent Connections is part of the NOAH Connections program, an ongoing series of virtual opportunities to bring the albinism community together. An essential part of NOAH’s mission is to “provide a place where people with albinism and their families in the U.S. and Canada can find acceptance, support, and fellowship.” Parent Connections provides the opportunity
- [NEW Connections Page Build](https://albinism.org/new-connections-page-build/) - NOAH Connections View upcoming NOAH Connections offerings for:Youth with Albinism ~ Teens with Albinism ~ Adults with Albinism ~ Parents & Caregivers ~ Grandparents Inspired by our early pandemic “Social Distancing with Friends” series, as well as the heart-warming connections created during #VirtualNOAHCon2020, NOAH has been offering virtual opportunities for our community to connect through
- [Board of Directors](https://albinism.org/board-of-directors/) - NOAH Board of Directors
- [Monthly Giving](https://albinism.org/donate/monthly/) - Can we count on you to help NOAH change lives? A gift of any size allows NOAH to continue its work as a conduit for accurate and authoritative information about all aspects of living with albinism and to provide a place where people with albinism and their families in the U.S. and Canada can find
- [NOAH Employment Opportunities](https://albinism.org/employment/) - Thank you for your interest in employment with NOAH! Unfortunately, we are not currently hiring. If you are interested in getting more involved with NOAH, we encourage you to learn more about our current volunteer opportunities!
- [NOAH Video Library](https://albinism.org/video/) - Library Categories: NOAH Connections ~ NOAHCon 2022 ~ Virtual NOAHCon 2020 Click the arrow on the top left corner of the video to see a list of all available session recordings in each category! Looking for information about driving with low vision? Check out the recording of the NOAHCon 2022 Low Vision Driving Workshop, now
- [NOAH Connections Advisory Task Force](https://albinism.org/noah-connections/task-force/) - Looking for a way to help? Let YOUR voice be heard on a NOAH Connections Advisory Task Force! 👉 Get Involved – Join a NOAH Connections Task Force Share your experiences, shape programming, and strengthen the NOAH community. About the Task Forces Each NOAH Connections Task Force represents a unique community within NOAH. Members provide
- [Double Your Impact!](https://albinism.org/double-your-impact/) - NOAH relies on donors & volunteers like YOU to help us continue our important work for the albinism community. When you give to NOAH, don't miss out on the chance to double your impact! Through our new Double the Donation integration, you can now quickly and easily find out if your employer offers donation matching
- [Volunteer](https://albinism.org/volunteer/) - Current Team Positions Available. NOAH is looking for creative and enthusiastic people to support NOAH’s mission and vision.
- [Adult Weekend Attendee Page 2025](https://albinism.org/aw-attendee-25/) - Adult Weekend Attendee Page 2025 It’s time to GO to RENO! Soon, PWA pals from across the NOAH community will gather together at the Atlantis Casino Resort and Spa in beautiful Reno, Nevada!! This year’s list of 40 registered attendees includes veteran Adult Weekend participants as well as some first timers! We’re excited to welcome
- [Pennsylvania Events](https://albinism.org/pennsylvania-events/) - Pennsylvania NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [You Belong Here!](https://albinism.org/you-belong-here/) - At NOAH, we celebrate the many different backgrounds and experiences of those in our community. We want to share YOUR story! Click the links below to hear from: Black PWAs ~ Hispanic & Latinx PWAs ~ Asian American, Native Hawaiian, and Pacific Islander PWAs ~ Teen PWAs Other community submissions: Career CornerHear from PWAs in
- [Heritage](https://albinism.org/hispanic-heritage/) - Hispanic & LatinX PWAs - how do you stay connected to your heritage or honor your culture? Send a story, photo, or video to eaubrey@albinism.org to be featured on the NOAH Website and social media during LatinX & Hispanic Heritage Month and beyond. "Growing up in a Mexican American family, celebrations were HUGE and so
- [Lighthouse Guild Tele-Support](https://albinism.org/lg-telesupport/) - Lighthouse Guild Tele-Support Network for Parents of Children with Albinism Our friends at the Lighthouse Guild invite you to join their upcoming tele-support call for parents of children with albinism: Thursday, September 25th 8:30PM - 9:30PM EST Call Topic: Parenting Young Children with Albinism To join this tele-support group, please fill out the enrollment form,
- [Employer Matching](https://albinism.org/double-your-impact/employer-matching/) - Double the difference you make—search for your company’s match today! Did you know that most employers offer matching gift programs? Chances are, your company is already participating. With just a few clicks, you can search for your workplace, submit a simple request, and instantly double the impact of your support for NOAH. Your generosity helps
- [Company-Sponsored Volunteer Programs](https://albinism.org/double-your-impact/volunteer-programs/) - Company-Sponsored Volunteer Programs Hey NOAH volunteers! Did you know that some employers offer PTO or make a donation on your behalf when you volunteer? If you already generously share your time and talents with NOAH or would like to lend us a hand in the future, use this simple search tool to check out your
- [Adult Weekend](https://albinism.org/adult-weekend/) - Come together for a weekend of bonding and camaraderie with fellow adults with albinism.
- [Ed U Sign Up](https://albinism.org/ed-u-sign-up/) - NOAH Ed U Sign Up Form - NOAH's complimentary supplement, geared toward educators, based on its quarterly magazine, Albinism InSight.
- [Scholarships for People with Albinism](https://albinism.org/scholarship/) - Take a look at the scholarship opportunities that are made possible through NOAH and its partners.
- [Ways to Give](https://albinism.org/ways-to-give/) - Make Your One-Time or Recurring Monthly Gift to NOAH! Your gift strengthens the albinism community by providing support and resources to people with albinism.
- [Other Ways to Donate to NOAH](https://albinism.org/other-ways-to-donate/) - There are other ways you can donate to NOAH and change lives - by mail, by phone, by stock donation.
- [Virtual Events](https://albinism.org/virtual/) - The NOAH community is spread from coast to coast, and while we cherish times when we are able to come together in person, more often than not we have to find creative ways to connect while geographically apart. We hope you'll join us for one of many upcoming virtual events and opportunities to connect! NOAH
- [NOAH Workshops](https://albinism.org/workshops/) - NOAH Workshops has moved! We invite you to check out our upcoming offerings on our NOAH Connections page.
- [NOAHCon 2026 Call for Proposals - Community Session Presentations and Scientific Presentations & Posters](https://albinism.org/noahcon/presentations/) - NOAHCon 2026 Call for Proposals - Community Session Presentations and Scientific Presentations & Posters CALL FOR PROPOSALS The National Organization for Albinism and Hypopigmentation (NOAH) is currently accepting proposals for both community session presentations and scientific presentations & posters at our NOAHCon 2026 National Conference at the Hilton Columbus Downtown in Columbus, OH, July 16-19,
- [Past Scholarship Recipients](https://albinism.org/leadership-past-recipients/) - Aidan O'Connor - 2020 Scholarship Recipient Following several years working in Silicon Valley, Aidan began his first year at Stanford Law School last fall. Outside of the classroom, he volunteers for a pro bono project helping community members submit and appeal applications for Social Security Disability benefits. He also enjoys biking to class and completing the NY
- [Meet the 2025 Leadership Scholarship Winner](https://albinism.org/leadership25/) - Emily Iverson A hearty congratulations to Emily Iverson, the 2025 recipient of the McGowan Leadership Scholarship. When she was younger, Emily struggled with looking different from other kids with albinism. Luckily, in the past few years she was able to connect with fellow PWAs at NOAHCon who encouraged and supported her in her journey to
- [NOAH Night: A Cause for Celebration](https://albinism.org/noahnight/) - Thank you to all who joined us for this year's NOAH Night celebration!! This year, we're excited to bring our community together for a special virtual event on June 13, 2025 in honor of International Albinism Awareness Day! This fun-filled evening will be a time to reflect on the moments that matter- the stories, connections,
- [Exciting News from NOAH!](https://albinism.org/side-event/) - On March 5th, representatives from NOAH, HPS Network, and global albinism organizations joined a special side event celebrating 10 years of the UN Mandate of the Independent Expert on the Enjoyment of Human Rights of Persons with Albinism. This event set the stage for the Independent Expert’s 2025 thematic report, which was presented at the UN Human Rights Council’s 58th
- [New York Events](https://albinism.org/new-york-events/) - New York NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Connecticut Events](https://albinism.org/connecticut-events/) - Connecticut NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [AANHPI Heritage](https://albinism.org/aanhpi/) - In honor of Asian American, Native Hawaiian, and Pacific Islander Heritage Month this May, we want to hear from YOU! AA or NHPI PWAs, we invite you to share your experiences and how your heritage and albinism impact your life. Photos, videos, artwork, writing, or something else - we welcome anything you'd like to share
- [International Albinism Groups](https://albinism.org/international/) - Learn about and connect with international groups and events.
- [Host a Fundraiser](https://albinism.org/host-a-fundraiser/) - THANK YOU so much for considering hosting a fundraising event! NOAH relies on fundraisers like YOU to make it possible for us to continue our important work for the albinism community. We know that hosting a fundraising event can seem a little daunting at first...but you don't have to host a big or complicated event
- [Illinois Events](https://albinism.org/illinois-events/) - Illinois NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Get Started](https://albinism.org/get-started/) - Let's Get Started! Thank you so much for hosting a fundraiser! Remember, your event doesn't have to be big or complicated to make a difference for the albinism community. If you have questions along the way or would like more assistance at any point, you can always send us an email at fundraise@albinism.org or request
- [NOAH Fundraisers](https://albinism.org/fundraisers/) - [table id=88 /] Choose the fundraiser that works for you! This fundraising season, we know things are (still) a bit different for everyone. Despite challenging times, NOAH has been working hard to keep the albinism community connected, and we need your help to continue our mission. Join us to celebrate you, your child, family member,
- [Michael J. McGowan Tribute](https://albinism.org/mcgowan-tribute/) - A Tribute to Mike McGowan Memories of MikeMcGowan Scholarship Endowment Fund On November 24, 2024, the albinism community was shaken by the passing of NOAH’s former Executive Director, Michael McGowan. As we honor Mike’s remarkable legacy and reflect on his profound impact, we are reminded of the strength of his vision, the depth of his
- [Camp Abilities 2025](https://albinism.org/camp-abilities/) - FYI: Camp Abilities 2025 Events Click the flyers to learn more about upcoming Camp Abilities events this summer! Please note: NOAH shares this information as a courtesy to our community and is not directly affiliated with any of the events listed below. Please direct any questions to the contacts listed on the flyers.
- [North Carolina Events](https://albinism.org/north-carolina-events/) - North Carolina NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Texas Events](https://albinism.org/texas-events/) - Texas NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Reading List](https://albinism.org/books/) - This sampling of writings about albinism can educate and spark conversation.
- [Spring for NOAH Fundraiser Current Teams & Participants](https://albinism.org/spring-current-teams/) - Looking to make a donation to your favorite fundraiser? Find them in the table below and click on the button to go directly to their fundraising page. Check out the table below to track the progress of your favorite Spring for NOAH fundraiser teams: Feeling inspired by their awesome efforts? Follow the link below the
- [Maryland Events](https://albinism.org/maryland-events/) - Maryland NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Spring Fundraiser Resources](https://albinism.org/spring-resources/) - Spring for NOAH Fundraiser Resources Thanks so much for participating in the Spring for NOAH Annual Bowl-a-thon & Spring Fundraiser! The resources below will provide you with the tools you need for a successful event, but please feel free to reach out to us at fundraise@albinism.org if you have any concerns that aren't covered on
- [Spring Fundraiser: Easy as 1-2-3-4!](https://albinism.org/spring-1234/) - Easy as 1-2-3-4! Welcome! Join us to celebrate your child, family member, friend, neighbor and yourself! Each event helps raise funds and awareness that will make a difference in the lives of people with albinism across the country. It is an opportunity for members of the albinism community to get together with family and friends
- [California Events](https://albinism.org/california-events/) - California NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Florida Events](https://albinism.org/florida-events/) - Florida NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [South Carolina Events](https://albinism.org/south-carolina-events/) - South Carolina NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Virginia Events](https://albinism.org/virginia-events/) - Virginia NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Massachusetts Events](https://albinism.org/massachusetts-events/) - Massachusetts NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Books for Parents](https://albinism.org/books-for-parents/) - Shop the NOAH Store
- [Helpful Tips for Grandparents](https://albinism.org/helpful-tips-for-grandparents/) - Helpful tips for Grandparents of children with albinism.
- [Boletín informativo - ¿Cómo llamarme?](https://albinism.org/boletin-informativo-como-llamarme/) - Boletín informativo - ¿Cómo llamarme?
- [Information Bulletin - Sun Protection](https://albinism.org/information-bulletin-sun-protection/) - Tips and Tricks of staying safe in the sun.
- [Information Bulletin - Social Aspects of Albinism](https://albinism.org/information-bulletin-social-aspects-of-albinism/) - Learn about the challenging social and emotional aspects of albinism.
- [Information Bulletin - What is Albinism?](https://albinism.org/information-bulletin-what-is-albinism/) - Learn more about Albinism - Albinism is an inherited genetic condition that reduces the amount of melanin pigment formed in the skin, hair and/or eyes. People with albinism have vision problems that are not correctable with eyeglasses, and many have low vision.
- [Information Bulletin - Albinism and Driving](https://albinism.org/information-bulletin-albinism-and-driving/) - Many people with albinism have low vision and want to drive a car. The vast majority of driving decisions are based upon vision. An overview of some of the basic visual characteristics applicable to safe driving, and about driving with bioptic telescopes, to help people with albinism make decisions about driving.
- [Elizabeth Schafer](https://albinism.org/scholarship-elizabeth/) - Elizabeth Schafer 2018 McGowan Leadership Scholarship Recipient Interested to learn what our scholarship recipients have been up to? We caught up with recent scholarship recipient, Elizabeth Schafer, for a brief email interview. Keep reading for an update on Elizabeth's life, her advice for this year's applicants, and much more! What are you currently doing? Since
- [Crystabell O. - Teen Spotlight](https://albinism.org/teenspotlight/crystabell_o/) - Hello, my name is Crystabell, I am 13 years old, I live in Massachusetts, and I have albinism. I live with my family which consists of my parents and 5 children. I have an older brother and a younger sister who also have albinism. I am in middle school in the 8th grade. I am
- [Caroline V. - Teen Spotlight](https://albinism.org/teenspotlight/caroline_v/) - Hi! My name is Caroline Venn and I have albinism. I am from South Carolina, and I am 15 years old. I attend the South Carolina Governor's School for the Arts and Humanities as a sophomore in music. I have been part of the NOAH community since I was born, attending conferences and camps ever
- [NOAH Legacy Circle](https://albinism.org/noah-legacy-circle/) - NOAH Legacy Gifts allow NOAH to continue to serve to those living with albinism. NOAH recognizes our Legacy Circle.
- [Planned Giving & Legacy Gifts](https://albinism.org/planned-giving/) - A Planned Gift is a contribution that is arranged in the present and allocated at a future date. Commonly donated through a will or trust, planned gifts are most often granted once the donor has passed away. Learn more about Planned Gifts If you have already planned for or are considering donating to NOAH in
- [Teen Spotlight - Sheterria E.](https://albinism.org/teen-spotlight-sheterria-e/) - Teen Spotlight - Sheterria E.
- [Luna D. - Teen Spotlight](https://albinism.org/teenspotlight/luna_d/) - Hello, I am Luna and I am 15 years old. I was adopted from China when I was 18 months old and I have albinism. Currently, I live and travel with my family between New Hampshire and Florida. I have been homeschooled my whole life and I am currently a high school sophomore in a
- [Olivia I. - Teen Spotlight](https://albinism.org/teenspotlight/olivia_i/) - Hello! My name is Olivia, I'm 15, I’m from Minnesota and I have Albinism. At first glance I don't look like someone with albinism but looks can be deceiving. I in fact have oculocutaneous albinism type 1B. This means that my skin and eyes are affected by Albinism and my hair is not. I've never
- [Legacy Gifts](https://albinism.org/planned-giving/legacy/) - Make a Memorial Gift If you have already planned for or are considering donating to NOAH in your will, then you may wish to join NOAH’s Legacy Circle. Members of the Legacy Circle are those who state that they intend to make a bequest to NOAH. You need not state an amount or make a
- [Teen Spotlight - Isabella O.](https://albinism.org/teen-spotlight-isabella-2/) - NOAH Teen Spotlight - Isabella O.
- [Teen Spotlight - Benjamin P.](https://albinism.org/teen-spotlight-benjamin-p/) - NOAH Teen Spotlight - Benjamin P.
- [Teen Spotlight Archive](https://albinism.org/teenspotlight/archive/) - Check out our past Teen Spotlight submissions! Feeling inspired by the stories of NOAH Teens? Submit YOUR story! Simply write a few paragraphs about yourself - your thoughts, accomplishments, concerns, dreams...anything about you that you want to share! Send them to ​teenspotlight@albinism.org with ​one or more pics (selfies ​are​ great!), and we will review them
- [](https://albinism.org/leadership24/) - Meet the 2024 Leadership Scholarship Winner Nuala Stanghellini A hearty congratulations to Nuala Stanghellini, the 2024 recipient of the McGowan Leadership Scholarship. Nuala has long contributed to NOAH programming, including as a dancer in NOAHCon opening ceremonies, a member of the virtual choir, a writer for Albinism InSight, and a participant in Teens Connections calls.
- [Planned Gifts](https://albinism.org/planned-giving/gift/) - A Planned Gift is a contribution that is arranged in the present and allocated at a future date. Commonly donated through a will or trust, planned gifts are most often granted once the donor has passed away. Planned gifts are a way to provide NOAH with significant resources to further its mission to serve the
- [Low Vision Driving Workshop Remote Participation 2024](https://albinism.org/lv-driving-remote-24/) - We're looking forward to your remote participation in NOAH's Bioptic Driving Workshop on Thursday, July 11th beginning at 8:00 AM PT and ending at 5:00 PM. A schedule outline can be found below. If you are participating remotely, please check your inbox for the Zoom webinar link. If you have any technical difficulties, please text 603-303-9080.
- [Onsite Research Opportunities - NOAHCon 2024](https://albinism.org/orange-county/onsite-research/) - Return to NOAHCon 2024 Attendee Page Onsite Research Opportunities at NOAHCon 2024! NOAH is thrilled to provide NOAHCon 2024 attendees with Onsite Research Opportunities! Please visit the Terrace Rooms (South Tower - see map below) to find out more about albinism research opportunities with: Medical College of Wisconsin in Terrace A (see flyer insert for
- [Transportation & Navigating the Hotel - NOAHCon 2024](https://albinism.org/orange-county/transportation/) - Return to NOAHCon 2024 Attendee Page Transportation & Navigating the Hotel! Local Airports & Ground Transportation Options Please note that there may also be rideshare and/or public transportation options from the airports below to the conference hotel. Conference Hotel Map Thank You to Our NOAHCon2024 Sponsors!Epstein | OstroveUnder the Same SunJonathan's Cleaners
- [Kids Conference Attendee Page 2024](https://albinism.org/orange-county/kids-conf/) - Return to NOAHCon 2024 Attendee Page Kids' Conference - Attendee Page Conference Programplease see pages 8-12 for Kids' Conference Info Rising Stars Backpack List Where is Kids' Conference? Rising Stars (6 mos. - Kindergarten)North Tower - Second Floor - Salon I–V SuperStars (1st - 6th grade)North Tower - First Floor - Garden 1–4 Directors (7th
- [Boletín informativo - Protección del Sol](https://albinism.org/boletin-informativo-proteccion-del-sol/) - Boletín informativo - Protección del Sol
- [Information for Parents, Grandparents and Caregivers](https://albinism.org/information-for-parents-grandparents-and-caregivers/) - Learn about the NOAH Programs and Services and other Resources available to support you and your family.
- [NOAH Research Program](https://albinism.org/research/) - Information about current research studies and opportunities on many aspects and types of albinism.
- [NOAH Fundraisers](https://albinism.org/bowl18/) - Design your own fundraiser. Select the event type and date that works for you!
- [Boletín informativo - Albinismo Ocular](https://albinism.org/boletin-informativo-albinismo-ocular/) - Boletín informativo - Albinismo Ocular
- [Boletín informativo - Aspectos Sociales y Emocionales del Albinismo](https://albinism.org/boletin-informativo-aspectos-sociales-y-emocionales-del-albinismo/) - Boletín informativo - Aspectos Sociales y Emocionales del Albinismo
- [#ILookOutForAlbinism](https://albinism.org/ilookoutforalbinism/) - Celebrate “International Albinism Awareness Day” (IAAD) with the aim of increasing awareness and understanding of albinism and fighting against global discrimination and stigma against people with albinism. Albinism Europe is supporting this with the “I look out for albinism” campaign.
- [Utah Events](https://albinism.org/utah-events/) - Utah NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Arielle Lewis](https://albinism.org/scholarship-arielle/) - Arielle Lewis 2014 McGowan Leadership Scholarship Recipient Interested to learn what our scholarship recipients have been up to? We caught up with 2014 scholarship recipient, Arielle Lewis, for a brief email interview. Keep reading for an update on Arielle's life, her advice for this year's applicants, and much more! What are you currently doing? Since
- [Teen Spotlight - Sebastian](https://albinism.org/teen-spotlight-sebastian/) - Teen Spotlight Main Page Hello! I'm Sebastian (538isAlive online), and I guess I'm here to share my story with you! My parents knew I was albino the day I was born, because the doctor who delivered me had never had an albino patient, and when he yelled "IT'S AN ALBINO" when I was crowning was
- [Leadership Winner 2019](https://albinism.org/scholarship19/) - Meet the 2019 Leadership Scholarship Winner Trisha Laughlin Congratulations to Trisha Laughlin, the 2019 recipient of the Michael J. McGowan Leadership Scholarship Award! Trisha is a rising sophomore nursing student at Simmons University in Boston, Massachusetts, where her instructors praise her leadership acumen as reflecting passion, empathy, and social engagement. Trisha has been part of
- [Teen Spotlight - Sarah K.](https://albinism.org/teen-spotlight-sarah-k/) - Teen Spotlight Main Page Hi, my name is Sarah K.! I’m an 18 year old high school senior from New Jersey. In less than two weeks, I will graduate and will attend the University of Pennsylvania in the fall to study physics. Though I have enjoyed high school a great deal, I cannot wait to
- [Programs & Services for Parents and Caregivers of Children with Albinism](https://albinism.org/parents/) - Explore the programs and services NOAH offers for parents and caregivers of children with albinism.
- [Newly Diagnosed Children - New Parent Program](https://albinism.org/newlydiagnosed/) - NOAH's New Parent Program offers a trained parent liaison volunteer to each newly diagnosed family. Learn about resources through the NOAH team of parents, professionals and adults with albinism.
- [NOAH SchoolKit](https://albinism.org/schoolkit/) - The SchoolKit provides information and resources to guide parents in supporting teachers when a student with albinism will be in their classroom.
- [Social Media Connections](https://albinism.org/social-media-connections/) - Connect with NOAH resources and the NOAH community through social media.
- [Programs & Services for Grandparents](https://albinism.org/grandparents/) - Explore the programs and services NOAH offers for grandparents of children with albinism.
- [Teen Spotlight - Elizabeth S.](https://albinism.org/teen-spotlight-elizabeth-s/) - Teen Spotlight - Elizabeth S.
- [Teen Spotlight - Jay D.](https://albinism.org/teen-spotlight-jay-d/) - Teen Spotlight - Jay D.
- [Teen Spotlight - Sophie O.](https://albinism.org/teen-spotlight-sophie-o/) - Teen Spotlight - Sophie O.
- [Teen Spotlight - Joey A.](https://albinism.org/teen-spotlight-joey-a/) - Teen Spotlight - Joey A.
- [Teen Spotlight - Bobby S.](https://albinism.org/teen-spotlight-bobby-s/) - Teen Spotlight - Bobby S.
- [Teen Spotlight - Alisha L.](https://albinism.org/teen-spotlight-alisha-l/) - Teen Spotlight - Alisha L.
- [Teen Spotlight - Mackenzie S.](https://albinism.org/teen-spotlight-mackenzie-s/) - Teen Spotlight - Mackenzie S.
- [Teen Spotlight - Christian F.](https://albinism.org/teen-spotlight-christian-f/) - Teen Spotlight - Christian F.
- [Teen Spotlight - Abshiro I.](https://albinism.org/teen-spotlight-abshiro-i/) - Teen Spotlight - Abshiro I.
- [Teen Spotlight - Merve D.](https://albinism.org/teen-spotlight-merve-d/) - Teen Spotlight - Merve D.
- [Programs and Services for Adults with Albinism](https://albinism.org/programs-and-services-adults-with-albinism/) - Programs and services geared specifically toward people with albinism and ways to connect with the albinism community.
- [Information for Adults with Albinism](https://albinism.org/adults/) - Connect with the albinism community. Share your experiences, ask questions, but most importantly, make connections.
- [Albinism Advocacy & Awareness](https://albinism.org/advocacy/) - The Albinism Advocacy and Awareness program provides support and resources concerning educational needs, services and supports directly related to albinism.
- [NOAH Resource Library](https://albinism.org/resourcelibrary/) - The Resource Library contains hundreds of resources for everyone in the albinism community. Topics include adaptive sports, employment, government resources and low vision driving! Literally from A to…. W, and with your help to Z!
- [Learn About Albinism](https://albinism.org/learn-about-albinism/) - Accurate information and educational resources are provided here to those interested in learning about albinism.
- [International Albinism Awareness Day Social Media Graphics](https://albinism.org/international-albinism-awareness-day-social-media-graphics/) - Social Media Graphics for IAAD
- [Information Bulletins](https://albinism.org/information-bulletins/) - Information bulletins about albinism that provide accurate information about this rare genetic condition.
- [Information for Students Doing Research](https://albinism.org/information-for-students-doing-research/) - Whether you chose albinism as a topic, or whether it was assigned to you, our goal is to provide accurate information about this rare genetic condition.
- [Mark LaRue](https://albinism.org/board-of-directors-mark-larue/) - Board Member Mark LaRue
- [Tim Laughlin](https://albinism.org/board-of-directors-tim-laughlin/) - Board Member Tim Laughlin
- [Don Martin](https://albinism.org/board-of-directors-don-martin/) - Board Member Ed Martin
- [Diana McCown](https://albinism.org/board-of-directors-diana-mccown/) - Board Member Diana McCown
- [NOAH SchoolKit Section I](https://albinism.org/noah-schoolkit-section-1/) - This information will support conversation with the general education teacher and provide a resource list of albinism terminology.
- [Leadership Scholarship Winner](https://albinism.org/leadershipwinner/) - Meet The 2017 Leadership Scholarship Winner!
- [Information for Medical Professionals](https://albinism.org/medical/) - Resources and information from NOAH to support medical professionals to better understand albinism and support their patients.
- [Information for Educators](https://albinism.org/educators/) - Information and Resources for Educators to support their student with albinism in the classroom.
- [Problems with Adobe](https://albinism.org/problems-with-adobe/) - Problems with Adobe
- [NOAH SchoolKit Section II](https://albinism.org/noah-schoolkit-section-2/) - This section will support conversations with educators and provide educational resources including defined roles of team members, educational considerations and detailed information on the Expanded Core Curriculum (ECC).
- [NOAH SchoolKit Section III](https://albinism.org/noah-schoolkit-section-3/) - This section includes documents that can be presented to members of the educational team as helpful tools for working with your child.
- [NOAH SchoolKit Section IV](https://albinism.org/noah-schoolkit-section-4/) - This section is written to guide parents and families in supporting the development of ECC skills in the home and community.
- [NOAH SchoolKit Section V](https://albinism.org/noah-schoolkit-section-5/) - Suggestions, guidelines and templates are provided in this section to support you and your student in advocating for their success in the general education class.
- [NOAH Grassroots Spring Fundraising](https://albinism.org/noah-grassroots-spring-fundraising/) - Grassroots Spring Fundraising Participants
- [Boletín informativo - ¿Que es el Albinismo?](https://albinism.org/boletin-informativo-que-es-el-albinismo/) - Boletín informativo - ¿Que es el Albinismo?
- [Boletín informativo: Albinismo y el Manejo](https://albinism.org/boletin-informativo-albinismo-y-el-manejo/) - Boletín informativo - Albinismo y el Manejo
- [Information Bulletin - Low Vision Aids](https://albinism.org/information-bulletin-low-vision-aids/) - An overview of low vision aids in each task category, including magnifiers and microscopes for seeing things up close, telescopes for seeing things far away, non-optical devices, and strategies to support low vision needs.
- [Boletín informativo - Ayudas para la Baja Visión](https://albinism.org/boletin-informativo-ayudas-para-la-baja-vision/) - Boletín informativo - Ayudas para la Baja Visión
- [Featured Article on Jobs](https://albinism.org/featured-article-on-jobs/) - Articles featuring the challenges and questions when navigating your career.
- [Featured Articles on Driving](https://albinism.org/featured-articles-on-driving/) - NOAH is here to help you find information about low vision driving as well as advocacy efforts.
- [Featured Article on College](https://albinism.org/featured-article-on-college/) - Articles featuring topics on going to college and albinism. Students with albinism can face some unique challenges attending college.
- [Featured Article on Dating & Mating](https://albinism.org/featured-article-on-dating-mating/) - Read articles from others with albinism who share their experiences with dating and mating
- [Featured Article on Parenting without Pigment](https://albinism.org/featured-article-on-parenting-without-pigment/) - Parents with albinism share their frustrations and victories as well as tips and tricks with parenting.
- [Featured Article on Aging with Albinism](https://albinism.org/featured-article-on-aging-with-albinism/) - Articles featuring topics on aging with albinism.
- [Boletín informativo - Asistiendo a Alumnos Con Albinismo](https://albinism.org/boletin-informativo-asistiendo-a-alumnos-con-albinismo/) - Boletín informativo - Asistiendo a Alumnos Con Albinismo
- [Teen Spotlight - Connor N.](https://albinism.org/teen-spotlight-connor-n/) - Teen Spotlight - Connor N.
- [Information for Medical Professionals - Featured Vision Articles](https://albinism.org/information-for-medical-professionals-featured-vision-articles/) - Photophobia, nystagmus, strabismus and reduced depth perception are just a few of the unusual aspects which may be associated with albinism. Here you’ll find information from doctors about various aspects of the eyes of people who have albinism.
- [Information for Educators - Featured Articles for Educators](https://albinism.org/information-for-educators-featured-articles-for-educators/) - Articles from a variety of educators. Some articles will address ways to assist a student with albinism in the school setting while others will be information that you can share with parents.
- [Elliot Ostrove](https://albinism.org/board-of-directors-elliot-ostrove/) - Board Member Elliot Ostrove
- [Board of Directors - Dan Oates](https://albinism.org/board-of-directors-dan-oates/) - Board Member Dan Oates
- [Teen Spotlight - Katie R.](https://albinism.org/teen-spotlight-katie-r/) - NOAH Teen Spotlight - Katie R.
- [Information Station](https://albinism.org/info-station/) - Whether it is your first conference, or your 17th you’ll probably have a question or two. Here’s how to get the answers you need.
- [Brandi Bogan](https://albinism.org/board-of-directors-brandi-bogan/) - Board Member Brandi Bogan
- [Teen Spotlight - Hammad K.](https://albinism.org/teen-spotlight-hammad-k/) - NOAH Teen Spotlight - Hammad K.
- [Shop for NOAH](https://albinism.org/shop-for-noah/) - Learn how you can support NOAH by shopping: iGive, AmazonSmile
- [Facebook Fundraising for NOAH](https://albinism.org/fundraisers-archive/facebook/) - Support NOAH by setting up a Facebook fundraiser to raise money for NOAH to continue its service to the albinism community. Crating a Facebook fundraiser is super easy!
- [Special Event Fundraisers](https://albinism.org/fundraisers-archive/special-event/) - You can raise money for NOAH by donating gifts from a Special Event.
- [NOAH in Your Neighborhood Fundraiser](https://albinism.org/your-noah/) - Host a fun local fundraising activity: skating, dancing... NOAH welcomes creativity!
- [Diana McCown](https://albinism.org/interim-executive-director-diana-mccown/) - Diana McCown, NOAH Interim Executive Director Biography
- [Fundraising Events by State](https://albinism.org/fun-list/) - Each fundraising event for NOAH helps raise funds and awareness that will make a difference in the lives of people with albinism across the country.
- [Alabama Events](https://albinism.org/alabama-events/) - Alabama NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Alaska Events](https://albinism.org/alaska-events/) - Alaska NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Arizona Events](https://albinism.org/arizona-events/) - Arizona NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Arkansas Events](https://albinism.org/arkansas-events/) - Arkansas NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Colorado Events](https://albinism.org/colorado-events/) - Colorado NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Delaware Events](https://albinism.org/delaware-events/) - Delaware NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Georgia Events](https://albinism.org/georgia-events/) - Georgia NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Hawaii Events](https://albinism.org/hawaii-events/) - Hawaii NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Idaho Events](https://albinism.org/idaho-events/) - Idaho NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Indiana Events](https://albinism.org/indiana-events/) - Indiana NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Iowa Events](https://albinism.org/iowa-events/) - Iowa NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Kansas Events](https://albinism.org/kansas-events/) - Kansas NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Kentucky Events](https://albinism.org/kentucky-events/) - Kentucky NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Louisiana Events](https://albinism.org/louisiana-events/) - Louisiana NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Maine Events](https://albinism.org/maine-events/) - Maine NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Michigan Events](https://albinism.org/michigan-events/) - Michigan NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Minnesota Events](https://albinism.org/minnesota-events/) - Minnesota NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Mississippi Events](https://albinism.org/mississippi-events/) - Mississippi NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Missouri Events](https://albinism.org/missouri-events/) - Missouri NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Montana Events](https://albinism.org/montana-events/) - Montana NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Nebraska Events](https://albinism.org/nebraska-events/) - Nebraska NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Nevada Events](https://albinism.org/nevada-events/) - Nevada NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [New Hampshire Events](https://albinism.org/new-hampshire-events/) - New Hampshire NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [New Jersey Events](https://albinism.org/new-jersey-events/) - New Jersey NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [New Mexico Events](https://albinism.org/new-mexico-events/) - New Mexico NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [North Dakota Events](https://albinism.org/north-dakota-events/) - North Dakota NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Ohio Events](https://albinism.org/ohio-events/) - Ohio NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Oklahoma Events](https://albinism.org/oklahoma-events/) - Oklahoma NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Oregon Events](https://albinism.org/oregon-events/) - Oregon NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Rhode Island Events](https://albinism.org/rhode-island-events/) - Rhode Island NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [South Dakota Events](https://albinism.org/south-dakota-events/) - South Dakota NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Tennessee Events](https://albinism.org/tennessee-events/) - Tennessee NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Vermont Events](https://albinism.org/vermont-events/) - Vermont NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Washington Events](https://albinism.org/washington-events/) - Washington NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [West Virginia Events](https://albinism.org/west-virginia-events/) - West Virginia NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Wisconsin Events](https://albinism.org/wisconsin-events/) - Wisconsin NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Washington, D.C. Events](https://albinism.org/dc-events/) - Washington, D.C. NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Wyoming Events](https://albinism.org/wyoming-events/) - Wyoming NOAH fundraising events bring together the local community to raise funds and albinism awareness, making a difference in lives of people with albinism across the country.
- [Charles C. Beckler](https://albinism.org/scholarship-charles/) - Charles C. Beckler 2012 McGowan Leadership Scholarship Recipient Interested to learn what our scholarship recipients have been up to? We caught up with scholarship recipient, Charles C. Beckler, for a brief email interview. Keep reading for an update on Charles' life, his advice for this year's applicants, and much more! What are you currently doing? I am
- [Silpa Tadavarthy](https://albinism.org/scholarship-silpa/) - Silpa Tadavarthy 2010 McGowan Leadership Scholarship Recipient Interested to learn what our scholarship recipients have been up to? We caught up with scholarship recipient, Silpa Tadavarthy, for a brief email interview. Keep reading for an update on Silpa's life, her advice for this year's applicants, and much more! What are you currently doing? I am a
- [Lee-Anne Thompson](https://albinism.org/scholarship-lee-anne/) - Lee-Anne Thompson 2016 McGowan Leadership Scholarship Recipient Interested to learn what our scholarship recipients have been up to? We caught up with scholarship recipient, Lee-Anne Thompson, for a brief email interview. Keep reading for an update on Lee-Anne's life, her advice for this year's applicants, and much more! What are you currently doing? Right now, I'm
- [National Blind Sports Day](https://albinism.org/nbsd/) - Presented by Healthy Vision Association The 3rd annual National Blind Sports Week is quickly approaching! Will you be joining the celebration? National Blind Sports Week Promoting Fitness in Americans with Visual Impairments National Blind Sports Day: Saturday, October 3, 2020 This year, the celebration has been extended to a full week of virtual events September
- [Cassandra Mendez](https://albinism.org/scholarship-cassandra/) - Cassandra Mendez 2015 McGowan Leadership Scholarship Recipient Interested to learn what our scholarship recipients have been up to? We received a lovely note from 2015 scholarship recipient, Cassandra Mendez. Keep reading for an update on Cassandra's life! This past May, Cassandra graduated from The Ohio State University with her Bachelor's Degree in Computer Science &
- [Christie Falco](https://albinism.org/board-of-directors-christie-falco/) - Christie FalcoAttorney New York, NY Current Term: 2019 - 2023 Christie is an adult with albinism. She has been involved with NOAH since a very young age and attended her first NOAH conference in 1994. Since then, Christie has also been active within NOAH’s New York Metro Area chapter and the Hermansky Pudlak Syndrome Network.
- [Antonia Lliteras Espinosa](https://albinism.org/board-of-directors-antonia-lliteras-espinosa/) - Antonia Lliteras EspinosaCommunity MemberDallas, TX Current Term: 2019 - 2023 Antonia is a person with albinism born and raised in Spain. She came to the United States for college in 2008 and never left. Antonia first heard about NOAH via Facebook in 2016. Since then, she has stayed active in the online community and attended
- [About Hypopigmentation](https://albinism.org/about-hypopigmentation/) - Hypopigmentation refers to reduced production of melanin pigment in the skin. There are a number of conditions that result in hypopigmentation including albinism. NOAH's mission is focused on albinism, and as such, information on this website covers albinism exclusively. Looking to learn more about albinism? The Learn About Albinism page is a great place to
- [Teen Spotlight - Diamond G.](https://albinism.org/teen-spotlight-diamond-g/) - Teen Spotlight Main Page Hi, my name is Diamond G.! I'm 14 years old and I have OCA1 where it effect skin hair and eyes. Growing up having to deal with albinism, still dealing today, but I ignore them. My dream is to become a professional dancer. I started dancing when I was very young
- [ED](https://albinism.org/ed/) - National Organization for Albinism and Hypopigmentation Announces New Executive Director East Hampstead, New Hampshire - National Organization for Albinism and Hypopigmentation (NOAH), the world's largest, non-profit albinism support organization, announces the hiring of their first full-time Executive Director. NOAH is excited to announce Karen Bly as their new Executive Director. Karen has over 25 years
- [Rick & Barb H.](https://albinism.org/rick-and-barb-donate/) - Rick and Barb are grateful for NOAH's guidance. “When our grandson Rowdy was diagnosed with albinism, our entire family was at a loss for finding information. Then we discovered NOAH and were provided with much-needed information, guidance and support.”Dedicated NOAH supporters, Rick and Barb have been part of the annual St. Louis Superstars bowl-a-thon team
- [Materials](https://albinism.org/materials/) - NOAH Informational Materials Do you have patients, students, or clients with albinism? Refer them to NOAH with our printed materials! Order today! Sample Materials: Order today!
- [Jeannine S.](https://albinism.org/jeannine-donate/) - Jeannine’s son grew up knowing he wasn’t alone, thanks to NOAH. "As far as why I give, it's really down to all the help and support that NOAH has given me over the years. We joined when Cameron was 4 years old, and he truly grew up with NOAH. He had to deal with all
- [Courtney K.](https://albinism.org/courtney-donate/) - Courtney found NOAH when her daughter, Alison was three months old. "Since our initial diagnosis when Alison was just three months old, NOAH has offered us countless resources and reassurances. As she has gotten older, NOAH continues to provide us as parents those resources and now Alison has learned to take advantage of some of those
- [Charla L.](https://albinism.org/charla-donate/) - Charla believes in the power of NOAH "I never felt comfortable with my albinism, until I found NOAH. As a child I was bullied and ridiculed, and did not have good self-esteem, until I found NOAH. To put it simply, finding and becoming active in NOAH changed my life. I finally felt comfortable in my
- [Elizabeth Drury](https://albinism.org/board-of-directors-elizabeth-drury/) - Board Member Elizabeth Drury
- [Torey Alford](https://albinism.org/board-of-directors-torey-alford/) - Board Member Tory Alford
- [Featured Articles for Adults](https://albinism.org/featured-articles/) - Thanks for dropping by! Whether this is your first interaction with others in the albinism community or whether you’ve been involved since your earliest memory, we’re glad you’re here! We’ve put together some content that we hope will be helpful to you – regardless of your age – so take a look around. Also check
- [Junior Advisory Council](https://albinism.org/junior-advisory-council/) - Created to provide young-adult members of the albinism community an opportunity to become more involved in the direction and leadership of NOAH, the Junior Advisory Council will discuss the needs of young adult members of the albinism community. Junior Advisory Council Members [table id=77 /] Members of the Junior Advisory Council will serve a two-year
- [Elizabeth D.](https://albinism.org/elizabeth-donate/) - Elizabeth believes in the power of NOAH. "A while back, our family of six made a cross-country move. I realized later that in the midst of that hectic season, I had forgotten to take care of a few of our normal banking tasks. One of those tasks had been charitable giving. Without a safeguard, I
- [Teen Spotlight - Valerie M.](https://albinism.org/teen-spotlight-valerie-m/) - Teen Spotlight Main Page Hi, my name is Valerie M.! l'm albino also I'm visually impaired since I was born. Since I was little girl, I saw myself as a demon though out 6th grade-10th grade. My dream is to become a Social worker. My Goal is to move San Francisco or LA in the
- [Teen Spotlight - Samantha H.](https://albinism.org/teen-spotlight-samantha-h/) - Teen Spotlight Main Page Hey humans of the Internet my name is Sam and I have OCA2 :) When I was in elementary school, sometimes these ear and eye exam doctors would visit all the students and administer tests. Imagine six year old Sam, getting her vision tested by a stranger, getting an early taste
- [Teen Spotlight - Stormey M.](https://albinism.org/teenspotlight/stormey-m/) - Teen Spotlight Main Page Hello, my name is Stormey M., I am 14 and in 8th grade. I’m from Tennessee USA and I love Harry Potter. I’m sort of a nerd, I partake in clubs such as, National Junior Beta Club, National Junior Honors Society, and Leadership club at my school. I keep good grades
- [Teen Spotlight - Kendra W.](https://albinism.org/teenspotlight/kendra-w/) - Teen Spotlight Main Page Hey my name is Kendra W. and I am an 18 year old musician with albinism! I can honestly say that growing up with albinism has been an interesting challenge. I have a sister who is about 3 years older than me. She also has albinism and we both needed glasses
- [2020 Salute to Seniors](https://albinism.org/seniors2020/) - Help NOAH salute our seniors! Send your photo and story to eaubrey@albinism.org, and together, we can celebrate these important milestones! Congratulations, seniors! [table id=36 /]
- [Teen Spotlight - Noah](https://albinism.org/teenspotlight/noah/) - Teen Spotlight Main Page Hi, my name is Noah and I live in Ohio. I like to play video games. I watch YouTube. I have a YouTube channel where I give commentary on video games and where I play the game. I might get a GoPro for my birthday so I can record outside the
- [Leadership 2020](https://albinism.org/leadership20/) - Meet the 2020 Leadership Scholarship Winner Aidan O'Connor NOAH is delighted to announce that Aidan O’Connor of Cary, Illinois, is the 2020 recipient of the Michael J McGowan Leadership Scholarship Award. Aidan is a rising senior at Yale University studying ethics, politics, and economics. Aidan’s longstanding commitment to the albinism community grew from a young child
- [PWA Book Club](https://albinism.org/bookclub/) - Information about the PWA Book Club has moved to the NOAH Connections page!NOAH Connections: PWA Book Club
- [Cobe B](https://albinism.org/seniors2020/cobe-b/) - Cobe Berglund graduated from Storm Lake High School in Storm Lake, Iowa. He plans to attend Illinois Institute of Technology in Chicago this fall, enrolling in a 5 year bachelor/master’s degree program in mechanical and aerospace engineering. Congratulations, Cobe! Help NOAH salute our seniors! Send your photo and story to eaubrey@albinism.org, and together, we can celebrate
- [What's Your Vision?](https://albinism.org/your-vision/) - What's Your Vision? Do you have a vision for future support forums, interest group meetings, educational sessions or social activities that would benefit the albinism community? Submit your session ideas using this form to suggest upcoming content and connections for all! What's Your Vision? Submission Form Please note: Submissions will be reviewed by NOAH for overall feasibility
- [Board Service](https://albinism.org/board-of-directors/board-service/) - Are you interested in serving on the NOAH Board of Directors? Applications have closed for available positions on the NOAH Board of Directors. If positions become available at any point in future, the community will be notified and potential new members will have the opportunity to apply. Prospective Board Member Information Informational Call for Prospective
- [Outside Opportunities & Resources](https://albinism.org/outside-opportunities/) - Outside Opportunities & Resources Please note: NOAH shares the following opportunities that might be of interest to community members. Please keep in mind that NOAH is not affiliated with any opportunities below and all questions should be directed to the listed contact. Outside Opportunities & Resources for Adults Life Hacks Links by Elizabeth Schafer &
- [Teen Spotlight - Sam](https://albinism.org/teenspotlight/sam/) - Teen Spotlight Main Page Hi, I'm Sam! I'm 17 and I live in Ohio, though I am from China. I love horses, music, shopping and making new friends, which has been hard during covid. I've been riding horses since i was 5, and want one of my own one day. I homeschool and finish in
- [A Message to the NOAH Community](https://albinism.org/message/) - A Message to the NOAH Community Dear NOAH, After much thought and careful consideration I have resigned as NOAH executive director. Words cannot express the depth of my gratitude to all the NOAH leaders, staff, volunteers and donors who worked with me during my 20 year tenure as board president and executive director. It has
- [How To Host a Fundraiser](https://albinism.org/fundraisers-archive/how-to/) - How to Host a Fundraiser: 1) Set up a fundraising page at https://app.donorview.com/Y4ygp and add your event information (follow along with the SPF 3K-5K-10K Fundraising Page Instructions if you need help!)2) Email the NOAH fundraising team at fundraise@albinism.org with the details of your fundraiser so we can help spread the word!3) Share your fundraising page link with friends
- [About Albinism & Hypopigmentation](https://albinism.org/about-albinism/) - Learn about albinism and hypopigmentation through various resources provided by the National Organization for Albinism & Hypopigmentation
- [Annual Appeal 2020](https://albinism.org/support/) - Will you help us persevere in our mission and give today? Make A One-Time Gift ~ Become a Monthly Giver ~ Other Ways to Give
- [Getting to Know the NOAH Board](https://albinism.org/board-of-directors/gtk/) - We asked NOAH board members to answer a few questions to share a more personal side of themselves with the community. We'll be adding responses from more board members throughout the spring, so check back soon to get to know more about our NOAH leaders. Interviews Rapid-Fire Questions
- [I _ For NOAH](https://albinism.org/for-noah/) - This fundraising season, we know things are a bit different for everyone. Despite challenging times, NOAH has been working hard to keep the albinism community connected, and we need your help to continue our mission. This year, we challenge you to fundraise for NOAH any way that reflects yourself and your interests. With I __________
- [Share with NOAH](https://albinism.org/share/) - Do you have something you'd like to share with NOAH? Use the Share with NOAH form to fill us in on your comments, recommendations, or ideas! Have a doctor that you love? Let us know! Recommend your doctor today! Looking to get in touch about something else? Contact NOAH Please note: if you receive an
- [NOAH Couples](https://albinism.org/noah-couples/) - Help Us Share the NOAH Love! Adult PWAs: how did you meet your partner? Send your brief story to NOAHCouples@albinism.org for the chance to be featured on NOAH social media! Videos or written submissions with a photo welcome. Meet NOAH Couples 2024! Rebecca & Nick ~ Megan & Cory ~ Hannah & John Lee-Anne &
- [Teen Spotlight - Adam W.](https://albinism.org/teenspotlight/adam-w/) - Teen Spotlight Update - April 2023 I [left] JROTC last year after I graduated. In my last year, I was the Training and Advancements Officer and was in charge of the department within my unit. After four years in the program, it was my best high school experience. It will be an integral chapter in my life.
- [Executive Director Search](https://albinism.org/ed-search/) - Updates for the NOAH Community about the search for NOAH's next Executive Director Executive Director Job Description March 31, 2021 Dear NOAH Community, As you know, NOAH has launched a search for a new executive director. We are advertising the job on the usual sites including LinkedIn, Indeed, and Non-Profit Times, but we need your
- [SPF 3K - 5K - 10K](https://albinism.org/spf/) - This fundraising season, we know things are (still) a bit different for everyone. Despite challenging times, NOAH has been working hard to keep the albinism community connected, and we need your help to continue our mission. Walk, bike, hike, swim, run - whatever activity you love, choose your distance and join us for NOAH's 2nd
- [NOAH Connections Advisory Committee](https://albinism.org/noah-connections/advisory/) - Position Description: The NOAH Connections Advisory Committee provides recommendations to NOAH around topics for virtual gatherings, NOAH Connections. As a committee member you will make topic recommendations and review topic suggestions to assist NOAH in formalizing program offerings. Key Responsibilities: Recommend virtual events and event hosts NOAH Connections topics Expectations Attend Zoom discussion meetings once
- [NOAH Virtual Choir](https://albinism.org/choir/) - Coordinated by Marleena Barber, the NOAH Virtual choir is back with an exciting, edgy song that will feature musical rap artist with albinism, RobenX. The performance video will premiere at NOAH Night on June 12th as part of International Albinism Awareness Day. Singers with albinism ages 12 and up are invited to participate. Once registered, participants
- [SPF test](https://albinism.org/spf-test/) - Walk, bike, hike, swim, run - whatever activity you love, choose your distance and join us for NOAH's Inaugural SPF 3K - 5K - 10K! Register Now! ~ Support a Team or Individual Fundraiser Register Now! If the registration options below aren't working properly, visit the SPF 3K - 5K - 10K Dashboard to sign
- [Mentorship Program](https://albinism.org/mentorship/) - Announcing the NOAH Mentorship Program! In 2021, NOAH unveiled its NOAH Mentorship Program to connect young adult PWAs with older members of the community who share their interests. This near-peer mentorship program includes high school students, college/trade students, and recent graduates in the workforce. After a formal screening process, mentors and mentees will be paired
- [Leadership 2022](https://albinism.org/leadership22/) - Meet the 2022 Leadership Scholarship Winner Sarah Kane NOAH is thrilled to announce that Sarah Kane, a rising senior at the University of Pennsylvania in Philadelphia, has been selected as the recipient of the 2022 Michael J. McGowan Leadership Scholarship Award. Sarah majors in physics, specifically astrophysics, with a minor in philosophy. She has engaged
- [NOAH's Back to School Library](https://albinism.org/bts/) - Parents & Caregivers: We want to hear from YOU! How do you/your child share info about albinism with their teachers or classmates at the beginning of the school year? Do you/they write a letter, make a presentation, or go a different route? Help us build this resource for fellow parents and students with albinism! Submit
- [National Adoption Awareness Month: Adoption Stories](https://albinism.org/adoption-stories/) - In observance of National Adoption Awareness Month, we invite community members to share their family's story for the chance to be featured on NOAH social media & website. Submit your story & photos via email to info@albinism.org. The Kramer Family "Before we were married, we talked about adopting two children after having two bio children.
- [Career Corner](https://albinism.org/career-corner/) - NOAH's Career Corner is a new opportunity for adult PWAs to connect with and inspire others in the albinism community by sharing their career or job experiences. If you are an adult PWA willing to share about your career, please fill out this form: https://app.donorview.com/pExwA Career Corner Spotlights! More career corner spotlights will be added
- [In Memory of Pat Laughlin](https://albinism.org/patl/) - Pat Laughlin - Obituary We are heartbroken over the loss of Pat Laughlin. Pat was a beloved member of the NOAH family who was active from almost the very beginning of the organization. She served as a long-time board member, but Pat's passion was NOAH gatherings. She loved the magic of NOAH conferences and family camp,
- [Sibling Survey](https://albinism.org/sibling/) - In an attempt to get to know our population better and to meet the needs of our NOAH family, we would like to invite siblings of all ages to share their experiences, ideas and their unique point of view as someone growing up with albinism in their family. The survey is anonymous and can be used for children
- [Research Grant PR](https://albinism.org/research/pr/) - June 27, 2023Email Contact: info@albinism.orgPhone: 800 473-2310www.albinism.org National Organization for Albinism and Hypopigmentation (NOAH) Research Program Announces 2023 Grant Recipients East Hampstead, NH – June 27, 2023 – The National Organization for Albinism and Hypopigmentation (NOAH) is pleased to announce the award of research grants totaling $125,000, presented to four institutions conducting albinism research. This
- [NOAHCon Attendee - COVID Protocols & Resources](https://albinism.org/orlando/covid-protocols/) - COVID Protocols & Resources We ask that conference attendees please review the NOAHCon 2022 COVID Protocols document before arriving in Orlando. We are so excited to gather in-person! Thank you in advance for helping us protect our most vulnerable community members during this time of high transmission! NOAHCon 2022 COVID Protocols COVID Resources Conference Lanyard
- [Leadership 2023](https://albinism.org/leadership23/) - Meet the 2023 Leadership Scholarship Winner Ashleigh Rogers NOAH is thrilled to announce that Ashleigh Rogers has been selected as the recipient of the 2023 Michael J. McGowan Leadership Scholarship Award. Ashleigh will attend Lebanon Valley College in Annville, PA majoring in Actuarial Science with a minor in Economics this fall. She has been involved
- [Spiffy's Scavenger Hunt](https://albinism.org/scavenger/) - Complete the tasks below and fill out your Spiffy's Scavenger Hunt Card. Each task number corresponds with the box of the same # on your card. Fill out your full card to be entered in Spiffy's prize drawing. Prizes include NOAH swag and a voucher for $50 off a future NOAH Event (3 vouchers will
- [NOAH's Adopt A Day Fundraiser](https://albinism.org/fun/adopt-a-day/) - Adopt-A-Day Fundraiser!May 13 - June 13, 2024 Looking for a fun and easy way to support NOAH? Join us for our Adopt-A-Day Fundraiser! Each day on our Countdown to IAAD! calendar has a dollar amount - ask your family and friends to adopt a day by making a donation in that amount. Fill your whole
- [Information Bulletin - Assisting Students With Albinism](https://albinism.org/information-bulletin-assisting-students-with-albinism/) - Learn about different ways to support a student with albinism in the classroom.
- [HPS Advocacy Request](https://albinism.org/hps-advocacy/) - Advocacy for Hermansky-Pudlak Syndrome Research NOAH is asking you to contact your members of Congress in the House of Representatives and Senate to request that Hermansky-Pudlak Syndrome be added to the list of conditions eligible for research funding through the Department of Defense's Peer Reviewed Medical Research Program (PRMRP). This is not a request for
- [Information Sources](https://albinism.org/info-sources/) - NOAH offers a variety of ways to learn about albinism - from publications to YouTube videos to social media.
- [NOAH SchoolKit, CARE Project and Connection Programs](https://albinism.org/noah-schoolkit-care-project-and-connection-programs/) - NOAH provides several programs to support families of children with albinism.
- [Donna Appell, RN](https://albinism.org/board-of-directors-donna-appell/) - Board Member Donna Appell
- [Jasmine is a Star at NOAHCon!](https://albinism.org/noahcon/jasmine/) - Synopsis: A determined sixteen-year-old with albinism makes it her mission to become a professional model in her hometown of Minneapolis, while attempting to go unnoticed in every other aspect of her teenage life. Against the backdrop of fall in the Twin Cities, Jasmine explores what independence looks like for someone like her, and more importantly,
- [The CARE Project](https://albinism.org/care/) - The CARE Project (Creating an Albinism Resource for Education) provides parents of school-aged children with albinism, educators and other professionals with resources and information to assist them in formulating a child with albinism’s education document.
- [Information Bulletin - Ocular Albinism](https://albinism.org/information-bulletin-ocular-albinism/) - Ocular albinism in an inherited condition in which the eyes lack melanin pigment, while the skin and hair show normal or near-normal coloration.
- [NOAHCon Attendee Page - Kids' Conference](https://albinism.org/orlando/kids-conference/) - Kids' Conference - Attendee Page Conference Programplease see pages 8-12 for Kids' Conference Info Flamingos Info & Backpack List NOAHCon2022 SponsorsUnder the Same SunEpstein | OstroveiYellow Group
- [Guidelines for Submitting Images](https://albinism.org/ai/image-submission-guidelines/) - Regarding Submitting Images with Articles for Albinism Insight When you send us photos for stories in the Magazine, we want those photos to print beautifully and highlight the article/story you submit. We have recommendations for you when considering the images you’d like to use: Please send your BEST photo/s in terms of color, brightness, and clarity. You may send
- [Black History Month](https://albinism.org/black-history/) - February is Black History Month, and we want to hear from YOU! Black PWAs, we invite you to share your experiences as a Black person with albinism throughout February and beyond. We welcome written submissions, photos, videos, and more! Please send submissions to eaubrey@albinism.org for the chance to be featured on NOAH social media and
- [Ainslee's Girl Scout Silver Award Project](https://albinism.org/ainslee/) - FYI - Community Member Project NOAH community member, Ainslee Jones, is collecting sensory toys and books for NOAH to add to New Parent Toolkits as a project for her Girl Scout Silver Award, and she is seeking donations. Read a message from Ainslee below: My name is Ainslee Jones. I am 13 years old and
- [NOAH Research Program Grant Archive](https://albinism.org/research/archive/) - March 15, 2022Email Contact: info@albinism.org Phone: 800 473-2310www.albinism.org National Organization for Albinism and Hypopigmentation (NOAH) Awards Inaugural Grants to Fund Albinism Research East Hampstead, NH – March 15, 2022 – The National Organization for Albinism and Hypopigmentation (NOAH) is pleased to announce the award of research grants totaling $125,000, presented to three institutions conducting albinism
- [NOAH Research Program Spotlight](https://albinism.org/research/spotlight/) - 2023 NOAH Research Program Spotlight Extending our ongoing support for albinism research Dear NOAH Community, It has come to our attention there is a need for greater clarity regarding the NOAH Research Program. NOAH strives to maintain open communication with our community and supporters; however, sometimes we fall short. I would like to take this
- [NOAH Research Program Committee](https://albinism.org/research/committee/) - Are you interested in serving on the NOAH Research Program Committee? Applications are currently being accepted to invite new members to NOAH's Research Program Committee. Since 1982, NOAH has supported ongoing research which could provide positive outcomes or interventions for those seeking them within the albinism community. The NOAH Research Program is committed to becoming a leading
- [NOAH's Strategic Plan](https://albinism.org/strategic/) - Planning for our Future By Karen Bly, NOAH Executive Director Like many nonprofits, NOAH has been navigating our “new normal” in this post-pandemic world. Since 2020, NOAH has seen shifting paradigms in fundraising and in-person events. In 2021, NOAH hired their first full-time Executive Director (that’s me!) and in 2022, NOAH hired a part-time Program
- [Contact NOAH](https://albinism.org/contact-noah/) - How to Contact NOAH
- [Disclaimer](https://albinism.org/disclaimer/) - Website Disclaimer
- [Recently Diagnosed - New Parent Program Intake Form](https://albinism.org/new-parent-intake-form/) - New Parent Program Intake Form - Recently Diagnosed
- [Newly Adopted - New Parent Program Intake Form](https://albinism.org/new-parent-program-intake-form-recently-adopted/) - New Parent Program Intake Form - Recently Diagnosed
- [Scavenger Hunt Update](https://albinism.org/orlando/scavenger-hunt-update/) - We look forward to seeing you for our pre-conference scavenger hunt at Disney Springs tomorrow! Please meet in the 1st floor courtyard outside, next to the fitness center (#4 on your hotel map) at 12 noon ET. You will need one fully charged smartphone for your team to access the scavenger hunt through the GooseChase
- [NOAH Memorial](https://albinism.org/memorial/) - NOAH started because of people willing to volunteer their time and expertise to bring others with albinism together. What has evolved through many years of volunteer hours, is a connected community of people with albinism, their families, and the professionals who support them. Some were only around briefly, but made important contributions, some gave their
- [Online Store](https://albinism.org/online-store/) - NOAH Online Store - Purchase NOAH resources or support NOAH with a donation.
- [Privacy Statement](https://albinism.org/privacy-statement/) - NOAH Privacy Statement
- [Parent Connections Program Interest Form](https://albinism.org/parent-connections-program-interest-form/) - Parent Connections Program Interest Form
- [Memorial Gift](https://albinism.org/memorial-gift/) - Honor the memory of someone who has touched your life through a Memorial Gift to NOAH.
- [Member - Recommended Doctors](https://albinism.org/member-recommended-doctors/) - Complete this form to recommend a medical professional.
- [Information Bulletin - What Do You See?](https://albinism.org/information-bulletin-what-do-you-see/) - What does a person with albinism actually see?
- [Information Bulletin - What Do You Call Me?](https://albinism.org/information-bulletin-what-do-you-call-me/) - We all know that words can be powerful, so how do you say that someone is an albino without being disrespectful?
- [Join NOAH](https://albinism.org/join/) - Learn how to Join NOAH
- [Grandparent Connections Intake Form](https://albinism.org/grandparent-connections-intake-form/) - Grandparent Connections Intake Form
- [Albinism InSight Subscription](https://albinism.org/albinism-insight-subscription/) - Subscribe to NOAH's quarterly magazine, Albinism InSight.
- [Toys for Young Children with Albinism](https://albinism.org/toy-suggestions/) - Please note: The following toy ideas were submitted by Parent Connections member, Rachel B. The toys listed are not endorsed by NOAH, and as such it is recommended that each family use their discretion in choosing toys that are appropriate for their children. Do you have suggestions for our toy list? Submit your toy suggestions
- [IHeartNOAHCon!](https://albinism.org/noahcon/iheartnoahcon/) - IHeartNOAHCon! NOAHCon 2020 is just around the corner and our whole community is so excited to join in on the fun. Watch the videos below to find out why everyone loves NOAHCon! #IHeartNOAHCon Jump to:kids of PWA ~ kids with albinism siblings of kids with albinism ~ parents ~ PWA Kids of PWA <3 NOAHCon
- [NOAH Monthly Giving](https://albinism.org/monthly/) - NOAH cannot serve the albinism community without your support. Your Monthly Giving to NOAH directly benefits the community.
- [Recommend A Medical Professional](https://albinism.org/recommend/) - If this form is not loading properly, please visit the direct link: Recommend A Medical Professional
- [State Nonprofit Disclosures](https://albinism.org/state-disclosures/) - Certain states require written disclosures for nonprofit organizations soliciting contributions. Individual state disclosures are below. Florida: A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE, WITHIN THE STATE, 1-800-435-7352 (800-HELP-FLA), OR VISITING www.FloridaConsumerHelp.com. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE
- [Volunteer Position Application](https://albinism.org/volunteer-position-application/) - NOAH Volunteer Position Application
- [One-Time Donation](https://albinism.org/one-time-donation/) - Your donation directly benefits the community. Make your one-time donation today and support NOAH programs.
- [Volunteer Interest Form](https://albinism.org/volunteer-interest-form/) - Volunteer Interest Form
- [Volunteer Application Form](https://albinism.org/volunteer-application-form/) - Volunteer Application Form
- [NoahCon2018 Auction](https://albinism.org/auction/) - This form does NOT support Safari, please use Google Chrome or Firefox. NOAHCon2018 Online Silent Auction
- [NOAHCon Sched 2018](https://albinism.org/noahcon-sched-2018/) - Sched
- [IAAD Video Poem](https://albinism.org/iaad-video-poem/) - Video Poem Entitled "Cries Of Albinos/ Cries Of Humanity", By Gcina Vabaza For International Albinism Awareness Day, 13 June 2018.
- [Conference Merchandise](https://albinism.org/conference-merchandise/) - NOAHCon 2018 Conference Merchandise
- [Career Fair Sign Up](https://albinism.org/career-fair-sign-up/) - NOAHCon2018 Career Fair Sign Up
- [2018 Conference Personal Grant Application](https://albinism.org/2018-conference-personal-grant-application/) - 2018 Conference Personal Grant Application
- [Setting up a Fundraising Page](https://albinism.org/setting-up-a-fundraising-page/)
- [Leadership Scholarship Application](https://albinism.org/leadership-scholarship-application/) - McGowan Leadership Scholarship Application Form
- [Information Bulletin - Hermansky-Pudlak Syndrome](https://albinism.org/information-bulletin-hermansky-pudlak-syndrome/) - Informational resources for Hermansky-Pudlak Syndrome.
- [Bowl-a-thon Current Participants](https://albinism.org/bowl-a-thon-current-participants/) - Bowl-a-thon Current Participant Information
- [Bowl-a-thon Fundraisers & Teams](https://albinism.org/bowl-a-thon-fundraisers-teams/) - Bowl-a-thom Fundraisers and Teams Lists

## Ultimeters

- [Spring for NOAH](https://albinism.org/ultimeter/spring-for-noah/)
- [38th Birthday](https://albinism.org/ultimeter/38th-birthday/)

## Tags

- [bowl18](https://albinism.org/tag/bowl18/)
- [fundraiser](https://albinism.org/tag/fundraiser/)
- [spring fundraiser](https://albinism.org/tag/spring-fundraiser/)