Cleveland Area Get Together
Friday July 17th at 6:00pm
Socializing, information and fun!
Cleveland Sight Center
1909 E 101st St
Cleveland, OH 44106
(216) 791-8118
- Come meet others from the albinism community
- Talk about starting a NOAH group in the area
- Refreshments will be served
To RSVP or for more information call Venetta at (216)375-9351
Meeting space provided by the Cleveland Sight Center:
www.clevelandsightcenter.org
NOAH is committed to bringing the fellowship of the albinism community
closer to your area in 2009. More events in different regions of the country
means more opportunities for you to be a part of the NOAH magic! Below are
just a few of the events being planned for 2009, with even more to come!
2009 Bowl-A-Thon ~ Thanks to all who participated!
February 20-22, 2009
This year's bowl-a-thon was a great way for the albinism community to
come together in person locally and in spirit across the United States and
Canada while raising funds for NOAH programs. NOAH depends on dues and
donations by its members to continue to operate basic programs, and needs
the bowl-a-thon to fund special projects and new initiatives. All of the
money that you collect will help keep NOAH moving forward.
It's not too late to donate! Visit
http://events.org/noah and make a contribution to your state or favorite
member's team.
New York Area mini-conference
LAST CHANCE! NOAH's one-of-a-kind experience is coming to New York! YOU
WON'T WANT TO MISS IT!
DEADLINE EXTENDED TO
TUESDAY, MARCH 10TH!
Download the event flyer.
In conjunction with the 2009 HPS conference
Saturday, March 21, 2009 from 9:00am - 4:00pm
Long Island Marriott Hotel & Conference Center
Uniondale, Long Island
View Larger Map
A full day of panels, sessions, and networking for the albinism
community, including:
- The Genetics of Albinism
- How We See
- Ask an Adult with Albinism
- Adult and Family Discussion Groups
- Children's Field Trip to Ringling Brothers Circus
The educational sessions you've been waiting
for...
- Albinism Research with David Adams, Ph.D., M.D., assistant clinical
investigator in the lab of William Gahl at the National Human Genome
Research Institute at the National Institutes of Health.
- Genetics of Albinism with Murray H. Brilliant, Ph.D., Lindholm
Professor of Genetics in the Department of Pediatrics at the University
of Arizona College of Medicine.
- Hermansky-Pudlak Syndrome with Donna Appell, RN, President and
Founder of the HPS Network, NOAH's Board of Scientific Advisors.
National presenters that you want to hear...
Top-notch education of a national conference presented in an intimate,
mini-conference setting ~ an incredible opportunity at a bargain price!
Adult member registration only $35.00, including lunch.
NOAH is committed to making this opportunity
available to as many members of the albinism community as possible. Don't let
this chance pass you by! Contact NOAH today!
- Transportation concerns? We can help to arrange rides from public
transportation points in Manhattan. Call or email for details.
- A little short on cash? If you're dying to come but can't quite pull
together the funds to register, contact NOAH for ideas to make the event
possible at (800) 473-2310 or info@albinism.org
Informative sessions and networking
opportunities...
- Ask an adult with albinism.
- Parent and adult discussion groups.
- Network with the albinism community.
'The Greatest Show on Earth' for children!
Let kids be kids enjoying a day at the circus.
Registration deadline extended
to Tuesday, March 10th!
Download the flyer for more information. You may also fax your registration
to 800-648-2310. Email info@albinism.org
for more details.
North Texas Chapter 'March Madness' Meeting
Sunday, March 22nd from 3:00 - 5:00pm.
Handley Meadowbrook Lions Club
6013 Craig Street
Fort Worth, TX 762112 (let us know if you need transportation assistance)
View Larger Map
- Join us for socializing, information, and fun!
- Help plan our July 18, 2009 mini-conference.
- Hear about Cyd Frazier's visit to the Low Vision Clinic.
RSVP Cyd at gccfrazier@yahoo.com
Sign up to bring a March Madness snack to share (hot dogs, buns, chips,
potato salad, beverages, condiments, etc.)
West Virginia Albinism Family Day
Registration is March 25, 2009.
Download the event flyer.
Saturday, April 04, 2009 from 10:00am - 3:00pm
Bridgeport Holiday Inn, Bridgeport, WV
Sponsored by:
West Virgina Schools for the Deaf and Blind
West Virginia University
American Foundation for the Blind (AFB)
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Dinner with NOAH's Board of Directors - Saturday May 2, 2009
Join NOAH's Board of Directors and area friends of NOAH for this
celebratory evening of good food, friends and fun. Learn how you can become
involved in the building excitement for NOAH's 2010 National Conference in the
DC Area!
When: Saturday, May 2, 2009 at 6 PM
Where: King Street Blues-Crystal City, 1648 Crystal Square Arcade,
Arlington, VA 22202
Take the Metro! Crystal City stop, from the Blue & Yellow lines, only steps away
from station.
Cost: Member rates: $21.50 adults, $7.50 kids 12 and younger (Price
includes beverage, tax, and gratuity)
Awesome Adult Menu: Choose from Margarita Chicken, Ultra Famous BBQ Ribs,
Country Fried Chicken, Country Fried Steak, Cats & Dogs- Southern Fried Catfish
Fillets with Hushpuppies, BBQ Pork Chops, or Garden Vegetable Pasta. Entrees
served with chef's special selection of accompaniments, and bottomless soda,
lemonade, or iced tea.
Kickin' Kids Menu: Chicken tenders and fries, 2 mini hamburgers or
cheeseburgers and fries, 2 mini pulled chicken or pork BBQ with fries, hot dog
with fries, grilled cheese with fries, macaroni and cheese, or spaghetti and
meatballs. Served with choice of milk or soda.
Register by Friday, April 24,
2009. Download
the event flyer.
Chicago Mini-Conference – May 9th, 2009
Chicago Bar Association
321 S. Plymouth Ct.
5th Fl.
Chicago,
IL
60604
United States
Awesome Adult Program
| 09:30 — 10:00 AM | Registration |
| 10:00 — 10:15 AM | Welcome,
Introductions and NOAH Now – Mike McGowan, NOAH President |
| 10:15 — 10:45 AM | National Institutes
of Health Protocol – Dr. David Adams, NIH; Kelsey Thompson, NOAH Board
of Directors; Donna Appell, RN, NOAH Board of Directors |
| 11:00 — 11:45 AM | Genetics of Albinism
– Dr. Murray Brilliant, University of Arizona |
| 12:00 — 12:30 PM | Hermansky-Pudlak
Syndrome (HPS) – Donna Appell, RN, HPS Network and NOAH BoD |
| 12:30 — 01:30 PM | Lunch |
| 01:30 — 03:00 PM | Discussion Groups –
Adults with albinism, Parents of children with albinism |
| 03:00 — 04:00 PM | Afternoon Social
Hour/Refreshments |
Fun for Kids!
Children ages four and younger will enjoy age appropriate, safe
activities on site. School aged children will spend the well-chaperoned day
at Navy Pier where they will ride the Ferris wheel, play mini golf, have
lunch at McDonald's and visit the Chicago Children's Museum. Just a short
CTA bus ride from the conference location, what could be more fun than
playing and having fun with friends old and new from the albinism community?
Program Check-in: 9:30 AM, Depart: 10:00 AM, Return:
3:00 PM
Getting There!
- Public Transportation – Easy to get to on the
CTA and Metra.
- Parking – Parking Garage Rates will be around $30; Some metered and
non-metered street parking may be available.
- Nearby Garages – 412 S Dearborn St (Open 6:30 AM — 8:00 PM),
318 South Federal (Open 24 hours; Phone 312-986-5813)
Volunteer with the Kids!
Are you or someone you know Fun? Enthusiastic? Responsible? Love Kids? Yes!
Then NOAH may be looking for you! NOAH is seeking a limited number of volunteers
to help out with supervision during the mini-conference. If you or your child's
vision teacher, aunt, uncle, grandparent, or best friend forever would like to
be considered, email info@albinism.org or
call 800-473-2310 for more details.
Register Today!
The Chicago
mini-conference is the third in a series of regional events across North
America in 2009. NOAH is committed to bringing the magical experience of an
albinism community gathering to more locations this yea, reaching out to those
who might not be able to attend a NOAH conference. It's a jam-packed day
featuring top experts in the field, meaningful panels and discussion groups, and
the opportunity for kids to be kids within the albinism community. Member
registration fees are $25 for attendees ages 5 and up, 4 and under are free. Be
a part of the NOAH magic!
Register by Monday, April 27, 2009.
Download the conference flyer.
North Texas Albinism Community Putt-Putt Outing!
Join us Saturday, May 23, 2009 for some fun and games!
We are meeting at the
Putt-Putt Fun Center in Fort Worth, TX. $10.00 gets us unlimited
putt-putt, 40 tokens for games, and a hot dog with drink — all until 2 PM.
Kids 5 and under are free with adult ticket purchase.
WHEN: May 23, 2009 at 10:30 AM
WHERE:Putt-Putt Fun Center
7001 Calmont, Fort Worth, TX 76116
(817) 737-2242
RSVP: Cyd
Frazier
Please join us for socializing, information, and FUN!

North Texas Mini-Conference
Registration Deadline Extended to July 13th!!!
Saturday, July 18th, 8:30am - 4:00pm
Cook Children’s Hospital, Hochberger Auditorium
801 Seventh Ave., Fort Worth, TX 76104
Speakers and session topics include:
- Eric A. Packwood, M.D., Pediatric Eye Specialists- Eye Surgeries
- Mike McGowan, NOAH President- NOAH Now
- Stephanie H. Fleming, O.D., Dallas Services- Low Vision
- Nancy Lee, North Texas Chapter NOAH- Hermansky Pudlak Syndrome
- David Adams, Ph.D., M.D., National Institutes of Health- NIH OCA
Research
- Mary K. Kukolich, M.D., Cook Children’s Hospital- The Genetics of
Albinism
- Margaret Mary Campbell, NOAH BOD- Teaching Reading to a Child with
Albinism
- Discussion Groups- Adults with albinism, Parents of children with
albinism
- Panel- Ask an Adult with Albinism
Fun for Kids!
Kids will enjoy a fun filled day including a bully
proofing session, and a cele-bear-ation with a special
guest appearance by Bearemy. Each child makes his/
her own new best friend.
Download Registration Form Here!
For more information, please email: noah.ntx@albinism.org
NOAH's Third Family Summer Camp
We're Camping at
Beacon Lodge, Mount Union, PA
July 23-27, 2009
View Larger Map
NOAH's third biannual Family Summer Camp has been scheduled for Thursday,
July 23 - Monday, July 27, 2009. We're excited that this year's camp will be
a day longer, but is still being offered at the 2007 of only $315 per
attendee. In addition, we're thrilled to be able to offer multiple children
discounts, allowing a second child to attend for $275, and 3+ children in
family for just $250 per child.
Check out the 2009 Family Summer Camp
information page to learn more about planned activities, funding
resources, and to download a registration packet.
What’s Happening in Your Area?
The enormous growth in local and regional NOAH activities recently is a tribute to the wonderful NOAH members who chose to step up and take the lead. With their initiative, NOAH helps spread the word and encourage people to get together and enjoy the fellowship of the albinism community. For more information about getting local activities organized in your area, contact NOAH at info@albinism.org or call 800.473.2310.
The bowl-a-thon is a fun way for the albinism community to come together in person locally and in spirit across the United States and Canada while raising funds for NOAH programs. Bowling for NOAH reaffirms that we are all part of the larger albinism community. It is just one of the fabulous ways in which NOAH helps create a sense of an extended family.
As of today the Bowl-A-Thon has brought in over $250,000. It has enabled NOAH to move forward in many different ways. We must keep building on this momentum. The heart of the Bowl-A-Thon is getting people in the albinism community together to have fun, educate, raise awareness and money.
Across the river from Washington, D.C., and just minutes from Reagan National Airport, the Crystal Gateway Marriott offers exceptional accommodations, luxurious amenities and impeccable service. This Crystal City Marriott is surrounded by Arlington’s best shopping and dining with the Crystal City Metro stop accessible from the lobby of the hotel.
Reservations require a one night deposit plus tax,refundable if cancelled 72 hours before arrival.
February 15-18, 2008
Whether you bowl or host your own
bowl-a-thon or a “thing-a-thon*”
event of your own, save the dates to have some fun and support important NOAH
programs in 2008.

NOAH’s 2008 National Conference
“Imagine Your Luck”
July 10-13, 2008
The Riviera
2901 Las Vegas Blvd., South
Las Vegas, NV 89109Las Vegas, Nevada
http://www.rivierahotel.com/
Online
Reservations
Reservations: 800.634.6753
Hotel Info.: 800.634.3420
NOAH
Registration Packet is available.
Mail completed registration forms to NOAH, PO BOX 959, E. HAMPSTEAD, NH
03826-0959
NOAH’s Conference Committee has exciting plans for our attendees in 2008.
With the incredible amount of meeting space available to us at the Riviera, our
committee has the opportunity to provide innovative and specialized programming
to meet the diverse needs and interests of our membership. NOAH’s entire
leadership team is getting involved in planning this, our 12th national
conference.
In addition to the traditional favorites, we’ll be taking a fresh look at
keeping the event exciting for our return attendees with innovative, engaging
content and activities. Ideas being considered include:
- Expanded special interest/subgroup programming and activities
- Enhanced networking activities
- Re-vamped “kids conference” including:
- smaller school grade groupings
- lunch with your friends
- 10am-2pm schedule
- Family field trips
- Mini-retreats for parents
- Parent/child sessions
Conference Lodging
The Riviera has offered NOAH an exceptional room rate for the conference.
Single/double occupancy rooms are $94 per night plus tax for Friday/Saturday
nights, and an amazing $79 per night plus tax Sunday thru Thursday nights!
Reservations can be made by calling 800.634.6753 no later than June 20, 2008.
Note: Reservations require a one night’s deposit plus tax,
payable by credit card, check, or money order (refundable if cancelled 48 hours
before arrival).
The Riviera
2901 Las Vegas Blvd. S.
Las Vegas, NV 89109
www.rivierahotel.com
Reservations: 800.634.6753
Hotel Info.: 800.634.3420
We anticipate that this may be our biggest conference yet, so make your own
luck and start planning now...you won’t want to miss this one-of-a kind
gathering of the albinism community.0
Vegas Is Affordable For Everyone!
This may be the most affordable conference in NOAH history so even more
people can experience the magic of a conference. Airfares to Las Vegas tend to
be some of the lowest in the country. And, the Riviera room rate is just $79 per
night Sunday – Thursday and $94 per night Friday - Saturday.
We Have Enough Room To Be Comfortable!
With over 600 people attending both of the last two conferences, NOAH needs
space! Because Las Vegas is the nation’s leading conference destination they
have enough space to accommodate our growing membership.
Spend Time With Your Family!
Did you know that Las Vegas is a great family destination? We’ve added some
free time to the conference schedule so you can take your family to visit the
IMAX Theater, or Shark Reef (an amazing aquarium). Take a Lake Mead boat tour or
visit the historic Hoover Dam. There’s even an indoor theme park – a great way
to have fun out of the sun!
Make It A Vacation!
You can extend your conference experience into a vacation. You’re close to
southern California so you can hop over to see the lights of Hollywood and the
rest of Los Angeles or sea breezes in San Diego. Las Vegas is also an easy drive
to the Grand Canyon!
New City – New Schedule!
To keep the conferences fun and exciting, we’re giving the schedule a
makeover!
New in 2008:
- Specialized welcome sessions for a smoother transition into the conference.
- Meet the conference mascot, Lucky T. Duck! He’ll quack you up!
- More programming and activities for special interest groups within NOAH such
as young adults and people of color.
- Enhanced networking – get to know the people who can help you!
- More discussion groups so that you can get answers and share your
experiences.
- Optional social events for all ages!
- Kid-friendly schedule
- Smaller school-age groups
- Lunch with your friends
- 10:30 a.m. – 2:30 p.m. schedule
- Unforgettable Saturday night festivities that you won’t want to miss!
Registration
Early bird registration fees are $150 for members ages 5 and up, and only $75
for children ages 6 months to 4 years.
Lodging Reservations
$94* per night Friday/Saturday $79* per night Sunday-Thursday Call the
Riviera at 800.634.6753 no later than June 20, 2008. *Single/double occupancy
plus tax. Reservations require one night’s deposit plus tax, (refundable if
cancelled 48 hours before arrival).
Registration Package
To Register for the NOAH Conference please print the
Registration
Package and return the registration form.
Funding Sources Information Packet
If you think that going to a NOAH conference is beyond your means, we may be
able to help you find organizations that can help pay for your expenses. NOAH
has prepared a
Funding Sources 2008
information packet to help potential attendees find ways to obtain assistance
with conference expenses outside of the NOAH personal grant process.
Personal Grant Applications
If you've tried contacting organizations such as those listed in the
Funding Source Information
Packet but still need financial help getting to the conference, you may
submit a
personal grant
application. Through the generous donations of NOAH members and the money
from fund-raising events such as the bowl-a-thon, a limited amount of money will
be available to assist members in attending the NOAH conference.